Community Munchausen's by Internet (Malingerers, Munchies, Spoonies, etc) - Feigning Illnesses for Attention

[Dr. Celery MD]

Don't forget Chronically Court, who says the Gardasil vaccine gave her EDS. She has her own thread here.

 

[chronicallybullshitting]

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Is Jan Jan no longer approved?

I left JanJan out of it as she's discussed on the jaquie thread an awful lot, same for julian van horne AKA thedisabledhippie. I'll edit and add to it as I get chance throughout the night.

 

[rosco996]

Shit was getting boring with no one posting Amanda/Ren’s latest antics. Apparently she has munchied her way to getting IV fluids and hopes she won’t need a port after one infusion.

My other personal favorite is Cassie @officialcassiemnolin.
The only thing she is official about is not being able to brush her own teeth, use her arms, or walk when it’s convenient for her. She gets her bitch husband to carry her around everywhere and she ain’t a small person even though she claims she can’t eat. She also recently munchied her way to a port and threw a “port party” for herself when she got it... complete with balloons and confetti like a 5 year old. I think her next goal is home oxygen for her vague “lung pains” and breathing issues, a service dog, and she’s hoping for a diagnosis of CCI.

 

[Kate Farms Shill]

Shit was getting boring with no one posting Amanda/Ren’s latest antics. Apparently she has munchied her way to getting IV fluids and hopes she won’t need a port after one infusion.

My other personal favorite is Cassie @officialcassiemnolin.
The only thing she is official about is not being able to brush her own teeth, use her arms, or walk when it’s convenient for her. She gets her bitch husband to carry her around everywhere and she ain’t a small person even though she claims she can’t eat. She also recently munchied her way to a port and threw a “port party” for herself when she got it... complete with balloons and confetti like a 5 year old. I think her next goal is home oxygen for her vague “lung pains” and breathing issues, a service dog, and she’s hoping for a diagnosis of CCI.

Cassie's a beautiful mess. She pretends she randomly gets amnesia and gets to fall in love with her husband all over again. Here she is making valentine hearts around her port on her "first access" party.

 

[Tubie Whoobie]

This Dani person is amazing, she's kinda what you'd get if queen Sammie Bushart was into half-heartedly faking illnesses instead of half-heartedly faking pregnancies.

I thought I was the only one who was still interested in Dani. Lolcow moved on from her, but she’s remained a personal cow of mine. She did get boring for a bit, and it’s definitely not like her days of tubing herself at home but the fact that she managed to score herself a GJ tube is insane. I sense things are going to get crazy munchie again. I wonder if she’ll keep trying to munch herself into a MCAS dx, or if it’ll be too difficult for her to pull off.

Unrelated, but her latest picture is pretty popular compared to everything else she has ever posted.

 

[Yutyrannus]

I'm a tad confused about some of the stuff on the NJ timeline. Like, stating the dog being in a headcollar as a point of concern when quite a few legit orgs have started using them, too. Also some points about Hero not having any gear on, even if technically identifying gear is not required under the ADA.

Totally not doubting that NJ's a munch, but some of this seems almost too nitpicky. Astounded at the level of detail though, damn.

NJ has retired Hero now, I think. There's videos of them with a GSD puppy (that they are... already bringing to meetups...)

Edit: Oh, I'm dumb, I didn't notice the actual criticisms vs the documentation was bolded. My bad lol

 

[c6h1206]

EDIT: sorry, Forgot to say this: Julian claims to have progressive demyelinating sensorimotor polyneuropathy.
[/QUOTE]

then why does he repeatedly say "my nerve condition" these people seem to like to use specific terminology bc they like to seem mystifying. that is a bit weird.

I also find it quite curious that he claims his grandma is a zebra. https://www.instagram.com/p/Br5iVcvnD0e/ How many pregnancies did granny have ? Quite coincidentally I saw an article put out by a high risk OB hospital about them treating a woman with EDS during pregnancy and her baby being born full term and healthy. (I will see if I can find it.) Apparently she is a fairly healthy person in terms of her lifestyle, she works and is a productive member of society. But they emphasized how high risk the pregnancy was and went into some explanations why. So how is it if granny is a zebra her pregnancy was no biggy ? if not possibly multiple pregnancies.

also, why the fuck do you get your breasts remove and then carry pink hand bags, wear minnie mouse ears and gravitate toward all these feminine things. sorry does not make sense to me. he was passing better with boobs and low key clothes in Jaq's videos. If someone just wants to be gender queer or androgyny etc then don't cut yourself up. especially when you claim your such a frail little flower.

I think this person just wanted a certain aesthetic for Instagram. I have never heard of someone who was so eager to transition who embarrasses things that makes it harder for them to pass, and makes them come off as a gay man.

