Community Munchausen's by Internet (Malingerers, Munchies, Spoonies, etc) - Feigning Illnesses for Attention

[tuscangarder]

I had a relative that was munchie by junkie for a short time. They had surgery. They acquired sepsis. Everyone was like what? How? Extreme fevers. Person acting like they dont know what is going on. Then they acquired fungal sepsis. This is even more dangerous than bacterial. It can also cause blindness. . They ended up repeatdly getting sepsis. I'm over here thinking they must have AIDs. Then the doctors notice some white shit around her picc. She was hiding the pain pills in her mouth and then crushing them up and using a flushing syringe a nurse left lying around to put it in herself. The doctors had to have a babysitter in the room with her 24.7 after they figured it out.

The weird part was the relative acted like she had no clue why she kept getting infections. I think it was half junkie half suicidal. The level of WTF when I found out the truth was to a level I've never felt since then. I was kind of mad. Had me over here bringing her ice cream thinking she's going to die from natural causes.

She healed and was never munchies since.

People in this thread keep say saying sepsis patients often aren't conscious. She was. Only time she wasn't all there was during the deadly fever moments, when your brain starts to cook itself. But even then she was still semi-conscious. Death by sepsis is probably rather unpleasant. I would assume it is like having an extreme flu.

 

[Xrinxo910]

Introductory post for @beyond.bendy AKA Olivia, a 22 year old woman from Denmark, claiming HDS as well as a plethora of other conditions. Part 1 [my computer can't handle this many pics at a time]

Spoiler: caps

Her oldest post (13 Nov 2017) giving a summary of her conditions






Medical porn


Chronic illness guilt




Medical equipment posing




Talks about her previous health



Health update

Talks about clearing out her account

2017 reflection


Using "boom and bust pattern" to explain her deterioration

Increasing prevalence of mobility aids on her feed





Wheelchair posing

Using treatment beads AKA an encouragement method for sick kids



Hospital scare

Hospital update



Another intro post



Another HDS awareness post....and first mention of her shop

 

[thirsttrap12345]

I have a hard time believing that Cleveland Clinic, well known for complex motility Disorders (although that may be more pediatric) would not only dx GP, but put a tube in for only 14% delayed emptying. (“Normal” is somewhere around 10% - source is NIH.) I am surprised that Motility specialists find 14% to be alarming. So alarming that absolutely no other interventions for symptoms would be tried for a period of time? Is my information off base?

But that aside, the degree of OTT in this post is off the charts. I assure you no doctor would say you were dying from a 4% variation in gastric emptying time.

Context: TFT has seemed to have “outed” herself for having mild GP, but not sure what prompted this- maybe someone has receipts and she’s trying to get ahead of it? Many of her besties are also posting about their GP. Echooooo chamberrrrr.

 

[Xrinxo910]

@beyond.bendy PART 2

Spoiler: caps

Diagnosis anniversary post






Proof post of signs














More medical history



Current health update


Talking about "spoonie culture"




Pre-illness life




Bringing in image descriptions - does this for most posts from here forward



Talking about disabled people as inspiration porn



Discussion of autism diagnosis






Powerchair and dysautonomia discussion





Triggered by a doctor



Home hospital bed time!



Health update, talks about going international for treatment options




Mental health downturn


Dysautonomia posting





ED/Mental health discussion



Yet another intro post




CCI diagnosis and treatment update




Face blindness



More CCI discussion


Being valid as a sick person




Crowdfunding international surgery


Yet another intro post



BSC diagnosis




Medical posting


Envy of sick friends



Self-improvement goals

 

[Daughter of Cernunnos]

re: beyond bendy. She's like a walking anti-social democracy argument. She seems like she has a good heart but I think she is doing this because she doesn't know what to do with her life with school and a job. Her mum seems skeptical and no nonsense. Good on mum. She repeats a narrative of fearing being a burden a lot. She is making her fears come true by getting tons of mobility devices that she doesn't need. The average food stamp user that Americans fuss over is a damn bargain for the state compared to her.
edit: Above response was to the first image dump. She really let her entitled bratness shine bright when she became an intersectional feminist and got really into the chronic illness crap. the craniocervical instability thing I've seen in munchie people before. The woman who did the CFS documentary Unrest now claims she is cured and she actually had cranioblabla. There are hardly any surgeons in the world that do these "stabilization" surgeries and these upright MRIs. If these special MRIs could detect brain problems normal ones couldn't, why does nowhere have them?

 

[Xrinxo910]

P3 @beyond.bendy

Spoiler: caps

Surgery talk

That's all for now folks, still need to scrape her story highlights + other social media before i move onto the GF

 

[Otterly]

a! Well whaddayaknow, she was one of the ones I was looking at. The stretch marks are hilarious - kid, wait till youve had a couple of kids, then you’ll look back on that smooth skin fondly.

