- Joined
- Feb 21, 2018
man this thread popped off and I had this post drafted and didn't want to lose it by replying.
I hate myself for remembering this, I hate the friend who dug up a copy of this on request, I hate myself for making the request, I hate Jessi for taking this, I hate the Internet for existing. #freeAtlas goodboi dindunuffin.
As an aside, youtube queued up some Anti-MLM thing when I was autoplaying for background noise the other day. The host was reading viewer-submitted MLM horror stories. One, before she even got to the "meat" of the story, I knew was going to be a munchie spinning a real tall tale and I was not disappointed. The first sentence was about how her mom abused and medically neglected her via the MLM's hokey supplements even though she's disabled and my brain just went, it's MCAS. Sure enough, it's MCAS, she had a whole promising life in the medical field ahead of her and it's been ripped from her because her horrible narc mom who was totally an olympic athlete starved her and made her take dumb JuicePlus+ capsules and let her disease spiral out of control. I got so annoyed by the blatant histrionics and exaggerations and the host taking it 100% at face value that I had to turn it off. I know the channel was Hannah Alonzo but I can't find the specific video and my watch history is off.
i get so cranky when these "debunking" channels fail to have even the slightest of critical thoughts about the sudden rise of things like formerly obscure medical conditions and transgenderism that seem to disproportionately be erupting specifically in middle class white women in their late teens and early 20s.
Speaking of Dr. Afrin...
---------------
Welcome to Tricia Melland part 3. Tricia claims to have a mitochondrial disease that is shutting down her organs, which can only be diagnosed and properly managed by one unethical lunatic thousands of miles away from her home. In our last part, Tricia spent six months giving herself sepsis and malingering on pain meds in hospitals across the United States claiming mysterious headaches and nausea that only respond to high-dose opiates. She's had her J-tube surgically removed citing its futility due to her total intestinal failure. Her final year of high school was medically uneventful and she graduated on time despite missing months upon months of school. She's now ready to start college three hours away from home.
We stop here. After this Tricia embarks on a quest to make sure she can never, ever back out of her lies even if she wants to, and she loves every second of it!
First time meeting Jessi, huh?
I hate myself for remembering this, I hate the friend who dug up a copy of this on request, I hate myself for making the request, I hate Jessi for taking this, I hate the Internet for existing. #freeAtlas goodboi dindunuffin.
Just tag me next time.
Ahh, like my favorite ME/CFS weirdo Whitney Dafoe, this one's totally-not-psychiatric condition is being treated by benzos.
As an aside, youtube queued up some Anti-MLM thing when I was autoplaying for background noise the other day. The host was reading viewer-submitted MLM horror stories. One, before she even got to the "meat" of the story, I knew was going to be a munchie spinning a real tall tale and I was not disappointed. The first sentence was about how her mom abused and medically neglected her via the MLM's hokey supplements even though she's disabled and my brain just went, it's MCAS. Sure enough, it's MCAS, she had a whole promising life in the medical field ahead of her and it's been ripped from her because her horrible narc mom who was totally an olympic athlete starved her and made her take dumb JuicePlus+ capsules and let her disease spiral out of control. I got so annoyed by the blatant histrionics and exaggerations and the host taking it 100% at face value that I had to turn it off. I know the channel was Hannah Alonzo but I can't find the specific video and my watch history is off.
i get so cranky when these "debunking" channels fail to have even the slightest of critical thoughts about the sudden rise of things like formerly obscure medical conditions and transgenderism that seem to disproportionately be erupting specifically in middle class white women in their late teens and early 20s.
Speaking of Dr. Afrin...
---------------
Welcome to Tricia Melland part 3. Tricia claims to have a mitochondrial disease that is shutting down her organs, which can only be diagnosed and properly managed by one unethical lunatic thousands of miles away from her home. In our last part, Tricia spent six months giving herself sepsis and malingering on pain meds in hospitals across the United States claiming mysterious headaches and nausea that only respond to high-dose opiates. She's had her J-tube surgically removed citing its futility due to her total intestinal failure. Her final year of high school was medically uneventful and she graduated on time despite missing months upon months of school. She's now ready to start college three hours away from home.
Fuck you iron deficiency corticosteroids mito!!!
August 4th, admitted for (you know it!) suspected sepsis.
And “allergic reactions” that she says look like sunburn. I mean it looks like general flushing to me. It might be fever flushing but it also might be something like steroids, certain antibiotics, some pain meds... a lot of stuff can cause this. Hell, some people flush from taking niacin which is just Vitamin B3. (Fun fact: I am almost sure this is how Cheyanne convinced people she had MCAS! Cheyanne was well acquainted with supplements and their effects from her Fit Vegan Not-Ginger saga while she still lived in Florida)
Again I ask… what is the other dog doing there? She’s in the hospital. He’s not a service dog. I mean Kenny isn’t either but she doesn’t even pretend Esky is.
On the 9th she gets her 31st transfusion. Tricia when I submit myself to the Red Cross bloodsuckers I’m not thinking of some stupid munchie wasting this precious life-fluid for their latest attention grab. I’m thinking of the innocent neighborhood trigger-happy gang members who really need it.
Released in time to start college and pledge to a sorority. What luck!
Second week of the semester, she’s admitted for another line infection. This time she’s super busy with college work so she gets discharged right away.
Admitted a few days later because of her stupid immune system and now she’s on Bipap.
For two days. Then she’s home again.
All quiet until Halloween when she goes as a spoooooky blood bank vampire.
November 4, admitted for (you know it!) suspected sepsis. The dog alerted again of course.
The line is visibly infected this time. It takes hours to dig all the crap out of her chest and leaves her with another gnarly pus-pit that she has to pack with gauze.
Discharged on the 13th. I guess her kidneys aren’t in too bad of shape if she’s getting aminoglycosides.
29th, she’s off to Iowa to see a retina specialist. At least this time it’s a state that borders the one she lives in. I’ll point out that she’s back to her pattern where she posts nothing unless there’s an appointment or she’s hospitalized. No fun times with her sorority sisters or cute pics of her dog on campus, no whining about her courseload or celebrating that she got a good grade on an exam. If it isn’t a medical update it’s not worth posting.
Early December, another respiratory infection. This one makes the lining of her lungs partially collapse and keeps her from being able to use her Cpap at night. They can’t do anything to help her unless she gets worse.
Once again I am confused by her timeline. This is the 2009 hospitalization and now she’s saying this is when her GI system started to shut down. Still can’t imagine taking this pic of my kid let alone uploading it to the Internet.
Moving on, winter break comes and goes with no medical drama and thus no posts, but school’s back in session so her g-tube drainage and ostomy bag are both full of blood now. Go big or go home!
Admitted in Omaha and getting more transfusions. She gets scoped and the results “weren’t great.”
February 1, she’s still getting blood and still bleeding. They’re hoping it’ll stop on its own. She misses another concert for this.
Two days later, discharged even though she’s still bleeding somewhere.
It lasts three days, then she’s back and getting more blood. Two units of blood don’t bring her counts up at all because she’s both actively bleeding and not producing enough new blood. Doctors don’t know what to do.
She gets scoped on the 9th. No answers and they still don’t know what to do except keep giving her more blood. They try to give her iron and she has a terrible reaction.
And her line is infected again. She needs a double balloon enteroscopy and surgery soon. This kinda suggests they don’t actually know where she’s bleeding, since the balloon enteroscopy goes deeper than your standard endoscopy does. They might do another bone marrow biopsy and replace her line.