I swear his trans - ness is just part of his munschiness. This person is so much worse and more repugnant than Jaq.

 

[Larry David's Opera Cape]

EDIT: sorry, Forgot to say this: Julian claims to have progressive demyelinating sensorimotor polyneuropathy.


then why does he repeatedly say "my nerve condition" these people seem to like to use specific terminology bc they like to seem mystifying. that is a bit weird.

I also find it quite curious that he claims his grandma is a zebra. https://www.instagram.com/p/Br5iVcvnD0e/ How many pregnancies did granny have ? Quite coincidentally I saw an article put out by a high risk OB hospital about them treating a woman with EDS during pregnancy and her baby being born full term and healthy. (I will see if I can find it.) Apparently she is a fairly healthy person in terms of her lifestyle, she works and is a productive member of society. But they emphasized how high risk the pregnancy was and went into some explanations why. So how is it if granny is a zebra her pregnancy was no biggy ? if not possibly multiple pregnancies.

Sounds like you read a case report about EDS IV, the one with the exploding organs and yes, uterine rupture is a huge issue in that one. Type II and hEDS patients are usually fine, though at slightly elevated risk for preterm ROM and postpartum pelvic prolapse issues. There is nothing unusual or remarkable about a woman with one of those more common types of EDS having multiple normal term pregnancies.

Man at this point anyone who really for real has EDS is just completely screwed, aren't they? It's being overdiagnosed because doctors love a good wastebasket diagnosis, and patient advocacy groups are basically driving around and recruiting munchies off the street. People who actually have it are going to be marked as borderline personality fakers too even if they are just normal people with bad joints, pretty soon, as the other doctors get fed up with it all.

 

[c6h1206]

Sounds like you read a case report about EDS IV, the one with the exploding organs and yes, uterine rupture is a huge issue in that one. Type II and hEDS patients are usually fine, though at slightly elevated risk for preterm ROM and postpartum pelvic prolapse issues. There is nothing unusual or remarkable about a woman with one of those more common types of EDS having multiple normal term pregnancies.

Man at this point anyone who really for real has EDS is just completely screwed, aren't they? It's being overdiagnosed because doctors love a good wastebasket diagnosis, and patient advocacy groups are basically driving around and recruiting munchies off the street. People who actually have it are going to be marked as borderline personality fakers too even if they are just normal people with bad joints, pretty soon, as the other doctors get fed up with it all.

it was more of a puff piece or feel good story for the hospital's foundation. it was not geared to an audience with a medical background. I can't find it now. but the hospital is one that would do a high percentage of the high risk pregnancies in the province. this was 2 yrs ago or so that I came across this but I looked up the mom's name on social media and I think the article listed her profession and it said she was an elementary teacher. could be remembering wrong. but I think she had a fairly typical job, and the article did not mention her having a whole other constellation of diseases.

edited to add - when I was trying to find the article I found a referral form for genetics at the same hospital and I found it interesting that the refuse to take referrals for " Adult assessment for Ehlers Danlos syndrome, hypermobility subtype "https://www.hamiltonhealthsciences....ferral-Form-Genetics-and-Metabolics-MCH-1.pdf
to me that says that they recognize that its a waste of the geneticists time and it is certain ppl who are getting there family doctors to make such referrals. which means these ppl prob get sent to rheumatologists in Canada. who blow them off more or less.

 

[Larry David's Opera Cape]

it was more of a puff piece or feel good story for the hospital's foundation. it was not geared to an audience with a medical background. I can't find it now. but the hospital is one that would do a high percentage of the high risk pregnancies in the province. this was 2 yrs ago or so that I came across this but I looked up the mom's name on social media and I think the article listed her profession and it said she was an elementary teacher. could be remembering wrong. but I think she had a fairly typical job, and the article did not mention her having a whole other constellation of diseases.

edited to add - when I was trying to find the article I found a referral form for genetics at the same hospital and I found it interesting that the refuse to take referrals for " Adult assessment for Ehlers Danlos syndrome, hypermobility subtype "https://www.hamiltonhealthsciences....ferral-Form-Genetics-and-Metabolics-MCH-1.pdf
to me that says that they recognize that its a waste of the geneticists time and it is certain ppl who are getting there family doctors to make such referrals. which means these ppl prob get sent to rheumatologists in Canada. who blow them off more or less.

Yeah the University neurologists here have stopped taking POTS and most EDS patients probably because they are already overbooked af and most of these people end up not really having anything going on. It's unfortunate for the people who do have actual neuro issues who have been slapped with that set of labels either rightly or wrongly. But there must be such a flood of patients there's no other option but to cut it off at the source.

