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TrainwreckThe Empathic Nutritionist / Empathic Mamahood / Robyn Grogitsky-Ramirez / Luna Elva Ramirez / Glenn Ramirez / Atlas Glenn Standford Ramirez - Eyefucking Sociopath Selfie Addict Mother and Closeted Gymrat Pothead Father who use Instagram to Parade their Homemade Homunculus Tard Baby Created by their Refusal to Follow any Medical Oversights
Psycho Mommy has been posting a lot of pictures and videos of baby Luna, pre-diagnosis (she is absolutely silent in them), is this her way of distracting from the negative feedback?
Poor Stetson. He's almost as bad off as Luna, though in some videos he seems a little more aware. Holoprosencephaly is a spectrum disorder, with "cyclops babies" who have the alobar form at one end and very mildly affected kids with some degree of separation of the brain hemispheres on the other. It all depends on how malformed the brain is. Matthew Nel, the child who has to be resuscitated multiple times every day and cannot be left unsupervised for even a few minutes, also has (semilobar?) holoprosencephaly. Life expectancy for any form of the disorder is not great, with death usually occurring in early childhood because of respiratory illness.
I really don't think anyone here hates the babies or children being discussed. It's obviously not their fault that this is their existence. These "mothers" actively seek out things to be outraged over, and that's almost as disgusting as forcing a child to suffer every moment of his existence. What is the endgame here? What is the purpose of Stetson or Luna or any of these other kids continuing to exist, almost certainly in pain of some kind, day in and day out until their bodies cannot be forced to do it anymore? With "normal" humans, we can justify suffering by suggesting that it serves a didactic purpose, or that things will eventually get better. For Stetson, Luna, and other kids like them, though, this shit is the "better". How can any mother wake up every day and look into the face of the person they claim to love most in the whole world, knowing that this day, like all others before and to follow, will be filled with pointless, meaningless suffering inflicted by their own hands?
Poor Stetson. He's almost as bad off as Luna, though in some videos he seems a little more aware. Holoprosencephaly is a spectrum disorder, with "cyclops babies" who have the alobar form at one end and very mildly affected kids with some degree of separation of the brain hemispheres on the other. It all depends on how malformed the brain is. Matthew Nel, the child who has to be resuscitated multiple times every day and cannot be left unsupervised for even a few minutes, also has (semilobar?) holoprosencephaly. Life expectancy for any form of the disorder is not great, with death usually occurring in early childhood because of respiratory illness.
I really don't think anyone here hates the babies or children being discussed. It's obviously not their fault that this is their existence. These "mothers" actively seek out things to be outraged over, and that's almost as disgusting as forcing a child to suffer every moment of his existence. What is the endgame here? What is the purpose of Stetson or Luna or any of these other kids continuing to exist, almost certainly in pain of some kind, day in and day out until their bodies cannot be forced to do it anymore? With "normal" humans, we can justify suffering by suggesting that it serves a didactic purpose, or that things will eventually get better. For Stetson, Luna, and other kids like them, though, this shit is the "better". How can any mother wake up every day and look into the face of the person they claim to love most in the whole world, knowing that this day, like all others before and to follow, will be filled with pointless, meaningless suffering inflicted by their own hands?
Yea could never hate the child it had no choice in being the way it is or to have the parents it does. In a weird way, these threads actually give awareness to disorders that no one would ever hear of otherwise.
Yea could never hate the child it had no choice in being the way it is or to have the parents it does. In a weird way, these threads actually give awareness to disorders that no one would ever hear of otherwise.
To me, it's just so short sighted and regressive to reeeeeee about "hate" when really, 99.999% of people who discuss these kids here (or anywhere else) are really just horrified by the possibility that some kid somewhere is suffering or in pain. Even those of us who don't particularly like children are atavistically repulsed by the idea of an innocent, powerless person being forced to suffer with no possible respite. I think it's an evolutionary thing.
Instead of using this as starting point for reflection about what their kid's life actually means, they just scream about how we hate disabled kids.
To me, it's just so short sighted and regressive to reeeeeee about "hate" when really, 99.999% of people who discuss these kids here (or anywhere else) are really just horrified by the possibility that some kid somewhere is suffering or in pain. Even those of us who don't particularly like children are atavistically repulsed by the idea of an innocent, powerless person being forced to suffer with no possible respite. I think it's an evolutionary thing.