Hello Escobar WHY ARE YOU IN THE HOSPITAL?
Good boy, Kenny. Because they claim he’s a therapy dog and this means he can come visit Tricia too.
I did find an article saying that they got him certified with something called Pets for Life, a local therapy dog program. This certification consists of a temperament test and a shadow day. Okay fine, but that still doesn’t explain what he was doing at the Stratosphere and their fucking amusement park which, I will remind you, is on a platform tower 1000 feet in the air. Also weirdly this publication says they live in Olathe, Kansas, on the other side of the KC metro area. Fastpeoplesearch, et al, says they live in the Stratford Gardens neighborhood of Kansas City, MO and lists no other addresses ever for Tricia. This address matches with Tricia's photos/videos of her home. I guess it was just a mistake. Leawood, where this event took place, is the suburb directly across the Kansas state border from their suburb.
50 donations people selflessly gave so she could get more digital instagram heart stickers.
ooh I was right, they don’t know where she’s bleeding. She goes for the double balloon enteroscopy and wakes up intubated in ICU. The fuck is up with this hospital letting her have her dog on the bed in the ICU? I know service dogs have "rights" so to speak but even Tricia says on other hospitalizations that he's not allowed in ICU with her. I also just want to point out, in case it wasn't obvious, that the fact that Kenny is there all the time means that so is Mom, since Tricia can't take him out for potty breaks while she's in the hospital and the nurses are not obligated to do so.
Behold the one and only video she ever posts of Kenny “tasking.” It’s a simple retrieval after she “dropped” her pain pump controller thingy. The dog picks it up for her and brings it to her. That’s niceYOU KNOW THE PERSON FILMING THIS COULD HAVE DONE THAT TOO?
On my first pass when I was just skimming I was kind of lost as to what the lil fucker allegedly did for Tricia since she basically never ever says what this dog is for other than general comfort, which is not a task. i went over to his account where she posted this "business card" she had printed that said blood sugar alert, retrievals, and finding help. Well at least we know he can do one of these things now, although why she needs the dog to do this when her mother basically never leaves her side is beyond me. As for the blood glucose, Tricia had an IRL friend who was also "sick" with remarkably similar problems despite claiming entirely different disorders and she also claimed her dog detected low blood sugar. Why these girls can't just get a CGM if they're having such terrible blood sugar issues is beyond me. If I get the ambition I'll dig into that one too.
She missed another ding-dang-darn Twenty One Pilots concert!! Don’t worry, this doctor is one of those assholes who spends the whole concert holding his phone up to record it. Oh boy do I love when I pay to see one of my favorite musical artists live on stage and I get to watch it through someone else’s phone screen held directly in my line of sight. It’s just like staying home and watching YouTube, but with the added bonus of being nestled in a stranger’s humid armpit!
Her hospital writes an article about her. Add basketball to the list of sports she previously did. We finally get something of an answer: she was hospitalized for normal viruses that would “wipe her out for months” and being life-flighted around the country because of it. Kenny’s backstory is a lie, she was saying she was going to train him to be a SD from the day she got him. The article also lets us know Tricia is a biochem major and still wants to be a doctor.
March 4, after five weeks in the hospital, she’s finally out. She is right back to going to comedy shows the next night. The show was in Des Moines which is three hours from both her home in Kansas City and her college in Lincoln.
Two days later, hospitalized for more blood and now she needs surgery.
New central line who dis? They give her a medicine she’s allergic to so now she’s on the bipap again and complaining about how much pain she’s in.
She’s out temporarily because she made her sorority’s charity event about herself, then she goes right back to the hospital as soon as it’s done. According to wiki this sorority officially pledges their charity fundraiser to Make-a-Wish so I don’t know if this is in addition to that or if Tricia convinced her local branch that her cause was more important than that dumb charity that gave her a free vacation even though her family is loaded.
Of course, this hospitalization is another painkiller vacation.
Day 50. Looks like they got a peripheral line in her arm?
Once again, discharged in time for Easter. A true miracle!
April 30, she’s admitted with (you know it!) suspected sepsis. She’s gained 10 lbs in a week from the infection.
Why all the candy and soda for someone allegedly in total GI failure, Tricia? I don’t know, if someone told me they can’t eat anything I wouldn’t bring them candy and soda in the hospital. Sounds like your sorority sisters see you living on the all-sugar diet at home.
Dehydrated on 7L of fluids while they’re trying to change over her steroids. I’m gonna guess QuickTrip sodas and Chick-fil-A lemonade are probably not indicated in total GI failure. Just a hunch.
She and her doggie have now spent 18 days in the hospital and she probably has kidney stones.
She does, then she passes them and is discharged the next day. Almost her entire second semester of college was spent hospitalized. She never talks about her classes so my assumption is she had to drop them all.
August 4th, admitted for (you know it!) suspected sepsis.
And “allergic reactions” that she says look like sunburn. I mean it looks like general flushing to me. It might be fever flushing but it also might be something like steroids, certain antibiotics, some pain meds... a lot of stuff can cause this. Hell, some people flush from taking niacin which is just Vitamin B3. (Fun fact: I am almost sure this is how Cheyanne convinced people she had MCAS! Cheyanne was well acquainted with supplements and their effects from her Fit Vegan Not-Ginger saga while she still lived in Florida)
Again I ask… what is the other dog doing there? She’s in the hospital. He’s not a service dog. I mean Kenny isn’t either but she doesn’t even pretend Esky is.
On the 9th she gets her 31st transfusion. Tricia when I submit myself to the Red Cross bloodsuckers I’m not thinking of some stupid munchie wasting this precious life-fluid for their latest attention grab. I’m thinking of the innocent neighborhood trigger-happy gang members who really need it.
Released in time to start college and pledge to a sorority. What luck!
Second week of the semester, she’s admitted for another line infection. This time she’s super busy with college work so she gets discharged right away.
Admitted a few days later because of her stupid immune system and now she’s on Bipap.
For two days. Then she’s home again.
All quiet until Halloween when she goes as a spoooooky blood bank vampire.
November 4, admitted for (you know it!) suspected sepsis. The dog alerted again of course.
The line is visibly infected this time. It takes hours to dig all the crap out of her chest and leaves her with another gnarly pus-pit that she has to pack with gauze.
Discharged on the 13th. I guess her kidneys aren’t in too bad of shape if she’s getting aminoglycosides.
29th, she’s off to Iowa to see a retina specialist. At least this time it’s a state that borders the one she lives in. I’ll point out that she’s back to her pattern where she posts nothing unless there’s an appointment or she’s hospitalized. No fun times with her sorority sisters or cute pics of her dog on campus, no whining about her courseload or celebrating that she got a good grade on an exam. If it isn’t a medical update it’s not worth posting.
Early December, another respiratory infection. This one makes the lining of her lungs partially collapse and keeps her from being able to use her Cpap at night. They can’t do anything to help her unless she gets worse.
Once again I am confused by her timeline. This is the 2009 hospitalization and now she’s saying this is when her GI system started to shut down. Still can’t imagine taking this pic of my kid let alone uploading it to the Internet.
Moving on, winter break comes and goes with no medical drama and thus no posts, but school’s back in session so her g-tube drainage and ostomy bag are both full of blood now. Go big or go home!
Admitted in Omaha and getting more transfusions. She gets scoped and the results “weren’t great.”
February 1, she’s still getting blood and still bleeding. They’re hoping it’ll stop on its own. She misses another concert for this.
Two days later, discharged even though she’s still bleeding somewhere.
