Community Tard Baby General (includes brain dead kids) - Fundies and their genetic Fuckups; Parents of corpses in denial

[Flourishing Pinecone ❧]

I also have some experience with people who have lived significant portions of their life (20yr+) in medical institutions, and who will never be able to transition to living in the community because it's just never going to be safe for them. Many had tried and failed multiple times to transition to group homes.

I feel like there is still a role for institutions for a really particular minority, and it's not really the kids that get featured here. The kids here just need a home with better carers.

 

[Puppy Mutt]

I also have some experience with people who have lived significant portions of their life (20yr+) in medical institutions, and who will never be able to transition to living in the community because it's just never going to be safe for them. Many had tried and failed multiple times to transition to group homes.

I feel like there is still a role for institutions for a really particular minority, and it's not really the kids that get featured here. The kids here just need a home with better carers.

I would agree that there is a very small minority that need institutions such as those of the past, but they are far and few between (at least for I/DD or complex medical) but I think truly we need better supports in the communities and instead of dismantling the institutions so quickly we should have built up the community resources first. I also think that even when kids are so severe it’s almost impossible to get them into residential care, and that’s when you get kids that murder their parents, parents who murder their kids, and all the other horrors that end up on the news every so often.

 

[Turtlebees]

I was on the nursing staff at Stallington Hall Hospital, a facility for severely mentally and physically handicapped people. These institutions when run well were the perfect place for unfortunates and a kind way for society to deal with people suffering with disabilities in a humane way.

The sort of things we dealt with were people with brain damage because water on the brain caused their head to expand to 3 feet across. Very low functioning autistic people. Criminally insane people who were a danger to society.

I recall one story where a baby was left at the hospital and his parents told the staff that they never wanted to see or hear about their child again. He was a high ranking Royal Air Force officer and the child had to wear a rugby hat because all he did was punch his head.

The UK opted for “care in the community” and it was disastrous. Since the rise of the “influencer”, a lot of parents see a route to “fame” by parading their lickle miracles. It’s grotesque. The most humane place for the severely mentally handicapped is a secure, safe institution.

The Victorians got a lot of things right.

My mother worked in a similar hospital. There are some advantages to institutionalization for severe cases but there are negatives as well. On balance though, I'd rather there be places available that provide such support. There needs to be a mix of options but assessing who requires what level of care, and then providing it, costs money. Add in the well-intentioned but often underinformed vocal masses advocating for no institutional setting care and we get what we have now.

Eh, institutions still are notorious for abuse. I can understand someone with a lot of support needs not being able to live at home, but I would think unless the situation is pretty dire a group home in the community would be better than an institution.

Shoving disabled people in institutions historically was less about helping them as it was getting them out of sight and mind so normies could pretend they didn't exist (plus they made for a great way to get rid of other "undesirables", like women unhappy with being bangmaids to gross dudes).

Community group and nursing homes are rife with abuse too. I used to pick up clients at such places when I worked with disabled youth. Some of them were in great centres while others were sitting in their filth surrounded by elderly folks while the minimally trained staff sat at the dining table talking. Care costs money. My province farms the less affluent out to whoever they can get willing to give the bare minimum acceptable care for accreditation. The government even offers free tuition and living expenses to anyone willing to study group home and home health care because so few people want to do it. Those with nursing and PT training are too expensive to have as full-time group home workers and there are no regional hospitals that specialize is this anymore.

What happens is that most severely disabled children and adults stay at home with part-time respite provided, if lucky. For kids that are responsive and able to bond with family, this can be great but even these best-case scenarios can lead to caregiver burnout and sibling neglect. Sometimes, everyone begins to resent the disabled family member and it spirals out of control, leading to the worst-case scenario. Most often, when it goes bad, it's just a slow descent into emotional and physical exhaustion, which lowers the quality of life for everyone involved. The disabled family member is every bit as miserable as the rest of the family, only with the added emotional burden of feeling responsible if high functioning enough to understand the situation. I've met a few young adults who decided independently to move into a group home or assisted living facility in order to both expand their freedom and relieve their parents of the caregiver role. For those able to take advantage, assisted living apartment buildings are a terrific option.

