iluvmylife
kiwifarms.net
- Joined
- Jun 27, 2019
Community Munchausen's by Internet (Malingerers, Munchies, Spoonies, etc) - Feigning Illnesses for Attention
- Thread starter Petronella
- Start date
fweeper
kiwifarms.net
- Joined
- Jul 18, 2019
Please, someone, help me understand! I'm sure there's two sides to this chick's story, but WHY place a feeding tube in an obese bulemic patient? If this is a G or a GJ tube, wouldn't this encourage purging?
Why/how is she developing PE's? She looks pretty young. Maybe complications secondary to surgery?
These munchies are great at fishing.
Why/how is she developing PE's? She looks pretty young. Maybe complications secondary to surgery?
These munchies are great at fishing.
- Joined
- Feb 21, 2018
Something different now: Jennifer Wohlenberg and her three spoonie daughters, because we simply do not have enough munchausen by proxy by internet in this thread.
Jenn Wohlenberg is a MBP horror-mom living in the Greater LA area with her husband and three adult daughters. She is sometimes discussed in the Susan Schofield-Cabana thread, but not in much detail. ICYMI the Schofields are a wholly depressing psychiatric MBP case where bipolar parents and later a likely sexual predator stepparent abused and trained their children to act “psychotic,” doctor shopped to get schizophrenia dx’s, and then chemically lobotomized their kids over a decade. Older child Jani (17) could barely write her name and Bodhi (11) was practically non-verbal when CPS swooped in and took them away in February after Dr. Phil got involved. Now the kids are in foster/group home care and mostly off their meds. Jani no longer believes she ever had schizophrenia and refuses to see her mother.
Jenn was friends with the Schofields and used to claim her two older daughters, Brenna and Ailish, had severe psychiatric conditions including childhood onset schizophrenia. Here’s an article from 2010 describing the girls’ mental illnesses. Brenna was sent to residential treatment around this time and later to the Devereaux Cleo Wallace facility. Ailish allegedly tried to kill herself when she was six. She, too, was sent to residential treatment in her teens.
This video from 2010 shows two children who were trained from birth to act crazy so mom could have attention as the suffering caregiver of two mentally disturbed kids. Unfortunately in the wake of Jani and Bodhi being pulled from their parents, a lot of the videos of other children in their orbit were removed and this is the only video I could find of them.
Jenn has since completely dropped any psych claims, purged her blog, and has moved on to physical ailments. Now she includes youngest daughter Keiran in the fun. The girls' health declines coincided with them graduating high school and becoming adults. All three kids are on disability and conditioned to believe they're too disabled to do anything with their lives. They have no practical skills and are completely dependent on Mom.
Jenn also claims to have a mile-long list of health complications herself, mainly lupus but also myasthenia gravis, Sjogren. Raynauds, migraines, and fibromyalgia, amongst others.
According to insiders, after that Gypsy Rose Blanchard show "The Act," Ailish began to believe her mother had MBP and she was not actually sick. She stopped playing along and subsequently mom stopped talking to/about her. I don’t know how true this is and Jenn’s bio still says she has three chronic adult kids.
Brenna is a genderspecial who goes by Noah and they/them pronouns as of 2015. Kieran briefly decided she wanted to be called Celiene but apparently it didn’t stick.
Jenn’s whole insta was boring suburban mom stuff for a year or more - pancake breakfasts, swim meets, running, recipes, vacations. Suddenly in August 2013, she's got IV lines in and is tagging #lupus and #lupussucks.
Looks like all of them are NEETs now and very little is on the horizon for them except more tests and unnecessary procedures. I don't know if this is a case where there's a grain of truth in the claims but they're blown out of proportion, or if Jenn is spiking their infusions to make them sick, or just plain old conditioning them to act a certain way until it becomes psychosomatic. Also can't confirm Ailish has really accused her mother of MBP. Still, an interesting case in what happens when a mom wants to be famous for bravely suffering through adversity and has three young dependents to manipulate.
edit: format fuckery
Jenn Wohlenberg is a MBP horror-mom living in the Greater LA area with her husband and three adult daughters. She is sometimes discussed in the Susan Schofield-Cabana thread, but not in much detail. ICYMI the Schofields are a wholly depressing psychiatric MBP case where bipolar parents and later a likely sexual predator stepparent abused and trained their children to act “psychotic,” doctor shopped to get schizophrenia dx’s, and then chemically lobotomized their kids over a decade. Older child Jani (17) could barely write her name and Bodhi (11) was practically non-verbal when CPS swooped in and took them away in February after Dr. Phil got involved. Now the kids are in foster/group home care and mostly off their meds. Jani no longer believes she ever had schizophrenia and refuses to see her mother.
Jenn was friends with the Schofields and used to claim her two older daughters, Brenna and Ailish, had severe psychiatric conditions including childhood onset schizophrenia. Here’s an article from 2010 describing the girls’ mental illnesses. Brenna was sent to residential treatment around this time and later to the Devereaux Cleo Wallace facility. Ailish allegedly tried to kill herself when she was six. She, too, was sent to residential treatment in her teens.
This video from 2010 shows two children who were trained from birth to act crazy so mom could have attention as the suffering caregiver of two mentally disturbed kids. Unfortunately in the wake of Jani and Bodhi being pulled from their parents, a lot of the videos of other children in their orbit were removed and this is the only video I could find of them.
Jenn has since completely dropped any psych claims, purged her blog, and has moved on to physical ailments. Now she includes youngest daughter Keiran in the fun. The girls' health declines coincided with them graduating high school and becoming adults. All three kids are on disability and conditioned to believe they're too disabled to do anything with their lives. They have no practical skills and are completely dependent on Mom.
Jenn also claims to have a mile-long list of health complications herself, mainly lupus but also myasthenia gravis, Sjogren. Raynauds, migraines, and fibromyalgia, amongst others.
According to insiders, after that Gypsy Rose Blanchard show "The Act," Ailish began to believe her mother had MBP and she was not actually sick. She stopped playing along and subsequently mom stopped talking to/about her. I don’t know how true this is and Jenn’s bio still says she has three chronic adult kids.
Brenna is a genderspecial who goes by Noah and they/them pronouns as of 2015. Kieran briefly decided she wanted to be called Celiene but apparently it didn’t stick.
Jenn’s whole insta was boring suburban mom stuff for a year or more - pancake breakfasts, swim meets, running, recipes, vacations. Suddenly in August 2013, she's got IV lines in and is tagging #lupus and #lupussucks.
Twitter
Insta
facebook
Youtube (only one video, not interesting)
Essay about her health and running
change.org campaign to get her expensive lupus infusions covered by insurance
These kids were pretty much fucked from the start. Dad Brad posted on an old messageboard about what to name his daughter (Ailish) and whether she would hate the parents for picking that name.
Well, maybe not the name, but the childhood of munchausen-by-proxy and being thrust into the public eye by an attention-hungry mother, prolly. Mom even put her birth story on the internet
Jenn may have actual health problems, I really can't tell. It doesn't change the fact that she's OTT and doctor-shopping her children around trying to get them diagnosed too, and that one of her own kids abandoned her because she figured out that she wasn’t actually sick.
First lupus mention
Melanoma
Hospitalized, raises a stink until she gets a PICC
Tags Mesenteric vasculitis and IBS
IBS treatment > morphine > antihistamine. Hm.
First mention of one of her kids being sick, in this case Ailish being allergic to everything
Tags antiphospholipid syndrome (APS, rare clotting disorder), Factor V Leiden (incredibly common clotting disorder), Sjogren Syndrome (autoimmune disease that causes dry eyes and mouth, common in lupus), Raynauds (common vascular spasms), and Fibromyalgia
"lupus face"
(actual lupus rash)
Pill porn. the big brownish purple ones are CellCept, immunosuppressants that Vampire Kelly also takes.
Benvysta infusions for lupus
possible Beetus, peripheral neuropathy,
Insurance started denying her benlysta and deemed it not medically necessary
More skin cancer
First mention that one of her kids has lupus. Never really comes up again but I think it was Ailish
Holy Pill Porn. I see… simvastatin (lowers cholesterol), dicyclomine (IBS), multiple promethazine (antihistamine/antiemetic), multiple valacyclovir (herpes), cephalexin (antibiotic), acetaminophen/codeine, hydroxychloroquine (antimalarial also used in lupus), xarelto (prevents blood clots), and synthroid (hypothyroid). Many of them are empty dupes. Taking it in front of the mirror makes the hoard look even bigger.
Gets a midline cath
IVIG starts, getting a port
Botox for migraines (she said she was told she did not have migraines a few months ago)
Prednisone
Orange is nortriptyline, tricyclic antidepressant also used in migraines. White with 54135 imprint is CellCept.
Ketamine infusions
Dragging Keiran along because she also has an appointment – first mention of her kids going to the doctor
35 prescriptions per month.
One of the girls has OCD
Good lord. . Yellow oblong with 93/12 imprint is protonix, a PPI for acid reflux. Yellowish with taro ntp25 imprint is nortriptyline. Wavy red triangle is Xarelto.
October 2016, announces two of the girls have POTS
Announces Kieran has ankylosing spondylitis and POTS. AS is arthritis in the spine.
Myasthenia Gravis tagged. Enbrel is for arthritis and AS. Cosentyx is for AS. Gamunex is IVIG.
Showin off that port
PFT for myasthenia gravis?
Immediately followed by VOG selfie and a UTI
“Alive day” claims her kidneys shut down and she was dying three years ago. Her ‘gram mentions nothing about this on the day it allegedly happened.
Brenna’s appointment. First mention that she’s also sick.
Kieran’s turn.
Rapid-fire appointments for Brenna
I think this is Kieran? IDK all her kids are kinda ugly.
Brenna gets an MRI
Kieran now has crohn’s disease
Brenna gets another MRI
Kieran escape’s mom’s gravity field and moves into a dorm
Zoladex is used for cancers and endometriosis
I think this is Brenna back at the neuro
Man all my munchies are sporting this same collar recently. Jenn claims she broke the bone at the base of her skull which is RARE and SERIOUS.
Brenna and Ailish are allergic to trees.
Drawing where it hurts
Kieran’s on remicade for IBD
First time she’s mentioned that she stuffs her kids full of psych meds, too
Noah and Kieran have fibromyalgia like mom (Kieran has decided she wants to be Celiene at this point thus the “C”)
Noah and Kieran both have hEDS
Christ on a dick. Now tagging #MCAS
In case you were wondering, no Ailish is not exempt from constant doctor appointments
EKG for Kieran
POTS has disabled two of her children even though they don’t really have it and probably just have anxiety
Kieran decided she doesn’t want to be Celiene anymore. Certainly fried chicken tendies, creamy pasta, ribs, and chocolate chip pancakes are a perfect Crohn’s diet. Not like you’re supposed to avoid fatty fried foods and sugary foods and chocolate.
#hashimotothyroiditis
Dad is sick too
Have to reschedule christmas because everyone has infusions scheduled. One of the last times Ailish is mentioned
has to have all the newest, most expensive drugs
Brenna and Mom are both hospitalized at the same time! Those Wacky Wohlenbergs!
Gotta catch em all! ROTFLMBO Jenn, you slay me! Child abuse is hilarious!
Someone else dying of cancer is all about Jenn’s feelings. Kieran is now getting daily infusions (of what, I don’t know. Saline, probably.)
back to small fiber neuropathy
Looking into gastroparesis diagnoses for the girls?
Kieran now has chiari malformation and migraines.
Seeking a spondylitis dx for herself perhaps?
#ivbenadryl. Wants an enormous workbench for her and the adult daughters’ infusion supplies.
Insta
Youtube (only one video, not interesting)
Essay about her health and running
change.org campaign to get her expensive lupus infusions covered by insurance
These kids were pretty much fucked from the start. Dad Brad posted on an old messageboard about what to name his daughter (Ailish) and whether she would hate the parents for picking that name.
Well, maybe not the name, but the childhood of munchausen-by-proxy and being thrust into the public eye by an attention-hungry mother, prolly. Mom even put her birth story on the internet
Jenn may have actual health problems, I really can't tell. It doesn't change the fact that she's OTT and doctor-shopping her children around trying to get them diagnosed too, and that one of her own kids abandoned her because she figured out that she wasn’t actually sick.
First lupus mention
Melanoma
Hospitalized, raises a stink until she gets a PICC
Tags Mesenteric vasculitis and IBS
IBS treatment > morphine > antihistamine. Hm.
First mention of one of her kids being sick, in this case Ailish being allergic to everything
Tags antiphospholipid syndrome (APS, rare clotting disorder), Factor V Leiden (incredibly common clotting disorder), Sjogren Syndrome (autoimmune disease that causes dry eyes and mouth, common in lupus), Raynauds (common vascular spasms), and Fibromyalgia
"lupus face"
(actual lupus rash)
Pill porn. the big brownish purple ones are CellCept, immunosuppressants that Vampire Kelly also takes.
Benvysta infusions for lupus
possible Beetus, peripheral neuropathy,
Insurance started denying her benlysta and deemed it not medically necessary
More skin cancer
First mention that one of her kids has lupus. Never really comes up again but I think it was Ailish
Holy Pill Porn. I see… simvastatin (lowers cholesterol), dicyclomine (IBS), multiple promethazine (antihistamine/antiemetic), multiple valacyclovir (herpes), cephalexin (antibiotic), acetaminophen/codeine, hydroxychloroquine (antimalarial also used in lupus), xarelto (prevents blood clots), and synthroid (hypothyroid). Many of them are empty dupes. Taking it in front of the mirror makes the hoard look even bigger.
