Community Tard Baby General (includes brain dead kids) - Fundies and their genetic Fuckups; Parents of corpses in denial

Not exactly locked in syndrome, but Guillain-Barre can basically do the same thing - flaccid paralysis that starts after an infection (often gastrointestinal illness) or immunisation, caused by your immune system attacking your nerves.

Usually people get lower limb weakness, and if recognised and treated with IVIg (immune antibodies) can resolve with a lot of Physiotherapy.
But if you're really unlucky, it can go all the way up to your neck and leave you completely aware but unable to move a muscle, not even breathe. Again, it can resolve but it's a very not fun time in the meantime.

My friend has it. He does not have it up to his neck but it's crazy how it can just happen. There was also a person on My 600 Lb Life that had it post surgery, Donald Shelton. He gained 300 lbs as a result. Some of it was due to inactivity and some was probably stress. He lost that weight, I think.

The kid that's being talked about does sound more like a potato than locked in. People with locked in syndrome can't speak or move, sure but eye movement is unaffected. They are also cognitively normal. Damage to the pons, located in the brain stem is the cause. It should be easy to rule it out, since that kid is a potato. Maybe the mom is in denial so she is looking for another reason, hence why she's willing to be a woo woo naturopath rather than a neurologist.
 
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eye movement is unaffected.
Yeah, I didn't see any eye movements from him that looked coordinated and conscious. If he really had it, he should be using an eye gaze device and going to school everyday instead of a few hours a few days a week.
So do the resident med/psychfags like @Thomas Eugene Paris @GenociderSyo and @Aunt Carol think Talon is a potato or not?
 
At the risk of sounding gross, who wears gloves to change their own kid? Just wash your hands with soap.

Edit: I don't think it's for the trach, either. Medicaid provides gloves for trach care. They're in the trach kits.

Someone with ocd or a fear of germs. I agree it is strange but kid poop *can* be messy in fairness and tube feeds vs solid foods also change how it all forms.

Edited for an afterthought: c diff poop would be a good reason but c diff smell is so awful it will make anyone vomit. You’d know.
 
I worked with a guy that had GB or something similar. Woke up paralysed, couldnt reach his phone for help, it was only when a co-worker realised it was unlike him to just not turn up to work, went round his house and forced entry, found him in bed. I have no idea how but guy was back on his feet a year later but on life-long meds. Certainly a new fear unlocked.
 
If this child really has locked-in syndrome and it is not just a cope for the parents that is fucking horrible to think of. I've only heard of adults with it and they were more capable of communication then he appears to be.
I am so profoundly sorry to say this, but that doesn't appear to be locked-in syndrome. I wish that wasn't the truth, and if anyone has any evidence to post against my impression, please post.
 
I am so profoundly sorry to say this, but that doesn't appear to be locked-in syndrome. I wish that wasn't the truth, and if anyone has any evidence to post against my impression, please post.
He was trapped underwater in a pond for up to 15 mins according to his mom. His dad accidentally drove into the pond to avoid hitting their cow and his arm was trapped in the seatbelt. His situation is horrific. I don't believe he is really "in there" anymore. This is why euthanasia should be legal.
 
He was trapped underwater in a pond for up to 15 mins according to his mom. His dad accidentally drove into the pond to avoid hitting their cow and his arm was trapped in the seatbelt. His situation is horrific. I don't believe he is really "in there" anymore. This is why euthanasia should be legal.
At the very least, give the little boy the kindness of taking him off the vent and giving him meds to make him comfortable. Poor sweet boy. Thanks for the background. I didn't make it far before dipping out.

A trach and a vent is a pretty crummy way to live, especially when you can't coordinate any meaningful movement.
 
He was trapped underwater in a pond for up to 15 mins according to his mom. His dad accidentally drove into the pond to avoid hitting their cow and his arm was trapped in the seatbelt. His situation is horrific. I don't believe he is really "in there" anymore. This is why euthanasia should be legal.

I am 100 percent confident that this is just a case of anoxic brain injury as you originally suspected. Think about it….15 mins underwater, let’s say it took him two minutes to go unconscious. That’s still a lot of time to be without oxygen. It isn’t like he went underwater for a split second, was pulled and suddenly lost all use of his body.
 
I am 100 percent confident that this is just a case of anoxic brain injury as you originally suspected. Think about it….15 mins underwater, let’s say it took him two minutes to go unconscious. That’s still a lot of time to be without oxygen. It isn’t like he went underwater for a split second, was pulled and suddenly lost all use of his body.

He looks like he doesn't even have a swallowing reflex. Whatever semblance of consciousness he has left must feel like drowning.

