I'd assumed half mutation would mean heterozygous at that site, at which point how the "mutant" allele gets expressed will depend on a fuckton of other factors. But your interpretation makes more sense. for some reason I completely forgot about partial dominance. I guess I was too busy assuming the worst. So a non munchie saying it could be talking about partial dominance but I think a munchie who got that result would just outright say "I have the mutant allele!" and would be over joyed. How unlucky would someone have to be to have EDS and multiple other alleles with heterozygous incomplete dominance? At least one of their parents would be symptomatic too.
EDIT: I briefly looked into EDS genetics and it seems like most known variants fit into a dominant or recessive inheritance pattern with maybe 1 that doesn't fit either and could have partial dominance.
Something interesting I found is the test result can come back with "Variant of unknown significance". Which means you have a variant but it's not known to be pathogenic or benign. Pretty much just "you have a variant we haven't proven is harmful or not". They can assign risk to VUS based on what they predict the variant does to the expression of the protein. For example one EDS variant causes harmful effects by fucking with the glycine in the protein so if your VUS messes with glycine then that'd have more risk. Or if your variant caused a frame shift or deleted a bunch of shit then that'd be high risk for pathogenic effects. So this munchie probably received VUS test results and run with it (assuming they are just stretching the truth and not outright lying).
Something interesting I found is the test result can come back with "Variant of unknown significance". Which means you have a variant but it's not known to be pathogenic or benign. Pretty much just "you have a variant we haven't proven is harmful or not". They can assign risk to VUS based on what they predict the variant does to the expression of the protein. For example one EDS variant causes harmful effects by fucking with the glycine in the protein so if your VUS messes with glycine then that'd have more risk. Or if your variant caused a frame shift or deleted a bunch of shit then that'd be high risk for pathogenic effects. So this munchie probably received VUS test results and run with it (assuming they are just stretching the truth and not outright lying).
yeah this is what I was saying in the post. A lot of them get genetics tests hoping something will turn up that they can use to legitimize themselves and what they end up with is non-pathogenic mutations on the genes that control collagen production. So they have a COL1A5 mutation and start claiming they have classical EDS, but really they have some random variation that probably does little or nothing. It's gotta be pretty common in the overall human population to have these unknown variants just based on how many chicks in this thread end up with them.* I've just never heard them refer to it as a "half-mutation" and was a little apprehensive about saying that's what she was claiming when she also says she has vEDS. If she's saying the BCS and cEDS are VUSs, it implies that she has a pathogenic variant for vEDS, which I don't believe she has. She seems like just another ED-to-munchie pipeline attention seeking idiot. But I'm not smart enough to know what else she could possibly mean here, and maybe the answer is "neither is she."
(*Just off the top of my head in the "munchies we watch who have used a VUS to claim really real disease:
-our resident oversharing retard factory Rusty Marble claims a COL1A5 mutation but has admit it's a VUS.
-Just My Genes who starved herself to death a few years ago showed genetics tests with a COL3A1 mutation and claimed vEDS but it was a VUS
-Fit Vegan Ginger claims two mutated CFTR genes as proof she has cystic fibrosis, but neither of them cause CF. One's a nothingburger and the other has a slight association with pancreatitis.
-Jamie Bruce/zebrajemma claims a COL1A2 (I think) mutation causes an extraordinarily rare crossover disease of EDS and Osteogenesis imperfecta (brittle bone disease) when really she's just an anorexic moron and capital-M Munchie who destroyed her leg bones through unnecessary surgery, malnutrition, bracing, and refusing to bear weight on them
-Cheyanne up there has used VUSs to claim a hilarious array of genetic diseases that would leave her a potato if she actually had them along with the old "heterozygous mutation" line)
i'm fuzzy on the specifics but there is some genuine fuckery going on with the nhs in wales, basically if there is no specialist in wales, getting a referral to england can be a nightmare. for example, based on a quick google, countess of chester no longer accepts elective referrals from wales, so fuck you if you live 10 miles away but on the wrong side of the border.
i did have it explained to me by a welsh doctor, who despite his better understanding of the processes involved was unable to fathom how to get treatment that isn't actually done in wales, so actually needed to be done in england, and ended up paying privately. some of it comes down to the clinical commissioning groups i think. i dunno. i'm not defending AEA in general, but there is a grain of truth in that claim.