Gets a midline cath
IVIG starts, getting a port
Botox for migraines (she said she was told she did not have migraines a few months ago)
Prednisone
Orange is nortriptyline, tricyclic antidepressant also used in migraines. White with 54135 imprint is CellCept.
Ketamine infusions
Dragging Keiran along because she also has an appointment – first mention of her kids going to the doctor
35 prescriptions per month.
One of the girls has OCD
Good lord. . Yellow oblong with 93/12 imprint is protonix, a PPI for acid reflux. Yellowish with taro ntp25 imprint is nortriptyline. Wavy red triangle is Xarelto.
October 2016, announces two of the girls have POTS
Announces Kieran has ankylosing spondylitis and POTS. AS is arthritis in the spine.
Myasthenia Gravis tagged. Enbrel is for arthritis and AS. Cosentyx is for AS. Gamunex is IVIG.
Showin off that port
PFT for myasthenia gravis?
Immediately followed by VOG selfie and a UTI
“Alive day” claims her kidneys shut down and she was dying three years ago. Her ‘gram mentions nothing about this on the day it allegedly happened.
Brenna’s appointment. First mention that she’s also sick.
Kieran’s turn.
Rapid-fire appointments for Brenna
I think this is Kieran? IDK all her kids are kinda ugly.
Brenna gets an MRI
Kieran now has crohn’s disease
Brenna gets another MRI
Kieran escape’s mom’s gravity field and moves into a dorm
Zoladex is used for cancers and endometriosis
I think this is Brenna back at the neuro
Man all my munchies are sporting this same collar recently. Jenn claims she broke the bone at the base of her skull which is RARE and SERIOUS.
Brenna and Ailish are allergic to trees.
Drawing where it hurts
Kieran’s on remicade for IBD
First time she’s mentioned that she stuffs her kids full of psych meds, too
Noah and Kieran have fibromyalgia like mom (Kieran has decided she wants to be Celiene at this point thus the “C”)
Noah and Kieran both have hEDS
Christ on a dick. Now tagging #MCAS
In case you were wondering, no Ailish is not exempt from constant doctor appointments
EKG for Kieran
POTS has disabled two of her children even though they don’t really have it and probably just have anxiety
Kieran decided she doesn’t want to be Celiene anymore. Certainly fried chicken tendies, creamy pasta, ribs, and chocolate chip pancakes are a perfect Crohn’s diet. Not like you’re supposed to avoid fatty fried foods and sugary foods and chocolate.
#hashimotothyroiditis
Dad is sick too
Have to reschedule christmas because everyone has infusions scheduled. One of the last times Ailish is mentioned
has to have all the newest, most expensive drugs
Brenna and Mom are both hospitalized at the same time! Those Wacky Wohlenbergs!
Gotta catch em all! ROTFLMBO Jenn, you slay me! Child abuse is hilarious!
Someone else dying of cancer is all about Jenn’s feelings. Kieran is now getting daily infusions (of what, I don’t know. Saline, probably.)
back to small fiber neuropathy
Looking into gastroparesis diagnoses for the girls?
Kieran now has chiari malformation and migraines.
Seeking a spondylitis dx for herself perhaps?
#ivbenadryl. Wants an enormous workbench for her and the adult daughters’ infusion supplies.
Looks like all of them are NEETs now and very little is on the horizon for them except more tests and unnecessary procedures. I don't know if this is a case where there's a grain of truth in the claims but they're blown out of proportion, or if Jenn is spiking their infusions to make them sick, or just plain old conditioning them to act a certain way until it becomes psychosomatic. Also can't confirm Ailish has really accused her mother of MBP. Still, an interesting case in what happens when a mom wants to be famous for bravely suffering through adversity and has three young dependents to manipulate.
edit: format fuckery
She does mention youtube but I forgot and didn't look for it.
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iluvmylife
kiwifarms.net
- Joined
- Jun 27, 2019
I did a quick name search and can't find her so she must have some cutesy, spoonie name.
- Joined
- Feb 21, 2018
- Joined
- Feb 21, 2018
"Gwen's Battle" - battle to get the toobs even though she's not actually sick amirite?
- Joined
- Jan 6, 2019
Wheeee! You do not disappoint, KateFarmsShill.
Lyme sperging.
Lyme is an interesting one. I live in an area rife with it. Now: Lyme is increasing in prevalence as are almost all the tick bourne diseases and Lyme can indeed be nasty. What it can’t be is chronic. It’s not a real diagnosis. Most people with Lyme either clear it themselves or need a short course of antibiotics. Longer courses of antibiotics have been shown to be more harmful than beneficial and so shouldn’t be used.
Where it gets complex is that a few percent of people do actually suffer post infection complications- however this is NOT chronic infection. It’s more akin to something riling your immune system. The mechanism still isn’t known.
Lots of diseases can do this - a lot of the tropical viruses like dengue and chikungunya can cause lingering arthritis and pain for example.
So PTLDS (post treatment Lyme syndrome) is a thing. What’s not a thing is chronic Lyme. You treat by treating the symptoms, so NSAIDs for the joint pain etc. You do not shove weeks of antibiotics through a PICC line into your patient. You also do not diagnose without a clear ELISA positive.
Ticks generally only transmit disease after 36-48 hours of feeding so get the little fuckers off fast. It is possible to develop Lyme without knowing you’ve been bitten because not all tick bites are obvious. Not all infections cause the characteristic bullseye rash either.[\SPOILER]
Lyme sperging.
Lyme is an interesting one. I live in an area rife with it. Now: Lyme is increasing in prevalence as are almost all the tick bourne diseases and Lyme can indeed be nasty. What it can’t be is chronic. It’s not a real diagnosis. Most people with Lyme either clear it themselves or need a short course of antibiotics. Longer courses of antibiotics have been shown to be more harmful than beneficial and so shouldn’t be used.
Where it gets complex is that a few percent of people do actually suffer post infection complications- however this is NOT chronic infection. It’s more akin to something riling your immune system. The mechanism still isn’t known.
Lots of diseases can do this - a lot of the tropical viruses like dengue and chikungunya can cause lingering arthritis and pain for example.
So PTLDS (post treatment Lyme syndrome) is a thing. What’s not a thing is chronic Lyme. You treat by treating the symptoms, so NSAIDs for the joint pain etc. You do not shove weeks of antibiotics through a PICC line into your patient. You also do not diagnose without a clear ELISA positive.
Ticks generally only transmit disease after 36-48 hours of feeding so get the little fuckers off fast. It is possible to develop Lyme without knowing you’ve been bitten because not all tick bites are obvious. Not all infections cause the characteristic bullseye rash either.[\SPOILER]
iluvmylife
kiwifarms.net
- Joined
- Jun 27, 2019
- Joined
- Feb 21, 2018
Is there a known reason that tick-borne infections are increasing? Global warming, more hosts to incubate it..? Asking because in the last 10-15 years I've noticed more and more doggos being infected and I thought it was just that snap testing for lyme became more common (thus not actually increasing in prevalence, just more people recognized that their gimpy dog had lyme and not just bad joints).
I hate that these women are trying to make it into some issue where doctors just don't believe women's pain is real. While that can be a valid argument, you invalidate it when you apply it to a fake illness.
- Joined
- Jan 6, 2019
Climate change is a biggie. Many ticks are expanding their ranges. More deer - they don’t have natural predators in most places any more. Changing land use as well and human encroachment onto areas. More mice - their vectors thrive in slightly off balance ecosystems. A number of complex factors basically. There are also cycles over a few years and the weather has an impact too.
Couple of good layperson articles if anyone is interested.
Lyme Disease Cases Are Exploding. And It’s Only Going to Get Worse.
Climate change and human sprawl have triggered a pandemic
elemental.medium.com
Lyme Disease Cases Are Exploding. And It’s Only Going to Get Worse.
archived 26 Jun 2019 01:25:23 UTC
archive.is
Prevention is key in fight against Lyme and other tickborne diseases
CDC is very concerned about the growing numbers of people who get Lyme and other tickborne diseases every year. Learn more about the diseases that are common in your area and the ticks that spread the
Lyme and Other Tickborne Diseases Increasing | CDC Online Newsroom | …
archived 18 Jul 2019 16:55:20 UTC
There was actually a vaccine against Lyme - it got zapped because the antivax lot really campaigned against it. I haven't seen the safety data though so can’t say if that was justified
Testing for it is really difficult- false positive and negative rates are quite high. As I’m sure you do, just check your pup and yourself daily and take off any that have bitten as soon as you can.
Back to our munchies: post Lyme syndrome is a thing, but it’s easily munchable because it isn’t easy to test for. No reputable doc will diagnose chronic Lyme though and anyone who is on long term antibiotics through iv is playing with fire, and likely munching.
- Joined
- Feb 21, 2018
For what it's worth, I know with the canine lyme vaccine there are some issues – one being that they'll always test positive for lyme and there's no way to tell whether the test is reacting to a ten years outdated puppy shot or an active infection. Because of that, any animal showing shifting lameness, fever, and lethargy was more-or-less automatically given doxy and baytril because chances are it was lyme and not something more exotic. I do remember being told by my vet that there was a statistically significant increase in cancer at rabies and lyme vaccine sites. Best practice was to give Rabies in the Right Rear (leg) and Lyme in the Left (rear) Leg but the rest of the vaccines in the withers. That way if a tumor did appear, you knew which vaccine caused it and could hopefully amputate the limb before it spread.
Not trying to justify antivax bullshit. Just some things I learned from pestering my veterinarian lol
Edit: IGNORE THIS I'M DEAD WRONG LOL
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iluvmylife
kiwifarms.net
- Joined
- Jun 27, 2019
I checked out this one's youtube.. Good GOD is all I have to say and I'm only about 1 minute into first video.
- Joined
- Nov 30, 2016
i call bullshit on the candida causing those sores on her stoma and face,Hello, I have a new Friend of Kate Farms to introduce. Sorry this took so long but she has a huge footprint, a lot to unpack, and I had to take a lot of breaks for my own sanity. I hope she is worth the wait.
This is Rebecca “Becca” Doss, aka Lyme is Lame, an anorexic vegan Jesus freak who dresses like this and makes her husband push her around in a wheelchair so that everyone knows she’s really really super sick.
View attachment 846629
And this is her in 2011 before she decided to throw her life away to be the sickest little girl in the whole wide world.
View attachment 846632View attachment 846631
As her name suggests, she thinks she has chronic lyme and that this infection has caused her to develop every other syndrome and disorder she hears about including some that cannot medically coexist. She knows way more than any doctor or dumb CDC researcher about lyme disease because God tells her the truth and she will chimp out on anyone who tries to correct her “facts” which are essentially just conspiracy theories she hears on social media. Despite all her struggles she stays positive because this is the day that the LORD has made and she WILL REJOICE and be GLAD in it and so can YOU! Which is the phrase she uses to start all of her videos.
Oh and she’s also a Christian rapper.
No seriously
and she openly stalks US Olympic figure skater Michelle Kwan
Pull up a wheelchair, pour a few cartons of Kate Farms into your feeding tube bag, and make sure to feed your owner-trained service dog because this is gonna take a while. (it's literally like 8000 words long I'm so sorry)
Rebecca Marie (Jackson) Doss
DOB: 22 November 1989
Address: 2622 Iroquois Ave. Ashland, KY
ED Blog (inactive since 2014)
Lyme Blog (inactive since 201
Husbando’s Facebook
Youtube (main account)
Youtube (old personal account)
Twitter which she's really active on and I barely even looked at so have at it
Old twitter (locked)
Personal insta
Spoonie Insta
Husband insta
WeGo Award self-nomination
GoFundMe that raised $17,000 for bullshit treatments
Open Eye Pictures Q&ARebecca “Becca” Marie Doss (nee Jackson), d/b/a Lyme is Lame, Lyme Steals God Heals, and BexConnects (her “stage name”), is a 30 year old unemployed fake-disabled Jesus freak from Ashland, Kentucky who claims to be fighting a 25+ year battle with chronic lyme and the many other illnesses it has caused. These include in no particular order:
Ehlers-Danlos Syndrome (bet you didn’t know lyme disease can rewrite your DNA!)
Gastroparesis
Mast Cell Activation Disorder
Postural Orthostatic Tachycardia Syndrome
Chronic active Epstein-Barr virus
Craniocervical Instability
multiple chemical sensitivity (another woo diagnosis)
Leaky Gut Syndrome (more woo)
PANDAS (a hypothetical pediatric neuropsych condition she’s been retroactively diagnosed with)
trigeminal neuralgia
Occipital neuralgia
Arthritis
erythema ab igne which is a scary term for a benign skin discoloration from repeated heat exposure
Chronic migraine
Dysphagia (difficulty swallowing)
Allodynia (pain from things that would not normally be painful such as being touched or minor temperature increases)
Hyperacusis (hypersensitivity to certain frequencies of sound)
Histamine intolerance
A TMJ dysfunction
Small Fiber Neuropathy
An unnamed, undiagnosed autoimmune disease she swears the dumb doctors haven’t found yet
Cerebral Cavernous Malformation (a vascular problem in her brain)
Hypoglycemia
A Cerebrospinal Fluid Leak
Systemic Candidiasis/candida overgrowth (even more woo)
Mycoplasma pneumonia (“walking pneumonia”)
Bartonella (another tick-borne illness)
Babesia (another tick-borne illness)
An acquired immunodeficiency (unspecified, not HIV-related)
NICO lesion (neuralgia-inducing cavitational osteonecrosis aka part of her skull is dead and rotting and it’s triggering nerve pain)
Human Herpesvirus 6 (something like 80% of infants in the US contract this virus before their 1st birthday.)