It lasts three days, then she’s back and getting more blood. Two units of blood don’t bring her counts up at all because she’s both actively bleeding and not producing enough new blood. Doctors don’t know what to do.
She gets scoped on the 9th. No answers and they still don’t know what to do except keep giving her more blood. They try to give her iron and she has a terrible reaction.
And her line is infected again. She needs a double balloon enteroscopy and surgery soon. This kinda suggests they don’t actually know where she’s bleeding, since the balloon enteroscopy goes deeper than your standard endoscopy does. They might do another bone marrow biopsy and replace her line.
Hello Escobar WHY ARE YOU IN THE HOSPITAL?
Good boy, Kenny. Because they claim he’s a therapy dog and this means he can come visit Tricia too.
I did find an article saying that they got him certified with something called Pets for Life, a local therapy dog program. This certification consists of a temperament test and a shadow day. Okay fine, but that still doesn’t explain what he was doing at the Stratosphere and their fucking amusement park which, I will remind you, is on a platform tower 1000 feet in the air. Also weirdly this publication says they live in Olathe, Kansas, on the other side of the KC metro area. Fastpeoplesearch, et al, says they live in the Stratford Gardens neighborhood of Kansas City, MO and lists no other addresses ever for Tricia. This address matches with Tricia's photos/videos of her home. I guess it was just a mistake. Leawood, where this event took place, is the suburb directly across the Kansas state border from their suburb.
50 donations people selflessly gave so she could get more digital instagram heart stickers.
ooh I was right, they don’t know where she’s bleeding. She goes for the double balloon enteroscopy and wakes up intubated in ICU. The fuck is up with this hospital letting her have her dog on the bed in the ICU? I know service dogs have "rights" so to speak but even Tricia says on other hospitalizations that he's not allowed in ICU with her. I also just want to point out, in case it wasn't obvious, that the fact that Kenny is there all the time means that so is Mom, since Tricia can't take him out for potty breaks while she's in the hospital and the nurses are not obligated to do so.
Behold the one and only video she ever posts of Kenny “tasking.” It’s a simple retrieval after she “dropped” her pain pump controller thingy. The dog picks it up for her and brings it to her. That’s niceYOU KNOW THE PERSON FILMING THIS COULD HAVE DONE THAT TOO?
On my first pass when I was just skimming I was kind of lost as to what the lil fucker allegedly did for Tricia since she basically never ever says what this dog is for other than general comfort, which is not a task. i went over to his account where she posted this "business card" she had printed that said blood sugar alert, retrievals, and finding help. Well at least we know he can do one of these things now, although why she needs the dog to do this when her mother basically never leaves her side is beyond me. As for the blood glucose, Tricia had an IRL friend who was also "sick" with remarkably similar problems despite claiming entirely different disorders and she also claimed her dog detected low blood sugar. Why these girls can't just get a CGM if they're having such terrible blood sugar issues is beyond me. If I get the ambition I'll dig into that one too.
She missed another ding-dang-darn Twenty One Pilots concert!! Don’t worry, this doctor is one of those assholes who spends the whole concert holding his phone up to record it. Oh boy do I love when I pay to see one of my favorite musical artists live on stage and I get to watch it through someone else’s phone screen held directly in my line of sight. It’s just like staying home and watching YouTube, but with the added bonus of being nestled in a stranger’s humid armpit!
Her hospital writes an article about her. Add basketball to the list of sports she previously did. We finally get something of an answer: she was hospitalized for normal viruses that would “wipe her out for months” and being life-flighted around the country because of it. Kenny’s backstory is a lie, she was saying she was going to train him to be a SD from the day she got him. The article also lets us know Tricia is a biochem major and still wants to be a doctor.
March 4, after five weeks in the hospital, she’s finally out. She is right back to going to comedy shows the next night. The show was in Des Moines which is three hours from both her home in Kansas City and her college in Lincoln.
Two days later, hospitalized for more blood and now she needs surgery.
New central line who dis? They give her a medicine she’s allergic to so now she’s on the bipap again and complaining about how much pain she’s in.
She’s out temporarily because she made her sorority’s charity event about herself, then she goes right back to the hospital as soon as it’s done. According to wiki this sorority officially pledges their charity fundraiser to Make-a-Wish so I don’t know if this is in addition to that or if Tricia convinced her local branch that her cause was more important than that dumb charity that gave her a free vacation even though her family is loaded.
Of course, this hospitalization is another painkiller vacation.
Day 50. Looks like they got a peripheral line in her arm?
Once again, discharged in time for Easter. A true miracle!
April 30, she’s admitted with (you know it!) suspected sepsis. She’s gained 10 lbs in a week from the infection.
Why all the candy and soda for someone allegedly in total GI failure, Tricia? I don’t know, if someone told me they can’t eat anything I wouldn’t bring them candy and soda in the hospital. Sounds like your sorority sisters see you living on the all-sugar diet at home.
Dehydrated on 7L of fluids while they’re trying to change over her steroids. I’m gonna guess QuickTrip sodas and Chick-fil-A lemonade are probably not indicated in total GI failure. Just a hunch.
She and her doggie have now spent 18 days in the hospital and she probably has kidney stones.
She does, then she passes them and is discharged the next day. Almost her entire second semester of college was spent hospitalized. She never talks about her classes so my assumption is she had to drop them all.
June 4th, she’s baaaaack. Another line change ends in a “weird reaction” and terrible pain. She’s there another week, reasons unspecified (dilaudid, the reason is dilaudid).
Annnnd still on a shitload of oral meds and supplements despite being in total intestinal failure.
She’s a deb! I didn’t even know people still did this!
Ahhh fuck this bitch. The little IG hurts himself but she’s going to see her mito quack in LA and simply can’t be without the dog that does nothing – how will people know she’s sick unless he goes to Disneyland with them?! They take him to LA as her accessory and whoops, turns out it wasn’t just a minor injury. It was a veterinary emergency requiring surgery and now the little dog is paralyzed. He makes it through surgery and is now on strict crate rest. I suppose this is perversely the lesser of evils; if she had left him with a dog sitter or a boarding facility they might not have been around to get him to the ER when shit got dire.
It’s intervertebral disc disease, something that is exceptionally common in old dogs but also happens in young animals sometimes. Chondodystrophic breeds like dachshunds are particularly prone to it and Kenny is part dachshund. There’s a reason good SD programs stick to certain breeds and carefully monitor their breeding programs for congenital health issues.
As soon as they make it home from LA she gets admitted again with (you know it!) suspected sepsis. Can’t let her paralyzed dog have all the attention now can she?
Home in a few days because anything she needs can be handled at home. She has to go back if it gets worse.
The literal next day: it got worse!!! Her line is replaced and after a few more transfusions, she’s home on the 7th.
Back on the 18th for another line infection. They might start her on that holy munchie prize, IVIG, to bolster her immune system.
She gets a nice weekend of freedom then goes back to the hospital, this time in Omaha because her local hospital she’s been going to for years isn’t as familiar with her special case (read: Omaha gives her special anesthesia and dilaudid for a line change)
Back out on the 27th.
oh. it’s beautiful. Her brand new central line just … fell out of her chest. It didn’t get caught, it just fell out, landed on her feet, clear out of the blue. It must be her super slow EDS healing. Finally. Finally I can say it with my whole chest, with no flicker of doubt in my heart: OK MUNCHIE.
