Madeleine apparently decided, some time in the last two weeks, to selectively delete things from her account in an attempt to change the narrative. At first I found spaces in my written captions where I had failed to screenshot the image properly or at all and when I went back to her account to find them they were gone. The images before and after them still existed but the specific one I wanted was nowhere to be found. I figured it was an issue on my end, that I was actually writing about someone else at the time and had put it in MC's file by mistake since I tend to work on a bunch of these at the same time. Then I found images in my own archive that are no longer on her instagram even though they were as recently as 11 June. It seems she tried to wipe out some proof that what happened to her was her own fault and that she galloped gleefully to her eventual fate while the grown ups tried to stop her. Whoops, too late, already archived. I have marked what she tried to delete for your entertainment!
Account starts in Spring 2014. She’s a weird but active 23 year old woman who posts about her bike and running all the time. She works at a christian book store and also has a paper route.
She also cooks food that’s unappealing to say the least but we’re not here to critique someone’s cooking and plating technique. These are some of the better-looking examples.
Okay, nut allergy. She’s allergic to tree nuts and peanuts. Not suspicious. In fact, when I first started writing this I took the nut allergy as a fact and moved on. For two years’ worth of posts I just assumed she had this one genuine thing and was either too retarded to avoid nuts or intentionally contacting them when she needed some drama in her life. I wrote like 5 pages of captions under this assumption.
But much later she will drop a link to her blog. It starts in 2010 (age 19) as an allergy recipe blog and from this we learn that she has many known or suspected food allergies so she eats a dairy, nut, egg, corn, wheat, and soy free diet. I’m going to summarize her posts but even the summaries will be long because holy fuck this girl writes dissertations on this blog. And yes, I read the whole thing so you don't have to.
She reintroduces soy without problem but wheat makes her feel icky even though she tests negative for celiac. But she’s highly suspected of having celiac.
She makes a joint blog with a friend where we learn her family is French and she grew up speaking both French and English. She also is learning to sign ASL. Blog is short lived and boring as all fuck.
(She also has a youtube under the name signingfroggie where she uploads some videos of her signing, some for school projects and some interpretations of songs. It’s not interesting and ASL interpretation is her major in college so she’s not LARPing deaf or anything.)
She’s officially diagnosed with celiac which is causing her to have a leaky gut and making her react to other foods. I’m not sure that’s how that works.
Gluten free has now become her identity.
Here we learn she doesn’t have any IgE-mediated food allergies. This means she doesn’t have the horrible, “this will kill me” anaphylactic type allergies. Non-IgE allergies are generally gastro symptoms, not life threatening, do not require an epi pen, etc. They might suck but they’re not going to make your airway swell shut. She has now found out she doesn’t react to two more things she thought she did, corn and eggs, and will be adjusting her recipes accordingly.
We learn she was homeschooled.
This is an interesting post wherein we learn her celiac is probably anxiety. She accidentally drops a possibly contaminated tub of butter onto her plate and is anxious about it but decides to eat it anyway. Very soon after she has breathing problems which are not a symptom of celiac disease. Basically every hit I found googling around for info on respiratory manifestations of celiac says “not related” or “my doctor says it’s anxiety.” There were a few articles mentioning a possible link between celiac and asthma. The rest of this is just paraphrasing a meaningless conversation with a child.
She reviews her university’s cafeteria and the allergy protocols they follow. Don’t worry, she wasn’t paid to review the University of North Dakota’s cafeteria! You know those shady publicly funded universities, always paying shills to talk up their cafeteria services.
I won’t bore you with this whole entry but basically she wanted to do some social media pie challenge thing but she lives in a dorm and doesn’t have a real kitchen available. So she makes a pie out of some gluten free flour, fake butter, and grapes she took from the cafeteria, remarking that they were the only fruit not contaminated by gluten because they are kept in a special fridge for her, then cooks it all in a pan on a kitchenette stove in her RA’s room. This is some anna johnson shit man.
