Community Munchausen's by Internet (Malingerers, Munchies, Spoonies, etc) - Feigning Illnesses for Attention

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Oh I know medical staff will treat everyone the same but it's the gravy and ass pats from friends, FB, tumblr when they can post CANCER or ALS, oh wait, I guess plenty do that with or without a diagnosis. But it at least raises the bar for those who don't outright lie and had to use the Fibro, IBS, something hard to physically diagnose bullshit.

I suspect most of them also don't realise that the attention is not constant throughout a progressive/terminal illness. There's often a lot of rallying around during initial diagnosis and treatment and again in the final weeks, but there are prolonged periods in the middle when the attention from everyone except caregivers drops off because most people can only suspend their own lives to rally around for quite short periods (a reality which greatly contributes to carer burnout).
 
They love it.

It's pure joy to them, an actual diagnosis. They will purposely harm themselves or worsen their illness during those lapses of attention, if they get used to attention from staff.

There was a woman who rubbed feces into her IV site during chemo, because going septic while on chemo is a real attention-getter. That's the kind of shit they pull. If you treat them neutrally, they tend to do that less, because they know the payoff isn't coming. But too many med workers aren't aware of how to handle Munchausen's patients, and almost reward them for "finally actually being sick". This increases their thirst and causes them to act out more.

We can't treat then the same. If we treated them the same, it endangers them. They'll harm themselves to get more attention, so we have to make sure they know it will not come, there will be no personal connection, no extra consideration. This is hard for medical people to do, nurses especially tend to feel sympathy for these patients.

When they're actually being treated for something serious, they're enjoying it. They seem to thrive on pain, laughing, smiling and t trying to get personally friendly with staff. It's very unpleasant to watch, especially if you are dealing with other patients who, quite normally, don't enjoy invasive tests and treatments.


edit: they're also very good at manufacturing crises to put on a show for their friends; they'll do this when the friends take a break from rallying around. They'll do it if their family member wants to go home for a few hours to sleep. They're manipulators.
 
I met one of these people in the wild today.

I was in an IRC channel talking to my friends about something asinine, and this chick says "Oh my God can you guys talk about something else you're making my DID flare up". A friend less versed in internet craziness asked her what it was, and she launched into this long rambling explanation of how her dad made her go to Catholic school when she was a kid, and she was so traumatized because she was an atheist, that she had to create different people in her brain to cope. She also said she had BPD and 'schizoid tendencies'. I asked what medication she was taking (because I'm nosy as fuck when it comes to psych drugs) and she says that she doesn't take any, because her dad won't take her to a doctor. I asked her what she thought of the movie Split, and she said that she wasn't going to see it because it stereotyped people with DID as violent.

lol okay sweetie. God speed you lunatic.
 
I met one of these people in the wild today.

I was in an IRC channel talking to my friends about something asinine, and this chick says "Oh my God can you guys talk about something else you're making my DID flare up". A friend less versed in internet craziness asked her what it was, and she launched into this long rambling explanation of how her dad made her go to Catholic school when she was a kid, and she was so traumatized because she was an atheist, that she had to create different people in her brain to cope. She also said she had BPD and 'schizoid tendencies'. I asked what medication she was taking (because I'm nosy as fuck when it comes to psych drugs) and she says that she doesn't take any, because her dad won't take her to a doctor. I asked her what she thought of the movie Split, and she said that she wasn't going to see it because it stereotyped people with DID as violent.

lol okay sweetie. God speed you lunatic.

The only plus side is that she at least recognises that her "alters" are self-created.
 
They love it.

It's pure joy to them, an actual diagnosis. They will purposely harm themselves or worsen their illness during those lapses of attention, if they get used to attention from staff.

There was a woman who rubbed feces into her IV site during chemo, because going septic while on chemo is a real attention-getter. That's the kind of shit they pull. If you treat them neutrally, they tend to do that less, because they know the payoff isn't coming. But too many med workers aren't aware of how to handle Munchausen's patients, and almost reward them for "finally actually being sick". This increases their thirst and causes them to act out more.

We can't treat then the same. If we treated them the same, it endangers them. They'll harm themselves to get more attention, so we have to make sure they know it will not come, there will be no personal connection, no extra consideration. This is hard for medical people to do, nurses especially tend to feel sympathy for these patients.

When they're actually being treated for something serious, they're enjoying it. They seem to thrive on pain, laughing, smiling and t trying to get personally friendly with staff. It's very unpleasant to watch, especially if you are dealing with other patients who, quite normally, don't enjoy invasive tests and treatments.


edit: they're also very good at manufacturing crises to put on a show for their friends; they'll do this when the friends take a break from rallying around. They'll do it if their family member wants to go home for a few hours to sleep. They're manipulators.