Chronic Tendonitis
Mental illnesses include:
anorexia nervosa (purging subtype) that she’s totally recovered from and her low weight and inability to eat without puking is caused entirely by her lyme-induced gastroparesis, honest!
OCD (which seems to center around a fear/dislike of the number 13,which she refers to as “12 plus 1”)
Anxiety
Panic attacks
Depression
Agoraphobia
Auditory and visual hallucinations caused by a phobia she won’t name because if you google if you will develop this phobia too.
Yes, this means she thinks a tick bite she doesn't even remember getting gave her an infection that rewrote her DNA and gave her an eating disorder, rotted her bones, gave her a chronic yeast infection, and made her so afraid of something that she has violent and prolonged hallucinations. Literally every health problem she has, she finds a way to blame it on lyme because then it’s Not Her Fault™. She added new labels to herself like she was running out of time in the first few years of her journey but has since mostly run out of diseases to claim. Every once in a while something new pops up. I think the most recent one was endometriosis which she tried on for a while but was told she didn’t have and subsequently stopped tagging.
Some of the medications and woo potions she has taken in her attempt to embalm herself before she dies are: zofran (antiemetic), atarax (antihistamine/antiemetic), artemisinin (anti-malarial), cryptoleptis (African woo antimalarial), Enula (woo antimicrobial), Mepron (anti-parasitic used for opportunistic fungal pneumonia), flagyl (antibiotic), diflucan (anti-fungal), xylitol (a non-caloric sugar alcohol wut), azithromycin (antibiotic), activated charcoal which interferes with medicine and is what they give people when they overdose, citicoline (“improves cognitive function,” popular with biohacking crowd), Klonopin (“for emergencies”), dramamine (antihistamine/antiemitic), benadryl (antihistamine), kratom (legal psychotropic drug that is not backed by science for any serious applications no matter how hard the natural healing people want to pretend it is a miracle substance that cures everything), various homeopathic bullshit-waters by Deseret Biologicals, burbur-pinella (woo oil), doxycycline (antibiotic), iberogast (herbal digestive enzyme?), senna (laxative), that one painkiller… you know… starts with a d? Dah-loo-did?, geodon (antipsychotic), valium, phenergan (antihistamine/antiemitic), Meyers cocktails (vitamin mixes), CBD oil, hydrocodone, Transfer Factor Lym-plus (a cow-gland-derived immune booster?), transfer factor multi-immune (same?), cromolyn (MCAS drug), doxepin (tricyclic antidepressant used for nerve pain), marinol (marijuana derivative typically prescribed for nausea and pain associated with chemotherapy), ativan, azithromycin (antibiotic), clindamycin (antibiotic), minocycline (antibiotic), ceftin (antibiotic), tigamycin (antibiotic), venofer (iv iron sucrose), nystatin (antifungal), and lauricidin (monolaurin supplement). Plus a bunch of expensive branded vitamin supplements that are identical to the bobo brand at the grocery store, like Tru Niagen which is just fancy vitamin B3 that costs $40 a month instead of $4 for three months of the generic. Much of this goes directly into a port along with IV saline and the rest into a J-tube because of her super serious gastroparesis.
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Other than PRN klonopin, she is not currently on and refuses to be on any psych meds, the one thing she probably really, really should be on. She used to be on “countless” mostly-unnamed psych meds as well as medication for her Juvenile Idiopathic Arthritis (also unnamed but usually this is treated with corticosteroids and NSAIDs, possibly Plaquenil, and what she writes suggests this was the case for her.) She also uses an assload of topical essential oils and flirted with the Young Living bullshit. Taking her cue from Gerson Therapy, she has also admit to being a big fan of the coffee enema, because nothing says ‘I have recovered from my eating disorder’ like boosting your metabolism with caffeine while you purge! She claims she’s too caffeine sensitive to drink coffee but thankfully caffeine is not absorbed during an enema. This is not true but it does absorb less (albeit slightly faster) than if you drink it. https://www.youtube.com/watch?v=Pezbds-nsiE Also in that video she mentions that looking at her far infrared mat would cause hallucinations so she had to cover it very quickly with a towel, suggesting Mystery Phobia is that try-pop-phobia every basic bitch on the internet claims to have, and that the hallucinations are just the mild swirly optical illusion one has when one stares at a regular pattern for a while.
Also she was fine posting a photo of her dog on that very mat in 2015, presumably looking at it long enough to take the photo, upload it to instagram, write a caption, and post it.
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This is her enabler husband Roger.
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They’ve been married since 2011. She refers to him as her caregiver and makes him do everything around the house while also working a full time job as a middle school music teacher so she can languish in bed. Becca believes Roger was put on this earth to care for her by the Big Man Upstairs and this is all part of His plan and hashtags ‘insicknessandinhealth’ on any post mentioning him. Here’s a whole video about how when he gets home from work he does a ton of errands for her. https://www.youtube.com/watch?v=eYZZ79I_Uho When they stay at a hotel (which is frequent, considering that Becca refuses to go to any doctor that is near her home) he has to change all the bedding over to their own stuff and set up a side table with all the things Becca could possibly need in the night before he’s allowed to get to bed after driving her 10+ hours. He also eats alone on the road because Becca won’t go into a restaurant because the food smells trigger her lyme disease. Roger often gets this look in his eyes like he wants to hang himself.
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Becca is one of those cows that is more than the sum of her parts. Any individual video or instagram post she creates is mind-numbingly boring to the point where you want to beat your head in with a sledgehammer, but taken together they make a beautiful, batshit whole munchie.
Becca is very active on social media advocating for “lymies” because the evil medical establishment doesn’t believe chromic lyme is real. She loves to call out experts and any talk show host/news anchor who mentions chronic lyme even somewhat skeptically IN OPEN LETTERS WRITTEN IN ALL CAPS, DEMANDING they APOLOGIZE for their LIES. Lies like “most cases of lyme disease in the US appear on the Eastern Seaboard” and “lyme disease is not a major problem in Kentucky.” In reality, while Kentucky does have sporadic cases, it’s nothing like the Eastern Seaboard where there’s an annual epidemic and every child is taught to check themselves thoroughly for ticks when they’re playing outdoors and to identify a “bullseye” rash.
This further complicates her claims right from the get-go because Becca has lived in Kentucky her entire life, went to an in-state college, and has only ever spent substantial time in other states when she was in hospitals.
She grew up in a crazy religious (Baptist) family, participated in figure skating in her adolescence, and at 13 developed an eating disorder (complete with veganism and food allergies to gluten, corn, some fats, and refined sugar as a cover story). She compares herself to Jeebus and writes godawful poetry about suffering through illness for Christ. If you’re seeing shades of Anna “Fit Vegan Ginger” Johnson, you’re not alone. Becca actually got treatment for her eating disorder, though how well that worked is about to be evident, and she also graduated college. Also, unlike Ginge, Becca weaseled her way into a PEG-J thus unfortunately cutting off the stream of food abominations she was posting on instagram – on the flip side I would probably have never found her if she wasn’t jerking off Kate Farms reps after she got her toob since I was searching on YouTube for munchies singing the praises of this miracle nectar.
In 2003, she developed anorexia after losing her mock middle school United Nations elections and because her figure skating coach moved without warning her suggesting that Becca’s sense of self is a little fragile. The next year she had inpatient/residential stays at Johns Hopkins in Maryland and at Remuda Ranch in Arizona for this, and both times she got “the tube.” Also in her teen years (although exactly when is unknown as of writing) she started complaining about her joints and was diagnosed with Idiopathic Juvenile Arthritis. This diagnosis wasn’t special enough for her as it did not give her a pass to not eat or do anything productive with her life, and so she started constantly going to the ER and trying to “get to the bottom of it.” She worsened during her years at Centre College in Danville, KY (Maj: English, mins: creative writing, education.) She became such a frequent flier at the ER that she kept her college’s campus security number in her speed dial so she could call them for transport at a moment’s notice. She also spent many hours in the campus health center having weight checks and therapy for her obvious eating disorder and whined about catching every “muggle disease” that existed including, supposedly, H1N1/swine flu. At this time she was being treated for the arthritis and possibly did have an impaired immune system.
She got married in June 2011 and went on a honeymoon to Disney World. Getting married and having to be a grown up triggered a relapse of her anorexia. She got fired from her first job after two months and she once again ended up in treatment, this time at UNC, and again had to be NG tubed.
In 2012 she claims she was going to Cleveland Clinic every few weeks for testing along with any other doctor that would tolerate her, claiming to be in excruciating pain as well as having intense daily nausea. She says she couldn’t walk without a walker on her good days and needed a wheelchair on her bad ones. However, her instagram paints a different picture: no hospitals or mobility aids, just food challenges and family and dogs, occasional mentions of nausea or allergies.
She found a doctor of that thought she had chronic lyme and was willing to do tests for it. In June 2013 she was given an “official” diagnosis of a disease that does not exist even though her ELISA showed no sign of lyme (also tested negative for Bartonella which she also nonetheless claims she has). She got a Western Blot and a CD-57, one of which is inaccurate on its own and the other a complete scam. The CDC explicitly warns people not to go solely on Western Blot results because they give too many false positives. That’s okay because Becca doesn’t believe there is any such thing as a false positive with lyme. Even if your sample is contaminated, if the test says you’re positive than you are! She also argues with the experts on how long a tick has to be attached before you can actually be infected. Those stupid experts and their dumb scientific experiments say that a tick has to stay on you, feeding, for at least a day and perhaps as long as three before it infects you. Becca knows that any tick bite, even if you find it immediately, causes lyme. And that goes for all ticks of all species and sizes. Most of the time you don’t just get lyme, either, but a whole range of tick-bourne illnesses like babesiosis, bartonella, and Rocky Mountain Spotted Fever. And antibiotics NEVER just cure lyme. You need to do years of detox!
She is often found yelling on twitter about how there is no such thing as a reliable lyme test unless you’re tested within a week of being bitten, which is why so many chronic lymies fall through the cracks. Becca cannot remember being bitten by a tick until 2006. Nonetheless, she has decided that she had lyme since she was four or five years old (depending on which day you ask her) but it took twenty years to diagnose (bonus Hillary Clinton fangirling video as a companion to that last link).
Because the evil medical industry LIES about lyme disease, she forces her husband to drive her up to 10 hours each way to visit special “lyme literate” doctors who prescribe her quack treatments and insane doses of IV antibiotics and who don’t take insurance.
Since her original lyme dx she has gotten progressively sicker and more disabled, collected diagnoses, medications, and toys, shown absolutely no improvements in any facet of her health, and still claims she’s just “herxing” or shedding dead lyme pathogens from her body and any day now she’ll be cured (at least of the lyme, not the 70 billion diseases it caused that are INCURABLE and will DEBILITATE HER FOR LIFE!) She seems to be a hybrid of your standard ana-munchie and a gullible moron who really does believe this shit.
She sometimes (seemingly deliberately) hurts herself in dumb, clumsy ways and then claims the lyme threw off her depth perception or gave her “brain fog” which caused the accident. Really she just wants an ER trip. The first instance I can find of this is November 2013 when she needed seven stitches because she misjudged cutting a piece of bread. After that she complains often that cutting her food, cleaning her home, etc is too dangerous for her. She also claims the full moon makes her disease flare and puts her out of commission for a week.
Grab bag info: she is obsessed with fellow Jesus freak chronic illness vlogger Mary Frey and often tags her in posts, has copied her vlog format (including Q+A’s with husband), and wears her merch. Mary Frey has real cystic fibrosis and every munchie is super jealous of this. Becca used to @ Aubrey when Aubrey was still active, too. Oddly, she never mentions Jaquie. She also has creepy obsessions with Hillary Clinton (see links above) and figure skater Michelle Kwan who she may or may not be building an actual shrine to. She collects any periodical Ms. Kwan appears in and posts about her every time she is on television. And every year she bakes her a birthday cake.
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Becca is a member of the Wildwood Church of God, a megachurch that live streams its services so she doesn’t even have to leave her bed to do that. She has had several dogs but surprisingly she does not claim any of them are service animals or alert to her many health crises. Currently she only has one, a geriatric beagle named Lucy that bites people if they try to take something from her. She also has at cat Thomas; her cat June died in November 2018 and she livestreamed herself crying about it for an hour. Like Sarah-Jean, she loves to make other people’s deaths about herself and how she feels even if she didn’t know them beyond a few myspace messages in 2009. She admits that she romanticised her time in anorexia IP, loved her feeding tubes, and often wished to go back to the treatment centers once she was released. While she lied constantly during her eating disorder relapses, she now considers herself a “compulsive truth-teller” who feels guilty if she even thinks of a lie. Lying about her health daily apparently does not count.
She’s also one of those people who, in her 30s, still talks about undergraduate constantly as if it was the best time of her life. She doesn’t seem to have any friends or hobbies outside of jigsaw puzzles and she was very involved in campus Christian clubs so that might have been the only time she had some semblance of a social life. She’s had her gallbladder removed. She cannot be around anyone in her family without wearing a mask due to reactions. During medical procedures she requests that the staff play Christian music not to calm herself but so she can witness to them. Because I’m sure when medical staff are trying to make sure you don’t die under anesthesia, they’re totally open to converting religions.