Her school situation is a little murky but she does an online college for the fall/spring semesters and then over the summer she goes to UND for some immersive sign language program. So she’s only there for nine weeks but during those nine weeks she has three major issues. Remember as you read this that she has been told she has no IgE-mediated allergies, which is what she thinks she’s describing here. The first incident was when she accidentally used dairy milk and didn’t start to react until after she noticed it was dairy. Benadryl makes it better. Second was when she thinks dairy somehow contaminated her food. Benadryl again. Third one was the big one. She has to go to a different cafeteria. This makes her anxious as she can’t completely control the environment: at the larger cafeteria she has a space to herself and after the milk incident they decided she’s too retarded to feed herself so she gets a whole fridge for only her food. In the smaller one they can’t dedicate an entire section of the kitchen to her so they do their best, but she still has an issue after eating a gluten free sandwich. She describes being confused and dizzy and struggling to breath (but not going cyanotic). During this life-threatening bout of anaphylaxis she answers questions, gets moved to a different location and decides she doesn’t want to walk any further so she makes her friends carry her into the student lounge, and she remembers every detail of the situation, all while refusing to use her epi-pen. Finally someone jabs her against her will and the university staff calls 911. She was doing better until the paramedics arrived when she suddenly started to act confused, so she’s loaded into a booboo bus and taken to the ER. She’s given benadryl and steroids. All of this was sparked by eating turkey sliced on the same slicer that had been used to slice cheese. And now she wants a dog to sniff all her food for her to tell her if it’s contaminated or not. IDK this all sounds like a panic attack that was exacerbated when everyone started to fuss over her if I’m being generous, or a very dramatic show if I’m being less generous. I’m leaning towards the latter since she immediately goes to “service dog now.”
Ew kids are so gross, lol. She has another reaction after eating something, goes to some church youth program she does, tells them she’s having a reaction to food. Again people fuss over her. This time they get her water to take her benadryl with and she gets worse. Once again she refuses to walk and makes people carry her places. She is then taken to the ER for prednisone and zantac. Days later she’s back at church and watches kids put their mouth on the spigot of the water cooler right after snack time and surmises that this is the cause of the contamination.
This is mostly a boring update about how her semester of (online) classes went, but she has some more serious allergy incidents. One she reacts to a previously safe food and has to go to the ER for nebs and IV steroids. Another time the dog licked her a half hour after eating peanut butter and this was enough to set her off. She has “a strange history of having negative test results, but still reacting severely to certain foods.” LMAO. Getting more serious about getting an allergy alert dog which would allow her to go back to campus. Oh lord.
December 2011 we get another tome. As before, she eats something, starts to feel anxious about it, goes to church, and tells someone that she’s possibly contacted an allergen. This time she doesn’t get an audience because they’re in an actual service, so she waits until the end of it when people can pay her all the attention to jab herself and get the paramedics called. Again she’s fine until the paramedics show up and then she starts declining again. She gets put in the ambulance where she starts wheezing and gasping until they stick her with epi again and turn on the sirens. Once at the ER they have her stabilized and ready to leave and so she starts wheezing and gasping again. They want to keep her for obvs but this requires transferring her to another hospital. Once at the new hospital she pulled this shit a few more times to get IV benadryl. She’s finally discharged but not before she makes a pest of herself with the cafeteria.
She goes back to UND in summer 2012 after ALMOST DYING!!!!!! the previous year. She has a stress fracture in one of her feet and is in a walking boot. This post is mostly entitled whining about how people don’t deep clean every surface they touch to ensure that she will not touch that surface afterwards and be exposed to one of her deadly allergens.
I’m really not sure if she’s actually autistic or just an extremely sheltered socially stunted control freak who has suddenly been thrust into a world where there are variables she can’t control. This conversation hasn’t clarified. She is brought to tears because someone at the school says “sunflower seed peanut butter” and won’t accept the correction that it’s just “sunflower seed butter.” The person is comparing this product to a much more widely available and almost universally understood product. He’s not saying there’s peanuts in it or teasing her for having an allergy, but saying that it’s like peanut butter, but made from sunflower seeds. She freaks out and needs to be comforted. That person’s wife apparently tells him she was losing her mind over it so he apologizes and offers friendship. She then “tests that friendship” – her words, not mine – by having definitely real anaphylaxis he has to treat. She has a safe snack then suddenly starts reacting to it, takes benadryl and hydroxyzine (another antihistamine, brand name Atarax). This works so she goes to the basement where there’s a bunch of people meeting and immediately starts wheezing. Same story, doesn’t want epi, friend is so kind and insists she needs it and to get to the ER, she gets carried up a flight of stairs because she’s too weak or something, reaction comes back once she’s in the ER, more steroids and antihistamines and now she gets nausea medication too. But most importantly, her friends passed her test.
