Community Munchausen's by Internet (Malingerers, Munchies, Spoonies, etc) - Feigning Illnesses for Attention

[Sparkling Yuzu]

Same. Any chance Mama Doctor Jones reads here?

Zero, she is a tranny shill and we are a transphobic hate site.

 

[Dr. Henry Armitage]

According to her facebook she died early this morning. I'll keep an eye out for an obituary.

 

[Dnein]

Patients with FDIOS tend to fuck around with their ports, and then also you have low-SES pts who can't keep the fucking thing clean. Placing a port is doing more harm than good in both these situations.

Most people don't have port access outside the hospital, though. It's very simple to keep clean, as it is covered in skin and unexposed by design. It's essentially forgotten day to day. For those that need constant access, it's kind of a lose-lose either way, as PICCs have their own bundle of issues, and standard IVs aren't really practical there either. If someone can't keep basic bandaging clean, I'm not sure what solution would be viable.

Same. Any chance Mama Doctor Jones reads here?

My personal, non-medical opinion is that a port should be a last resort when there is no other reliable venous access. The risks highly outweigh the rewards. Skepticism here is good. I wish more patients were skeptical too.

I'm not sure where you are getting that there are extreme risks. It really has very little danger when maintained with flushes. They've even stopped including heparin in most flush protocols because clot risk is so low. Infection is not very common outside of those who access on their own, and that is actually very rare, as most people with ports are only accessed in medical situations.

Again, expecting a port like the previous story is batshit (for the occasional blood test), but in situations of frequent/necessary and difficult access there's no reason it should be a last resort. The greatest danger is probably insertion procedure and people who don't maintain visits for flushes (prescribed as once a month, but the lit suggests every couple months is adequate).

There are some nasty risks to just tolerating poor access that frequently. Vein collapse, phlebitis, and even nerve damage can result, not to mention the significance of stress related inflammation in the recovery process. Doctor's don't consider "Johnny takes 3 sticks to get blood drawn!" poor access either, anecdote aside. Skepticism is always good, but no competent doc is suggesting ports to randoms, and from their stories munchies only achieve them after pushing and shopping to an extreme.

I think the phobia of ports is linked to munchies playing them up like medical rarities and shiny risk buttons. The typical port patients aren't accessed or parading around with it flashed to the public and their shirt stretched to their sternum, and even if they did you'd have to do some serious squinting to even notice. They love to play up the risks of all their toys, because that's just another way to feel special.

 

[Clozaril Trial By Stone]

I'm not sure where you are getting that there are extreme risks. It really has very little danger when maintained with flushes. They've even stopped including heparin in most flush protocols because clot risk is so low. Infection is not very common outside of those who access on their own, and that is actually very rare, as most people with ports are only accessed in medical situations.

The greatest danger is probably insertion procedure and people who don't maintain visits for flushes (prescribed as once a month, but the lit suggests every couple months is adequate).

I guess I am just confused as to how Jacquie's port got so fucked up that it choked off her intestines and she died. Is having that happen to you a rare risk of having a port, or do you think Jacquie increased her risk by like wiggling it around or something?

 

[NotYourMom]

I guess I am just confused as to how Jacquie's port got so fucked up that it choked off her intestines and she died. Is having that happen to you a rare risk of having a port, or do you think Jacquie increased her risk by like wiggling it around or something?

Are you on drugs?

Jacquie died after her intestines wrapped themselves around some kind of feeding tube that was inserted into a non-optimal location because she pressed doctors into doing things her way.

 

[eternal dog mongler]

Most people don't have port access outside the hospital, though. It's very simple to keep clean, as it is covered in skin and unexposed by design. It's essentially forgotten day to day. For those that need constant access, it's kind of a lose-lose either way, as PICCs have their own bundle of issues, and standard IVs aren't really practical there either. If someone can't keep basic bandaging clean, I'm not sure what solution would be viable.

When I started doing home health a surprising amount of my patients live in what could charitably be described as crack dens.

I wouldn't trust them with ports OR wound care, actually. We just have them come in.

 

[Dr. Henry Armitage]

According to her facebook she died early this morning. I'll keep an eye out for an obituary.

View attachment 3032235

I've been doing a deep dive into her history. According to what I could find her first mention of being sick was in 2016 when she claimed she had a chronic bacterial infection.

Spoiler

By 2018 she seems to now be host to several disorders as well as posting a lot about her picc line
1. mast cell activation syndrome
2. Ehlers-Danlos syndrome
3.Postural tachycardia syndrome
4. Gastroparesis
5. lyme disease

Spoiler

By 2019 her Facebook is almost exclusively about her chronic illnesses it's also when she got her gastrostomy-jejunostomy tube. She made multiple posts about her struggle with her insurance company to get it. She also claims to need a wheelchair by this point.
2020 is much of the same though her popularity is noticeably increased. she posts a lot of photos showing off her various tubes and lines as well as several pictures of her in a hospital bed.
2021 more of the same but by then end of 2021 she claimed to be entering hospice care due to battling her connective tissue disorder.
Which brings us up to now. I am of the opinion that she really is dead, she just committed really slow and flashy suicide.
Edit to add: it's also possible the entire thing is fake and designed to tug at the heartstrings of Christians. Her mom would have to be part of it. But I put nothing past the really hardcore christian types who can justify anything to spread the word of Jesus.