She’s a Kate Farms brand ambassador so she frequently posts about their miraculous feeding tube formula and they give her free stuff. This means she is literally a Kate Farms shill and I must surrender my title. Unlike others who had to try normal tube feeds and decide they were too special and delicate, Becca’s quack prescribed her Kate Farms off the bat. Somehow she convinced insurance to cover it.
I’m actually not sure how much of this shit she pays out of pocket but many of her treatments would likely not be covered by insurance. Her husband is just a teacher so if it’s primarily out of pocket then someone is bankrolling this sick girl LARPing. Can’t get a read on her parents’ finances but considering Ashland, KY is a struggling former coal-n-steel town on the West Virginia border with a per capita income of $19,000 as of the last census, I can’t imagine they’re loaded. Hubby's family lives over the border and his mother teaches Kindermusic lessons. That's all I know about them.
So let’s go back to where this whole adventure really started because like I said, before her lyme diagnosis her social media does not really mention illness at all outside of anorexia. In 2013 she created a blog to announce her lyme dx which is where much of the above information came from and that’s where we’ll pick back up. She was happy to start healing finally. After diagnosis she claimed her ED basically disappeared (unless she needed to cry about fear foods and how brave she was for choosing recovery every day). Instead she developed a bunch of digestive problems that were Not Her Fault ™. She was told she had candida overgrowth, mycoplasma pneumonia, bartonella, and active chronic epstein-Barr in addition to the lyme and she was put on a diet that was even stricter than her orthorexic ana-chan diet. It eliminated all grains, dairy, eggs, sugars (including fruit) yeast, and a whole lot else. When she bothered to eat, it was steamed vegetables with quinoa doused in vinegar, spices, and stevia and she advocated not finishing meals so you had leftovers. So, Ginge Rations, basically. Instead of eating, she just drank liter after liter of water per day to fill up… er… flush the candida out.
In September she traveled to see a doctor in New York City, ten hours away, who said she “might” have lyme but wouldn’t treat her. This upset her so much she can’t even talk about it, and she’s sure it was Big Pharma and the insurance death panels out to get her or some shit. She was already getting all her “detox” BS from an integrative medicine specialist but she wanted to see someone who only did tick diseases and that she had to travel far for because that’s more specialer, like how Mary Frey is treated at a clinic that only handles CF cases.
Her doctor diagnosed her with Trigeminal neuralgia in 2014. This is a condition so painful that sufferers want to kill themselves, but of course, Becca just ends up with a squinty eye and something to complain about. When her TN flares, it’s so painful that she can’t do anything … except write long blog and instagram posts and vlog and edit videos. . .
By mid-2015 she was doing Ultraviolet Blood Irradiation Therapy (Douglas protocol) daily, an outdated treatment for sepsis and other major infections from way back when antibiotics were brand new and sometimes killed people; Myers Cocktails (IV vitamins mixes) three days a week; Patricia Kane protocol three days a week, which is slow infusions of phospholipids that a quack thought would cure autism; and three times per week, micro current therapy, little bursts of electricity applied to target spots on the body intended to zap the lyme pathogens. She also did hyperbaric oxygen chamber sessions. At this time, she also started wailing about increasing nausea and abdominal pain and stopped eating. She was given an NG tube, her 4th, at a hospital in Lexington where she was kept for several weeks. Despite that she claims she didn’t want it and bloo-bloo, poor me just trying to be healthy, she immediately posted a selfie with it.
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September 12, we get the first squinty popeye-face selfie from “trigeminal neuralgia” that lets her cheese it up for the camera anyway.
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January she’s on home IV fluids through a peripheral line, at least briefly.
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February the wheelchair makes its first appearance that I can find, while she’s in Detroit taking photos of places Eminem lived or mentioned in his songs. I wish I was joking. The real reason she’s there is to see a neurosurgeon but she only brings that up once and never gives the results of this appointment. Every other post on this trip is her sperging about Eminem’s troubled life and the places that were important to him.
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September she creates a “war corner” in her bedroom where she can pray for healing all day. Holy shit.
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In December 2016, she started her YouTube with a video about her eating disorder recovery journey and her life with chronic illness, claiming she might show up with one eye open or an ice pack on her head in a few videos because of her lyme coinfections. Her first videos are just flogging on and on about Jesus and her eating disorder and all the many, many things that trigger her to starve herself (but this is not why she can’t eat! It’s all the lyme and the lyme-induced gastroparesis!) By this point in her life, Becca spends almost all of her time in bed, only leaving for medical appointments, occasional shopping trips, and extremely rare social outings. She even considers it a miracle when she can leave her bed for the wild frontier that is her living room sofa for a few hours. There are goldfish that live a more varied and exciting life than her. The reason for this varies between the smells/chemicals outside her bedroom make her mast cell flare, that she sound is too much for her hyperacusis, that she’s in too much pain to leave bed/cannot walk at all (she sometimes makes a big show of army crawling on the floor to use the bathroom because “lyme paralysis,” which is fucking hilarious) or because she has such extreme agoraphobia that she can’t even leave her bedroom, depending on which is most likely to get her asspats.
It is important to note that she sobs and squeaky-voices while talking about her plight and/or the power of her savior in every single video. Therefore, it would be absolutely impossible for me to go through her entire youtube history without losing my mind and I’ve probably missed some good shit by skipping over videos because she likes to casually drop new diagnoses in otherwise innocuous vlogs, then forget about them the next day and never mention them again.
She started wearing an icepack tied to her head in January 2017 and let all five of her subscribers know that she would be doing more and more lyme content and self-pity. The ice pack disappeared and reappeared with her “migraines” until about March when it became a permanent part of her wardrobe. She later purchased a Headache Hat-style ice pack designed to be worn this way but still often sports the stylish hot pink headband.
In March, 2017 she started her spoonie Instagram.
By April she had added a single bandless ear muff on the same side as her squinty eye to her attire, sometimes under a pair of noise-cancelling headphones like the “muh autism” crowd. Oh and she cries because other people mow their lawns and that’s mean when she’s suffering.
But music magically cures her “lyme paralysis.”
In June 2017 she ruined her sister’s wedding by drawing all the attention to herself, wearing a toned down version of her exceptional headband and making her husband carry her down the aisle, then push her around the reception in a wheelchair all day. Dis bitch.
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(In that last photo you can see that she has her surgical mask, ear muff, and sunglasses in her lap. At least she took it off for her speech.)
Also in June she moved on to a new quack in Washington, DC, a cool 6.5 hour drive from her home. Dr. Joseph G. Jemsek is based at Jemsek Specialty Clinic and only treats “Lyme Borreliosis Complex.” Here are some testimonials about the good doc. On meeting this new doctor, Becca pretends she can barely speak or move so he knows she’s really the sickest one ever. After a three-hour appointment he approves her for IV therapy once she’s stable enough as determined by Jemsek, who is happy to give her all sorts of expensive supplements to help.
In July she goes to wish the newlyweds off as they move across the country, but can’t actually go inside because her disposable surgical mask isn’t strong enough to protect her from the smells and chemicals in their house. Since this is a very important day for her sister and not her, she “passes out” on the way home and makes Roger carry her inside and pretends to not even be breathing.
A month later she starts claiming she can’t eat anything at all and can only drink one specific brand of meal replacement drinks. What could these miracle drinks be? Why, it’s Kate Farms Komplete ready-to-drink oral nutrition supplements! Even with this perfect nectar she cannot maintain her weight. But it’s not her ED! She wants to gain weight! Honest! Look, she’s even crying! She found a gastroenterologist that believes in lyme and thinks she might have superior mesenteric artery syndrome, which is often caused by being underweight and not having enough fat inside your body. And of course, she’s being tested for gastroparesis, which she’s already suspected she has. But even more important than that – he’s going to give her an NJ tube! Which she definitely doesn’t want and has nothing to do with her eating disorder AT ALL. But she’s already looking forward to a PEG-J in the future.
Days later she has to be on some kind of protocol of antihistamines to combat her intolerance to CT contrast and is now claiming to have MCAS. This protocol was taught to her by some random internet friend with MCAS and as a result she wasn’t able to get the CT scan done at the gastroenterology center because she was full of antihistamines. Many OTC antihistamines (esp. Benadryl) and prescription nausea drugs (like Atarax, also an antihistamine) are pretty powerful anticholinergics and can shut down your GI system. I have no doubt that Becca knew this, as an ana-munchie, as benadryl before a GI test is standard wisdom in that crowd. She instead had to be seen at a hospital. This is all recounted by Rog because she “passed out” after the appointment. Which has nothing to do with the handful of benadryl she ate.
She gets an NJ inserted during an endoscopy. But the awful doctors placed wrong and instead of having it tucked neatly behind her ear they gave her one that’s taped to her nose (which is, in fact, how NJ tubes are sometimes placed, especially in Europe). And possibly bridled her but I can’t tell because I couldn’t stand her cry-voice anymore. They tried to move it out a little and she had another hissyfit about how bad it hurt until they pulled it out before ever using it.
Instead she’s cleared for a straight J-tube. A week later, this also is a problem because stubborn surgeons don’t want to do it so the recommendation has been taken right off the table and instead they want her to wait a week and then try a PEG-J. Cue more crying and kvetching about how this has nothing to do with her eating disorder like these evil doctors think. So she goes to the ER, her “worst nightmare,” to demand they insert one.
She succeeded in getting herself admitted during the ER trip and got her coveted PEG-J tube which she immediately names Claire Bennett after the character on the long-cancelled NBC television program “Heroes”. Note that the time between “I feel icky” and surgical feeding tube was less than a month.
Like a good munchie, as soon as she’s home she’s already having problems with her tube. Of course, she’s not tolerating her feeds OR Reglan and her stupid doctors just won’t do everything she wants exactly when she wants it!
But don’t worry because she’s able to order herself that proper godly liquid nutrition, Kate Farms! Much better than that poison they were trying to feed her! She calls it “rocket fuel,” even correcting herself if she accidentally calls it “formula” or “feeds,” and refers to calories as “experience points” when discussing her rate and/or the varieties of formula, because she’s fucking exceptional.
Oh and her weekly planner is geared towards “Spoonies”. This book comes as part of a set of several that help you make sure your entire identity is based around how sick you are.
A few days later she’s in the hospital with tube problems. Of course. Her tube flipped and got pulled out of her jejunum. Wow, almost like she’s making excuses and fucking with it so she can’t get any nutrition. All of this happens on the anniversary of her first “official” date while her husband is out of town visiting his family and thus not paying attention to her, which seems awfully coincidental. She’s on some miracle pain drug (cough dilaudid cough) that allows her to open her other eye. Too bad the evil doctors won’t send her home with it.
She got a gastric emptying study and some bowel testing while she was in the hospital
This is apparently an MCAS reaction to dextrose. I see nothing except she rubbed or scratched her arm.
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They replaced her PEG-J with a PEG..
Oh and her GES and all the other tests they ran were negative. Not because there was nothing wrong with her but because that pesky Chronic Lyme has an awful habit of making things like gastroparesis not show up on tests. Really. That’s her explanation for why she’s still sure she has gastroparesis. But praise Jesus. With a protocol of supplements (literally laxatives) she’s able to use her PEG without the J despite her crippling lyme-induced gastroparesis.
She seems to be on the mend, gaining a bit of weight over September and even admitting she has her appetite back.
For one day.
On the 26th she announces her maximum tube feed rate is between 25/30 mL/hr before she can’t tolerate her feeds. If she is hooked up for 23 hours a day (not counting one hour for hygiene, dressing, setting up the bags and etc) she is receiving between 575 and 690 calories through her tube at this rate. Also she now wears a VOG.
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By the end of the week she has complications with her PEG (because they wouldn’t give her back her PEG-J like she wanted.) Can’t keep her formula down and is doing research on what her next step should be. Goes to ER and is admitted to the hospital. CT scan done. According to charts she shows during this stay, she is on Geodon (antipsychotic) 3x per day, valium, and phenergan.
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October 3rd she’s transferred to another hospital and gets her new PEG-J tube inserted under twilight sedation, has to be given horse-like doses because her body is so tolerant.
Claims this is a MCAS reaction to corn in the dextrose pushes she’s given because she still refuses to eat or run her tube feeds. I don't know enough about what is normal with IVs to confirm or deny if this is just an artifact of getting a ton of fluids pumped into her.
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On the 8th she again claims to have MCAS and Multiple Chemical Sensitivity and admits she makes her husband change his clothes when he gets home before he can come around her.
Pain level is 10/10 from the IVs. She can still vlog though.
The next day she is finally discharged from the hospital after restarting her “rocket fuel.”
On the 13th she has a doctors appointment, announces her feeding tube rate is 32 mL/hr at 24 hours (768 cals/day). she unironically vlogs this:
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Also in October she starts transitioning to 1.5 cal/mL and hinting that she’s going to have a port soon. She’s being treated for Human Herpesvirus 6 which, as mentioned, almost every adult in the united states has and does not have any problems from. Becca insists the virus and “herxing” from it are what is making her sick at this current time.
Not gonna lie, I skipped over about 50 vlogs here because it looked like more of the same whining about nothing. Over on insta she tags erythema ab igne, which is a benign hyperpigmentation of the skin caused by using a heating pad or hot water bottle too much also known as water bottle rash or toasted skin syndrome. It sometimes resolves on its own, other times is permanent.
And she starts shilling for Kate Farms even harder. Senpai notices her.
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November 8 is the first reference I can find to POTS, an insta post where she claims it’s flaring like WOAH!
