Community Tard Baby General (includes brain dead kids) - Fundies and their genetic Fuckups; Parents of corpses in denial

[A tree]

At the beginning, they considered doing the treatment there in the UK hospital which I believe they should have allowed and let the parents pay for it with all that fundraising money. I read the US doctor eventually said it was futile, but during the time that was being deliberated, could further damage have been delayed if he was allowed to do the treatment sooner?
Either way, I agree his death was inevitable and it sounded very severe and incompatible with life. I guess I'm really just like... let the parents have hope. The doctor offering the experimental treatment said it was a lot more likely to help his muscles than his brain but it was not a zero percent possibility it could improve his brain (though I assume it would be temporary with a degenerative and progressive condition).
I know the "experiment on a living minor" thing would be shot down by any ethics commitee by a mile a minute but that's why I feel like it shouldn't be up to them.
As for @Driedsoap soap comparing this to futile life support for the braindead, I don't think it should be bc rational ppl (not prolife retards) were more concerned about the precedent for the rights of the parents than the dumb crap about how taking him off life support would kill him and was Literally Hitler Evil Socialist Medicine Killing Babies .
I find your opinion fully respectable though.

The thing Is mitochondrial disease can vary a lot. Charlie had an extremely aggressive form. I would 100% be in favour of using the experimental formula on kids with a slower burning form of mito, they can hang on for years, but Charlie's brain was already luna levels of fucked. There was nothing there to treat. It wouldn't be right to waste the treatment on him. The last thing the parents in these situations need is false hope. That would be truly cruel.

 

[Sparkling Yuzu]

The thing Is mitochondrial disease can vary a lot. Charlie had an extremely aggressive form. I would 100% be in favour of using the experimental formula on kids with a slower burning form of mito, they can hang on for years, but Charlie's brain was already luna levels of fucked. There was nothing there to treat. It wouldn't be right to waste the treatment on him. The last thing the parents in these situations need is false hope. That would be truly cruel.

True. Selling false hope is a huge issue among promoters of experimental therapies.

 

[A tree]

True. Selling false hope is a huge issue among promoters of experimental therapies.

In this case especially what was being offered wasn't a cure, merely the possibility of slowing the progression. In the case of Charlie who was already in hospital on life support when the wrangling began, we would be slowing the progression from vegetable to dead. What would be the benefit of doing that? If he had the formula from the day he was born the outcome would have been the same, only slower. That's not a persuasive argument for treatment.

 

[MysticMisty]

The thing Is mitochondrial disease can vary a lot. Charlie had an extremely aggressive form. I would 100% be in favour of using the experimental formula on kids with a slower burning form of mito, they can hang on for years, but Charlie's brain was already luna levels of fucked. There was nothing there to treat. It wouldn't be right to waste the treatment on him. The last thing the parents in these situations need is false hope. That would be truly cruel.

Yeah, my understanding is that by the time he was diagnosed he was already fucked beyond hope and his suffering was just being prolonged. Not even like he was just to the point of tard and the treatment would stop it there, he was already full-on potato and the treatment might have slightly prolonged his death a little while longer, if he survived the trip to the American hospital. But I have a feeling that even if the parents hadn't been offered false hope overseas, they would've latched onto something else.

 

[A tree]

Just to take slight side step the authorities aren't always right and its only fair to acknowledge the case of Aysha King. His parents request to take him to Spain for proton beam therapy was reasonable and in the end successful. Those parents were chalk and cheese to the other families we discuss here. They were smart and educated, the childs cancer was curable and they were correct.

As it happens I have had some dealings with the then director of social services who made the decision to go after those parents; one Julian Wooster, and I can tell you the man is an absolute sociopath who ruins everything he touches. I have difficultty understanding why a man would seek out high level jobs in children's services then behave as if the prime directive is to deny as much care as possible and save as much money as possible. It seems he's a small state conservative uber alles.

 

[Android raptor]

Didn't Doc Bastard also write a lot about brain death vs. vegetive states in regards to Jahi? I remember him straight up saying brain death is death, no one has ever recovered from it, any reports to the contrary are bullshit, or the person wasn't actually brain dead.