Okay this post is long as balls but it’s important. Starts off like half a dozen posts, reaction at church where she has an audience in response to popcorn being popped in the building releasing like… butter...vapor or something. The paramedics come out and inform her that
her O2 sats are perfect while she wheezes and gasps for air, but give her oxygen anyway because she ramps up the dramatics and it starts to go down. The doctor checks her throat and remarks that it’s swollen and she can barely see the vocal cords. She’s given epinephrine and the doctor says that it is the best response she’s ever seen to epi – the swelling goes down completely and immediately. She’s taken for x-rays where she starts another “reaction” but the doctors are now trying to explain to her mother that they suspect it might be vocal cord dysfunction. This is a functional disorder associated with psychiatric conditions and it’s treated with speech therapy and breathing exercises. It causes the vocal cords to close partially while breathing in response to a trigger (i.e. anxiety) and leads to wheezing and a feeling that you can’t breathe. Sounds spot-on, but the doctor who scoped her says it can’t just be that because of the swelling which, fun fact, you can teach yourself how to make your throat look really swollen by manipulating your swallowing muscles. They now suspect she might have some kind of complement disorder so she’s given fresh frozen plasma to see if that fixes the problem but she ‘reacts’ during the infusion and is admitted to ICU. While in ICU she is told she will be sent to a step-down unit so she immediately “reacts” to her lunch of canned fruit. She is told, for the second time, that her O2 sats are perfect despite the gasping and wheezing. She has to administer her own epi in the ICU because dumb nurse doesn’t know how. Every time she rebounds the doctors comment that her breathing is fine, half the time they listen to her throat and hear a stridor. Vocal cord dysfunction is sometimes referred to as “
munchausen’s stridor.” So I really had no idea how these girls were getting treated for anaphylaxis they didn’t have for all the years I’ve been writing these and MC here just spelled it out for me. She’s either having a genuine albeit psychosomatic bout of VCD or she’s trained herself to constrict her upper airway for attention. Either way she won’t listen to anything other than that it’s a super serious allergy.
This time she throws a tantrum and ends up in the ER because someone almost touched her food after touching pizza. She Jesuses about forgiveness.
Here’s one about advocating for allergy awareness at college which is really about the time she ate something she thought she was allergic to because she felt like it. This is in response to news about a kid who died at another college from an actual deadly food allergy.
Here we find she’s allergic to soy again, but only in quantity. This is after she’s previously posted her love of tofu. She also reacts to tomato sauce but not tomatoes for some reason. Just say you don’t like it, christ.
In this one, she’s reminiscing on her first week at her college program and banging on doors to find “food allergy allies” - people who will learn how to administer her epi, know the signs of her needing it, and go to the ER with her. Once she has identified these people she reacts in front of them to test them or something. There is one person she doesn’t get to know so when her usual “allies” are too busy for her dramatics, she walks into this stranger’s room and asks her to pray for her, then makes her administer the epi pen. Another person she doesn’t know then carries her down the stairs. At the ER these people she barely knows read to her and keep her occupied. She learns that anyone can be an allergy ally! You just have to hold people emotionally hostage with religion while saying you’re going to die if they don’t help you!
Yeah popping handfuls of benadryl every few hours makes everyone lethargic and forgetful. It’ll also give you dementia. Enjoy that. She gets a doctor to tell her it’s a hypoxic brain injury based on self-reported history of needing oxygen for anaphylaxis, even though in reality her O2 sats were perfect.
Girl who does not have food allergies panels at a food allergy conference with someone who does. Has an ever-growing list of things she’s allergic to. I know you know where that’s going. Recalls another time she had anaphylaxis. The EMTs said her tongue was the most swollen they’d ever seen! She is admitted to ICU again and makes people revolve their whole lives around her. But what’s fun here is we got our trigger point. She had a friend named Amy Calderone who played in orchestra with her and shared some of MC’s geeky hobbies/was super jesusy. Amy died of a ruptured aneurysm in 2011, a few months before MC’s anaphylaxis started. We’ll learn in later posts that Amy had the aneurysm in late Dec 2010 after complaining of headaches and other symptoms, had emergency surgery, was in ICU in a coma where she started to show some signs of improvement, but died in January. This was right when MC was starting to reintroduce things she thought she was allergic to. By April we had the first incident where she panics after dropping the butter tub in her dinner and by August she was having “anaphylaxis” and ending up in the ICU. Anyway, she makes the story of her friends death about herself and says her food allergies are a blessing because she knows she’s always a bite away from death. Macabre, I love it.