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November 20, 2017 she is approved to get a mic-key button to replace her “dangler” feeding tube. She tries to hide her thrill that she’s too small for adult sizes and they have to wait for kid sizes to come in due to her low body weight. On December 8, she goes in for the tube change and it’s the wrong size, suggesting she’s not as small as she thinks. The 13th she gets the buh-uhn placed despite that a fucking soda machine sets off her lyme disease-induced POTS.
December 14, she has another POTS episode in a doctor appointment and despite screeching about fragrances about 15 times and also screaming when her ear muff fell off in the car and being just so exhausted by everything, she goes to Wommart to pick up an album that drops a midnight. That the store didn’t have.
January 12, 2018. Eyes are both open. She visits Jemsek again to get new meds added to the 30,000 she already takes, including Cromolyn which her insurance won’t cover, doxepin (a tricyclic antidepressant prescribed for pain and insomnia), Marinol (medical marijuana), and ativan. Claims liver and spleen enlarged. She starts talking about Ehlers-Danlos and craniocervical instability which apparently has been plaguing her. Might have babesia, another tick-borne infection. Cleared for digital motion x-ray for EDS and, finally, a port, which thrills her of course. Is using CBD for pain which is the reason why she can suddenly open her eye again.
Starting in January, 2018, the popeye face gradually disappeared, only showing up when she had a terrible migraine or was suffering because of a treatment. She seems to have gotten tired of living a life with no depth perception in order to look what she thought was sick but was actually just rétarded. January 18-19 she goes to LabCorp to get draws for 41 different tests Jemsek has ordered but she’s too dehydrated to give blood while in the center. They send a phleobotomist to her house the next day to take thirty different vials of blood from her body. Has a “POTS Attack” which could not have anything to do with this. Nope, all lyme.
Jan 27, 2018 she gets a new wheelchair, a Karman LT 980 which can be purchased on Amazon for about $300. For comparison Jaquie’s TiLite with all the bells and whistles she got was probably more like $10,000-15,000 – the base model is like $3500 – and had to be fitted to her measurements. Becca has since complained about this chair because it’s not fitted for her properly and is now seeking a custom lightweight. Why she cares that it doesn’t fit her when she doesn’t self-propel at all is beyond me. Oh wait. She wants the munchie points for a “custom” chair.
On Valentine’s Day 2018 the wait was finally over and Becca met her true love… a port. She started using it immediately under Jemsek’s watch to get test doses of her new treatments pending full delivery through a home health company. Since literally nothing ever makes this bitch feel better (except Dah-loo-did) her first home saline infusion gave her an occipital migraine due to all the “dead spirochetes and their toxins that are in my brain stem right now.”
For a while things calmed down and she even took an internet break for a week. She even tried to participate more in life, leaving her bedroom for the new adventure that is the living room. Then in March she started to decline again, culminating in this hilarious video where she has a Mast Cell flare and sobs with ice packs on her face.
April, she visits Jemsek again and starts the “heavy hitter” IV antibiotics after cycling through all the normal ones. This is because the lyme pathogens have formed cysts to protect themselves from normal antibiotics according to Jemsek and now she needs to “cyst bust” so they can be attacked.
May was very exciting because Kate Farms noticed her and sent her some crap in the mail.
And she hit 300 videos and celebrated by making a sign out of syringes.
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Again, I skipped a whole assload of videos because her life outside of appointments and medicalizing the mundane is completely boring. Popped back in for 4th of July where she makes a giant scene because other people are setting off fireworks and that makes her trigeminal neuralgia and migraines flare or whatever. These people are so fucking entitled. DPMIW does the same thing, like… you cannot control what other people do in your vicinity. If you want to live someplace quiet, move out to the woods, not a suburban development with neighbors close by.
A few days later she announces that her minocycline and ceftin cycle is making her vomit and have demonic hallucinations. Remember that she is taking these heavy antibiotics for infections that do not exist. She also started treating her husband with doxy because there were ticks on the porch and she convinced him he has Lyme and Rocky Mountain Spotted Fever now. On an unhappy note, Jemsek doesn’t tell Becca exactly what she wants to hear about her treatment plan and she is so upset and angry that her Popeye squint comes back.
In July she got this fancy new neck brace that she never had before. This is a Vista Collar available on Amazon to anyone who would like one and has a few bucks to burn. She’s paralyzed by pain. She’s now on clindamycin and tigacycline. This is why we have antibiotic resistant superbugs that kill healthy adults.
She now sleeps in the brace and it allows her to sleep without waking up, claims its the first time this has happened since middle school, and she woke up without that headache that she has every single day. But as soon as she takes it off, the headache comes back. This proves the cervical spinal instability is one of the many reasons her head hurts all the time. Since she can’t wear the collar without compressing her central line she’s pursuing other treatments.
In August she announces she has to stop IV antibiotics and since she can’t take any oral antibiotics because of her super serial gastroparesis, this means her time at Jemsek’s clinic is over. This is because her WBC is low and declining and Jemsek wanted her to be on even longer and wanted to put her on Neupogen, a very expensive WBC booster, instead of taking her off of the abx. Insurance doesn’t cover his shit and he’s absolutely raping them with the costs. She was hoping for more “blue sky days” during the treatment but she’s gotten worse over the duration of the IV treatments. Also he wouldn’t give her more painkillers. She still stands by his treatment methods but her case is so extremely awful that it just wasn’t right for her. Also she’s going to keep her central line because she’s a hard stick and needs it for that sweet sweet saline and tons of doctors and nurses have told her she needed one before she got it. She’s going back to the other quack she was seeing in Tennessee who gave her the original lyme dx. On the 31st, she goes to see this doctor. He’s tapering her off some meds, starting her on low-dose allergen injections and nystatin. This treatment has her herxin’ so bad that on September 2, her sugar drops to coma levels. Don't worry. She's fine.
In September she spends more time out of the bedroom and outside on her front porch. By September 11, she’s having issues with allodynia which means she’s in too much pain from everything to go on the porch. Even her “safe clothes” that don’t normally hurt her. She even yells “OW MY SKIN!!” at one point. Shills for cambridge masks which all the munchies switched to once everyone knew VOG doesn’t protect against anything.
October 19, she complains that it’s over 2100 days that she’s had a headache and now it never goes away. She gets referred to a pain management doctor in Rhode Island but can’t exactly explain why she can't go to a local PM doc because it’s complicated (lol doctor shopping lol). Got labs back, she’s anemic, her CD-57 is somewhat higher but still super low (CD-57 is woo and even some chronic lyme pseudoscience peddlers say it’s not useful at all), starts low-dose allergens, getting ready to start the DesBio homeopathy series.
A week later she’s got a cerebrospinal fluid leak that’s potentially causing the headache. My quick googling suggests this is an emergency that needs surgery to fix before you get meningitis. Luckily she has the special woo version that’s been there her whole life and has never become an emergency or led to meningitis or caused any problems until she decided anorexia didn’t get her enough attention.
November 13 she goes to her OBGYN to look for more things wrong with her, namely endometriosis which she wants an exploratory surgery for, but isn’t sure her body can handle it.
On her 30th birthday, a miracle! Her husband takes her out ice skating. In her wheelchair. How is this even allowed? After this attention-grabbing stunt, she’s MIRACULOUSLY able to skate on her own. Of course, when she’s home she crashes so hard she can only “army crawl” around her house. Becca, pro tip, if you want it to look like you can’t feel your legs, they should be dangling limp behind you, not curled up and able to push you forward.
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A few days later she vomited and dislodged her feeding tube after trying to eat. Conveniently, this happens when no one is home to see what happened. Hmmm.. sound like someone is purging violently to me. EMS and her parents have to coordinate to get her out of the house because she plays cripple girl and almost gets her door axed down. That’ll teach Roger to leave his wife alone!
December 6th she makes her masterpiece, “I CHOOSE ALL GOOD THINGS. THANKS, KATE FARMS!” which is the video I found a few weeks later. Other than the obvious ice pack, squinty face, and ear muff, I noticed that she was balding under her hair band, listing a dozen things she thought were wrong with her, got some Young Living oils and a useless monolaurin topical, and was made a Kate Farms ambassador/got a box of free junk from them, goes to a doctor far enough away to need a hotel room, and made her husband eat dinner alone. Wow, what an introduction!
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Nice hairline, Becca.
The next day she goes to the Ohio State University Medical Center for testing. This meeting was supposed to be with a neurosurgeon but that doesn’t pan out for poor Becca and now she needs to find a doctor who knows how to handle her very special case. She’s been “unofficially diagnosed” with EDS. She’s mad that the doctors don’t test for lyme unless the patient brings it up because chronic lyme is a made up condition that they don’t want to waste resources on unless they need to prove to someone that they don’t have it.
Most of December was just christmas and Jesus sperging so early in January she made up for it with a new health update. She’s going forward with the endo exploratory. On the 7th she has four MRIs in a row. She cries because she’s allergic to the contrast and her nervous system is on the fritz. These are going to be sent to OSU’s neurosurgeon.
By this point she’d stopped daily vlogs and moved on to once a week or so, so her next real update is February 12 when she livestreamed. She claims her physical health is why she couldn’t vlog because she was too weak to edit. She ruled out endo but she cried about pain after the procedure until they kept her overnight on pks and uses the pain as an excuse to be a total cunt to everyone. She claims to be able to see the trigeminal pain on one of the MRIs and a few other things that she wants them to look into..
March 1 the candida is back and is infecting her stoma and her face (actually looks like cold sores or the rash some bulimics get from purging). With the candida comes the coffee enemas. A few days later she films herself screaming while she dries her hair because her pain from sound sensitivity is SO SERIOUS but the pain from wet hair is also SO SERIOUS.
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Things are currently quiet in the Beccaverse as she is running out of problems to complain about and her life has gone from happy outgoing young woman to 30 year old who doesn’t leave her bedroom. As of late June she’s restarted low-dose immunotherapy for her MCAD and lyme disease and spends all her time crying over how much it hurts. She’s preparing to see this new pain management doctor in Rhode Island soon and the neurosurgeon at OSU. I can’t promise she’ll be entertaining in the future but it looks like she’s gearing up for some more diagnoses and a hilarious painkiller saga.
Edit: misplaced some images
the only things you can get from candida is itchy privates, a burning feeling and above all, your gentitals reek.
its a fairly treatable thing with the correct medicine.
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fweeper
kiwifarms.net
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- Jul 18, 2019
The thought is that we have had several winters in the past decade where the temperatures have not been low enough to kill the ticks from the previous seasons, allowing those ticks to overwinter and make it to the next spring/summer, increasing the tick population.
There are several tests in veterinary medicine that can test for "Lyme exposure"- ie rapid ELISA snap tests that check for antibodies. There is also a test that checks paired titers to B burgdorferi to evaluate for current infection. These tests usually also check for other common tick borne diseases including Ehrlichia spp and Anaplasma spp antibodies. Many dogs test positive on these exposure tests, but are not clinical and do not require treatment.
Unfortunately, dogs can develop Lyme nephritis, which is a glomerulonephropathy in which the antibody complexes get stuck in the glomerulus and (usually) cause chronic kidney disease. Prognosis is poor-grave. Current recommendation for any dog testing positive on a B burgdorferi antibody test is to perform a urine protein: creatinine to evaluate for overt proteinuria. If present, treatment with doxycycline is recommended, then monitoring UPC.
Dogs do get Lyme arthropathy, but we mostly care about the kidney sequelae.
Ah, sorry for the tangent, but Lyme disease is a hot button for me because so many people are misinformed and I'm happy to educate.
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- Joined
- Nov 29, 2018
I think it got posted in the schofield thread, too, but Jen started out with some fantastically disgusting claims in a 1995 Newsweek article - See, she was super fertile, and the pill caused an 18 month long yeast infection, they couldn't seem to figure out condoms and everything irritated her super special snowflake vag. They so desperately didn't want to become pregnant that she was pregnant within months of that article if Brenna was born in Jan 96.
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YC 024
Guest
kiwifarms.net
All I can say is prepare for a wild ride. No idea how she hasn’t been discussed in depth here- the content is endless. Constant claiming diagnoses that haven’t been given, then being surprised when all testing shows nothing.
- Joined
- Feb 21, 2018
Jesus christ I was trying to access this article. It showed up in my google hits but wouldn't let me view it. Thank you, citizen!
Until my vet talked to me seriously, I thought that lyme in dogs was chronic, untreatable, and it wasn't worth vaccinating them once they tested positively because that was old folks' wisdom where I lived. So please, educate away because people are absolutely misinformed and innocent doggos are suffering.
A
AT 903
Guest
kiwifarms.net
Hello, I have a new Friend of Kate Farms to introduce. Sorry this took so long but she has a huge footprint, a lot to unpack, and I had to take a lot of breaks for my own sanity. I hope she is worth the wait.
This is Rebecca “Becca” Doss, aka Lyme is Lame, an anorexic vegan Jesus freak who dresses like this and makes her husband push her around in a wheelchair so that everyone knows she’s really really super sick.
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And this is her in 2011 before she decided to throw her life away to be the sickest little girl in the whole wide world.
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As her name suggests, she thinks she has chronic lyme and that this infection has caused her to develop every other syndrome and disorder she hears about including some that cannot medically coexist. She knows way more than any doctor or dumb CDC researcher about lyme disease because God tells her the truth and she will chimp out on anyone who tries to correct her “facts” which are essentially just conspiracy theories she hears on social media. Despite all her struggles she stays positive because this is the day that the LORD has made and she WILL REJOICE and be GLAD in it and so can YOU! Which is the phrase she uses to start all of her videos.
Oh and she’s also a Christian rapper.