I've sat listening while parents of severely disabled children released tension by talking about the challenges. It often comes out as an emotion dumping all at once. The vast majority are not bad people, just overwhelmed. They want the best for their children - which is usually a mix of home care, visiting respite support, and occasional hospitalization - but that is beyond what average families can afford and it goes on for the lifetime of the disabled child. A child who will grow up and not be cute anymore. A child who may well outlive them.

It's ugly, and there is no perfect solution.

 

[Android raptor]

I would agree that there is a very small minority that need institutions such as those of the past, but they are far and few between (at least for I/DD or complex medical) but I think truly we need better supports in the communities and instead of dismantling the institutions so quickly we should have built up the community resources first. I also think that even when kids are so severe it’s almost impossible to get them into residential care, and that’s when you get kids that murder their parents, parents who murder their kids, and all the other horrors that end up on the news every so often.

At least where I'm at it's uh, not exactly impossible to get even kids who don't need to be institutionalized thrown in an institution if the parents try hard enough (and lie). Powerlevel but my narcmom almost got me institutionalized as a teen, which was not what I needed and 1000% an abuse tactic.

Some parents get burnt out and stuff, sure, but a lot of parents who abuse (and murder) their disabled kids weren't good people or good parents to begin with. Unfortunately, it's very easy to get away with abusing disabled kids especially because even social workers and shit will often overlook it because "it's just sooo stressful raising a kid w/[x diagnosis]!".

The term ableism gets abused by woke idiots, but it's a real thing and the treatment of disabled kids who are abused is form of it.

 

[Random Generator 3]

I recently learned that Trisomy babies regularly hold their breath until they require bagging (parent breaths for them). The refusal to breath is voluntary. I wonder if they would die without mom intervening- and could it be intentional??

One mom was saying how her baby almost didn't make it after one of these breathing spells. That baby lives a nightmare of tubes and invasive procedures, maybe he is trying to escape? 3

Another mom said there was no procedure she wouldn't do to keep her potato alive.... Has anyone ever asked any of these moms if they truly think its worth it, if they could go back would they do it again, knowing their quality of life, and do they think their baby enjoys life?

In this group, a trisomy baby that had never ever smiled, passed after a grueling hospital stay. I hope she is at peace now.

 

[Flourishing Pinecone ❧]

Unless there is something wrong with the breathing centre in their brain, they would just become unconscious and their automatic breathing response would kick in.

 

[The former Jack Donaghy]

Late to the Havyn discourse but the mom is 100% a cow based on that name and that series of butt ugly bellbottoms alone.

 

[AnOminous]

Unless there is something wrong with the breathing centre in their brain, they would just become unconscious and their automatic breathing response would kick in.

Unless there's something right with their brain and it's the human version of apoptosis to turn yourself the fuck off if you're in that bad a shape.

 

[A tree]

Charlie Gard - The Movie

A blog about medical futility, bioethics, end-of-life medicine, right to die, medical law, health law, patient rights, critical care and ICU ethics,

medicalfutility.blogspot.com

Theres going to be a 4 part BBC series on these medical futility cases. All our faves Charlie Gard, Alfie Evans and of course our Angle Archie.

I feel like we need a Tard Baby watch party.

 

[Berserker Armor]

Charlie Gard - The Movie

A blog about medical futility, bioethics, end-of-life medicine, right to die, medical law, health law, patient rights, critical care and ICU ethics,

medicalfutility.blogspot.com

Theres going to be a 4 part BBC series on these medical futility cases. All our faves Charlie Gard, Alfie Evans and of course our Angle Archie.

I feel like we need a Tard Baby watch party.

Totally down for tard baby watch party. Considering these are all cases highly covered here. Archie will be interesting if they interview hollie

 

[Flourishing Pinecone ❧]

Totally down for tard baby watch party. Considering these are all cases highly covered here. Archie will be interesting if they interview hollie

It's a drama, not actually reviewing real cases.

 

[A tree]

It's a drama, not actually reviewing real cases.

Ah my bad I didn't read it right. Should be interesting how they cover this material though. How are they going to portray the parents? Sympathetically or critically?

