AnotherLolAnon
kiwifarms.net
- Joined
- Feb 25, 2018
I have a newbie to introduce. Everybody, meet Chronically_ash.
Instagram: https://instagram.com/chronically_ash?igshid=174zw3bc67ped
Ashley Petersen. 24 year old master's of social work student in California. Diagnosed with POTS and depression. Hunting and hoping for a whole lot more.
Relatively new to Instagram, but based on the pill porn and doctor shopping, a lot of potential here. Sadly, not a very frequent poster.
I discovered her on July 25th thanks to her comment on Mary Frey's IG post about recording doctors wherein she complains about her doctors and her mom.
From there I went spelunking.
Instagram: https://instagram.com/chronically_ash?igshid=174zw3bc67ped
Ashley Petersen. 24 year old master's of social work student in California. Diagnosed with POTS and depression. Hunting and hoping for a whole lot more.
Relatively new to Instagram, but based on the pill porn and doctor shopping, a lot of potential here. Sadly, not a very frequent poster.
I discovered her on July 25th thanks to her comment on Mary Frey's IG post about recording doctors wherein she complains about her doctors and her mom.
From there I went spelunking.
Her Instagram starts on March 18th with a picture of her and an IV, talking about weekly saline IV infusions for POTS. Pretty generic.
That same day she talks about how she can't bathe.
Next day she decides she should take a real shower because people at work are commenting on how greasy her hair is.
Already on her hashtag game, tagging dysautonomia awareness, spoons, spoonie, spoontheory, and any tag for POTS she can think of.
March 20th she shows us how she uses sugary, caffeinated beverages to stay hydrated. You'd have to be a Potsie to understand.
March 21st brings her first mention of pain and her first medication picture.
Also March 21st. Starting to collect medical accessories. Feeling "not too exhausted" from her heart rate of 108 in the shower. Her doctor says her body is elderly.
March 25th. Showing off her awareness swag like a good chronic illness warrior.
March 27th. 17 bands from the ER and urgent care, because that's where she goes for her infusions, because her doctor won't give them to her scheduled. Why are they kept? Fond memories? #jewelry
March 30th. Showing off a normal blood pressure. It's usually normal. More medical gadgets. Everyone needs an on-the-go BP cuff to trend their normal blood pressures.
Showing off her weighted blanket. Tagging anxiety and depression now. Still March 30th.
March 31st. Proud of herself for standing for an hour. But going to the zoo and going to be a social worker. That should go well.
April 1st. Bring on the pill porn.
April 4th. Zofran, talk of nausea, and tagging GI problems. Hoping for a gastroparesis diagnosis?
Also April 4th. Now flushing. #unknown. When will the barrage of symptoms end? Aiming for MCAS too?
April 5th. Showing off her collection of Walmart leggings. I wonder if she learned this from Mary or Jacquie?
April 12th. Not really included for any reason except being incredibly over the top and probably fishing for a port.
April 14th. Spoonie Swag!
April 15th. More pill porn. Featuring Prilosec, Prozac, some OTT meds, and other unidentified.
April 17th. Can't finish driving home. Planning on going to the ER. Looking forward to going to Stanford for a consult.
Still April 17th. Does indeed end up in the ER for a life saving IV.
April 24th. Sharing her heart rate spikes that don't go above 122, calling it more tachycardia than usual. Stanford says she probably has POTS, but her orthostatics were normal and her symptoms aren't explained by POTS. They don't like her getting fluids.
April 25th. Their approach to increasing salt intake? Fill a bunch of pills with sea salt.
April 26th. In the ER getting IV fluids two days after she was told to lay off the fluids.
May 9th. Getting a new doctor. Gotta keep those fluids.
May 10th. Handing out with another IG spoonie. Tagging MCAS, presumably because of the SpoonieKat's diagnosis?
May 27th. Posting more relatively normal heart rates, despite being outside at the county fair, in late May, in California.
May 29th. In which the urgent care doctor calls her a hypochondriac, tells her that fluids are a placebo, she doesn't agree with the vitals they got, and the nurse recommends a port. Also, accusations of abusing urgent care. All in all, a great post.
June 2nd. You might be over the top if you use 3 devices at a time to try and convince yourself you're orthostatic.
June 5th. She threatens her doctor with going to the ER. He threatens her with insurance not covering them. A great working relationship they've got there.
June 7th. Going to the ER for benadryl. Sound familiar? Tagging chronic fatigue symptoms because her doctor told her she's not severe enough for chronic fatigue syndrome.
(This is the same post) June 11th. She's trying so hard for that MCAS diagnosis. The third picture is just another peripheral IV picture.
June 14th. Can't get IV fluids any more because Stanford says that evidence doesn't support it. This makes her depression worse.
June 16th. Obsessing over her BP and taking it every 3 minutes. I like her "not that my doctor would care any way" tag. Remember kids, when your doctor doesn't do what you want, it's always because they don't care.
June 18th. More urgent care for fluids. Doctor tells her to drink instead and stop wasting their time. But posting pictures of Powerade is boring.
