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Whew this is a subject but no, it’s not necessary (in most cases).Question: are wheelchairs for chronic fatigue necessary? I get that chronic fatigue can fucking suck but I’ve come across many young white women on Instagram who use power chairs for their chronic fatigue, usually britbongs and often with a decent online following/brand deals. I’m used to seeing power chairs for EDS (insert eye roll here) but chronic fatigue? Really? Super interested to know more.
Have you seen the girl with the usual trifecta (gastroparesis, Ehlers Danlos, POTS) who is trying to get on Hospice and do VSED (voluntary stopping eating & drinking)? This chick was posting normal spoonie shit until she got an Addison's diagnosis and then within 5 days of this diagnosis, all of her TikToks became her lying in a hospital bed talking about how she wants to die. It's like actually insane. She's only 24!!!Recently I came across several persons on tik tok, who claimed to be disabled because of Hashimoto. One even claimed to have chronic fatigue because if that and being unable to do physical activities, cause it would "cause her hashimoto to flare up". I mean, just take your fucking meds and live happily?
And ofc every one of them is autistic or "neurodivergent".![]()
This girl tiktok.com/@hopeful.stripesHave you seen the girl with the usual trifecta (gastroparesis, Ehlers Danlos, POTS) who is trying to get on Hospice and do VSED (voluntary stopping eating & drinking)? This chick was posting normal spoonie shit until she got an Addison's diagnosis and then within 5 days of this diagnosis, all of her TikToks became her lying in a hospital bed talking about how she wants to die. It's like actually insane. She's only 24!!!
Hasn't one of them tried this before? Lasted about as long as you'd expect.This girl tiktok.com/@hopeful.stripes
Not so hopeful if she's committing suicide and forcing medical professionals to go along with it. Something very off about this one. I predict hysterics for more opiates then possibly a chimpout.
Have you seen the girl with the usual trifecta (gastroparesis, Ehlers Danlos, POTS) who is trying to get on Hospice and do VSED (voluntary stopping eating & drinking)? This chick was posting normal spoonie shit until she got an Addison's diagnosis and then within 5 days of this diagnosis, all of her TikToks became her lying in a hospital bed talking about how she wants to die. It's like actually insane. She's only 24!!!
Maybe I'm shouting into the void, but how exactly would/could an Addison's diagnosis even qualify a person for Hospice care? I know it varies a bit, but rudimentary googling brought up this list of criterion:I hadn't, but now I scrolled her tik tok. But did she really got Addison's, or is she making shit up to get into hospice?
This girl tiktok.com/@hopeful.stripes
Not so hopeful if she's committing suicide and forcing medical professionals to go along with it. Something very off about this one. I predict hysterics for more opiates then possibly a chimpout.
Nope.Nowhere on the list is adrenal issues. Addison's, according to my layman's understanding (in addition to googling), is an adrenal issue. You take the missing cortisol or whatever and monitor for changes and dosage needs and that's that. Watch out for crises and treat and you're otherwise managed. Am I missing something?
Thanks for clarifying. I was struggling to piece together just how Addison's could possibly be a debilitating disease. It seems (in an apples to oranges way) similar to T1 Diabetes, in that you take what's missing and adjust accordingly. It seems that being T1 is more difficult (because of the glucose component), but people who are diabetic live full lives if everything is managed well. Addison's seems like another problem involving a garbage hormone supply issue. You compensate, monitor, react accordingly, and live your life. You don't make yourself a Hospice patient. Jesusssss.Nope.
It's a bitch because it's always going to be with you, and there's the whole sick day protocol thing where if you get ill or stressed you need to up your corticosteroid dose temporarily but it's not a life-ending condition. Wear a med-alert bracelet so ED personnel know to hook you up with more if you're found down (oh God please do this because otherwise an adrenal crisis presents like septic shock most of the time.)
Hard to manage but it's manageable.
Addison's can also be faked but I don't think any of them are smart enough to realize how
Maybe I'm shouting into the void, but how exactly would/could an Addison's diagnosis even qualify a person for Hospice care? I know it varies a bit, but rudimentary googling brought up this list of criterion:
She claims she wants to die with dignity instead of facing the many surgeries it would require for her to somehow stay alive with EDS. I think she just wants 3 weeks of all you can eat opiates.Nah, I agree with you. My mistake.
And I still don't understand how can she apply for Hospice care, because she doesn't meet the criteria.
Even in get hospital vids she looks perfectly healthy, even with her trying hard to act sick.
Is this diagnosis THAT new?Have you seen the girl with the usual trifecta (gastroparesis, Ehlers Danlos, POTS) who is trying to get on Hospice and do VSED (voluntary stopping eating & drinking)? This chick was posting normal spoonie shit until she got an Addison's diagnosis and then within 5 days of this diagnosis, all of her TikToks became her lying in a hospital bed talking about how she wants to die. It's like actually insane. She's only 24!!!
Have you seen the girl with the usual trifecta (gastroparesis, Ehlers Danlos, POTS) who is trying to get on Hospice and do VSED (voluntary stopping eating & drinking)? This chick was posting normal spoonie shit until she got an Addison's diagnosis and then within 5 days of this diagnosis, all of her TikToks became her lying in a hospital bed talking about how she wants to die. It's like actually insane. She's only 24!!!
It's hilariously histrionic that she's totally going to starve herself to death slowly. Like...why.Her prospective date of starting the starving to death is thanksgiving she says. How thoughtful.
Zofran is a “wonder drug” that doesn’t take away nausea, gives some ppl horrific headaches, and can take your hearing FOREVER if they push it too fast via IV.I'd probably kill myself if I had gastroparesis. The drugs to treat it are shit: reglan and zofran. Reglan might be the worst drug in existence with black box warnings on suicidal ideation and tardive dyskinesis - which, once it happens, might not wear off ever. You can only take it for 12 weeks max - which of course isn't useful if you have gastroparesis.
So if she's taking reglan it might be that the drug is just trying to kill her. The rest of it is BS of course.
Zofran is some kind of wonder drug, but you will never shit again.
I thought the same thing regarding addisons. Why not forgo the steroids and eating and drinking?If she really wanted to die she could just, y'know, stop taking her meds.