She has a go fund me https://web.archive.org/web/20190613072721/https://www.gofundme.com/f/lifeforolivia

Ex ballet dancer? Check
Claims CCI? Check
Sadly will never be able to work? Yup, check.
There were better MRI pics on but they seem to have gone...

Danish government won’t fund surgery? Aye right. Of course they would, this is a country with excellent healthcare, that’s why you pay those eye watering taxes. I must dig around this Spanish doc she wants to see, and see what his deal is.

There’s also another Instagram, can someone archive it ? https://instagram.com/oliviamagdelaine?igshid=1gnr11req70jo

 

[Underestimated Nutria]

Really loving the image self descriptions: they really let you know what the Munchie wants you to be attending to and removes all doubt that it's just maybe them living their regular lives.

 

[Xrinxo910]

P4 (and final) of @beyond.bendy - this is her IG highlights, tellonym etc. She has a ridiculous amount of highlights (like 15+ different ones) so I just grabbed the actual interesting stuff. She's got a whole highlight dedicated to decorating and DIYing her chair, but it's not overly interesting.

Spoiler: caps

 

[Otterly]

‘Don’t mention my munchie account to my family!’ I wonder why....

 

[Xrinxo910]

unexpected P5 for @beyond.bendy - tellonyms i forgot to upload, ss of her GFM and caps of her personal account - @oliviamagdelaine. only capped the relevant pics of her personal acct cos there's a fair bit of nature pics, art etc not relevant for discussion

current bio for @beyond.bendy + SS of the link in her bio

Spoiler: caps

Merch offerings




Caps of her fundraising insta (@lifeforolivia)





Misc tellonyms - she gets into an ongoing war with some people about HDS/EDS classifications but it's some boring ass circular shit




relevant caps from her non-illness acct - @oliviamagdelaine





























current bio for @oliviamagdelaine



GFM caps

 

[Xrinxo910]

one final post from me today (sorry for spam) - catalogue of @beyond.bendy 's girlfriend, @amelioratingmylife. Amelia is an Australian woman in her early 20s (can't find a cap with her exact age) who primarily claims FND, anxiety, as well as other conditions.

Spoiler: caps

Cap of her current bio


Her account was primarily vegan food porn, followed by this post

Misc tellonym caps

GFM Caps


Facebook caps


IG stories - like her gf, she has a ton of insta highlights. capped the relevant/interesting ones

 

[Miss Misery]

@Xrinxo910, could you please edit your beyond.bendy posts to put all of those caps behind a spoiler?

She's definitely a prime munchie and the capping and recapping on your part is much appreciated, but all of the scrolling is exacerbating my carpal tunnel and the stress and pain are going to put me in the hospital where I'll likely die from MRSA and Benadryl overdose.

 

[Xrinxo910]

@Xrinxo910, could you please edit your beyond.bendy posts to put all of those caps behind a spoiler?

She's definitely a prime munchie and the capping and recapping on your part is much appreciated, but all of the scrolling is exacerbating my carpal tunnel and the stress and pain are going to put me in the hospital where I'll likely die from MRSA and Benadryl overdose.

Hardcore agree but I can’t figure out spoiler tags! Can you please explain/tell me where to find info and I’ll fix?

 

[Miss Misery]

Hardcore agree but I can’t figure out spoiler tags! Can you please explain/tell me where to find info and I’ll fix?

Click insert spoiler (not inline spoiler), type what you want the spoiler to read. Or you can just type the BB code tags.

Put your content in between the [SPOILER="YOUR WORDS HERE"] and [/SPOILER] tags.

For now just put everything behind a simple spoiler so the page loads correctly. Then you can edit each post if you wanna get fancy with it. :)

 

[Otterly]

Seizing for six hours a day... gosh she looks well on it.
If you seize for 30mins plus it’s a life threatening emergency. Seixong sox hour’s in day would result in serious, life changing brain damage. I see later on she says her seizures are psychogenic. So she’s not actually seizing, it’s, well, psychogenic. But not faking! Oh no.

I wonder how much she’s cost the health system this year? Oh and doTERRA! MLM shill as well. This one is good cow material.

 

[chronicallybullshitting]

@Xrinxo910, could you please edit your beyond.bendy posts to put all of those caps behind a spoiler?

She's definitely a prime munchie and the capping and recapping on your part is much appreciated, but all of the scrolling is exacerbating my carpal tunnel and the stress and pain are going to put me in the hospital where I'll likely die from MRSA and Benadryl overdose.

I thought I was the only one with terminal carpal tunnel! You’re a liar! I am the only special snowflake spoonie here! I see your IV benny overdose and raise you diamorphine & oxycodone.

