Community Munchausen's by Internet (Malingerers, Munchies, Spoonies, etc) - Feigning Illnesses for Attention

Question for everyone: do you automatically doubt EDS people when you see it mentioned?

I was reading a post in an illness group from an OP who wanted to know our symptoms, and how they lead to our diagnosis. I know that the group is for a rarer problem, and it can look like other things, so I wanted to respond. But then I saw a reply where OP said they had EDS, and deleted whatever I had typed.

I know it's possible for someone to have it, but that on top of the group I was in was odd. Too odd.
I don’t doubt someone claiming one of the 13 subtypes that have genetic tests. But hEDS does not yet have an identified genetic marker, and there are a few docs that hand out diagnoses like candy at Halloween. (Can’t think of any of the names other than Trevino in FL ATM).

If someone has an hEDS diagnosis from a reputable hospital like Mayo, and they aren’t all over TikTok/IG sperging about all their hEDS (and PoTS and MCAS) issues, i’d be inclined to believe them. In fact I can believe some of these girls probably do have it.

While it can cause debilitating problems, most of them are fucking treatable. Treatment can be as simple as PT/strengthening exercises, but for most it gets more complicated with age. There’s gonna be pain, sometimes a lot of it. Knee, hip and shoulder replacements are common, as are spinal fusions.

The worse thing one can do is sit on their ass and get deconditioned. I never see any of our munchies talking about PT or regular exercise. Those that have graduated to mobility aids in their teens and twenties are setting themselves up for a real shitty mid-late life, when it is entirely possible to live a relatively normal life (albeit interrupted by surgery every 5-10 years) if they would just stop trying to score SM spoonie points and start doing as much as possible to actively remediate the condition.

As mentioned a few days ago (in this thread I think, or in Allison’s) one concern that any sane person would have to think about, hard, is whether reproducing is a good idea. I would not want to pass on any form of EDS to my offspring.

Edited to correct dbl post and formatting
 
Question for everyone: do you automatically doubt EDS people when you see it mentioned?

I was reading a post in an illness group from an OP who wanted to know our symptoms, and how they lead to our diagnosis. I know that the group is for a rarer problem, and it can look like other things, so I wanted to respond. But then I saw a reply where OP said they had EDS, and deleted whatever I had typed.

I know it's possible for someone to have it, but that on top of the group I was in was odd. Too odd.
I assume anyone with substantial hypermobility has anxiety, and I assume a lot of what I see non-munchers doing comes from the need for reassurance.

It's bad to tell people inquiring about symptoms/experiences anything other than see a doctor. Someone with RA could decide they have hEDS and miss the window to avoid a lot of damage, etc. etc. etc.
 
I've archived the following. I know nothing about scoliosis, but the video doesn't seem believable. Stars Kaylee - the dancing tiktoker from above.
That’s because it’s not believable, laughingly so. Scoliosis treatment is semi-complicated but the simple version is that the only correction available once you’re done growing is surgical. If you’re still growing there’s a bunch of options for bracing to try to keep it from getting worse, and maybe force the spine back where it belongs, but they’re all a long term commitment — 16+ hours a day for months, possibly years.

You simply do not go from the first x-ray to the second without either surgery or some fraudulent malarkey like bending over for the “before“ photos/x-ray. The only way to correct a curve like that is to attach a rod down the length of the spine, but even with surgery a mild curve usually remains. But a 20° curve is just a meh situation, while the 63° curve in the “before“ x-ray would be consistently painful as well as life limiting.
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You simply do not go from the first x-ray to the second without either surgery or some fraudulent malarkey like bending over for the “before“ photos/x-ray. The only way to correct a curve like that is to attach a rod down the length of the spine, but even with surgery a mild curve usually remains. But a 20° curve is just a meh situation, while the 63° curve in the “before“ x-ray would be consistently painful as well as life limiting.
But she didn't have a real summer tho.

It might just be flexibility. You can have hEDS and be a munch. I think we found a munches first ever munch.

I'm archiving a little bonus FND, and I'll edit and attatch when it ever finishes.




Edit: To be clear, it's under the control of her brain if it wasn't something the chiro did to get a crazy shot. She was contorting during the walking shot.

I've seen my T-spine look like that in standing xrays. It really might be something she's able to just do. If she doesn't starve herself to death she'll probably wind up with a bunch of bad discs in her mid 30s if her spine is that flexible, no matter what she does. It puts a lot of compression on the annulus(?) that shouldn't be there.
 

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Damn. I’m so sick of these whiny bitches moaning and groaning about their oh-so-terrible hEDS, and using mobility aids for attention. The absolute fucking worse thing for someone with hEDS to do is to get deconditioned. Yanno, like using a wheelchair that isn’t needed? I simply don’t understand how so many of these munchies are fooling so many people. Don’t medical professionals (if not family and friends) see this for what it is - BPD/screaming for attention/failure to launch and/or eating disorder? FFS.

This kinda BS is why hEDS has become a garbage diagnosis. Like fibromyalgia, it’s real, but people who actually have hEDS don’t claim it bc they don’t want med pro’s to associate them with these types.

Anyway I fully expect the MATI stickers for this post… bring ‘em on, bc I admit, I am.

To be clear, I’m not dinging on all ambulatory WC users here. Ofc it make sense to use a wheelchair if you have a specific issue, like bone on bone osteoarthritis due to hEDS, while waiting on insurance approval for a total knee or hip replacement (or two); that’s reasonable. But that is not what this is!

It's pretty easy to see why some doctors are into it. Munchies are cash cows. And they're the reason why I say fuck socialized health care. You think it's bad a now? Wait until we have to foot the bill for their "treatment" no matter what. Malingering will go through the god damn roof. It's already a massive problem in the UK.
 
Let's meet our next friend, Mazzy Alyse Noriega d/b/a @chronicallymaz, one of the “playing chicken with a real and potentially fatal health condition to get attention” variety. Found on simple hashtag hunt. I tried to find friends that were giving out the hospital drama on tap by surfing explicitly medical tags like #sepsis instead of the more advocacy-adjacent ones like #babewithamobilityaid because I'm super tired of them screeching at me about ableism. This one doesn’t disappoint. Plus we detour to meet my favourite account I have ever found in my life... kinda!

