Community Tard Baby General (includes brain dead kids) - Fundies and their genetic Fuckups; Parents of corpses in denial

Pedophiles are attracted to most unsexy demographic in the universe. Children. You are overestimating their standards.
Correct. someone I know was working at a university that offered a Paediatrics course by distance education (people from all over the world enrolled) and they were investigating a new way to get course materials out. Previously they sent people a CD-ROM with slides but then were notified that some of the images of naked children (eg. "here is what this rash looks like") were found in photo collections of paedos.
 
Havyn to me looks like a pretty good example of the life of a child with very complex medical needs who never got to a crisis point where letting them slip away was ethically on the table. Yet.
It's just sad. If anything it's not particularly nice to see every little thing posted online because Havyn can't consent and I don't think many of us would like to be shown across the internet in such a vulnerable and exposing condition.

But its a cope. Its how her mother finds community and copes with having to live with that reality every day. It's better than Luna Buna and it's why I'm actually thankful the decision was taken out of my hands. I would rather be the grieving mother of a baby that died 20 times over than live Havyn's mother's reality.
I can see why her posts come across a little unhinged and OTT or inappropriate in places and she even addresses it.
She is desensitised to the sight of Havyn so to her that beach photo doesn't even register. It's just Havyn at the beach sunbathing!
 
Really arguing that someone who received a 1/40 in the world diagnosis that their baby is going to die and requires 24/7 medical care is happy in their status as a “disability mama,” is the most profoundly retarded thing in this thread.

“I thought I was giving birth to a healthy baby girl but actually I prefer that they’re dying because of the social media clout” is not a thing. Shit is tragic and the woman is just trying to cope with the worst gut punch life could possibly give anyone. Of course it’s unhinged.
 
We've definitely had worse, like severe holoprosencephaly or babies with their brains outside their skulls, or without even properly formed skulls or faces in general. The SHH gene (autistically named after Sonic the Hedgehog) is the source of a lot of genuinely horrific mutations (so thanks a lot whatever sperg named it that).
SHH is actually why there are pretty stringent rules now regarding how to name genes.

When it was first discovered, researchers assumed it was clinically insignificant, and that nobody else would ever know or care what it was called.

Turns out, it's an incredibly important gene for regulating brain development, among other things. Imagine being the doctor who has to tell a terrified parent that their kid's brain tumor falls into the sonic hedgehog subgroup and has a poor prognosis. Not a good look.
 
SHH is actually why there are pretty stringent rules now regarding how to name genes.

When it was first discovered, researchers assumed it was clinically insignificant, and that nobody else would ever know or care what it was called.

Turns out, it's an incredibly important gene for regulating brain development, among other things. Imagine being the doctor who has to tell a terrified parent that their kid's brain tumor falls into the sonic hedgehog subgroup and has a poor prognosis. Not a good look.
This is the other half of my half baked sperg about the EDS and autism genes from the other thread. I had a series of fascinating conversations with a father of a boy who had both autism and a brain tumour caused by issues with those genes. We both concluded that one possible underlying cause of autism could be a failure of this pathway "snipping" excess connections causing the developmemt of an autistic brain that has more pathways than a neurotypical brain, and in the case of severe autists has so much signal noise they can't function. Whenever I asked him was it a glial cell tumour he wouldn't answer because I think I was too close to his big pet theory. He was an incredibly clever sperg.
 
I'm having a hard time with the Havyn posts. I'm not seeing lolcow material. Parents seem to have done things correctly, didn't cause this kid's issues, didn't know about being gene carriers, are following treatment plans, aren't really posting any more than other special needs parents and don't seem in denial at all. Well, maybe wrt the glasses. She's only 2, the things being worked on in OT & PT are appropriate for her condition. (PL that I haven't really shared here before, but I was a pediatric OT in my working life) Info on ALG-1 looks like it may be fatal within childhood, but that doesn't mean that you don't treat or provide therapies. She at least shows some awareness and small voluntary movements unlike Luna, or the goblins, or shit, what's thanatropic dwarfism baby's name. Yeah, she's not pleasant to look at, but meh, just a spud look, not "grotesque" as you called her. I guess I just don't see the obnoxiousness in this family like our others.
I agree with you. They don’t seem like cows to me either, just a family dealt a shitty hand who is trying to make the best out of a really difficult situation.
 
