I'm really relieved to have found this thread. Gigantic sperg coming up, feel free to ignore...
These people are fucking dangerous to the genuinely sick. Sorry for slight powerlevel, but I'm the proud owner of a rare, very painful illness and for years the neuros/pain clinics have advised their patients to join a support site, because this particular nasty causes a massively high suicide rate in the first two years.
For a long time the support sites (there are only a couple) were reasonably safe - they are well moderated anyway, but this isn't a well-known or "sexy" condition; there's no money in it and no....whatever the fuck reward these nutters are after. Occasionally the jesus-freaks or "alternative" (meaning "bollocks") health freaks would try and infiltrate but they'd start pushing their thing so fast and so hard they were reasonably easy to spot.
Then we got a real nutjob. Bear in mind that when people first get this diagnosis, it's terrifying - someone is in agony, they've just been told it's for life, there's no specific treatment and even the strongest painkillers don't do much. So they usually hit the thread in a very bad way and very, very scared. It's vital that everyone be very gentle with them - every time there's a newbie, everyone pulls together and makes it about THEM and, if at all possible, someone in similar circumstances will make an extra effort (for instance its even rarer in young people so we make sure they know there are a handful of us; we try and match parents-with-parents etc etc.) But this is something the fabricators never do, they just see a newbie as a fresh audience to pour out all their own woes on. It's disgusting.
The reasons for the explanation, for those of you who have stood the course (well done, you gets a medal. Other peoples' health crap is booooring) is that we had parents of a child join. There are things so horrendous that our own problems cease to matter because they just pale compared to the horror of a kid having this. We said hello, but everyone kept it general for a while, trying to work out what to say.
Not our pet arsehole. Oh no. They jumped in with both feet, telling with great glee of the dreadful prognosis for this poor kid and scaring the parents shitless. We were never entirely sure if they were a fabricator, general opinion was they didn't have the illness - they'd bang on for hours about how terrible it all was but then be able to do something that should have been impossible. It's an on/off thing, but they didn't display any of the aversion-rooted behaviours we all had and got very stroppy if mental issues were mentioned - it's as if they only knew about the pain, not all the other baggage. Because the pain is what garners the sympathy, I suppose.
They also had no empathy. Every time there was a newbie, or someone was posting at 3am having not slept for days, we put our own crap aside and tried to help them, knowing it would come back when it was our turn. And it was understood that if you couldn't, you couldn't. But not only did our nutter have it worse than everybody else, it affected their lives more than anybody else....and they expected EVERYBODY to come and give them the attention when they demanded it, to the point of sending PMs essentially saying "did you not see I was having a hard time?" And it was THE central focus, they identified themselves virtually entirely through this illness - at one point they were spouting symptoms of a different condition but they went apeshit when someone pointed out they may have x instead of z. And no "off" days - most of us had the "if it's not killing me I don't want to think about it today" attitude, but this person was on every single day, always terrible.
I'm sorry, this is a long rant. But the harm these fucktards do goes deep. Firstly, and most importantly, they waste vital medical time and resources (I have no idea how medical staff don't kill them.) Outside that though, they embed themselves in very vulnerable communities where it is extremely hard to call them out and their effects can be devastating. I left the group because I no longer felt any security and this arsehole imposed themselves so much. But it's terrifying that they are also often the most vocal - that woman who pushed herself to the forefront of the 9/11 survivors was typical; I understand our pet freak left to set up her own group when it became obvious we were wary. It's horrifying to think that a frightened, stressed person in great pain would go there first.
And all this is an unusual, not-common-knowledge medical oddity. Makes you wonder just how many of them there are being very loud at the front of truly devastating illnesses like cancer. I think things like Fibromyalgia may actually do really sick people a favour - if they all congregate under a vague umbrella term and get whatever the fuck they need out of that, maybe they'll stay away from places where they can do terrible damage.
Me again...not a rant this time, a question for those of you who know these nutters or deal with them professionally....
Is a lack of humour about it a factor in these people? I'm the absolute butt of jokes amongst my family and friends, but I make most of 'em. And a friend I have with a very serious, MS-level illness is the same - it's not ever meant unkindly, it just serves as a tension-reliever and keeps things in perspective.
Our pet nut had no humour about it at all; she told me off for being flippant....about my own illness (I might've got a bit sarcastic. Ahem.) The other strange thing I've noticed in these days of social media is that the hypochondriacs list their - usually self-diagnosed - "conditions" as part of their profiles (?!?!!!?) It's all sooooo serious. Yet staff in hospital usually have the blackest, funniest sense of humour - how do these people take humour?
I'm fascinated at the same time as repulsed. It's a shame really that their pathology is a psych's dream....but the one doctor they will not touch with someone else's bargepole is a shrink!
Ta for letting me vent. I only found the farms a few days ago and have had the best laugh of my life. Ah needs to sign me up propa.