Jahi is also the reason why I think the UK courts having the authority to pull the plug on braindead/almost braindead corpses is a good thing, because that horrorshow went on for years too long

 

[Sparkling Yuzu]

Yeah, my understanding is that by the time he was diagnosed he was already fucked beyond hope and his suffering was just being prolonged. Not even like he was just to the point of tard and the treatment would stop it there, he was already full-on potato and the treatment might have slightly prolonged his death a little while longer, if he survived the trip to the American hospital. But I have a feeling that even if the parents hadn't been offered false hope overseas, they would've latched onto something else.

They actually could have done the therapy right in the hospital he was at, but an ethics committee ruled against it. Only then did they want to travel to New York or Spain to have it done.

Just to take slight side step the authorities aren't always right and its only fair to acknowledge the case of Aysha King. His parents request to take him to Spain for proton beam therapy was reasonable and in the end successful. Those parents were chalk and cheese to the other families we discuss here. They were smart and educated, the childs cancer was curable and they were correct.

As it happens I have had some dealings with the then director of social services who made the decision to go after those parents; one Julian Wooster, and I can tell you the man is an absolute sociopath who ruins everything he touches. I have difficultty understanding why a man would seek out high level jobs in children's services then behave as if the prime directive is to deny as much care as possible and save as much money as possible. It seems he's a small state conservative uber alles.

I remember that case! That's a really good example of an unambiguous case of parents being barred from getting treatment for their kid, with no qualifiers like the kid is already severely brain damaged either way. Julian Wooster sounds like a major cunt. Imagine being a "pro-family" and "pro-life" conservative that goes out of his way to kill kids and ruin a family.

Didn't Doc Bastard also write a lot about brain death vs. vegetive states in regards to Jahi? I remember him straight up saying brain death is death, no one has ever recovered from it, any reports to the contrary are bullshit, or the person wasn't actually brain dead.

Jahi is also the reason why I think the UK courts having the authority to pull the plug on braindead/almost braindead corpses is a good thing, because that horrorshow went on for years too long

Yeah, when ppl are too retarded or ignorant to know the difference between a vegetable and braindead, you can't trust them to make rational decisions about when to withdraw care.

 

[Cryin RN]

I find your opinion fully respectable though.

This thread is really remarkable for how level-headed, respectful, researched, and informative it remains even after 422 pages of covering controversial and emotionally charged subject matter. It's truly a credit to this niggerdeath forum and the Karens who post on it.

 

[A tree]

This thread is really remarkable for how level-headed, respectful, researched, and informative it remains even after 422 pages of covering controversial and emotionally charged subject matter. It's truly a credit to this niggerdeath forum and the Karens who post on it.

Literally the only place outside a medical ethics panel where you can have this discussion sensibly without Facebook wine mums and evangelical xtians vomiting emojis about their angle babbies in heaven all over it.

 

[No Batty Boys in Jamaica]

Can anyone say at what stage in situations like this the patient stops being a viable option for organ donation? How late is too late?

I'd like to think, if I were the parent of this kid, that's the route I'd be looking at now, trying to help as many other kids as possible.

That actually is one reason to *not* abort a kid with something like anencephaly. They can be used for organ donation because they meet the criteria for brain death. And if anencephaly is the only problem, the baby can save several kids who have a good chance at a quality life with things like heart defects, kidney failure, and liver failure. The only other source of donated infant organs is the occasional shaken baby syndrome that isn't DOA. Some parents don't even think twice about it because the kids who get the organs often grow up and live normal lives.

But it often doesn't work out because anencephaly or related brain problems are rarely the only issue.

 

[son of jurassic bark]

This thread is really remarkable for how level-headed, respectful, researched, and informative it remains even after 422 pages of covering controversial and emotionally charged subject matter. It's truly a credit to this niggerdeath forum and the Karens who post on it.

tbh I started this thread out of frustration with youtube and blog mommies parading their dead or catastrophically deformed babies around, and fully expected to be told to die in a fire. The civility and information from people with all levels of education is amazing. This is the only place where I can keep up with these cases anymore, after Doc Asshole stopped blogging

 

[A tree]

That actually is one reason to *not* abort a kid with something like anencephaly. They can be used for organ donation because they meet the criteria for brain death. And if anencephaly is the only problem, the baby can save several kids who have a good chance at a quality life with things like heart defects, kidney failure, and liver failure. The only other source of donated infant organs is the occasional shaken baby syndrome that isn't DOA. Some parents don't even think twice about it because the kids who get the organs often grow up and live normal lives.

