Community Tard Baby General (includes brain dead kids) - Fundies and their genetic Fuckups; Parents of corpses in denial

I feel sorry for the kid without skin. It should have been able to pass peacefully instead of going through what I bet was very painful skin grafting procedures. He can't see (and might never be able to) is not growing properly, can't communicate clearly or move freely. His fingers and toes are restrained by being under the skin grafts, it's like a flesh prison.

While many moms don't allow babies like him to pass away and want every possible intervention, I think parents of babies like Havyn don't have this choice (which they don't want, but if they did...)

In the 70s/80s many disabled babies were "left to die" by parents and doctors (by not asking/allowing futher or extreme medical intervention) and the Baby Doe Law was signed in 84 setting guidelines in the treatment for disabled newborns regardless of the wish of parents. If anyone is familiar with this law: What are the exceptions?
 
In the 70s/80s many disabled babies were "left to die" by parents and doctors (by not asking/allowing futher or extreme medical intervention) and the Baby Doe Law was signed in 84 setting guidelines in the treatment for disabled newborns regardless of the wish of parents. If anyone is familiar with this law: What are the exceptions?
There are only two exceptions: an "incompatible with life" diagnosis for which treatment is futile, and coma or vegetative state.

It seems like doctors are given a whole lot of leeway here, especially in determining what "futile" means. In this thread, we've seen children who were given an incompatible with life diagnosis prior to or at the time of birth and have nonetheless been subject to heroic measures. Doctors undoubtedly know that treatment is not going to be effective, but they agree to do it anyway. Some of them would feel it their ethical obligation to "try everything" even if there were no parents to push them.
 
I feel sorry for the kid without skin. It should have been able to pass peacefully instead of going through what I bet was very painful skin grafting procedures. He can't see (and might never be able to) is not growing properly, can't communicate clearly or move freely. His fingers and toes are restrained by being under the skin grafts, it's like a flesh prison.

While many moms don't allow babies like him to pass away and want every possible intervention, I think parents of babies like Havyn don't have this choice (which they don't want, but if they did...)

In the 70s/80s many disabled babies were "left to die" by parents and doctors (by not asking/allowing futher or extreme medical intervention) and the Baby Doe Law was signed in 84 setting guidelines in the treatment for disabled newborns regardless of the wish of parents. If anyone is familiar with this law: What are the exceptions?
I remember an Anna Quindlen column from the early 1990s (because I remember discussing it with my college roommate, who agreed) about people who found out their babies had serious disorders, up to and including incompatible with life, and they really did not want to abort but they did because they knew All Measures Were Going To Be Taken even though they didn't want it, and had said so.

p.s. IASTR that religious beliefs and opinions about abortion had little to do with the initial decision; these were people who just plain old wanted to have their baby for as long as possible, even if they knew it was going to die at or shortly after birth.
 
Yeah I think quality of life should also play a huge role. More time doesn't mean shit if it's spent in agony.

There's a good short documentary that's been posted ITT a couple times about a doctor that specializes in pediatric hospice. Its very sad, but very good, and she talks about many doctors being uncomfortable with the idea of pediatric hospice even when the child has zero quality of life.
 
Yeah I think quality of life should also play a huge role. More time doesn't mean shit if it's spent in agony.

There's a good short documentary that's been posted ITT a couple times about a doctor that specializes in pediatric hospice. Its very sad, but very good, and she talks about many doctors being uncomfortable with the idea of pediatric hospice even when the child has zero quality of life.
Was it this one?


Back in my active-practice days, we had minors enrolled in hospice a few times; the only one I specifically remember was a 2-year-old with a benign but inoperable brain tumor. I can tell y'all about it because I found out about it in the newspaper. The others were teenagers with cancer; the hospital where I worked didn't do pediatric oncology, but nothing more could be done for them and they and their families wanted them at or near home in their final days.
 
This guy is on a rampage against any accounts with disabled children. He thinks their views are not accurate on disability and finds them offensive due to him being disabled as well.
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This guy is on a rampage against any accounts with disabled children. He thinks their views are not accurate on disability and finds them offensive due to him being disabled as well.
View attachment 4533790
He looks like an annoying person, but he has a point, if it's a kid who's going to grow up into a mentally-aware adult.

Plenty of adult people with disabilities who are eternally grateful that the Internet wasn't around for their mom to be a Proud [Insert Disease Here] Warrior Mom. And it's galling to look for solutions or commiseration for your problems that you deal with and find that the loudest discourse is from parents who approach your problem from outside, as something they have to deal with for their little burden.