Interesting choice to approach it as a drama I think I didn't pick up on it as its a properly touchy subject to do a drama on. Definitely going to be worth a watch and a watch of the social media reaction to it as well IMO.

I would expect Hollie and co will have something to say if they don't like the way the parents are portrayed.

 

[Flourishing Pinecone ❧]

How are they going to portray the parents? Sympathetically or critically?

So that's what I'm interested in too, as I assume it will be portrayed from both sides and exploring what "best interests" means for different people. It must have already been in the works when Archie became known to the world, so that must have been interesting for the production team.

 

[A tree]

It must have already been in the works when Archie became known to the world

Maybe, or did a bunch of cynical media types spot our Hollie and see an opportunity to rush production on something that would capture the zeitgeist while it was still hot?

 

[Amin Yamumm]

Maybe, or did a bunch of cynical media types spot our Hollie and see an opportunity to rush production on something that would capture the zeitgeist while it was still hot?

First look at Sharon Horgan and Michael Sheen in Jack Thorne’s original four-part BBC drama Best Interests

This a story of a family driven apart by having to make choices no parent would ever want to make

www.bbc.co.uk

 

[A tree]

First look at Sharon Horgan and Michael Sheen in Jack Thorne’s original four-part BBC drama Best Interests

This a story of a family driven apart by having to make choices no parent would ever want to make

www.bbc.co.uk

Maybe we need a tard baby/hollie thread double watch party actually. Does seem like convenient timing, but they're wisely staying away from suicidal pre teens.

I wonder how old "marnie" is going to be. If they're taking the lead from Charlie Gard and Co she will be a neonate incompatible with life but that article makes it sound like she's an older child the parents have a longstanding bond and a lifetime of memories with a la archie to really ramp up the emotional tug of love.

 

[Flourishing Pinecone ❧]

It will probably be like a 5 year old with brain cancer and they want to go overseas to seek out some experimental treatment.

 

[A tree]

It will probably be like a 5 year old with brain cancer and they want to go overseas to seek out some experimental treatment.

Of course it will. They'll pick the cowards route and do Asher King where the government are obvious baddies. Boo.

 

[booklover]

I was on the nursing staff at Stallington Hall Hospital, a facility for severely mentally and physically handicapped people. These institutions when run well were the perfect place for unfortunates and a kind way for society to deal with people suffering with disabilities in a humane way.

The sort of things we dealt with were people with brain damage because water on the brain caused their head to expand to 3 feet across. Very low functioning autistic people. Criminally insane people who were a danger to society.

I recall one story where a baby was left at the hospital and his parents told the staff that they never wanted to see or hear about their child again. He was a high ranking Royal Air Force officer and the child had to wear a rugby hat because all he did was punch his head.

The UK opted for “care in the community” and it was disastrous. Since the rise of the “influencer”, a lot of parents see a route to “fame” by parading their lickle miracles. It’s grotesque. The most humane place for the severely mentally handicapped is a secure, safe institution.

The Victorians got a lot of things right.

That reminds me of the woman on another website whose son was left disabled after having meningitis as a baby, and until they got home care arranged (which was another issue in itself) they placed him in a care home for a while. She said that out of the 100 or so patients, maybe 10 of them ever had visitors, and as she put it, "Some of the parents dropped off their precious children, and then never even called to see how they were doing." However, sometimes we don't know the whole story; for example, I knew a woman (she died some years back) whose son had the worst kind of autism, the kind where the child appears normal for 2 1/2 years and then totally regresses, and he had spent most of his life in a state facility. She didn't visit, but his father, who lived in the area, did and kept her updated on how he was doing.

She emphasized that their divorce was NOT because of this, that it would probably have happened sooner if they didn't have a disabled child, and we can't blame modern vaccines, etc. for this because if her son is still alive, he'd be over 70 years old.

 

[RealMuthaForYa]

She didn't visit, but his father, who lived in the area, did and kept her updated on how he was doing.

I don’t blame parents who decided to “abandon” a severely disabled child with no chance of any sort of quality of life. Especially if they have other children. My experience was some mothers turned up for Sunday visiting, but fathers generally kept away.