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In so much pain you're throwing up, and all they give you is a heating pad? HAHAHAHA they're onto you and your drug seeking. The nurses know you're full of shit.Tubby's back in the hospital for another feeding tube site infection, forcing a "drop foot" look, and pissed they won't give her painkillers.
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No need to watch it. Judd is keeping Harlow. Service dogs enjoy going outside (like all dogs) Judd will bring her out. Harlow lay on Jaq when she was fyi g and started crying. Everyone cried, the nurses cried, sure Jan. (Oh that works perfect here). Harlow also comforted janjan when she was crying (like all dogs do but I think she's trying to make it seem special like her last video of Orion "alerting")
New Jan video about Harlow. I haven’t watched yet and can’t archive so if it’s something she might delete someone might want to grab it.
Damn, well if Jaquie death story happens before Friday someone else is going to have to archive because I won’t have reliable internet. Not that I have any faith in Jan giving us new details but the histrionics will be grand.No need to watch it. Judd is keeping Harlow. Service dogs enjoy going outside (like all dogs) Judd will bring her out. Harlow lay on Jaq when she was fyi g and started crying. Everyone cried, the nurses cried, sure Jan. (Oh that works perfect here). Harlow also comforted janjan when she was crying (like all dogs do but I think she's trying to make it seem special like her last video of Orion "alerting")
All in all very boring but she hints at a Jaq death story time, stay tuned
I don't mind giving it a go but I've only ever used archive for text on a site not video. Any chance you can dm me instructions?Damn, well if Jaquie death story happens before Friday someone else is going to have to archive because I won’t have reliable internet. Not that I have any faith in Jan giving us new details but the histrionics will be grand.
Meh, you're not missing much. It's a bunch of old news. It was filmed two and a half weeks after Jaq's death when she was still at Judd's house. It was typical Jan bullshit. Lots of narcissism, lots of self deprecation ("everyone's telling me I'm going above and beyond but I feel like I'm not doing enough"), talk about Harlow. She claims Jaquie had Harlow trained in a way that she only listened to Jaq and not anyone else which sounds like a pile of bullshit.
New Jan video about Harlow. I haven’t watched yet and can’t archive so if it’s something she might delete someone might want to grab it.
I just want to say, her editing fucking sucks. So do her attempts to explain things. She chops clips up, puts them out of order. Just a pain in the ass to watch. I do want to keep watching this train wreck on the R.R. Narcissism though.Meh, you're not missing much. It's a bunch of old news. It was filmed two and a half weeks after Jaq's death when she was still at Judd's house. It was typical Jan bullshit. Lots of narcissism, lots of self deprecation ("everyone's telling me I'm going above and beyond but I feel like I'm not doing enough"), talk about Harlow. She claims Jaquie had Harlow trained in a way that she only listened to Jaq and not anyone else which sounds like a pile of bullshit.
What happened to her grief vlogs? I'm guessing she doesn't have material since Judd, Jaq's mom, and Jaq's friends fucked her off back to Orlando.
I bring you u/liquidcatz.
Narcolepsy without cataplexy "diagnosed without a sleep study"
A month before, they were asking if adderall helped with ADD
r/Narcolepsy - Do stimulants like Adderall work for people with ADD?
4 votes and 14 comments so far on Redditwww.reddit.com
In other news, Jan Jan's new video about service dog alerts has taught me that my cat is a service animal. It sometimes shows an interest in me when I am expressing emotions and is therefore clearly alerting and attempting to provide DPT from an aloof distance. I'm going to order it a neon vest, hire someone to put the vest on it, and go tell my doctor to say I've got POTS so I can start a YouTube channel.
I’m new here, couldn’t deal with the coddling over on IF sub, been lurking for awhile, blah blah blah x infinity. If I fuck up please tell me and I will happily get back in line.
I’ve read the basics, but is there any “rule” for bringing someone up for discussion? Bc I am pretty damn tired of a new InstaFame hungry pseudo sick chick Tube Fed Traveler claiming the well known trifecta of illnesses and working HARD for the new queen spoonie title. And I need to bitch about it.