That Countess of Chester thing happened over bills that they refused to pay. English(correct postcode) Countess of Chester patients are funded by NHS England and over the border they should be funded by NHS Wales except NHS Wales decided repeatedly that they weren't going to pay the amount they'd agreed upon. The last straw was a outpatient clinic bill in the millions that they simply refused to pay, as a result you can only get emergency care and shipped off when stable. Any after care is done in Welsh hospitals and services.
The biggest problem is that NHS Wales patients have their budget allocated differently to NHS England, for example in Wales and Scotland prescriptions are free, in England you pay £9.65 per item. Waiting lists are much longer as they are not as able to see as many outpatients due to lack of clinic space, this was previously solved by patients being seen sooner in England. Criteria are often different too, say for eligibility for IVF or certain treatments. Often a case has to be submitted by a doctor to NHSW in order for a patient to be referred over the border and treatment is now paid in advance.
Today I have brought you a headache.
This person was originally posted on reddit, the above post was all that was posted from this person. I wanted to do a little bit of a deeper dive, however I do not have the time, desire, or sheer willpower to fully archive their blog. So here's a Greatest Hits for everyone.
Mac is a multi-pronouned individual who claims to suffer from seronegative ankylosing spondylitis that also does not show up on imaging. They also claim brain damage.
Mac believes anyone who wants opioids for any reason should be able to access them, at no cost. They also believe the opioid epidemic is a lie. (This is their top post of all time.)
What else is a lie? Conversion disorder.
Mac has a FAQ tag where they respond to questions from anonymous users. One of their FAQ posts is an informative guide about how to successfully munch, and how to lie to your doctor.
POST 2:
Of course, they believe every disabled person feels as if they "aren't disabled enough" and doubt their own legitimacy.
Miscellaneous reblogs from other cripplepunks.
There's nothing inherently wrong with someone using a fidget toy or a weighted blanket if they aren't autistic, or consuming media made by autistic creators. The issue is that people keep misconstruing Dr. Devon Price's work and saying that if you identify with any part of the autistic experience for any reason, you MUST be autistic too.
"Healthy able bodied people don't fantasize about wheelchairs" - no, but able bodied people with munchausens do. Just because you feel something does not make it true. Facts =/= feelings. Wanting a mobility aid =/= needing a mobility aid.
I have less to say about the post and more to say about what Mac added in the notes. "Everyone who wants one should be able to use any aids no matter why." So if someone wanted to use a wheelchair purely because it looks like fun, Mac wouldn't claim that it's ableist?
Act worse than you really are! Let yourself decline! Never push yourself to be better than you are!
that guy is fucking whacko and people like him are putting the nhs under more strain than it needs right now.
the whole thing about going to a&e lying is ridiculous. a&e doctors are there to get you through your current problem requiring immediate attention. and don't think the nurses etc don't watch while you're not being seen to. they totally do and no amount of lying will get drs to believe you if nurses have watched you several hours and report something contradictory to what you claim. its not medical trauma to be discharged, its a fucking relief.
his use of rollator or motorised wheelchair also gives him away. i had a relation with a broken back, paralysed down one leg (it was once broken for a week before she noticed, she had to lift it into cars, never complained). used walking sticks, a push wheelchair for longer distances if someone was there to push, and the local shop mobility scheme until the day she died. that is what specialists recommended for a traumatic, incurable injury and it no doubt did her the world of good keepng her conditioning in the rest of her body. KFS has reported on many people using a wheelchair for frivolous reasons so i thought it might be a good contrast to bring up someone who did not despite severe mobility problems.
hiding behind being Just Some Guy and not a medical professional doesn't absolve him of his crimes. especially when he advocates lying. what if someone reading that really does have something wrong, and their lies send drs down a wrong path?