 

[Grey B. Train]

Y

I guess I am just confused as to how Jacquie's port got so fucked up that it choked off her intestines and she died. Is having that happen to you a rare risk of having a port, or do you think Jacquie increased her risk by like wiggling it around or something?

You're mixing up ports and tubes, I think?
Port in this case is a little button surgically put onto a blood vessel (can't remember artery or vein) that has direct access to the blood system allowing for direct infusions of medicines or pulling of blood (for testing) without having to insert an IV or make a new needle poke.
Tubes (like what killed Jacq) are in regards to the intestinal system. Some are surgically implanted into various parts of the intestines depending on needs, while some are simply tubes down the nose into the intestinal system.

 

[Thomas Eugene Paris]

Patients with FDIOS tend to fuck around with their ports, and then also you have low-SES pts who can't keep the fucking thing clean. Placing a port is doing more harm than good in both these situations

Better a port than a PICC or Hickman though.

 

[Reddit Refugee]

I've been doing a deep dive into her history. According to what I could find her first mention of being sick was in 2016 when she claimed she had a chronic bacterial infection.

Spoiler

View attachment 3034412

By 2018 she seems to now be host to several disorders as well as posting a lot about her picc line
1. mast cell activation syndrome
2. Ehlers-Danlos syndrome
3.Postural tachycardia syndrome
4. Gastroparesis
5. lyme disease

Spoiler

View attachment 3034423

By 2019 her Facebook is almost exclusively about her chronic illnesses it's also when she got her gastrostomy-jejunostomy tube. She made multiple posts about her struggle with her insurance company to get it. She also claims to need a wheelchair by this point.
2020 is much of the same though her popularity is noticeably increased. she posts a lot of photos showing off her various tubes and lines as well as several pictures of her in a hospital bed.
2021 more of the same but by then end of 2021 she claimed to be entering hospice care due to battling her connective tissue disorder.
Which brings us up to now. I am of the opinion that she really is dead, she just committed really slow and flashy suicide.
Edit to add: it's also possible the entire thing is fake and designed to tug at the heartstrings of Christians. Her mom would have to be part of it. But I put nothing past the really hardcore christian types who can justify anything to spread the word of Jesus.

Thanks very much for this one. Ah, well, an interesting one whilst it lasted. I feel a bit miffed that I'll never be able to find out more about her potassium allergy. And also why she just didn't jostle her infusion and give herself a potassium bolus if she was really serious about dying. Alas, a sudden death would not have given her the attention she was enjoying in the last few weeks. It's ironic because she could have made a career out of making motivational speeches to Christians. It would have fed the need for attention for a lifetime. Perhaps she was too lazy even for this and dying was a more comfortable way out.

Ultimately this is an unfortunate example of why we laugh at munchies. It's a slippery slope from exaggerated posting about how bad your diseases are to get attention then getting unnecessary procedures to feed the supply (like Jacqui) now to someone with a non-terminal condition pressing alt-QQ because she believed everything the internet said about MCAS, Lyme, EDS and gastroparesis being the worst diseases ever. Without such an online subculture Brooklyn would probably be in an office chair sipping on a coffee instead of being dehydrated in a coffin.

 

[Dr. Henry Armitage]

Than

Thanks very much for this one. Ah, well, an interesting one whilst it lasted. I feel a bit miffed that I'll never be able to find out more about her potassium allergy. And also why she just didn't jostle her infusion and give herself a potassium bolus if she was really serious about dying. Alas, a sudden death would not have given her the attention she was enjoying in the last few weeks. It's ironic because she could have made a career out of making motivational speeches to Christians. It would have fed the need for attention for a lifetime. Perhaps she was too lazy even for this and dying was a more comfortable way out.

Ultimately this is an unfortunate example of why we laugh at munchies. It's a slippery slope from exaggerated posting about how bad your diseases are to get attention then getting unnecessary procedures to feed the supply (like Jacqui) now to someone with a non-terminal condition pressing alt-QQ because she believed everything the internet said about MCAS, Lyme, EDS and gastroparesis being the worst diseases ever. Without such an online subculture Brooklyn would probably be in an office chair sipping on a coffee instead of being dehydrated in a coffin.

I think in her eyes it was better to go out as a martyr. She spent months "suffering" and never lost the faith. She will be an example for Christians to follow. instead of an average person with fairly manageable conditions.

