Trainwreck The Empathic Nutritionist / Empathic Mamahood / Robyn Grogitsky-Ramirez / Luna Elva Ramirez / Glenn Ramirez / Atlas Glenn Standford Ramirez - Eyefucking Sociopath Selfie Addict Mother and Closeted Gymrat Pothead Father who use Instagram to Parade their Homemade Homunculus Tard Baby Created by their Refusal to Follow any Medical Oversights

Will Robyn actually go back to see the neurosurgeon in California?

  • Yes

    Votes: 26 12.2%
  • No

    Votes: 107 50.2%
  • Luna will die before the planned trip date

    Votes: 80 37.6%

  • Total voters
    213
  • Poll closed .
That PT grabs Luna's head right with her fingers at the separation of the skull plates like it is a handle. What the hell? She could have put her hand across her forehead to hold Luna's head up.

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Oh my god, she squishes it. :cryblood:
 
Wow, that strabismus (wall eye) is quite severe. With exotropia (outward facing eyes) like this, usually the treatment is patches, glasses (quick, tell robyn!), OT exercises, or if they must, surgeries for the muscles (though less common, as strabismus is mostly neuromuscular rather than actual eye muscles). Sadly, with any hydrocephalus/like condition, this is fairly common because of the increased intracranial pressure. If this is the first time we've noticed it, it could suggest that her head has increased in size like other kiwis have noted or just increased pressure due to growth of cysts, or both.
 
Wow, that strabismus (wall eye) is quite severe. With exotropia (outward facing eyes) like this, usually the treatment is patches, glasses (quick, tell robyn!), OT exercises, or if they must, surgeries for the muscles (though less common, as strabismus is mostly neuromuscular rather than actual eye muscles). Sadly, with any hydrocephalus/like condition, this is fairly common because of the increased intracranial pressure. If this is the first time we've noticed it, it could suggest that her head has increased in size like other kiwis have noted or just increased pressure due to growth of cysts, or both.
I don't think this is a true exotropia or any other manifestation of strabismus. I'm pretty sure it's a phenomenon called the setting-sun sign or sunset eyes. It is a common sign of hydrocephalus in infants and children and is caused by pressure on midbrain structures near the cerebral aqueduct.

The cerebral aqueduct, also known as the aqueduct of Sylvius, is located just "above" the pons and allows cerebrospinal fluid to flow between the third and fourth ventricles. The midbrain, or mesencephalon, is the "top" part of the brain stem, and controls basic functions such as sleep and arousal, body temperature, respiration, coordination of movement, and response to environmental stimulus. The cerebral aqueduct is surrounded by an area of grey matter called the periaqueductal grey. This region, as with the midbrain more broadly, is critical for autonomic functions such as response to pain.

As you probably guessed from the list of functions of the structures of the midbrain, all of the signs Luna is displaying portend very poorly. It's hard to speak about her symptoms in terms of neuroanatomy, because her brain injury has almost totally destroyed any anatomical landmarks. How do we talk about dysfunction of the cerebral aqueduct in a person who doesn't even have a third or fourth ventricle? I've mentioned before that I think she will ultimately die from a respiratory infection, but based on her appearance and symptoms now, I think it's possible that she will have a central (transtentorial) herniation, which is a catastrophic and universally fatal event. This type of herniation happens when the midbrain and diencephalon are crushed downward through the tentorium cerebelli, a fold of dura mater that separates the cerebral hemispheres from the cerebellum. The dura mater is the tough, outermost layer of meninges, composed of connective tissue. The tentorium has an opening called the incisura or tentorial notch, through which the brain stem normally passes. In a central herniation, the supratentorial contents are pushed through the incisura, which causes crushing and tearing injury. Luna is demonstrating multiple signs of midbrain dysfunction, but again, it's very difficult to even contemplate this, because she has so little supratentorial anatomy left that it's almost inaccurate to even describe what would happen as a central herniation.

Here's a diagram of the different types of brain herniation.
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So, anyway, no eyeglasses, patching, exercises, or surgery can treat the outward deviation of her eyes. The brain regions responsible for ocular movement, as well as sight and the processing of visual stimuli, have been destroyed. There is no fixing it.

