🤝 Community Tard Baby General (includes brain dead kids) - Fundies and their genetic Fuckups; Parents of corpses in denial

[ruraljuror]

Not sure if this account has been covered before, (I lurked through the thread some time ago ) but it popped up on my Instagram feed and noticing some fundie buzzwords here and there I thought it might pique some interest here;
this is “ adventures of Amelie and Bros”


will put screenshots under spoiler not to clog up the thread but it seems typical fundie and possibly worth a dive into? - gets pregnant, has complications and is told they likely won’t legally be able to provide extraneous measure given gestational age, gets doctors to shift due date so Jesus can be credited for 1lb micropreemie surviving with many medical measures. Now, almost 300 days later only ever having lived life in the NICU, these days in a medically-induced coma with all the “prayer requests” and gofuckmes you can expect from a social media fundie!

The thing that feels off to me is the dead-eyed photos of this trached kid in a medically induced coma, it just feels wrong, there’s another in this thread with the trach and dead eyes that always give me the heebie-jeebies, oh and of course the required post by these moms; “don’t tell me to pull the plug on my child”

maybe some more medical kiwis will have some insights for us in regards to the swelling she talks about, really curious how swelling can get so bad the poor kids ears folded over

Spoiler: Screenshots

(they may not be in order and this is my first post so if I’ve broken any etiquette rules and need to lurk more I shall)

 

[John Merston]

maybe some more medical kiwis will have some insights for us in regards to the swelling she talks about, really curious how swelling can get so bad the poor kids ears folded over

I assumed it just looked that way because of how the baby is laying.

 

[Crunchy Leaf]

Not sure if this account has been covered before, (I lurked through the thread some time ago ) but it popped up on my Instagram feed and noticing some fundie buzzwords here and there I thought it might pique some interest here;
this is “ adventures of Amelie and Bros”

View attachment 2492530
will put screenshots under spoiler not to clog up the thread but it seems typical fundie and possibly worth a dive into? - gets pregnant, has complications and is told they likely won’t legally be able to provide extraneous measure given gestational age, gets doctors to shift due date so Jesus can be credited for 1lb micropreemie surviving with many medical measures. Now, almost 300 days later only ever having lived life in the NICU, these days in a medically-induced coma with all the “prayer requests” and gofuckmes you can expect from a social media fundie!

The thing that feels off to me is the dead-eyed photos of this trached kid in a medically induced coma, it just feels wrong, there’s another in this thread with the trach and dead eyes that always give me the heebie-jeebies, oh and of course the required post by these moms; “don’t tell me to pull the plug on my child”
View attachment 2492596
maybe some more medical kiwis will have some insights for us in regards to the swelling she talks about, really curious how swelling can get so bad the poor kids ears folded over

Spoiler: Screenshots

(they may not be in order and this is my first post so if I’ve broken any etiquette rules and need to lurk more I shall)
View attachment 2492604View attachment 2492605View attachment 2492606View attachment 2492607View attachment 2492608View attachment 2492609View attachment 2492610View attachment 2492611

I don’t know. There was a little girl mentioned in this thread who was also a micropreemie who was sedated in the NICU for a long time and has lung issues because of it (Instagram: lilyslittlelungs). Now she’s three and walks around, plays with toys, sings along to music, and does normal toddler stuff. Maybe she’ll have learning disabilities that aren’t yet evident, but she’s not a potato, she’s a happy little person who (to me) was worth saving. So she’s changed my view on micropreemies.

 

[ruraljuror]

I don’t know. There was a little girl mentioned in this thread who was also a micropreemie who was sedated in the NICU for a long time and has lung issues because of it (Instagram: lilyslittlelungs). Now she’s three and walks around, plays with toys, sings along to music, and does normal toddler stuff. Maybe she’ll have learning disabilities that aren’t yet evident, but she’s not a potato, she’s a happy little person who (to me) was worth saving. So she’s changed my view on micropreemies.

That’s fair, I did some googling and found a lot of conflicting sources about the lung disease mentioned; so if anyone knows more about micro-preemies I’m happy to be informed! I looked at the account you mentioned and she definitely seems to be a happy toddler so if things turn out like that for the Amelie account I’d be happy for sure (insert rainbows)

 

[RanchRanchLover]

Latest Tik Tok video of little Derek, the HPE baby, posted by his proud mom Ember Torres. I'm not 100 percent sure of the point she was trying to make with this one. That he can make sounds and/or "talk" through his trach? That he's responsive and not profoundly brain damaged? That he's not suffering, but is in fact a really happy baby? I don't know, but its...just I mean the sounds he makes are...I don't know how to describe them...I'm sort of reminded of trailer from a 1970s horror movie called "It's Alive", where a cooing baby sound is morphed and distorted to sound like a screeching monster...Although poor Derek doesn't actually have the strength to screech, so that's not really accurate...anyway...click at your own risk:

Spoiler

https://www.tiktok.com/@embertorres...15526?lang=en&is_copy_url=1&is_from_webapp=v1

That is the most horrific thing I've seen in a long time. I hope for that childs sake cant realise anything going on around them.