I know that in brain death, it's common for pockets of cells to survive.

He's obviously not fully brain dead, so I would imagine he has small pockets of living brain scattered here and there. Maybe whatever part of his brain processes hearing still has some activity. That wouldn't necessarily mean he was cognizant of it, that would requore a functioning frontal lobe and an adequate connection to it.

Also, I have had both a qEEG and a regular EEG.

In the EEG, at times you are instructed to close your eyes. Someone accompanied me to this appointment, and they said that whenever I closed my eyes, the brain waves on the screen would calm down, and whenever I opened them , the brain waves would go wild. I could not feel this at all and was not consciously thinking about what I was seeing or not seeing. It was just the visual area of my brain processing the information it was receiving. It's possible that this boy's brain is still somewhat processing stimulation to a degree but that doesn't mean he can definitely feel it or know about it.

For the qEEG, which I had in order for an experimental treatment to take place, I had to have my eyes closed for ten minutes, then open for ten minutes.

This was not the purpose of the qEEG, but I can say that what the specialist could determine about my brain was remarkably accurate, including little details that I never told him.
 
Yeah, I didn't see any eye movements from him that looked coordinated and conscious. If he really had it, he should be using an eye gaze device and going to school everyday instead of a few hours a few days a week.
So do the resident med/psychfags like @Thomas Eugene Paris @GenociderSyo and @Aunt Carol think Talon is a potato or not?
Near drowning with resuscitation and he was down at least 15 minutes before ROSC? I haven't watched the videos, but I don't have to. He's a full potato.

Edited to say that I looked at the screenshots from the SBSK video and yeah, he's a potato. 15 minutes is an ungodly long time when it comes to hypoxia. I'm surprised they were able to resuscitate him at all. Kids can be amazing that way, but when it comes to medicine, I absolutely believe in the doctrine of "just because you can doesn't necessarily mean that you should".

I'll watch some of the video later today, but I have to steel myself before looking at Chris Ulmer too much.
 
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Near drowning with resuscitation and he was down at least 15 minutes before ROSC? I haven't watched the videos, but I don't have to. He's a full potato.
Nth agreement. If he weren't a potato, it'd be horrifying; as it stands it's just tragic. This is primate time, the mama gorilla carrying her dead baby around until it falls apart.
 
If this child really has locked-in syndrome and it is not just a cope for the parents that is fucking horrible to think of. I've only heard of adults with it and they were more capable of communication then he appears to be.
I feel so so SO bad for this family, but their child is not locked-in. They got the locked-in diagnosis from the Austin Center for Developing Minds, which is a woo-treatment center founded and run by a fucking chiropractor, who also is on the board of a company that sells a sham treatment software, which he conveniently offers at his clinic.

Also Lol:
He was 3rd in his class, magna cum laude, at Parker College of Chiropractic; and prior to that he pursued degrees in biomedical science and business management at Texas A&M University.

Please allow me to interpret: “Hr failed biomedical undergrad courses, then failed business management courses, so he got himself a “doctorate” in an illegitimate field at a school that does not require a bachelors degree for admission.”

Talon’s family said that Brandon Crawford of the Austin Texas Center for Developing minds diagnosed Talon’s locked-in syndrome with a qEEG. Let’s see what the literature says about qEEGs:

Unfortunately, clinical use of qEEG can be problematic particularly in the hands of untrained operators. The statistical results can be influenced by wrong electrode placement, artifact contamination, inadequate band filtering, drowsiness, comparisons using incorrect control data bases, and choice of epochs.5 Furthermore, statistical processing can yield a large numbers of statistical abnormalities, not all of which are of clinical relevance. These are some reasons, despite the volume of published data, that the clinical usefulness of qEEG remains controversial.

The website is obviously designed to attract families of spuds who are desperate for any tiny bit of hope and semblance of control over their situations.

I don’t begrudge Talon’s family for falling for this grifter. What happened to their son is devastating. What makes me mad is that Talon should probably be taken off the vent and allowed to die peacefully, but this asshat, Brandon Crawford of the Austin Texas Center for Developing minds, convinced his family that he’s still “in there,” and of course no one would want to pull the plug on their sentient child. And now everyone suffers more, except, Brandon Crawford of the Austin Texas Center for Developing minds, who gets to continue grifting this family and their insurance indefinitely for “treatments” like “laser therapy” and “vibrational plates.”


TL;DR: Brandon Crawford of the Austin Texas Center for Developing minds is a cow and I would not have sex with him.
 