Here’s a story about how she’s a terminal fuck up who drank shampoo. Don’t worry, it was gluten-free! I’m gonna wager this never happened and was just a dumb story she made up in response to people joking about gluten free labels on shampoo. (gluten free cosmetics
are mostly a marketing ploy aimed at the “gluten sensitive” set because topical application isn’t going to hurt celiacs and normal people don’t drink shampoo. There is some evidence that some eczema sufferers benefit from avoiding wheat in cosmetics, though)
Her normal college she attends online now? Liberty U. She ended up in the ER 5 times while there, once for falling down the stairs and four times for allergies or asthma. The rest of the essay is worthless musing about how great she is.
Ostensibly about bullying, actually about people saying or doing normal things and her misinterpreting them or taking them way too personally. So she makes a list of things about her that do not involve allergies, after almost four years of talking only about her allergies and nothing else. This is mostly useless info except that shes an introvert except around deaf people which is a huge red flag for me. A lot of these girls romanticize or fetishize disability before deciding to fake one, like Rachel with her service dog training/disability advocacy. It’s not so much that they have these interests that’s a problem. A lot of people want to be interpreters for the deaf or train seeing eye dogs because they genuinely want to help others and make the world more accessible. It’s the fact that Rachel’s only identity became “girl with the dog” and MC only wants to socialize with deaf people that bothers me, and I think the distinction is what it looks like to outsiders. With MC she’s surrounded by other sign language students all day in an intensive program, but she still prefers to be with deaf people specifically and I think the issue is that she will be perceived as deaf in these settings by outsiders. With the students, she’s at a language camp where everyone knows she’s there to
learn ASL. With deaf people, outsiders will assume she’s also deaf and there’s no risk that they start speaking perfect spoken english to blow her cover.
Here she compares her fake food allergies to the War of 1812, because the men who fought and died in that war were brave and so is she. The absolute narcissism required to make a statement like this.
...she’s made a sandwich smoothie. No really. That’s ham, vegan cheese, some kind of sandwich spread, gluten free bread, and water blended into a smoothie. She says she did this because for 8 weeks her esophagus has been not wanting to handle solid food so she has to blend everything. All of her food has been different degrees of horrifying but this one is actually gag-inducing. This is up there with Ginge’s sauerkraut and peanut butter sushi for me.
Why do people only see me as my food allergies?!?!
And that brings us up to the start of her instagram. Immediately after we first hear about her nut allergy on IG, we get a post about how she was back in the ICU unable to breathe. The only oddity is she’s complaining of lingering balance issues which might be something else she’s blaming on the supposed brain injury.
Here’s the tale from her blog. She has a bunch of reactions because someone selfishly violates the no-nuts rule at work. Triage at the ER does not think she’s in immediate danger as the epi controlled her symptoms so she starts reacting again. She’s discharged to her brother’s house where she has more reactions. She goes to the ER after dosing herself again only to react because some lady is eating a sandwich too close. Gets sent to ICU where she got 12 doses of epi in 14 hours. Soon it’s wearing off after 15 minutes and she needs to be intubated. She wakes up two days later to find she got some special NIH drug that stops the reactions (orrrr when she was sedated she couldn’t fake it) but was administered an amnesiac. She then has a reaction to the news that her roommate ordered a peanut butter sandwich and the based nurse laughs at her and tells her that she isn’t reacting to peanut butter across the room and her throat is just sore from the tube. Her roommate is upset because peanut butter is one of the only foods she’s tolerating and this is an affront to MC. She later says after discharge she goes to whole foods which, if you don’t know, has a big bulk nuts section she doesn’t have a problem being around. The rest of this is just God Is So Faithful!
Milk allergy.
Innocuous crafts but mentions the shape she traced was her inhaler cap for no reason. We know from the blog she has asthma.
But like, she’s super fucking active and clearly able bodied. Whatever the balance issue was seems to have fucked off within a few weeks. Nothing to see here.
She’s just really
strange. Like if this one was claiming autism I’d go “oh yeah, totally” instead of assuming it was a way to be an asshole and not be called out for it.
My original caption was about how I could imagine a young woman thinking it was fun to cut loose and be pushed around in the cart for funsies after a scary allergic incident. But now that I’ve read the blog and know she literally makes people carry her around during her fake reactions, lol, what an asshole.