No seriously
and she openly stalks US Olympic figure skater Michelle Kwan
Pull up a wheelchair, pour a few cartons of Kate Farms into your feeding tube bag, and make sure to feed your owner-trained service dog because this is gonna take a while. (it's literally like 8000 words long I'm so sorry)
Rebecca Marie (Jackson) Doss
DOB: 22 November 1989
Address: 2622 Iroquois Ave. Ashland, KY
ED Blog (inactive since 2014)
Lyme Blog (inactive since 201
Husbando’s Facebook
Youtube (main account)
Youtube (old personal account)
Twitter which she's really active on and I barely even looked at so have at it
Old twitter (locked)
Personal insta
Spoonie Insta
Husband insta
WeGo Award self-nomination
GoFundMe that raised $17,000 for bullshit treatments
Open Eye Pictures Q&ARebecca “Becca” Marie Doss (nee Jackson), d/b/a Lyme is Lame, Lyme Steals God Heals, and BexConnects (her “stage name”), is a 30 year old unemployed fake-disabled Jesus freak from Ashland, Kentucky who claims to be fighting a 25+ year battle with chronic lyme and the many other illnesses it has caused. These include in no particular order:
Ehlers-Danlos Syndrome (bet you didn’t know lyme disease can rewrite your DNA!)
Gastroparesis
Mast Cell Activation Disorder
Postural Orthostatic Tachycardia Syndrome
Chronic active Epstein-Barr virus
Craniocervical Instability
multiple chemical sensitivity (another woo diagnosis)
Leaky Gut Syndrome (more woo)
PANDAS (a hypothetical pediatric neuropsych condition she’s been retroactively diagnosed with)
trigeminal neuralgia
Occipital neuralgia
Arthritis
erythema ab igne which is a scary term for a benign skin discoloration from repeated heat exposure
Chronic migraine
Dysphagia (difficulty swallowing)
Allodynia (pain from things that would not normally be painful such as being touched or minor temperature increases)
Hyperacusis (hypersensitivity to certain frequencies of sound)
Histamine intolerance
A TMJ dysfunction
Small Fiber Neuropathy
An unnamed, undiagnosed autoimmune disease she swears the dumb doctors haven’t found yet
Cerebral Cavernous Malformation (a vascular problem in her brain)
Hypoglycemia
A Cerebrospinal Fluid Leak
Systemic Candidiasis/candida overgrowth (even more woo)
Mycoplasma pneumonia (“walking pneumonia”)
Bartonella (another tick-borne illness)
Babesia (another tick-borne illness)
An acquired immunodeficiency (unspecified, not HIV-related)
NICO lesion (neuralgia-inducing cavitational osteonecrosis aka part of her skull is dead and rotting and it’s triggering nerve pain)
Human Herpesvirus 6 (something like 80% of infants in the US contract this virus before their 1st birthday.)
Chronic Tendonitis
Mental illnesses include:
anorexia nervosa (purging subtype) that she’s totally recovered from and her low weight and inability to eat without puking is caused entirely by her lyme-induced gastroparesis, honest!
OCD (which seems to center around a fear/dislike of the number 13,which she refers to as “12 plus 1”)
Anxiety
Panic attacks
Depression
Agoraphobia
Auditory and visual hallucinations caused by a phobia she won’t name because if you google if you will develop this phobia too.
Yes, this means she thinks a tick bite she doesn't even remember getting gave her an infection that rewrote her DNA and gave her an eating disorder, rotted her bones, gave her a chronic yeast infection, and made her so afraid of something that she has violent and prolonged hallucinations. Literally every health problem she has, she finds a way to blame it on lyme because then it’s Not Her Fault™. She added new labels to herself like she was running out of time in the first few years of her journey but has since mostly run out of diseases to claim. Every once in a while something new pops up. I think the most recent one was endometriosis which she tried on for a while but was told she didn’t have and subsequently stopped tagging.
Some of the medications and woo potions she has taken in her attempt to embalm herself before she dies are: zofran (antiemetic), atarax (antihistamine/antiemetic), artemisinin (anti-malarial), cryptoleptis (African woo antimalarial), Enula (woo antimicrobial), Mepron (anti-parasitic used for opportunistic fungal pneumonia), flagyl (antibiotic), diflucan (anti-fungal), xylitol (a non-caloric sugar alcohol wut), azithromycin (antibiotic), activated charcoal which interferes with medicine and is what they give people when they overdose, citicoline (“improves cognitive function,” popular with biohacking crowd), Klonopin (“for emergencies”), dramamine (antihistamine/antiemitic), benadryl (antihistamine), kratom (legal psychotropic drug that is not backed by science for any serious applications no matter how hard the natural healing people want to pretend it is a miracle substance that cures everything), various homeopathic bullshit-waters by Deseret Biologicals, burbur-pinella (woo oil), doxycycline (antibiotic), iberogast (herbal digestive enzyme?), senna (laxative), that one painkiller… you know… starts with a d? Dah-loo-did?, geodon (antipsychotic), valium, phenergan (antihistamine/antiemitic), Meyers cocktails (vitamin mixes), CBD oil, hydrocodone, Transfer Factor Lym-plus (a cow-gland-derived immune booster?), transfer factor multi-immune (same?), cromolyn (MCAS drug), doxepin (tricyclic antidepressant used for nerve pain), marinol (marijuana derivative typically prescribed for nausea and pain associated with chemotherapy), ativan, azithromycin (antibiotic), clindamycin (antibiotic), minocycline (antibiotic), ceftin (antibiotic), tigamycin (antibiotic), venofer (iv iron sucrose), nystatin (antifungal), and lauricidin (monolaurin supplement). Plus a bunch of expensive branded vitamin supplements that are identical to the bobo brand at the grocery store, like Tru Niagen which is just fancy vitamin B3 that costs $40 a month instead of $4 for three months of the generic. Much of this goes directly into a port along with IV saline and the rest into a J-tube because of her super serious gastroparesis.
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Other than PRN klonopin, she is not currently on and refuses to be on any psych meds, the one thing she probably really, really should be on. She used to be on “countless” mostly-unnamed psych meds as well as medication for her Juvenile Idiopathic Arthritis (also unnamed but usually this is treated with corticosteroids and NSAIDs, possibly Plaquenil, and what she writes suggests this was the case for her.) She also uses an assload of topical essential oils and flirted with the Young Living bullshit. Taking her cue from Gerson Therapy, she has also admit to being a big fan of the coffee enema, because nothing says ‘I have recovered from my eating disorder’ like boosting your metabolism with caffeine while you purge! She claims she’s too caffeine sensitive to drink coffee but thankfully caffeine is not absorbed during an enema. This is not true but it does absorb less (albeit slightly faster) than if you drink it. https://www.youtube.com/watch?v=Pezbds-nsiE Also in that video she mentions that looking at her far infrared mat would cause hallucinations so she had to cover it very quickly with a towel, suggesting Mystery Phobia is that try-pop-phobia every basic bitch on the internet claims to have, and that the hallucinations are just the mild swirly optical illusion one has when one stares at a regular pattern for a while.
Also she was fine posting a photo of her dog on that very mat in 2015, presumably looking at it long enough to take the photo, upload it to instagram, write a caption, and post it.
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This is her enabler husband Roger.
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They’ve been married since 2011. She refers to him as her caregiver and makes him do everything around the house while also working a full time job as a middle school music teacher so she can languish in bed. Becca believes Roger was put on this earth to care for her by the Big Man Upstairs and this is all part of His plan and hashtags ‘insicknessandinhealth’ on any post mentioning him. Here’s a whole video about how when he gets home from work he does a ton of errands for her. https://www.youtube.com/watch?v=eYZZ79I_Uho When they stay at a hotel (which is frequent, considering that Becca refuses to go to any doctor that is near her home) he has to change all the bedding over to their own stuff and set up a side table with all the things Becca could possibly need in the night before he’s allowed to get to bed after driving her 10+ hours. He also eats alone on the road because Becca won’t go into a restaurant because the food smells trigger her lyme disease. Roger often gets this look in his eyes like he wants to hang himself.
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Becca is one of those cows that is more than the sum of her parts. Any individual video or instagram post she creates is mind-numbingly boring to the point where you want to beat your head in with a sledgehammer, but taken together they make a beautiful, batshit whole munchie.
Becca is very active on social media advocating for “lymies” because the evil medical establishment doesn’t believe chromic lyme is real. She loves to call out experts and any talk show host/news anchor who mentions chronic lyme even somewhat skeptically IN OPEN LETTERS WRITTEN IN ALL CAPS, DEMANDING they APOLOGIZE for their LIES. Lies like “most cases of lyme disease in the US appear on the Eastern Seaboard” and “lyme disease is not a major problem in Kentucky.” In reality, while Kentucky does have sporadic cases, it’s nothing like the Eastern Seaboard where there’s an annual epidemic and every child is taught to check themselves thoroughly for ticks when they’re playing outdoors and to identify a “bullseye” rash.
This further complicates her claims right from the get-go because Becca has lived in Kentucky her entire life, went to an in-state college, and has only ever spent substantial time in other states when she was in hospitals.
She grew up in a crazy religious (Baptist) family, participated in figure skating in her adolescence, and at 13 developed an eating disorder (complete with veganism and food allergies to gluten, corn, some fats, and refined sugar as a cover story). She compares herself to Jeebus and writes godawful poetry about suffering through illness for Christ. If you’re seeing shades of Anna “Fit Vegan Ginger” Johnson, you’re not alone. Becca actually got treatment for her eating disorder, though how well that worked is about to be evident, and she also graduated college. Also, unlike Ginge, Becca weaseled her way into a PEG-J thus unfortunately cutting off the stream of food abominations she was posting on instagram – on the flip side I would probably have never found her if she wasn’t jerking off Kate Farms reps after she got her toob since I was searching on YouTube for munchies singing the praises of this miracle nectar.
In 2003, she developed anorexia after losing her mock middle school United Nations elections and because her figure skating coach moved without warning her suggesting that Becca’s sense of self is a little fragile. The next year she had inpatient/residential stays at Johns Hopkins in Maryland and at Remuda Ranch in Arizona for this, and both times she got “the tube.” Also in her teen years (although exactly when is unknown as of writing) she started complaining about her joints and was diagnosed with Idiopathic Juvenile Arthritis. This diagnosis wasn’t special enough for her as it did not give her a pass to not eat or do anything productive with her life, and so she started constantly going to the ER and trying to “get to the bottom of it.” She worsened during her years at Centre College in Danville, KY (Maj: English, mins: creative writing, education.) She became such a frequent flier at the ER that she kept her college’s campus security number in her speed dial so she could call them for transport at a moment’s notice. She also spent many hours in the campus health center having weight checks and therapy for her obvious eating disorder and whined about catching every “muggle disease” that existed including, supposedly, H1N1/swine flu. At this time she was being treated for the arthritis and possibly did have an impaired immune system.
She got married in June 2011 and went on a honeymoon to Disney World. Getting married and having to be a grown up triggered a relapse of her anorexia. She got fired from her first job after two months and she once again ended up in treatment, this time at UNC, and again had to be NG tubed.
In 2012 she claims she was going to Cleveland Clinic every few weeks for testing along with any other doctor that would tolerate her, claiming to be in excruciating pain as well as having intense daily nausea. She says she couldn’t walk without a walker on her good days and needed a wheelchair on her bad ones. However, her instagram paints a different picture: no hospitals or mobility aids, just food challenges and family and dogs, occasional mentions of nausea or allergies.
She found a doctor of that thought she had chronic lyme and was willing to do tests for it. In June 2013 she was given an “official” diagnosis of a disease that does not exist even though her ELISA showed no sign of lyme (also tested negative for Bartonella which she also nonetheless claims she has). She got a Western Blot and a CD-57, one of which is inaccurate on its own and the other a complete scam. The CDC explicitly warns people not to go solely on Western Blot results because they give too many false positives. That’s okay because Becca doesn’t believe there is any such thing as a false positive with lyme. Even if your sample is contaminated, if the test says you’re positive than you are! She also argues with the experts on how long a tick has to be attached before you can actually be infected. Those stupid experts and their dumb scientific experiments say that a tick has to stay on you, feeding, for at least a day and perhaps as long as three before it infects you. Becca knows that any tick bite, even if you find it immediately, causes lyme. And that goes for all ticks of all species and sizes. Most of the time you don’t just get lyme, either, but a whole range of tick-bourne illnesses like babesiosis, bartonella, and Rocky Mountain Spotted Fever. And antibiotics NEVER just cure lyme. You need to do years of detox!
She is often found yelling on twitter about how there is no such thing as a reliable lyme test unless you’re tested within a week of being bitten, which is why so many chronic lymies fall through the cracks. Becca cannot remember being bitten by a tick until 2006. Nonetheless, she has decided that she had lyme since she was four or five years old (depending on which day you ask her) but it took twenty years to diagnose (bonus Hillary Clinton fangirling video as a companion to that last link).
Because the evil medical industry LIES about lyme disease, she forces her husband to drive her up to 10 hours each way to visit special “lyme literate” doctors who prescribe her quack treatments and insane doses of IV antibiotics and who don’t take insurance.
Since her original lyme dx she has gotten progressively sicker and more disabled, collected diagnoses, medications, and toys, shown absolutely no improvements in any facet of her health, and still claims she’s just “herxing” or shedding dead lyme pathogens from her body and any day now she’ll be cured (at least of the lyme, not the 70 billion diseases it caused that are INCURABLE and will DEBILITATE HER FOR LIFE!) She seems to be a hybrid of your standard ana-munchie and a gullible moron who really does believe this shit.
