This is a hot mess from multiple angles (I'll just ignore ropicavaine since that's a nerve block agent)
You shouldn't be taking itraconazole if you're morbidly obese also but it won't even work if you're taking a PPI (lansoprazole) since it needs to be broken down by stomach acid and also taking an NSAID when you already have GI issues. Cool, cool.
I don't think she's likely on itraconazole. I can't think of any reason why she'd be on an antifungal of that potency. Even if she had a fungal skin infection in her gunt folds or something, there are other choices that I think would be more likely. I'm assuming the pink and teal capsule is the one that we think could be itraconazole, as both the name brand Sporanox capsules and several generic versions are colored in that combination. However I think it's more likely that the mystery capsule is lansoprazole, the capsules of which look very similar to Sporanox. There are two different generic versions of lansoprazole in those photos. One is pink and black with the imprint N 30 and the other is pink and teal with the imprint not visible. They're the exact same drug, just different suppliers. Lansoprazole is a boring proton pump inhibitor, and if you look at her disgusting food photos and her substantial girth, I think it's pretty clear why her stomach is upset. I'm also not sure what the red capsule is. The imprint is not completely visible and that makes it difficult to identify with confidence. Just a reminder that in most developed countries, including the United States and Canada, prescription medications are required by law to have markings indicating the manufacturer, dosage, and drug. Pills without markings are either over the counter medications, "nutritional supplements", or illicit drugs.
Sams Twins part 6. On the last episode of our favorite soap opera, Abby successfully elbowed her way into parasports by joining a wheelchair racing team for children, got a new service dog from a dubious “program,” and started pursuing endometriosis surgery from an even more sketchy specialty clinic. She transferred to Liberty U Online for a degree in Green Business Administration, got engaged to her long-time boyfriend and moved to Auburn, Alabama to live near, but not with, him. Nicole stopped using her feeding tube, bought herself a wheelchair, and wrote a vanity holistic health book that’s basically a giant advertisement for Kate Farms and Doterra. She transferred to Middle Georgia University in Macon where she gave up the pretense that she’d ever become a nurse and moved back into a dorm she hates because living on campus means her adjustable disabilities are on full display. Previous episodes: 1, 2, 3, 4.
In the last part, Nicole bought a wheelchair before going back to college and quickly found it was no fun at all because her campus is hilly and that makes it very inconvenient and difficult to scoot around, not at all like she thought it would be. But now that she’s used it in front of her peers and professors, if she doesn’t use her wheelchair people say she’s faking – the Abby Conundrum. She starts the year off by buying herself a used rollator to use when the wheelchair just isn’t that fun. Remember that the reason she needed the wheelchair was her SI joints in her hips constantly subluxed and dislocated after taking a Tap 1 class at the University of Georgia (also her excuse for why she was so goddamned bad at it) and her lower body mobility was absolutely ruined by this. Now that the wheelchair wasn't as fun as expected, the issue is her shoulders constantly dislocate and are her worst joints and she can't self-propel because of it.
Abby was back to having mega migraines that took her out of commission for weeks and put her in the ER twice on Christmas. Her pain was excruciating and unbearable and she had lost so much mobility. In January, she takes up rock climbing at an indoor climbing gym. This kid.
She gets a bunch of MRIs for various unspecified things at once.
Abby sees Atlas’s trainer for the first time in three months. We’ll circle back here soon.
In 2019, she did twenty-five 5k races in or out of her chair. In 2020, she’s going to do twenty-five hikes. According to google, "flashed a V2+” means before this hike, she also went to the climbing gym for a quick sesh. Just browsing some blogs about climbing, it looks like V2-3 is beginner's climbs that you can master in a few weeks, but V4 is where technique starts to be important and people get stuck.
Nicole moves back in the dorms and she’s not thrilled. But Kate Farms is so proud of her for choosing to focus on self care and speaking her truth!
Abby goes on a 3.5 mile hike after using her wheelchair for a 15 minute grocery run. She explains her disease progression isn’t linear and the reason she can hike some days and needs a wheelchair others is she’s learned to listen to her body and stop pushing it to get to “able-bodied normalcy.” I mean we know why: she can’t hike in a wheelchair and the wheelchair makes the neighbors at the grocery store think she’s very sick and special.
Lol Jaquie used to call all her doctor appointments where she was getting what she wanted “productive” and it’s always come off as such a munchie tell to me. Abby is getting set up for her endo surgery. In other news, she’s preparing Atlas for heavy mobility and tells us he’s turning 2. So she got this dog three months ago from an alleged program but she’s also told us all the task training fell on her. The trainer just did socialization and obedience, but also the dog is crazy and Abby complains frequently about not being able to control him or handle his energy. She often complains about leaving him home or having to leave a place because he doesn't understand that he can't just go rush over to a kid. 2 is on average when a service dog graduates from their program having learned all the tasks they will need and how to behave appropriately and refocus if they do get overstimulated in public. If this dog is really that rammy all the time he’d never make the grade at a real program. Wait, it gets worse.
Abby miraculously still has spoons left after doing a whole load of laundry so she decides to go climbing again. She doesn’t bring her necessary mobility dog when she goes to the gym because it’s just too much for him.
Nicole goes to the chiro. She also leaves the dog home and this is also the first time in a lifetime of not driving that she took an Uber alone. God made sure all her wonky EDS joints went back into place and her Uber drivers showed up when she requested them. No walking on her foot until whatever bullshit this chiro said she has is healed.
For some reason I cannot even begin to fathom, she believes that she is capable of taking six courses in a semester even though she has proven time and time again that she can barely handle a part time semester. God himself tells her to drop her accounting class after she spends four hours crying over three problems she can’t solve. She’s afraid that after changing her major for a third time she is going to add even more years to her education if she doesn’t finish everything right now and I guess living in a dorm she hates is just adding to the urgency.