She frequently mentions the needle that “stabs” her in “ her heart” (someone doesn’t know how a port works) that she desperately needs to keep her from dying of POTS. Was Featured on Claire Wineland’s Foundation IG page which is the most aspirational reach of a warrior spoonie ever- conveniently wearing a shirt that says something about how she’s trying not to die over here. Also publicly started selling her own “merch” (put that word in quotes as it’s random partial sentences slapped on stuff) to fund her cross country RV trip bc her disability claim is taking too long. (I kid you not.) Ironically enough intersected with Julian briefly, used him for his followers & heavily promoted her own sexuality, only to dump him shortly thereafter. Most recently she’s been giving loads of disabled sex tips so if you are currently dying from GP and POTS head on over to her IG to learn about how to have sex with a disability. Teens seem to eat it up. For someone who has been sick 1 year, she’s made a lot of progress on her illness faking ladder climbing, and gained access into the network of acclaimed USA east coast docs, both concierge and regular, who are passed around like candy among this set.
Anyone else noticing this one? I left out loads but since it’s my first post decided to cool my jets.
No need to watch it. Judd is keeping Harlow. Service dogs enjoy going outside (like all dogs) Judd will bring her out. Harlow lay on Jaq when she was fyi g and started crying. Everyone cried, the nurses cried, sure Jan. (Oh that works perfect here). Harlow also comforted janjan when she was crying (like all dogs do but I think she's trying to make it seem special like her last video of Orion "alerting")
All in all very boring but she hints at a Jaq death story time, stay tuned
You need to post links to this munchie’s IG and attaching photos helps a great deal too.
Ok got the real obvious reply to my first post saying links/pics help. Here we go. Redone with links & pics:
IG of tubfedtraveler
This is an InstaFame seeker called the Tube Fed Traveler. She came on the scene less than a year ago, and went straight for the big guns. A few mo of GP? Def need a nose hose. That wasn’t cute enough so then upgraded to a feeding tube. Of course was a huge fan of Kate Farms. She quickly started forming alliances (errr friendships) with larger CI accounts and tagging them into her posts.
This is the Etsy Shop where she sells $4 postcards where you literally tell her what you want her to write you:
Etsy Shop
Imgur Album of Etsy Shop
She frequently mentions the needle that “stabs” her in “ her heart” (someone clearly doesn’t know how a port works) which she desperately needs to keep her from dying of POTS. Filters the fuck out of her photos to highlight every single bruise, needle prick, port site, etc.
TFT Battle Scars
Can ONLY get hydration through her daily saline infusions through her port, yet conveniently can drink wine (or some liquid out of a wine glass) just fine.
TFT Drinking Orally
Was Featured on Claire Wineland’s Foundation IG page which is the most aspirational reach of a warrior spoonie ever- where she alludes her illness is as severe as a CF-er and it takes all she can to survive each day:
Imgur Album of Claire Wineland Aspiration
Publicly started selling her own “merch” (put that word in quotes as it’s random partial sentences slapped on stuff) to fund her cross country RV trip bc her disability claim is taking too long. (I kid you not.) What seems brazen about this is that everything appears to be under her name. If you’re healthy enough to travel the country living out of a van, without frequent regular access to Healthcare, not quite sure why SSI would approve your disability claim. (Have no details re what type of disability she’s referring to, just said SSI bc of her age.)
IMGUR Album: Post + Merch
Ironically enough intersected with Julian briefly, used him for his followers & heavily promoted her own sexuality, only to dump him shortly thereafter. Didn’t get any evidence of that but it was entertaining to watch her strategically target him.
Most recently she’s been giving loads of disabled sex tips so if you are currently dying from GP and POTS head on over to her IG to learn about how to have sex with a disability. Teens seem to eat it up. Her answer is almost always MMJ.
TFT Disabled Sex Tips
Started some hug box group (set to private) on FB for “fans” to interact with her that she frequently posts screen shots of their raving compliments re her existence on her instagram stories (yet it’s supposed to be a safe space and set to private.) Didn’t post that here but isn’t hard to find.
