Spoonie Jaquie Derailment Autism

[RoyalsPrincess]

They are acting like she didn't do this to herself. Yeah, it's sad, a young person died. But she died because her intestines herniated through a hole she didn't need to cut in her abdomen and wrapped themselves around a feeding tube she never needed that she wouldn't let them remove even though she didn't use it. This could have been prevented.

Just a few weeks ago people were getting on her to pull the tube if she wasn't using it because it could cause unnecessary complications like this. Her response was to make a video about how she totes still uses it all the time, wherein she gave away that she didn't use it because she still had the old Kate Farms cartons that have been retired for months (see attached, the new packaging looks nothing like what she's got). She had every warning that exactly this would happen to her.

Edit to avoid double post: LOL@ everyone suddenly saying "I think she was really sick! She wasn't faking! She was just a little OTT!!" Bruh, legit nothing that came out of this chick's mouth aligned with the reality of any of the illnesses she claimed to have. That's why she was referred to as AJ - Adjustable Jaquie. Because she adjusted her illnesses to fit her narrative. That's why we had very popular threads devoted just to her lies on LCF, a whole wiki timeline devoted to tracking her lies across time, and why we eventually got banned from LCF for a mix of blogging and medfagging as everyone spewed the various and sundry reasons they knew she was lying into the threads.

Someone should tell Ginge how easy this can go south. She just got herself a new poo bag and I'm sure she'd love a tube to refuse to put formula through.

Honestly she was sick. She had a lot of issues. She had true diagnoses. Dont sit there acting like you know her when you dont.

Yeah, but does she get a celebratory death banner on the front page??? Seems like the ultimate Munchie prize. cc @Null

But she isnt a munchie. She had true diagnoses. Her most recent was the RE DIAGNOSIS OF Mitochondrial. She was diagnosed a second time and this time around was given treatments which she was told by previous doctors there was no treatments to her mito.

 

[Cheeseman]

Dont sit there acting like you know her when you dont.

that argument is always so fucking re.tarded. did you know her either irl? we all had the same information to go on. your bleeding heart is getting in the way of your cognitive thinking.

 

[Fuzhou]

Honestly she was sick. She had a lot of issues. She had true diagnoses. Dont sit there acting like you know her when you dont.

Didn't she pretty much get herself to this point?

 

[Frazzle]

Honestly she was sick. She had a lot of issues. She had true diagnoses. Dont sit there acting like you know her when you dont.

But she isnt a munchie. She had true diagnoses. Her most recent was the RE DIAGNOSIS OF Mitochondrial. She was diagnosed a second time and this time around was given treatments which she was told by previous doctors there was no treatments to her mito.

Because there are no treatments for mitochondrial diseases. You can't replace mitochondria and they don't repair themselves. You limit your activity and avoid shit that makes it worse you will never be cured or effectively treated. She had a mental illness and killed herself by shopping doctors for procedures she never needed based on diagnoses she never should've been given. She is a textbook munchie as much as you may want to white knight her.

 

[KraftEagle]

Honestly she was sick. She had a lot of issues.

Mental issues? Yes, she had a lot and that's very sad. But as for medical issues? Only the ones she inflicted on herself.

 

[4Macie]

Honestly she was sick. She had a lot of issues. She had true diagnoses. Dont sit there acting like you know her when you dont.

But she isnt a munchie. She had true diagnoses. Her most recent was the RE DIAGNOSIS OF Mitochondrial. She was diagnosed a second time and this time around was given treatments which she was told by previous doctors there was no treatments to her mito.

You just joined our forum today. I’d suggest lurk more but this cow is dead so the point is moot.

Go find another cow to worry about.

 

[Lysenko]

Honestly she was sick. She had a lot of issues. She had true diagnoses. Dont sit there acting like you know her when you dont.

But she isnt a munchie. She had true diagnoses. Her most recent was the RE DIAGNOSIS OF Mitochondrial. She was diagnosed a second time and this time around was given treatments which she was told by previous doctors there was no treatments to her mito.