She’s back to working out and seems to have forgotten she told us her shoulder constantly dislocates now that she’s not allowed to do anything with her foot.
Abby has been in Georgia with her parents for weeks now but she’s finally back home in Alabama. She gets the mobility harness she wanted. She doesn’t mention it yet but the dog is also now wearing an e-collar in addition to the prong because Abby has no idea how to train out Atlas’s behavior issues but she’s too arrogant to admit it.
Eww get your nasty shoes off the table where your coffee is you gross animal. Because she’s now doing the #bangsblitz bullshit Nicole is now posting her shoes in various places for attention. Everyone who comments on her shit now is either another affiliate for this brand, an MLM hun trying to get her to be their downline, or Kate Farms.
Abby soft-admits she actually hates Alabama and is only there because her fiance is. I gotta wonder just how easy it is to get through an online philosophy degree at Georgia State if her bullshit Liberty U “business” degree is giving her this much grief. She says in a later post she’s taking business law, theology, environmental energy sources, and statistics.
Her dog is getting reactive and it’s everyone else’s fault.
Nicole is already stressed out about school and wants it to be over. She’s been trying once again to rebrand as one of those “study with me!” accounts that posts like 5 hour long study sessions and shows how they get straight A’s and just love being immersed in their work. In the comments, Abby lets us know that God is her favorite ice cream flavor.
After a bunch of posts where she’s walking the dog or training him with no mobility aids, Abby commandeers the Women in Sports hashtag to talk about how she cheats at pushrim racing. She claims the only thing keeping her out of the paralympics is those ableist authorities who refuse to classify her as disabled due to the rarity of her condition. Not the fact that she only picked up the sport six months ago and has taken weeks upon weeks off of training and racing because the weather is a little chilly for her taste, has only ever competed in a few virtual races and fun runs with a children’s racing team, and therefore isn’t nearly dedicated enough to qualify. No, it's some grand conspiracy to keep a poor disabled woman with a rare disease from medaling.
And here she expands on that by saying even if she breaks a world record it won’t count just because those terrible committees say that an able-bodied person does not qualify for a paralympic gold medal.
Especially funny when juxtaposed with Nicole’s post two days later where they're together at their parents' house and Abby runs up the stairs to tell her it’s snowing out.
Don’t worry, like Nicole with her embroidered nursing scrubs, she makes up for the sting of never being in the paralympics by wearing a U.S. Paralympics Team windbreaker someone sent her and saying it feels right. Yanno usually these are like a discussion about how these girls can possibly be talking doctors into prescribing them things or speculating where the lie is in their story, but we don’t have to do that with these two because they straight up tell us they’re just buying things to legitimize themselves. They’re so much like the trans thinking they can purchase the trappings of disability to create a reality and everyone must go along with it. They also then insert themselves in to spaces and conversations that are not for them and fuck shit up for the people it’s meant for i.e. trying to control the discourse around disability rights, spreading misinformation about the conditions they claim to have and tirelessly trying to become a parathlete.
It’s Valentine’s Day. Abby celebrates that she has a MAN!!!!
Nicole spends it with her dog and complains about how she’s never been in a real relationship.
Abby’s migraines are better and now she can pull her hair back in a ponytail.
Nicole buys clothes from the professional closet at school, implying she may actually be planning to work one day.
She also wants YOU to pay for her inline skates because they’re better for her hips than her old quad skates. That doesn’t sound right but also I can't refute it.
Her dog gives her the illusion of a personality. Also God told her nursing was the wrong path and Healthcare Administration was the way, and she’s never felt so right in something. Every time she says something like this I just remember that she used to claim she was another gender and that it was for real and she felt right as her boyself and also that according to the gender people no one would ever lie about that or be young, confused, and sucked in by an internet cult.
Abby, sis, they were telling you not to call yourself disabled because you aren’t.
She goes to a wheelchair basketball game and tries out someone’s chair. She’s already hooked and can’t wait to start playing! Also her highly trained service dog stayed home because he doesn’t understand he can’t run onto the court to chase the balls.
She’s been given an offer to join a wheelchair basketball team! But the only problem is she doesn’t have a chair… Gib so I can insert myself into another space I’m not meant to be in.
Nicole tells us all about her diagnosis journey. Turns out she didn’t go to Abby’s doctor. After she got the NG tube at the ER she went to another gastro – presumably the same one her former “tubestie” saw – and described the disease she wanted them to diagnose her with based on what symptoms Abby and all her internet friends were claiming. The doctor asked if she had heard of EDS and she said her identical twin had it, and that is how she got diagnosed with both GP and EDS with no testing. More importantly, she lets us know the tube is gone now. I’d also like to point out she’s not talking about her seizures anymore or the weakness and extreme pain she was having in her right side, all things she skinwalked from that girl. Just like with her serious gender feelings, her trich, her CF obsession and deep desire to be a youtuber, it disappeared when she found something newer and more interesting. In this case, she’s trying to brand as a holistic crunchy woo goddess so tube is out, Doterra oils and ultra-restrictive diet for her “celiac” and “sensitivities” are in.
I will now take the time to dump her stories in the tube highlight reels because it’s funny.
So tl;dr this is fucking eye opening because it just shows how Nicole is neurotic and obsessive over every little symptom she had and shared absolutely everything in stories for attention.
Nicole always hated her feeding tube from day 1 but she liked the attention she got especially from Kate Farms’ social media page so she spammed constant story posts about it. The tube interfered with her ability to eat small portions of junk food and continue to lose/maintain her low weight. She refused to run feed or water through it and complained that they were denying her much-needed fluids while she quickly got dehydrated.