Account starts in April 2018, original handle was apparently life_of_a_liver_girl. Our heroine Mazzy had autoimmune hepatitis and needed a transplant as a baby. Her liver levels are now fine but she’s suffering from new symptoms like heat intolerance and hypertension. This is her sicksta. Her personal account (@mazzy_noriega) is private. From other posts we learn she’s 17, she lives in San Diego, CA, and she loves Jesus.
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Her blood pressure is indeed elevated and her NP wants her to get her kidneys checked.
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The hypertension is caused by prograf (tacrolimus), a drug she takes to keep her transplant from rejecting. She needs an ultrasound and maybe a biopsy to assess the damage. Throughout this timeline, keep the transplant and the anti-rejection drugs in mind because there are countless times that is way more likely to be the reason for her problems but she will settle only for the trendy instagrammable diagnoses all her munchie friends have. In the comments, this person thinks she’s a kidney recipient.
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she attends Painted Turtle, a camp for children with chronic illnesses. This charity was founded by actor Paul Newman and is completely free of charge to all families who qualify. She legitimately does as a transplant patient with an autoimmune condition.
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Gets a renal ultrasound, her GGT (liver enzyme) is elevated and has been for a year even though just a few weeks ago she was telling us her levels were fine. She’s given a medication that comes from bears. She’s most likely talking about ursodeoxycholic acid (UDCA). Cardiology tells her she’s fine and she’s literally not? Like hellooooo things that don’t bother other people bother her??????? So she’s getting a holter and stress test to prove it. Also I love this chick in the comments explaining how she sucker-punched her liver with her binge drinking habit lol.
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In July she has her holter and tells us the new liver drug worked and she’s back to normal people levels, but now she’s losing weight and can’t figure out why.
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She goes silent for three months and comes back with Creamy, Delicious Kate Farms Core Essentials Ready-To-Drink Total Nutrition Shake (Chocolate Flavor). Made with organic plant-based proteins. Try it over ice cream! She’s lost more weight, despite no changes to diet or exercise levels. She has too many allergies for normie Ensure. Her liver enzymes are still normal, but her platelets and WBC have dropped so they want to do a workup for things that might be causing the problem.
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Another three month silence is broken with news that she has MCAS. They’re trying to figure out whether her blood pressure issue is from this non-existent disease or the much more likely culprit of the drugs she has to take for her real liver transplant.
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She has an allergic reaction to the smell of food but she has the drugs to treat it. She has been taken entirely off her BP medication. She has been trying to get in with a GI specialist for abdominal pain.
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I will never understand Christian women and their love of defacing their own holy texts with stupid doodles lmao.
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She goes to the GI in February 2019 complaining of abdominal and joint pain. Gosh, I do wonder what she’s angling for! GI is “stumped” and tests her for Eosinophilic Gastroenteritis and giardia and tells her to see a rheum. She’s given a PPI for GERD, will get an endoscopy if nothing turns up in her bloodwork. She cries and needs to be comforted by her social worker because she didn’t get the answer she wanted to hear.
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Two weeks later she’s back saying she had anaphylactic shock from mislabled food. She ate a bowl of soup but the tupperware container was mislabled instead of her soup, it was one that had cow’s milk in it. She calls her mom on the phone because she doesn’t have an epi and waits for her mom to drive home to take her to the hospital. She starts puking in the car and finally makes it to the hospital where she’s given epi, meds, and breathing treatments. My favorite part is when she gives away that this is a big poopy pants temper tantrum because her doctor told her she didn’t need an epi pen. YES HUH!!!!
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A month later, announces she’s had colon/endoscopy and she’s praying for a new diagnosis. She’s doing life.with.stripes’ fitness challenge.
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Wanna look at her insides? Neither did I! They have crossed MCAS, crohns, celiac, and cancer off the list of things that might be wrong with her. They put her on Lialda (mesalamine), an ulcerative colitis drug and tell her to come back after 4-6 weeks. So disappointed God didn’t give her a shiny new diagnosis.
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She is super bloated. Her inflammation markers are still in the normal range but elevated from her baseline. She’s on a new antacid and a new medication that only works once it hits the colon, but it isn’t covered by her insurance. Needs more testing to see what’s going on. The continuation in the comments is just about a kid who died of cancer.
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She gradjipated and bapticated. She’s ready to move onto adulthood and leave all this behind her I’m sure!
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Has an ultrasound looking for portal hypertension (she doesn’t have it and in fact her liver is happy and the ultrasound was beautiful). Hematology isn’t concerned with her low platelets and WBC. Overall she’s not pleased that no one will diagnose her with anything.
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Working makes her feel yucky. Unlike us normies who wear parkas and stand directly in the summer sun while eating handfuls of diuretics, she uses revolutionary spoonie technology like “shade” and “drinking water” to stay well.
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Losing weight again. Prescribed an antispasmodic. Getting a GES if her symptoms won’t improve, after telling us she’s now prescribed zofran and an antispasmodic, two things we know delay gastric emptying. Yay!
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IBD specialist orders more testing, another colonoscopy/endoscopy, MRI of her GI. She’s told to reduce her budesonide (delayed-release steroid for IBD) and increase her lialda. Hoping she gets a ulcerative colitis diagnosis out of it.
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Scoped again, this time does not make us look at her pooper from the inside. They find she has gastritis, super common but no chronic inflammation in her bowel, which means it’s not ulcerative colitis. Getting an MRE and a pill cam study. They think it might be crohns which she’s already been told it isn’t or medication-induced colitis which sounds like our girl. But she’s gotten herself a week’s supply of Creamy, Delicious Kate Farms Pediatric Standard Enteral Formula and Kate Farms Pediatric Peptide Enteral Formula (Vanilla Flavor). Made with Spectra™ 100Mg Superfoods Blend. Try it in your coffee!
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See, not to go off on a total tangent but lol why? She’s covered up nearly the entire page of scripture leaving just the words “where is your faith?” visible. And like… you’re supposed to read the book that’s the point.
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Pill cam done, hoping to get better pain management options out of it. She got to wear the cool monitors to college with her and even figured out how to watch the photos it was taking! She has not taken a poopies. She wishes she had gotten the other test because this one didn’t give as much information as the doctors need to diagnose her, and she knows this as a high school graduate in her first week of undergrad.
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Around here she starts a Youtube channel under the same handle (Chronically Maz). First video is boring as shit but it gives more background on the autoimmune hepatitis she actually has. Yes, she always sounds like this.