After a few bible posts we find out that she has casts on both of her arms and needs to have stitches out. A few posts later we learn it was two broken elbows after she had a bad crash while riding a Razor scooter. By the end of the month she’s healed enough to have the splints off and return to exercising.
Here’s the story from her blog, where she acknowledges she’s lost bone density from the steroids she’s constantly taking. She’s starting Xolair and a calcium supplement while getting off the roids.
A few days later we’re in the hospital and she needs the dietician to get her special safe foods because apparently the hospital doesn’t know how to keep allergy patients alive. No she won’t explain. I guess it’s another admit for obvs after alleged anaphylaxis.
The bike is now named Amelia and sends Madeleine text messages. Uh. Okay.
And it has its own account now. There’s only one post but the bio reads that the bike brings “freedom and independence to my girl.” Which, sure, Madeline doesn’t drive and her bike is her primary transportation but this just seems like she’s setting up for something, doesn’t it? Like that’s how the munchies describe their wheelchairs and service dogs.
Still doing PT for her elbow. Good, good, no complaints here.
Her anaphylaxis is now caused by getting nut residue inside her helmet somehow.
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Has bronchitis.
She needs surgery to fix the screws in her left elbow because they're too long and that's what's restricting her ROM.
She used to be a pretty dedicated tap dancer to the point that her parents put a masonite slab in her room for her to practice. She also maths goodly.
Gets a new bike, also first time specifically mentioning asthma on insta.
Something else I’ve noticed about this girl that will continue on through her account. She complains about bike accessibility a lot but over things that are more inconvenience than actual problems. This is one example. She can go left here. She can either follow the sidewalk and make that stupid turn, or she could do what everyone else would do and just cut across that grass strip. The sidewalk isn’t blocked. There’s not some dangerous curb she has to go over to get there. It’s just a mild inconvenience most people who bike as primary transportation would not even think about. “fuck your grass, I go this way now.” It’s clearly her version of the wheelchair munchies with their whining about accessibility all the time (then going on a vacation and leaving their wheelchair home because their resort isn’t accessible, like our friend
@dopedodo.)
MRI, reason unspecified.
She’s getting Xolair, has a reaction either to the shot or to a sandwich she passes on her way in. How does this girl encounter so many peanut butter sandwiches in the wild?
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Six weeks without bike rides because she needs the hardware out of her arm and some bone reshaping.
She is one of those cup stacking weirdos. She mentioned going to the events on her blog.
I mean this would be cute to hang up in a classroom or something to teach about food allergies, I guess.
Awana is the weird evangelical christian youth program she’s part of
getting ready for her surgery
Unlike on her blog where she was only avoiding some allergens, she’s now making recipes that avoid all of the “top 8” (shellfish, peanuts, tree nuts, fish, eggs, milk, soy, and wheat).
Auvi-q is another epinephrine device like Epi-pen. The main advantages appear to be that it’s a compact pocket-sized cartridge instead of a big pen thing and that it can be used in infants and toddlers while Epi can not. Also man this girl claims to contact her allergens a lot.
She gets her elbow surgery and it’s a success. It restores function and ROM to her arm. Hurray!
Of course. Decorated arm brace, fault in our stars, etc etc.
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Huh, today I learned…
Ask Denae! I'm sure he has some tips on allergy-friendly ice creams!
Her elbow surgery was actually not the success she hoped as the bone they removed is growing back.
Another ICU/PCU stay and..
This is a gastric emptying study. She doesn't update on how it went.
This image has been deleted! This was the first time I noticed my 2-week-old archive no longer matched her active account. It was just a bowl of oatmeal with a caption about her radioactive breakfast. No mention of what test it was for but oatmeal is the substitute for a carrier food in the GES when people have food allergies or restrictions and can't do the standard egg/toast combo.
Lol her doctor told her be careful if she intends to ride her bike because her elbow still isn’t fully healed, so she decides to be reckless and admit she’s almost crashed and burned several times already.
Another bout of anaphylaxis, compares it to a heart attack or a stroke, and this happens to coincide with some food allergy awareness week
Gets a continuous benadryl infusion in the ICU and says her immune system is having a tantrum, almost intubated. Crawling up Brynn’s ass.
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Sprained ankle.
She dislocated her collarbone backwards and didn’t notice for 11 months. This is very rare and she could have died. How do you not noticed that you dislocated your clavicle?
Grilled cheese. It’s zucchini on bread.
