craven rutherfordium
kiwifarms.net
- Joined
- Jul 15, 2019
Evie doesn't seem like an obvious munchie. Her mom seems absolutely bonkers, though. If anyone is intentionally sabotaging Evie's health, I'd be more inclined to blame the mother.
Follow along with the video below to see how to install our site as a web app on your home screen.
Note: This feature may not be available in some browsers.
I'm seeing a bit of both. Opportunist MBP mother, eating disorder caused by medical and lifestyle factors. Willing to bet that the world of show jumping is as bad as ballet or gymnastics for eating disorders. Mum probably has a touch of it herself.Evie doesn't seem like an obvious munchie. Her mom seems absolutely bonkers, though. If anyone is intentionally sabotaging Evie's health, I'd be more inclined to blame the mother.
Undeniably the girl has health issues. I have no doubts about the issues that come with the spina bifida, although I think she exaggerated some of her mobility issues for the court case/getting what she wants (see the blog post about being made to do PE outdoors and refusing to walk for the rest of the day).Evie doesn't seem like an obvious munchie. Her mom seems absolutely bonkers, though. If anyone is intentionally sabotaging Evie's health, I'd be more inclined to blame the mother.
Such a shame showjumping isn't at the Paralympics yet. I think if it had been she'd have something to work towards (I'm not horsey so I can't tell if she'd actually be good enough but she talked about it being her dream in the early days) and we wouldn't have seen the dodgy blood levels saga.If you train your kid from day one that your disability is how you get praise and attention, that's what they will internalise as they grow up.
It's got to hurt having your mum sue for you having been born "defective". Could certainly drive someone to be obsessively perfectionist to please the parent.Undeniably the girl has health issues. I have no doubts about the issues that come with the spina bifida, although I think she exaggerated some of her mobility issues for the court case/getting what she wants (see the blog post about being made to do PE outdoors and refusing to walk for the rest of the day).
When it comes to the eating issues I do believe there was some legitimacy but it's fed (no pun intended) into the later feeding issues. And whilst the procedures Evie has been through aren't completely out of the ordinary for spina bifida they are on the more invasive end of the spectrum for a milder form of the condition. Evie talks a lot about not having her mum with her to help talk to doctors in hospitals whilst visitors were banned in hospital. And calls her Nurse Caroline at one point.
The legal battle is not mentioned once on social media. Obviously Mummy Toombes is the brains behind the case despite Evie being the claimant - she's been fighting this since Evie was about five. She must be feeling so smug in the last few days but I do wonder what Evie feels having had the court agree that she should not exist.
The court heard from Susan Rodway QC that had Evie’s mother been properly advised by her doctor (as every prospective mother should be) she would have started a course of folic acid for about a month before attempting to start a family. The court accepted this and held that this would have led to the later conception of a normal, healthy baby, paving the way for Evie to claim damages related to her disability which will ensure she is supported properly for the rest of her life.
The ground-breaking ruling means that a healthcare professional can now be found liable for negligent pre-conception advice which results in the birth of a child with a serious health condition. Tim Spring, solicitor and clinical negligence specialist at Moore Barlow, said: “This was an unusual and challenging case requiring the law to be clarified. My client has the condition she has due to the result of poor advice. It is of utmost importance that medical professionals follow best practice when giving patients advice, and only depart from established clinical guidelines when there are good and specific reasons to do so, which they discuss with their patients.”
Such a shame showjumping isn't at the Paralympics yet. I think if it had been she'd have something to work towards (I'm not horsey so I can't tell if she'd actually be good enough but she talked about it being her dream in the early days) and we wouldn't have seen the dodgy blood levels saga.
I wonder how her healthy younger brother feels in all this. There isn't much mention of him except in the first few blog posts and a tweet describing him as her "frequent carer". He was a horse person too with his own pony at one point, but he'd go with Evie to some of her early jumping shows and act as page boy running to get meds and equipment before the all-in-one medical horse box was built. No references to Rocco on Mummy Toombes' SM either. I think he might feel a bit left out.
