The first thing I noticed was that she seems to have a very low tolerance for discomfort. Most people experience aches, pains, anxiety, and inconveniences in their day to day life. However, most people also have the resilience to know that these discomforts are temporary. Morgan, however, seems to be incapable of self-soothing. She cannot sit with discomfort. Instead of accepting that certain situations make her anxious, or that she is in pain (she references 'severe pain' but it doesn't seem like this pain is severe enough to keep her from participating in everyday activities, so it seems that her definition of severe pain is different from the medical definition. Dusk may have mentioned her cluster headaches, and I developed CRPS in my wrist, ankle, and shoulder after a fall. Severe pain (7/10 out of 10) interferes with clear thinking at the very least, and will cause you to lose consciousness at the higher end of the scale. People who have never experienced severe pain can overestimate where they lie on the pain scale without being intentionally deceptive, but when someone is doing this for the purpose of getting drugs, or when it falls into a predictable pattern of malingering or seeking attention, that's when the patient becomes an unreliable narrator. Most people could be bounced from doctor to doctor if they took the ordinary oddities of the human body and brain as medical problems instead of part of life.
This hospice scenario is just absurd. I find it disgusting that this girl has been taking up resources badly needed for ill and dying patients. Palliative care can be a godsend for terminally ill people. Ehlers-Danos Syndrome is not a terminal illness. To think that dying patients might have missed out on care...it's every hospice doctor's worst nightmare. This mother demonstrates very little insight into the consequences of her own behavior, and a staggering degree of entitlement. Administering too much pain medication shows a doctor that she cannot be trusted. And as a medical professional, it's your head in the smasher if you have a patient overdose, or if you're given wrong information and make a mistake based on an unreliable history. Moreover, diagnoses cannot be "proven," unless this is diagnosed via blood test or genetic screening. When you're dealing with something that is like the Beighton criteria, which is more qualitative than quantitative or objective (and considering that around 25% of women are hypermobile, with no pathology implied), you can't "prove" a diagnosis like that. It'll always be up for revision. Seeing how her mother acquitted herself made the picture became a bit clearer to me. I suspect that this is a girl that has never been told "no" or expected to soothe herself. It would be reductive to blame everything on her, but it's evident to me that this is a lazy parent. It's easier for her to go along with her daughter than it is to parent. This feels like a parent who feels like she missed her chance to set boundaries. I don't have any children, but when my father was raising me (and when my brother was raising his kids), the emphasis was on building independence. A lot of parents these days seem to be building children destined to never be independent. This is a girl whose only skill is getting attention. She is in a perpetual state of infancy, eternally being catered to. She knows that she is so far behind her peers that she can't catch up, and this role of patient is the only role that she knows how to inhabit. What is truly sad is how her mother has enabled her.
Apparently this was posted to a private parent's group. It speaks volumes to me that she can say this to strangers but not her own daughter. She'll enable her to her face, and trash talk her privately. That being said, I don't believe that this is Munchausen by proxy. When people settle into patterns of behavior in relationships, they can be very difficult to break. I just think that they have decided that their relationship is defined with one of them as the "Mama Bear" (ugh) and one of them as the ill, dying waif, and neither of them have found sufficient motivation to break it.
I don't have anything particularly clever to say about this, except that if you had a CSF link, you would know it. A friend of my sister-in-law developed one after her dura mater was turn during an epidural, and she couldn't move without a horrific headache. Parkinson's is 50% more common in men than in women, and anyone who becomes symptomatic before 50 is termed "early onset," and only 2% of those diagnosed are under 40.
This tells me that she is self-centered in that she has an overinflated sense of her own importance in other people's lives. Especially on the internet, everyone can overestimate how much people care about the details of their life. But I can't imagine than many people would believe that their internet friends would take time out of their day to "white knight" them online. Especially in a place so unfriendly towards the uninitiated. Most people might be distressed for a day or so, but they wouldn't feel this unquenchable need to prove themselves to strangers. People only feel the need to elaborate that much on a lie. When someone gives too many details, that's a sign of deception. I'm sure you don't need me to tell you that she's lying.
Anyhow, that's my initial read based on the evidence I recieved. If anyone has anything I missed that they would like me to react to, just send it to Dusk and I'll take a look at it. I got nothing but time for the foreseeable future, and this is genuinely interesting. I was a little surprised by Dusk's interest in this community, but I have to say, there's a lot of perceptive internet archaeology being done in regards to Munchausen by internet.
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