Fresh out of the hospital she was already back to eating fries and poptarts and burrito bowls and whatever else she wanted while crying about how it was just too painful to run her feeds or even water through it.
And she can't do number 2.
And they gave her the wrong kind of tube, not the cute ones all her friends have.
She then in addition to normal pain posting, she started giving constant updates on her stoma and how it was irritated
Doctor says might be the start of an infection and gives her cream to put on it, also tells her she'll get a new button tube in July.
As we know she gave away that she wasn't even attempting to use it before now by telling us the pump was broken right out of the bag.
And she still can't shit and everything hurts.
this horse pill is just Augmentin/Clavamox/whatever your favorite brand of amoxycillin/clavulanic acid blend is called.
Then the stoma was irritated, blistered, painful, and making it impossible to run feeds. She posted videos of herself pulling the tube and fucking with it to show this off but I’ll be honest, I have no idea if l she made this worse by constantly manhanding it or if it was bad for other reasons and moving the tube had little/no effect.
She gets her tube switched for a button when the doctor goes to see what the fuck is going on with the stoma, where they discover an ulcer inside.
She keeps fucking with the stoma.
making it even worse until they're using silver nitrate to burn it on purpose.
At this point she was still not running feeds six months later because it hurt too bad so they gave her a J-tube. This time she's sent to school immediately with no opiate vacation.
And she still wasn't using it and posting about the food she was eating.
There was a brief period where she was using the tube, allegedly, but I think she realized her stomach was still empty and grumbling when she ran j-feeds so it was just calories without the fun of eating and she went back to normal food very fast.
Rare disease day rolls around. Both girls post about EDS. Nicole breaks out the accessory wheelchair she never uses because hills are like, haaaaard and Abby also talks about her CRPS and the three additional diseases she fights every day.
Abby has been running a business called “Greener Goods” where she sells shit like reusable beeswax wraps to help people reduce their plastic use but she can’t keep up with orders. She also does not have a real job. I have to assume both Samses are living on student loans or their parents’ money.
In the meantime, she’s getting back into pushrim racing and she still needs her specialty basketball chair, people!!! It’s really inconvenient that she can’t practice for another adaptive sport she has no business playing.
Abby’s having a flare up but at least she admits that her skin issue is eczema, finally.
She builds a home gym for her wheelchair and does some funny videos where she apes difficulty standing up.
And she gets her new basketball chair, just like she gets every toy she wants, and smugly poses tossing a ball. It’s Spring break and Nicole is visiting. She’s thrilled that she gets to spend all this time with her twin and it’s just like they never separated again!
Nicole gets the notice that her classes will not resume in person in two weeks and she will be informed when she is allowed to get her shit and haul out of the dorm. She’s taking a lot of covisld precautions. In a radical change from everyone else, she’s claiming stress might make her more susceptible to spooky virus like it might anyone, but she is not actually immune compromised.
Caption is boring but laugh at her Kate Farms fannypack.
She buys inline figure skates meant for people who compete in actual non-ice figure skating competitions. Who knew this was a thing? Inline figure skaters did, I suppose. I did a price check but the wheels and boots are sold separately and the price ranges depending on what combo she has which as a complete outsider, I have no idea how to determine what rig she's got here. But I will say no pair I saw on ebay et al was going for less than a few hundred, even secondhand, and some were in the $1k zone. I mean cool but why are you spending money on this when you’re terminally unemployed and claim a severe disability that requires a wheelchair?
Abby is inconvenienced by the fact that all her sports are cancelled and she can’t even practice because the tracks and courts are closed. Sucks to not be able to use your sports teams as my latest bid for attention and validity! Yanno these two see divine influence in everything that happens to them, God is always trying to tell them something when they’re allegedly disappointed by having to drop a difficult class or put off getting a job, but the adaptive sports team getting cancelled right after she buys all the equipment to lie about her disability so she can cheat in them is just bad luck god had nothing to do with.
“We need to overreact now so we don’t have to worry as much in the future.” - March 2020.
She has an internship with SlickChicks, an adaptive women’s activewear brand. They make things like sports bras that have velcro closures in the front to make dressing easier for people with serious mobility impairments which Abby does not have. Part of her job is to stream “adaptive live workouts” for wheelchair users.
I just truly can’t get over the total lack of self-awareness. She’s training for the wheelchair basketball team by running on the treadmill and doing kickboxing classes with her mother, after taking an internship teaching wheelchair fitness classes.
I'm pretty sure she has no basketball experience whatsoever. She just made the team because she could buy herself a basketball wheelchair and pretend she needed it for the duration of the game.
Are you at all surprised that Abby is using this global disaster to completely control her fiance? She won't let him near her unless he completely isolates for two weeks prior and she's so glad she has a man who loves her enough to cut himself off from society indefinitely for her.
Nicole is just endlessly showing off her rollerskating tricks but screaming that she still has EDS and this is only okay because she's not going to do anything too risky.
Except when she falls. She's fine! The "normally would edit out" implies she's wiping out like this all the time and never having any issue from it.
Just laugh at Abby crouching in the background setting up a basketball hoop in her parents' driveway so she can practice to be on the basketball team in the wheelchair she needs for her very unstable joints.
Nicole is back to crying over minor frustrations like not being able to find a way to lace her skates up so no part of her foot or ankle is uncomfortable.
And forever jealous that @aerie chose her twin to be their model and not her. God @aerie notice me, too!! Her gastroparesis is now "in remission" thanks to a clean vegetarian diet.
Which of course includes Creamy, Delicious Kate Farms.