Her weight is still dropping and she’s struggling with hydration. Even worse her insurance has denied covering Creamy, Delicious Kate Farms Pediatric Standard Enteral Formula and Kate Farms Pediatric Peptide Enteral Formula (Vanilla Flavor). Made with All Good Things™ including our proprietary blend of vitamins and minerals. Mix with vodka and kahlua for a nutritionally complete White Russian!
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Another round of hematology. She’s diagnosed with thrombocytopenia and is put on a low platelet protocol. She might need a bone marrow biopsy to see what’s going on. You know what can cause that? Her medications. And her self-induced malnutrition.
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She is in constant pain and almost faints from not eating or drinking.
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She’s diagnosed with Crohn’s Disease which she was already told she doesn’t have and for which diagnosis is based on chronic inflammation, which she has after doing whatever the fuck she’s doing for two years. Starting Entyvio (vedolizumab) infusions, getting tested for small intestinal bacterial overgrowth, and she’s been in the hospital for a week.
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Alright, detour. This kid she’s hanging out with is absolutely fucking fascinating. I will not be posting her archive because she’s been inactive for two years after what can only be described as a true and total redemption arc, and because her account was only active from ages 13-16. I’m not about to dox an actual child who has, by all appearances, gotten better and moved on with her life. But this is the kind of self-aware and repentant account I have wanted to find for the however many long years I've been doing this and I can't just not talk about it. So click below for a very long text-only description. Even if you don't care about this kid, her honesty will help us interpret plenty of mazzy's lies since they see the same doctors and have the same experiences.
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(This is the one I said in the last post I probably wouldn’t post. Let me preface by saying I had no idea she was underage or had gotten better when I archived her. I scraped her account based on meeting my minimum requirements of being public and prolific with some combination of the following attributes: account dedicated to illness/disability as aesthetic, hospital drama, connections to other known munchies, and/or dubious service dog. She checked all the boxes except the dog and it wasn't until I started writing that I realized what I was looking at.)

This person is a perfectionist, high anxiety, with a self-admitted habit of pushing herself way too hard. She lives a pretty regimented life controlled by “must do” lists and schedules she drafts up. She wants to be a surgeon and spends her free time trying to improve her odds of achieving this by watching university lectures, studying independently, and even practicing with one of those silicon suture pads. And yes, positive Grey’s Anatomy sign. She's also a gymnast and on her gym’s competition team, which she also throws herself into full force and does well in competitions.

At age twelve she breaks her ankle at a gymnastics meet. As it heals she develops an impingement because of something to do with the growth plate and this requires surgery to fix. After this she develops CRPS and it’s the real deal, down to the swollen, bright red leg many months after the surgery has healed. She’s referred to a pain rehab clinic that’s based in physical and cognitive behavioral therapy and puts in the work to get better and get back to gymnastics. After “graduating,” she’s excited to be back in the gym but very quickly learns that after a year off, her skills are very rusty and the CRPS makes tumbling a nightmare. At the same time that she realizes she will never be back to competition level, she befriends a newly munchified Jordan Asbee. She soon has a large following of spoonies all claiming to have The Usual Suspects. She starts getting worked up for all the zebra diagnoses, claiming EDS and POTS and complaining of nausea, vomiting, lack of appetite, and major pain after eating. She gets a bunch of testing including a GES that shows she actually has rapid gastric emptying and a bunch of other stuff that turns up normal.

Amazingly, shortly after this she admits she really has an eating disorder and doesn’t want to get better. She does agree to go to a partial hospitalization program and eventually to a ~2 month residential treatment program where she won’t be allowed access to her phone. She spends eight days there refusing to eat or drink and her vitals crash. They find her a bed in a medical ED unit where she’s supposed to get an NG tube, IV fluids, and more intensive treatment then be transferred back to residential once she’s stable. This plan falls through and instead she’s taken to a psychiatric hospital and placed in a mixed ward where she’s the only teenager. Terrified and thinking it’s the only way to get out, she starts to eat. While she’s there she loses her place at the residential treatment, so she’s just discharged home to her parents. She goes back to her regular hospital’s ER trying to get tubed but her vitals have improved from the meals she ate so she is instead referred back to partial hospitalization. Her parents want to take her phone away because they realize social media is keeping her sick but she apparently talks them into letting her keep it by seeing a new doctor who specializes in ‘incidental eating disorders’ (eating disorders that develop secondary to a physical condition) and complying with that doctor’s treatment.

A month later, she goes to the ER complaining of extreme abdominal pain and an inability to eat or drink for days and her vitals have once again crashed like they did at the residential home. This time an NG tube is placed but within a day or two she’s moved to the medical behavioral unit with the eating disorder patients. She spends weeks there refusing to eat, crying when they try to get her to eat, and complaining of excruciating pain when they try to raise her feed rate. She claims she this is totally unrelated to her eating disorder and she hasn’t been even tempted to engage in ED behaviors in months, but that her CRPS has spread to her stomach and she can’t eat even though she desperately wants to. During this one-month hospitalization she posts emails she sends to doctors asking them to consider putting her on TPN or refer her to the Mayo clinic for more testing and texts to her family begging them to get her discharged. The hospital won’t let her leave because she’s a minor on a behavioral unit. They attempt to do another pain rehab program like the one she did for her leg, but she refuses because it involves eating. At one point she has all her munchie friends make a petition to “free” her with over-the-top description of the medical abuse she was experiencing and apparently the names of her doctors and nurses. The hospital found it and was unamused. She’s discharged a few days later without a feeding tube after finding another doctor who agrees to take her on.

The new specialist is a total quack “holistic medicine” doctor who agrees to tube her again and diagnoses her with a bunch of bullshit like chronic lyme disease complete with woo treatments. Doctor furthermore confirms that the CRPS has moved into her stomach and this is the cause of all this young person’s problems. At this point she starts claiming she actually never had an eating disorder and was gaslit into believing it and the treatment made her real problems worse. She continues to try to get diagnosed with MALS or “alternating RGE and GP” so she can keep her tube and cries about being invalidated by doctors who tell her she just needs to eat or go back to her ED treatment. At the same time, she admits she doesn’t want to be cured because sickness is her identity and she has nothing else without it.