 

[Everything Beagle]

All I've heard was her parents adopted a little girl with the same birth defect. Other than that, nothing.

I read about that a few years ago. That's WONDERFUL of them.

 

[Diana Moon Glampers]

Who said DS is a "good" genetic syndrome? Have you forgotten cystic fibrosis? It is serious and it is genetic but it is hell of a lot better than DS. New breakthroughs mean longer lives. My friend who is old for a cfer (40s) was able to quit his oxygen thanks to trikafta and maintain his pets so he still has his original windbags. Sure he has cfrld and cf diabetes but he works full time still.

Holy shit what, I'd have 100 DS kids before I'd have one with CF (and I wouldn't actually have a DS baby, I'd terminate). I guess some depends on whether it's a boy or a girl, because girls with CF don't often live past 30-40. I knew a woman who had it and her entire fucking life was just pure torture. She had to have her body hit, hard, multiple sessions daily, to get out the mucus from her lungs. She was constantly in the hospital drowning in her own fluids. When she finally did die, she was begging for her life to end. She'd been too badly off to be on the lung transplant list for over a year by then. She was 28. I think about her every time I hear Regina Spektor's "Laughing With."

 

[Hyacinth Bucket (Bouquet)]

Some genetic stuff isn't so bad or is wildly variable. You can have a microduplication or microdeletion and not know. Monosomy X is usually fatal in utero, but if you make it to birth, it's not the worst thing. Klinefelter can be fine.

 

[MirnaMinkoff]

I don’t know. There was a little girl mentioned in this thread who was also a micropreemie who was sedated in the NICU for a long time and has lung issues because of it (Instagram: lilyslittlelungs). Now she’s three and walks around, plays with toys, sings along to music, and does normal toddler stuff. Maybe she’ll have learning disabilities that aren’t yet evident, but she’s not a potato, she’s a happy little person who (to me) was worth saving. So she’s changed my view on micropreemies.

Amelie seems to have a lot more wrong with her than a lung issue. I wonder if they have any idea of what her brain activity is like?

 

[MysticMisty]

maybe some more medical kiwis will have some insights for us in regards to the swelling she talks about, really curious how swelling can get so bad the poor kids ears folded over

Looks like standard steroid bloat to me. She's a micropremie that's spent her entire life in the NICU, with all kinds of tubes and medicine drips. There's a zero percent chance steroids aren't one of them. All contributing to the "miracle" of keeping this poor thing alive.

 

[Hyacinth Bucket (Bouquet)]

There are micropreemies that defy the odds, but for a baby born at 23 weeks, those odds are very bad. That's why doctors will advise you not to try until 25 weeks. We see the miracles, but we don't see the 90% who just code and code until they finally can't be kept going any longer.

Lilyslittlelungs was 24 weeks and the parents had a lot of issues with infertility. And she has serious medical issues, like a trach and a g-tube. I see why her parents made the call that they did but I can also see why someone would decide the other way.

 

[Sparkling Yuzu]

says the influence of vitalism, which holds that life must be preserved at all costs

Is that what vitalism is? I thought it meant a belief in an unseen and unproven energy like homeopaths believe in that they claim make their remedies work even though they physically have nothing in them.

Other pro-life groups disagree, arguing that prolonging the process of dying is antithetical to their beliefs. Such organisations were involved in drawing up the Texas law in 1999, in the belief that it would bring timely resolution to excruciating conflicts. The row has exposed an unusual rift among pro-life groups, which tend to present a unified front on abortion. Kyleen Wright, the president of Texans for Life, says that antiabortionists’ defence of the law has allowed them to build links with progressive lawmakers that would otherwise be unthinkable.

I legit didn't even know there were prolifers who were against futile care. Were they less retarded in the 90s?

Because their members tend to be employed by hospitals, there are concerns they may do their bidding. Independent panels, appointed by the states, could offer more reassurance to grieving relatives.

That might be a good idea. Is it normally medical professionals on these hospital ethics boards? That sounds ideal because they have more understanding of how medical science works but the public would probably trust an independent panel a lot more and maybe also one that had non medical people on it. But then some prolifers would get idiot pastors or something on them and violate church/state...

 

[Outwith Quiddany]

Is that what vitalism is? I thought it meant a belief in an unseen and unproven energy like homeopaths believe in that they claim make their remedies work even though they physically have nothing in them.

"Life at all costs" and the homeopathy thing are both called vitalism. "Life at all costs" is sometimes qualified as medical vitalism, and I think it really only comes up in bioethics contexts.

