Community Tard Baby General (includes brain dead kids) - Fundies and their genetic Fuckups; Parents of corpses in denial

[Trombonista]

Those videos are nothing but a modern day version of a circus side show. The video with the extremely premature fetus named ''Heavenly'' said she died from Alobar holoprosencephaly. There are several types of holoprosencephaly and alobar is the most severe kind. Mathew Nel has semi-lobar holoprosencephaly, which isnt as bad as the alobar type , yet he's still extremely physically malformed and developmentally disabled, so imagine what the absolute worst form of the condition looks like. Nearly every fetus that has it dies before birth, but some live longer than Heavenly did , which brings to light the full horror of the condition. If you think an extremely premature fetus looks grotesque, then you should see what happens when a fetus with lobar holoprosencephaly gets to or near full term. They are nightmares made flesh. It was fortunate for all involved that the baby in that video didn't live. .
What these parents don't realize is babies that severely effected aren't supposed to be born, which is why most end in miscarriages and still births. Nature generally corrects its mistakes, but some stay just outside that border that makes a condition totally incompatible with life, and with the aid of modern medicine, instead of dying in the womb, these kids get to be born to lives of non sentience at best and severe misery at worst. Then their parents and other assorted fundies put these unfortunates on display and call them ''miracles.''

Children like Jaxon Buell, the Hartley sisters and Mathew Nel are basically errors that got past nature's editing tool. They aren't miracles... they are biological typos.

Thanks for making that attachment a thumbnail.

 

[MirnaMinkoff]

What interests me is the doctors who go through with this shit. I know healthcare in America is largely private so I assume there is a lot of money to be made off crazy fundie """"mummys"""" who go through with these surgeries etc.

I have a good friend who works in genetics so he is part of the team who works with women who receive a prenatal diagnosis and the vast majority of these women are exactly as you would hope - distraught that their child will suffer, confused and seeking comfort / support for the next step. And the majority seek termination saying they don't want their children to live in a constant, painful hellscape (note that the doctors here cannot encourage women to make any decisions - only discuss the options and provide clear, unbiased information).

Now keep in mind that we're in Australia so if fundies call up asking about terminations or to harass the staff they can rightly tell them where to go, and they are not allowed to picket/harass women seeking a termination - fundie ideology is kept away from the places that offer actual medical information. But the thing is, in the cases of women who do carry a not compatible with life fetus to term, the best practise is to offer only palliative care and no life extending treatments - for doctors, the practise of bending to fundie will to do whatever they can to keep a child like Claire or Lola alive is actually unethical, not only in the fact that the Claire's or Lola's live lives of unending pain, but the opportunity cost of putting their skills towards doomed cases instead of children who could benefit from the treatment.

It is largely private if your employed above a certain income level. I think you will find in many of these cases the govt program Medicaid is picking up the tab in these situations. Even if you are employed/have resources Medicaid and social security has special programs to subsidize the care of disabled children.

Generally this is a good thing because its painful enough to care for a sick or disabled child, but in these cases it allows ppl to continue the suffering. I’ve always wondered how comitted to these hopeless cases some of these attention seeking religious parents would be if they had to sink significant financial resources into their miracle. But its super easy for them to get doctors and hospitals to go along with the BS thanks to the government picking up the tab. Doctors and hospital are bad at encouraging adults with Medicaid to get unnecessary surgeries and treatments because they just bill the govt. Babies like this would get a lot of money for the doctors/hospitals involved so they are fine with all this because it makes them a lot of money in many cases because the govt picks up the tab 100%

One thing the govt doesn’t want is to be the crosshairs of religious nuts for not recognizing their miracles or implying treatment should be withheld. Easier to just sink money and resources into these awful cases than stirring up a political shitstorm by implying the case is hopeless or a waste of resources. As someone mentioned many of these cases are tied to people’s extreme anti-abortion beliefs. These are the groups that want to recognize a 6 week embryo as a person.

In most states, but not all, Medicaid funding cannot be used to pay for an abortion. So in certain locations it would be financially easier for a poor woman to have a potato (Medicaid pays every cent of medical costs plus she would get SSI funds once its born plus qualifying for other programs) than it would be to terminate the pregnancy because she would have to pay thousands out of her own pocket to terminate. Also given the cultural pressure about abortion in many areas the idea of a GFM for an abortion is out of the question (thanks to stigma and guaranteed harassment from anti-abortion fanatics) but a GFM for a potato will get money and sympathy pouring in from the same ppl.

It’s a fucked dynamic that rewards making the worst choices. The anti-abortion wing is of the belief that abortion is always wrong. This is why they’ve promoted the idea that every baby, no matter how fucked up and hopeless, is a MIRACLE who’s life must be preserved at all costs. prolonging the suffering needlessly of hopeless cases is just another casualty in their unceasing campaign to try and make abortion illegal again. They are totally ok with using disabled, non-viable babies as pawns in their culture war.