I've long known that munchies teach each other the best way to fail tests and gain munchie toys, but such comprehensive and blatant "lie to your doctor" advice is something else.
Mind you, I guess to munchies it's all a means to an end as long as they get that sweet sweet diagnosis at the end of it.
What a find, a truly disgusting individual. Well done.
the whole thing about going to a&e lying is ridiculous. a&e doctors are there to get you through your current problem requiring immediate attention. and don't think the nurses etc don't watch while you're not being seen to. they totally do and no amount of lying will get drs to believe you if nurses have watched you several hours and report something contradictory to what you claim. its not medical trauma to be discharged, its a fucking relief.
Hell, even in his own words his one weird tip to successfully lie to doctors isn't working out too hot. Congrats you got...Tramadol? And NSAIDs? Damn king you a big money hustla now.
I don't think munchies realize that people working in emergency medicine see an absolute metric shit ton of patients every shift and we know all the dumb tricks.
So Annie Grace recently made a list of people with rare forms of EDS you can follow on instagram. Shockingly, a few seem to be telling the truth, showing off the symptoms of their claimed variants but mostly living normal lives. A few more are your typical “I have this ultra rare disease but don’t owe you proof, also I’m a special gender and pansexual and polyamorous and I have a host of mental illnesses and alters and dress like I’m trying to blend into someone’s acid trip, but it’s NOT ABOUT ATTENTION!!” They’re boring and don’t give us the drama, let’s not waste our time.
And then one decidedly normal-looking account, Abby Sams, was claiming to have both cEDS (Classical type) and mEDS (myopathic type) and that obviously deserves a closer look. A quick browse of her shit will show you she’s a married, employed parathlete who has genetic confirmation of her diagnoses. She has a college degree and a decent job, her husband appears to be a full equal partner in their relationship instead of a 'service human', and she has hobbies that have nothing to do with being sick. Her twin sister Nicole is also sick, but also just seems normal, tragic haircut notwithstanding. She has a job, she lives alone, she manages her illness just fine and has hobbies that aren't just "look how sick I am!"
We're not here for the quick browse. We're here for the deep dive that uncovers over a decade of competition between twin sisters who both want to be the special one.
Let me just get this out of the way: about a year ago someone sent an account to my little munchie research chat, a girl that was claiming to have two rare variants of EDS at the same time. Classical and Vascular. At first it was "ok munchie” and “let's keep an eye on this one because she's going to be funny." She fit the type. Young, white, middle-class American girl whose parents held her hand through life. All her friends were instagram spoonies. She was dramatic in every post. Then came the proof: an actual genetics testing panel from a legitimate diagnostics firm that showed a multi-gene deletion involving the genes COL3A1 and COL5A2. She really did have two variants of EDS along with a host of other problems caused by a massive fuck up in her DNA. Things can go catastrophically wrong in human development, things that seem like they are so far outside the realm of the possible may be, and you can’t always assume an improbable story is a lie.
Which is all to say I went into this thinking, "could this one also be telling the truth? Did the zygote that split to form these twin girls have a big old Fuck You coded in its DNA, causing both of them to inherit some wretched connective tissue diseases?"
No, lol.
Nicole Sams starts her account (currently @thatstudydog) in August 2013 with teen girl fluff. She’s a 16 year old homeschooler in her last years of high school trying to brand herself as a super ambitious and organized student, the kind of girl who hops out of bed early and spends hours color-coding her notes before school.
Nicole is a total geek into every standard teen nerd fandom from anime to Marvel capeshit to Dr. Who.
She’s also a youtuber making videos under the name Danni Sams but her entire account has been wiped save a few inconsequential vides. It was apparently a lot of cosplay and nerdy skits.
She’s a twin. Nicole’s twin sister Abby is also on instagram as @abbysamsd. Her account also starts in August 2013 and is way more active than Nicole’s. They may look fraternal but they're actually identical. Abby just takes infinitely better care of herself than Nicole.
Abby prides herself in healthy eating.
And modesty, although she'll often show herself in very short running shorts so I guess that doesn't count.
