Community Tard Baby General (includes brain dead kids) - Fundies and their genetic Fuckups; Parents of corpses in denial

So this isn’t a child, but is incredibly disturbing. I don’t think the mother is a cow, but still wanted to share.

28 year old woman with hydrocephalus
View attachment 2967558

Article 1
Article 2
YouTube video

English translation for article one:
First article:

Gaziely Alves Régis suffers from hydrocephalus, which is the accumulation of fluid inside the skull, due to retention. The cause was a troubled pregnancy. His mother contracted rubella during pregnancy. Still a newborn, she was discredited by doctors to have, at most, three months to live. But, this year (2017), she turned 24. What would explain this phenomenon?

Hydrocephalus is treatable. In most cases, it is surgical with the placement of a shunt – a valve whose function is to drain excess fluid. But Graziely rejected the method. Currently, she cannot see or walk, but she feels and hears, guarantees her mother, Adalgisa Soares Alves: “We talk, she smiles. Doctors may even say that she doesn't understand anything, that she doesn't have a brain. But to me, she does.”

In spite of her condition, Graziely is strong and her body looks healthy with no scabs. However, she has a fragile immune system, which made her mother, Adalgisa, quit her job to dedicate herself exclusively to her daughter.

And if you come to the conclusion that this is a family with feelings of suffering, you are wrong: “I wake up, say good morning. Everything I do, I do smiling.” Finally, Adalgisa summarizes her story: “I don't expect anything from her. I only give what I can give, which is my love. It's really love. There's no other word. I love her just the way she is.”

The second article is the mother asking for donations.

Is this a human woman or that drug commercial with the deflated teen
 
Is it possible the woman also has a much more severe waterhead condition like whatever it is form of anencephaly where they still only have a brainstem but have a giant waterhead instead of missing everything above the eyes? I'd imagine a lot is probably getting lost in translation especially with just a machine translation.
The only thing that makes me question that possibility is her age. A lot of babies and young children with critical brain abnormalities only live for a few years at the very most. The fact that she's made it to 28 is an indication that whatever she has going on, it may not have started as a catastrophic condition.

If we are assuming that she has something other than simple hydrocephalus, hydranencephaly might be a possibility. It's an uncommon neural tube defect in which the skull and scalp form nearly normally, but the early development of the brain is disrupted. Instead of cortical tissue, the cranium is full of CSF. Unlike anencephaly, hydranencephaly is not always fatal before or immediately after birth, because there's enough brain stem left to regulate primitive bodily functions. Overall, though, it's still not considered "compatible with life" and it would be very unusual for her to have lived so long. I read about a kid with the condition who died at age 9 or 10 and he was considered a very long term survivor. I guess it all depends on how much higher cortex is spared.

Either way, I'm struggling to wrap my mind around why this poor woman is being forced to exist this way. It's incredibly upsetting. She looks like the giant baby from Spirited Away.
 
The article really does not have more information about how she 'rejected' the shunt. The wording makes me believe her body did not accept the shunt, but I don't know if this can happen with shunts.

Translation of the video:
The girl became older and now became a young lady, on July 14th Grazielly Alves Reges is now 22 years old (video posted on 6/14/2015). When she was born doctors told the mother that the girl would survive 6 months at most. She suffers from gigantic hydrocephalus but has bravely resisted the condition, but the family goes through difficulties, Grazielly's mother is unemployed for over a year. The only income is from her husband that works as security guard and a minimum wage from government aid (Auxilio Doença).

In addition to the couple and Grazielly there are two younger sisters. Rent is R$ 700, Adalgisa (the mother) was given a property by government program Minha Casa Minha Vida last year but couldn't move because the house doesn't have a room that can accommodate Grazielly. That's why they wish to renovate the property so they can move with their family.

Mother: "The rooms are small, there is no space for her bed, there is no space for my bed. Because she always slept in my room, she was never separated from me. So I won't move and leave her in a room while I'm in another room. Never. I was never separated from her. It's always me and her and her and me."

The renovation cost is of R$ 31.100,00. To build or expand a room the cost is 20.100,00 in materials and more 11.000,00 for workers.

Mother: "I have faith that it will touch someone's heart. Look, if anyone wants to be my daughter's godfather and give this birthday gift, I'll be thankful from the bottom of my heart and I'm sure she would be really happy. That would be the best gift."
Edited for spelling.
 
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The only thing that makes me question that possibility is her age. A lot of babies and young children with critical brain abnormalities only live for a few years at the very most. The fact that she's made it to 28 is an indication that whatever she has going on, it may not have started as a catastrophic condition.

If we are assuming that she has something other than simple hydrocephalus, hydranencephaly might be a possibility. It's an uncommon neural tube defect in which the skull and scalp form nearly normally, but the early development of the brain is disrupted. Instead of cortical tissue, the cranium is full of CSF. Unlike anencephaly, hydranencephaly is not always fatal before or immediately after birth, because there's enough brain stem left to regulate primitive bodily functions. Overall, though, it's still not considered "compatible with life" and it would be very unusual for her to have lived so long. I read about a kid with the condition who died at age 9 or 10 and he was considered a very long term survivor. I guess it all depends on how much higher cortex is spared.

Either way, I'm struggling to wrap my mind around why this poor woman is being forced to exist this way. It's incredibly upsetting. She looks like the giant baby from Spirited Away.

The thing that's shocking about a case like that is that the mother refused the normal treatment, but she must be doing some pretty big stuff to keep that poor body functioning and breathing at all. The amount of care required to have that creature not slip off in the night must be non-trivial, so it's not like she is saying "no extraordinary measures, please."
 