Abby would like to make sure that we know for certain that nothing is wrong with her joints.
God she's magnificent. Since she left her racing wheelchair at home in Auburn while she's crashing with her parents, she's had to focus on "upright cardio." In other words, walking and jogging, which means her heart is no longer being conditioned for wheelchair sports. Her solution is to use her wheelchair on the treadmill and invest in a stationary handcycle so she can keep up the lie that she's using her chair for anything other than attention.
Or maybe her heart rate is elevated because she posts about sucking down buckets of coffee all the time. Just a hunch.
And we are fully back to obsessive exercise Abby.
Proof of life for both dogs.
Nicole still has anxiety.
From "I won't attempt any jumps due to my fragile EDS joints" to "I am jumping but I'm careful because of my fragile EDS joints." Just keep moving the goal post, Ms. "I need a wheelchair because my Tap for Uncoordinated Houseplants class made my SI joint so unstable I couldn't stand up"
Lol Abby's having more issues with independence because her parents' house has a lot of stairs in it and that makes her legs tired. Also school isn't going great because her diploma mill university keeps changing the degree requirements and giving her no guidance.
Someone tells her the straps on her chair are on wrong and she says she prefers them like this because it makes transferring easier. LMAO you don't transfer, you stand up and walk away from the chair when you're done.
Nicole has gotten completely fucking boring and every single post is just about roller skating now, but sometimes she throws a bone to her alleged disabilities. Her hip popped out in her sleep and her shoulder is all itchy in the muscles from fibro.
And just like with Tap, she's an uncoordinated mess and her brain "doesn't understand" half the skills she's trying to learn. She feels stuck and hopeless, just like she did when she moved into the dorms. Jesus christ kid, get some real problems.
The solution is to go back to quad skates and actually this is much better for me than inline
Abby gets her racer back and makes her own stationary trainer. For a long time she's just posting about her racing training and Nicole about her roller skating and it's super boring.
They go on a hike. Abby wears her ill-gotten Paralympics jacket and remembers that knee brace she swears she needs. Whatever happened to the AFO she bought herself?
Abby still does not understand that postural orthostatic tachycardia would not elevate her normal resting heart rate.
Another hike.
For EDS awareness month Abby decides to make sure that everyone is totally and completely aware that she does not actually need her wheelchair by posing while standing and holding it. I think it's really fucking funny how the twins are in a biologically-determined echo chamber where they're always validating each other's lies because it serves them do to so. Neither one can see how ridiculous they look to outsiders and they refuse to even hear what the critics have to say most of the time so they're just forever making stupid claims for our entertainment.
Case in point with Atlas: he's a young labrador who needs to run off his energy all the time. People ask Abby how she manages this when she's told us he doesn't run along her racer on the track, the streets aren't safe for her to roll and there's no sidewalks, and the trails she can use are also not wheelchair accessible. She starts the post with I DO NOT WANT ANY ADVICE ON HOW TO LIVE MY LIFE then tells people she walks him, but only for a short time per day and not every day because she can't overdo it but she has a "use them or lose them" attitude with her legs but also Atlas doesn't need to be walked and is a couch potato except for when he's not. This is the same shit Nicole says about Pippi when people ask how she keeps a young pit bull from going bonkers, therefore it's true.
God I don't know why I love this little meltdown from Nicole so much. So she bought those expensive inline skates secondhand, but she has finally let us know they're actually too big and that's why she was crying that she can't get them laced comfortably. Her ankle keeps pronating in them because there's not enough support no matter how she ties them because her foot is sliding around. So she bought the used beat-up quad skates, but she can't execute the same moves she was doing on the inline skates on these becasue it's too hard and she keeps falling. She invests in a pair of Riedell boots in the proper size intending to mount her PIC inline frame to them but that also doesn't work because the Riedell boots are stiff and don't let her move like the PIC ones did and they don't want to mount to her frames properly. She doesn't know what to do! Oh god, it's not like she bought a money pit house she's stuck with because she underestimated the reality of fixing up a fixer upper. It's a fad hobby she hasn't even been doing that long that she sunk a bunch of money into while never holding a job (seriously is she just taking out student loans and spending it on her figure skating hobby?) But it's her latest social media identity. Her little one-track fruitfly brain can't think of anything other than buying something else to create a reality where she is very good at inline skating even though she's uncoordinated and averse to any physical or emotional discomfort.
Also her hip totally "comes out" when she's doing some of these tricks so stop telling her she looks healthy and able-bodied goddammit. She can't even lift her arms higher than you see in this photo and she can't wear tight shirts because of paresthesia! Better known as pins and needles. The term she was actually groping for is allodynia, a false pain signal from what should be a painless stimuli like clothing, hair touching your shoulders, etc which sometimes happens with fibromyalgia.
Don't worry, crisis averted. She got her new boots mounted right and she no longer has to cry and wail about it. I'm sure you were all on the edge of your seats over whether or not this adult was going to get her roller skate ouchies fixed.
Thanks, disease I don't have, for this minor injury you had nothing to do with. Doesn't spraining something usually leave it all swollen and bruised?
Abby totally dislocates her shoulders and has to get them fixed by the chiro. She has to rest them and it's really putting her behind in her training schedule. I am a particular fan of this kneeling photo. What a joke.
"It would be 100x better to be married and quarantined together." LMAO Carter just wants to get laid.
Ahhh the other half of why the Atlas post up yonder is so funny. And infuriating! The dog is a purebred lab but despite all she's tried to insinuate he was not purpose-bred program dog. He was a surrender when he was already full grown and had never been exposed to anything other than an outdoor kennel run at that point. The owner surrendered him because of behavior issues and high energy. He was afraid of absolutely everything, had never even been on a leash, and after Abby got him from his "training" he was still such a trainwreck of a dog that he stayed multiple days in the crate terrified of her and traumatized by the move. After six months he can almost sort of walk nicely next to her for a short distance and listens to commands once in a great while which means he's a success story. Just because the dog isn't biting people and shitting in walmart does not mean he's a service dog.