Instead of using this as starting point for reflection about what their kid's life actually means, they just scream about how we hate disabled kids.
The reason people like this are so defensive is because, deep down, they know those who are speaking up are right. Robyn wants to think of herself as an amazing "mama" when, if you look at this realistically, it's a woman who refuses to get her child the proper medical care she needs. And of course she knows this, there is absolutely no way she doesn't. She more than likely wants to avoid even thinking that her beliefs and practices aren't actually helping her child. That she really isn't a good mom and her idiotic beliefs are probably why Luna is disabled in the first place. So anyone threatening this safety net that Robyn has created for herself is automatically a "hater".
It’s like watching the Hartleys all over again. Delusional mom, talking about essential oils and how her kids are doing better and better, when they are clearly dying. Refusing medical care, getting very expensive PT for children who simply cannot recover-all the while, mostly ignoring their only healthy child.
If this was my child, I would have hospice in. She’d get medications for discomfort, a calm and peaceful room with no sudden tickles or useless uncomfortable PT. Warm baths, soft PJs, gentle hugs, pain and epilepsy meds, and let nature take its course. It might take a week, it might take two years, but no pretending she has the possibility of a life. You have to love a child enough to let it go sometimes, as horrible as it sounds. This one is going to die either way, why not in peace?
There is something seriously wrong with a mother who had a home birth that caused this kind of brain damage, than saw fit to do it again. She’s either deluding herself that she’s at fault or doesn’t care. But it seems like you should get your parenting card removed if after an outcome like that, you try it again. And dad clearly is making up for lack of balls by trying to grow weird muscles, because a normal guy would say, “we are going to the hospital this time.”
These crunchy moms are bad enough with a normal kid, but they get a sick one and full narcissism goes on display.
The reason people like this are so defensive is because, deep down, they know those who are speaking up are right. Robyn wants to think of herself as an amazing "mama" when, if you look at this realistically, it's a woman who refuses to get her child the proper medical care she needs. And of course she knows this, there is absolutely no way she doesn't. She more than likely wants to avoid even thinking that her beliefs and practices aren't actually helping her child. That she really isn't a good mom and her idiotic beliefs are probably why Luna is disabled in the first place. So anyone threatening this safety net that Robyn has created for herself is automatically a "hater".
In Robyn’s case she absolutely knows her dumb homebirth nonsense caused this unspeakable tragedy. I think she’s in deep denial and as a result decided to double down on woo. Not doing homebirth number 2 would have been an admission that she personally is responsible for her daughter’s demise via the first home birth. I think it’s also why she manically pretends Luna is improving.
This bitch puts her know-it-all woo ideas way ahead of the life of her children because she’s a looney narcissist who believes she’s a superior spiritual being.
So Robin has a course starting up in April with another instagram "Mama" @Gianna_Colilli as she puts it.
She may or may not have forgot to mark her course as requiring payment to view it and it may or may not be completely avaiable right now to view and download.
How she "speaks" with Luna
Tarot Cards:
Moonology Oracle Cards by Yasmin Boland
This is my (Robyn's) special Luna deck. I bought this one to connect with Luna deeper during pregnancy and now use it with her during readings for her to help give messages of her own!
How she "Medically" helps Luna
Crystals for Hydrocephalus/Deep Neurological pain/ traumatic brain injury:
Amazonite (aides in treatment of disorders of the nervous system, aides in cell regeneration/healing, soothe trauma, calms the mind, alleviates fear).
Amber (draws out pain via electrostatic influence, stimulates the body’s natural healing abilities, place over thymus glad to prompt whole body healing or over specific organs, alleviates stress/anxiety).
Amethyst (the “all healer” stone, calms/soothes, stimulates the sympathetic nervous system, reduces pain/inflammation/stress/nerves, brings deep sleep, calming/soothing to neural impulses in the brain, alleviates pain from headache/migraine).
Aragonite (improves pain, stops nerve spasms, fights dis-ease, helps one to feel comfortable inside their body, dissipates stress/anxiety, calms the mind and aids in deep sleep).
