- Joined
- Feb 24, 2019
One of the big issues with the DS foundations and all on that is the only show case the happy mildly retarded ones. Not the profoundly retarded ones that are violent and self-harming,
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Don't forget the severe heart problems and defects they're often born with. Even though the prognosis has improved significantly, it's still shitty, and painful, and you still might die anyways. Not to mention congestive heart failure is pretty much unheard of outside of old people. Unless you have DS and therefore have a good chance that you have it before you're even born.Not so much the cause with fatal diseases like leukemia and Alzheimer's![]()
Made me think of the hoarders episode where the one middle aged lady ate poop and didn't see a single thing wrong with itThis is such a common problem. If one of the parents isn't normal functioning and values cleanliness, then it's not going to happen.
Are you sure? How was @Dude Vaccines born then?everyone knows you can't bone a tard. That's like the second or third rule when you own a weiner.
Not to power level but an acquaintance of mine with a Martyr complex adopted a child with severe Downs and Autism. As if one issue wasn't enough! This child has had serious heart surgery, and other physical ailments that have almost killed it. At the age of 18 the child is partially bedridden, and will never progress past this point.Honestly between leukemia, serious heart problems, and early onset dementia/Alzheimer's, labeling Down syndrome as being completely compatible with life is rather iffy. Their bodies seem to make a hell of an effort to take themselves out. It's a shame that the DS lobby won't allow this information to be made publicly available because DS is a whole lot more going on than just your stereotypical slightly dumb but happy short and fat kid.
Yep, they show the highest functioning ones that play sports, model, go to school, and can even speak.One of the big issues with the DS foundations and all on that is the only show case the happy mildly retarded ones. Not the profoundly retarded ones that are violent and self-harming,
They made up most of the population of a residential school I worked at. No one really puts thought into when the profoundly retarded DS person goes through puberty and does not understand the word No what that means for those caring for them and protecting others from them.Yep, they show the highest functioning ones that play sports, model, go to school, and can even speak.
There are the ones that die of heart failure or cancer before they are even in their teens. Then there are the lowest functioning ones. Imagine a grown man with the mindset of a toddler (at best) that can't speak, becomes increasingly hormonal and angry as he grows up, and gets violent enough to injure their aging parents.
Sadly I've seen that happen and often the parents are treated as monsters for putting them in a care center environment
Don't forget also likely not toilet trained so their rooms constantly smell abhorrent no matter what you do to help it. I've seen holes punched into walls by one and extremely violent outbursts when he didn't get what he wanted. It's literally like having a forever toddler and I wouldn't put that kind of stress on anyone ever.Yep, they show the highest functioning ones that play sports, model, go to school, and can even speak.
There are the ones that die of heart failure or cancer before they are even in their teens. Then there are the lowest functioning ones. Imagine a grown man with the mindset of a toddler (at best) that can't speak, becomes increasingly hormonal and angry as he grows up, and gets violent enough to injure their aging parents.
Sadly I've seen that happen and often the parents are treated as monsters for putting them in a care center environment
And the heart defects which a high percentage of them have were not repairable until the 1950s, so many people (including my BFF's grandparents) were told to not get too attached, and that the best thing to do was put him in an institution and tell everyone that he died. That may be the right option for other families, but it wasn't for theirs, and they did take him home and he lived there until his father died, at which time his mother realized that he might outlive them, and she really couldn't look after him by herself either. At that time, she put him in a group home, (none of his 8 older siblings were in a position where he could live with them full-time) where he did quite well, and resided there until he developed that Alzheimer's-like condition, and died when he was about 50 years old.I do get downs self adocates/etc though in the sense that less than 100 years ago, it used to be the norm to shove kids with Downs in institutions and leave them to rot, which is also fucked the hell up. Plus there are still tons of issues with the way people with developmental disabilities are treated, including an increased risk of police violence and shit.
I feel like you can acknowledge downs is a trisomy that tends to include a lot of physical health issues while still trying to improve the lives of developmentally disabled people who are already living and existing. Unfortunately prolifers don't give a single fuck about anyone that's not a fetus or in some kind of I Have No Mouth and I Must Scream-type nightmare existence ala Tinslee.
I've seen a few obituaries in my local paper for this demographic. I'm also guessing that some of the extreme measures some people use (most of the time, futilely) are going to be less likely to be done for someone like this.Covid is also 10 times deadlier for people with Down's Syndrome.
I admire people who can do it, but it's not something I'd choose for myself. It's a lifetime commitment.And the heart defects which a high percentage of them have were not repairable until the 1950s, so many people (including my BFF's grandparents) were told to not get too attached, and that the best thing to do was put him in an institution and tell everyone that he died. That may be the right option for other families, but it wasn't for theirs, and they did take him home and he lived there until his father died, at which time his mother realized that he might outlive them, and she really couldn't look after him by herself either. At that time, she put him in a group home, (none of his 8 older siblings were in a position where he could live with them full-time) where he did quite well, and resided there until he developed that Alzheimer's-like condition, and died when he was about 50 years old.
He had a good life, which is really the best any parent can want for their children.