Idk, shunts are foreign object so I guess they could trigger an immune reaction. Is it possible they mean the shunt failed moreso than it was rejected by her body?

Idk foreign spuds are so hard to discern the actual situation of, at least as a clueless American that doesn't speak the languages *sigh*
 
Idk, shunts are foreign object so I guess they could trigger an immune reaction. Is it possible they mean the shunt failed moreso than it was rejected by her body?

Idk foreign spuds are so hard to discern the actual situation of, at least as a clueless American that doesn't speak the languages *sigh*
Yes, that was my understanding. She probably means an infection or when the object protrudes below the skin like sometimes will happen with screws used in orthopaedic cases (that's my guess.)

She needs oxygen, it's mentioned in the article and shown in the photo, but I don't see anything else other than this. I agree usually there needs to be lots to keep a potato alive but this case reminds me how long the hartley potatoes lived without needing the same level of care as other potatoes in this thread. More unlucky than the average spud I guess.

What I find it really odd is the huge body. I never have seen anything like this.
 
I agree, in my interpretation it sounds like her body had some sort of rejection of the shunt rather than the mother said no. Also, maybe a medical Kiwi can answer-would she be on steroids and could that be why she looks so bloated?

Those who blame the mother-what is one supposed to do if their child doesn’t die? I can understand the idea that a little midnight pillow smothering might be a good idea, but mothers always seem to love these grotesqueries anyway. We can see that these vaguely human-shaped things are seizing and not stroking Mama’s arm, but these women invent whole personalities for their kids, probably to prevent themselves from going crazy. There really isn’t much to be done except let them die naturally and don’t seek out any medical care if they start to go downhill.

It’d be awful to be that unlucky one whose child lives 24 years like that. It’s hard to imagine any authorities caring or looking into her sudden death but who knows? What’s worse than spending 24 years taking care of that flesh lump? Spending the next 24 in prison.
 
I agree, in my interpretation it sounds like her body had some sort of rejection of the shunt rather than the mother said no. Also, maybe a medical Kiwi can answer-would she be on steroids and could that be why she looks so bloated?

Not a medical Kiwi, but I can't imagine a cause for the bloating NOT being steroids.
 
Holy moly. This is some Junji Ito stuff.

Is the mother refusing due to dependency? If this helps her child get any sort of independence obsessive moms would hate that.
The daughter's body probably rejected the shunt, most likely due to infection, or it kept getting clogged, both of which are also common problems in First World people who get them.

She actually reminds me more of this African baby, who was discussed earlier in this thread. IDK if he's been able to get any medical assistance.

 
I agree, in my interpretation it sounds like her body had some sort of rejection of the shunt rather than the mother said no. Also, maybe a medical Kiwi can answer-would she be on steroids and could that be why she looks so bloated?

Those who blame the mother-what is one supposed to do if their child doesn’t die? I can understand the idea that a little midnight pillow smothering might be a good idea, but mothers always seem to love these grotesqueries anyway. We can see that these vaguely human-shaped things are seizing and not stroking Mama’s arm, but these women invent whole personalities for their kids, probably to prevent themselves from going crazy. There really isn’t much to be done except let them die naturally and don’t seek out any medical care if they start to go downhill.


It’d be awful to be that unlucky one whose child lives 24 years like that. It’s hard to imagine any authorities caring or looking into her sudden death but who knows? What’s worse than spending 24 years taking care of that flesh lump? Spending the next 24 in prison.

The tater baby in our family has reached 30 and despite many rushed trips to hospital
haemmorrhaging and near death and a DNR active for years, has somehow survived. It's unbelievable really.

His poor mother looks half dead herself. Every time we think he can't go on another year he does.
 
The only thing that makes me question that possibility is her age. A lot of babies and young children with critical brain abnormalities only live for a few years at the very most. The fact that she's made it to 28 is an indication that whatever she has going on, it may not have started as a catastrophic condition.



Either way, I'm struggling to wrap my mind around why this poor woman is being forced to exist this way. It's incredibly upsetting. She looks like the giant baby from Spirited Away.
Agreed that this was unlikely a catastrophic condition at the beginning. The more typical shape of the skull itself (huge, but more typical/less lumpy than Luna) makes me wonder if a lot of the damage didn't occur after early infancy. It might be a trick of lighting, but she also looks beet red overheated despite being brown, and considering she's stripped down to a diaper, either her mother thought this was a better grift or even a light layer of clothes impacts her thermoregulation.

She could have a J tube, but that would be VERY low. It's interesting there are no pressure wounds, scabs, or anything, because as someone pointed out, she has full body edema and she's pretty big, so I'm surprised she isn't a little more scratched up.
 
I don't see any feeding tubes, or even scars from them, on her body. She's probably like Roona, who was able to eat from a bottle and later a spoon, and can have at least OK nutrition (VERY important in the prevention of pressure ulcers) and if she can't move herself, is at least rolled over regularly. I also think that armchair she's sitting in is a scaled-down, child-sized model and she's nowhere near "adult" sized.
 
I don't see any feeding tubes, or even scars from them, on her body. She's probably like Roona, who was able to eat from a bottle and later a spoon, and can have at least OK nutrition (VERY important in the prevention of pressure ulcers) and if she can't move herself, is at least rolled over regularly. I also think that armchair she's sitting in is a scaled-down, child-sized model and she's nowhere near "adult" sized.
The thought that she's with it enough to eat orally is frankly horrifying. What an existence.
 
Here's another picture of Graziely with her mother from a few years ago I found where you can see her side profile too, which is... not great looking:
GRAZIELY-ALVES.jpeg

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