View attachment 2775777
You never meet chronically ill people who don't have some sort of mental illness. They always go hand in hand, doesn't matter what it is.Growing up with stenosis/myelopathy can't be good for your mental health.
If you go to the paediatric ward following school holidays it will be littered with teenaged girls who have worked out that starving themselves in protest gets them out of the pressure of being cooped up at home with Mummy Dearest.For all we know she doesn't comply with treatment at home so she can get the f. away from her. Unquestionably she's been made to be totally dependent, and covid would have meant being locked in with the psycho who is suing b/c she didn't have an abortion.
Just for correctness sake - the girl is suing. But it really looks like the mom instigated it b/c she can't sue herself.Wow imagine your own mother suing someone for the very fact that you were born.
That's fucked up.
A stoma is a great route to fuck with electrolytes. Normal people with a stoma have to be super careful with their fluid balance for this reason.Mysterious symtoms that get worse at home you say?
It's Kelly's blood transfusions all over again. But what could possibly cause this bizarre "idiopathic" hypokalemia is not running feeds and fluids as you're supposed to, restricting and taking fuck loads of laxatives. That would do it.
Sus sus sus sus sus
There was an episode of Diagnosis on Netflix that features a guy who’s heart would literally stop for several seconds, leaving him unresponsive. They did a shitload of testing and concluded it was a somatic reaction to his traumatic af childhood that he never dealt with. He went to therapy as prescribed and never had another cardiac episode. Imagine that.
The premise of the show is based on a NYT column by Dr. Lisa Sanders. She gets a case and crowdsources possible diagnoses. One of the crowdsourced ideas usually ends up being right. Incidentally, there was an episode featuring a white upper class teen in Utah who puked every time she ate. She had a port for fluids and didn’t have to go to school. Doctors involved in her care said they wanted to take the port out and that her mom usually wanted super invasive treatments. The crowd suggested a number of things, from munchie fave GP to bulimia. One person suggested rumination syndrome. It fit completely. Dr. Sanders secured a spot for the teen at a treatment clinic and set up a Skype meeting with a girl who was treated successfully and the little brat said she was disappointed that the other girl had a positive experience and she was hoping to hear that it doesn’t work. She never followed through with treatment, presumably because she wanted to continue her spoiled brat sickie princess shtick. Very interesting indeed. Also gross and fucked up.
Maybe I'm shouting into the void, but how exactly would/could an Addison's diagnosis even qualify a person for Hospice care? I know it varies a bit, but rudimentary googling brought up this list of criterion:
View attachment 2724122
In addition, the same site also maps out the disease-specific criteria, as well as methods of coverage.View attachment 2724123
Nowhere on the list is adrenal issues. Addison's, according to my layman's understanding (in addition to googling), is an adrenal issue. You take the missing cortisol or whatever and monitor for changes and dosage needs and that's that. Watch out for crises and treat and you're otherwise managed. Am I missing something?
I don’t even think they would be allowed to do that since her personal email is not secure like MyChart.A little odd that Victoria claims her PHP is communicating confidential information with her through email and not Epic/MyChart. Like, yeah, of course the ER doctors wouldn't take that seriously.
This makes some sense especially considering that one of the facts established by the judge is that Evie's mobility was "very limited" when there are videos of her walking and photos squatting in positions that would be very difficult to either get into, out of or maintain for someone with a lower limb neuro deficit. Maybe the law has a different definition of the word very than I hold. If you're a partially ambulant wheelchair user then you're only partially limited.What should have been the obvious possibility that Toombes deliberately self sabotaged b/c it made her a more sympathetic plaintiff in a million pound lawsuit just occurred to me.
Definitely related to nutrition. But the mom and the girl would both have to be in on it.The potassium stuff started when she was 16 or 17 so I'm not convinced the legal stuff would have been the main reason but certainly could be possible that it was a perpetuating factor.
I'm in the US and I find it hilarious that because I'm female and of child-bearing age (barely) my doctor's office sent me a message yesterday about being sure to take Folic Acid because there's a chance I could get pregnant. It seems some American doctors are watching the court case in the UK.No, actually I am wrong about the judge hearing medical evidence. British court is weird. The absolute only fact considered in the trial was whether the doctor advised the mother about folic acid supplementation. Because he couldn't prove he did based on his medical notes, he's responsible for her conception. She could have sued over an ugly scar from a cleft lip and won - the only difference will be the compensation ultimately determined.