The twins are very religious. Abby has a blog where she writes about having briefly gone to public school but being bullied by her peers about her faith after arguing against evolution with her teachers. They now homeschool but apparently either do some kind of homeschool co-op or attend some classes at school as they occasionally do have to go to a school in the morning, which Nicole, of course, complains about.
Abby's a letterman at the local public school but this may be a residual from when they attended there or a situation where they are allowed to attend extracurriculars at the public school.
Abby works out a lot. She surfs, skateboards, and freedives too. The twins are basically polar opposites. Nicole is shy and nerdy while Abby is outgoing and extremely active.
She participates in fundraisers for cancer kids and donates her hair to make a wig for a kid.
She loves Disney, Jesus, and Chick-fil-a.
And The Fault in our Stars, teen sickfic romance about teenagers with cancer and they’re in love and then they’re dead.
#gayrights. Ok, wasn't expecting that but
Abby's first health complaint other than normal colds: migraines in December 2013
Nicole is working out with Abby this one time and only this one time.
Abby claims she's lactose intolerant and at various times also claims she eats a sugar-free and gluten-free diet as well but it’s usually framed as just an extension of her healthy eating habits.
She’s reading a book about Esther Grace Earl, a kid who died of cancer.
Abby hikes and kayaks.
She breaks her surfboard and bonks her head on the way down but she’s alright!
Smiley for Kiley was about another kid with cancer, Kiley Myers. She was a child actress I guess?
Abby goes to the ER for her migraines. I can make out Toradol, topamax, prednisone and Reglan. All of them are used in treating migraines.
She’s also claiming the limited diet she’s been on is for the migraines. I think that's a thing?
But she's not real strict with it in any case.
Meanwhile Nicole has depression and she’s treating it with herbs.
She's trying out for roller derby.
And stalking Type 1 diabetics on youtube for some reason.
Nicole starts looking like she got a case of the genders.
She’s eating peanut butter and potato chips sandwiches which just reminds me of Ally Sheedy’s character in the Breakfast Club making a Pixi Stix and Captain Crunch sandwich for attention.
Nicole still has depression and now she has trichotillomania, which she announces by showing a bald patch and acting like she was blindsided by the revelation that she has this condition. You kind of notice you’re pulling your hair out, friend. You might do it idly while watching TV but it’s not like you go into a fugue state and wake up bald.
She buys cancer hair wraps to hide it.
Just in time to go to Jesus camp and show it off to the nice church people. No shit.
Also beanies and fidget toys.
She’s getting her hair cut off so she can’t pull it out anymore.
Lmao okay teen girls are dramatic about their hair, but like... you'll see.
Nicole gets her wig and her femininity back.
Nicole is also obsessed with cancer kids, unsurprisingly.
Abby is hiking to film a short film and climbing some trees.
Coming out as what? And why you gotta ruin grandpa's birthday with it?
This Beckie0 girl is a youtuber who made one of those “selfie a day for x years” videos documenting her trichotillomania and dermatillomania, where she’d show that her hair started to grow back in, then something stressful would happen and she’d pull it all out again, shave what was left, and start over, rinse and repeat. So this is why Nicole suddenly has trich and it’s an all-consuming disorder that requires her to shave her head. Beckie, for the record, may be one of the only people whose mental health improved under quarantine. When she stopped having to go out in public every day, she stopped stressing about if people would notice her hair or lack thereof, so she stopped thinking about the fact that she pulls her hair out, so she stopped pulling her hair out.
Nicole self-harmed but has recently stopped. Also claiming she's dyslexic, which she never mentions again and seems to have no issues with.
She’s still obsessed with her hair and now wearing cancer awareness shirts all the time.
She's taking more herbs for depression.
Oh no, Nicole is a fan of Ashley Mardell aka Ash Hardell, obnoxious non-dysphoric gender snowflake who recently proved she was true n’ honest trans by carrying a pregnancy to term and giving birth, the most female thing one can do.
Still crying about muh mentuls.
But whatever, she’s feeling better, no longer pulling her hair out, and back to skating.
NOTICE ME ASHLEY!!!
Abby is relaxing her diet even more.