GOD IS SO GOOD that she miraculously had no problems with this line change because there’s another Pentatonix concert tonight. Weird gamble though, if getting to the concert was a priority why not wait until after? My guesses are either painkiller WD desperation or she was actually gambling on NOT being able to see them again now that she already has several times, and trying to turn this into special attention from them agan. We saw this with Jordan Asbee who intentionally got hospitalized during the Tay Swift Eras concert she had tickets to hoping the other Swifties would tag Taytay and get her a special visit or something. Jordan even wore the outfit she was going to wear to see Taylor in the hospital and made a ton of tiktoks in it but never got acknowledged. And we'll see Tricia pull a similar stunt in the future.
Real friendship is tricking your friend into eating things you find gross while pretending you really wish you could try it and documenting it for social media.
Kenny is all better. Unfortunately this means Kenny is going back to "work" right away.
I do not like the little doggie clipped in the basket or the fact that she has him leashed by the rear clip on his harness. Dude just got over temporary paralysis from his spine disease. If he jumps, he’s fucked.
Back in the hospital on 6 October for another infected line. Discharged two days later with new antibiotics but hopefully it doesn’t need to be replaced this time.
Well that won’t do. Two days later, she’s back to have it removed, and to pose for bathroom selfies of her ostomy.
Ahh another terrible surgery. Now she’s on supplemental oxygen and CPAP.
And all of this line fuckery was because there was a TPN conference in Orlando and she wanted to have oxygen for that to live out her Hazel Grace fantasies, just like back in Pittsburgh when she wanted to go to that mito thing and meet her Augustus Waters. When the hospital failed to play their role and prescribe her oxygen, she just borrowed a friend's concentrator. You know, a totally normal thing to do.
And she’s not giving it back now that she has it.
Hospitalized again for (you know it!) suspected sepsis. Who is all this food for? Did they have their sorority thanksgiving in her hospital room? Is it for her family? I refuse to believe that Tricia had all this food right in front of her in her hospital room and didn’t at least taste it.
By the 2nd she’s out again, home in Kansas city, and partying with her friends. Still no signs she is actually attending classes.
Annnnd still on a shitload of oral meds and supplements despite being in total intestinal failure.
She’s a deb! I didn’t even know people still did this!
Ahhh fuck this bitch. The little IG hurts himself but she’s going to see her mito quack in LA and simply can’t be without the dog that does nothing – how will people know she’s sick unless he goes to Disneyland with them?! They take him to LA as her accessory and whoops, turns out it wasn’t just a minor injury. It was a veterinary emergency requiring surgery and now the little dog is paralyzed. He makes it through surgery and is now on strict crate rest. I suppose this is perversely the lesser of evils; if she had left him with a dog sitter or a boarding facility they might not have been around to get him to the ER when shit got dire.
It’s intervertebral disc disease, something that is exceptionally common in old dogs but also happens in young animals sometimes. Chondodystrophic breeds like dachshunds are particularly prone to it and Kenny is part dachshund. There’s a reason good SD programs stick to certain breeds and carefully monitor their breeding programs for congenital health issues.
As soon as they make it home from LA she gets admitted again with (you know it!) suspected sepsis. Can’t let her paralyzed dog have all the attention now can she?
Home in a few days because anything she needs can be handled at home. She has to go back if it gets worse.
The literal next day: it got worse!!! Her line is replaced and after a few more transfusions, she’s home on the 7th.
Back on the 18th for another line infection. They might start her on that holy munchie prize, IVIG, to bolster her immune system.
She gets a nice weekend of freedom then goes back to the hospital, this time in Omaha because her local hospital she’s been going to for years isn’t as familiar with her special case (read: Omaha gives her special anesthesia and dilaudid for a line change)
Back out on the 27th.
oh. it’s beautiful. Her brand new central line just … fell out of her chest. It didn’t get caught, it just fell out, landed on her feet, clear out of the blue. It must be her super slow EDS healing. Finally. Finally I can say it with my whole chest, with no flicker of doubt in my heart: OK MUNCHIE.
GOD IS SO GOOD that she miraculously had no problems with this line change because there’s another Pentatonix concert tonight. Weird gamble though, if getting to the concert was a priority why not wait until after? My guesses are either painkiller WD desperation or she was actually gambling on NOT being able to see them again now that she already has several times, and trying to turn this into special attention from them agan. We saw this with Jordan Asbee who intentionally got hospitalized during the Tay Swift Eras concert she had tickets to hoping the other Swifties would tag Taytay and get her a special visit or something. Jordan even wore the outfit she was going to wear to see Taylor in the hospital and made a ton of tiktoks in it but never got acknowledged. And we'll see Tricia pull a similar stunt in the future.
Real friendship is tricking your friend into eating things you find gross while pretending you really wish you could try it and documenting it for social media.
Kenny is all better. Unfortunately this means Kenny is going back to "work" right away.
I do not like the little doggie clipped in the basket or the fact that she has him leashed by the rear clip on his harness. Dude just got over temporary paralysis from his spine disease. If he jumps, he’s fucked.
Back in the hospital on 6 October for another infected line. Discharged two days later with new antibiotics but hopefully it doesn’t need to be replaced this time.
Well that won’t do. Two days later, she’s back to have it removed, and to pose for bathroom selfies of her ostomy.
Ahh another terrible surgery. Now she’s on supplemental oxygen and CPAP.
And all of this line fuckery was because there was a TPN conference in Orlando and she wanted to have oxygen for that to live out her Hazel Grace fantasies, just like back in Pittsburgh when she wanted to go to that mito thing and meet her Augustus Waters. When the hospital failed to play their role and prescribe her oxygen, she just borrowed a friend's concentrator. You know, a totally normal thing to do.
And she’s not giving it back now that she has it.
Hospitalized again for (you know it!) suspected sepsis. Who is all this food for? Did they have their sorority thanksgiving in her hospital room? Is it for her family? I refuse to believe that Tricia had all this food right in front of her in her hospital room and didn’t at least taste it.
By the 2nd she’s out again, home in Kansas city, and partying with her friends. Still no signs she is actually attending classes.
The semester is now over and Tricia is celebrating by flying to White Plains, New York to see a Mast Cell specialist. Hmm. Who could that be?
Why it’s none other than our old pal Dr. Lawrence Afrin!
Did you know Dr. Afrin was one of the first people to decide MCAS was a real disease that could be diagnosed? There are other mast cell diseases like systemic mastocytosis which are not bullshit, which have been identified for a long time for which there is testing available that can diagnose or rule it out, but “Mast Cell Activation Syndrome” is a new phenomenon only very recently believed to exist. Here’s a video of him speaking at a 2016 conference about how they basically have no idea what this is, most of the patients studied don’t have the pathogenic gene mutations for mastocytosis or any mutation it could reasonably be attributed to, there still wasn’t an agreed-upon set of diagnostic criteria at the time of this conference, it can cause whatever symptoms you claim to have and it’s totally not anxiety. I really like the part where he says that they “drive their doctors batty” by presenting to the office complaining of UTI pain and stomach pain and all sorts of problems and all testing turns out negative. Oh and it’s definitely linked to all those other zebra diagnoses like POTS and hEDS but we don’t know how, we just know all the zebras that already scored those diagnoses are now banging down our doors to get this one. So basically this disease was proposed to exist at the start of this century and with no real evidence supporting that it’s real and that the early cases weren’t just a mild variant of systemic mastocytosis, there has grown a whole cottage industry of “specialists” telling (mostly) women they have it and prescribing them things they do not need like indefinite high-dose steroids and IVIG. And our boy here is at the forefront of that industry.
He quite literally wrote the book. The reviews of this are full of women saying “omg I feel so validated I knew this was not in my head!!”