Because being a parent of a chronically-ill kid doesn't automatically mean you're a good parent, just like being a Dance Mom doesn't mean that your daughter wouldn't really rather be in the robotics club and isn't enjoying the eating disorder you're working on giving her.
 
This guy is on a rampage against any accounts with disabled children. He thinks their views are not accurate on disability and finds them offensive due to him being disabled as well.
View attachment 4533790
He is probably going about this is the most annoying and pretentious way possible, but I find myself agreeing with him. He seems alittle too woke for my taste but he has a point about many SM mothers of disabled children making their childrens lives their whole and entire identity.
 
Was it this one?


Back in my active-practice days, we had minors enrolled in hospice a few times; the only one I specifically remember was a 2-year-old with a benign but inoperable brain tumor. I can tell y'all about it because I found out about it in the newspaper. The others were teenagers with cancer; the hospital where I worked didn't do pediatric oncology, but nothing more could be done for them and they and their families wanted them at or near home in their final days.
Yes, that's the documentary

I think the mom in there, who was grateful just to be able to bring her baby home, is a good contrast to the moms ITT.
He is probably going about this is the most annoying and pretentious way possible, but I find myself agreeing with him. He seems alittle too woke for my taste but he has a point about many SM mothers of disabled children making their childrens lives their whole and entire identity.
Usually with no respect for the child's privacy either. Even with severely disabled kids, you really don't want to post anything you wouldn't post about a nondisabled kid, because it's disrespectful AF. That's a huge part of what made Gwen Hartley so gross.
 
He looks like an annoying person, but he has a point, if it's a kid who's going to grow up into a mentally-aware adult.

Plenty of adult people with disabilities who are eternally grateful that the Internet wasn't around for their mom to be a Proud [Insert Disease Here] Warrior Mom. And it's galling to look for solutions or commiseration for your problems that you deal with and find that the loudest discourse is from parents who approach your problem from outside, as something they have to deal with for their little burden.

Because being a parent of a chronically-ill kid doesn't automatically mean you're a good parent, just like being a Dance Mom doesn't mean that your daughter wouldn't really rather be in the robotics club and isn't enjoying the eating disorder you're working on giving her.
I remember a woman who said it really ground her gears when she saw a bumper sticker that said "I Love My Autistic Child." She didn't have stickers that said "I Love My Blind Child" or "I Love My Cerebral-Palsied Child" or for that matter, "I Love My Adopted Children" which her kids were.
 
A child growing up with zero (literal) warm maternal attachment and finding out they were gestated by a corpse is certain to have some interesting..manifestations down the track I'd imagine.

That was literally the plot of a horror movie: a girl whose mother was severely burnt in a house fire while heavily pregnant, and the Catholic hospital refused to terminate life support until the pregnancy was carried to term. The girl is isolated her entire life: first in the womb, then after birth as an orphan who's ostracized and bullied for being the "weird, creepy kid". She ultimately commits suicide after a friend betrays her.

This being a horror movie, it turned out the girl's mother belonged to a pagan cult, and the girl herself is a very powerful, evil witch — possibly even a deity incarnate — who returns as a vengeful spirit. Pretty dumb, but the idea of a child birthed by a corpse, alone from the very beginning of life until the end, is deeply haunting to me. That's one of the loneliest existences I can fathom.
 
That was literally the plot of a horror movie: a girl whose mother was severely burnt in a house fire while heavily pregnant, and the Catholic hospital refused to terminate life support until the pregnancy was carried to term. The girl is isolated her entire life: first in the womb, then after birth as an orphan who's ostracized and bullied for being the "weird, creepy kid". She ultimately commits suicide after a friend betrays her.

This being a horror movie, it turned out the girl's mother belonged to a pagan cult, and the girl herself is a very powerful, evil witch — possibly even a deity incarnate — who returns as a vengeful spirit. Pretty dumb, but the idea of a child birthed by a corpse, alone from the very beginning of life until the end, is deeply haunting to me. That's one of the loneliest existences I can fathom.
Ok but what's the name of the movie?!
 
I remember a woman who said it really ground her gears when she saw a bumper sticker that said "I Love My Autistic Child." She didn't have stickers that said "I Love My Blind Child" or "I Love My Cerebral-Palsied Child" or for that matter, "I Love My Adopted Children" which her kids were.
If you actually love your kid, you don't need to slap a bumper sticker on your car that says you do.
 
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