 

[OrSoHelpMe]

I guess I am just confused as to how Jacquie's port got so fucked up that it choked off her intestines and she died. Is having that happen to you a rare risk of having a port, or do you think Jacquie increased her risk by like wiggling it around or something?

Jacq got a really invasive surgery that involved rerouting the intestine and forming a permanent entrance in the abdomen for the tube, if I’m understanding it right. And then when something bad happened, the situation was already so unbelievably complicated that nobody caught it in time.

I wouldn’t want to let any part of my body that is meant to be protected internally and function as it should be modified to function externally unless it was absolutely necessary, even if it was just access to veins, but I can’t even imagine Jacquie’s intestine thing.

 

[Reddit Refugee]

Apologies for double posting, but today seems to be an extravaganza for my favourite munchies. Evie Toombes couldn't hold off the media spotlight and has gone onto ITV's This Morning (your standard news/light entertainment/cultural weekday mid-morning show) to tell her side of the story. This is significant because she has gone from being the subject of angry doctors and cheap newspaper readers she has broadcasted her story to millions...which backfired. The public are overwhelmingly critical.

Things are hectic on my end so I won't be able to look into it properly for a while, but if anyone else is interested it's available on the ITV hub (I can't give a timestamp, sorry. Not available outside UK, I think). I am not sure how long it will be available for but it's at the top of this article as a one minute clip. I am a bit frustrated as I'm not able to properly archive until the weekend, so I might lose some details to the void (though ITV seems to keep This Morning episodes on the hub for a while).

From what I can glean so far:

• "This is a case where the doctor admitted negligence" is almost a word-for-word quote of something her lawyer said (either to journos or in her medicolegal webinar, I can't remember). Does this mean her lawyer gave her advice before she went on the show? Or is it too late at this point for that to matter?
• Evie's mother "didn't have a mother of her own." Lmao no wonder they are both nuts. Girls with bad mothers also make bad mothers themselves.
• They're making a big deal out of folic acid but in this clip it doesn't specify that Evie's type of spina bifida is not related to folic acid. It may go into this deeper in the uncut clips.
• The public, including seemingly everyone on Twitter, are mad at her. Particularly eyecatching are people also posting about being disabled themselves and not having much tolerance for her.

I did not think that she would be that attention hungry, or stupid enough, to seek media attention so soon after her case was reported on. Like c'mon it's only been three months. Can we add Munchausen's by Media to our glossary?

Edit: and before she detes it, her instagram commentary:

The truth, if you want to know.

This was a case about a GP admitting to giving advice that was negligent.

Until today, I hadn’t spoken to any press for an interview.

In November, a large newspaper called and asked for an interview. I politely declined but asked about the article they’d posted.

I have never said ‘I wish I hadn’t been born’ (I cannot reiterate enough this, it’s the opposite of everything I’m about.)
It was explained to me that the newspaper had written it themselves and put it next to my picture, never actually claiming that I’d said it, but obviously making it look like it.

The newspaper explained and I do completely understand that newspapers stay in business by creating stories and inflating information, so whilst the story sold well and was good for business, no one was actually reading the truth.

If health professionals are giving correct advice, in line with guidance then they are absolutely fine.
This GP however knew the guidance, but chose to withhold it and give the opposite advice - saying it was ‘not necessary.’
He did also admit this under oath in court, which lead to the decision by the judge that this was negligent.

I was not in court last year, and haven’t been involved with the legal case heavily as it began when I was three years old.
As a matter of principle, guidance in all areas of health has to be followed, so that we can all access correct and up to date advice that doctors are qualified to give.

I’m happy for any of this text above to be quoted, but anything else is unfortunately not true.

This is also a very emotive topic, I understand why the previous articles were so upsetting- unfortunately they were not based on the truth and didn’t reflect the reality of it.

Thank you to everyone that identified the actual truth, and seen past any sensationalist headlines. We know so many incredible people that we are lucky to call friends both in real life and on here.
Also thank you to the team at @itv @thismorning for being so accommodating.

Evie x

"I was not in court last year" is an outright lie since the judge comments on Evie's character, particularly that she is well-spoken. And the trip to London around the same time. Either way, it's more evidence that this is the handiwork of the claws of Mummy Toombes.

 

[eternal dog mongler]

Jacq got a really invasive surgery that involved rerouting the intestine and forming a permanent entrance in the abdomen for the tube, if I’m understanding it right. And then when something bad happened, the situation was already so unbelievably complicated that nobody caught it in time.

Honestly that happening to a patient so young really is a zebra moment. Jacq finally got what she wanted.

 

[Cryin RN]

Apologies for double posting, but today seems to be an extravaganza for my favourite munchies. Evie Toombes couldn't hold off the media spotlight and has gone onto ITV's This Morning (your standard news/light entertainment/cultural weekday mid-morning show) to tell her side of the story. This is significant because she has gone from being the subject of angry doctors and cheap newspaper readers she has broadcasted her story to millions...which backfired. The public are overwhelmingly critical.

