Community Munchausen's by Internet (Malingerers, Munchies, Spoonies, etc) - Feigning Illnesses for Attention

Today's episode of Make It Make Sense;

Rethinking 'Don't Blame the Victim':
The Psychology of Victimhood

Ive been trying to understand why the world has suddenly become opposite land without a whimper from academia, politicians, doctors etc and came across this paper that got me thinking about munchies.

Its hell to find any academic material that challanges the insane worldview thats been adopted. If you search for a particular behavior or social phenomenon to try to understand it, all you get is page after page of academic material validating it.

This isnt my area of study, but i suspect the material im looking for is hidden in plain sight and written in academic code that avoids drama.

Another example i came across is when i wanted to understand how patients that are harmed by medical error react. There isnt a search term i could come up with that didnt offer page after page about the trauma medical professionals suffer when they cause harm, and nothing about patients. Reminds me of the theme of last years World Patient Safety Day which was healthcare professional wellbeing.

So when i finally found the above article that had the courage to be wrong and unpopular, it was refreshing.

I thought my fellow munchie fanciers might be interested because they hijack victimhood almost as a way to preempt or obscure the harms they do, and the world is complicit in allowing the victim role to be free from responsibility and blame.

I think it happens so that the victim role never goes beyond arms reach. Perhaps society feels that if we prevented people abusing it, we couldnt abuse it ourselves should we need to in the future.
Hah, speaking of medical code talk to avoid people spurging out.

One recent paper on the transcriptome of autists got zero attention because no one understands the words transcriptome, isoforms, splicing, etc. Whereas with Spectrum 10k, they can all reeeee about genetics and privacy concerns because the authors used too many normy words.
 
Another example i came across is when i wanted to understand how patients that are harmed by medical error react. There isnt a search term i could come up with that didnt offer page after page about the trauma medical professionals suffer when they cause harm, and nothing about patients. Reminds me of the theme of last years World Patient Safety Day which was healthcare professional wellbeing.
There are plenty of journal articles about it. Patient views on medical errors is what you're looking for.

It's a whole hot mess though. General view from the public seems to be take their license away, make sure they never work again, kill them, eat their guts.
 
Minor Chelsea update: She sat up for five whole minutes the other day and also posted an obnoxiously long Caring Bridge entry about how mean the hospital was.

According to Chelsea, her poor mom has to get up every time Chelsea needs to go to the bathroom because Chelsea can't get up so she has to use a bedpan. She's also now supposedly having MCAS reactions to gingerale. As for the rest, the tl;dr is that the doctors and nurses didn't listen to Chelsea and just let her scream in the corner for hours. Oh, and "We need to protect people like me from receiving so much medical trauma." Except that, Chelsea, you might have less "medical trauma" if you accepted your original FND diagnosis and got some intensive psych treatment along with some PT/OT/etc.
chelsea_2021_10_22.pngchelsea_2021_10_22b.pngchelsea_2021_10_22c.pngchelsea_2021_10_22d.pngchelsea_2021_10_22e.png

I normally don't post the comments she gets on her CB because it's usually just "Oh no! Poor Chelsea! You're so strong!" However, our conjoined twin munchie decided to comment on this particular one.
chelsea_2021_10_22f.png

And speaking of Victoria, she posted her pheochromocytoma surgery story on IG again today. According to her, it was super chaotic because it was super urgent and her surgery was only supposed to take an hour. But it ended up taking hours and they stopped communicating with her parents. She also claims they almost lost her multiple times during the surgery. Oh, and her surgeon was the wrong kind of surgeon.
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chronicallyhopeful14
Removal

My cardiologist and endocrinologist were the head of my Pheochromocytoma and me getting treatment. My endocrinologist dropped a bomb on me during my appointment. He told me I was the fifth patient in the entire hospital system to have an adrenal gland tumor. I was the second pheo patient, at this hospital.
I was given the names of two hospitals. Everyone was operating on super urgent mode, going faster than they should have. I was told to get the soonest appointment. So much chaos.
I saw the physician in person and I thought the first appointment went great. We felt comfortable. This physician believed that this was my second pheo. The other was removed when I was 14 years old. I was told before going in that I would need to be extremely dilligent with my follow ups and I would need multiple scans to be sure I didn't have any other tumors hiding. I was told these other test would be done after surgery. She ordered a CT a week before I went for surgery.

The day before surgery, on my way to the hotel the office called asking if I had the CT. I had confirmtion that they had it a few days after the scan. The morning of surgery it was chaos, because someone misplaced my covid results.

The reassured my parents it would be an hour at the very most. It was a simple surgery. My parents later told me, the updates on me stopped within an hour, and they couldn't get any information on me for the next three hours. Surgery ended up being four hours. They almost lost me multiple times during surgery.

