TheBigZee
kiwifarms.net
- Joined
- Jan 25, 2021
Some types of EDS are associated with spontaneous perforation/rupture of the intestines.I'm also not sure why EDS patients would need an ostomy for
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Some types of EDS are associated with spontaneous perforation/rupture of the intestines.I'm also not sure why EDS patients would need an ostomy for
took a little google of the first one and they were raising money to have her bladder removed privately because according to them, the NHS waiting lists were too long: https://www.gofundme.com/f/help-katie-to-never-have-to-fight-urosepsis-again - according to Katie's comment from 17th June 2023, she had the surgery.Interestingly, all three are British and using NHS services to pull this off.
Molly was never diagnosed with EDS, in fact she was told more than once that she definitely doesn’t have it. The closest real diagnosis was benign hypermobility, which is just what it says, benign. There was no real reason for her ostomy beyond constipation and her suspicious failure of all normal constipation treatments. She pretty much demanded surgery even though no sane person wants a shit bag (hint: she’s not sane in the least).Some types of EDS are associated with spontaneous perforation/rupture of the intestines.
That makes sense that she went for private care. There was someone sending me updates but I can't stand these piss fetishists talking about their cath bags of infected pee so I stopped reading them.took a little google of the first one and they were raising money to have her bladder removed privately because according to them, the NHS waiting lists were too long: https://www.gofundme.com/f/help-katie-to-never-have-to-fight-urosepsis-again - according to Katie's comment from 17th June 2023, she had the surgery.
i checked out NICE guidelines for cystectomy and it looks like its only for people with bladder cancer: https://www.nice.org.uk/guidance/ipg287/chapter/1-Guidance NHS is very reluctant to deviate from NICE guidelines even in exceptional cases so i'm not overly surprised she was on the back of a waiting list. they definitely will administer hardcore antibiotics the second pathology indicates it but it would make sense that they draw the line for drugs in a different place to private US insurance for repeat patients.
not saying she's not a munchie. just being nitpicky about how one of these ladies got this done. the conception over here is that its way easier to get things done if you can pay privately so her getting it by that route makes a big difference, i don't know how correct that is though.
I kinda understand how you can munch an ostomy, tbh. It's not hard to get whatever you want out of a doctor via sheer attrition if you have no shame, a ton of dedication, and an utter disregard for the value of your own (and everyone else's) time. If you continue complaining your situation is intolerable and failing all the treatments, they have to continue trying things. Most doctors know how to handle the most obvious drug seekers, but even for most of them the end game is getting referred to a "pain clinic" which is basically a pill mill that'll dispense a dose just high enough to keep you quiet in small quantities at a time if you play ball with a few requirements. If you're after something that isn't controlled drugs, like a specific diagnosis, an invasive or expensive treatment (like IVIG), or a disability claim/accommodation/excuse note of some type, you probably won't even need to doctor shop as long as your histrionics aren't too ridiculous.She pretty much demanded surgery even though no sane person wants a shit bag (hint: she’s not sane in the least).
Ports used to be a sign someone was really sick but now everyone has one so it's not cool anymore.
I think EMR incoherence plays a bigger role. It's still entirely possible to have several specialists with no way to check what other services your getting besides opiate scripts.This holds true in the US as well, so $$$ has to be the only reason why American munchies seem to get all the toys so easily
Lol I didn't tag you on purpose so you wouldn't feel put on the spot.I have a bunch of archives of Katie Bennett-Jones (caught her when she went public when crowdfunding). I’ll shit and get off the pot eventually. Bear with please.
This plays a huge part. Opiates are tracked on a single electronic database, but unless two doctors are on the same EMR they have to rely on the patient's word and/or any outside medical records they recieve. Most large hospital systems are using some flavor of EPIC, but it's definitely far from universal.I think EMR incoherence plays a bigger role. It's still entirely possible to have several specialists with no way to check what other services your getting besides opiate scripts.
KFS, thank you for another horrorLol I didn't tag you on purpose so you wouldn't feel put on the spot.
Thread tax, Katie playing with a giant blood clot in her catheter bag pre-urostomy, sums up her entire post history.
Are you stupid, or just making a joke? The clot is the same shape as the container it is in, she passed the blood as regular blood and it clotted after it was in the container.I'm both amazed and disgusted something of this size passed through her urethra/catheter.
She also has a green thing in her ear and I'm not sure what it's supposed to be.
A bit of both. I thought it was several smaller clots that formed into one mega clot (didn't realize it was liquid blood that coagulated); it was just funnier to imagine it plonking out all at once.Are you stupid, or just making a joke? The clot is the same shape as the container it is in, she passed the blood as regular blood and it clotted after it was in the container.
There's a big culture of 1upmanship among munchies. They target treatments that mean you're really sick. Ports used to be a sign someone was really sick but now everyone has one so it's not cool anymore. If you get something extreme and uncommon done then you're cooler than all the other munchies. It also makes non munchies think "fuck maybe they aren't faking if they got that". It's pretty easy to get extreme things done to you if you purposefully exhaust treatment options through sabotage and deception