Community Tard Baby General (includes brain dead kids) - Fundies and their genetic Fuckups; Parents of corpses in denial

She doesn't post much anymore, but whenever she does it's only to wail about how she's still absolutely devastated at the loss of Claire and Lola. I don't begrudge her the love she (allegedly) had for them or the fact that she misses them. I get it, even if they were potatoes, , they were HER potatoes and its fine if she loved them and misses them. But its been years since both of them died and while I dont think parents who lose children ever really get over it, most learn to at least get past that initial heavy grieving process and are able to go on with their lives. Even though a part of them will always miss their children terribly, they still come to terms with the loss. Many even find a renewed purpose in life that honors their lost children. For example, the parents who founded The Healing Hunter Foundation which helps to fight against childhood cancer. They created the foundation after their own three year old son died of Leukemia.

But Gwen refuses to move forward, she just continues to wallow in her grief and loss. When Claire and Lola were alive she made being the mother of two potatoes her entire identity and now that they're gone, she's made being the very sad mother of two dead potatoes her entire identity. What's especially galling is that the way she carries on, you'd think she had no more living children, even though Cal, her oldest and only normal kid is still alive. I didnt think it was possible, but he seems to get less attention from Gwen now than he did when his sisters were still around.

Also, I see she's still holding that grudge against the doctor who diagnosed Claire for daring to telling her that Claire might not live past one year old. God forbid he try to prepare her for the fact that she might some day lose her. I guess he should have just told her Claire's fine and that she'll live until she's 100.
Gwen’s going to bring a large picture of the spuds to every event in Cal‘s kids’ lives, and plaster pics all over SM. She never afforded those girls any dignity in life, so why do any different now they’re dead?

I hope she’s buried in a large pot wearing a lobster costume.
 
Gwen’s going to bring a large picture of the spuds to every event in Cal‘s kids’ lives, and plaster pics all over SM. She never afforded those girls any dignity in life, so why do any different now they’re dead?

I hope she’s buried in a large pot wearing a lobster costume.
I'm surprised she didn't pay Body Worlds to preserve them so she could keep them forever with her.
 
I'm surprised she didn't pay Body Worlds to preserve them so she could keep them forever with her.
I think it would have been cool if she could have donated their bodies to it so people can see what this very rare disorder does to a human body. It would have been the only positive impact they ever had.
 
I think it would have been cool if she could have donated their bodies to it so people can see what this very rare disorder does to a human body. It would have been the only positive impact they ever had.
Meh. There's a mouse model. We know what the mutation does.

It's more interesting to study the effects of a given mutation in vivo ("in life"), anyway. Once the subject is dead, there's nothing going on that's particularly interesting. Yes, I guess we could examine the structural abnormalities in the brain, but we already know what they are because of the aforementioned mouse model and because of MRI technology. These ultra rare conditions aren't that useful for clinical research either, because physicians are unlikely to see even one case in an entire career.

I know that the whole body donation topic has come up in this thread and elsewhere on the Farms, and every time, I piss all over that bonfire. Sorry about that. Honestly, though, I don't think that Claire or Lola's (or Luna's or Archie's) body could tell us anything in death that we didn't know already.
 
Meh. There's a mouse model. We know what the mutation does.

It's more interesting to study the effects of a given mutation in vivo ("in life"), anyway. Once the subject is dead, there's nothing going on that's particularly interesting. Yes, I guess we could examine the structural abnormalities in the brain, but we already know what they are because of the aforementioned mouse model and because of MRI technology. These ultra rare conditions aren't that useful for clinical research either, because physicians are unlikely to see even one case in an entire career.

I know that the whole body donation topic has come up in this thread and elsewhere on the Farms, and every time, I piss all over that bonfire. Sorry about that. Honestly, though, I don't think that Claire or Lola's (or Luna's or Archie's) body could tell us anything in death that we didn't know already.
Before you write off the idea of plastinating them entirely, at least consider the entertainment value.
 
It's more interesting to study the effects of a given mutation in vivo ("in life"), anyway.
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Also, I see she's still holding that grudge against the doctor who diagnosed Claire for daring to telling her that Claire might not live past one year old. God forbid he try to prepare her for the fact that she might some day lose her. I guess he should have just told her Claire's fine and that she'll live until she's 100.
Every time I'm tempted to feel sorry for this cunt, she goes into that shit again, hating a doctor for doing his fucking job. Great so they got a few years of existence as completely useless potatoes, that makes the doctor an asshole. Fuck this bitch. I'm glad the potatoes are out of their misery.
 