 

[aquariumwater]

Page after page of information detailing every deformity and moment of suffering for their little Matthew, but when it comes time to take a moment to thank the apparent army of carers that keep him alive, suddenly it's too much to type out in powerpoint. Of course that would, just for one minute, take the attention off of themselves and their tragedy.

Obviously these are people who would subject an infant to the kind of constant, endless suffering that is their son's entire life, but it's the little things that demonstrate they're not just misguided, but I'd assume they're also narcissists with a little side helping of sadism. Or at least that's the only thing I can think of that makes sense to explain these two, and why they admit that if they had to do it over again, they'd subject their own child to all that misery all over again.

 

[Bunny]

What confuses me is that these people wouldn't let their animals suffer (I'm assuming) and would put them to sleep, but when it comes to their severely disabled/disfigured/ill children, they want to prolong the torture as long as possible for asspats and bc ~it's God's will. I would hope God wouldn't be such a cunt and put an innocent kid through shit like this only to live for years in pain and still have to be dressed up as Scrappy fucking Doo.

 

[MirnaMinkoff]

Page after page of information detailing every deformity and moment of suffering for their little Matthew, but when it comes time to take a moment to thank the apparent army of carers that keep him alive, suddenly it's too much to type out in powerpoint. Of course that would, just for one minute, take the attention off of themselves and their tragedy.

Obviously these are people who would subject an infant to the kind of constant, endless suffering that is their son's entire life, but it's the little things that demonstrate they're not just misguided, but I'd assume they're also narcissists with a little side helping of sadism. Or at least that's the only thing I can think of that makes sense to explain these two, and why they admit that if they had to do it over again, they'd subject their own child to all that misery all over again.

There is definite narcissism at play. It may be the first time in their lives the parents have people praising them, ppl online and IRL saying how inspiring they are, the medical staff gets to be like paid friends, etc... praise and adulation is like a drug for some people.

It's also become increasingly taboo to be honest about hardships and tragedies and instead reframe them as miracles, challenges, courage, etc... People can't be suffering victims of cancer, they have to be courageous fighters/survivors. It's reframing human suffering to make it more socially digestible and comfortable for people. Suffering and tragedy is part of humanity, but there's less honesty in accepting and processing that reality and instead trying to turn it into something else that's more comfortable for mass consumption. The media plays into this narrative in a major way by trying to do cringey stories about "communities coming together" in the wake of massive tragedies or cooing over potatoes as little miracles with inspiring families, searching for the positives in a situation isn't a bad thing but studiously avoiding any focus on the bad is unhealthy. (Also, as an example, the media loves to swoop in showing the injured shooting victim in the hospital in the initial weeks as a profile in courage, but don't show a year down the road the hardships the longterm recovery and emotional/financial turmoil such events cause.)

People are very susceptible these narratives presented in the media, esp if it's encouraged by a set of religious beliefs or their community. They becomes actors in plays thinking there is a script they should be following.

 

[FramerGirl420]

What confuses me is that these people wouldn't let their animals suffer (I'm assuming) and would put them to sleep, but when it comes to their severely disabled/disfigured/ill children, they want to prolong the torture as long as possible for asspats and bc ~it's God's will. I would hope God wouldn't be such a cunt and put an innocent kid through shit like this only to live for years in pain and still have to be dressed up as Scrappy fucking Doo.

I think some of these people are those weirdos that think death is the worst thing ever. They seem to think death is a horrible affair and there's nothing worse that could ever happen. Now, it may be the worst for them, losing a loved one is awful, but in some cases, death is an ending of suffering. They're ignorant and selfish and have to keep these subhumans breathing no matter what torture their lives contain, merely so mom and dad don't have to cry so soon.

 

[AnOminous]

I think some of these people are those weirdos that think death is the worst thing ever. They seem to think death is a horrible affair and there's nothing worse that could ever happen. Now, it may be the worst for them, losing a loved one is awful, but in some cases, death is an ending of suffering. They're ignorant and selfish and have to keep these subhumans breathing no matter what torture their lives contain, merely so mom and dad don't have to cry so soon.

If they were merely spending their own money or donated money on this nonsense, I wouldn't really care. Those creatures have so little sentience that it carries very little ethical weight. It's the cost to society at large, which often ends up footing the bill for this bullshit, when the same money spent on keeping these fucking potatoes breathing could help a lot of poor kids who deserve it and could actually benefit from it.

 

[Dorsia.Reservation]

If they were merely spending their own money or donated money on this nonsense, I wouldn't really care. Those creatures have so little sentience that it carries very little ethical weight. It's the cost to society at large, which often ends up footing the bill for this bullshit, when the same money spent on keeping these fucking potatoes breathing could help a lot of poor kids who deserve it and could actually benefit from it.

My state is cutting programs for handicapped kids that legitimately benefit from the programs and the devices they provide.