I think instead of going deeper into Afrin’s work, we should go on a lore roadtrip. I never quite grow tired of pointing out how connected these girls all are and showing off that after watching them for nigh on a decade I can now map out their relationships and how they all know exactly what they’re doing. Brynn Duncan was diagnosed by Afrin in 2012 and she’s the first patient I can find openly admitting he’s her doctor. Brynn claims Afrin diagnosed her after she spent 7 years trying to get to the bottom of her symptoms, which every other doctor blew off as psychosomatic, anxiety, or attention-seeking behavior. I hesitate to say she’s Afrin ground zero but she’s close, and she was all sorts of involved in spoonie circles in her early years. When I go through zebra munchie accounts from 2012-14 it’s pretty much a given she’s hanging around in their comments section.
Here’s the first time I find Brynn and Tricia interacting, January 2014. Tricia was just starting her TFiOS obsession at the time.
Cheyanne Perry first started claiming mysterious allergies to everything except distilled water in March 2014. She had just gotten a feeding tube for “gastroparesis” and needed to manufacture a reason she couldn’t run her tube feeds because she was anorexic and did not want to gain weight. Cheyanne went from "no anaphylaxis, epi pens just in case" to "constant anaphylaxis that has plagued me my whole life" in days after discovering the magical four-letter acronym.
But before that we can see a different girl: m_shelley19, who also haunts Tricia’s comments. I’ve been cutting a wide path around this one for years because I felt she was what i originally thought of Tricia: sick, but super dramatic, no identity outside of her illness, and collected new diagnoses when her real one ran out of steam. At least my ceaseless optimism keeps things lively. Did you guys know you can download an entire CaringBridge blog as a single PDF file? It's true! Michaela is the one who runs the Tubie Teens page. She and Brynn are from the same area and IRL besties who “met” on instagram one day and then realized in conversation that they were both in the same hospital at the same time. Where one goes, so does the other.
Here’s the first time I find Michaela and Cheyanne interacting.
And the first time I see her talking to Brynn, January 2014.
While she lived in Florida, Cheyanne started seeing Afrin without actually meeting him in person. According to her, he insisted that all the tests that were run in Florida came back negative or inconclusive because those dummies were doing them all wrong.
Here’s Cheyanne in the hospital in Florida with some girl named Bailey and Ashely Carroll. Ashley is (allegedly) another one of Afrin’s patients. We know her from her c. 2019 friendship with Amanda Winig as she is one of the girls who got skinwalked by the skinwalker. Ashley was on high-dose steroids as well and while I do not have proof she’s one of Afrin’s former patients I do have plenty of anecdotal evidence from people who knew her. I like Ashley and mostly leave her alone because she’s really fucked now and has rebuked spoonie life; the reason she was friends with Amanda was apparently an attempt to show Amanda the dangerous path she was headed down. (I know nothing about Bailey)
Here’s Ashley with Brynn in May 2015.
And October 2015 with Michaela, too.
Brynn’s story went viral in 2015 when an article referring to her as a “bubble girl allergic to life” was published. Millions of people read it and her comments quickly filled with girls saying they saw her story on CNN and it was like literally them, like literally exactly their lives omg. A year later while still at the height of her popularity, she and Afrin filmed a “documentary” (read: advertisement of his services) for the BBC.
In 2016, Cheyanne moved to the same town in South Carolina that Brynn lives in and days after that she went up to Minnesota to see Afrin in person for the first time. According to her, Afrin diagnosed her on the previous testing that he himself said was not done properly. He did no additional testing on seeing her and agreed to continue managing her care long-distance through the same local doctors Brynn was seeing in South Carolina.
Denae Manchester was from Boston and started as a head injury/lupus/weird woo illness faker, claiming that shortly after she graduated with a masters degree she suffered a TBI when an autistic child kicked her in the head. Given that she only saw woo clinics and did “sensory play” (read: playing with play doh and coloring in coloring books) as treatment I’m gonna guess no one believed she was actually impaired by this. Denae married her long time boyfriend in 2014 and in the car on the way to her wedding started having “reactions.” Instead of a honeymoon she had a prolonged hospitalization where she faked anaphylaxis and stopped eating until they gave her a feeding tube. Denae saw a doctor called Dr. Mariana Castells, a respected mastocytosis expert, who initially believed her and Denae felt SEEN. Over time Castells stopped believing her, told her a lot of her problem was was psychosomatic and referred her out to psych, and told her no to IV benadryl, a port, and anything else she asked for.
Here’s the first time I find Brynn and Denae interacting, October 2015)
(Funny enough, Brynn also saw Castells in 2012. She said she loved her but never mentioned her again which probably means she either said Brynn wasn’t sick or wasn’t giving her better stuff than Afrin did.)
Right around when Castells was telling Denae off about her drug-and-tube seeking, Denae became friends with Cheyanne and Brynn online. Through them she also started to see Afrin long-distance and spent days on end chimping that she could not find doctors in Boston willing to listen to his orders until she finally found one oncologist who would give her a PICC and let her put steroids and antihistamines through it in 2016. Castells “fired” Denae as a patient after this (or as Denae says it, agreed she was too complex and should see Afrin instead). In 2016 she had her first appointment with Afrin, driving all the way from Boston to Minnesota to see the only doctor in the US who would tell her what she wanted to hear.
I am legally obligated to remind everyone that this is what Denae Manchester was doing to prove she had for real anaphylaxis. She did this in hospitals, doctors offices, all over social media, just whenever the mood struck. And Dr. Lawrence Afrin went "oh yeah that's totally legit MCAS."
Also around this time, Denae, Cheyanne, and Brynn started talking to a girl in Philadelphia named Taylor Nearon. A year prior Taylor had become one of Afrin’s patients and found a local doctor willing to carry out his orders. Within a year the athletic teen girl had probably doubled in weight and developed severe osteoporosis from the steroids. Taylor died a year later after she developed a rare steroid complication called epidural lipomatosis. A fatty tumor had grown in the epidural space along nearly her entire spine. Surgery was done to remove it but too late, her spinal nerves were strangled and her bones had turned to chalk. She broke nearly every one of her vertebrae in recovery and was paralyzed from the neck down. On a vent, unable to move or do anything independently, and facing constant infections, Taylor opted to have treatment withdrawn.
Here’s the first time I find Taylor on Brynn’s account in 2015.
At around the same time, Ashley Carroll lost feelings in her legs and found out she also had epidural lipomatosis. She opted to not have surgery, apparently because of what happened to Taylor, and has instead gone off the ‘roids, gotten out of sicksta circles, and gotten her life (but not her mobility) back. Afrin is still on the board of the mast cell disease charity Taylor’s parents founded and goes to all their events because the man has 0 shame.
After several delays, Denae moved to South Carolina in May 2017, moving into the same town as Brynn and Cheyanne and seeing all their same doctors who were willing to work with Afrin. She ended up steroid-bloated, full of tubes, and in a wheelchair like the rest of them.
In August 2017, a young EDS munchie from North Carolina namedBeefany Bethany Harrup started complaining of mysterious allergic reactions. She, too, saw this miracle worker in South Carolina and ended up very quickly becoming a steroid-dependent trainwreck. Here’s her and Denae hanging out in April 2019.
And three months later.
And three months later. Bethany has left the internet over "haters" after becoming Reddit's favorite pet munchie for a few years. Apparently she lost a significant amount of the steroid weight and just crochets a lot now.