Possibly. From what I've read, scientists are talking more about a genetic component in a Down's Syndrome person making them more susceptible to Covid. Covid has a lot of weird vascular complications. It's not always the straight forward lung failure, equals systemic organ failure, equals death scenario.I've seen a few obituaries in my local paper for this demographic. I'm also guessing that some of the extreme measures some people use (most of the time, futilely) are going to be less likely to be done for someone like this.
I know how much anecdotal evidence is worth, but I've seen three COVID patients with DS, and all have passed.Possibly. From what I've read, scientists are talking more about a genetic component in a Down's Syndrome person making them more susceptible to Covid. Covid has a lot of weird vascular complications. It's not always the straight forward lung failure, equals systemic organ failure, equals death scenario.
But let me return to your original statement that: extreme measures some people use are going to be less likely to be done for someone like this (like a person with Down's Syndrome). I'm not arguing with you, really. I just want to share a situation I've been privy to that is just awful. I've resisted posting about it, but you made a good point.
There's a family with a teenage Down's Syndrome individual not far from me. (1st hand knowledge...not from my cousin's friend) The parents are extremely religious and make sure everyone knows they chose life and didn't terminate their Down's Syndrome family member's life in utero. OK. The parents opted not to vaccinate their teenager against Covid. OK.....but..... The parents were the 1st and the only ones to register a state approved mask waiver for their child during the height of the pandemic at their school. Their reason for the waiver was the parents were concerned wearing a mask at school would hinder their Down's Syndrome child from becoming verbal.
Hello wut?!? If your kid is non-verbal as a teenager -think 14 to 18- they probably won't start talking now. Heck, your kid still wears Pull-Ups and has frequent 'accidents'. My gut feeling is they chose life, but are now going out of their way to insure death so they can live again. Luckily this kid has a state appointed care aide that is around any time the parents aren't and masks the kid up. I get it. If I was this aide I would feel horribly if my charge died because I didn't do everything on my watch to keep them safe.
Anyway this is just 1 case out of ??? and it relates to nothing other than it continually angers me and I wanted to e-vent. Thanks!
But Tucker Carlson told me that the vaccine will give you myocarditis, cancer, AIDS, Alzheimer's, Guillain-Barré Syndrome, ALS, and make you a troon.She's obviously a pretty girl.
I know how much anecdotal evidence is worth, but I've seen three COVID patients with DS, and all have passed.
I don't understand how someone can choose life and not get their child with DS a vaccine. It boggles the mind. You think someone in their circle would have known someone with Down's who passed from COVID. It's not pretty. You have a scared person who has an intellectual disability with hi flo oxygen, and then the BiPap, that they can't stop removing because it bothers them and they don't understand. They're all alone, and with the staffing crises for nurses, they end up chemically and physically restrained. And they get sicker, and they end up on the vent, and they die agonizing deaths. And I'm not using the word "agonizing" in a dramatic, pro-life way, I don't think. It really is agonizing. Please relay this to your friends. The vaccine isn't perfect, but it's the best chance their child has.
Well, if Tucker said it...But Tucker Carlson told me that the vaccine will give you myocarditis, cancer, AIDS, Alzheimer's, Guillain-Barré Syndrome, ALS, and make you a troon.
Yeah I'd imagine people w/downs were amongst the first eligible when the vaccine first rolled out, along with anyone else with a congenital condition that involves a lot of heart and lung problems. Not getting any kid, let alone one with down, vaccinated is medical neglect.She's obviously a pretty girl.
I know how much anecdotal evidence is worth, but I've seen three COVID patients with DS, and all have passed.
I don't understand how someone can choose life and not get their child with DS a vaccine. It boggles the mind. You think someone in their circle would have known someone with Down's who passed from COVID. It's not pretty. You have a scared person who has an intellectual disability with hi flo oxygen, and then the BiPap, that they can't stop removing because it bothers them and they don't understand. They're all alone, and with the staffing crises for nurses, they end up chemically and physically restrained. And they get sicker, and they end up on the vent, and they die agonizing deaths. And I'm not using the word "agonizing" in a dramatic, pro-life way, I don't think. It really is agonizing. Please relay this to your friends. The vaccine isn't perfect, but it's the best chance their child has.
Do you recall the season that was? I want to watch itMade me think of the hoarders episode where the one middle aged lady ate poop and didn't see a single thing wrong with it
She was intellectually stunted but it later came out that so was her mom. So she had lived her whole life in a hoarding situation, shitting in buckets and not understanding why that was wrong. When they tried to clean up her house, she actually asked to eat contaminated food one last time for old times sake.
That's when they decided she needed to be in a care home.
So basically how Kytties kid Tyla is gonna end up
Not to be stupid on purpose, but does Luna even have a cough/gag reflex?Yeah I'd imagine people w/downs were amongst the first eligible when the vaccine first rolled out, along with anyone else with a congenital condition that involves a lot of heart and lung problems. Not getting any kid, let alone one with down, vaccinated is medical neglect.
I'm amazed Luna hasn't gotten COVID yet. Though in her case a (quick) COVID death would be a mercy.
On some level, whether or not they can admit it, they want them to die. Same with the potato babies. The potato moms seem almost eager to drag them out in public to get infected even when they're severely immunocompromised.I don't understand how someone can choose life and not get their child with DS a vaccine.