Am I the only person who read that as REEEEEEEEEEE DIAGNOSIS OF Mitochondrial.

News flash, there is no REEEEEEEE diagnosis of mitochondiral because we all have Mitochondias so just "mitochondial" is not a disease. Second news flash, mitochondria are inherited from your mother so if Jaquie had REEEEE Mitochondiral how come her mother, grandmother, maternal aunts ect, did not?

 

[Kate Farms Shill]

Honestly she was sick. She had a lot of issues. She had true diagnoses. Dont sit there acting like you know her when you dont.

Alright let me put on my not-actually-a-heartless-cunt panties. Look, as much as I have been venting my spleen about Jaq in these threads I really did like her. I wasn't sitting here with my popcorn bowl waiting for her to die.

I really think the best thing to do to honor her is to accept that she was extremely mentally ill and not let her death be in vain. This could have been prevented. People as far back as 2016/17 were begging her to stop, to get some help before this happened. After she got the Roux-en-y people – doctors amongst them – were predicting it would be what killed her, and I'd say there was something profound about that but she did so many things that were dangerous that no matter which one of them killed her you could find people begging her not to do them.

There are thousands of other young women following in the path she obsessively documented online convinced this couldn't happen to them. Accepting that she killed herself in endless pursuit of medical treatments she didn't need, being brutally honest about how she died and how it could have been prevented, might convince someone else to look at their own behavior and realize this is not a fucking game. Line infections kill people. Surgery kills people. Medications kill people. Jaq killed herself because she didn't take any of this seriously and thought it would never bet her. Let her be lesson to all of those other people thinking it could not be them that yes it fucking could.

 

[MirnaMinkoff]

Honestly she was sick. She had a lot of issues. She had true diagnoses. Dont sit there acting like you know her when you dont.

But she isnt a munchie. She had true diagnoses. Her most recent was the RE DIAGNOSIS OF Mitochondrial. She was diagnosed a second time and this time around was given treatments which she was told by previous doctors there was no treatments to her mito.

Can you tell us about all of your diagnoses? All the true diagnoses you and Jaci both had? I’m sure that would clear things right up.

 

[Ruchama]

I believe she had all of it going on.
Why? Because I have ehlers danlos syndrome, dysautonomia, gastropareses. I can still eat. And I have better and worse days. I have neurological problems. And I personally know others with very severe EDS.
EDS is a multi systemic disorder because the faulty connective tissue is everywhere. It can cause problems everywhere in the body, including organs, neurological problems, veins, mast cells, etc etc etc. Over 80% of the body has the connective tissue.
More and more get's discovered about the disease. Yes it can even cause seizure like episodes. And now it's becoming more known about the CCI/AAI instability in many eds patients that can cause this seizure like episodes with a normal EEG.
The problem with invisible illness is that it's invisible. Invisible makes it more hard to believe. And when it's a badly understood multi systemic illness then it's even harder to believe for many people, including doctors.
I have a really hard time to find doctor's to understand what is going on. It took me 33 years to be diagnosed. And even now doctors who understand what is going on are hard to find. It's not a search to get what I want to hear. No it's a search to get the help that I need for better quality of life. The judging is painful.
And what works for one person does not work as well for the other. So everyone is searching for their own way to feel as good as possible.

Jaquie was known in the EDS community world wide. And she has inspired fellow EDS zebra's to remain positive and to not give up on searching a better quality of life. It has helped fellow EDS zebra's to find support with their surroundings.

Don't judge by what you don't know please. It's also hurtful to read for other invisible illness patients.

 

[multiverse]

Jaquie was known in the EDS community world wide. And she has inspired fellow EDS zebra's to remain positive and to not give up on searching a better quality of life

She ded tho

Why don't you share your accounts with us so we can admire your very speshul and totally real health struggles?

 

[AnOminous]

retardation

stupidity

Here come the munchies and white knights powerleveling all over the place!