This post is 100% truth and applies to opiate addicts as well. Basically you gotta treat 'em alllll like borderlines: consistent treatment, the same thing, every time, from every staff member. No exceptions. Not on your birthday, not because your family asks. Enforcing limits actually helps these folks - when the candy isn't available at all, they don't want it as much.

If staff do this inconsistently (one person coddles, another sets limits) what you get is "splitting", where one staff member becomes Nice Doctor and another is Bitch Doctor From Hell. This is shitty but being fired by these patients is a blessing. Gwen Hartley displays some of this behaviour e.g. when she sends annual letters to the doc that told her her kids wouldn't live a year because that doctor is soooooo ignorant.
 
You just made me realise something. The person I know who has legit fibro never posts photos of her illness. She only posts photos of the things she manages to accomplish despite being in pain and constantly exhausted. I've never seen a photo of her in her wheelchair, even though she uses it a lot in daily life. She rarely mentions any of her symptoms, and if she does it's in passing (you know when she's having a particularly bad run of insomnia by the timestamps of when she's been online). After the first couple of years of being frustrated at not being able to work in either of the fields for which she's qualified, she turned a hobby into an income stream and freely admits that she did it to save her sanity and feel useful rather than for

I don't let myself be photographed with my mobility devices (save for my cane that's always at my side but usually I push it off to the side if I can) because of the negative attention it brings. Or negative to me anyway as I don't have Muchausen's. Because then you have people asking "OMG what happened?!" and then you're talking about something that happened years ago when today you went to the beach. You just want to move on in the sense "yes this happened, but life goes on."

I'm also married and I only have one picture of me and my husband where I'm in a wheelchair though everytime we go on a day trip, I'm in one. And it's never been posted online. Because people love to steal those to make those shitty "Would you still love me?!" posts. I don't need strangers speculating on my marriage, I am not a god damned celebrity. Plus you also often want to be on the downlow with disability on social media to get employers to even interview you. It's just a sad truth.

So, yeah, disabled people not looking for attention often minimize their disability on social media (if they can, obviously not everyone can; if they're quadriplegic for example) because of not just wanting to constantly talk about it, but also prejudice. So unfortunately the public face of chronic illness is often these nuts.
 
I don't let myself be photographed with my mobility devices (save for my cane that's always at my side but usually I push it off to the side if I can) because of the negative attention it brings. Or negative to me anyway as I don't have Muchausen's. Because then you have people asking "OMG what happened?!" and then you're talking about something that happened years ago when today you went to the beach. You just want to move on in the sense "yes this happened, but life goes on."

I'm also married and I only have one picture of me and my husband where I'm in a wheelchair though everytime we go on a day trip, I'm in one. And it's never been posted online. Because people love to steal those to make those shitty "Would you still love me?!" posts. I don't need strangers speculating on my marriage, I am not a god damned celebrity. Plus you also often want to be on the downlow with disability on social media to get employers to even interview you. It's just a sad truth.

So, yeah, disabled people not looking for attention often minimize their disability on social media (if they can, obviously not everyone can; if they're quadriplegic for example) because of not just wanting to constantly talk about it, but also prejudice. So unfortunately the public face of chronic illness is often these nuts.

See, this is how I imagine most "normal" or generally cool people would be about a disability, and not because they are ashamed or anything but because outward signs of a disability can offer up information and open yourself up to questions about yourself to the general public that you don't want to share. Family and friends is one thing, strangers online or in public is entirely another. I don't want to invite questions or comments about anything from the general public as I go about my day, and it seems a disability makes people think it's okay to do such things (hint, it's not). The culture of oversharing online has only made this worse.

I could imagine someone being in a wheelchair and having a perfectly lovely day and then some stranger in line at the shop asks them why they are in a wheelchair, because they certainly want to relive a terrible car accident they were in ten years ago and give some asshole all the deets about that awful time just to satisfy his curiosity about a stranger. (We once were neighbors with a guy who was missing an arm, we knew him for two years and talked regularly before we ever found out how he lost it and that was only because he told us of his own accord. We would have never asked because it wasn't our fucking business, and since he was a Vietnam Vet I certainly didn't want to risk him having to relive some godawful traumatic war story just to satisfy my curiosity.)
 