Hospitalized, allergic to antibiotics.
She’s been drawing this children’s book about a frog who has to give up his favorite food because of other people's allergies and it’s tragic.
Just eating a jar of sunflower butter with chocolate chips like a human person. Apparently has lost her job.
These are books for like 10 year olds.
Her bike makes an appearance in the book she’s drawing.
She finishes the book.
Food allergies as a personality trait.
#cornallergy
Injured again. This time they think the steroids are dissolving her bones. She’s on steroids for allergies and now “adrenal insufficiency” which is steroid-induced rather than an organic dysfunction with the adrenal glands. It’s one of the reasons you shouldn’t take corticosteroids long term if you don’t need them and why you have to taper s l o w l y off when you do need them. If you keep using them long-term your adrenal glands stop naturally producing steroids in response and it takes time for them to realize you’re not going to keep deep-frying them and they need to do their job again. We also learn that her sister is annoyed by the attention Madeleine gets from being constantly sick and injured.
The next day, #avascularnecrosis. The bone rotted because the blood flow to it was blocked. This is common with long-term steroids, most often affects the femoral head. Has something to do with steroids causing fatty deposits.
I did not think crutches could be an identity but here we are.
Anaphylaxis again and her doctor just happens to have a copy of the book she wrote! She totally didn’t give it to him!
Remember when she was claiming a soy allergy? Newspaper ink is soy-based.
Oh god.
Wow that copy editing is almost as good as the illustrations! I’m sure Cedriced’s story will become a bestseller.
Reminiscing on the last time she got seriously injured.
Corn-free benadryl #mastcells. Here we go.
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Maybe stop rotting your bones with steroids. Just a thought.
she does a lot of childish crafts all starring this weirdly 2-d frog.
...cool story MC.
She has POTS now.
“The moistest cake I’ve ever eaten” because it’s raw fruit. It's slices of watermelon stacked on top of each other, covered in coconut goo, then topped with more raw fruit. Reminds me so much of Ginge getting half a watermelon with birthday candles in it that one year.
She needs knee surgery. Prepping food because no hospital can feed her safely #mastcellactivation
surgery is successful although she’s worried about pain management.
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They discharge her home with this cold water circulating device. The house is not wheelchair friendly.
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Cromolyn (mast cell stabilizer) and announces she has avascular necrosis in her shoulder now too.
Brace for her clavicle.
Now she’s reading YA novels about wheelchair users even though she’s only going to be in one for a few more weeks (and is so thankful for that!!!)
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Someone was killed, let’s cry because they used the wrong pronoun or something.
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Announces she has EDS and it’s acting up. Lol, who could have predicted.
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Cookies for her EDS pain.
She’s lovin the wheelchair life.
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So apparently the bike is named after Amelia Bedelia, a children’s book character who takes everything literally, much like Madeleine does. She often posts everyday things that normal people understand or can infer with #ThingsIDontGet.
She’s named her wheelchair now even though it’s leaving soon. But it’s helping with her POTS!
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Here we learn she got the posture corrector from her new ortho who suspects it’s actually instability of the joint rather than rotting bone that is hurting her.
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Here we learned that in august, around when she had her surgery, the clavicle stabilization failed. She needs surgery because she can’t swallow, might need a feeding tube, and if she doesn’t get this surgery NOW her days are numbered. Oh boy! I couldn’t read an X-ray if my life depended on it so I won’t comment.
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Goodbye wheelchair-friend.
Really playing up this clavicle thing.
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She has bronchitis again.
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She gets an ultrasound and the doctor thinks her problems are because the clavicle is pressing on a nerve.
Special singulair for a special girl.
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We are entering Anna Johnson territory.
Trying a new drug if she can get it compounded. If not they’re moving to home IV fluids.
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Despite claiming EDS for months, she’s now officially diagnosed with EDS and it explains everything guys!
“we need to find a way to get enough fluids in me.” What ever could you be seeking?
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Worried they might change their mind about operating on her again.
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HI RED!! She’s drawn Ashley in her wheelchair with her service dog, and we learn Ashley is moving to DC because she’s “really struggling and needs the help/answers.”
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Throwing up every time she eats now. Double chin suggests otherwise.
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GI does not immediately diagnose her with gastroparesis. Which we learned above, she’s already been tested for. Endo says it might be a cortisol issue from the steroid taper.
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Sewing service dog vests now.