 

[Ruchama]

She ded tho

Why don't you share your accounts with us so we can admire your very speshul and totally real health struggles?

Yes some people with hEDS die from complications of the weak connective tissue. She is not the first. It happens more often.
O and I am not vlogging or blogging or what so ever so no you won't have the pleasure to follow all of that for your own fun.
You will have to do with what I am writing here.

But still the quality of life is more important than the quantity.

I am on a lot of meds too. This is not healthy but several things in my body are not functioning as good.
And yes I have some pain meds too. Not as much as my zebra friends have. But still not healthy too. But without it's to much to handle the nerve pain.
It's quality over quantity.

I am not from the US. But the stories of the doctors are the same everywhere in the world. I have read the same stories also from US zebra's

 

[Cheeseman]

spoonies just cant resist talking about themselves and how its relevant to their super special ultra rare gotta catch them all diagnosis.

O and I am not vlogging or blogging or what so ever

Because I have ehlers danlos syndrome, dysautonomia, gastropareses. I can still eat. And I have better and worse days. I have neurological problems. And I personally know others with very severe EDS.

I am on a lot of meds too. This is not healthy but several things in my body are not functioning as good.
And yes I have some pain meds too. Not as much as my zebra friends have. But still not healthy too. But without it's to much to handle the nerve pain.
It's quality over quantity.

I am not from the US. But the stories of the doctors are the same everywhere in the world. I have read the same stories also from US zebra's

 

[MirnaMinkoff]

I believe she had all of it going on.
Why? Because I have ehlers danlos syndrome, dysautonomia, gastropareses. I can still eat. And I have better and worse days. I have neurological problems. And I personally know others with very severe EDS.
EDS is a multi systemic disorder because the faulty connective tissue is everywhere. It can cause problems everywhere in the body, including organs, neurological problems, veins, mast cells, etc etc etc. Over 80% of the body has the connective tissue.
More and more get's discovered about the disease. Yes it can even cause seizure like episodes. And now it's becoming more known about the CCI/AAI instability in many eds patients that can cause this seizure like episodes with a normal EEG.
The problem with invisible illness is that it's invisible. Invisible makes it more hard to believe. And when it's a badly understood multi systemic illness then it's even harder to believe for many people, including doctors.
I have a really hard time to find doctor's to understand what is going on. It took me 33 years to be diagnosed. And even now doctors who understand what is going on are hard to find. It's not a search to get what I want to hear. No it's a search to get the help that I need for better quality of life. The judging is painful.
And what works for one person does not work as well for the other. So everyone is searching for their own way to feel as good as possible.

Jaquie was known in the EDS community world wide. And she has inspired fellow EDS zebra's to remain positive and to not give up on searching a better quality of life. It has helped fellow EDS zebra's to find support with their surroundings.

Don't judge by what you don't know please. It's also hurtful to read for other invisible illness patients.

Please tell us more about all your super special, rare conditions that only doctors you spent years shopping around for understand.

I love how when one munchie gets called out it puts them all on the defensive. They wax poetic about their conditions. It’s obvious they’ve made their entire identity revolve around a Dx. The thing that always makes munchies obvious (other than they all share some of the same Dx as Jaci, Jaci just decided to claim all of them instead of a few) is that being sick is their entire identity. Every sick or disabled person ivd ever known never wanted to be known for their disease/disability because there was so much more to them. Munchies make everything about being “sick” and fetishizing it.

EDS, Fibro, Chronic Lyme, Mito, Gastrointestinal BS, etc.. defines their entire identity and is the excuse as to why they do nothing with their lives but lay around demanding attention and others to serve them. Whereas lots of people with actual severe disabilities - paralysis, lost limbs, MS, arthritis, etc.. some how still lead productive lives. Munchies NEVER do, unless you count getting attention online a job.

All the effort and BS they put into finding a doctor to go along with their google Dx makes them big mad when people don’t start the pity parade and praise.