So I found this FB group whose description is giving me more red flags than a soviet military parade
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I don't feel like trying to sneak in but I assume it's just a bunch of Autism Warrior Moms(tm) whining about getting called out for mistreating their kids and resenting their existence and shit. Because there aren't already plenty of groups like that.
 
We've definitely had worse, like severe holoprosencephaly or babies with their brains outside their skulls, or without even properly formed skulls or faces in general. The SHH gene (autistically named after Sonic the Hedgehog) is the source of a lot of genuinely horrific mutations (so thanks a lot whatever sperg named it that).
There's also Robotnikin, Mothers Against Decapentaplegic, and Lunatic Fringe. All very good band names.
 
Yeah, the doctor-shopping gives me pause. Also the recurring UTIs and trach bacteria…Are they letting her sit in dirty diapers and not cleaning the trach properly? Or is this something to be expected with this variety of spud?
Any kind of artificial body opening is going to be a magnet for germs, and a trache is certainly no exception. The nose does a good job of filtering out harmful bacteria, and she isn't using it as much as she should.
 
This is the other half of my half baked sperg about the EDS and autism genes from the other thread. I had a series of fascinating conversations with a father of a boy who had both autism and a brain tumour caused by issues with those genes. We both concluded that one possible underlying cause of autism could be a failure of this pathway "snipping" excess connections causing the developmemt of an autistic brain that has more pathways than a neurotypical brain, and in the case of severe autists has so much signal noise they can't function. Whenever I asked him was it a glial cell tumour he wouldn't answer because I think I was too close to his big pet theory. He was an incredibly clever sperg.
I am so intrigued by this idea and the cross with the possibility of some kind of genetic link between autism and hyper mobility. Do you have any studies or anything you can link that could start me down a way-too-intense rabbit hole into looking at this kind of thing?
 
Damn, I hope my 'tism doesn't come with any bonus tumor-causing sanic genes or w/e. Dealing with the lasting effects of being at a increased risk of childhood trauma/abuse and other societal bullshit autists experience is more than enough lmao

Especially when I didn't even get the being really good with numbers/high paying STEM job autism :(
 
This is the oldest person with Paisley's disorder he is 24 years old and is a journalist. Even with physical therapy he is very limited due to the size of his arms/legs. But Paisley's mom doesn't appear to want to help her become something and just wants her to be used to shill Monat.



 
I had a series of fascinating conversations with a father of a boy who had both autism and a brain tumour caused by issues with those genes.
The ironic thing about naming it sonic hedgehog is whatever autist named it that probably had some SHH action going on himself. Yes I'm saying himself because it was almost certainly a dude.
 
I am so intrigued by this idea and the cross with the possibility of some kind of genetic link between autism and hyper mobility. Do you have any studies or anything you can link that could start me down a way-too-intense rabbit hole into looking at this kind of thing?
I'm afraid as far as I know most of this particular line of possible connection exists inside my head and the heads of other spergs and maybe some researchers and specialists. Not much has been published. There's a putative link between autism and EDS. The bits all make sense if you go and look them up separately. Eds and autism. Eds and glial cells. Autistic brain vs neuroypical brain. Eds brain looks like autistic Brain. SSH pathways and snipping. I've done enough acid but I didn't do enough academia to have all the proper information to actually go and do a literature review and try and put it together. What we actually need to do is feed @Thomas Eugene Paris fuck tonnes of hallucinogens and I reckon kiwifarms can crack the autism code.
 
The ironic thing about naming it sonic hedgehog is whatever autist named it that probably had some SHH action going on himself. Yes I'm saying himself because it was almost certainly a dude.
Autists do tend to congregate in STEM so you're probably right. It's autism all the way down.
 