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I feel so so SO bad for this family, but their child is not locked-in. They got the locked-in diagnosis from the Austin Center for Developing Minds, which is a woo-treatment center founded and run by a fucking chiropractor, who also is on the board of a company that sells a sham treatment software, which he conveniently offers at his clinic.
They have a go fund me to get money for the services. It seems each appointment there is $9000.
 
If you have the time, you should read this. This situation was absolutely wild, even from a medical perspective. It's really a miracle this woman and her kid survived. Link / https://archive.is/RCNKj

One day late last summer, Dr. Barry Grimm called a fellow obstetrician at Vanderbilt University Medical Center to consult about a patient who was 10 weeks pregnant. Her embryo had become implanted in scar tissue from a recent cesarean section, and she was in serious danger. At any moment, the pregnancy could rupture, blowing open her uterus.

Dr. Mack Goldberg, who was trained in abortion care for life-threatening pregnancy complications, pulled up the patient’s charts. He did not like the look of them. The muscle separating her pregnancy from her bladder was as thin as tissue paper; her placenta threatened to eventually invade her organs like a tumor. Even with the best medical care in the world, some patients bleed out in less than 10 minutes on the operating table. Goldberg had seen it happen.
Then, in July, Hollis was shocked to learn she was pregnant again; she’d just begun taking birth control pills, but it might have been too recent for them to be effective. Her first call was to Grimm, who worried that a pregnancy this soon, on top of four previous C-sections, put her at risk of developing a cesarean scar ectopic pregnancy. By Hollis’ eight-week ultrasound in early August, Grimm’s worst fears were confirmed.

Her life was at risk, he told her. Her pregnancy could rupture and cause a hemorrhage in the first trimester. It was almost certain to eventually develop into a life-threatening placenta disorder. There was little data to predict whether the baby would make it. If it survived, it was sure to be born extremely early, spend months in critical care and face developmental challenges.
I think this was the worst part:

ProPublica spoke with 20 Tennessee medical providers about life under the ban, on condition of anonymity because they feared professional and personal repercussions; some said that they had witnessed a new trepidation in their ranks. “I’ve seen colleagues delay or sit on assessing the clinical data longer when they know the diagnosis is probably ectopic,” one said, referring to pregnancies that implant outside the uterine cavity, which are always life-threatening. “People were like, 'I don’t want to be involved because I don’t want to go to prison,'” said another. “It’s crazy — even assessing the patient or having a role in their care makes people scared.”
In sum: the woman was an ex druggie, had her kids taken away by the state, and is pretty much in financial ruin to regain custody of her youngest daughter and underwent an emergency C-section for that scar ectopic pregnancy. Vanderbilt, a private hospital, almost didn't want to do it.

Her kid was born premature, and had to return to NICU several times. It lived, but we won't know as of yet if it's a tard baby, as most preemies that young (think it was around 24 or so weeks when the woman went into labor) either die or develop life long conditions.

There has been some debate over the law, but a specific organization said no. Good luck if you have severe medical conditions in that state. (Also, the fact they admitted to being bribed about it is both sad and hilarious, in a Clown World sort of way.)

In Idaho, it caused a rural hospital to stop providing obstetric care. Arizona has its own issues regarding termination of fetal anomalies.

Slight PL: had I been a third child (I'm a second born) I would have been an ectopic pregnancy. Ovarian cysts run on the female line, too, both paternal and maternal. If I had those conditions I'd be SOL. And, it seems, so are these women.
 
The website is obviously designed to attract families of spuds who are desperate for any tiny bit of hope and semblance of control over their situations.
Okay that's actually fucking sick and exploitative. Chiropractics itself is already pseudoscience. Now they are self styled "chiro-neurologists" essentially. Preying off people who just want their babies back.
Poor baby was an amazing boy full of life and had every faculty taken from him. He deserves his life to be honored for all the amazing potential it had and things he was able to do before his injury. I believe part of that honoring of his "soul", who he was as a person, is getting him into compassionate hospice care.
I'm not even going to go into a Total Spud Death sperg this time. It's just fucking sad and awful. I really hope they have access to a psychotherapist trained in complex and anticipatory grief.
You think the dad isn't there in the interview bc they divorced? Apparently it's common even with regular special needs kids that parents are more likely to end up divorced; imagine with
such a catastrophic injury. This is beyond special needs, in my impression.
Imagine wanting to send his baby boy out peacefully but his mom instead gets him trached up, chimps out about what actual neurologists (Gwen moment???) told her about the extent of his injuries and spend thousands on woo treatments that tell them what she wants to hear.
Note for those who didn't watch: she did not say she got mad at the doctors about his prognosis but I am assuming by how she barely acknowledged their opinion and only talked about the opinion of the chiropractors.
 
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