Finally she gets referred to Mayo for the full workup but only if she goes to their behavioral health pain rehab program for three weeks. She also finds out that the instamunchie community is full of malicious little vipers and the girls she thought were her friends are not. Right before going to Mayo she makes an insightful post about how these girls put such an emphasis on proving they’re sick and that nothing will make them better and how this turns into peer pressure that incentivizes other people to not even try things that might help. Her example is basically that if all your friends have feeding tubes and claim they can never get off of them, then you both want one and will not try to get off one if you get it, because if you’re the only one that doesn’t have it or gets better, they’ll say you were never sick to begin with. Even after Mayo says she will no longer be admitted for the full workup but only the pain management clinic she agrees to go and to be optimistic about its chances of helping her. She takes it seriously, throws herself into it with the same zeal she used to throw herself into her studies, and finishes on time despite a minor (apparently ED-related) setback over increasing her intake. Home, she unfollows a bunch of accounts that only post medical drama saying it’s too triggering when she’s in recovery.

Her final grid post, she no longer has a feeding tube and is urging people to give cognitive behavioral therapy a try, explaining how it helps her with her CRPS and functional pain. Her last saved story is about how she’s excited to get back to cheerleading, and the link in her bio is now a link to Johns Hopkins’ pre-college classes aimed at high school students who want to study medicine. Her tiktok is up too with mostly teen girl fluff for the last year and change it was active, a huge change from daily crying in the hospital videos. She cheers on other girls who are trying therapy and moving on from illness-as-identity. The few times she mentions her health it’s to say she learned how to cope with her problems. After a few posts saying she’s starting to hate social media, she goes dark there too.

I know we can’t know what she’s like offline but I’m willing to say this one actually got out and that warms my cold black heart.

Anyway back to Maz, she gets her first Entyvio infusions and goes to a transplant event.
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A kid in the infusion center is screaming that he is done, giving up on treatment because it’s too painful, and this is about our brave warrior who is doing all this for funsies.
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By the way wasn’t she just complaining about killer constipation?
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Starts prednisone taper and uh, paints her bible again
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Despite this her weight is dropping still. She’s given an appetite stimulant but because her pain is associated with eating this makes her feel worse.
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I see I am not the first to tread this path. Yes, if your tests keep coming back normal the doctors who went to school for this will tell you that you’re not sick. This is so weird to me because she actually is sick and has a liver transplant and anti-rejection drugs to prove it, but she’s still going after these trendy diagnoses.
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Frey Life shirt.
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IBD Awareness week. She’s lost 35 pounds in two years, she’s always in pain and a constant cycle of constipation and diarrhea. She’s quit her job. I like this very revealing talk of her last second opinion. So from this and what happens later in the account, my guess is that she was angling for a feeding tube or TPN from the last doctor and that was the more aggressive treatment that she was told they were going to use as a last resort. Instead she got an appetite stimulant. She then went to get a second opinion and that doctor disagreed entirely on the Crohn’s diagnosis and told her it sounded like she had IBS with constipation. Mazzy has now conflated this to having both and is trying to get these doctors ‘on the same page’ because she thinks this will end with her getting what she wants.
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She’’ll be getting accommodations at school. Also obligatory ana-chan sucking in vs pushing out body check. And Creamy, Delicious Kate Farms Standard Enteral Formula (Chocolate Flavor). Because your jejunum has taste buds now. Try it as a salad dressing!
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Jesus helps see her through when she has the runnin’ poopies.
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Man if you told me that top left was Jaquie I’d believe you.
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For a while she’s doing that thing they all did. “CAPITAL LETTERS. Eight paragraphs of vaguely related navel-gazing rumination about how wonderful I am.” If I ever found out who started this trend I will dox them to within inches of their lives.
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End of year review, looking back on how she started her munchie journey and looking forward to many new diagnoses to come.
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In January she is getting another endo/colonoscopy and bone marrow aspiration, maybe another pill cam.
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She vlogs this for us. High key Jaquie vibes but maybe it’s just because I miss Jaquie so much. Honestly while I archived her channel it’s really not worth wasting the server space for most of her videos. She’s incredibly boring and rarely gives any usable information, like she’ll tell us how a test works but not what her results were or any notable specifics from her experience.


The entyvio has worked to fix the ulcers and thus this was not the source of her alleged continued pain.
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In January she also starts a tiktok and posts the exact same thing all these clones do. “trying to hide my illnesses from all my friends” YOU MADE A WHOLE SOCIAL MEDIA ACCOUNT FOR THEM.






Unfortunately she just makes an ineffable noise in reaction to this question.
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Is she just not telling these doctors she’s on the anti-rejection drugs? It seems to me that if she’s on the Cellcept and Prograf and Pred and also she’s not eating/malnourished then the anemia is not idiopathic. It’s induced. (The Entyvio, while it is a -mab, does not cause general immunosuppression like others. It selectively blocks WBC in the intestine only).
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It’s almost sad. Like she had this actual medical issue that defined her early life and once she got on social media it’s what made her stand out from the others, so she decided that sick needed to be her identity. Just like her friend who got better, except she doesn’t.
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And her real life friends are apparently not pleased that this has become her whole identity.
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Imagine being offended that someone says you look healthy.