This thread is for obnoxious parents who are in denial and think they know way more than the doctors who actually give a shit about their kids quality of life.
I think that's exactly what she is. She got her glasses when she's cortically blind just like Luna. Most glycosylation disorders are degenerative. She looked "there" as a little baby, but suffered a day of over 18 seizures and has never been the same since. Even her mother admits she has never been the same after the one before she was on keto.
It seems she does have problems with doctors, she asked people on Facebook for suggestions for a new urologist and new GI:
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She doesn't say why he doesn't want to be her doctor but that's a pretty obnoxious way to put it, like he personally hates the kid or something lol. Maybe he feels she is a hopeless case? Maybe the parents are obnoxious and want too many interventions? Or just don't have a realistic idea of what they daughter can achieve and be helped by.
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8 seizures caused by group b strep and her first one ever was from the common cold. She constantly gets UTIs that have caused sepsis before. Her genetic condition suppresses her immune system. Forcing her to live like that is cruel. She started them at 3 months and one day even had 18 seizures.
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She gets her a speaking valve even though she has the intelligence of a newborn baby. Useless just like the glasses:
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The way she cutesy talks for Havyn like an instagram doggo page is obnoxious too. She 100 percent deserves a thread. That's no less dehumanizing than putting them in dumb costumes like Gwen.
 
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The way she cutesy talks for Havyn like an instagram doggo page is obnoxious too. She 100 percent deserves a thread.
Not sure she's thread-worthy in and of herself but you've provided enough supporting evidence that I think she probably does belong in here as part of the herd. I'd like to see more of mum being cowish though, outside of the kid's medical issues. With Paisley we get the monat nonsense and Luna is Healy-adjacent and drowning in Robyn's other woo insanity, and we get a fuller picture of mother-as-cow as a result. So far Havyn's family seem more tame. Are the parents prone to mad histrionics or spazzing out at doctors or internet detractors or anything? They have potential but the laughs are thin on the ground heretofore.

It's autism all the way down.
OT as fuck but thanks for the oblique Pratchett reference <3
 
Not sure she's thread-worthy in and of herself but you've provided enough supporting evidence that I think she probably does belong in here as part of the herd. I'd like to see more of mum being cowish though, outside of the kid's medical issues. With Paisley we get the monat nonsense and Luna is Healy-adjacent and drowning in Robyn's other woo insanity, and we get a fuller picture of mother-as-cow as a result. So far Havyn's family seem more tame. Are the parents prone to mad histrionics or spazzing out at doctors or internet detractors or anything? They have potential but the laughs are thin on the ground heretofore.


OT as fuck but thanks for the oblique Pratchett reference <3
Hard to tell but the 2 doctors refusing to keep treating her thing implies that as one of the possibilities. She called hematology "her favourite speciality" probably bc they kiss her butt.

She also posted that meme implying the mums of people with this disorder know more than nurses. I think her having a chimpout is a real future possibility if doctors keep dropping her or she gets told something concrete about Havyn's prognosis.

I meant she was worthy of this thread not her own thread. Sorry I phrased that dumb. The parents were also told she has the intelligence of a 2 month old baby not a newborn, I was assuming newborn bc of more accumulated seizure damage since she was told that.

Meme in question:

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She gets her a speaking valve even though she has the intelligence of a newborn baby. Useless just like the glasses

Speaking valves are easier to use for long term secretion management and reduce microaspirations which cause infection.

You autists are so desperate to find a cow you’re smearing yourselves in manure.
 
I can see the value of the valve and glasses. From what I gather she does not close her eyes often so the glasses are protective in nature honestly robyn should be using them with luna for that reason. The valve if its true she is trying to wean can be a measure to lead towards that it also is a lot easier to have a child who can vocalize so you can hear an issue.

Not sure if this lady is a lolcow, but very interesting writeup on her.
 
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