Anyway, I completely agree she’s a prime munchie, and the one thing that stuck out most to me while scrolling through the shitstorm was “don’t share my account, I don’t tell my family about this account” and all the sperging about self treatment and self cathetising, that’s fucked.

Also @Otterly, if they were seizing for more than 30 minutes or having multiple seizures in front of a medical professional they’d be put into an induced coma while they scan the brain & do tests to prevent any potential or further brain damage,

I honestly believe she’s 100% telling the truth, like all super special spoonies, they don’t tell lies at all

 

[Miss Misery]

I thought I was the only one with terminal carpal tunnel! You’re a liar! I am the only special snowflake spoonie here! I see your IV benny overdose and raise you diamorphine & oxycodone.

Anyway, I completely agree she’s a prime munchie, and the one thing that stuck out most to me while scrolling through the shitstorm was “don’t share my account, I don’t tell my family about this account” and all the sperging about self treatment and self cathetising, that’s fucked.

Oxycodone? I see you've played munchie/spoonie before!

So she's 20 years old, she's disabled, I assume she doesn't work... does she still live at home?

If so, wouldn't her parents know about her bullshit and if they don't - why?

And if not, how is she soooooo chronically ill but able to care for herself?

 

[Xrinxo910]

Oxycodone? I see you've played munchie/spoonie before!

So she's 20 years old, she's disabled, I assume she doesn't work... does she still live at home?

If so, wouldn't her parents know about her bullshit and if they don't - why?

And if not, how is she soooooo chronically ill but able to care for herself?

In one of her Tellonyms (not sure if I capped that specific one) she said she lived with her mother and sister and paid 1/3 of rent. Read literally all of her posts and no mention of a job, so bit of a head scratcher there.

 

[pathetic-aesthetic]

Does anyone know much about intracranial hypertension or pseudotumor cerebri?
Opinions on whether this is something people fake or a diagnosis munchies ever chase? Has anyone ever seen this one faked?

Spoiler: why do I ask

Curious because of a saga I watched that included no less than 6 brain surgeries, shunts, infections and lots of drama. I doubted a couple times because it was so extreme. I could just be a jerk, tbh.

Hey so I am new to the forum and just happened to come across this post when looking for munchie stuff but I know a lot about this condition. Typically, idiopathic intracranial hypertension/pseudotumor cerebri is first discovered during an eye exam after a patient realizes their vision has gotten worse and they're getting headaches. During the eye exam, if the ophthalmologist sees the patient's optic nerves are swollen (papilledema) it is recommended for them to see a neuro-ophthalmologist (a doctor who is specialized in the connection between the eyes and brain - optic nerves) and a neurologist for further testing. The condition is diagnosed after multiple eye exam tests, an MRI, and/or a lumbar puncture, but sometimes people are diagnosed before the lumbar puncture.

A common medication to treat this condition is Acetazolamide. This medication is not meant to be taken long term. Usually, IIH can be improved with a few months of medication (it acts as an off-label diuretic to relieve the pressure caused by the high volume of CSF). It is also suggested that the patient lose a minimum of 10% of their body weight *along* with the use of the medication. It is still not known why people get this condition (hence why it is called 'idiopathic') but some researchers think it may be connected to the overproduction of estrogen. It is a rare (and often times not severe enough to be life-threatening) disease so there isn't a whole lot research being funded for it. There is a small number of people who get the condition as a side effect of a drug called tetracycline (an antibiotic) but that is not the typical case.

The condition is real and does have the potential to cause serious health problems, especially in those with other medical conditions that have to do with inflammation, such as lupus. This can lead to more extreme symptoms.

Sometimes, unfortunately, the patient getting lumbar punctures, medication, and weight loss (when patients actually are actually losing weight rather than expecting the medication to do all the work for them) is not enough. This is when people get surgeries such as a shunt to drain CSF from the brain. I think it is also important for me to mention that not only young, overweight women get the condition - men, older people, and people with a healthy BMI can also be affected. However, most of the people I do see affected are young, overweight women.

This condition is absolutely one that can be chased and faked by munchies. I am surprised that more don't, to be honest, maybe it's because they haven't heard about it before. It could also be because the disease is a hard diagnosis, meaning there is no "maybe it is idiopathic intracranial hypertension, you are borderline and have some symptoms" like there is for hEDS, fibromyalgia, etc. You either have it or you do not, it can be seen and measured through medical testing which has numerical values. Also, since it can often go into remission due to minor weight loss, a lot of munchies probably wouldn't bother adding it to their diagnosis arsenal simply because they want medication and surgeries to treat their "diagnoses" as opposed to something simple like eating a bit less and moving a bit more.

If anyone has any questions about IIH/pseudotumor, feel free to ask me and I can answer to the best of my ability.

Edit: grammar