Waking up was tramatic. I've never been in so much pain or so confused in my life. It was an extremely overwhelming and difficult admission (most admissions during covid are more difficult). There was medical gaslighting. An advocate did get involved, thankfully.
I was told the surgeon spilled cells, she wasn't sure if there was an issue with the left gland, of course I was told I needed scans, and I didn't need an in person follow up.
A little over a month after surgery my surgeon called. She told me I was fine. Again I was told I need a scan but no one ordered it.

#pheo
#pheochromocytomaawareness
#medicallycomplex #raredisease #tumor #surgery #endocrinolog


chronicallyhopeful14
After surgery I was told by another endocrinologist that they were concerned I had thyroid cancer. They came in and just started talking about cancer. I had no clue what was going on. My thyroids are being watched closely but have been okay at this point. I learned months after surgery that I should have had a team operating on me not a general surgeon. Certain protocols NEED to be followed for this tumor (and every NET tumor).
 
Minor Chelsea update: She sat up for five whole minutes the other day and also posted an obnoxiously long Caring Bridge entry about how mean the hospital was.
View attachment 2659004
According to Chelsea, her poor mom has to get up every time Chelsea needs to go to the bathroom because Chelsea can't get up so she has to use a bedpan. She's also now supposedly having MCAS reactions to gingerale. As for the rest, the tl;dr is that the doctors and nurses didn't listen to Chelsea and just let her scream in the corner for hours. Oh, and "We need to protect people like me from receiving so much medical trauma." Except that, Chelsea, you might have less "medical trauma" if you accepted your original FND diagnosis and got some intensive psych treatment along with some PT/OT/etc.

I normally don't post the comments she gets on her CB because it's usually just "Oh no! Poor Chelsea! You're so strong!" However, our conjoined twin munchie decided to comment on this particular one.
View attachment 2659001

And speaking of Victoria, she posted her pheochromocytoma surgery story on IG again today. According to her, it was super chaotic because it was super urgent and her surgery was only supposed to take an hour. But it ended up taking hours and they stopped communicating with her parents. She also claims they almost lost her multiple times during the surgery. Oh, and her surgeon was the wrong kind of surgeon.
View attachment 2659046View attachment 2659047View attachment 2659048View attachment 2659049View attachment 2659050
chronicallyhopeful14
Removal

My cardiologist and endocrinologist were the head of my Pheochromocytoma and me getting treatment. My endocrinologist dropped a bomb on me during my appointment. He told me I was the fifth patient in the entire hospital system to have an adrenal gland tumor. I was the second pheo patient, at this hospital.
I was given the names of two hospitals. Everyone was operating on super urgent mode, going faster than they should have. I was told to get the soonest appointment. So much chaos.
I saw the physician in person and I thought the first appointment went great. We felt comfortable. This physician believed that this was my second pheo. The other was removed when I was 14 years old. I was told before going in that I would need to be extremely dilligent with my follow ups and I would need multiple scans to be sure I didn't have any other tumors hiding. I was told these other test would be done after surgery. She ordered a CT a week before I went for surgery.

The day before surgery, on my way to the hotel the office called asking if I had the CT. I had confirmtion that they had it a few days after the scan. The morning of surgery it was chaos, because someone misplaced my covid results.

The reassured my parents it would be an hour at the very most. It was a simple surgery. My parents later told me, the updates on me stopped within an hour, and they couldn't get any information on me for the next three hours. Surgery ended up being four hours. They almost lost me multiple times during surgery.

Waking up was tramatic. I've never been in so much pain or so confused in my life. It was an extremely overwhelming and difficult admission (most admissions during covid are more difficult). There was medical gaslighting. An advocate did get involved, thankfully.
I was told the surgeon spilled cells, she wasn't sure if there was an issue with the left gland, of course I was told I needed scans, and I didn't need an in person follow up.
A little over a month after surgery my surgeon called. She told me I was fine. Again I was told I need a scan but no one ordered it.

#pheo
#pheochromocytomaawareness
#medicallycomplex #raredisease #tumor #surgery #endocrinolog


chronicallyhopeful14
After surgery I was told by another endocrinologist that they were concerned I had thyroid cancer. They came in and just started talking about cancer. I had no clue what was going on. My thyroids are being watched closely but have been okay at this point. I learned months after surgery that I should have had a team operating on me not a general surgeon. Certain protocols NEED to be followed for this tumor (and every NET tumor).

What does she mean by the surgeon "spilled cells"? Im imagining a short tempered italian grandmother dropping her baguettes for some reason. She perhaps inspires my creative writing side.
 
What does she mean by the surgeon "spilled cells"? Im imagining a short tempered italian grandmother dropping her baguettes for some reason. She perhaps inspires my creative writing side.
Depending on the characteristics of a tumor, it's possible for a surgeon to kind of stir everything up during a resection and spill microscopic quantities of malignant cells into the tumor bed. If chemotherapy is not continued after surgery, these traces of tumor can become full blown metastasis. This is one reason neoadjuvant chemotherapy is given, so that the tumor is smaller and easier to handle.