 

[c6h1206]

Yeah the University neurologists here have stopped taking POTS and most EDS patients probably because they are already overbooked af and most of these people end up not really having anything going on. It's unfortunate for the people who do have actual neuro issues who have been slapped with that set of labels either rightly or wrongly. But there must be such a flood of patients there's no other option but to cut it off at the source.

something I don't understand at all nor have I tried to look is why would someone with EDS tend to have a form of autonomic neuropathy like gastroparesis ? I don't see pathophysiological overlap.

 

[Larry David's Opera Cape]

something I don't understand at all nor have I tried to look is why would someone with EDS tend to have a form of autonomic neuropathy like gastroparesis ? I don't see pathophysiological overlap.

Short version is that there really isn't one. There are isolated reports in the literature and some over-eager people latched onto those and decided that gastroparesis must be happening because of POTS (which does cause stomach upset, but of the type that just has to do with circulation issues in general) and that everyone with EDS is secretly at risk for it. Like here's a weird case that's out there:

https://www.shmabstracts.com/abstra...sis-in-the-setting-of-ehlers-danlos-syndrome/

Edit: they attribute her MI to hEDS too which is just freaking bizarre.

 

[AT 903]

Sorry if she’s already been discussed but this girl is one to watch.
She does the I'm so sick but - Disney!! like AJ
She’s not approved IF, but has the usual do of EDS gastroparesis and probs others. Forgot which video but even goes on about having ketamine in the hospital like all the other junkies.

 

[BringBackForensicFiles]

Thanks, for the link. so recovery it is even more rare than I thought if the leading expert on munchies took this woman to speak at a major conference.

The issue will always be doctors have to trust patients to tell them what’s wrong or what they are feeling to aid in many diagnoses. If a patient is determined to lie and fake symptoms it puts the doctor it totally negates much of the diagnosis criteria.

There are just a number of conditions that rely almost entirely on self reported symptoms, many diseases of exclusion, and those are the ones munchies love most. Some will go big though and aim for diagnoses that require more effort.

Some power leveling, but I feel it directly relates to this post. I shared my story on IF with having Factitious Disorder and how I’ve been in recovery from it after being confronted and undergoing years of intensive treatment. I follow these threads and contribute as I can because some of these people do the same things I used to do to manipulate tests, fool vitals machines, get admitted, etc and it’s so easy for me to spot. I now having much healthier coping mechanisms, but some of these people absolutely need to be confronted.

Edited to add that I would be happy to answer any questions. I’m not sure if this thread is the appropriate place, but just putting it out there.

 

[rosco996]

Some power leveling, but I feel it directly relates to this post. I shared my story on IF with having Factitious Disorder and how I’ve been in recovery from it after being confronted and undergoing years of intensive treatment. I follow these threads and contribute as I can because some of these people do the same things I used to do to manipulate tests, fool vitals machines, get admitted, etc and it’s so easy for me to spot. I now having much healthier coping mechanisms, but some of these people absolutely need to be confronted.

Edited to add that I would be happy to answer any questions. I’m not sure if this thread is the appropriate place, but just putting it out there.

Legit question... what was your end game or goal with the factitious disorder?
I always wonder why they perpetuate these lies? Does it fulfill something they feel is losing in their life?

And did you believe you were sick or did you realize you were faking or exaggerating?

 

[BringBackForensicFiles]

Legit question... what was your end game or goal with the factitious disorder?
I always wonder why they perpetuate these lies? Does it fulfill something they feel is losing in their life?

And did you believe you were sick or did you realize you were faking or exaggerating?

I didn’t really have an end game, but my goal was to be seen as different in a way that would bring sympathy and attention. Most of my days with Factitious Disorder also correlated directly with being obese at first and I felt like I was just fading into the background, but when I was “sick” I received attention, no one had expectations, etc. When I developed Anorexia it morphed into an identity of being the sickest, getting the most attention, not having to “grow up” and deal with adult issues like getting a full time job, paying bills, etc. I was scared and my goal became to see how often I could be hospitalized and gain that sympathy and care and also practically live in residential treatment where I also got attention and could garner sympathy and ignore my adult life. I’ve always had low self-esteem and for some reason that medical and psychiatric attention made me feel good. I had an ideal childhood with loving parents, no trauma or abuse, and I got lots of love and attention from them, but I still felt horrible about myself. I also remember in kindergarten being jealous of this girl in a wheelchair because she got special attention (got to lead the line, rest). I was only 6 and somehow knew at that time that those feelings weren’t normal. I never wanted any financial gain or anything from faking illnesses, and I never did it to feel smarter than the doctors or anything like that. I just felt important and safe and comfortable when in the hospital and that feeling grew into full blown Munchausens by the time I was 11 or 12.