We don’t talk about her much here but Mairead the Chronic Zebra whose symptoms disappear on the weekends when she wants to go hiking is also one of his girls, as shown in this 2017 photo. Mairead is a crunchy woo weirdo who was on super restrictive diets so like Cheyanne, I’m sure she had a reason steroids wouldn’t work for her.
In 2019 Cheyanne’s liver started failing from a TPN complication called hemophagocytic lymphohistiocytosis and she needed a bone marrow transplant to fix it. Any doctor or hospital willing to help her threw their hands up when she continued to refuse all reasonable treatment and not take her medications because Afrin totally agreed she was allergic to everything including specific brands of IV tubing. Her liver failed and her intestine started to disintegrate leaking bacteria into her bloodstream and making her septic pretty much all the time. The only solution was to remove her colon and then get a multi-visceral transplant as a last ditch effort to save her life. In 2022 she moved to Indiana to get a chance at a transplant. That happened in mid-2023 and she died in August of complications from it.
Most of the other girls listed above have dialed back their shit in recent years. It seems like Covid put a damper on them running to the hospital every 2 days for “anaphylaxis” more than the fact that like half their friends have died of steroid complications. There’s a girl named Ellie who was one of Afrin’s patients since she was like 10 years old, who I am super convinced is being munchausen-by-proxied and she now has massive steroid bloating, tubes, multiple bouts of sepsis, the whole enchilada, who is friends with Brynn and Denae and was friends with Cheyanne before her death. I have always gotten the strong feeling that these much older girls were acting as something of an echo chamber, that her mother convinced her she was sick and then these women reinforced it.
Oh right just to tie up that loose end I left up there: yes Michaela is also an Afrin patient and has been steroid-bloated in the past because of it.
Afrin moved from Minnesota to Purchase, New York to join forces with also-quack MCAS nutbar Dr. Tania Dempsey. Together they run the Amorak Integrative Medicine clinic where they tell you that you def have this totally real not-anxiety disease plus probably chronic lyme and sure, whatever else you say you have that will be $1000 please. And as we can see from @Pho Real's post he's still diagnosing a new crop of girls for us to discover.
They also offer a step-by-step guide for convincing your local doctors that you are not just anxious, dramatic, and looking for a get-out-of-life-free card.
Anyway, that is where Tricia is seeing him. Of course, he totally agrees she has MCAS and Mito, just like he’s been paid to say. She has a ton of testing done and it’s going to take weeks to come back but we know the answer. No matter what those test say, she has MCAS and needs steroids for it.
And while Tricia’s in New York she uses her “sick kid perks” to score tickets to see what was then one of the hottest musicals.
Back to school after winter break and back to sucking down bags of blood for anemia her doctors still don’t have an answer for. She estimates this is around her 60th transfusion.
A few weeks later, her central line is broken again. She then claims she desats down to the low 60s despite supplemental oxygen but she and her mom decide not to call the ambulance. Yanno, just wait it out. What’s a little loss of consciousness and hypoxic brain injury between friends amirite? Once herpanic attack totally real crisis passes she heads to the ER. It takes them 24 hours to place a peripheral IV.
It blew as soon as they used it. They did end up finding a hole in her line. It takes two hours to dig her old line out and place a new one because of all the scar tissue from previous lines.
This time she doesn’t get two weeks of malingering on a dilaudid PCA. They boot her out citing the “crazy amount of germs” she could contact in the hospital.
For the rest of the semester there’s nothing of note, except that she’s doing poorly in her classes, imagine that. Out of curiosity I looked into a few of her sorority sisters she posted and lol, the troon out rate was enormous. Like fully half the the girls she was hanging out with in this sorority - an organization for women - are now some flavor of genderspecial.
She goes to LA to see her neurophthalmologist and Dr. Boles again. No change to her vision in either direction but she can’t see at night and therefore can’t drive at night. Any exposure to smoke or alcohol at all will make her disease worse. In the comments she says that her body has compensated for her depleted mitochondria by creating a “crowding of mitochondria in the back of the eye mimicking papal edema.” First of all it’s papilledema, the Vatican has nothing to do with this. But uh, that doesn’t really make sense in terms of how the human body works. Most cells in your body have mitochondria (red blood cells are the exception) and the number in each cell is dependent on their function. So it’s not like they’re free-floating in your body and just concentrated in the backs of her eyes. Also papilledema, the real kind, can be caused by increased intracranial pressure which she’s already claimed she had back in Pittsburgh.
HI DR. BOLES HI HI HI HI!!! I’M YOUR NEW BIGGEST FAN. He totally agrees with Dr. Afrin that she has MCAS. It’s so nice when the lunatics agree on something. He also does a test where he turns down her oxygen and she holds her breath like a toddler until he decides to turn it back on. He tells her she needs more blood. Ooh look at that refreshing-looking drink TOTAL INTESTINAL FAILURE.
She gets her blood in Nebraska as soon as she’s home.
Vial with the peach cap/green band is the antacid/antihistamine famotidine.
Still taking tons of pills despite her #intestinalfailure.
Ice cream date with her buddy! The ice cream was for the dog of course. I wouldn’t put too much stock in the way this little dog is holding his tail, ftr, iggies tend to have that clamped tail carriage while alert. If you look at pictures of Italian Greyhounds shown for confo a lot of them will have the same deal going on.
Priscilla Presley wants to pet her little doggies. The Peabody is pet friendly at least, so they didn’t have to pretend Esky was anything other than a shelter mutt who can sometimes behave.
NO_ONE_CARES.wav. These kids and their performative “coming out” for extra attention. All evidence says she's never dated anyone in her entire life and this remains unchanged in 2024. Why the fuck does it matter that she’s sometimes attracted to women? No one would ever know if she didn’t announce it because she’s too busy rubbing bacteria in her lines to find a partner of either sex and she has no intention of changing this in the future. Also can’t help but notice this was during a time when she was surrounded by a bunch of performatively “queer” sorority weirdos who trooned out.
Attention-seeker starts playing musician’s piano backstage at a concert; everyone claps. Oop, somewhere between Memphis and now she has gotten canister oxygen instead of her borrowed concentrator, right after her appointment with Dr. Boles and the breath holdy test.
July 28, hospitalized for (you know it!) suspected sepsis, and her “service dog” hurt himself in another minor accident. RETIRE. THE FUCKING. DOG.
She’s culturing Candida krusei, a multi-drug resistant opportunistic fungus. They have to get her infected line out ASAP but no one can place an IV in her charred veins. They want at least 12 hours without a line to get the infection cleared. Everyone I asked about this said they want more like 48 hours.
They place a PICC on the 29th. Anesthesia is too busy with real patients to deal with her ass so she gets her line dug out of her chest with no anesthesia, no sedation, only lidocaine which she’s allergic to. NEVER AGAIN!
Sent home on IV antibiotics. No, Micafungin is an antifungal, you have blood mushrooms. IVIG is suggested again.
Wow neat TOTAL INTESTINAL FAILURE.
Why it’s none other than our old pal Dr. Lawrence Afrin!