Shelbie, aka flimsywrists, is a pretty knee-slapping good time, if you want to boggle your mind over a perfectly healthy girl getting histrionic over standard blood pressure changes, and that her blood labs never show how truly, TRULY sick she is.

http://flimsywrists.tumblr.com/

She goes to the ER about every three days, for stuff like almost passing out. While she claims to have bipolar, she has a lot of splitting tendencies, and she lists BPD under her entire page for her conditions. It's very weird. It's like she curates every aspect of her illness experience.

http://flimsywrists.tumblr.com/conditions
disbitch.png
 
See, this is how I imagine most "normal" or generally cool people would be about a disability, and not because they are ashamed or anything but because outward signs of a disability can offer up information and open yourself up to questions about yourself to the general public that you don't want to share.
That's exactly why I don't talk about my disability, generally. I'm 'lucky' enough that mine are all psych, so I don't present as disabled. But it's very awkward when you're just getting to know someone and they inevitably ask what you do for a living, and you have to say you're on disability . It's a rare person that doesn't ask why I can't work, and even rarer still for them to not ask what caused my issues. Or worse, they talk about how they took prozac for a few months when they were 15 so they kind of get what I'm going through. Even among fairly liberal people there's an assumption that if you're not visibly disabled, you're just too lazy to work. It sucks being judged like that by strangers, and I don't know why someone would invite that.

There's nothing fun about this. It's exhausting. The attention you get is rarely positive. Maybe it's different for people with visible disabilities, but I don't get asspats for what I do (not that I'm looking for them). There's nothing glamorous about turning into a blubbering mess at group, or for managing to go to the grocery store without panicking. My friends and family are proud and supportive, but I couldn't in a million years imagine trying to get attention from this shit, or spin it isn't some kind of (◡‿◡✿) Feeling blessed didn't hallucinate today plz give me money(◡‿◡✿) thing.
 
See, this is how I imagine most "normal" or generally cool people would be about a disability, and not because they are ashamed or anything but because outward signs of a disability can offer up information and open yourself up to questions about yourself to the general public that you don't want to share. Family and friends is one thing, strangers online or in public is entirely another. I don't want to invite questions or comments about anything from the general public as I go about my day, and it seems a disability makes people think it's okay to do such things (hint, it's not). The culture of oversharing online has only made this worse.

I could imagine someone being in a wheelchair and having a perfectly lovely day and then some stranger in line at the shop asks them why they are in a wheelchair, because they certainly want to relive a terrible car accident they were in ten years ago and give some asshole all the deets about that awful time just to satisfy his curiosity about a stranger. (We once were neighbors with a guy who was missing an arm, we knew him for two years and talked regularly before we ever found out how he lost it and that was only because he told us of his own accord. We would have never asked because it wasn't our fucking business, and since he was a Vietnam Vet I certainly didn't want to risk him having to relive some godawful traumatic war story just to satisfy my curiosity.)

I feel like if that were me, I'd come up with some sarcastic answer to give people, like telling people I lost my arm because I fed the animals at the zoo, or that I'm in a wheelchair because I broke my feet kicking somebody's ass.

But I'm just sassy that way.
 
This post is 100% truth and applies to opiate addicts as well. Basically you gotta treat 'em alllll like borderlines: consistent treatment, the same thing, every time, from every staff member. No exceptions. Not on your birthday, not because your family asks. Enforcing limits actually helps these folks - when the candy isn't available at all, they don't want it as much.

If staff do this inconsistently (one person coddles, another sets limits) what you get is "splitting", where one staff member becomes Nice Doctor and another is Bitch Doctor From Hell. This is shitty but being fired by these patients is a blessing. Gwen Hartley displays some of this behaviour e.g. when she sends annual letters to the doc that told her her kids wouldn't live a year because that doctor is soooooo ignorant.
oh, addicts are easy though, in comparison. they're in actual pain (withdrawal) and behave short-tempered due to that. they don't enjoy it. they are manipulative, but only to get out of that pain.

power level; the one hospital I originally was involved with, we would literally room addicts for a minute, give them two hydrocodone and/or a tiny shot of demerol, write it up as "neuropathic pain due to infection" and send them away with a harm reduction kit. they only ever showed up when the streets were dry, or when they were actually sick. it was amazing.

the second hospital? tight ship, no sympathy for them- and the frequent flyers were FREQUENT and insistent and lying and crazed.

taking a gentle harm reducing approach and treating their withdrawal with sympathy for them to behave like human beings, instantly.

splitting is the territory of Munchausen's and patients with personality disorders and usually comes with attention seeking.

drug addicts don't want your attention. they want their fix. they'll lie to get it, but they'd usually rather be invisible, get their needs met, and get out.

munchies want to stay foreeeever.
 
Shelbie, aka flimsywrists, is a pretty knee-slapping good time, if you want to boggle your mind over a perfectly healthy girl getting histrionic over standard blood pressure changes, and that her blood labs never show how truly, TRULY sick she is.

http://flimsywrists.tumblr.com/

She goes to the ER about every three days, for stuff like almost passing out. While she claims to have bipolar, she has a lot of splitting tendencies, and she lists BPD under her entire page for her conditions. It's very weird. It's like she curates every aspect of her illness experience.

http://flimsywrists.tumblr.com/conditionsView attachment 240696

I looked at a few pages - this bitch is prescribed fentanyl patches. (Post about how happy she was she was getting them refilled early).