But it often doesn't work out because anencephaly or related brain problems are rarely the only issue.

Has the thread covered the woman who carried her anencephalic baby to term specifically for this purpose?

 

[RebatsivePulsard]

Has the thread covered the woman who carried her anencephalic baby to term specifically for this purpose?

Someone proceeding with a pregnancy for that specific purpose is a fucking hero in my book.

 

[A tree]

Someone proceeding with a pregnancy for that specific purpose is a fucking hero in my book.

Woman gives birth to terminally ill baby to donate its organs

Eva Grace Young died of the birth defect anencephaly on the day she was born

www.google.com

 

[Jeep1971]

...You do not understand what brain death is do you? The reason kids like Archie are still alive is he is on a vent. That is a machine that forces his lungs to inflate and deflate. Now, while he is on such a machine it sends oxygenated blood to the brain stem. Said brain stem keeps the heart beating but only just. This is the way Organ donors normally have to die. Brain death is death. The brain cannot recover from complete death. You remove the vent and his body will die. Today, tomorrow, or next year. And even on the vent, his body will eventually die. Check out the Jahi thread to see what happens to the dead body while the vent barely keeps them alive. Also for God's sake LURK more. Read the OPs I've seen you in two threads I follow so far... Learn how the farms work.

What happened to Jahi was criminal! She slowly withered away and was nothing more than a husk of a human. It was like "Weekend at Bernie's" only it wasn't fictional it was a real story.
Jahi was already gone but her selfish mother was more concerned with her "hustle".

And Tinslee? She is in so much pain that experienced nurses started to refuse to care for her. They couldn't even change her diaper without dosing her up so her heart wouldn't stop.

It's inhumane. We would put down a pet that was in that condition but we let humans linger? Make it make sense!

 

[CaseyTatumm]

View attachment 3347756

So In other words, she just googled possible challenges and claimed that’s why he did it without any proof.

 

[A Detachable Penis]

meaning you've got to turn off the machine that is doing that, stop giving the heap of drugs that's making it do it

it's a mechanical process being regulated by chemicals and machinery outside the corpse.

Is a heart on a table pumping make the person it was once in 'alive'? No, the heart itself is a machine that will always pump with the right stimulus.

Can anyone say at what stage in situations like this the patient stops being a viable option for organ donation? How late is too late?

I'd like to think, if I were the parent of this kid, that's the route I'd be looking at now, trying to help as many other kids as possible.

They do use the pressors and stuff to keep the organs going, but after long enough the organs still start to suffer damage. The brain supplies a constant barrage of hormones to the body and without those, the organs know whats up and start to shit the bed.

The sooner the better for organ harvesting from brain deads. A quick google suggests a few days before damage starts to occur to the organs. Id say it starts immediately, but after a few days it's significant.

 

[copacetic91]

She’s updating on the “spreadthepurplewave” page now

 

[Everything Beagle]

You often hear about fundraisers to get kids help at special cancer centers in the US or Mexico. The people running these places are absolute quacks, who have nothing to do with actual medicine. They belong, not in jail, but UNDER THE JAIL.

The question is, do you tell the people fundraising for the kid? Will they even believe you?

 

[booklover]

A friend of a friend had a baby last week at 24 weeks due to premature labor...I'm not sure how much she weighs but she currently has a brain bleed and it isn't looking good.
As much as I do care about my friend, is it wrong to hope if the child is too fragile that she will go peacefully?
This thread reminds us all there are things worse than death but at the same time I feel like an asshole.

How are she and the baby doing now?

That actually is one reason to *not* abort a kid with something like anencephaly. They can be used for organ donation because they meet the criteria for brain death. And if anencephaly is the only problem, the baby can save several kids who have a good chance at a quality life with things like heart defects, kidney failure, and liver failure. The only other source of donated infant organs is the occasional shaken baby syndrome that isn't DOA. Some parents don't even think twice about it because the kids who get the organs often grow up and live normal lives.

But it often doesn't work out because anencephaly or related brain problems are rarely the only issue.

Some babies and small children also qualify, due to various accidents.

If a baby with anencephaly, or some other similar condition, isn't eligible for donation, the organs can also be used in research, with the parents' consent, of course.