Insurance approved the AA workup. She needs whole exome sequencing. Hematologist is very confident she has AA and something will turn up. Watch this space!
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She’s lost another 10 lbs in two weeks and eating anything causes pain. She can’t even drink water. But she’s got more Creamy, Delicious Kate Farms. Try it as a leave-in conditioner! Someone who remembers she’s a transplant recipient tells her to see her hepatologist and she confirms her liver is doing just fine.
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“I’m going to poop in this.”
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man imagine if she just like, advocated for people to be donors and save lives and stuff instead of this ridiculous munchie bullshit?
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I’m not saying she’s fat by any stretch but I just don’t see 50 lbs of weight loss from the start of her account. Like she was always slender and she hasn’t become emaciated, she’s just learned how to pop her bones at certain angles (see her ribs in the “bloat” pic and the clavicle here). I believed it with Jordan because she went from absolutely jacked to skinnyfat. I’d believe 15-20 lbs.
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She’s got a few viral infections that could fuck her up and needs more testing on that, she has bloodwork for genetics, she has her infusion, she’s getting a GES (oh boy!), amongst a bunch of other appointments. aquagenic urticaria, that thing where they get hives from water
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Man it’s just so weird, she has a real rare disease and a transplant. why is this her life now? Angling for the central line.
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“In a way it’s become part of my identity.” Or the entire thing. “I didn’t choose this”. Keep telling yourself that. So she has the real disease and it was under control. Her first non-liver complaints were heat intolerance and hypertension that was caused by her anti-rejection med. She’s been diagnosed with other things but these aren’t coming with toys to let the general public know immediately that she’s sick so she keeps going to more and more doctors trying to get these more desirable, instagrammable diagnoses that give her tubes instead of just another post about pooping (with descriptions that sound suspiciously like stimulant laxative abuse to me). In the meantime she’s getting the school to give her accommodations that will allow her to miss the entire semester without consequence. Did I miss anything?
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We enter covid days and she is just jesusing all over the place.
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Place your bets on which meaningless VUS she starts claiming is the cause of all her problems.
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She has MCAS but it’s mild and controlled by Zyrtec. Also it’s hard to see but it looks like the box flap on the epi says it expired in July 2019. Also her urticaria, make of it what you will. It kinda looks like the early stage of dishydrotic eczema to me.
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My god. Why would you want “I shit a lot” to be your identity?
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Man, covid ripped so much munchie drama from us, didn’t it? Other than a few minor posts like this it’s all about jesus and how social distancing is cramping her worship.
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Pill porn! One of the generic looking white tablets (the one that’s kind of pointy at the ends) is just Zyrtec and the white-and-red gelcap imprint L486 is the stool softener docusate sodium. The peach one with the M2 imprint is CellCept and the little yellow capsules are Prograf, both anti-rejection drugs. White with the imprint that ends in -ON is Ursodiol, the bear liver drug. Little tiny round white tablet looks like zofran dissolvables.
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She’s being deprived her Creamy, Delicious Kate Farms Standard Enteral Formula (Chocolate Flavor). The only choice for today’s social media addicted munchie. Try it in your enema! Being referred to Rheumatology for joint pain. Also having telehealth with Dr. Michael Ruscio. Oh boooooy howdy! “Dr.” is a strong term for this guy. His educational credentials are a B.S. in Kinesiology from uMass, a doctor of chiropractic from the delightfully fake sounding Life West Chiropractic College and a doctorate in natural medicine which is the same bullshit degree Ginge uses to claim she’s a licensed medical professional. He apparently specializes in highly overpriced supplement regimens.
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Liver is still perfect and she might not be tolerating her Creamy, Delicious Kate Farms Standard Enteral Formula (Chocolate Flavor). Try it as a carpet cleaner! Remember this girl does not have a feeding tube. She’s just drinking tube feeds because they're more broken down than the ready-to-drink shakes. Also the quack is giving her a bunch of naturopathic remedies to try. I sure hope the people handling her real liver transplant know that.
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SHE DREW TOILET PAPER IN HER BIBLE. This post is just muh trauma and jesusing but haha holy shit did she really not think through the implications of representing crohns disease as a roll of toilet paper in her holy fucking scripture? Other shit is pills, an IV and pumps, nebulizer mask, a syringe, an epi pen, a cardio key heart monitor, the pill cam monitor, a vomit bag (also funny), blood vial, heat pad, and tens unit, and the grey thing with the dots is I think representing her transplant scar.
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She’s on a low fodmap pescatarian semi-elemental diet (what?) and she is getting more exercise.
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Two months of silence and she reappears to tell us that yep, she has a VUS for Atypical Hemolytic Uremic Syndrome, which would cause kidney failure, blood clotting, and all sorts of other problems. Remarkably, she is not claiming she totally has this. Her doctor thinks she has gastroparesis but she can’t get a GES but is trying erythromycin for its prokinetic properties anyway.
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SORRY SORRY BUT it still amuses me. Maz seems to be Christian entirely for the aesthetics. She likes painting in and on her bible, posting bible quotes to social media, and admits her faith “slipped” or whatever term she used when she couldn’t be seen at church IRL.
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Let's stop here because at this point she's still able to walk this all back. After this she'll start pursuing more and more dangerous treatments with predictably fun results (for us).
 
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Question for everyone: do you automatically doubt EDS people when you see it mentioned?

I was reading a post in an illness group from an OP who wanted to know our symptoms, and how they lead to our diagnosis. I know that the group is for a rarer problem, and it can look like other things, so I wanted to respond. But then I saw a reply where OP said they had EDS, and deleted whatever I had typed.

I know it's possible for someone to have it, but that on top of the group I was in was odd. Too odd.

Do you know anyone with a severe medical condition that constantly talks about it in public? Because everyone I know that actually has one almost never talks about it on social media or with people they don't know.
 
Mazzy Noriega part 2. When last we left our heroine, Mazzy was freshly-diagnosed with Crohn's disease after being told she did not have it and it was likely the side effects of the medication she needs to take for her real transplant she needed for her real liver disease. That's not good enough because it doesn't come with cool toys she can show off on Tiktok. She needs to really step up her game up if she wants to run with the big dogs and she's decided that our old friend gastroparesis is her ticket.

We begin part two with a hospital photoshoot. She's inpatient but doesn’t say why, and she hand-embroidered harry styles jeans, which are actually kind of impressive. (although the cut is super unflattering imo)
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An explanation: she didn’t eat and shit her brains out until she dehydrated herself. She is diagnosed gastroparesis on GES and gets an NG tube.
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Lol @ the nurse saying that none of her patients are ever this happy to get a nose hose. I wonder why that is.


This is very exciting and she posts a ton of stories to celebrate. This is a mere sample and they're all out of order because fuck it i don't care
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She gets called out for her obvious eating disorder.
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Enjoy this Q&A where she both says she’s the one that badgered doctors about GP being a possibility and that the doctors brought it up first. It mostly sounds like she has really bad GERD, confirmed by the dozens of doctors telling her to take antacids.
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Positive Grey’s Anatomy sign!
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She’s home and she’s been prescribed the nausea medication diclegis, a combo of the antihistamine doxylamine and pyridoxine, a form of vit B6. It’s sold for morning sickness.
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This YT video is a retrospective on how she successfully starved and medicated herself to a GP diagnosis and then the medical behavioral unit came down to make sure she doesn’t have an ED.