Things are hectic on my end so I won't be able to look into it properly for a while, but if anyone else is interested it's available on the ITV hub (I can't give a timestamp, sorry. Not available outside UK, I think). I am not sure how long it will be available for but it's at the top of this article as a one minute clip. I am a bit frustrated as I'm not able to properly archive until the weekend, so I might lose some details to the void (though ITV seems to keep This Morning episodes on the hub for a while).

From what I can glean so far:

• "This is a case where the doctor admitted negligence" is almost a word-for-word quote of something her lawyer said (either to journos or in her medicolegal webinar, I can't remember). Does this mean her lawyer gave her advice before she went on the show? Or is it too late at this point for that to matter?
• Evie's mother "didn't have a mother of her own." Lmao no wonder they are both nuts. Girls with bad mothers also make bad mothers themselves.
• They're making a big deal out of folic acid but in this clip it doesn't specify that Evie's type of spina bifida is not related to folic acid. It may go into this deeper in the uncut clips.
• The public, including seemingly everyone on Twitter, are mad at her. Particularly eyecatching are people also posting about being disabled themselves and not having much tolerance for her.

I did not think that she would be that attention hungry, or stupid enough, to seek media attention so soon after her case was reported on. Like c'mon it's only been three months. Can we add Munchausen's by Media to our glossary?

Edit: and before she detes it, her instagram commentary:

"I was not in court last year" is an outright lie since the judge comments on Evie's character, particularly that she is well-spoken. And the trip to London around the same time. Either way, it's more evidence that this is the handiwork of the claws of Mummy Toombes.

Thanks for the update. This case is such a fascinating mess. I'm heartened to hear that the public don't buy it. I think, on its face, Evie's mom's claim that the folic acid advice was negligent *and* causational is unbelievable, not factual per their own evidence, and doesn't line up with the $$$ damages the family received. Unfortunately, public opinion can't reverse the judgement for that poor doctor.

 

[Thomas Eugene Paris]

And then when something bad happened, the situation was already so unbelievably complicated that nobody caught it in time.

Acute mesenteric ischemia is one of those situations where early detection doesn't really matter. Once the blood flow to the bowel is interrupted, the clock starts ticking. If adequate perfusion is not restored within a few hours, the bowel tissue begins to die. Once bowel wall ischemia is present, mortality rates approach 100% depending on various demographic prognostic factors.

Acute mesenteric ischemia is a surgical emergency, but if the surgeon finds that too much bowel has infarcted, it's time for comfort measures.

 

[DoorPost101]

I guess I am just confused as to how Jacquie's port got so fucked up that it choked off her intestines and she died. Is having that happen to you a rare risk of having a port, or do you think Jacquie increased her risk by like wiggling it around or something?

I'll be nice and let you know Jaquie's feeding tube is what slipped and wrapped around her intestines (killing the tissue and causing sepsis), not her port. https://kiwifarms.net/threads/chron...-helper-dog-harlow.39618/page-37#post-4636543

 

[No thanks I’m good]

This is exactly what I think is happening. With a sprinkle of paedophilia.


Compare to this taken less than 2 weeks apart from that binkie hospital gown photo.
Look at those "paralysed" toes.
This is the pic the convinced me daddy crisp is a nonce.

As she’s pointing her toes as a dancer would… so paralyzed. What I never grasped about Bee is how she can say she’s paralyzed in one breathe and then in the next activity be ina compromising position with toes pointed like a dancer.

Are you paralyzed or not Bee pick one. Daddy crisp is for sure a pedo; the look she’s shooting to him behind the camera screams toxic environment.

I truly hope Bee and her family are stopped one day especially now that she’s been trying to recruit children. Starting to look a little sex trafficky to me….

 

[Clozaril Trial By Stone]

I'll be nice and let you know Jaquie's feeding tube is what slipped and wrapped around her intestines (killing the tissue and causing sepsis), not her port. https://kiwifarms.net/threads/chron...-helper-dog-harlow.39618/page-37#post-4636543

Thanks for your compassion. A bit out of it, just pushed 100mL of Dilaudid through my N-J tube, which is not a port and will never get twisted around my intestines killing me unnecessarily.

 

[Sparkling Yuzu]

Spoiler

View attachment 3034412

By 2018 she seems to now be host to several disorders as well as posting a lot about her picc line
1. mast cell activation syndrome
2. Ehlers-Danlos syndrome
3.Postural tachycardia syndrome
4. Gastroparesis
5. lyme disease

The people with crunchy diseases like CFS, Chronic lyme etc. love to claim its worse than MS and sometimes also cancer, heart failure etc. Muh MAID for POTS.