I understand this is a rare disorder so studies and literature on it are a little scant, but I'm not sure I have ever heard or seen any doctor refer to SPS specifically as a "terminal illness." I've been scouring different sources and haven't been able to find anything relating to it being fatal, terminal, etc. It seems to cause a steady decline in the functionality of muscles in the body, specifically in the legs, but that on its own wouldn't kill anyone. If she means any of the associated illnesses, like certain types of cancer, that would make more sense but she certainly hasn't claimed that.
I keep reading her comments and watching her videos and can't find anything other than SPS, MCAS, gastropareisis, undefined allergies, and EDS. None of these are anywhere near terminal, but she has been stuck on this idea of being terminally ill for so long. What does she expect people to believe? Is the answer contained in that intentionally vague "the truth will come out" narrative? I figured maybe she had some other alleged fatal issue she claimed to have that I had just missed, but no.
She never explains how any of it is connected, just that she has it, she hurts, and needs her ketamine right now. She uses that cliche "disability rights! I'm an advocate!" shit munchies always do, but who is she advocating for if she can't even begin to inform people of the in's and out's for her conditions? The veneer is not even thin, it's fucking invisible. It just makes less and less sense as it goes on.