She finally has a date for her endo surgery! And admits her dog hasn't been "working" in weeks.
She's getting stronger through training but she's going to get weaker because of her disease so don't you dare suggest she's better or fixed.
Enjoy these clips of her workout. Terrible disability. Def should be in wheelchair sports. Poor thing can just barely use her legs.
She actually does 300 squats in one day. But yeah, totally needs a wheelchair and to play in sports meant for people with major lower limb deficiencies and everyone is just too dumb to see it. Meanwhile she announces Nicole is moving. Again. This time to Chattanooga.
Yep, she's changing her life plans once again. Also, she wants you to know that she's still horribly disabled by EDS even though all she posts about is figure skating.
Going for a run is now a chance to virtue signal about white privilege.
God is good! Getting my organs scraped tomorrow!
God not quite as good as anticipated. The surgery confirms endo but finds much more extensive damage than anticipated and the surgeons have to refer her out for another more specialized procedure. She also claims she had convulsions and seizures coming out of the anesthesia. Sure kid whatever.
She even shows us the pic of a pool of blood inside her pelvic cavity which is pretty metal.
Nicole is learning to drive, finally.
Abby's migraines mysteriously return when she's stressed from school and can't find a job. She won't be getting her second surgery for quite some time but they've diagnosed her with Stage 2 Endo, associated IBS, and she also will be getting her appendix out.
She makes this video with a youtuber called Wheels2Walking (power word: Richard Corbett) and it's worth the watch.
So Richard is not faking at all. Ten years ago he fell 50 feet through an open ventilation grate onto a subterranean concrete deck. Total freak accident, he was out for a run in bad weather and didn't see the grate which shouldn't have been open enough for someone to slip through to begin with. He was left with an incomplete spinal cord injury which means he still has some function and sensation below the fracture. He has done some pretty brutal PT and learned to walk, slowly, carefully, with great difficulty and pain for a few steps by manipulating the muscles he still has control of and stabilizing the ones he does not. He still uses his chair for most purposes. Ever the narcissistic ghoul, Abby goes on his show to talk about her really real disability that is totally not faked for attention. I gotta say, i feel bad for this guy. He is the mythical ambulatory wheelchair user who can, with a lot of body strength and years of PT, stand up from his chair to reach something on the high grocery shelf. He knows what it's like to be accused of faking it. And here's Abby back to her lie that she's just like him but even worse because if she wasn't facing these awful eligibility standards because of her rare disease she'd be in the paralympics.
But what's real fun is after her racing demonstration she rewrites her life story again. Now she's always had horrible dislocations in her legs and hips starting from age 11, was always going to the ER for them and was told it was just runner's knee or her being dramatic. Then in sophomore year of high school she was hospitalized for two months with hemiplegic migraines, couldn't turn over in bed, and was told she was lying. She now lived in LA for six months instead of six weeks. She chose a wheelchair over knee surgery because the surgery would take too long to heal and be blown out almost immediately, but also her doctors totally told her she needed the chair but insurance wouldn't cover it. It took months to afford it (NOPE! she told on 17 March 2017 that she had CRPS and would need a wheelchair in the future, ordered it five weeks later in early May 2017, and started claiming EDS on 28 June, a month after it arrived on 3 June). It was a stock chair (uncustomized base model). She also admits she has stopped pretending she needs to transfer out of her car to the chair because that was annoying and has gone back to just hopping up out of her seat and walking around to the hatch. She neglects to tell him she didn't use it regularly until she started doing parasports and still ditches it to go hiking, or that none of the chairs she has now were custom fitted and insurance denied her second chair as well. And then back to the lie that the only thing keeping her out of the paralympics is red tape. My favorite favorite part of the entire video is at the end when she said the Paralympics committee told her that her hypermobility is a sports advantage, not a disability.
And if you weren't already screaming about the audacity of this vapid sea slug, for a week afterwards she posts about going on hikes in the mountains with her dog.
Oh my god people are so ignorant! Just because I went hiking several times after whining and wailing to the wheelchair man who had a freak accident about how I can't be in the paralympics for wheelchair racing because they told me I actually have an athletic advantage, now they all think Im faking!
Nicole comes clean about being diagnosed with autism. She has "low support needs but high masking" and that's why even if you're BFFs with her you've probably never noticed her tism. She now stims and all her weird parasocial shit was just "special interests."
The only thing autistic about her is this godawful haircut.
Abby's back in Alabama after four months and there's roaches all over her apartment.
Abby goes to the beach again, as all her disabilities go into remission around a large body of water, and her highly trained service dog decides that he would like to go sniff another dog through that dog's fence. It gets attacked but it's the other dog's fault her dog approached it in its own space and she let it. Dumbass.
Back home she works with a trainer on his "dog excitement."
She means reactivity. Apparently this has been such a long term problem for him that people at the local pet store comment on how much better he's doing now after training than he was before. Also Abby tells us her biggest flaw is that she's got serious anger issues and blows up at the drop of a hat. HAVE FUN CARTER!!!
Back in Georgia, Nicole is moving and can finally live on her own.
She goes to Chattanooga where she's taken a job. Turns out she can't actually live on her own and in the days after she moves there she's an anxious, panicking, insomniac mess. She's nervous about asking the new job for accommodations already and also that she won't remember instructions on how to do the work. It's some sort of sales gig where she works a register and also ships orders.