It can also happen during a biopsy or FNA, where a needle is used to remove a small piece of tumor for initial analysis. Malignant cells can be pulled along the needle tract and spread from there. It's not an uncommon microscopic finding.
 
Depending on the characteristics of a tumor, it's possible for a surgeon to kind of stir everything up during a resection and spill microscopic quantities of malignant cells into the tumor bed. If chemotherapy is not continued after surgery, these traces of tumor can become full blown metastasis. This is one reason neoadjuvant chemotherapy is given, so that the tumor is smaller and easier to handle.

It can also happen during a biopsy or FNA, where a needle is used to remove a small piece of tumor for initial analysis. Malignant cells can be pulled along the needle tract and spread from there. It's not an uncommon microscopic finding.
Actually that makes total sense, i remenber hearing about that once before, thank you.

Presumably its nothing to worry about if youre a munchie without cancer?
 
Actually that makes total sense, i remenber hearing about that once before, thank you.

Presumably its nothing to worry about if youre a munchie without cancer?

Considering how munchies just love endometriosis and think it's a kind of cancer (even though it's so depressingly common that normal women just cope with it), it's munchingly possible that a surgical procedure could seed it elsewhere and provide even more reasons to demand opiates for their 11/10 pain.

DOS tip: ask for hormonal birth control and use it continuously without the week four dummy pills. Voila, no periods, no pain, no reason for opiates.
 
Considering how munchies just love endometriosis and think it's a kind of cancer (even though it's so depressingly common that normal women just cope with it), it's munchingly possible that a surgical procedure could seed it elsewhere and provide even more reasons to demand opiates for their 11/10 pain.
Yeah surgical treatment for endometriosis is, unfortunately, not great. The surgeon often doesn't get everything and sometimes the remnants from excision get into your lymphatic system and go on an adventure.

Just anecdotally the hormonal IUDs are the most successful thing I've used to treat endometriosis.
 
I saw elsewhere that Kaya is mourning the loss of a UK munchie, but don't know who. Anyone got the T?

I searched twitter but didnt see anything obvious. Did find this exchange which made me nod knowingly.

Screenshot_20211028-150755_Kiwi Browser.jpg

Someone more skilled than me might be able to plug in the right search terms. I struggled because twitter is almost exclusively visited by people actively seeking to throw off the shackles of acute suffering and replace them with chronic suffering. So its like trying to find one persons DNA amongst the shit and piss in literal sewers.

I fucking hate twitter.
 
I saw elsewhere that Kaya is mourning the loss of a UK munchie, but don't know who. Anyone got the T?
Oh it was some DID faker called thebluebellsystem. Not interesting. Died by sewer side I think. Sad she was so mentally ill she had to get attention by faking a mental illness. Pathetic, sad, and unfortunate she didn’t get the help she needed. Someone else who cares a helluva lot more than I do can search her TikTok for whatever physical illness she claimed because a quick glance only revealed the DID fakery and vacays to the funny farm.
 
I searched twitter but didnt see anything obvious. Did find this exchange which made me nod knowingly.

View attachment 2666704

Someone more skilled than me might be able to plug in the right search terms. I struggled because twitter is almost exclusively visited by people actively seeking to throw off the shackles of acute suffering and replace them with chronic suffering. So its like trying to find one persons DNA amongst the shit and piss in literal sewers.

I fucking hate twitter.
Patiently awaiting The Gala Sisters' cancellation for claiming that skinny shaming is the same as fat shaming. Muh trauma!!!!
 
Oh it was some DID faker called thebluebellsystem. Not interesting. Died by sewer side I think. Sad she was so mentally ill she had to get attention by faking a mental illness. Pathetic, sad, and unfortunate she didn’t get the help she needed. Someone else who cares a helluva lot more than I do can search her TikTok for whatever physical illness she claimed because a quick glance only revealed the DID fakery and vacays to the funny farm.
EDS, GP, and POTS just like everyone else.
 
EDS, GP, and POTS just like everyone else.
View attachment 2667611

Any serious munchie with an ounce of lack of self respect would avoid red flag factitious presentations.

I read an interesting paper a few weeks ago that said that the best evidence that something isnt psychological is recovery.

Munchies et al think that the more they demand that they are actually disabled the more likely they will believed when they insist that there is a biological cause.

In fact lack of recovery, in the absense of objective evidence of abnormality, demonstrates strongly that it is all in their head.

There is also an interesting theroy that when someone has to fight to have their illness recognised, they can never recover. Because perhaps recovery means they give ground, lose the battle, no longer retain their place in the illness community, or that they think recovery will lead to everyone concluding it was psychological all along.

Their response to that of course would be that they must be able to be diagnosed earlier to avoid not recovering.

Which, if they were stupid enough to say out loud, is an admission that they werent or arent physically ill.
 
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