Community Tard Baby General (includes brain dead kids) - Fundies and their genetic Fuckups; Parents of corpses in denial

[MirnaMinkoff]

Quite frankly, I find this kid's situation way more disturbing than the Hartleys'. (And not having been able to watch the video on my computer, why haven't that had surgery to correct his cleft palate?)

Uh, watch the video, and you’ll see how pointless that would be. A cleft palate is the very least of his problems.

EDIT: Oh, fuck, don't look up Matthew Manuel today, they've gotten that poor thing to survive three years and its horrific. This is a quote from their last blog update:

Over three and a half years of fighting for Matthew’s life has left us depleted of options. We have reached a dead end in Matthew’s development and treatments and therapies. Where we were once hoping to make some sort of progress developmentally, albeit slow, or even just to curb his seizures, our goal has deteriorated to just keeping Matthew comfortable and alive. And even that downgraded goal we are failing at – we haven’t been able to keep him comfortable and the fact that he is still alive is by God’s grace alone.

The seizure medications are not controlling his seizures. We are currently using seven anti-epileptic medications and have previously tried an additional two others. A total of nine different anti-epileptic medications. That is a lot for a little body to handle. One could suck up the side effects of the meds if you at least saw some decent results but it is a really bitter pill to swallow (pardon the pun) when they are making little to no difference in the seizures and you can see the bad side effects that they cause on top of everything else.

You get some mild hope that the parents have finally realized they should let this potato die in peace but nope. The blog goes on to say they've found some hokey holisitic behavior program that's offering a real chance for Matthew's quality of life! I looked into the place, it's mostly a for profit program that trains parents with kids with ADD, autism, etc... yet somehow the parents think it offers real hope for their potato. They are pouring money into this BS too. It's just fucking sad and delusional and I can't believe that poor thing is still being subjected to this shit. I don't know if this is peak potato torture but it seems close.

Fyi: Mathew has 150 to 200 seizures per day even while on 9 anti-seizures meds including massive levels of phenobarbital

 

[MysticMisty]

All because you can't/won't/don't/never had/never will have what they do.

I know I shouldn't respond, but...I don't want potato children. I would gladly take being infertile over having a kid that'd never be able to stand on their own, let alone walk, talk, ride a bike, go to school, or even fucking have enough mental capacity to play with infant toys.

 

[FeatherBomb]

who doesnt want a shitting paperweight though?

 

[Ti-99/4A]

who doesnt want a shitting paperweight though?

Maybe as a practical joke that you can put on a shelf or in a drawer once you've had your laughs, but one you have to feed and clothe and clean for the rest of it's "life" no thanks.

 

[weaselhat]

Uh, watch the video, and you’ll see how pointless that would be. A cleft palate is the very least of his problems.

EDIT: Oh, fuck, don't look up Matthew Manuel today, they've gotten that poor thing to survive three years and its horrific. This is a quote from their last blog update:



You get some mild hope that the parents have finally realized they should let this potato die in peace but nope. The blog goes on to say they've found some hokey holisitic behavior program that's offering a real chance for Matthew's quality of life! I looked into the place, it's mostly a for profit program that trains parents with kids with ADD, autism, etc... yet somehow the parents think it offers real hope for their potato. They are pouring money into this BS too. It's just fucking sad and delusional and I can't believe that poor thing is still being subjected to this shit. I don't know if this is peak potato torture but it seems close.

Fyi: Mathew has 150 to 200 seizures per day even while on 7 anti-seizures meds including massive levels of phenobarbital

Oh My God. If that were my child I would be seriously tempted to mercy kill. And probably wouldn't be able to stop myself.

 

[Dysnomia]

Quite frankly, I find this kid's situation way more disturbing than the Hartleys'. (And not having been able to watch the video on my computer, why haven't that had surgery to correct his cleft palate?)

He's teething now and the seizures are causing him to bite down and cut up his mouth. There are pics of bloody gauze and blood being suctioned from his mouth. In every picture all he does is listlessly stare or make the occasional face I suspect is 100% seizure. He looks very pitiable and is probably in a lot of pain all the time. His legs are like noodles because he lacks the brain function to be able to walk. I don't know how much he moves. Probably not much.