"It's tempting to compare my reasonably well-behaved pet to service dogs that actually do stuff for their handlers but instead I'll just say she's still a service dog even if her only function is to comfort me which isn't a task under the ADA ."
Meanwhile in other news about people who don't deserve dogs, Abby's dog goes swimming with his e-collar on and fucks his neck up from it. She blames him.
She's a delivery driver now. Aka she's doing uber eats.
God is once again trying to tell her to stop with the cripple sports LARP. She can't afford to join the wheelchair basketball team because she keeps getting rejected from every job and the city of Auburn straight up demolished the racing track she was practicing on. I really find it fun that these girls swear God is in control of every situation and everything is meant to tell them a personal and specific message but the fact that there has been every road block imaginable from equipment problems and bureaucracy to a literal plague stopping her from joining a sports team meant for people with real disabilities has nothing to do with Him.
and then she's back to hiking and doing that stupid leg lift thing that just shows off both how mobile and not-hypermobile she is. Atlas got attacked again but throwing herself to the ground to protect him did no damage to her joints and only some scratches.
There's something really ironic about our anti-plastic environmental queen filling her house with fake plastic leaves instead of just getting some plants.
IDK what's funnier. The leg lift or the crouching after a long hike. She's basically just skinwalking Richard Wheelchair Man now saying that she's made so much progress in how far her legs will carry her through sheer willpower and determination. Also the yellow thing in her hand is the damn e-collar remote because of course the dog still has to wear it after hurting himself with it because she can't control him without fear and punishment.
A few days later, another long hike, this time with a weighted pack on her back.
She visits Nicole and they hike up a mountain together. Such disabilities these two have.
Nicole finally comes clean that Pippi, like every other dog she's had, reacted badly to the move and has been moping around refusing to even go on a walk let alone work. Out in public she won't listen and is constantly distracted.
Hahahahahahaha. Abby has been hiking through a nature reserve. This time they inform her on the way out that she can't do that anymore. She is still allowed to hike but Atlas can't go with her because he's disturbing the wildlife. And once again, God has said, "dude, I blessed you with perfect health. Stop faking a disability and just go for a hike."
So she continues to defy His will by paying more to go further away to a place with even more difficult terrain that calls her alleged disability into even more question just so she can win and hike with her poorly-behaved accessory dog that harasses the wildlife.
She has her second surgery. It's actually stage 3 endo and they removed almost all the tissue. She wakes up from it seizing but the kind where she's aware of her surroundings and knows it's happening and can describe it in detail. Any time she moves she has another seizure and no amount of pain or seizure medication works. They almost admit her for this but then it just stopped so they went 'oh okay that's cool then, new seizures that didn't respond to medication immediately after surgery, no worries, she's totally fine" and discharged her.
She has a fever now.
Her surgical site is infected.
It turns out real health conditions actually suck. Her apparently real endometriosis has led to a real infection followed by a real allergic reaction to the antibiotic she had to take.
Now that thats out of the way, back to using her fake health problems for personal gain. She's now won a scholarship to be an adaptive sports coach.
God this Chattanooga apartment Nicole lives in is so institutional. Maybe I'm just extraordinarily paranoid but I'm getting legitimate anxiety from imagining living in here. Like that's her ground floor door with the big glass panel (I think leading out to a patio). And that's her bed right there, and she's a single, young woman living alone. HELL no.
She has blessedly stopped posting about roller skating every day. Now biking is her new god.
Her hair somehow gets more and more tragic as time passes. I'm starting to miss the buzz cut.
And Abby is doing more sponsored content, this time swearing that she dislocates things putting her uggs on so she had to buy adaptive ones with zips.
She's finally getting married!!!!!
But first camping.
She dyed her hair to match Nicole's. Why not?
Nicole puts on her best grown up stethoscope costume to tell us that she's going to be a telemed scribe for a doctor, praise be to God! It's work from home transcription.
So hard when your fake problems aren't as important as the lung-melting plague going around.
hiking tho.
She gets a trike with a basket for Pippi, who looks like she still hates her life after the move. As far as I can tell she never got Pippi used to it and never really used it.
And boomerangs home for a few weeks, as is the custom.
Abby becomes a personal trainer.
And she graduated from Liberty University Online. She did the cap and gown graduation shoot even though she never went to campus.
Nicole's not doing so well in school. She's in pain all the time which makes concentrating difficult. Her trauma makes her flighty and rushed in her online classes and her autismo brain means she doesn't test well because she has trouble with visual processing. This is more blah blah blah to explain why she's not a 4.0 student like Abby.
And her migraines are back. Why is she doing this early 90s lumberdyke style? It's awful.
Back home means back to skating. God dammit. At this point were in another intensely boring loop with Nicole endlessly listing which of her hobbies she's engaging in today and the importance of having time to unwind and Abby shilling whatever brand will give her an affiliate link.
Abby's also trying to sell her training sessions.
Because no one will hire her.
Absolutely 0 chance this happened the way she's describing it. Not least of all because the class was non-synchronous. There wasn't a lecture where they all engaged in discussion with the professor. All the materials were online from the start and she just had to finish the work on time.
Back to hiking up mountains, this time with climbing lookout towers!
And basketball in her wheelchair.
But then back to hiking.
Where we learn the first "trainer" only had Atlas for a short while after his surrender before deciding Abby with 0 dog training experience was the perfect person to turn him into a real service dog.
now hiking in makeup and still can't get a job.
Nicole sleeps late from PTSD from someone else getting in a car crash near her apartment.
But at least she likes her new healthcare-adjacent job.
After weeks of hiking to lose weight she put on after surgery before her wedding, Abby's back to the wheelchair training.