I absolutely 100% knew I was faking illnesses and exaggerating any symptoms/complications. I knew I wasn’t sick, but knew how to make myself look like I was by manipulating vitals machines and taking certain things to throw off my bloodwork. I even studied and read Dr. Felderman’s books at one point so I knew what to avoid to be suspected (I never used medical jargon and would at first decline invasive tests, but later agree as I made myself worse). I did unimaginable things to my body in order to be admitted and when it felt like physically I looked suspicious I would turn to psychiatric issues. All fabricated.

 

[Otterly]

taking certain things to throw off my bloodwork

Wow. Could I ask you to expand on that?

Very interesting and thank you for sharing it, it can’t be easy to stop this kind of behaviour so kudos to you.

Can I ask a couple of questions?

what was the trigger for you stopping?
What kind of therapy have you had?
Do you have any permanent damage?

 

[Speakeasy Electric]

unimaginable things to my body in order to be admitted and when it felt like physically I looked suspicious I would turn to psychiatric issues. All fabricated.

Do you have any psychiatric diagnosis’s now? Do you take any medication psychiatric or not?

What illnesses did you fake and what “unimaginable things” to your body did you do?

What does the “recovery” path look like? What kind of therapy? Are you still depenant on your parents?

Were you actively on social media with the faking?

 

[BringBackForensicFiles]

Wow. Could I ask you to expand on that?

Very interesting and thank you for sharing it, it can’t be easy to stop this kind of behaviour so kudos to you.

Can I ask a couple of questions?

what was the trigger for you stopping?
What kind of therapy have you had?
Do you have any permanent damage?

I know a lot of the people we discuss read here, so I don’t want to go in to specifics, but I found OTC supplements that drastically drop your potassium and I would take a bunch of those to screw up my electrolytes. Potassium can cause cardiac issues so I’d always be admitted on a heart monitor.

1. I was caught and confronted during a hospitalization regarding my kidneys that some tests came back that they specifically ran to see if I was doing this to myself and they came back indisputable that I was. They confronted me with the resident whom I trusted and the psychiatrist in a gentle, but firm manner. I was able to admit and felt much better for it. I was angry for awhile and tried to deny it, but they presented the evidence and helped walk me through to admitting it.

2. I did individual intensive DBT and CBT and for a few months I did outpatient IOP for patients with BPD. I also kept thought logs and urge logs for urges to go to the hospital. I also made a contract with my PCP and therapist about steps to take if I truly was feeling sick. Having steps and organization really helped me be able to know what to do if I was having urges and what to expect if I was truly sick.

3. From taking so many supplements my metabolism is a bit screwed up, but mostly those same supplements destroyed my intestines and I now live with an ostomy, which I was thrilled about at the time, but despise now.

Do you have any psychiatric diagnosis’s now? Do you take any medication psychiatric or not?

What illnesses did you fake and what “unimaginable things” to your body did you do?

What does the “recovery” path look like? What kind of therapy? Are you still depenant on your parents?

Were you actively on social media with the faking?

I am diagnosed with OCD and all my providers know I have a history of Anorexia and Factitious Disorder. I take Prozac, which has been very helpful with the OCD and urges.

I don’t want to give the people whom we discuss here who also read here too many ideas, but in college I took a bacterial culture from science lab that we had grown to test antibiotics and ingested a few of the strep colonies that had grown to make myself sick. Just one of many examples.

I did intensive individual DBT and CBT along with thought and urge records. I also did IOP for people with BPD for a few months. I have a plan in place for if I get sick and all my providers and my medical records indicate I have a history of Factitious Disorder. I still use that plan to this day even though I haven’t engaged in over 5 years.

I’m not dependent on my parents. I live in my own apartment, have a full time professional job, am dating, and living a normal life.
I always have to be aware of urges that crop up, but I now have a real life and strong skills to help me cope.

 

[Speakeasy Electric]

I know a lot of the people we discuss read here, so I don’t want to go in to specifics, but I found OTC supplements that drastically drop your potassium and I would take a bunch of those 3. From taking so many supplements my metabolism is a bit screwed up, but mostly those same supplements destroyed my intestines and I now live with an , ostomy which I was thrilled about at the time, but despise now.

Diuretics/laxatives are the only thing I can think of realisticly that would drop your potassium level quickly.

I am diagnosed with OCD and all my providers know I have a history of Anorexia and Factitious Disorder. I take Prozac, which has been very helpful with the OCD and urges.

I don’t want to give the people whom we discuss here too many ideas

You won’t. Where there’s a will there’s a way, be transparent.

I always have to be aware of urges that crop up, but I now have a real life and strong skills to help me cope.

Do you engage in or have the urge to engage in other attention seeking behavior?

Were you actively on social media with the faking?