Interestingly, the substantia nigra is located in the midbrain. Part of the substantia nigra, the pars compacta, comprises dopaminergic neurons, the role of which is complex but in broad terms can be understood to regulate motor control via secretion of the neurotransmitter dopamine. The death of these specialized neurons results in dopamine depletion within the brain, which is in turn the underlying cause of the motor symptoms of Parkinson disease, including tremor, rigidity, and hypokinesia. Just watching the way Luna moves, she does exhibit many of the same signs as a person with a parkinsonism, although in her case the cause is obviously a severe global brain injury.

Edited to say I hit Post Reply way too soon because I'm fat and gay. I might come back and edit some more later because I LOVE BRAINS.
 
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I thought the sun setting eyes thing was more of when the eyes appear to be looking down and you can see the whites of the eyes above the iris while the bottom of the iris is obscured by the bottom eyelid, hence the sunset look. Her exotropia is something different but also probably a bad sign. Maybe Robyn will fit her with a patch for a week or so.

Yep- sunset eye sign: consists of an up-gaze paresis with the eyes appearing driven downward. The lower portion of the pupil may be covered by the lower eyelid, and sclera may be seen between the upper eyelid and the iris.
 
Wow, that strabismus (wall eye) is quite severe. With exotropia (outward facing eyes) like this, usually the treatment is patches, glasses (quick, tell robyn!), OT exercises, or if they must, surgeries for the muscles (though less common, as strabismus is mostly neuromuscular rather than actual eye muscles). Sadly, with any hydrocephalus/like condition, this is fairly common because of the increased intracranial pressure. If this is the first time we've noticed it, it could suggest that her head has increased in size like other kiwis have noted or just increased pressure due to growth of cysts, or both.
My sister and I both had this, though it didn't manifest until we were older-15 and 24. My left eye would turn in when I was reading. It was solved by a simple eye surgery involving the muscles below the eye. Usually it is performed on toddler age kids.

It did NOT look like Luna. Because our heads were not expanding rapidly with fluid.
Strabismus would be the least of Luna's problems.
 
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My sister and I both had this, though it didn't manifest until we were older-15 and 24. My left eye would turn in when I was reading. It was solved by a simple eye surgery involving the muscles below the eye. Usually it is performed on toddler age kids.

It did NOT look like Luna. Because our heads were not expanding rapidly with fluid.
Strabismus would be the least of Luna's problems.
Since we are powerleveling: I have a neuromuscular strabismus. It was deemed "not fixable" when I was young (I'm missing cranial nerve IV). I have an Y pattern exotropia and monocular vision.

Luna likely has all the muscles and nerves needed for proper eye alignment. She just has no brain tissue to tell those muscles how to move or interpret what her eyes are seeing. Saying Luna has strabismus is like saying a dead person struggles with body temperature regulation. Maybe technically true, but kind of missing the big picture.

Also, I think calling it strabismus plays into Robyn's suggestions that Luna has a genetic disorder and "craniofacial anomalies". She has the latter, surely, but not in the way Robyn would like us all to think.
 
I have strabismus. I’ve had surgery twice and also have amblyopia. The headaches are fun.

Could it not be all the pressure in her head from the fluid in her head forcing her eyes like that?

Also Atlas is the cutest kid. I hope he grows up to realise what a nutjob his Mum is and gets away as fast as he can.
 
True, but it's easy enough for people to delude themselves that their symptoms are getting better (especially when the symptoms of whatever they're trying to treat are vague, highly subjective or naturally get better and worse over time or in cycles), or that they are getting messages from potatoes because no one can contradict their interpretation of the messages they supposedly receive. But wealth? Financial and material prosperity? Those things are pretty objective.
It's bad enough that she's deluded herself about this junk, but deluding other people about the wonders of the Healy? That's horrible.
 
Watching the difference in Atlas actually walking (purposeful, feet facing forward) versus Luna's newborn stepping reflex is wild.

hello fellow strabismus people, mine was likely caused by my birth and was never fixed surgically though it should have been. Patches were the worst and I actively rebelled against using them cause I couldn't fucking see when they covered my good eye (:_(
 
Vulgar display. Her feet are pointing out from the SIDE as has been pointed out before and almost have a rubbery quality to the way they move. I e seen on i stagram people do this with alobarholoproscephaly kids they ‘make them walk by dragging them and they have zero muscle tone just like luna. Its a grotesque display of human ignorance and irrationality.
 
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