Did you know Dr. Afrin was one of the first people to decide MCAS was a real disease that could be diagnosed? There are other mast cell diseases like systemic mastocytosis which are not bullshit, which have been identified for a long time for which there is testing available that can diagnose or rule it out, but “Mast Cell Activation Syndrome” is a new phenomenon only very recently believed to exist. Here’s a video of him speaking at a 2016 conference about how they basically have no idea what this is, most of the patients studied don’t have the pathogenic gene mutations for mastocytosis or any mutation it could reasonably be attributed to, there still wasn’t an agreed-upon set of diagnostic criteria at the time of this conference, it can cause whatever symptoms you claim to have and it’s totally not anxiety. I really like the part where he says that they “drive their doctors batty” by presenting to the office complaining of UTI pain and stomach pain and all sorts of problems and all testing turns out negative. Oh and it’s definitely linked to all those other zebra diagnoses like POTS and hEDS but we don’t know how, we just know all the zebras that already scored those diagnoses are now banging down our doors to get this one. So basically this disease was proposed to exist at the start of this century and with no real evidence supporting that it’s real and that the early cases weren’t just a mild variant of systemic mastocytosis, there has grown a whole cottage industry of “specialists” telling (mostly) women they have it and prescribing them things they do not need like indefinite high-dose steroids and IVIG. And our boy here is at the forefront of that industry.
He quite literally wrote the book. The reviews of this are full of women saying “omg I feel so validated I knew this was not in my head!!”
I think instead of going deeper into Afrin’s work, we should go on a lore roadtrip. I never quite grow tired of pointing out how connected these girls all are and showing off that after watching them for nigh on a decade I can now map out their relationships and how they all know exactly what they’re doing. Brynn Duncan was diagnosed by Afrin in 2012 and she’s the first patient I can find openly admitting he’s her doctor. Brynn claims Afrin diagnosed her after she spent 7 years trying to get to the bottom of her symptoms, which every other doctor blew off as psychosomatic, anxiety, or attention-seeking behavior. I hesitate to say she’s Afrin ground zero but she’s close, and she was all sorts of involved in spoonie circles in her early years. When I go through zebra munchie accounts from 2012-14 it’s pretty much a given she’s hanging around in their comments section.
Here’s the first time I find Brynn and Tricia interacting, January 2014. Tricia was just starting her TFiOS obsession at the time.
Cheyanne Perry first started claiming mysterious allergies to everything except distilled water in March 2014. She had just gotten a feeding tube for “gastroparesis” and needed to manufacture a reason she couldn’t run her tube feeds because she was anorexic and did not want to gain weight. Cheyanne went from "no anaphylaxis, epi pens just in case" to "constant anaphylaxis that has plagued me my whole life" in days after discovering the magical four-letter acronym.
But before that we can see a different girl: m_shelley19, who also haunts Tricia’s comments. I’ve been cutting a wide path around this one for years because I felt she was what i originally thought of Tricia: sick, but super dramatic, no identity outside of her illness, and collected new diagnoses when her real one ran out of steam. At least my ceaseless optimism keeps things lively. Did you guys know you can download an entire CaringBridge blog as a single PDF file? It's true! Michaela is the one who runs the Tubie Teens page. She and Brynn are from the same area and IRL besties who “met” on instagram one day and then realized in conversation that they were both in the same hospital at the same time. Where one goes, so does the other.
Here’s the first time I find Michaela and Cheyanne interacting.
And the first time I see her talking to Brynn, January 2014.
While she lived in Florida, Cheyanne started seeing Afrin without actually meeting him in person. According to her, he insisted that all the tests that were run in Florida came back negative or inconclusive because those dummies were doing them all wrong.
Here’s Cheyanne in the hospital in Florida with some girl named Bailey and Ashely Carroll. Ashley is (allegedly) another one of Afrin’s patients. We know her from her c. 2019 friendship with Amanda Winig as she is one of the girls who got skinwalked by the skinwalker. Ashley was on high-dose steroids as well and while I do not have proof she’s one of Afrin’s former patients I do have plenty of anecdotal evidence from people who knew her. I like Ashley and mostly leave her alone because she’s really fucked now and has rebuked spoonie life; the reason she was friends with Amanda was apparently an attempt to show Amanda the dangerous path she was headed down. (I know nothing about Bailey)
Here’s Ashley with Brynn in May 2015.
And October 2015 with Michaela, too.
Brynn’s story went viral in 2015 when an article referring to her as a “bubble girl allergic to life” was published. Millions of people read it and her comments quickly filled with girls saying they saw her story on CNN and it was like literally them, like literally exactly their lives omg. A year later while still at the height of her popularity, she and Afrin filmed a “documentary” (read: advertisement of his services) for the BBC.
In 2016, Cheyanne moved to the same town in South Carolina that Brynn lives in and days after that she went up to Minnesota to see Afrin in person for the first time. According to her, Afrin diagnosed her on the previous testing that he himself said was not done properly. He did no additional testing on seeing her and agreed to continue managing her care long-distance through the same local doctors Brynn was seeing in South Carolina.
Denae Manchester was from Boston and started as a head injury/lupus/weird woo illness faker, claiming that shortly after she graduated with a masters degree she suffered a TBI when an autistic child kicked her in the head. Given that she only saw woo clinics and did “sensory play” (read: playing with play doh and coloring in coloring books) as treatment I’m gonna guess no one believed she was actually impaired by this. Denae married her long time boyfriend in 2014 and in the car on the way to her wedding started having “reactions.” Instead of a honeymoon she had a prolonged hospitalization where she faked anaphylaxis and stopped eating until they gave her a feeding tube. Denae saw a doctor called Dr. Mariana Castells, a respected mastocytosis expert, who initially believed her and Denae felt SEEN. Over time Castells stopped believing her, told her a lot of her problem was was psychosomatic and referred her out to psych, and told her no to IV benadryl, a port, and anything else she asked for.
Here’s the first time I find Brynn and Denae interacting, October 2015)
(Funny enough, Brynn also saw Castells in 2012. She said she loved her but never mentioned her again which probably means she either said Brynn wasn’t sick or wasn’t giving her better stuff than Afrin did.)
Right around when Castells was telling Denae off about her drug-and-tube seeking, Denae became friends with Cheyanne and Brynn online. Through them she also started to see Afrin long-distance and spent days on end chimping that she could not find doctors in Boston willing to listen to his orders until she finally found one oncologist who would give her a PICC and let her put steroids and antihistamines through it in 2016. Castells “fired” Denae as a patient after this (or as Denae says it, agreed she was too complex and should see Afrin instead). In 2016 she had her first appointment with Afrin, driving all the way from Boston to Minnesota to see the only doctor in the US who would tell her what she wanted to hear.
I am legally obligated to remind everyone that this is what Denae Manchester was doing to prove she had for real anaphylaxis. She did this in hospitals, doctors offices, all over social media, just whenever the mood struck. And Dr. Lawrence Afrin went "oh yeah that's totally legit MCAS."
Also around this time, Denae, Cheyanne, and Brynn started talking to a girl in Philadelphia named Taylor Nearon. A year prior Taylor had become one of Afrin’s patients and found a local doctor willing to carry out his orders. Within a year the athletic teen girl had probably doubled in weight and developed severe osteoporosis from the steroids. Taylor died a year later after she developed a rare steroid complication called epidural lipomatosis. A fatty tumor had grown in the epidural space along nearly her entire spine. Surgery was done to remove it but too late, her spinal nerves were strangled and her bones had turned to chalk. She broke nearly every one of her vertebrae in recovery and was paralyzed from the neck down. On a vent, unable to move or do anything independently, and facing constant infections, Taylor opted to have treatment withdrawn.
Here’s the first time I find Taylor on Brynn’s account in 2015.
At around the same time, Ashley Carroll lost feelings in her legs and found out she also had epidural lipomatosis. She opted to not have surgery, apparently because of what happened to Taylor, and has instead gone off the ‘roids, gotten out of sicksta circles, and gotten her life (but not her mobility) back. Afrin is still on the board of the mast cell disease charity Taylor’s parents founded and goes to all their events because the man has 0 shame.