Blue kyanite (“healer stone” works to unblock the energetic body to allow proper flow which alleviates pain & allows nerves/tissues to reestablish pathways through and around the physical trauma, a natural pain reliever, reduces inflammation, powerful in aiding healings of brain traumas as it can help to create new neural pathways around the damage, fortifies the functions of the cerebellum/motor nervous system, improving mobility/dexterity)
Blue lace agate (aides in fluid balance around the brain)
Brandberg amethyst (master healer carries the resonance for profound cellular healing, encourages new neural pathways to increase limbic brain function)
Clear quartz (“master healer”, amplifies the energy of all the other crystals)
Goshenite (balances the body fluids)
Green fluorite (for deep neurological pain)
Howlite (brings deep sleep, calms anxiety and distress).
Iolite (strengthens nerves and helps one with pain tolerance)
Lapis lazuli (supportive for nervous system and brain disorders and relieving inflammation and pain)
Larimar (dissolves blockages of the head/neck)
Nuummite (relieves pain and discomfort degenerative conditions and those of the central nervous system)
Pietersite (stimulating and strengthening to brain nerves and eases nervous system disorders)
Pink tourmaline (balances the right/left brain hemispheres)
Pink quartz (beneficial in treating brain dysfunction)
Selenite (stimulates physical healing, supportive of the nervous system, stabilizing to epileptic/seizure disorders, calms/stabilized emotions, absorbs negative emotions/energies).
Smoky quartz (relieves chronic pain and deep brain pain, helps regulate fluids in the body, and provides regenerative benefits to nerve tissues)
Sugilite (excellent pain reliever and decreasing inflammation)
Yellow fluorite (highly beneficial for nerve related pain, reduces pain related to swelling, alleviates disturbances of brain wave frequencies by increasing the electrical charge of brain cells and balancing the brain’s chemistry)
Seizures:
Black onyx (strengthens the functions of the brain, improves circulatory system functions)
Blue lace agate (aides in reduction of symptoms of epilepsy)
Diamond (strengthens nervous system functions and helps balance brain hemispheres
Emerald (stabilizing to epileptic/seizure disorders)
Jasper (support epileptic treatments)
Jet (deeply calming)
Kunzite (aides in calming epileptic seizures)
Lapis lazuli (aides in healing the nervous system and bringing calm/stabilizing emotions that might trigger seizures)
Lepidolite (helps to relieve epileptic symptoms)
Malachite (aides in the treatment of epilepsy)
Moss agate (aides in reducing symptoms of epilepsy)
Pyrite (improves function of the nervous system)
Red jasper (soothes epileptic symptoms)
Selenite (stimulates physical healing, supportive of the nervous system, stabilizing to epileptic/seizure disorders)
Sugilite (supports brain centers and brain hemispheres to come into balance, thought to relieve brain malfunctions such as epilepsy or neurotransmitter glitches)
Triphane Spodumene (assists in treatments for epilepsy)
Unti 1 : The Basics of Being an Empath
Welcome to the Overwhelmed Empath Academy!
Support during the Academy
Empath Basics
What Type(s) of Empath are You?
Exploring Levels of Consciousness, Dimensions, and Vibrations
Grounding 101
Guided Meditation: Grounding Cord
Guided Meditation: Grounding Roots
Live New Moon Ritual How to with Robyn
Week 1 Live Group Call
Week 1 Live Distant Reiki Group Session
Recording of Week 1 Group Live
Recording of Week 1 Live Distant Reiki Group Session
Recording of New Moon Ritual How To
Unit 2: Navigating the World as an Empath
Learn all about navigating the world as an empath, including learning about your intuition and ego and how to harness your intuition to quiet the ego.
The Clair Senses
Quiz: What Clair(s) do I have?
Intuition vs. Imagination and the Role of the Ego
Spirit Guides & Your Team of Light
At Home Intuition Practice Techniques
Guided Meditation: Opening you Third Eye to Increase Intuition
Week 2 Live Group Call
Week 2 Live Distant Reiki Group Session
Week 2 Live Intuitive Reading
Recording of Week 2 Live Distant Reiki Group Session
Recording of Week 2 Live Intuitive Reading
Recording of Week 2 Live Group Session
Unit 3 :Empath Hygiene 101
Learn the basics of empath hygiene; how to keep yourself grounded, protected and connected.
