StasisOne
kiwifarms.net
- Joined
- May 15, 2018
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I am new here. Was a lurker for quite a while and now am getting more informed about these munchers.
I am curious as to what everyones opinion is on officalcassiemnolin (instagram).
So far she claims she has POTS, RSD/CPRS, EDS. She recently posted she had seen an MCAS specialist and awaiting testing. Also has “2 new teams” in the last month. A while back she seemed like she was hoping for a lung problem, frequently mentioning lung function... hasn’t been mentioned since I guess her ‘lung specialist’ didn’t find anything. This was also coincidently around the time some CFers passed away and MF was having difficulty with her health.
She frequents the ER every couple of weeks for infusions and is hoping for a PICC line soon. I noticed when she goes to the ER she brings about half of her couch with her... sorry being sarcastic but she always has a ton of stuff like she is planning on being inpatient or moving in but always ends up going home “thankfully”.
I noticed she usually ends up in the ER before a big event or after a day of fun... kind of like CZ. I would think if she is needing infusions that badly she would at least be going to an infusion center at this point... rather than visiting the ER every other week. We all know how expensive that is. That is something else I wanted to bring up but not be nit picky about - the ER visits seem to be ramping up... she mentioned that her insurance resets and has to make the most out of it. While I realize that is a practical thing to do, I feel like going to the ER on the regular is pretty OTT.
I think some of this probably is going to come off as sounding nit picky but she definitely likes her tools. Has many braces and even a arm splint for wearing when she has IVs. I didn’t know those were a thing for adults during a short ER stay. She seems to like to wear those braces whenever she gets the chance... HKAFO with a knee brace together (I don’t see the purpose of wearing both at the same time), shoulder braces, cervical neck brace, wrist braces, boot(s), etc. Had a freestyle libre for CGM.
Also has a blog and website. She is also launching “Living the Chronic illness life” merchandise next month. Her poor family had to pretend to be excited to wear the “joint relocation team” T-shirt’s for Christmas. Her new number stickers are to remind people how sick and how much attention she needs.
I've never looked into this person you're posting about but a quick skim of her insta sets off all my alarm bells. Sleeveless/spaghetti strap shirts to show off the 800 pain patches even at her wedding (jesus fuck christ the last thing I'd want in my wedding photos is fucking lidocaine patches stuck all over my back), VOG mask, ER selfies, doctor hopping, and wtf is she using a Shiba Inu as a service dog?! Please don't tell me she's using a shiba inu as a service dog.
1) How did her family wear her munch t-shirts with a straight face, is she a new munchie are they just really bad at picking up on it?I am new here. Was a lurker for quite a while and now am getting more informed about these munchers.
I am curious as to what everyones opinion is on officalcassiemnolin (instagram).
So far she claims she has POTS, RSD/CPRS, EDS. She recently posted she had seen an MCAS specialist and awaiting testing. Also has “2 new teams” in the last month. A while back she seemed like she was hoping for a lung problem, frequently mentioning lung function... hasn’t been mentioned since I guess her ‘lung specialist’ didn’t find anything. This was also coincidently around the time some CFers passed away and MF was having difficulty with her health.
She frequents the ER every couple of weeks for infusions and is hoping for a PICC line soon. I noticed when she goes to the ER she brings about half of her couch with her... sorry being sarcastic but she always has a ton of stuff like she is planning on being inpatient or moving in but always ends up going home “thankfully”.
I noticed she usually ends up in the ER before a big event or after a day of fun... kind of like CZ. I would think if she is needing infusions that badly she would at least be going to an infusion center at this point... rather than visiting the ER every other week. We all know how expensive that is. That is something else I wanted to bring up but not be nit picky about - the ER visits seem to be ramping up... she mentioned that her insurance resets and has to make the most out of it. While I realize that is a practical thing to do, I feel like going to the ER on the regular is pretty OTT.
I think some of this probably is going to come off as sounding nit picky but she definitely likes her tools. Has many braces and even a arm splint for wearing when she has IVs. I didn’t know those were a thing for adults during a short ER stay. She seems to like to wear those braces whenever she gets the chance... HKAFO with a knee brace together (I don’t see the purpose of wearing both at the same time), shoulder braces, cervical neck brace, wrist braces, boot(s), etc. Had a freestyle libre for CGM.