Unfortunately here in the USA we have the mother of all spergouts when someone wants to take a former human off life support. Witness the international circus when Terry Schiavo's grief-blinded parents went viral and took the entire justice system for a ride through looneyland.

If the parents of a tater want to end their child's pointless suffering, they have to make it look like an accident or pray that the kid suddenly takes a turn for the worse.Even ASKING a nurse to turn up the morphine drip can land you in prison. You don't even make jokes about it much like you don't joke about bombs in an airport.
This post is actually a great contrast to Canada's euthanasia laws, which are considered so liberal as to be a literal murder machine.

These things will always be taboo, or at least they will be to some people. What gets people angry is a Paralympian, who can still talk, eat, speak, and communicate like a normal person - i.e. live a normal life - being told to go off herself because she wanted a special chair and had begged for it. With these cases, these are babies/people who are literally living bundles of death. They cannot speak, they cannot communicate, they are not even aware of their own existence.

In the A&N thread, there was an article on how, in Montreal, parents decided to let their terminally ill newborn get MAID. Now, Canada's abortion laws are not like the US; they are pretty much abortion on demand, and there are always exceptions for severe genetic illnesses. This newborn was likely diagnosed while still in the womb, before a brain was formed, and these parents decided to off it as soon as it came out. Now, I know the Farms has an array of opinions on abortion, which many wanting the procedure banned, but there's just something so callous about throwing a newborn into the trash, even when you got warnings it'd have no chance at life. It's an inversion of the pro life 'birth it at all costs', even though this was, IIRC, a fairly liberal family.

If I had known my child was going to have a terminal illness, I'd take the L and my grief and end the pregnancy. It is doubly cruel not just to myself, but for the entity that will not even have dignity in life. It's just as cruel as the 'birth it and let it die if it's terminally ill' rhetoric I hear, because that's basically saying all you were good for was birthing the thing.

The cases we see here are all hopeless cases; these kids would actually benefit from therapeutic abortion. But their parents wanted to be Pray for Jesus Evangelicals when the Catholic Church from the 1400s would've stuck a stake in their spud's heads.

It's interesting seeing the contrast between a pro-profit healthcare system, in which you have to fight and debate over a terminally ill patient being granted dignity in their last moments, vs a system like Canada that doesn't want to deal with an aging Boomer population (while being content with importing its replacements anyways). Remember Archie Battersbee? That kid was rotting from the inside out. He was dead to rights. Yet his mother insisted on keeping him alive.
 
This post is actually a great contrast to Canada's euthanasia laws, which are considered so liberal as to be a literal murder machine.
Fellow Canadian here!

When my wife was pregnant, one of the early tests we had done flagged a risk for Trisomy 13. So we opted for another, more invasive test that would be more definitive. Thankfully, our little dude was/is fine.

But we were 100% on board with aborting if there was even a moderate risk of severe disability. We did not want to bring such a challenging life into the world. Even my wife, who is pretty traditional and only supports abortion when necessary, was on board.
 
Isn't Gwen the mother who would write letters to all the doctors who said the girls had life expectancies of months, on their birthdays, to say how wrong they were? Or at least that's what she said she would do.

Didn't the oldest surving kid with complete T13 only live to be like 8? :(
This source says that a T13 woman lived to be 19, and a boy to 11.

ETA: Oops, here's the link.


Here's a brief write-up of a woman who had mosaic T13 AND T18. Mosaic T18 and T21 had been seen a few times before, but not this.

 
Isn't Gwen the mother who would write letters to all the doctors who said the girls had life expectancies of months, on their birthdays, to say how wrong they were? Or at least that's what she said she would do.


This source says that a T13 woman lived to be 19, and a boy to 11.

ETA: Oops, here's the link.


Here's a brief write-up of a woman who had mosaic T13 AND T18. Mosaic T18 and T21 had been seen a few times before, but not this.

I'd be shocked if the woman who lived to 19 weren't a case of mosaic trisomy.
 
I wonder if that woman and the 11 year old boy also got relatively lucky and had less severe heart/etc defects than normal for T13. Aren't the heart and lung defects usually what kills for T13&T18?

Still pretty bleak, especially since T18&13 are the most "survivable" trisomies after Downs. The abstract of the first paper even said the mean survival for T13 is 130 days :(
 
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