For someone who has been sick 1 year, she’s made a lot of progress on her illness faking ladder climbing, and gained access into the network of acclaimed USA east coast docs, both concierge and regular, who are passed around like candy among this set.
Anyone else noticing this one?
Although she is fairly keen to therapeutavise tins of revolting stinkyfish.
She’s definitely on my watch list. Supposedly diagnosed with EDS by Cleveland Clinic, but then immediately needs all the toobz. Doing a back bend on the beach, and visiting all the other munchies.. Definitely interesting. Even if she does have legitimate issues, she’s created an entire “sickstagram” that revolves only around her health. Way, way OTT at very least. I did notice she has exactly the same color scheme as Julian in recent months. Did she go travel to see him or something? How do you know they intersect and then she dropped him?Ok got the real obvious reply to my first post saying links/pics help. Here we go. Redone with links & pics:
IG of tubfedtraveler
This is an InstaFame seeker called the Tube Fed Traveler. She came on the scene less than a year ago, and went straight for the big guns. A few mo of GP? Def need a nose hose. That wasn’t cute enough so then upgraded to a feeding tube. Of course was a huge fan of Kate Farms. She quickly started forming alliances (errr friendships) with larger CI accounts and tagging them into her posts.
This is the Etsy Shop where she sells $4 postcards where you literally tell her what you want her to write you:
Etsy Shop
Imgur Album of Etsy Shop
She frequently mentions the needle that “stabs” her in “ her heart” (someone clearly doesn’t know how a port works) which she desperately needs to keep her from dying of POTS. Filters the fuck out of her photos to highlight every single bruise, needle prick, port site, etc.
TFT Battle Scars
Can ONLY get hydration through her daily saline infusions through her port, yet conveniently can drink wine (or some liquid out of a wine glass) just fine.
TFT Drinking Orally
Was Featured on Claire Wineland’s Foundation IG page which is the most aspirational reach of a warrior spoonie ever- where she alludes her illness is as severe as a CF-er and it takes all she can to survive each day:
Imgur Album of Claire Wineland Aspiration
Publicly started selling her own “merch” (put that word in quotes as it’s random partial sentences slapped on stuff) to fund her cross country RV trip bc her disability claim is taking too long. (I kid you not.) What seems brazen about this is that everything appears to be under her name. If you’re healthy enough to travel the country living out of a van, without frequent regular access to Healthcare, not quite sure why SSI would approve your disability claim. (Have no details re what type of disability she’s referring to, just said SSI bc of her age.)
IMGUR Album: Post + Merch
Ironically enough intersected with Julian briefly, used him for his followers & heavily promoted her own sexuality, only to dump him shortly thereafter. Didn’t get any evidence of that but it was entertaining to watch her strategically target him.
Most recently she’s been giving loads of disabled sex tips so if you are currently dying from GP and POTS head on over to her IG to learn about how to have sex with a disability. Teens seem to eat it up. Her answer is almost always MMJ.
TFT Disabled Sex Tips
Started some hug box group (set to private) on FB for “fans” to interact with her that she frequently posts screen shots of their raving compliments re her existence on her instagram stories (yet it’s supposed to be a safe space and set to private.) Didn’t post that here but isn’t hard to find.
For someone who has been sick 1 year, she’s made a lot of progress on her illness faking ladder climbing, and gained access into the network of acclaimed USA east coast docs, both concierge and regular, who are passed around like candy among this set.
Anyone else noticing this one?
Pse
She’s definitely on my watch list. Supposedly diagnosed with EDS by Cleveland Clinic, but then immediately needs all the toobz. Doing a back bend on the beach, and visiting all the other munchies.. Definitely interesting. Even if she does have legitimate issues, she’s created an entire “sickstagram” that revolves only around her health. Way, way OTT at very least. I did notice she has exactly the same color scheme as Julian in recent months. Did she go travel to see him or something? How do you know they intersect and then she dropped him?