Meditation Basics
Connecting
Guided Meditation: Connecting
Energy Protection and Clearing
Selenite- Energetic Vacuum Exercise
Black Obsidian- Cord Cutting Exercise
Smudging- How to Cleanse your Energy
Guided Meditation: Energy Clearing
Guided Meditation: Energy Protection
Week 3 Live Group Call
Week 3 Live Distant Reiki Group Session
Week 3 Live Intuitive Reading
Recording of Week 3 Live Distant Reiki Group Session
Recording of Week 3 Group Live
What didn't record from the Week 3 Group Live
Recording of week 3 Live Intuitive Reading
Unit 4 : Turning Your Empathic Abilities Into Your Superpower
Practical tips for having an easier time in life as an empath.
Creating Energetic Boundaries
Breath Work for Empaths
Tools and Specific Ways to Strengthen your Intuition & Abilities
Ways to Utilize your Empathic Abilities
Archangel Michael Clearing
Loving Kindness Blessing
Q & A Ebook
Week 4 Live Group Call- Question and Answer
Week 4 Live Distant Reiki Group Session
Recording of Week 4 Live Group Reiki Session
Recording of Week 4 Group Live- Question and Answer
$111
(This is for the self-paced, pre-recorded version of the academy)
$222
(50% off the normal price of $444 for the first 11 empaths who sign up)
OR
Package 1 ($333):
Includes full access to the Academy + 2 (45 minute) one-on-one video calls with Robyn & Gianna. In these video calls you will get even more personalized support ad guidance through the program!
OR
Package 2 ($444):
Includes full access to the Academy + 4 (45 minute) one-on-one video calls with Robyn & Gianna.
So Robin has a course starting up in April with another instagram "Mama" @Gianna_Colilli as she puts it.
This private information is unavailable to guests due to policies enforced by third-parties.
This private information is unavailable to guests due to policies enforced by third-parties.
This private information is unavailable to guests due to policies enforced by third-parties.
Unti 1 : The Basics of Being an Empath
Welcome to the Overwhelmed Empath Academy!
Support during the Academy
Empath Basics
What Type(s) of Empath are You?
Exploring Levels of Consciousness, Dimensions, and Vibrations
Grounding 101
Guided Meditation: Grounding Cord
Guided Meditation: Grounding Roots
Live New Moon Ritual How to with Robyn
Week 1 Live Group Call
Week 1 Live Distant Reiki Group Session
Recording of Week 1 Group Live
Recording of Week 1 Live Distant Reiki Group Session
Recording of New Moon Ritual How To
Unit 2: Navigating the World as an Empath
Learn all about navigating the world as an empath, including learning about your intuition and ego and how to harness your intuition to quiet the ego.
The Clair Senses
Quiz: What Clair(s) do I have?
Intuition vs. Imagination and the Role of the Ego
Spirit Guides & Your Team of Light
At Home Intuition Practice Techniques
Guided Meditation: Opening you Third Eye to Increase Intuition
Week 2 Live Group Call
Week 2 Live Distant Reiki Group Session
Week 2 Live Intuitive Reading
Recording of Week 2 Live Distant Reiki Group Session
Recording of Week 2 Live Intuitive Reading
Recording of Week 2 Live Group Session
Unit 3 :Empath Hygiene 101
Learn the basics of empath hygiene; how to keep yourself grounded, protected and connected.
Meditation Basics
Connecting
Guided Meditation: Connecting
Energy Protection and Clearing
Selenite- Energetic Vacuum Exercise
Black Obsidian- Cord Cutting Exercise
Smudging- How to Cleanse your Energy
Guided Meditation: Energy Clearing
Guided Meditation: Energy Protection
Week 3 Live Group Call
Week 3 Live Distant Reiki Group Session
Week 3 Live Intuitive Reading
Recording of Week 3 Live Distant Reiki Group Session
Recording of Week 3 Group Live
What didn't record from the Week 3 Group Live
Recording of week 3 Live Intuitive Reading
Unit 4 : Turning Your Empathic Abilities Into Your Superpower
Practical tips for having an easier time in life as an empath.
Creating Energetic Boundaries
Breath Work for Empaths
Tools and Specific Ways to Strengthen your Intuition & Abilities
Ways to Utilize your Empathic Abilities
Archangel Michael Clearing
Loving Kindness Blessing
Q & A Ebook
Week 4 Live Group Call- Question and Answer
Week 4 Live Distant Reiki Group Session
Recording of Week 4 Live Group Reiki Session
Recording of Week 4 Group Live- Question and Answer
$111
(This is for the self-paced, pre-recorded version of the academy)
$222
(50% off the normal price of $444 for the first 11 empaths who sign up)
OR
Package 1 ($333):
Includes full access to the Academy + 2 (45 minute) one-on-one video calls with Robyn & Gianna. In these video calls you will get even more personalized support ad guidance through the program!
