I second this as another (relatively newly transferred to the floor) fellow peds nurse. Luna having all of these medical devices like a shunt would make me more likely to have doctor intervention much quicker, but normal children (and any patient in general, really) go through tylenol so often that we really should have a standalone pyxis for it. Spiking 105-106 is much different than maintaining it for a longer period of time. And to reiterate what everyone else has said, for the love of god don't give babies honey. Literally even says it on the damn bottle, Robyn.
So in the physical sense, yes, they're still attached to the musculature to do that weird eye movement you're seeing. Nystagmus that you're seeing here is a symptom of her seizures and can denote serious brain damage. Sometimes it's not too serious, like I've had a child patient with it with mild cerebral palsy who was are legally blind but otherwise normal, and had eye surgery on the muscles around the eye to correct it. In Luna's case, we keep calling her cortically blind, which means that there is partial or total (I'm betting it's the latter) vision loss because of specific brain damage to the area of the brain that processes vision. So in that sense, it wouldn't be connected to anything. Unless Robyn shows us scans or actual solid proof that states otherwise, reminder to take anything medical diagnosis here with a grain of salt, because all we have to go on are videos of Luna and the rare times Robyn shows actual medical documents (and while some of us are physicians, others of us are a wider scope of medical professions like RNs, RTs, etc.). Even if she can be an unreliable narrator (she legit thinks Luna can see, when it's obvious by pure observation that she can't), I would need the opinion of a neuro-ophthalmologist to say definitively 'this is the scope of Luna's brain damage and this is how much she can or can't see' before I can say this is what she has.
I will say though that we (OP and others) have done a great job at looking at other case studies, mapping out similar symptoms, using different medical scales and knowledge, and extrapolating from there to paint a pretty concise picture of what Luna most likely has, which is to say yikes on bikes, the kid will forever be fucked. I don't miss being a vet tech, but we could at least euthanize animals that were circling the drain unlike here.