Man, the medical system in the UK is getting ready to get buried under these lawsuits against any doctor that took minimal notes in family planning sessions.
Yeah we're all watching it because this is the most insane thing ever.I'm in the US and I find it hilarious that because I'm female and of child-bearing age (barely) my doctor's office sent me a message yesterday about being sure to take Folic Acid because there's a chance I could get pregnant. It seems some American doctors are watching the court case in the UK.
There are laws about what makes a fact in the legal sense. I am just going to link this and pretend that I am intelligent enough to understand it.British court is weird. The absolute only fact considered in the trial was whether the doctor advised the mother about folic acid supplementation.
a. The Claimant was conceived in early 2001. Before conception, the Claimant's mother attended an appointment with the Defendant, her general practitioner, to discuss family planning. This appointment took place on 27 February 2001.
b. At the time, it was standard practice for GPs to advise prospective mothers of the potential benefits of taking sufficient folic acid before conception and during the first trimester. It was understood that an adequate intake may potentially reduce the risk of a baby being born with neural tube defects.
c. The Defendant advised the Claimant's mother that taking folic acid was optional and that it was for her to decide whether to take the supplement. The Defendant did not warn the Claimant's mother of any association between folic acid intake and the prevention of spina bifida. He did not prescribe her folic acid supplements. In so doing, the Defendant acted in breach of duty to the Claimant's mother.
d. Shortly after the consultation and in reliance upon the Defendant's advice, the Claimant was conceived. The Claimant was born on 19 November 2001. The Claimant was diagnosed with a lipomylomeningocoele (LMM), an occult form of neural tube defect leading to permanent disability.
e. For the purposes of this preliminary issues trial, it is accepted that:
i. The Defendant's failure to advise the Claimant's mother that she should take folic acid supplement, and to prescribe the supplement, was a breach of the duty of care (owed to the Claimant's mother);ii. But for that breach of duty, the Claimant's mother would have delayed attempting to conceive for a number of weeks whilst she increased her intake of folic acid and achieved the therapeutic level of the folic acid in her bloodstream which she would then have maintained during the first 12 weeks of the pregnancy;iii. The Claimant was, in fact, conceived shortly after the consultation and during the time which, but for the breach, the Claimant's mother would have been increasing her intake of folic acid and avoiding conception. It follows that, but for the breach, the Claimant would not have been conceived and born at all. This reflects the Claimant's case on causation which is that: "she was wrongly conceived and born and that her damage and disability is due to this. Her claim is that her mother would not have conceived her, that her mother would have attempted conception at a later point in time and hence that a sibling, not the Claimant, would have been conceived and born"; andiv. The sibling would have been "a genetically different person" who would not have suffered from a neural tube defect.
f. In fact, the Claimant has a younger sibling, who was born without congenital defects.
To add to this for everyone's benefit: Evie's type of spina bifida - a lipomyelomeningocoele - is not linked to folic acid deficiency.Evie blames the doctor for existing - not spina bifida.
Whether or not the claimant is in fact of the opinion that her LMM was not preventable by folic acid, it was apparent to me that Mrs Toombes was not really willing to concede that point, but she also clearly struggled with the idea of disagreeing with her daughter. In any event I heard no expert evidence on the point.
I went back to the thread and just want to archive this tweet they dug up.![]()
r/medicine - What does r/medicine think about the recent controversy where, the girl born with Spina Bifida, blamed her mom's doctor for it and sued him (and won)? Link in text.
512 votes and 322 comments so far on Redditwww.reddit.com
The doctors of reddit are livid about this case. And you don't have to scroll far to find them calling her out as part of the eating disorder munchausen EDS feeding toob industrial complex they're now having to deal with.
Cue court case in 20 years: ”the gastroenterologist missed her psychiatric condition”
Man, the medical system in the UK is getting ready to get buried under these lawsuits against any doctor that took minimal notes in family planning sessions.