His name is Christopher Alvarez, and as of late 2022, he was still very much alive. He is a graduate of Adelphi University.
Community Tard Baby General (includes brain dead kids) - Fundies and their genetic Fuckups; Parents of corpses in denial
- Thread starter jurassic bark
- Start date
- Joined
- May 25, 2013
I wonder if Paisley's parents have ever talked with Samuel's? I would think since it's such a rare condition, especially to survive after birth, that they would want to seek guidance from parents with an older kid with TD.
Samuel seems to live his best life with his limitations. I don't doubt his parents made sure he got OT and PT from an early age to help him learn and gain as much mobility/independence as he can.
- Joined
- Feb 24, 2019
Looks like they follow each other. Samuel seems to be off vent now and able to pull to stand finally.
- Joined
- May 25, 2013
Based, good news for an overall depressing thread.
TheCakeIsALie
kiwifarms.net
- Joined
- Jun 15, 2016
Adelphi, as in Garden City? Damn, that’s near me. There’s a school he graduate from that is specifically for kids with disabilities called the Viscardi center. But he requires 24/7 assistance and he’s an anomaly. Most people with TD are profoundly intellectually disabled.
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Nowadays, children with normal-plus intellect who have severe physical disabilities are usually mainstreamed, but that wasn't true even a few years ago, and maybe mainstreaming wasn't right for him?
- Joined
- May 25, 2013
Could also be that his health needs caused him to miss lots of school, or require distance learning.
- Joined
- May 14, 2021
Plus ca change…
The Sherbondy dad decided to update his Instagram with photos of their family vacation. This is their daughter who fell off a golf cart and suffered a TBI a few years ago. She’s been hospitalized many many times with endless illnesses and procedures, and hasn’t improved at all.
Here’s the very Christian father posing with his TBI daughter for social media. Asshole.
Here’s back when she was first released from the hospital after the accident, both parents yukking it up at their daughter’s expense.
The Sherbondy dad decided to update his Instagram with photos of their family vacation. This is their daughter who fell off a golf cart and suffered a TBI a few years ago. She’s been hospitalized many many times with endless illnesses and procedures, and hasn’t improved at all.
Here’s the very Christian father posing with his TBI daughter for social media. Asshole.
Here’s back when she was first released from the hospital after the accident, both parents yukking it up at their daughter’s expense.
- Joined
- Dec 28, 2014
I'm just overwhelmed every time I see this by what absolute scum these people are.
- Joined
- Sep 24, 2020
Was watching Son of Godzilla today and Minilla/Minya reminded me of this thread the original tard baby
In my experience, being "saved" is often just a convenient shield for heinous character deficiencies. At this point, when someone advertises on social media that they're "Christian", I anticipate that they'll be an ignorant, stupid, self-absorbed, hypocritical, abusive, cringy piece of shit.
As my grandfather always said: "Jesus loves you, but everyone else thinks you're an asshole." (RIP, Pappy)
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FYI, I am a Christian, and I agree.
And if someone claims to be a Christian, or anything else, and their social media indicates that they worship Trump on any level, they're going bye-bye.
ZsaZsaBinks
kiwifarms.net
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- Jul 15, 2022
I wonder if the normal functioning siblings of children with fatal recessive genetic disorders ever feel survivor's guilt. They were so close to inheriting both bad genes that made their siblings genetic disasters that you can only imagine that they feel this way.
- Joined
- Oct 4, 2019
I suspect survivor's guilt or some kind of existential fuckery is definitely a thing for most of them, even if only for short periods of their lives. I guess it's how they process that and if they are able to work through it healthily or not that makes the difference for them.
There are more than a handful of munchies out there with siblings who had or have real, serious medical problems, so for some 'survivor' siblings it turns into an endless quest for attenshun of their own. But then there are people like Cal Hartley who came out of his extraordinarily shitty sibling/familial situation as a surprisingly normal-seeming young man.
Scream Tail
kiwifarms.net
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- Dec 13, 2022
Not quite what you have in mind but I have a set of identical twins in my family and one is perfectly normal and successful in her life whilst the other is very disabled because of a birth injury and hasn't and never will live independently.
The healthy one feels extremely responsible for ensuring her disabled twin is well taken care of, has her medical needs met and is included in family events and stuff. It does obviously seem like there's some guilt there but at least it's manifested positively?
pineapples_are_evil2
kiwifarms.net
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- Jul 14, 2021
It's most likely they do. Many of the siblings of children with severe birth defects, severe Autism or Downs Syndrome(just a few I've come across), feel bad that they're "normal" and siblings aren't. Then if they're pressed into caretaking roles, they'll tend to eventually burn out or feel anger or resentment to both the sibling and their parents for placing them in said position.
We have friends who have 2/3 adult kids with an autosomal recessive degenerative kidney disorder. , There was 25% chance of NOT being carrier, 25% of being affected, and 50% of being a carrier. Eldest got lucky, they're not even a carrier so they're not affected, their kids won't be affected or carry the gene, nor any further progeny.
Eldest def has some survival/unaffected sibling guilt knowing that eventually at best by 60 her sisters will need dialysis and transplant. She has already been tested and isn't a close match to her siblings, so she has to come to terms with that too.
Another family so far after a Grandparent was Dx in 50's or early 60's with Huntingtons, atleast 3/6 of her children had symptoms by 45. Those 2 generations were before genetic testing or right at the beginning of earlier dx being available.
The grandkids are all struggling with making the choice to get tested or not, do you marry and do they have children, not knowing their future?
Some did preimplantaion dx for the embryos and only used non-huntington expressed ones, some aren't having kids, others left it to fate. End result they all feel guilty for "being healthy" if they've done the testing and don't carry the markers, or either live life to the fullest knowing they will express symptoms any time now, and others just pretend nothing is wrong and don't test or have, but won't share answers due to guilt or fear.
Those are just a variety of people I've met with family members with various Fatal, life limiting or degenerative disorders who deal with the gilt of being born healthy.
ZsaZsaBinks
kiwifarms.net
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- Jul 15, 2022
I know Ashton Kutcher is a prominent example. His twin brother has cerebral palsy and cardiomyopathy and needed a heart transplant. Ashton contemplated suicide so that his brother could get a heart transplant, but his father dissuaded him as a heart transplant was on the way for his brother.
I've definitely heard of grandparents who were tested, and felt guilty for unknowingly passing this on via their children.
- Joined
- May 25, 2013
My parents apparently argued with each other over who gave me the 'tism
Testicular Manslaugther
kiwifarms.net
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- Jan 4, 2020
It's not all positive. From my experience, that's a recipe for an Atlas Child will all sorts of emotional issues when they grow up. I wouldn't be surprised if the healthy one has a really hard time even identifying her own needs.