OR
Package 2 ($444):
Includes full access to the Academy + 4 (45 minute) one-on-one video calls with Robyn & Gianna.
I've taken some really bad Instagram "courses" but this reads less like a course and more like a high schooler's notes app. I can't imagine paying even $10 for this.
Who needs pre-natal medical care when you have aura photos?
And similarly, why bother with well baby visits with an M.D.? You can actually just get a baby aura photo done to see if their vibes are good.
Actually the worst part is actually seeing where she keeps the crystals that she uses in lieu of epilepsy medication.
I wonder if you can also buy crystals that she infuses with magic bullshit after she receives them from AliExpress. Maybe she has some interesting rocks in her driveway that will restore Luna's optic nerves. Magic spells are a more attractive purchase if they come with pretty rocks, or perhaps a painted stick. TWU
Luna has multicystic encephalomalacia a progressive disorder which causes cystic hydrocephalus, & intractable epilepsy. She was on pain medication and seizure medications until her mother decided she had no need for these and reiki, young living oils, crystal and angel healing were better options. This disorder is predominantly caused by an anoxic event (lack of oxygen caused by injury during labor or delivery) or maternal infection. The daughter has constant seizures which she displays in her instagram posts attempting to normalize them as behaviors. Luna was/is on oxygen and checked via pulse ox for its usage if she hits 80%. The parents also admit that there were times she had cyanotic spells (she would turn blue and stop breathing).
One poster commented about the home birth that:
"Since she was in labor for three days there was obvious fetal distress and a competent midwife would have after 24 hours demanded she go to a hospital....So when a home birth starts being not fine, they ignore, and believe they are being heroic moms by sticking to squirting out a baby in a hot tub no matter what. The problem is a large majority of the women enamored with having a “home birth experience” have little common sense, they use woefully unprepared woo doulas and midwives that have little medical training. Everyone is more dedicated to avoiding the dreaded hospital birth than the health of the baby. A mother going to hospital the hospital is deemed a failure, not a precaution. (Also they don’t get their full fee if a doctor does the delivery and mothers get upset being stuck with an expensive hospital bill for a emergency delivery.)"
"According to independent t-test, there is a statistically significant relationship between Glasgow Coma Scale and hydrocephalus (P=0.03)" Worse the hydrocephalus the lower the score the P means that there was a 99.97% this was NOT due to chance.
She shows reflexes also that should not exist at her age such as the Palmer grasp reflex which is what you see in very young infants that allows them to grasp your fingers if you touch the middle of their palm. At her age this is another clear indication of brain damage and usually means issues with the frontal lobe. She shows sunning, conjugate down gaze in the primary position, which is a sign of high intracranial pressure most commonly shown in patients with failed hydrocephalus shunts.
Due to lack of ability to close eyes it is hard to score her on that I don't believe we have ever seen her make meaningful eye contact.
Eye opening : 1
Motor Response : 3
Verbal Response : 2 (Anything videoed to show her agitated has been grunts and not normal crys for direct means)
Total : 6
Categorization:
Best Score : 15 Coma: No eye opening, no ability to follow commands, no word verbalizations ( 3 - 8 )
Unresponsive : 3 or below
Brain Injury Classification:
Minor Brain Injury----GCS score of 13 to 15
Moderate Brain Injury----GCS score of 9 to 12 Severe Brain Injury----GCS score of 3 to 8
Profound Brain Injury----GCS score of 3 or lower
View attachment 2003819
Flowchart to Decide on Persistent Vegetative State (PVS) vs Minimally Conscious State (MCS)
It is quite obvious that the answer to "Is the Patient Conscious?" is a no which rules out MCS right off the bat. Next we chest for brainstem function and apnea, she obviously has brainstem function and nothing has been stated about apnea so we can rule out brain death. Now we look at sleep/wake cycles and if her eyes are open to stimulation or spontaneously. There is no way to know if her eyes open/close since her head is swollen to the point of effecting this, but we do know she has sleep cycles from posts her parents have made. Thus coma is ruled out and she is in a Persistent Vegetative State.