Aww, if this was what she was doing with her account I’d have no meanie doodoo internet words to say to her.
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What a shock, her tube keeps kinking and she’s somehow still losing weight.
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Also she can't shit.
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Hospitalized for pain, the tube keeps kinking. They replaced it but she was still sick so they started her on TPN. She also has a cyst on her ovary. Her GP might be getting worse or have spread to her intestines.
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Here's some of the many stories she posts documenting this exciting time in her life.
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There's also some issue where she goes off CellCept and starts another medication called 6mp that serves the same function. This is apparently very risky with her liver.
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Here’s her vlog. Not that interesting, she’s not “tolerating” anything so they keep doing tests to figure out what’s wrong while they run only exceedingly slow drips of pedialyte through her tube. She continues to wail about pain and nausea even from this so they switch her to TPN. The only really interesting thing is she mentions her doctors do not believe she has Crohns and suspect it’s actually medication-induced colitis from her anti-rejection drug, just like all of us do. She says her GES was at first only mild/moderate but now after weeks of starving herself it’s gotten worse, shocking. And she confirms shes named after the band Mazzy Star. She is no longer on Creamy, Delicious Kate Farms Standard Enteral Formula (Chocolate Flavor) but now using a mix of different powdered formulas like Cheyanne.





Shes on partial parenteral nutrition for a few days and discharged with a tube.
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Her plan moving forward is YAY I GOT A FEEDING TUBE!!!
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She’s mad that she’s gained weight errrrr that her stomach was too distended. Tell me it’s not an eating disorder again.
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She doesn’t have aplastic anemia and doesn’t need a bone marrow transplant, I bet you are surprised.
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This kid smiles like she’s being held hostage and it’s very weird. Like I normally only see this lack of upper facial emotion from wine moms with too much botox.
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On Christmas Eve she’s starting Trulance (plecanatide) for constipation. I love how this kid claims to both be unable to shit and glued to the toilet shitting her brains out. She’s also starting sancuso, a nausea patch. The motility clinic doesn’t think she has gastroparesis and thinks she needs to eat. LOL.
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For a while she’s quiet on all platforms. She comes back in January to say she’s had to have her tube switched to the other nostril and for a while was eating normal but now she’s regressed.
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She’s in remission with her not-Crohns disease with no more ulcers since she started the entyvio.
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Over on Tiktok she’s gunning for a GJ tube.
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She’s been puking her meds up and now the level of the anti-rejection drug that keeps her transplant alive is so low it’s undetectable in her system.
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Rare disease day comes and goes again. I love that the one she actually has is so far down the list.
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She’s getting a GJ. Is this supposed to show off hypermobility? Because it surely doesn't. It barely shows regular mobility.
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on tiktok she does the same dance over and over again for literally weeks. I feel myself getting stupider the more of these sicktok retards I archive.
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She gets her GJ and calls it “Georgia Rose” for some unfathomable reason. Jesus get a personality or a pet or something.
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Surgery vlog and the song is from Five Feet Apart, sappy teen romance about CF.