Nicole bought...a weighted workout sword. What in the nerding hell? But also remember when she bought a rollator because her shoulders constantly dislocate from her wheelchair she bought because her hips constantly dislocate?
Abby has the Coof and can't breathe. Prey4me.
JK it's allergies.
The girls turn 23. Weird how they always looked so different even though they say they're identical. Abby has always had a much softer face and Nicole a much stronger chin.
babe wake up, new backstory just dropped. And oh god it's beautiful. The reason no one believed lil' Abby's injuries was because they started right after another little girl broke her leg and needed a cast and crutches and got a lot of attention and didn't have to do PE class. Abby was so embarrassed by being called out on this that she pushed through the pain and soldiered on without her necessary mobility aids and has developed a lifelong trauma that prevents her from using them when she really needs them. She's just masking the pain all the time now.
“It’s a chronically ill mindset of disappointing doctors because they want to help you but you’re just so complicated you feel bad about it. I know it’s their job and there’s no shame in being medicated but I have so much trama [sic] from when I first started getting migraines and had doctors tell me I was faking.”
Nicole learns that a real job is nothing like "working" retail at a store no one goes in or being able to focus all your attention on aesthetic instagram notes. It's like, actual work you have to do all the time whether you want to or not.
Suddenly all of pippi's tasks are for autism.
Also all her nerd shit is now autism hyperfixation.
But at least she loves that her job lets her pretend that she's doing something related to nursing.
Abby's wedding is coming up.
She ties the knot! Why does her husband already look like a hostage victim? Probably the same reason I'm feeling like one.
Alright let's rest again. I can't believe i still have two years of posts to get through. why is this fun for me? I hope it's fun for you.
Speaking of Alexandra... she recently did a "takeover" on the Rare Disease UK instagram page. This was surprisingly revealing - she finally shares the names of her DeafBlind diagnoses, in addition to several other congenital conditions that she's never shared before.
Cause of blindness: bilateral retinal coloboma, cataracts, nystagmus, dislocated lenses; microphthalmia and coloboma (MACs) - claims she has associated syndromes because of MACs Cause of Deafness: bilateral sensorineural hearing loss, completely deaf without hearing aids Additional information:
- Speaks about developmental abnormalities for the first time: hypotonia, late milestones, "painful clicky joints"
- There is no medical history of genetic disease in Alexandra's family.
- Additionally claims an undeveloped corpus callosum, missing kidney, underdeveloped inner ear organs, inturned hips, multiple cafe au lait birthmarks, and "deformities" primarily on the right side of her body
- Joint issues (subluxations and dislocations) allegedly began in teenage years
- Her major surgery at age 16 was for reflux, she had a Nissen fundoplication (which I admittedly know nothing about). She claims to still be able to vomit, which the surgery is supposed to prevent (to my understanding).
- After this surgery, she had her first "seizure-like activity" (PNES anyone?)
- Her mitochondrial myopathy was apparently diagnosed by EMG and stress test - or likely is still an informal diagnosis. No genetic proof of her genetic disease, despite childhood genetic testing.
- Repeats how the doctors said it was all in her head, then proceeded to be diagnosed with EDS, gastroparesis, MCAS, and POTS. Claims that hEDS is rare.
- Alexandra is under the care of the Syndromes Without A Name (SWAN) team. She claims to be diagnosed with so many things, and yet still is a SWAN patient.
Here is the full video, if anyone is interested - I had to upload to youtube because it's too large for the farms to handle.
It's annoying to watch because the captions keep blocking the written information on the screen, and there are occasional purposeful glitch visual effects - you'd think such a good advocate would try to make her content more accessible.
ETA: I wasted a lot of my time recently archiving Alexandra's blog and Instagram. I'm still working on the summaries with commentary, but here is her entire blog in a word doc.
I used to climb in my college days. I could take anyone with functional limbs to a wall and put them up a v2. Flashed means you did it first time. That’s impressive for longer routes that are harder (climbing is a bit like a puzzle, you need to figure out how to get up stuff,) but for a v2, anyone can do it.
Not really commenting this on her in particular (as they’re something you can’t test for and thus a munchie fave) but Migraines actually do have a significant emotional component. Simply feeling strong emotion, positive or negative, can be enough to bring one on for some people.
They can also be a manifestation of psychological pain.
Cannot imagine how annoyed that bloke who fell down a grate and broke his back must feel when faced with girls like this.
Not really commenting this on her in particular (as they’re something you can’t test for and thus a munchie fave) but Migraines actually do have a significant emotional component. Simply feeling strong emotion, positive or negative, can be enough to bring one on for some people.
They can also be a manifestation of psychological pain.
Cannot imagine how annoyed that bloke who fell down a grate and broke his back must feel when faced with girls like this.
Migraines are a pain in the ass to deal with for that reason, because they can sometimes happen with major emotional states, mainly stress. But then again, so do headache variants like tension headaches, though that's more of a thing that encompasses the circumfrence of your head and not localized to one side. Abby is so full of shit with her munching, but this is one very rare exception where I'd be willing to give her the benefit of the doubt about her suffering from them.
'Course, any migraine sufferer worth their salt pops a triptan pill and lies down in darkness for a bit until the worst passes over after an hour or so, hopefully the legs don't feel like a gummy candy. Doubt she'd even want to try taking a triptan or someshit.
Migraines are a pain in the ass to deal with for that reason, because they can sometimes happen with major emotional states, mainly stress. But then again, so do headache variants like tension headaches, though that's more of a thing that encompasses the circumfrence of your head and not localized to one side. Abby is so full of shit with her munching, but this is one very rare exception where I'd be willing to give her the benefit of the doubt about her suffering from them.