The definition of Traumatic vs Non-Traumatic brain injury is a simple one. Traumatic involves an external force such as a car wreck or shaken baby syndrome. Whereas Non-traumatic is any injury that is internal such as drowning, hypoxia, aneurysms, brain tumors, etc.
As for Luna, she has a non-traumatic brain injury that wherein her persistive vegative state has lasted for over 6 months. Removing her disorder itself form the equation she would be 97% likely to remain in the PVS after a year and 3% to be severely disabled if she went into a MCS.
View attachment 1910079
Figure 1 Gross findings of the central nervous system showing in A – Right lateral view of brain with a depression in the
parietal region with collapse of the meninges, B and C – Coronal slices of brain with multiple cystic spaces in central
white matter and extension onto the overlying cortex.
You can get an idea of the amount of skull deformity in cases as severe as Luna's here. The skull is just obliterated since it never has a chance for any fusions.
Cognitive ability may be effected and usually is, but not always. In these extreme cases it probably is, but you can even have normal pressure hydrocephalus in dementia patients. Sometimes it just totally pushes the skull plates apart as seen in this pic of Roona.
This is why they do head measurements and stuff, the normal well baby visits and check ups people like Luna's mother are against. Yet shes not against all the services she can get now. You really do not usually see children as bad off as Luna in the US because of all the prenatal testing we do. Mainly you see it now in Achondroplasic dwarfs since it's part of their diagnosis and it does not effect them cognitively.
The worst case of Hydrocephalus I have found was Roona Begum who died at 5 years old. This is what happens in 3rd world countries, due to lack of understanding of medical issues, lack of medical help or religious beliefs. This is here to put into perspective how wrong it is for a child like Luna to exist when ultrasounds and medical services could have changed her situation.
You can also see that with the fluid off she appears more alert then Luna ever has.
At three months they were given the diagnosis of what Luna had in response they began taking her to a chiropractor, using essential oils and collagen nutrition therapy in addition to the reiki, angelic healing and energy healing. It seems pain relief was done at times by Rick Simpson Oil and CBD as well. They state that even now CBD is given via the g-tube and mickey button, as well as topically and orally. Does not care if doctors support her decisions to use cannibas, etc with Luna. Feels that she is a superior researcher who knows more then the doctors. She was on Ativan, but the mother didn't fully understand what that was and called it "agitation medication."
Seems Luna was on hospice as of 6 months ago and when asked if she'd be removed now Luna's mother stated that they had no right to even state she had a shorter life expectancy that they know nothing and its not their decision. These services she gets are all via hospice care so she has no plans to get rid of being on hospice.
There are instrgram stories of the chiropractor doing things to her neck and spine as well as using "laser acupuncture." This is after they were told their daughter needed seizure and pain medication. It's hard to know what the medication situation was since she went back and forth on if she used it or not. It seems that as it happened she admitted to it, but then later on she acted like it was all crystals and angelic healing. It appears that once the shunt was put in they suddenly 100% believed she was cured and that her pain and seizures were gone.
The first warning sign things were wrong were that Luna never cried. They state that the only sounds she made were small noises. Even a casual conversation with a doctor would have led to this being looked into, but they did not believe in any wellness checks.
When asked about her vision and hearing she stated that Luna has never been able to close her eyes fully they just deemed this to her looking like a "funny alien" they do not believe she requires drops to keep her eyes moisturized. She states as a baby she slept with her eyes closed maybe 40% of the time and now she doesn't close them to sleep. She finds this as an amusing little quirk of her "Funny Alien Cyborg Girl." When asked about eyesight she said she saw perfectly find at 3 months old and a later check stated she was blind. She has yet to have it checked again, but states the doctors are all wrong and her eyesight is great.
She rages at the doctors stating this is all their fault while forgetting her own decisions lead to this. She believes prior doctors didn't think her life was worth saving because it was complicated and too much work. It also shows how out of touch with reality she is in the hope
of Luna recovering:
Most pictures she posted early on were of her breastfeeding Luna and she recently had a mother on instagram send her a shit load of breastmilk for Luna who is now two years old. It seems this is a common occurrence and she has been having mothers send her "dairy and gluten free" breastmilk since November 2019 for Luna. This appears to be the main form of nutrition Luna receives. Early on it was obvious that Luna was quite malnourished, it is believed that she was breastfeeding Luna past the point where Luna was physically able to swallow Posters noted that this level of malnutrition comes from months and months of being starved.