 

[The Joker]

That might be a good idea. Is it normally medical professionals on these hospital ethics boards? That sounds ideal because they have more understanding of how medical science works but the public would probably trust an independent panel a lot more and maybe also one that had non medical people on it. But then some prolifers would get idiot pastors or something on them and violate church/state...

Oh boy, something I can add on to.
A lot of hospitals are now Catholic run due to merges and buyouts, their ethics boards are nothing but a joke. There are certain ones where just to be declared brain dead, a board will have to agree with the medical professionals to allow your vegetable self to be put out of their misery (even of the family doesn't want extra effort to be put in and to let their family member pass with dignity).
This has made hospitals such a ripe ground for the fundies to parade at.
Texas, Michigan, Ohio, and New Jersey are some of the wors

 

[eternal dog mongler]

Null fucked something up so I can't reply to some posts but yeah hospital ethics boards are generally made up of doctors with privs who were voluntold to do it. Some hospitals might throw a few nuns or people who work in academia on there for added fun.

It's not like hooded judges forming a death panel, it's mostly people who don't want to be there.

 

[TheCakeIsALie]

There are micropreemies that defy the odds, but for a baby born at 23 weeks, those odds are very bad. That's why doctors will advise you not to try until 25 weeks. We see the miracles, but we don't see the 90% who just code and code until they finally can't be kept going any longer.

Lilyslittlelungs was 24 weeks and the parents had a lot of issues with infertility. And she has serious medical issues, like a trach and a g-tube. I see why her parents made the call that they did but I can also see why someone would decide the other way.

I was a micropreenie. I was 2 lbs so a little larger than 1 lb but was born at 26 weeks. I'm normal. It does happen but I'm sure it's rare and in the 80s, my parents were told I wouldn't survive and rightly so. But you're still right, 23 weeks is awful odds.

 

[I am the Muffin Maker]

I was a micropreenie. I was 2 lbs so a little larger than 1 lb but was born at 26 weeks. I'm normal. It does happen but I'm sure it's rare and in the 80s, my parents were told I wouldn't survive and rightly so. But you're still right, 23 weeks is awful odds.

There's a huge difference between 23-and 26 weeks, and I'm not just talking the time. IN terms of development your lungs are better developed, your brain has gone much further so the likelihood of ischemic injury is less. 30 weeks is a real sweet spot where you might expect some problems down the road (failure to thrive) but the baby is unlikely to have problems the NICU other than getting fat enough to go home. I understand where these parents are coming from, their n=1 might make it even if the overall trend does not. But, man, what a choice to make.

Also I'm pleased you're doing well and posting here with the rest of us exceptional people.

 

[TheCakeIsALie]

There's a huge difference between 23-and 26 weeks, and I'm not just talking the time. IN terms of development your lungs are better developed, your brain has gone much further so the likelihood of ischemic injury is less. 30 weeks is a real sweet spot where you might expect some problems down the road (failure to thrive) but the baby is unlikely to have problems the NICU other than getting fat enough to go home. I understand where these parents are coming from, their n=1 might make it even if the overall trend does not. But, man, what a choice to make.

Also I'm pleased you're doing well and posting here with the rest of us exceptional people.

oh yeah, I know there’s a big difference between 23 and 26 weeks, but technically anything under 28 weeks is still a micropreemie. I was labeled ftt and my parents were told I was both deaf and retarded (I was neither). And I was a bit delayed in reaching milestones but it wasn’t anything that a little extra pt couldn’t fix. Anyone who works with preemies knows the adjusted/corrected age stuff.

I feel for parents of preemies and micropeemies and all that but the drs when I was born told my parents “hey, there’s a good chance your kid is going to die” and my dad being a fundie light …well, it all intersects with this stuff because he refused to believe that anything bad could happen because he believed in God. Reading this thread is like reliving parts of my life because I know my parents would act the same way as someone of the other parents in the thread, it’s a bit bizarre.

 

[booklover]

I was a micropreenie. I was 2 lbs so a little larger than 1 lb but was born at 26 weeks. I'm normal. It does happen but I'm sure it's rare and in the 80s, my parents were told I wouldn't survive and rightly so. But you're still right, 23 weeks is awful odds.

I've mentioned this here before, but one of my friends had a 26-weeker in 1995, and her daughter is totally normal. Just saw her a few days ago, in fact. However, even today that's often not the case, so we definitely feel this is nothing short of miraculous.

 

[Android raptor]

I've mentioned this here before, but one of my friends had a 26-weeker in 1995, and her daughter is totally normal. Just saw her a few days ago, in fact. However, even today that's often not the case, so we definitely feel this is nothing short of miraculous.

Yeah that's what I've always heard, that micropremies who go on to be perfectly healthy happen but they're rare and usually the kid has serious lifelong issues.

I feel like between Tinlee and banning abortion after the embryo is over 6 weeks Texas prolifers should all be given one-way tickets to Afghanistan. Though even the Taliban might think prolonging the suffering of a toddler for no reason is cruel and wrong.