She sometimes (seemingly deliberately) hurts herself in dumb, clumsy ways and then claims the lyme threw off her depth perception or gave her “brain fog” which caused the accident. Really she just wants an ER trip. The first instance I can find of this is November 2013 when she needed seven stitches because she misjudged cutting a piece of bread. After that she complains often that cutting her food, cleaning her home, etc is too dangerous for her. She also claims the full moon makes her disease flare and puts her out of commission for a week.
Grab bag info: she is obsessed with fellow Jesus freak chronic illness vlogger Mary Frey and often tags her in posts, has copied her vlog format (including Q+A’s with husband), and wears her merch. Mary Frey has real cystic fibrosis and every munchie is super jealous of this. Becca used to @ Aubrey when Aubrey was still active, too. Oddly, she never mentions Jaquie. She also has creepy obsessions with Hillary Clinton (see links above) and figure skater Michelle Kwan who she may or may not be building an actual shrine to. She collects any periodical Ms. Kwan appears in and posts about her every time she is on television. And every year she bakes her a birthday cake.
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Becca is a member of the Wildwood Church of God, a megachurch that live streams its services so she doesn’t even have to leave her bed to do that. She has had several dogs but surprisingly she does not claim any of them are service animals or alert to her many health crises. Currently she only has one, a geriatric beagle named Lucy that bites people if they try to take something from her. She also has at cat Thomas; her cat June died in November 2018 and she livestreamed herself crying about it for an hour. Like Sarah-Jean, she loves to make other people’s deaths about herself and how she feels even if she didn’t know them beyond a few myspace messages in 2009. She admits that she romanticised her time in anorexia IP, loved her feeding tubes, and often wished to go back to the treatment centers once she was released. While she lied constantly during her eating disorder relapses, she now considers herself a “compulsive truth-teller” who feels guilty if she even thinks of a lie. Lying about her health daily apparently does not count.
She’s also one of those people who, in her 30s, still talks about undergraduate constantly as if it was the best time of her life. She doesn’t seem to have any friends or hobbies outside of jigsaw puzzles and she was very involved in campus Christian clubs so that might have been the only time she had some semblance of a social life. She’s had her gallbladder removed. She cannot be around anyone in her family without wearing a mask due to reactions. During medical procedures she requests that the staff play Christian music not to calm herself but so she can witness to them. Because I’m sure when medical staff are trying to make sure you don’t die under anesthesia, they’re totally open to converting religions.
She’s a Kate Farms brand ambassador so she frequently posts about their miraculous feeding tube formula and they give her free stuff. This means she is literally a Kate Farms shill and I must surrender my title. Unlike others who had to try normal tube feeds and decide they were too special and delicate, Becca’s quack prescribed her Kate Farms off the bat. Somehow she convinced insurance to cover it.
I’m actually not sure how much of this shit she pays out of pocket but many of her treatments would likely not be covered by insurance. Her husband is just a teacher so if it’s primarily out of pocket then someone is bankrolling this sick girl LARPing. Can’t get a read on her parents’ finances but considering Ashland, KY is a struggling former coal-n-steel town on the West Virginia border with a per capita income of $19,000 as of the last census, I can’t imagine they’re loaded. Hubby's family lives over the border and his mother teaches Kindermusic lessons. That's all I know about them.
So let’s go back to where this whole adventure really started because like I said, before her lyme diagnosis her social media does not really mention illness at all outside of anorexia. In 2013 she created a blog to announce her lyme dx which is where much of the above information came from and that’s where we’ll pick back up. She was happy to start healing finally. After diagnosis she claimed her ED basically disappeared (unless she needed to cry about fear foods and how brave she was for choosing recovery every day). Instead she developed a bunch of digestive problems that were Not Her Fault ™. She was told she had candida overgrowth, mycoplasma pneumonia, bartonella, and active chronic epstein-Barr in addition to the lyme and she was put on a diet that was even stricter than her orthorexic ana-chan diet. It eliminated all grains, dairy, eggs, sugars (including fruit) yeast, and a whole lot else. When she bothered to eat, it was steamed vegetables with quinoa doused in vinegar, spices, and stevia and she advocated not finishing meals so you had leftovers. So, Ginge Rations, basically. Instead of eating, she just drank liter after liter of water per day to fill up… er… flush the candida out.
In September she traveled to see a doctor in New York City, ten hours away, who said she “might” have lyme but wouldn’t treat her. This upset her so much she can’t even talk about it, and she’s sure it was Big Pharma and the insurance death panels out to get her or some shit. She was already getting all her “detox” BS from an integrative medicine specialist but she wanted to see someone who only did tick diseases and that she had to travel far for because that’s more specialer, like how Mary Frey is treated at a clinic that only handles CF cases.
Her doctor diagnosed her with Trigeminal neuralgia in 2014. This is a condition so painful that sufferers want to kill themselves, but of course, Becca just ends up with a squinty eye and something to complain about. When her TN flares, it’s so painful that she can’t do anything … except write long blog and instagram posts and vlog and edit videos. . .
By mid-2015 she was doing Ultraviolet Blood Irradiation Therapy (Douglas protocol) daily, an outdated treatment for sepsis and other major infections from way back when antibiotics were brand new and sometimes killed people; Myers Cocktails (IV vitamins mixes) three days a week; Patricia Kane protocol three days a week, which is slow infusions of phospholipids that a quack thought would cure autism; and three times per week, micro current therapy, little bursts of electricity applied to target spots on the body intended to zap the lyme pathogens. She also did hyperbaric oxygen chamber sessions. At this time, she also started wailing about increasing nausea and abdominal pain and stopped eating. She was given an NG tube, her 4th, at a hospital in Lexington where she was kept for several weeks. Despite that she claims she didn’t want it and bloo-bloo, poor me just trying to be healthy, she immediately posted a selfie with it.
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September 12, we get the first squinty popeye-face selfie from “trigeminal neuralgia” that lets her cheese it up for the camera anyway.
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January she’s on home IV fluids through a peripheral line, at least briefly.
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February the wheelchair makes its first appearance that I can find, while she’s in Detroit taking photos of places Eminem lived or mentioned in his songs. I wish I was joking. The real reason she’s there is to see a neurosurgeon but she only brings that up once and never gives the results of this appointment. Every other post on this trip is her sperging about Eminem’s troubled life and the places that were important to him.
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September she creates a “war corner” in her bedroom where she can pray for healing all day. Holy shit.
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In December 2016, she started her YouTube with a video about her eating disorder recovery journey and her life with chronic illness, claiming she might show up with one eye open or an ice pack on her head in a few videos because of her lyme coinfections. Her first videos are just flogging on and on about Jesus and her eating disorder and all the many, many things that trigger her to starve herself (but this is not why she can’t eat! It’s all the lyme and the lyme-induced gastroparesis!) By this point in her life, Becca spends almost all of her time in bed, only leaving for medical appointments, occasional shopping trips, and extremely rare social outings. She even considers it a miracle when she can leave her bed for the wild frontier that is her living room sofa for a few hours. There are goldfish that live a more varied and exciting life than her. The reason for this varies between the smells/chemicals outside her bedroom make her mast cell flare, that she sound is too much for her hyperacusis, that she’s in too much pain to leave bed/cannot walk at all (she sometimes makes a big show of army crawling on the floor to use the bathroom because “lyme paralysis,” which is fucking hilarious) or because she has such extreme agoraphobia that she can’t even leave her bedroom, depending on which is most likely to get her asspats.
It is important to note that she sobs and squeaky-voices while talking about her plight and/or the power of her savior in every single video. Therefore, it would be absolutely impossible for me to go through her entire youtube history without losing my mind and I’ve probably missed some good shit by skipping over videos because she likes to casually drop new diagnoses in otherwise innocuous vlogs, then forget about them the next day and never mention them again.
She started wearing an icepack tied to her head in January 2017 and let all five of her subscribers know that she would be doing more and more lyme content and self-pity. The ice pack disappeared and reappeared with her “migraines” until about March when it became a permanent part of her wardrobe. She later purchased a Headache Hat-style ice pack designed to be worn this way but still often sports the stylish hot pink headband.
In March, 2017 she started her spoonie Instagram.
By April she had added a single bandless ear muff on the same side as her squinty eye to her attire, sometimes under a pair of noise-cancelling headphones like the “muh autism” crowd. Oh and she cries because other people mow their lawns and that’s mean when she’s suffering.
But music magically cures her “lyme paralysis.”
In June 2017 she ruined her sister’s wedding by drawing all the attention to herself, wearing a toned down version of her exceptional headband and making her husband carry her down the aisle, then push her around the reception in a wheelchair all day. Dis bitch.
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(In that last photo you can see that she has her surgical mask, ear muff, and sunglasses in her lap. At least she took it off for her speech.)
Also in June she moved on to a new quack in Washington, DC, a cool 6.5 hour drive from her home. Dr. Joseph G. Jemsek is based at Jemsek Specialty Clinic and only treats “Lyme Borreliosis Complex.” Here are some testimonials about the good doc. On meeting this new doctor, Becca pretends she can barely speak or move so he knows she’s really the sickest one ever. After a three-hour appointment he approves her for IV therapy once she’s stable enough as determined by Jemsek, who is happy to give her all sorts of expensive supplements to help.
In July she goes to wish the newlyweds off as they move across the country, but can’t actually go inside because her disposable surgical mask isn’t strong enough to protect her from the smells and chemicals in their house. Since this is a very important day for her sister and not her, she “passes out” on the way home and makes Roger carry her inside and pretends to not even be breathing.
A month later she starts claiming she can’t eat anything at all and can only drink one specific brand of meal replacement drinks. What could these miracle drinks be? Why, it’s Kate Farms Komplete ready-to-drink oral nutrition supplements! Even with this perfect nectar she cannot maintain her weight. But it’s not her ED! She wants to gain weight! Honest! Look, she’s even crying! She found a gastroenterologist that believes in lyme and thinks she might have superior mesenteric artery syndrome, which is often caused by being underweight and not having enough fat inside your body. And of course, she’s being tested for gastroparesis, which she’s already suspected she has. But even more important than that – he’s going to give her an NJ tube! Which she definitely doesn’t want and has nothing to do with her eating disorder AT ALL. But she’s already looking forward to a PEG-J in the future.
Days later she has to be on some kind of protocol of antihistamines to combat her intolerance to CT contrast and is now claiming to have MCAS. This protocol was taught to her by some random internet friend with MCAS and as a result she wasn’t able to get the CT scan done at the gastroenterology center because she was full of antihistamines. Many OTC antihistamines (esp. Benadryl) and prescription nausea drugs (like Atarax, also an antihistamine) are pretty powerful anticholinergics and can shut down your GI system. I have no doubt that Becca knew this, as an ana-munchie, as benadryl before a GI test is standard wisdom in that crowd. She instead had to be seen at a hospital. This is all recounted by Rog because she “passed out” after the appointment. Which has nothing to do with the handful of benadryl she ate.
She gets an NJ inserted during an endoscopy. But the awful doctors placed wrong and instead of having it tucked neatly behind her ear they gave her one that’s taped to her nose (which is, in fact, how NJ tubes are sometimes placed, especially in Europe). And possibly bridled her but I can’t tell because I couldn’t stand her cry-voice anymore. They tried to move it out a little and she had another hissyfit about how bad it hurt until they pulled it out before ever using it.
Instead she’s cleared for a straight J-tube. A week later, this also is a problem because stubborn surgeons don’t want to do it so the recommendation has been taken right off the table and instead they want her to wait a week and then try a PEG-J. Cue more crying and kvetching about how this has nothing to do with her eating disorder like these evil doctors think. So she goes to the ER, her “worst nightmare,” to demand they insert one.
She succeeded in getting herself admitted during the ER trip and got her coveted PEG-J tube which she immediately names Claire Bennett after the character on the long-cancelled NBC television program “Heroes”. Note that the time between “I feel icky” and surgical feeding tube was less than a month.
Like a good munchie, as soon as she’s home she’s already having problems with her tube. Of course, she’s not tolerating her feeds OR Reglan and her stupid doctors just won’t do everything she wants exactly when she wants it!
But don’t worry because she’s able to order herself that proper godly liquid nutrition, Kate Farms! Much better than that poison they were trying to feed her! She calls it “rocket fuel,” even correcting herself if she accidentally calls it “formula” or “feeds,” and refers to calories as “experience points” when discussing her rate and/or the varieties of formula, because she’s fucking exceptional.
Oh and her weekly planner is geared towards “Spoonies”. This book comes as part of a set of several that help you make sure your entire identity is based around how sick you are.
A few days later she’s in the hospital with tube problems. Of course. Her tube flipped and got pulled out of her jejunum. Wow, almost like she’s making excuses and fucking with it so she can’t get any nutrition. All of this happens on the anniversary of her first “official” date while her husband is out of town visiting his family and thus not paying attention to her, which seems awfully coincidental. She’s on some miracle pain drug (cough dilaudid cough) that allows her to open her other eye. Too bad the evil doctors won’t send her home with it.
She got a gastric emptying study and some bowel testing while she was in the hospital
This is apparently an MCAS reaction to dextrose. I see nothing except she rubbed or scratched her arm.
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They replaced her PEG-J with a PEG..
Oh and her GES and all the other tests they ran were negative. Not because there was nothing wrong with her but because that pesky Chronic Lyme has an awful habit of making things like gastroparesis not show up on tests. Really. That’s her explanation for why she’s still sure she has gastroparesis. But praise Jesus. With a protocol of supplements (literally laxatives) she’s able to use her PEG without the J despite her crippling lyme-induced gastroparesis.