Some of the beliefs her mother has about food include:
Red colored foods are important to eat because red vibrates at about the same frequency as the root chakra. So, eating red foods helps to maintain the proper root chakra frequency. Yellow/tan/golden colored foods are important to eat because they help raise the body’s frequency to that of the solar plexus, helping to balance it. Purple pigments are important in food because they balance the third eye chakra while also protecting from spiritual overuse or negativity.
Most videos involve Luna actively seizing while they act like nothing wrong. There are videos of her having myclonic jerks, full body seizures, and absence seizures. It is clear her brain is screwed and they have removed her from medication to help with seizures because they state she doesn't have any and reiki heals all. Their earlier videos admitted to the seizure and pain, but they still only would use reiki and their "angelic healing" instead of making their daughter not suffer.
Luna had shunt surgery on April 30th, 2020. Her mother set up a distance reiki session of their followers to be done during her surgery and did multiple reiki sessions and spoke to angels to heal Luna before she went in. She refers to Luna having a shunt as being "a sickass cyborg girl like Cinder from Lunar Chronicles." She states that though the doctors say multicystic encephalomalacia is progressive, she does not believe it will be in Luna. The doctors also informed her this would not drain all her cysts. She later stated its magically drained them all. Her skull has already fused so any soft spots from this will never close on their own without surgery. Luna's mother believes that the brain has always been the normal size its just been squished and that the shunt causes her brain to now expand to normal size again.
Before and after surgery she was upset she couldn't crawl into the crib with her stating all other hospitals gave her a bed the could share.
Luna was discharged in 2 days. Shunt is not considered major surgery. By May 3rd she was taking her all over orange county in her stroller.
They were back home by May 8th/9th.
"Hydrocephalus can be treated with a shunt system, and this treatment often includes complications. An estimated 50% of shunts in the pediatric population fail within two years of placement and repeated neurosurgical operations are often required."
More info at: Complications of Shunt Systems
Helmet therapy was attempted wrongly by the mother. In helmet therapy a helmet is used to gentle shape the babies skull it is used for 23 hours a day with 1 hour for bathing, etc. The first week Luna's mother used it for 30 mins a day, then 40 mins, then 90 mins with breaks. When it broke Luna was never gotten another helmet. It was used incorrectly though and was a waste of a resource that people funded since she asked for money to purchase this stating medicare would not pay. Helmet lasted only 6 weeks. Supposedly has new one, but Luna has never been shown in it yet its supposed to be worn 23 hours a day.
Her mother has commented on her head:
"The fact that Luna's skull abnormalities took the shape of a beautiful heart speaks volumes to us. It's kind of like a representation of all the love we've poured into her, all the love that you all have gifted her with from afar and all the love she constantly gives back to us all. She's full love and light and soooooo much magic."
As stated by John Hopkins in a Q & A :
"Does my child need to wear the helmet all day?
"Yes. The idea behind the helmet is that it is worn 23 hours a day. It can be taken off during bathing. The rest of the time, your infant should constantly be in the helmet, whether playing, sleeping or feeding. This can be shocking to hear as a parent, as you think of your baby spending his or her formative months wearing a helmet. One thing we like to emphasize is that the helmet is usually not uncomfortable for the baby."
Luna had G-Tube surgery in September of 2020. It appears Luna's only nutrition is her mother giving her breast milk through the Nasogastro Tube and now via the G-Tube. It was stated during this that they co-sleep with Luna and have all along. Post surgery as well she would climb into the hospital bed Luna was in. It's obvious by the way they did treatments on Luna the nurses knew she would never attempt to try to move much or to grab things. She is the one that places the feeding tube stating shes had to teach the nurses who come the right ways to do it since they do it wrong.
Many therapies are done for Luna which include OT and PT. She is working on being able to keep her head up on her own which without support her neck cannot support her head. She talks about getting speech therapy which some people confuse with just learning to speak. Speech therapists help in all oral areas and they appear to be working on getting her used to oral sensations as well as to assess if she is capable of swallowing, Luna's mouth is open most of the time now and the movements shown are not typical behaviors. Luna also appears incapable of closing her eyes this can be seen in more recent pictures which show that current swelling is still pulling her eyes out of shape. Her eyes also show weak muscle control. Luna's legs when shown seem to show foot drop which is a neurological sign usually seen in Cerebral Palsy which is also caused by hypoxia as well. Posters with knowledge on it said its an extreme case and it is due to atrophy of the tendons from lack of use of the foot and calf muscles. Her arms are kept in a position known as Posturing, decorticate to be exact, this is a clear sign of brain damage. It's quite possible she has apethoid cerebral palsy on top of the cyst issue due to the lack of oxygen.