I swear I know addicts/munchies are two different things but lots of munchies are also addicts. I think half the time their "pain" is just dope tolerance/not high enough so the world is ending. I think some doctors just give them whatever hoping it will quiet them down and shut them up after they waste their time with the 456 visit of the year.

There is literally nothing wrong with this chick, she has every fake-ass disease known to mankind/munchies plus the laundry list of mental disorders (which I totally believe she is BPD, NPD, OCD, etc..) and yet they are giving her fentanyl patches (pretty much one of the strongest opiates known to man) because she's insufferable and never stops the bullshit until the give in to her demands.

All the munchies I've ever known or encountered have pill habits and they think their life depends on having them. They don't use them like addicts do, but god help the local medical staff if they run short or out - there is hell to pay. They are addicted not only to drugs but just as much to attention - and that is a hell of a combo. (We had some munchie cow (Kelsey?) die on here as a result of an OD, it's a very common cross over.)
 
I looked at a few pages - this bitch is prescribed fentanyl patches. (Post about how happy she was she was getting them refilled early).

Why is she on fentanyl?

It's a relatively easy drug to get here if you have a known, short-term need but you're not going to get it on an ongoing basis for vague pain which can't be diagnosed.
 
I looked at a few pages - this bitch is prescribed fentanyl patches. (Post about how happy she was she was getting them refilled early).

I swear I know addicts/munchies are two different things but lots of munchies are also addicts. I think half the time their "pain" is just dope tolerance/not high enough so the world is ending. I think some doctors just give them whatever hoping it will quiet them down and shut them up after they waste their time with the 456 visit of the year.

There is literally nothing wrong with this chick, she has every fake-ass disease known to mankind/munchies plus the laundry list of mental disorders (which I totally believe she is BPD, NPD, OCD, etc..) and yet they are giving her fentanyl patches (pretty much one of the strongest opiates known to man) because she's insufferable and never stops the bullshit until the give in to her demands.

All the munchies I've ever known or encountered have pill habits and they think their life depends on having them. They don't use them like addicts do, but god help the local medical staff if they run short or out - there is hell to pay. They are addicted not only to drugs but just as much to attention - and that is a hell of a combo. (We had some munchie cow (Kelsey?) die on here as a result of an OD, it's a very common cross over.)
Seroquel is pretty addicting if only for its power to knock your ass out. Sometimes I become Robin Williams-on cocaine level hyper and that shit will put me to bed for nine hours.
 
Why is she on fentanyl?

It's a relatively easy drug to get here if you have a known, short-term need but you're not going to get it on an ongoing basis for vague pain which can't be diagnosed.

Your guess is as good as mine, I'm guessing because she shows up at the doctors x2 a week screaming PAIN. Every "diagnosis" she lists is some bullshit that would never be given such a strong narcotic unless she just wore the doctors down with her unrelenting bullshit. I think in the case of munchies doctors give in a rx narcotics or benzos because in the end it's the only way to shut them up and stupify them long enough so they give the medical staff a break with their constant bullshit.
 
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Sounds like someone got a little more attention than she bargained for.

Seroquel is pretty addicting if only for its power to knock your ass out. Sometimes I become Robin Williams-on cocaine level hyper and that shit will put me to bed for nine hours.

Yeah but antipsychotics are easy to get because they have zero recreational value. People who don't need them medically take them either to zonk themselves out or to come down from other drugs, so even when they're misused they have extremely limited potential for harm.

Also, I just noticed that the dose of Seroquel she's on isn't even in the therapeutic range for bipolar disorder. She's not on a mood stabiliser either, which is highly unusual for bipolar 1.

And why would someone with lowish blood pressure be taking Minipress - a medication most commonly prescribed to as an antihypertensive?
 
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Seroquel is prescribed almost as commonly as a sleep aid as it is an anti-psychotic. It doesn't produce any sort of euphoria/high like ambien does. It just makes you sleepy as fuck, to the point where just turning over in bed takes forever because you fall asleep on your back for a while before you make it to the other side. It also doesn't have the same negative side-effects of stuff like ambien such as memory loss, loss of inhibition, that kind of thing. Chronic insomnia is no joke.

You do build up a tolerance for seroquel if you take it long term as a sleeping aid but considering how high doses can get when you take it as an anti-psychotic it's not really an issue. The real problem with it is that you can wake up feeling kind of hung over because it's still lingering in your system. That doesn't really happen with ambien and drugs in the same class unless you take a higher than prescribed dose.
 
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