Nice erythema ab igne, kid. Also her liver is still shaky and her platelets are still low.
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Her liver keeps getting worse and now she needs a higher dose of steroids again.
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Steroids get her trending in the right direction.
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Lol she’s “gaslit” and dismissed by her IBD doctor and told she needs to stop doing “one of the only things that’s helping me” which she doesn’t elaborate on. She will be replacing this non-compliant doctor.
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She’s admitted again, PICC’d. Like Jordan and the others most of these videos are just her lipsyncing and flapping her hands around so I'm not archiving it. After this she blessedly stops uploading to tiktok for a long time.
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She has electrolyte imbalances, long QT is seen on EKG, her liver is angry. Amazing that this all started when she got a purge tube, isn’t it? I’m guessing that’s what her IBD doctor told her to stop doing and when she realized this kid just has an ED.
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Discharged with no central line but she might get one soon!!!
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And here we learn why that’s a profoundly bad idea: she’s apparently been “draining” her anti-rejection drugs and now her liver disease is back. But she might have POTS! How exciting!
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“Textbook POTS.” You’re dehydrated as shit and don’t leave your bed. Also lol @ her suddenly pulling up her shirt or wearing crop tops in every photo, lest we forget about the feeding tube.
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Don’t listen to those doctors, social workers, and insurance companies that tell you that you don’t need that trendy treatment and are killing your transplant! It’s terrible that they offer you a fun new toy then rip it from your shaking hands!
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Stupid motility doctor was a waste of time who she already fired because he didn't tell her she had the worst intestines he'd ever seen. Diagnosed POTS secondary to dehydration lol. Her rheum said her joint pain is "unremarkable." Why won’t ANYONE GIVE HER TPN????? And she’s transferring from community college to Cali State San Marcos campus.
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Admitted again for a broken GJ tube and other signs of her obvious eating disorder. She has colonic dysmotility in addition to crohns and IBS-D now. Time to start TPN again. Also very exciting, MAYO HAS ACCEPTED HER CASE!!!!!!!!
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Discharged on TPN with a PICC line. Oh for the record the hashtag I found her through was #totalparenteralnutrition. so let's talk about the big old elephant in the room: Mazzy does not have a full liver. She has a piece of her father's liver that's been transplanted into her but while the liver is regenerative it will never turn into a full-size organ. The analogy she gives to explain it is like a lizard that's lost its tail. The lizard (her father's liver) can grow a new tail but the tail (the segment transplanted to her) can't grow a new lizard. So she's already working with a fraction of what she would have if her liver was healthy. She is now on TPN which is very hard on your liver as we've seen from Cheyanne and others. She's also immune-suppressed from anti-rejection drugs and steroids, meaning she's more prone to things like sepsis from the central line. Sepsis can absolutely annihilate a healthy liver and hers is already compromised. She has turned herself into a ticking time bomb.
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She has to put medicine in her butthole now. Why is she so obsessed with poo? Tube clogged and she can’t do her meds, her new motility drugs aren’t working, she’s sucking her meds back out of her G-tube (not unless they’re delayed release lol) but god damn, that gut distention. Getting a bunch of tests at Mayo to try to figure out why she can’t shit. Finally tells us that while she started majoring in psych she’s now child dev and wants to be a child life specialist (the people who go around peds wards to make their lives more normal and work through the scary situation they’re in.. And the hashtags. “We’re here for a good time, not a long time.”
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She goes to Mayo in August for a GI transit study. It’s amazing she can eat these huge meals and keep them down until after the tests when she’s at Mayo being observed/might get validated but at home she vomits from a sip of water.
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After a year of starving herself and using anticholingerics to throttle her GI system, her GP is worse than they expected. She’s starting mesotonin, a drug for myasthenia gravis. Getting evaluated for EDS. Also she had to poop out a balloon and I am very mature and did not laugh at the thought of this.
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Here’s the GFM where they raised $26k for this adventure.
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LMAO tell me it’s an ED without telling me it’s an ED: she stops taking her motility medication because it makes her hungry. Using social media to dissociate so she might delete the apps.
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She’s silent on every platform until December when she announces she’s still declining and her GI tract is getting worse. She’s diagnosed hEDS officially after being “in denial” about it lmao. Scroll back up to see her extreme hypermobility. She also finally accepted that she never had crohns and has stopped the Entyvio infusions. Trying for aplastic anemia again. #pancytopenia.
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“Yes I was eating on TPN, mostly because I was the definition of a foodie before I got sick.” Continuously draining her stomach now.
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The juxtaposition of her fanny pack and her edgy birdfinger lol. Her phosphate is critically low now and she’s starting iron infusions.
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Please laugh at this pathetic attempt to prove hypermobility when she can’t even do the thumb to wrist trick while wearing a shirt that significantly decreases the amount of stretch she needs to convincingly fake this. all she needs to do is get the edge of her thumb to touch the cuff and she can't even do that. And she’s now claiming that EDS caused her autoimmune liver disease holy shit no it didn't.
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Meanwhile her real liver disease is still trying to kill her.
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In March she announces she has been in the hospital with sepsis from Klebsiella pnumoniae. It’s suckerpunched her liver and kidneys even more than she already did. She'll try to use this second picture to prove she was turning yellow from liver failure again but it looks like she's tinted the whole image.
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“If my evil doctor had just given me a tube when I asked for it I wouldn’t have had to starve, puke, and zofran myself to death’s door!” In the comments Jennifer is Battle2Breathe, the CF-er who claims to have developed spooky neurological shit from Trikafta and is now moving onto the zebra diagnoses because CF isn’t special enough anymore. She is currently apparently starving herself to death for clicks.
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I don’t even know what she’s mad about. Like I have no idea what she's talking about here or why the fact that she can't control it angers her.
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Giving away how many times she’s been referred to psych for her ED.
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There's nothing left for them to try now that she's still bitching about her stomach while on TPN.
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It’s almost like they’re used to sadbbygirls coming in complaining they can’t eat because they want feeding tubes for their social media. So now we know the story, in a way. Mazzy and her friend were both referred to MBU for their eating disorders after getting tubed at the same time in the same pediatric hospital. Mazzy has been using the fact that she was discharged as proof she was really sick (and possibly she was one of the ones shit talking the young girl for having to go to a quack to keep her tube.) There's a bunch of reasons their care differed: the friend had the ED history marked in her chart and her GES showed rapid emptying whereas Mazzy has never admit it's an ED and managed to delay her GES. But the real difference is simply that Mazzy had turned 18 and could sign herself out, so she did.
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She gets the Wu Flu
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Also her doctors are still saying there’s nothing wrong with her gut lmao.
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Trying to prove she has hEDS when the cool zebra girls point out all the ways she doesn't
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LET ME INDOCTRINATE YOU INTO OUR CULT!!!
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It’s so tough to destroy your own stable health for instagram hearts.
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TPN is killing her.
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Wow evidence of a mild allergic reaction.


Just keep telling on yourself, I love it. Like making a giant iced coffee while TPN dependent.
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In June she announces she had a bowel obstruction and has to have a resection. Just an aside but she hasn’t jesused in a very long time which I appreciate and has replaced that Gee Whiz attitude with this badass bitch shit she's pulling.
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Thank you mommy for letting me be forever baby girl.
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Celebrating a year of dedicated assault on her liver. Remember, the longer she stays on this the less GI function she preserves and the more chance she has to destroy her liver.
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“When I decided what diagnoses I wanted based on what all my social media friends had and then found out which doctors would diagnose them.”
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Like jordan, she’s saying that one of the times she was being gaslit over her illness she also had a nurse act inappropriately and she’s going to get them. She never brings this back up.
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Suddenly has anaphylaxis all the time.
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Emergency appointment tomorrow for anaphylaxis now. Ok.
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Pretty sure she's being told if she doesn't get off the TPN her liver-stump is going to fucking die.
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Summer 2022 she becomes a counselor at the camp she went to, except for EDS instead of the disease she actually has.
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Again, tell me it’s not an eating disorder when you’re using supplements to decrease your appetite so you don’t feel tempted to eat while on TPN. She doesn’t have and never had IBD, her GJ is leaking, her picc is dying, and she’s anxious and exhausted. She has another endoscopy, an endoflip procedure and pyloric botox scheduled. These are for dysphagia.
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Devastated that she only gets some of these new procedures and it was the awful bad doctor’s fault for giving her the tube she begged for. This is her last grid post but she’s still posting stories and on sicktok.
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Where we learn she now has a CGM for hypoglycemia and a broviac. Blood sugar regulation issues are a common problem with long-term TPN.
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For posterity:
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And that's Mazzy, someone with a certified Rare 'n' Shiny who still chose to get all the trendy diagnoses and toys to show off for her social media. She is now endangering her life because of it. The number of times she's been told she's at the end of the line for treatment or there's nothing else they can try should be alarming, but it isn't because she's still getting the "you're so brave and strong" validation she wants from a bunch of other girls who are heading down the same path themselves.
 
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I do believe Slaylee's scoliosis story is true. Not the instantly corrected but pretty sure she did have it and got hooked on being the sick girl. I've sort of lazy-timelined her but I've just literally had surgery yesterday so not up to a full post now and was holding onto it for when she goes full munch. She's gunning for her first toob now.


I've found someone who went to school with her saying she's always been a huge attention seeker. The story seems to go that she had scoliosis as a child, it was corrected and the doc said any pain she was still experiencing was psychosomatic. Not sure it severe as she was a dancer as a kid too


She was the little superstar of her family until much younger new baby came along which made her ramp up the attention seeking.