Luna's movements are spastic in nature and mainly appear to be atypical, it's been noted she does not seem to cross midline which is a sensory issue. It's been noted by others that Luna does not track with her eyes at all there have been times flashing lights are been brought in and out of her field of view and she makes no movement to look at them. There have also been times when there are loud noises that should give a startle reflex that lead to no response, but this is much harder to assess via instragram. She is seen using a stander which is actually good, these types of things are not just to teach one to walk or stand, but to help with breathing and motility. She is also seen using some seating system which allow for extra support since she is unable to sit unassisted nor able to control head movement. The mother wants a rent or buy a hyperbaric oxygen chamber, as well.
Luna's movements are similar to some of the primitive responses you see in those with brain injury. You'll notice that her arms regardless of the situation always make the same movements and are held in the same positions. She, also, never moves her hands across midline.
It could be a form of posturing or its just an involuntary movement based on how bad her brain is.
More info on Posturing can be found at: Decerebrate And Decorticate Posturing
There was discussion that she had AFOs for wrists, both legs and her torso. The mother loved the idea of a cyborg child and kept comparing her to one. So all these orthopedics prove her hypotonia quite well. SPIO braces are used with spinal muscular atrophy and apethoid quadriplegia, both these disorders cause core weakness and issues with trunk control. Final video also shows she has weak muscle control of her eyes as well.
These are used when a child has hip dysplasia due to either low muscle tone or high muscle tone and is meant to force the hips into place. " Hip abduction braces are usually prescribed following hip dislocation. The hip brace works by preventing excessive hip flexion (bend) and holds your hip in a position away from your body (abduction). In this position your hip is least likely to re-dislocate. "
Since standers and their usage/benefits is probably not what many people here run into. Here's a video using a child with Spinal Muscular Atrophy to explain how they benefit her, considering how immobile Luna is this seemed to be the best comparison.
Atlas Glenn Stanford Ramirez was born in February 2021 and they once again refused ultrasounds or blood work and worked with a doula doing a home water birth. She chose this woman because she would help her get past the trauma of Luna's birth with Reiki and energy healing so her new baby could be born healthy. She tells people on IG a perinatologist was involved but its obvious he was not and was never planned to be a part of the birth process.
I've taken some really bad Instagram "courses" but this reads less like a course and more like a high schooler's notes app. I can't imagine paying even $10 for this.
And similarly, why bother with well baby visits with an M.D.? You can actually just get a baby aura photo done to see if their vibes are good. View attachment 2017757
Actually the worst part is actually seeing where she keeps the crystals that she uses in lieu of epilepsy medication. View attachment 2017761
I always find it so "funny" that these people who are so "empathic" are using crystals that are usually mined incredibly unethically OR are fake dyed quartz created in a factory with heavy metals. Tell me how that gives them "healing vibrational energy".
But I guess to these charlatans, child labour in the third world means nothing compared to ~muh shiny psychic rocks~
This reminds me of that "facilitated communication" woo that was going around a few years ago. The practitioners were claiming they could talk to severely disabled people and get a response, but really they were just making it up or reading way too much into their movements and sounds to claim it was communication. The worst ones, like Anna Stubblefield, even claimed their patients were actually in their own way telling them they loved them and wanted to have sex with them, and then made them into their captive sweethearts from the ground-up.
I've taken some really bad Instagram "courses" but this reads less like a course and more like a high schooler's notes app. I can't imagine paying even $10 for this.
And similarly, why bother with well baby visits with an M.D.? You can actually just get a baby aura photo done to see if their vibes are good. View attachment 2017757
Actually the worst part is actually seeing where she keeps the crystals that she uses in lieu of epilepsy medication. View attachment 2017761
I legit didn't know people like that existed. This woman thinks rocks have magical powers. I've never heard of that before. I'm in shock.
That's why I love this site. As I guy who had a very sheltered upbringing, these threads opened my eyes to freaks I thought existed only in cheap soap operas.
Never change, kiwis. You're doing an essential public service right now.