'Course, any migraine sufferer worth their salt pops a triptan pill and lies down in darkness for a bit until the worst passes over after an hour or so, hopefully the legs don't feel like a gummy candy. Doubt she'd even want to try taking a triptan or someshit.
I'm not sure her migraines are anything approaching what she says they are.
I've had serious migraines for over 40 years and regularly see a neurologist for them.
The last thing someone with a migraine would be doing is showering, brushing their hair, taking selfies and writing social media posts. True migraines can knock you on your ass for hours to days. I've never even been able to get my ass moving enough to drag myself to a hospital for a really bad one.
- Her major surgery at age 16 was for reflux, she had a Nissen fundoplication (which I admittedly know nothing about). She claims to still be able to vomit, which the surgery is supposed to prevent (to my understanding).
That would be detrimental for the body isn’t? Vomit is the fastest way to get toxic mass out of system, doubt doctors would do anything to completely prevent it; food poisoning still exists even for spoonies
That would be detrimental for the body isn’t? Vomit is the fastest way to get toxic mass out of system, doubt doctors would do anything to completely prevent it; food poisoning still exists even for spoonies
If you truly can't vomit, you get diarrhea instead. It's true, though: there's a cost/benefit to think of in any procedure. Except sex reassignment which is always the correct choice and never goes wrong.
In peds, Nissen fundoplication is usually due to a more severe reflux condition than in adults, developmental disorders, chronic vomiting, kids with gastric tubes. A G-tube could be suctioned if necessary.
can't find it but I read an interesting paper about people with both epilepsy and PNES. I think it focused on youth too and more absence seizures than grand mal. Even in non-BPD populations, the idea that "yes you really have epilepsy, but also some of the time it's 'in your head'" is hard to grasp both just logically and psychologically/ego-wise for a twelve year old. They found that a percentage of the epileptic kids basically lied about having seizures when they didn't have a seizure: to get out of things, for attention, or as a general anxiety response. It has real-world implications because confusing PNES for more seizures might mean upping or changing medication in someone who doesn't need it.
Another interesting population that I read about developing PNES are first responders having psychogenic reactions to substances they falsely believe they've been exposed to.
You can probably see videos of it online that often make it into the news cycle too: A cop just TOUCHES a ziploc bag that contained two specks of fentanyl, then immediately collapses, and they narcan the fuck out of him. It's really a panic attack/fainting spell.
But in this case in the study, the cop developed a real disorder after an experience like that, where he continued to have these weird fainting/shaking spells even after the "overdose" which couldn't have been an overdose. He was relieved when they told him it was psychogenic and treatable, because he thought he was fucked and his career was over.
I know it's easy to think psychogenic conditions only happen to cluster B manipulative bitches, but really it's just that they often actively enjoy such things and make them purposefully more visible and can be basically impossible to treat. Psychogenic conditions are also common in cluster C anxious types but they tend to not want attention, not be proud, and not loudly seek treatment, or get misdiagnosed with physical illnesses.
That sounds fascinating. If you do manage to ever stumble on either one of those papers again, please send them my way, both sound like fun reads.
Somewhat of an aside, but this reminded me of a really interesting case a friend of mine told me about related to psychogenic phenomena. A hypochondriac patient sets up camp in the clinic waiting room and constantly pesters the staff worried that he's on the cusp of having a heart attack. Whenever he had any sort of discomfort, indigestion or cramps in any part of his torso, he'd immediately demand bloodworks, EKGS and CCTAs to the point where he'd driven himself to acute anemia from hopping clinics when one refused to draw blood. After some time, he presented to the clinic with his regular hypochondriac spiel, except this time, he'd collapsed in the waiting room. Lo and behold, sudden cardiac arrest. They do the works but find no blockages, no lasting damage, no precursor symptoms, nothing at all. Since he had no known risk factors or prior symptomatology aside from his hypochondriac anxiety, - the acute anemia a year or 2 prior, they couldn't put a pin in it, only to figure out through heteroanamnesis that the guy stopped taking his prescribed anxiolytics a week or so back, thus likely stressing himself to the point of getting a stress-cardiomyopathy induced MINCOA infarction. Afterwards, they referred him to another shrink since he refused to talk to the ones in-house, who suggested it may be more than just stress, but a psychosomatic response to his constant fear of having a heart attack.
TLDR Hypochondriac patient cold turkeys his anxiety meds and stresses himself to the point of inducing a heart attack. Imagine manifesting a heart attack because you're scared that you're gonna have a heart attack. Wild stuff. Psychogenic conditions are among my favorite, morbid as that sounds. S' why I love me some munchies. Pretending to be sick only to actually get sick. Would be karmic comedy if it wasn't kind of sad.
- Her major surgery at age 16 was for reflux, she had a Nissen fundoplication (which I admittedly know nothing about). She claims to still be able to vomit, which the surgery is supposed to prevent (to my understanding).
That would be detrimental for the body isn’t? Vomit is the fastest way to get toxic mass out of system, doubt doctors would do anything to completely prevent it; food poisoning still exists even for spoonies
This isn't really related to the current discussion, but, because of the thread we're in, I'lll mention that Garnett Spears had a nissen fundoplication when he was very young. His MBP mom, Lacey Spears, had reported that he couldn't keep food down. When she fed him salt through the feeding tube, he couldn't throw up to get the toxic amounts of salt out of his system. He did get diarrhea, but it wasn't enough, and he died.
Again, none of that is really relevant to Alexandra, but it's at least (somewhat) on topic for the thread.
That would be detrimental for the body isn’t? Vomit is the fastest way to get toxic mass out of system, doubt doctors would do anything to completely prevent it; food poisoning still exists even for spoonies