June 19th. Gets a package from a Spoonie care package company like any good Spoonie Influencer would.
July 2nd. More relatively normal heart rates. More pushing for an MCAS diagnosis.
July 8th. Allergist won't diagnose MCAS. Keep shopping.
July 10th. Worst episode she's ever had and she was only presyncopal? She's gotta up her game or she's never going to get a port!
July 12th. As if it's any surprise, she went to the ER anyway where she managed to score a decent work up. Spoiler alert: her CT was normal along with everything else except her ferritin.
July 22nd. Finally, what would any good chronic illness warrior be without an ill tempered therapy dog?
That same day she talks about how she can't bathe.
Next day she decides she should take a real shower because people at work are commenting on how greasy her hair is.
Already on her hashtag game, tagging dysautonomia awareness, spoons, spoonie, spoontheory, and any tag for POTS she can think of.
March 20th she shows us how she uses sugary, caffeinated beverages to stay hydrated. You'd have to be a Potsie to understand.
March 21st brings her first mention of pain and her first medication picture.
Also March 21st. Starting to collect medical accessories. Feeling "not too exhausted" from her heart rate of 108 in the shower. Her doctor says her body is elderly.
March 25th. Showing off her awareness swag like a good chronic illness warrior.
March 27th. 17 bands from the ER and urgent care, because that's where she goes for her infusions, because her doctor won't give them to her scheduled. Why are they kept? Fond memories? #jewelry
March 30th. Showing off a normal blood pressure. It's usually normal. More medical gadgets. Everyone needs an on-the-go BP cuff to trend their normal blood pressures.
Showing off her weighted blanket. Tagging anxiety and depression now. Still March 30th.
March 31st. Proud of herself for standing for an hour. But going to the zoo and going to be a social worker. That should go well.
April 1st. Bring on the pill porn.
April 4th. Zofran, talk of nausea, and tagging GI problems. Hoping for a gastroparesis diagnosis?
Also April 4th. Now flushing. #unknown. When will the barrage of symptoms end? Aiming for MCAS too?
April 5th. Showing off her collection of Walmart leggings. I wonder if she learned this from Mary or Jacquie?
April 12th. Not really included for any reason except being incredibly over the top and probably fishing for a port.
April 14th. Spoonie Swag!
April 15th. More pill porn. Featuring Prilosec, Prozac, some OTT meds, and other unidentified.
April 17th. Can't finish driving home. Planning on going to the ER. Looking forward to going to Stanford for a consult.
Still April 17th. Does indeed end up in the ER for a life saving IV.
April 24th. Sharing her heart rate spikes that don't go above 122, calling it more tachycardia than usual. Stanford says she probably has POTS, but her orthostatics were normal and her symptoms aren't explained by POTS. They don't like her getting fluids.
April 25th. Their approach to increasing salt intake? Fill a bunch of pills with sea salt.
April 26th. In the ER getting IV fluids two days after she was told to lay off the fluids.
May 9th. Getting a new doctor. Gotta keep those fluids.
May 10th. Handing out with another IG spoonie. Tagging MCAS, presumably because of the SpoonieKat's diagnosis?
May 27th. Posting more relatively normal heart rates, despite being outside at the county fair, in late May, in California.
May 29th. In which the urgent care doctor calls her a hypochondriac, tells her that fluids are a placebo, she doesn't agree with the vitals they got, and the nurse recommends a port. Also, accusations of abusing urgent care. All in all, a great post.
June 2nd. You might be over the top if you use 3 devices at a time to try and convince yourself you're orthostatic.
June 5th. She threatens her doctor with going to the ER. He threatens her with insurance not covering them. A great working relationship they've got there.
June 7th. Going to the ER for benadryl. Sound familiar? Tagging chronic fatigue symptoms because her doctor told her she's not severe enough for chronic fatigue syndrome.
(This is the same post) June 11th. She's trying so hard for that MCAS diagnosis. The third picture is just another peripheral IV picture.
June 14th. Can't get IV fluids any more because Stanford says that evidence doesn't support it. This makes her depression worse.
June 16th. Obsessing over her BP and taking it every 3 minutes. I like her "not that my doctor would care any way" tag. Remember kids, when your doctor doesn't do what you want, it's always because they don't care.
June 18th. More urgent care for fluids. Doctor tells her to drink instead and stop wasting their time. But posting pictures of Powerade is boring.
June 19th. Gets a package from a Spoonie care package company like any good Spoonie Influencer would.
July 2nd. More relatively normal heart rates. More pushing for an MCAS diagnosis.
July 8th. Allergist won't diagnose MCAS. Keep shopping.
July 10th. Worst episode she's ever had and she was only presyncopal? She's gotta up her game or she's never going to get a port!
July 12th. As if it's any surprise, she went to the ER anyway where she managed to score a decent work up. Spoiler alert: her CT was normal along with everything else except her ferritin.
July 22nd. Finally, what would any good chronic illness warrior be without an ill tempered therapy dog?
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. you know there will be a time when she will really need a good vein and they'll be all blown, necrosed to be used smh