After several delays, Denae moved to South Carolina in May 2017, moving into the same town as Brynn and Cheyanne and seeing all their same doctors who were willing to work with Afrin. She ended up steroid-bloated, full of tubes, and in a wheelchair like the rest of them.
In August 2017, a young EDS munchie from North Carolina named
And three months later.
And three months later. Bethany has left the internet over "haters" after becoming Reddit's favorite pet munchie for a few years. Apparently she lost a significant amount of the steroid weight and just crochets a lot now.
We don’t talk about her much here but Mairead the Chronic Zebra whose symptoms disappear on the weekends when she wants to go hiking is also one of his girls, as shown in this 2017 photo. Mairead is a crunchy woo weirdo who was on super restrictive diets so like Cheyanne, I’m sure she had a reason steroids wouldn’t work for her.
In 2019 Cheyanne’s liver started failing from a TPN complication called hemophagocytic lymphohistiocytosis and she needed a bone marrow transplant to fix it. Any doctor or hospital willing to help her threw their hands up when she continued to refuse all reasonable treatment and not take her medications because Afrin totally agreed she was allergic to everything including specific brands of IV tubing. Her liver failed and her intestine started to disintegrate leaking bacteria into her bloodstream and making her septic pretty much all the time. The only solution was to remove her colon and then get a multi-visceral transplant as a last ditch effort to save her life. In 2022 she moved to Indiana to get a chance at a transplant. That happened in mid-2023 and she died in August of complications from it.
Most of the other girls listed above have dialed back their shit in recent years. It seems like Covid put a damper on them running to the hospital every 2 days for “anaphylaxis” more than the fact that like half their friends have died of steroid complications. There’s a girl named Ellie who was one of Afrin’s patients since she was like 10 years old, who I am super convinced is being munchausen-by-proxied and she now has massive steroid bloating, tubes, multiple bouts of sepsis, the whole enchilada, who is friends with Brynn and Denae and was friends with Cheyanne before her death. I have always gotten the strong feeling that these much older girls were acting as something of an echo chamber, that her mother convinced her she was sick and then these women reinforced it.
Oh right just to tie up that loose end I left up there: yes Michaela is also an Afrin patient and has been steroid-bloated in the past because of it.
Afrin moved from Minnesota to Purchase, New York to join forces with also-quack MCAS nutbar Dr. Tania Dempsey. Together they run the Amorak Integrative Medicine clinic where they tell you that you def have this totally real not-anxiety disease plus probably chronic lyme and sure, whatever else you say you have that will be $1000 please. And as we can see from @Pho Real's post he's still diagnosing a new crop of girls for us to discover.
They also offer a step-by-step guide for convincing your local doctors that you are not just anxious, dramatic, and looking for a get-out-of-life-free card.
Anyway, that is where Tricia is seeing him. Of course, he totally agrees she has MCAS and Mito, just like he’s been paid to say. She has a ton of testing done and it’s going to take weeks to come back but we know the answer. No matter what those test say, she has MCAS and needs steroids for it.
And while Tricia’s in New York she uses her “sick kid perks” to score tickets to see what was then one of the hottest musicals.
Back to school after winter break and back to sucking down bags of blood for anemia her doctors still don’t have an answer for. She estimates this is around her 60th transfusion.
A few weeks later, her central line is broken again. She then claims she desats down to the low 60s despite supplemental oxygen but she and her mom decide not to call the ambulance. Yanno, just wait it out. What’s a little loss of consciousness and hypoxic brain injury between friends amirite? Once her
It blew as soon as they used it. They did end up finding a hole in her line. It takes two hours to dig her old line out and place a new one because of all the scar tissue from previous lines.
This time she doesn’t get two weeks of malingering on a dilaudid PCA. They boot her out citing the “crazy amount of germs” she could contact in the hospital.
For the rest of the semester there’s nothing of note, except that she’s doing poorly in her classes, imagine that. Out of curiosity I looked into a few of her sorority sisters she posted and lol, the troon out rate was enormous. Like fully half the the girls she was hanging out with in this sorority - an organization for women - are now some flavor of genderspecial.
She goes to LA to see her neurophthalmologist and Dr. Boles again. No change to her vision in either direction but she can’t see at night and therefore can’t drive at night. Any exposure to smoke or alcohol at all will make her disease worse. In the comments she says that her body has compensated for her depleted mitochondria by creating a “crowding of mitochondria in the back of the eye mimicking papal edema.” First of all it’s papilledema, the Vatican has nothing to do with this. But uh, that doesn’t really make sense in terms of how the human body works. Most cells in your body have mitochondria (red blood cells are the exception) and the number in each cell is dependent on their function. So it’s not like they’re free-floating in your body and just concentrated in the backs of her eyes. Also papilledema, the real kind, can be caused by increased intracranial pressure which she’s already claimed she had back in Pittsburgh.
HI DR. BOLES HI HI HI HI!!! I’M YOUR NEW BIGGEST FAN. He totally agrees with Dr. Afrin that she has MCAS. It’s so nice when the lunatics agree on something. He also does a test where he turns down her oxygen and she holds her breath like a toddler until he decides to turn it back on. He tells her she needs more blood. Ooh look at that refreshing-looking drink TOTAL INTESTINAL FAILURE.
She gets her blood in Nebraska as soon as she’s home.
Vial with the peach cap/green band is the antacid/antihistamine famotidine.
Still taking tons of pills despite her #intestinalfailure.
Ice cream date with her buddy! The ice cream was for the dog of course. I wouldn’t put too much stock in the way this little dog is holding his tail, ftr, iggies tend to have that clamped tail carriage while alert. If you look at pictures of Italian Greyhounds shown for confo a lot of them will have the same deal going on.
Priscilla Presley wants to pet her little doggies. The Peabody is pet friendly at least, so they didn’t have to pretend Esky was anything other than a shelter mutt who can sometimes behave.
NO_ONE_CARES.wav. These kids and their performative “coming out” for extra attention. All evidence says she's never dated anyone in her entire life and this remains unchanged in 2024. Why the fuck does it matter that she’s sometimes attracted to women? No one would ever know if she didn’t announce it because she’s too busy rubbing bacteria in her lines to find a partner of either sex and she has no intention of changing this in the future. Also can’t help but notice this was during a time when she was surrounded by a bunch of performatively “queer” sorority weirdos who trooned out.
Attention-seeker starts playing musician’s piano backstage at a concert; everyone claps. Oop, somewhere between Memphis and now she has gotten canister oxygen instead of her borrowed concentrator, right after her appointment with Dr. Boles and the breath holdy test.
July 28, hospitalized for (you know it!) suspected sepsis, and her “service dog” hurt himself in another minor accident. RETIRE. THE FUCKING. DOG.
She’s culturing Candida krusei, a multi-drug resistant opportunistic fungus. They have to get her infected line out ASAP but no one can place an IV in her charred veins. They want at least 12 hours without a line to get the infection cleared. Everyone I asked about this said they want more like 48 hours.
They place a PICC on the 29th. Anesthesia is too busy with real patients to deal with her ass so she gets her line dug out of her chest with no anesthesia, no sedation, only lidocaine which she’s allergic to. NEVER AGAIN!
Sent home on IV antibiotics. No, Micafungin is an antifungal, you have blood mushrooms. IVIG is suggested again.
Wow neat TOTAL INTESTINAL FAILURE.
We stop here. After this Tricia embarks on a quest to make sure she can never, ever back out of her lies even if she wants to, and she loves every second of it!
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