She was a decent dancer, made it to work a season or 2 at Disney and then was just one in a huge sea of dancing girls neither the thinnest or prettiest or the talentedest and the work just didn't come in for her so within months of her Disney placement ending. BOOM EDS wheelchair all the toys and she's found her niche as a *disabled* dancer.


She's just begun her gastroparesis arc the last few months.
 
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Question for everyone: do you automatically doubt EDS people when you see it mentioned?
I only doubt people who don't actually meet any criteria or have been proven to be total liars - and even then, the best lies are the ones based in the truth.

hEDS is not a rare disease. Hypermobility is pretty common, and if your hypermobility is causing pain and you're determined to get a diagnosis, you will likely be diagnosed with hEDS. The thing is that having real legitimate hEDS doesn't mean you're not also a munchie.
Chronic pain (or other real health issues) + BPD/symptoms + health anxiety = the perfect storm for someone to become a munchie as they spiral and desperately grab for anything to validate the suffering they feel.

The chronic illness community, which at this point is just the EDS and co. community, is just as bad as the pro-ana community. It's built to trap young women in the victim mentality, thinking they have to be sicker and sicker or else the actual real pain that they feel is not valid anymore. It's no longer acceptable to be just a little bit sick, it's all or nothing (hello BPD).

Every chronic illness patient should be in therapy. Being chronically ill is hard, especially in your teens-early 20s.
 
I do believe Slaylee's scoliosis story is true. Not the instantly corrected but pretty sure she did have it and got hooked on being the sick girl.

I've found someone who went to school with her saying she's always been a huge attention seeker. The story seems to go that she had scoliosis as a child, it was corrected and the doc said any pain she was still experiencing was psychosomatic. Not sure it severe as she was a dancer as a kid too


She was the little superstar of her family until much younger new baby came along which made her ramp up the attention seeking.
That I can believe. I’ve got a mild curve and as an adult it’s nothing more than a random fact.
 
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Its a while since I've looked back over what I've got on her but there might even be x rays in there. I'll post it when I'm feeling a bit better got nothing else to do this week
 
Its a while since I've looked back over what I've got on her but there might even be x rays in there. I'll post it when I'm feeling a bit better got nothing else to do this week
The only references I saw were:

and


The scoiliosis she references in these tiktoks and the treatment turned out to be DOCUMENTED by a chiropractor as a miracle case- where the xrays in her tik toks come from. I found on a chiropractor's youtube about conservative scoliosis management. About Kaylee when she was 13. A true medical mystery - she had a curvature the real doctors had never seen before, with that angle in her spine, that was fixed in under a month. I wasn't even searching for Kaylee, just conservative management of severe scoliosis.


If people think she had scoliosis because the spine can't bend like that, I know that it can.

The second video from the chiropractor:

She's showing symptoms of ataxia. I know something about myelopathies and ataxia, and I don't believe the difference between eyes closed and eyes open.

I believe she uses her first ever munch to deflect from her munching.
 

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I feel like I've seen stuff about her having had actual surgery in childhood but from way back in her insta not her tiktok.

OK here we are. Kaylees patently outrageous claims about her scoliosis in childhood.
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Kaylee's alleged X rays which are presumably the same as the chiropractor's ones
Screenshot_20230110_165836_Instagram.jpg


And kaylee in 6th grade which is age 12 I believe, with apparently 5 years to live due to this crippling scoliosis
Press X to doubt.
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Doctor says it's "hysterical" might explain why friendship ended with doctor now chiropractor is best friend.
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Yeah she be munchin'
I think she had a mild curvature, you can maybe see it a little in that image on the right, which was conservatively managed and got hooked on medical attention as a child.

Now I'm going back through her stuff she is incredibly fame hungry. She's tried to hop on every trend from vanlifer to makeup influencer to inspirational teacher. Disabled dancer is just the latest thing.
 
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Here's where she got called out on reddit. Kaylee herself directed me to this. It's worth keeping an eye on her insta stories she sometimes tells on herself and then dirty deletes. I kicked myself recently when i failed to record one fully about how she supposedly got bullied at Disney. She revealed herself to have been the bully who shared a photo of a disney princess she had recently had an argument with flipping the bird in costume to a load of industry people causing her to lose her job and then acted like she was the victim in this situation.
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Question for everyone: do you automatically doubt EDS people when you see it mentioned?

I was reading a post in an illness group from an OP who wanted to know our symptoms, and how they lead to our diagnosis. I know that the group is for a rarer problem, and it can look like other things, so I wanted to respond. But then I saw a reply where OP said they had EDS, and deleted whatever I had typed.

I know it's possible for someone to have it, but that on top of the group I was in was odd. Too odd.
Yeah, 100%. I assume they're attention-seeking-until-proven-otherwise if they claim EDS, MCAS, etc. Munchies have ruined my sense of what's "rare" anymore lol, I've met dozens of young women in real life claiming EDS which is strange for such a "rare" disorder.
Only person I've come across who I believe actually has it was diagnosed quite young along with the rest of their siblings, since the doctor noticed the entire family had it to a pretty severe degree. This person never talks about it unless they're bringing up the physical therapy they do to manage it and are an incredibly active person despite what these online munchies make you believe is possible, lol.
 
Saw this yesterday, seems like they're slowly going "oh wait letting retard kids play doctor to millions of other retards is bad"


prolonged social media use, especially on video-sharing platforms including TikTok, is exposing young people to a growing number of content creators making videos about their self-described tics, Tourette syndrome and other self-diagnosed disorders.

Is TikTok giving people Tourette’s Syndrome?
“This uptick has coincided with increasing numbers of youth who have presented to clinical providers or psychiatric services during the Covid-19 pandemic with what have been termed functional tic-like behaviours,” says the paper, led by Dr John Haltigan from the University of Toronto’s psychiatry department.

Gee whiz it's like attention is a hell of a drug

“The thing is, often with these self-diagnosed disorders and tic disorders, there is an underlying anxiety or depression there that is probably the root cause of whatever is going on,” she said. “And maybe that root cause is manifesting in this way because they’ve seen it on TikTok.”
tldr you're literally not special at all just like every other boring faggot

The phenomena largely affects adolescent females, a core user group of TikTok, the paper says.

Hmm....
 
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