Also has a blog and website. She is also launching “Living the Chronic illness life” merchandise next month. Her poor family had to pretend to be excited to wear the “joint relocation team” T-shirt’s for Christmas. Her new number stickers are to remind people how sick and how much attention she needs.
The amount of times I’ve heard that, it’s funny.
It usually means “I was pretty okay at my dolly dinkle studio, but I was improperly trained which of course resulted in injury.”
For someone claiming “career-ending”, she lacks everything anyone who could make a career out of dance has. There’s a lot more than the moves, the little things like hand movement, posture, and head position are very telling of your training.
I literally had to quit halfway through because I started laughing at her posture. If she was 13, I'd be impressed. At this age? Girl, you suck.First post, I normally lurk but damn do I love people claiming both EDS and being a ballet dancer (or worse, when they call themselves ballerinas)
First picture: at least she’s over the box of her pointe shoes. I’ve seen some EDS “ballerinas” who can’t even get over their shoes. No hyperextension to be seen.
Sixth picture: Her hips aren’t square. She’s making up for the lack of flexibility range in her hips by lifting the right one. Arm position isn’t terrible, but looks like a casual dancer mimicking ballet arm positions without actually knowing the position and it’s mechanics.
Second picture about CRPS: GOD her back leg is entirely turned in, her front knee isn’t over her foot, meaning she’s forcing her front foot in that turned out position. Even in something like this lyrical looking piece, ballet technique should exist, especially if you do a fourth position. Or, in her case, a poor mix between a fourth position and some sort of lunge
Now for that video..
Her technique is..pretty bad. She’s doing the steps but missing everything that goes INTO the steps. It’s like someone trying to mimic ballet. I’ll save you all from my excessive sperging, because I could write an essay on everything that was wrong in that. I didn’t even finish it. I saw there was four minutes left and thought “fuck it.” Too boring and technique too bad to make me want to watch any more.
edited because I’m a dumbass
Nobody sane would spend a whole day in the ER if some kind of appointment could be arranged instead. The ER will take, what, an hour to admit you, another 1-2 hours to talk to a doctor, another 1-2 hours for him to call your regular doctor, 2-3 hours for any 15-minute procedure, then another 2 hours to get discharged? That's insane.
I have seen the same thing in other munchie's sob stories, like they were going to go to "an ivy league school," "USA pro figure skating,"or "med school" or whatever is the best school/carreer ever until their tragic POTs occurred and all those dreams were dashed! I'm like girl, give me proof you (mediocre girl from Idaho) made it into Harvard Med or I don't buy it. They seem to have a pathological belief that they are the most special best ever.I've seen quite a few people involved with dance go the Munchie route - I think they do it because they realize they're not all that talented and taking their dance career to a professional level isn't going to happen. Demand for perfection is pretty high in ballet, If you aren't perfect, you're not going to move forward at all. It's also obsessive, the successful ballerinas live ballet 24/7 . Being sick as a hobby gives them something to fill the void.
I should point out that EDS pain is also a localized pain. Especially for hyper mobility type. If you've injured a joint, there's going to be chronic pain there a lot. It's not a whole "abloobloo everything hurts" and more of "that joint I fucked up that one time hurts a lot and I can't walk on it too much."
I should also point out, by the way, that doctors recommend stretching your joints as a physical therapy. The more they can safely stretch without injury, the less damaging any random dislocation will be. While yoga is definitely preferable because of how low impact and low risk it would be, I wouldn't count out someone with EDS taking up ballet, especially if they really enjoy it.
However, ballet puts you at a really high risk of ankle related dislocations. Your knees and especially your hips may benefit from ballet, but your ankles will take one hell of a beating and one wrong landing, you're going down. Sometimes not even from a wrong landing, really. You can stick a perfect landing after a pirouette and your ligaments will decide they won't support it this time and just give out.
Yeah, I probably should have clarified that I meant yoga in a proper setting. One with someone who can help you and teach it to you correctly.That's only partly true. Must doctors tell you NOT to do yoga because most people are doing it incorrectly without help and are likely to tear connective tissue. Dance is similar. It can strengthen and stretch to a degree, but the you couldn't be hardcore about it. It's just not possible with true EDS.
There is always an emotional component with munchausens. Its not just that they can't be the best at whatever, but that they need to feel seen and cared for. And possibly because they want illness to be their identity which is why they don't improve, even when they should.