She seems to be on the mend, gaining a bit of weight over September and even admitting she has her appetite back.
For one day.
On the 26th she announces her maximum tube feed rate is between 25/30 mL/hr before she can’t tolerate her feeds. If she is hooked up for 23 hours a day (not counting one hour for hygiene, dressing, setting up the bags and etc) she is receiving between 575 and 690 calories through her tube at this rate. Also she now wears a VOG.
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By the end of the week she has complications with her PEG (because they wouldn’t give her back her PEG-J like she wanted.) Can’t keep her formula down and is doing research on what her next step should be. Goes to ER and is admitted to the hospital. CT scan done. According to charts she shows during this stay, she is on Geodon (antipsychotic) 3x per day, valium, and phenergan.
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October 3rd she’s transferred to another hospital and gets her new PEG-J tube inserted under twilight sedation, has to be given horse-like doses because her body is so tolerant.
Claims this is a MCAS reaction to corn in the dextrose pushes she’s given because she still refuses to eat or run her tube feeds. I don't know enough about what is normal with IVs to confirm or deny if this is just an artifact of getting a ton of fluids pumped into her.
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On the 8th she again claims to have MCAS and Multiple Chemical Sensitivity and admits she makes her husband change his clothes when he gets home before he can come around her.
Pain level is 10/10 from the IVs. She can still vlog though.
The next day she is finally discharged from the hospital after restarting her “rocket fuel.”
On the 13th she has a doctors appointment, announces her feeding tube rate is 32 mL/hr at 24 hours (768 cals/day). she unironically vlogs this:
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Also in October she starts transitioning to 1.5 cal/mL and hinting that she’s going to have a port soon. She’s being treated for Human Herpesvirus 6 which, as mentioned, almost every adult in the united states has and does not have any problems from. Becca insists the virus and “herxing” from it are what is making her sick at this current time.
Not gonna lie, I skipped over about 50 vlogs here because it looked like more of the same whining about nothing. Over on insta she tags erythema ab igne, which is a benign hyperpigmentation of the skin caused by using a heating pad or hot water bottle too much also known as water bottle rash or toasted skin syndrome. It sometimes resolves on its own, other times is permanent.
And she starts shilling for Kate Farms even harder. Senpai notices her.
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November 8 is the first reference I can find to POTS, an insta post where she claims it’s flaring like WOAH!
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November 20, 2017 she is approved to get a mic-key button to replace her “dangler” feeding tube. She tries to hide her thrill that she’s too small for adult sizes and they have to wait for kid sizes to come in due to her low body weight. On December 8, she goes in for the tube change and it’s the wrong size, suggesting she’s not as small as she thinks. The 13th she gets the buh-uhn placed despite that a fucking soda machine sets off her lyme disease-induced POTS.
December 14, she has another POTS episode in a doctor appointment and despite screeching about fragrances about 15 times and also screaming when her ear muff fell off in the car and being just so exhausted by everything, she goes to Wommart to pick up an album that drops a midnight. That the store didn’t have.
January 12, 2018. Eyes are both open. She visits Jemsek again to get new meds added to the 30,000 she already takes, including Cromolyn which her insurance won’t cover, doxepin (a tricyclic antidepressant prescribed for pain and insomnia), Marinol (medical marijuana), and ativan. Claims liver and spleen enlarged. She starts talking about Ehlers-Danlos and craniocervical instability which apparently has been plaguing her. Might have babesia, another tick-borne infection. Cleared for digital motion x-ray for EDS and, finally, a port, which thrills her of course. Is using CBD for pain which is the reason why she can suddenly open her eye again.
Starting in January, 2018, the popeye face gradually disappeared, only showing up when she had a terrible migraine or was suffering because of a treatment. She seems to have gotten tired of living a life with no depth perception in order to look what she thought was sick but was actually just rétarded. January 18-19 she goes to LabCorp to get draws for 41 different tests Jemsek has ordered but she’s too dehydrated to give blood while in the center. They send a phleobotomist to her house the next day to take thirty different vials of blood from her body. Has a “POTS Attack” which could not have anything to do with this. Nope, all lyme.
Jan 27, 2018 she gets a new wheelchair, a Karman LT 980 which can be purchased on Amazon for about $300. For comparison Jaquie’s TiLite with all the bells and whistles she got was probably more like $10,000-15,000 – the base model is like $3500 – and had to be fitted to her measurements. Becca has since complained about this chair because it’s not fitted for her properly and is now seeking a custom lightweight. Why she cares that it doesn’t fit her when she doesn’t self-propel at all is beyond me. Oh wait. She wants the munchie points for a “custom” chair.
On Valentine’s Day 2018 the wait was finally over and Becca met her true love… a port. She started using it immediately under Jemsek’s watch to get test doses of her new treatments pending full delivery through a home health company. Since literally nothing ever makes this bitch feel better (except Dah-loo-did) her first home saline infusion gave her an occipital migraine due to all the “dead spirochetes and their toxins that are in my brain stem right now.”
For a while things calmed down and she even took an internet break for a week. She even tried to participate more in life, leaving her bedroom for the new adventure that is the living room. Then in March she started to decline again, culminating in this hilarious video where she has a Mast Cell flare and sobs with ice packs on her face.
April, she visits Jemsek again and starts the “heavy hitter” IV antibiotics after cycling through all the normal ones. This is because the lyme pathogens have formed cysts to protect themselves from normal antibiotics according to Jemsek and now she needs to “cyst bust” so they can be attacked.
May was very exciting because Kate Farms noticed her and sent her some crap in the mail.
And she hit 300 videos and celebrated by making a sign out of syringes.
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Again, I skipped a whole assload of videos because her life outside of appointments and medicalizing the mundane is completely boring. Popped back in for 4th of July where she makes a giant scene because other people are setting off fireworks and that makes her trigeminal neuralgia and migraines flare or whatever. These people are so fucking entitled. DPMIW does the same thing, like… you cannot control what other people do in your vicinity. If you want to live someplace quiet, move out to the woods, not a suburban development with neighbors close by.
A few days later she announces that her minocycline and ceftin cycle is making her vomit and have demonic hallucinations. Remember that she is taking these heavy antibiotics for infections that do not exist. She also started treating her husband with doxy because there were ticks on the porch and she convinced him he has Lyme and Rocky Mountain Spotted Fever now. On an unhappy note, Jemsek doesn’t tell Becca exactly what she wants to hear about her treatment plan and she is so upset and angry that her Popeye squint comes back.
In July she got this fancy new neck brace that she never had before. This is a Vista Collar available on Amazon to anyone who would like one and has a few bucks to burn. She’s paralyzed by pain. She’s now on clindamycin and tigacycline. This is why we have antibiotic resistant superbugs that kill healthy adults.
She now sleeps in the brace and it allows her to sleep without waking up, claims its the first time this has happened since middle school, and she woke up without that headache that she has every single day. But as soon as she takes it off, the headache comes back. This proves the cervical spinal instability is one of the many reasons her head hurts all the time. Since she can’t wear the collar without compressing her central line she’s pursuing other treatments.
In August she announces she has to stop IV antibiotics and since she can’t take any oral antibiotics because of her super serial gastroparesis, this means her time at Jemsek’s clinic is over. This is because her WBC is low and declining and Jemsek wanted her to be on even longer and wanted to put her on Neupogen, a very expensive WBC booster, instead of taking her off of the abx. Insurance doesn’t cover his shit and he’s absolutely raping them with the costs. She was hoping for more “blue sky days” during the treatment but she’s gotten worse over the duration of the IV treatments. Also he wouldn’t give her more painkillers. She still stands by his treatment methods but her case is so extremely awful that it just wasn’t right for her. Also she’s going to keep her central line because she’s a hard stick and needs it for that sweet sweet saline and tons of doctors and nurses have told her she needed one before she got it. She’s going back to the other quack she was seeing in Tennessee who gave her the original lyme dx. On the 31st, she goes to see this doctor. He’s tapering her off some meds, starting her on low-dose allergen injections and nystatin. This treatment has her herxin’ so bad that on September 2, her sugar drops to coma levels. Don't worry. She's fine.
In September she spends more time out of the bedroom and outside on her front porch. By September 11, she’s having issues with allodynia which means she’s in too much pain from everything to go on the porch. Even her “safe clothes” that don’t normally hurt her. She even yells “OW MY SKIN!!” at one point. Shills for cambridge masks which all the munchies switched to once everyone knew VOG doesn’t protect against anything.
October 19, she complains that it’s over 2100 days that she’s had a headache and now it never goes away. She gets referred to a pain management doctor in Rhode Island but can’t exactly explain why she can't go to a local PM doc because it’s complicated (lol doctor shopping lol). Got labs back, she’s anemic, her CD-57 is somewhat higher but still super low (CD-57 is woo and even some chronic lyme pseudoscience peddlers say it’s not useful at all), starts low-dose allergens, getting ready to start the DesBio homeopathy series.
A week later she’s got a cerebrospinal fluid leak that’s potentially causing the headache. My quick googling suggests this is an emergency that needs surgery to fix before you get meningitis. Luckily she has the special woo version that’s been there her whole life and has never become an emergency or led to meningitis or caused any problems until she decided anorexia didn’t get her enough attention.
November 13 she goes to her OBGYN to look for more things wrong with her, namely endometriosis which she wants an exploratory surgery for, but isn’t sure her body can handle it.
On her 30th birthday, a miracle! Her husband takes her out ice skating. In her wheelchair. How is this even allowed? After this attention-grabbing stunt, she’s MIRACULOUSLY able to skate on her own. Of course, when she’s home she crashes so hard she can only “army crawl” around her house. Becca, pro tip, if you want it to look like you can’t feel your legs, they should be dangling limp behind you, not curled up and able to push you forward.
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A few days later she vomited and dislodged her feeding tube after trying to eat. Conveniently, this happens when no one is home to see what happened. Hmmm.. sound like someone is purging violently to me. EMS and her parents have to coordinate to get her out of the house because she plays cripple girl and almost gets her door axed down. That’ll teach Roger to leave his wife alone!
December 6th she makes her masterpiece, “I CHOOSE ALL GOOD THINGS. THANKS, KATE FARMS!” which is the video I found a few weeks later. Other than the obvious ice pack, squinty face, and ear muff, I noticed that she was balding under her hair band, listing a dozen things she thought were wrong with her, got some Young Living oils and a useless monolaurin topical, and was made a Kate Farms ambassador/got a box of free junk from them, goes to a doctor far enough away to need a hotel room, and made her husband eat dinner alone. Wow, what an introduction!
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Nice hairline, Becca.
The next day she goes to the Ohio State University Medical Center for testing. This meeting was supposed to be with a neurosurgeon but that doesn’t pan out for poor Becca and now she needs to find a doctor who knows how to handle her very special case. She’s been “unofficially diagnosed” with EDS. She’s mad that the doctors don’t test for lyme unless the patient brings it up because chronic lyme is a made up condition that they don’t want to waste resources on unless they need to prove to someone that they don’t have it.
Most of December was just christmas and Jesus sperging so early in January she made up for it with a new health update. She’s going forward with the endo exploratory. On the 7th she has four MRIs in a row. She cries because she’s allergic to the contrast and her nervous system is on the fritz. These are going to be sent to OSU’s neurosurgeon.
By this point she’d stopped daily vlogs and moved on to once a week or so, so her next real update is February 12 when she livestreamed. She claims her physical health is why she couldn’t vlog because she was too weak to edit. She ruled out endo but she cried about pain after the procedure until they kept her overnight on pks and uses the pain as an excuse to be a total cunt to everyone. She claims to be able to see the trigeminal pain on one of the MRIs and a few other things that she wants them to look into..
March 1 the candida is back and is infecting her stoma and her face (actually looks like cold sores or the rash some bulimics get from purging). With the candida comes the coffee enemas. A few days later she films herself screaming while she dries her hair because her pain from sound sensitivity is SO SERIOUS but the pain from wet hair is also SO SERIOUS.
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Things are currently quiet in the Beccaverse as she is running out of problems to complain about and her life has gone from happy outgoing young woman to 30 year old who doesn’t leave her bedroom. As of late June she’s restarted low-dose immunotherapy for her MCAD and lyme disease and spends all her time crying over how much it hurts. She’s preparing to see this new pain management doctor in Rhode Island soon and the neurosurgeon at OSU. I can’t promise she’ll be entertaining in the future but it looks like she’s gearing up for some more diagnoses and a hilarious painkiller saga.
Edit: misplaced some images
Ok see what you was saying this one defo deserves her own thread lol
Oh I love the fat ones! Great find with this one.
Thanks for the munchie dump today. It’s like munchie Christmas.
iluvmylife
kiwifarms.net
- Joined
- Jun 27, 2019
- Joined
- Jan 6, 2019
Woah woah... ketamine infusions?? That’s niche stuff. What for? That’s fairly untested for pain. It does however increase the effectiveness of analgesics in people who are resistant and it works a treat for very resistant depression. Is that a tacit admission she’s a painkiller addict and being treated for depression?
Also who the fuck is giving an ankylosis spondylitis diagnosis without concrete signs and tests? AS should be visible on imaging and the majority of sufferers are HLA-B27 positive. Enbrel is one of the ‘milder’ TNF alpha inhibitors but it still has side effects.
And I know mad on the internet... but .,, The ones who abuse their kids make me sad and mad. I can laugh at the ones doing it to themselves but to abuse children like that is just so awful.