Here's a really creepy post by Matthew's mom about another boy named Paul Loughor-Clarke
https://matthewmanuelnel.wordpress.com/2017/01/21/superman-batman-spiderman-he-man-matt-man/

While we can still celebrate having our tiny superhero with us, our Loughor-Clarke family are remembering their Paul superhero who is celebrating his second birthday in heaven this month. And his angelversary. David and Carol are two amazing people and we are so thankful that God orchestrated for our paths to cross at the time that they did. They have been such an inspiration to us and fill in many blanks when we aren’t sure how to tackle something with Matthew. And we are so thankful that we got to meet Paul. That beautiful full bush of red hair! Paul carried a calmness about him. Just standing next to him made the rat race of life seem to come to a halt and one would wonder what he and God were chatting about – a secret conversation that we would never be privy to here on earth. He exuded a relationship with God that we can all only strive for – pure, unfettered, unhindered, direct.

God's plan scares the bejesus out of me. I don't care how religious you are. Living as a potato in constant unending hell is not a miracle. I hope Matthew's brain doesn't function well enough to make him aware of his own agony.

 

[weaselhat]

God's plan scares the bejesus out of me. I don't care how religious you are. Living as a potato in constant unending hell is not a miracle. I hope Matthew's brain doesn't function well enough to make him aware of his own agony.

That's the thing. It's not God's will for a newborn whose condition is incompatible with life to be whisked way to an incubator and hooked up to tubes and monitors and breathing machines. God's will would be for them to die in their parents arms right after birth to prevent prolonged agony or pain. It is selfish as hell to keep that child alive and suffering just because the parents won't let go.

 

[Lunatic Fringe]

Reading the blog post about that Mathew kid and the family going to the "Family Hope Centre" my brain kept reading it as the False Hope Centre.

Are we getting off topic here? Should this family get their own thread? Don't want taken attention away from Gwen and her wonder potatoes.

 

[Mrs Paul]

So the kid spends his days choking and puking, seizing uncontrollably, he has to eat and fucking BREATH via tubes....but he's a miracle? These people are monsters. This kid isn't alive, he's just existing. I'll pray, that hopefully he'll die soon, so he's no longer suffering and that when he does so, it's in his sleep. (Sadly, that's not likely -- when he does go, it's going to be ugly. Hopefully it'll at least be quick)
I understand that he's their son and they love him, but:

For the first year he was fed using an orogastric tube – a tube inserted in his mouth down his throat to his tummy. He coughed and vomited the tube out up to 10 times a day and it had to be re-inserted every time. We re-inserted and checked placement ourselves.

He has no pattern of sleep and wake and very seldom sleeps without the assistance of anti-epileptic medications.

He had up to 200 seizures a day at a stage. As we figured out various triggers which we could control, they averaged out to about 100 a day, varying in severity and length, lasting anywhere from 10 seconds to a minute each. The main trigger culprit was his diet. As soon as we switched to pureed solids of natural foods, the seizures decreased.

He is on 7 anti-convulsant medications. We tried two additional medications which didn’t work.

Anything that causes pain or discomfort triggers seizures – a dirty diaper (so we go through a lot of diapers), constipation (we go through a lot of paediatric glycerine suppositories), diarrhoea, temperature, a small sore, a cramp, an exercise he doesn’t want to do, a mosquito bite, coughing, vommitting …

He chokes, gags and vomits when seizing and often goes blue from lack of oxygen as he battles to clear his airway, so we have to be quick to suction.

Diabietes Insipidus – He either pees too much (causing high sodium levels and can dehydrate and become too lethargic) or too little (causing low sodium levels and can swell and he usually seizes really bad then) – we weigh every diaper and record it to monitor his input and output. We are still trying to figure out what is going on with his sodium levels due to his inconsistent pee pattern!

Temperature spikes (battles to regulate his temperature) – If he is too hot we use iced bean bags, if he is too cold we use hot water bottles.

Suction – As he battles to swallow and cannot control his head, any excess secretions or vomit need to be suctioned to avoid aspiration and choking.

Oxygen – Many of his medications are respiratory depressants and cause him to desaturate. He also desaturates during seizures.

:horrifying::horrifying::horrifying::horrifying:

But he's a gift from God. Gotchya. Jesus wept.

 

[MirnaMinkoff]

Oh My God. If that were my child I would be seriously tempted to mercy kill. And probably wouldn't be able to stop myself.

Micheal has the worst of the "cephalies" he has holoprosencephaly which is the horror show that produces the two iris cyclopes baby and other nightmares. He has no forebrain, his brain didn't divide into to two hemispheres.

The sad thing is the mother could have had two healthy children in the last three years to pour her love, attention and resources into but instead has prolonged the suffering of Michael. She uses the word miracle and gift from god so much I think its to help keep herself convinced.

Reading the blog post about that Mathew kid and the family going to the "Family Hope Centre" my brain kept reading it as the False Hope Centre.