Goes to philly to see a new ortho, Dr. Gerald R. Williams at Rothman Orthopedics. He advises her to hold off on the surgery and that it’s probably not why she’s allegedly puking all the time. She’s lost 20 lbs in 4 months. She’s leaning towards surgery, of course.
The vest she was making was for Ashley! Very professional embroidery, letters look very even.
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Oh man, I love this beautiful clash of Ashley exposing herself as just another attention-seeking munchie by taking selfies with an IV pole in someone else’s hospital room while her dog chills on the floor and Madeline autistically documenting that she made a friend that is not an inanimate object.
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More about Amy. Various members of the youth orchestra they were in together came by to play music for her while she was recovering in the hopes it would spark something. This exchange is kind of unintentionally funny. Subtly asking for people to give her gifts, then saying to one of the other musicians who came to play for the friend that she wants to play music for ICU patients this christmas but her gosh darn food allergies will mean she’ll end up in the ICU too, all while claiming this is about helping others and being selfless.
Just me and my puke bag, nothing to see here folx.
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The ER is so inconvenient, what with all those people having emergencies! She really needs fluids at home STAT!
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Throwing up everything still.
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She gets Reglan, a medication used to speed up gastric emptying. How is she supposed to keep a pill down when she throws up everything??? Did they even think of that???
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Yeah so, not Addison’s, steroid-induced insufficiency. She’s making it sound like her adrenals are totally fucked and won’t “wake up” no matter what, but really she’s milking the taper for all it’s worth. Everything is “I’ll end up in the ICU!” with this girl. Endo is basically telling her “don’t worry if you puke up a dose, you’ll be fine. Just take it as scheduled” and she’s screaming and wailing that she will NOT BE FINE. Her ATCH is in normal range but she’s totally low according to a test last December. And her mom wanted her to use a wheelchair to see her doctor.
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Major doctor appointmnent later this week.
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LMAO her family does not believe her about the allergies anymore and her doctors keep calling her out. She’s acting like this test is amazing proof but she knew one of the doses had almond in it and she only started reacting after the last one, meaning any of the previous doses could have also been blamed for the symptoms. Also I’ve never had either of these but I assume there’s a significant flavor difference between sunflower and almond butters the way there is between sunflower seeds and almonds and even a small amount of one in the other would subtly alert her to which one was the trick dose.
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Steroid syringes.
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She wants to be allowed to stress dose (give herself an extra dose of steroids when sick or under stress, the way your adrenals would naturally produce more under these cirumstances) but her endo says no. Again she doesn’t have addison’s and her ATCH is normal now. She just needs to keep tapering and she’ll be fine, but she’s averse to the discomfort of withdrawal and determined to be sick.
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These things are already easy to fool, but at least she admits her oxygen was not in the 70s even if shes saying her HR was much higher.
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So by now she’s graduated Liberty University with her bachelors. It looks like she was originally ASL interpretation, but that’s an on campus only program for obvious reasons so when she switched to online she went to biblical studies which is probably not great for getting a job. Anyway, she’s now studying to be an occupational therapist’s assistant. Unsure if her two broken elbows and resultant loss of ROM put her ASL interpretation career prospects permanently on hold or what. She’s very excited for all the medical things she has planned too including a major surgery on her clavicle. She admits in the comments she had to drop the class.
Here we learned the problem with her elbow was the ortho screwed her ulna and radius bones together and a piece of bone grew between them. Metal.
We learn that four months ago they drilled holes in her knee to try to stimulate new bone growth after avascular necrosis rotted hers. Also metal. It worked! Still needs several more surgeries soon.
Blacking out, better take a pic.
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Allergist doesn’t think she has MCAS but the cardiologist totally does.
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Maybe using high dose steroids for fake allergic reactions until your bones rot is a bad idea.
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Pray for her to remember to wear shoes so she doesn’t dislocate her knee or something.
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Collarbone surgery will be the eighth total, then hardware out of her other arm will be 9.
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she has a friend with an allergy detection service dog.
I swear anna johnson made this exact post.
Shoulder surgery has been postponed, the brace was the only thing that kept her from needing a feeding tube to maintain her weight.
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Taking desmopressin, an antidiuretic, for POTS. This is the same fabric she used for Denae's leggings.
She is at Johns Hopkins.
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Denae sends her a coloring book.
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Her knee keeps almost dislocating or something.
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7 weeks until her surgery.
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SHE JESUSIN SPOONILY.
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