And here is one of these potatoes in a $700+ specialty walker she can never even begin to use provided by the state.
All the while their Dad plays mediocre glass blower and doesn't work a real job.

 

[money bunny]

Weren't birth defects originally thought of God punishing you for your sins with offspring that probably won't survive or have kids of their own? Not sure how we got "gift from God" out of this in the end.

Many cultures also considered them bad omens for the community/village.

I hate when these kind of people specifically refer a severely deformed or disabled child as a "gift from God". It sounds like they're being sarcastic, which isn't very polite but would at least make sense, but nope. It's so smarmy and disingenuous.

 

[SuperSexyMisty]

Wow another family you speds are harassing because they're BETTER than your family.

 

[JaneThough]

Wow another family you speds are harassing because they're BETTER than your family.

The word sped is very hurtful to the disabled. Why do you hate the disabled?

 

[SuperSexyMisty]

The word sped is very hurtful to the disabled. Why do you hate the disabled?

I don't hate the disabled at all.

I hate speds like you that harass stalk bully and bother people and families

All because you can't/won't/don't/never had/never will have what they do.

Or even just because of the simple fact they are people wanted loved cared for/about provided for.

And you are only here because some inbred whore couldn't keep her clothes on and legs shut around Grandpa.

What confuses me is that these people wouldn't let their animals suffer (I'm assuming) and would put them to sleep, but when it comes to their severely disabled/disfigured/ill children, they want to prolong the torture as long as possible for asspats and bc ~it's God's will. I would hope God wouldn't be such a cunt and put an innocent kid through shit like this only to live for years in pain and still have to be dressed up as Scrappy fucking Doo.

I dunno. After all God allows YOU to exist and continue to exist when clearly many people and families are suffering greatly BECAUSE you exist.

 

[grumbleBum]

I don't hate the disabled at all.

I hate speds like you that harass stalk bully and bother people and families

All because you can't/won't/don't/never had/never will have what they do.

Or even just because of the simple fact they are people wanted loved cared for/about provided for.

And you are only here because some inbred whore couldn't keep her clothes on and legs shut around Grandpa.

You seem upset. There’s plenty of similar threads, why is this particular one so hurtful to you?

 

[Deadpool]

I don't hate the disabled at all.

I hate speds like you that harass stalk bully and bother people and families

All because you can't/won't/don't/never had/never will have what they do.

Or even just because of the simple fact they are people wanted loved cared for/about provided for.

And you are only here because some inbred whore couldn't keep her clothes on and legs shut around Grandpa.




I dunno. After all God allows YOU to exist and continue to exist when clearly many people and families are suffering greatly BECAUSE you exist.

Plz tell me more about how people using their severly handicapped children to gain free shit, fame, and internet asspats are moral people! Which would you say are more moral the Hartley's for exploiting the potatoes who were born that way, or the Schofields who drugged their children into the way they are? Also please explain how us talking shit on a rather obscure forum they could easily ignore hurts these families.

 

[AnOminous]

I dunno. After all God allows YOU to exist and continue to exist when clearly many people and families are suffering greatly BECAUSE you exist.

We're all very nice people here.

Why are you so angry?

 

[Barbarella]

You seem upset. There’s plenty of similar threads, why is this particular one so hurtful to you?

Unfortunately, this sped hater has visited a few threads now.

 

[grumbleBum]

Unfortunately, this sped hater has visited a few threads now.

They’ll be like a kid in a candy store around here.

 

[jurassic bark]

"I'M THE PRO-LIFEIEST, WHERE'S MY MEDAL?"

Wow another family you speds are harassing because they're BETTER than your family.

Then they don't need you here defending them against jealous haters.

 

[MirnaMinkoff]

"I'M THE PRO-LIFEIEST, WHERE'S MY MEDAL?"

View attachment 319708

View attachment 319709



Then they don't need you here defending them against jealous haters.

Wow. At least with microcephaly you have some degree of brain matter, anecephaly is no brain.

The group literally means “Brainless Warriors,” so pretty apt description of the people who came up with that idea. They should totally use photos of the miracles on their logo rather than boxing gloves.

 

[Mrs Paul]

Page after page of information detailing every deformity and moment of suffering for their little Matthew, but when it comes time to take a moment to thank the apparent army of carers that keep him alive, suddenly it's too much to type out in powerpoint. Of course that would, just for one minute, take the attention off of themselves and their tragedy.

Obviously these are people who would subject an infant to the kind of constant, endless suffering that is their son's entire life, but it's the little things that demonstrate they're not just misguided, but I'd assume they're also narcissists with a little side helping of sadism. Or at least that's the only thing I can think of that makes sense to explain these two, and why they admit that if they had to do it over again, they'd subject their own child to all that misery all over again.

Quite frankly, I find this kid's situation way more disturbing than the Hartleys'. (And not having been able to watch the video on my computer, why haven't that had surgery to correct his cleft palate?)