Are we getting off topic here? Should this family get their own thread? Don't want taken attention away from Gwen and her wonder potatoes.

The mom isn’t the media and SM attention whore that Gwen is and from what but I’ve read her posts seem focused on the endless medical aspects of his care/prolonged suffering and god. IMO she isn’t worthy of her own individual thread but a thread about her and other potato parents prob is a good idea. There are quite a few parents like Micheals and a thread to discuss any of them would be good because they rarely rise to the level of Hartley/Jaxon that produce enough content to merit an individual thread but there’s enough of them and they are interesting enough for general thread.

 

[Lunatic Fringe]

The mom isn’t the media and SM attention whore that Gwen is and from what but I’ve read her posts seem focused on the endless medical aspects of his care/prolonged suffering and god. IMO she isn’t worthy of her own individual thread but a thread about her and other potato parents prob is a good idea. There are quite a few parents like Micheals and a thread to discuss any of them would be good because they rarely rise to the level of Hartley/Jaxon that produce enough content to merit an individual thread but there’s enough of them and they are interesting enough for general thread.

Yeah, I didn't think this family needed their own thread. Looking at the way things are going I don't think the poor kid is going to around much longer for there to be any content. Some kind of Beautiful Miracles thread would be good. I'm happy to get one going but if someone else has done the ground work already then I'm more than happy to let them do it. Any takers? Or getting a mod to split the relevant content here to it would work maybe?

 

[Mrs Paul]

Where would we put it?

 

[Lunatic Fringe]

Where would we put it?

Beauty Parlour would be my suggestion.

 

[MirnaMinkoff]

Yeah, I didn't think this family needed their own thread. Looking at the way things are going I don't think the poor kid is going to around much longer for there to be any content. Some kind of Beautiful Miracles thread would be good. I'm happy to get one going but if someone else has done the ground work already then I'm more than happy to let them do it. Any takers? Or getting a mod to split the relevant content here to it would work maybe?

Go for it. I think beautiful miracles in beauty parlor is a good idea. There’s been several of these cases discussed in this thread alone. You can start with just one or two and I’m sure more will quickly be suggested or posted.

 

[MirnaMinkoff]

Anybody else wonder, like in the case of Matthew and some of the others, that the parents really didn’t totally believe the prenatal diagnosis and thought if they just prayed hard enough the baby would be ok?

Then once the baby born way not ok they just kind of change their expectations and even the worst outcome is now a miracle, cause fuck actual definitions i prayed hard and god doesn’t make mistakes.

 

[DespotCTM]

Go for it. I think beautiful miracles in beauty parlor is a good idea. There’s been several of these cases discussed in this thread alone. You can start with just one or two and I’m sure more will quickly be suggested or posted.

We do have a youtube parents of autistic kids thread (can't link atm) and some of them do have serious medical issues these shitparents exploit somehow none can compare to Gwen in terms of sadism

 

[MirnaMinkoff]

That's why I don't get why the fundie types insist it's a miracle. It's a miracle your kid is alive even though he has 200 seizures a day?

I saw one of the videos. Matthew is entirely floppy and has no reaction to his mother at all. He just lays there. When she kisses his face though, he makes sucking motions with his mouth. So his brain must be very underdeveloped if he still possesses that reflex. Much like Lola's rooting reflex every time something gets close to her face.



The ones that are severely disabled potatoes at least can't feel the shame. Some day the autistic kids will grow up far more damaged than they should have been because their parents kept shoving a camera in their face every time they had a meltdown or did something quirky.

At least Claire and Lola will never know that their mermaid costumes scared children or that their mom constantly blogs about their projectile diarrhea episodes.

In one of her posts the mom mentioned filing out a questionnaire for that scammy for profit place to figure out his developmental age and it was two weeks old - and I find that very optimistic.

Two week old babies I’ve been around got a lot more going on than poor Michael.

I'll do it- might as well have a memorable first topic.


.

Ask the mods to move the posts about Michael on the last two pages to the new thread when you post it.

 

[jurassic bark]

Actually I have cold feet sorry

@Lunatic Fringe

 

[Mrs Paul]

Actually I have cold feet sorry

@Lunatic Fringe

Maybe I'll start it tomorrow, but I don't know a lot of examples, the Hartleys, Jaxon, and now Matthew.

 

[AnOminous]

I was thinking it’s probably pretty easy to haul them around in public for the very reason that neither of them cry or make sounds.

Infants make sounds to express pain or desires. These brainless muppets have no desires and if they experience pain, have no understanding of what expressing it would mean. They have no personalities. They are just things that happen to have human form.

Even newborn babies cry because they're people. These things aren't people.