"She also just needs to keep Luna in a dark room on a soft bed for most of the day and night, with gental, soft music in the background, massaged and turned every few hours, bathed 2-3 times a week, and fed on occasion (even if I disagree with feeding her, I want her to pass on sometime soon). She needs quiet cuddles and kisses and no younger toddler brother bonking his head on her's in an attempt to get her to respond and play."
I have no medical background so I get stuck and confused when it comes to Luna's care. It seems in her current state there's a chance her body will continue living for several more years unless a sudden illness or event takes it out. With the shunt properly working, her brain stem remains untouched, which means her basic life functions continue. That being said, I agree about keeping her in a dark room, away from stimuli, etc... but again, because of the shunt, this isn't really palliative care, because the shunt is preventing her condition from progressing, or at best, slowing it down tremendously. Assuming Luna wasn't Globyn's daughter, what would a normal parent even do with her (apart from not causing the condition in the first place).
Is it actually legal/ethical/humane to limit feedings so the body can continue to wither? Remove the shunt since it's assumed she can't feel pain anyway? I honestly have no idea. I believe Luna deserves peace and to be shuffled off this mortal coil, but I don't see it happening anytime soon. At the same time, it doesn't feel right in my heart (big softie here) to create a situation that would expedite her condition, especially after everything she's been through. The whole situation seems beyond fucked up to be honest.
For some reason, I couldn't quote/reply to your post, KiwiFarmer.