We are going to have a munchie parade in this thread the next several days with all the mini-Jaci’s pouring in to defend her and mention their “conditions.”

 

[Frazzle]

I believe she had all of it going on.
Why? Because I have ehlers danlos syndrome, dysautonomia, gastropareses. I can still eat. And I have better and worse days. I have neurological problems. And I personally know others with very severe EDS.
EDS is a multi systemic disorder because the faulty connective tissue is everywhere. It can cause problems everywhere in the body, including organs, neurological problems, veins, mast cells, etc etc etc. Over 80% of the body has the connective tissue.
More and more get's discovered about the disease. Yes it can even cause seizure like episodes. And now it's becoming more known about the CCI/AAI instability in many eds patients that can cause this seizure like episodes with a normal EEG.
The problem with invisible illness is that it's invisible. Invisible makes it more hard to believe. And when it's a badly understood multi systemic illness then it's even harder to believe for many people, including doctors.
I have a really hard time to find doctor's to understand what is going on. It took me 33 years to be diagnosed. And even now doctors who understand what is going on are hard to find. It's not a search to get what I want to hear. No it's a search to get the help that I need for better quality of life. The judging is painful.
And what works for one person does not work as well for the other. So everyone is searching for their own way to feel as good as possible.

Jaquie was known in the EDS community world wide. And she has inspired fellow EDS zebra's to remain positive and to not give up on searching a better quality of life. It has helped fellow EDS zebra's to find support with their surroundings.

Don't judge by what you don't know please. It's also hurtful to read for other invisible illness patients.

Have you tried SSRIs

 

[4Macie]

Here come the munchies and white knights powerleveling all over the place!

There's been a handful of people in the last couple pages (since Jaq's death) that have joined just today to post a "omg guys be nice. she ded and here are all my diseases to prove she honest" rant. Either they are the same person or somehow someone on Jaq's whiteknight list found us postmortem.

 

[ISmellBS]

She ain't dead, shouldn't there be an obituary by now if she were dead?

 

[Ruchama]

Please tell us more about all your super special, rare conditions that only doctors you spent years shopping around for understand.

I love how when one munchie gets called out it puts them all on the defensive. They wax poetic about their conditions. It’s obvious they’ve made their entire identity revolve around a Dx. The thing that always makes munchies obvious (other than they all share some of the same Dx as Jaci, Jaci just decided to claim all of them instead of a few) is that being sick is their entire identity. Every sick or disabled person ivd ever known never wanted to be known for their disease/disability because there was so much more to them. Munchies make everything about being “sick” and fetishizing it.

All the effort and BS they put into finding a doctor to go along with their google Dx makes them big mad when people don’t start the pity parade and praise.

We are going to have a munchie parade in this thread the next several days with all the mini-Jaci’s pouring in to defend her and mention their “conditions.”

If you did your research all of these conditions are not rare at all. EDS is very under diagnosed. 1 in 5000 get the diagnosis but it's expected to as much as 1 in 200 have it. Most people with EDS have dysautonomia. And a lot of people with EDS have gastic/intestinal problems and gastropareses. It's very common in EDS.
So do your research please.

And no we are no munchies that make the Dx our intire identity. It's now my identity either. We need to share our story to get more people to understand what the conditions are about. If we don't do that, nobody will know. It is considered to be the most neglected disease in modern medicine. If we don't speak up, it will continue to be that way.

Have you tried SSRIs

SSRI's are not working as good for me. Gabapentin does because it also helps some for the dysautonomia. This is combined with tramadol.

 

[chronicallybullshitting]

News flash for all the sooper speshul chronic illness spoonie warrior spergs here:

I HAVE EDS & STILL THINK SHE WAS FULL OF SHIT

Sorry, not sorry. Get a fucking grip, stop blogposting & move the hell on. She died, granted she may have had some legitimate health issues, but you can’t deny she exaggerated the shit out of them & cried wolf one to many times, clearly.

While news of her death is sad, it’s honestly not that surprising.