She does yoga and is decent at it, but she doesn’t really like it.
She really likes lifting and crossfit
Nicole is by far our more active instagrammer at this point, at least in terms of posting. She shows off her cutting scars.
She has dermatillomania.
She wants to be in a relationship with a boy.
>tumblr. Well there’s your problem.
She has anxiety and panic attacks.
Nicole loves deaf culture and has been learning ASL since she was a kid.
She still wants a boyfriend.
She’s genderfluid
she gets deep about bandaids.
She cries so much her eyes are puffy and her throat feels like razor blades.
She’s a vegetarian, but not a healthy one.
This doesn’t look vegetarian. I know there’s been some advances in the faux meat department but that looks like real chiggin to me.
Kylie the cancer kid dies and both girls post condolences. The annoying one posts black and white photos of her crying over it for attention.
She’s constantly making dramatic posts about how she’s so sick but it’s always a cold. At this point she’s updating insta several times a day to complain about shit.
She's been saving up to get a ferret as an ESA. She finally gets it. Her ESA ferret is deaf. Everything I read said that this is for real, that ferrets with Blaze pattern fur have about a 75% chance of being totally deaf and that it's the same genetic condition that causes Waardenburg Syndrome in humans. But really, both girls are interested in deaf culture the same way they're obsessed with cancer kids and I don't know that I believe she was blindsided by this. I think she picked this ferret knowing it would have a very good chance of being deaf. If I'm even less generous, we know Nicole openly seeks the attention of youtubers she watches and obnoxious gender-alien gigafaggot "Stef" Sanjati was making very popular videos about both his gender LARP and his real Waardenburg diagnosis at the time.
Whatever the case one thing is for sure: Nicole is absolutely ridiculous and seeks attention however she can.
Meanwhile Abby is just posting about crossfit, photography/filming, surfing, travel and occasionally mentions having migraines and being medicated for them. She is clearly the functional twin.
Nicole has no sleep schedule. Abby does not seem to have this issue.
She’s recovering!
Abby’s still working out and getting those gains.
Nicole’s wearing a mask for seasonal allergies.
TFW FRIENDS ARE TIRED OF MUH MENTULZ.
Oh look she’s seeing an actual psych to get actual medication. Progress!
I just had to laugh. Weeb eating chicken noodle soup with chopsticks. I also vaguely remember “eat everything with chopsticks to slow you down” being one of those pro-ana-lite weight loss tips circulating on social media at the time.
MY TUMBLR GENDER IS VERY IMPORTANT. All her friends are females who pretend they’re not females. It’s a social contagion.
Nicole also posts pictures of her that just say "boy" or "I'm a boy" and I think this was her way of letting her friends know which pronouns to use for her on any given day because it was subject to change without warning.
Nicole thinks it’s unfair that famous youtubers get book offers “left and write” but she can’t get a single publisher to look at her vanity novel she’s been writing for three years! It’s NOT FAIR!!!! Nothing ever goes write for her!!!
she can’t function without her meds she just started taking. Escitalopram aka Lexapro, SSRI antidepressant.
All her friends abandon her. LMAO I know she’s a teenager but holy fuck.
On June 2, Nicole also starts having migraines. Right to level 10. Still updating insta tho.
While Nicole is crying about being bored and her terrible case of the genders, Abby the functional twin is in fucking Tanzania volunteering at a school in a town where there’s no running water. She’s got a kid there she’s been communicating with since she was very young and they finally meet for the first time. Sounds like one of those Sally Struthers sponsor-a-starving-kid-in-Africa situations.
Meanwhile Nicole is taking a picture of her lexapro bottle on top of a YA novel about schizophrenia. She has panic attacks triggered by a fictional suicide attempt in the book then claims she also has a manic episode from it. Because she has no personality outside muh mentulz.
She’s muh mentulzing harder than ever now.
She's got an internet "girlfriend". Pretty sure this kid has Waardenburg Syndrome and found her through hashtags while talking about the ferret but I'm not sure. Looks like most of her internet history has been deleted.
Meat makes her sick and now she’s all pukey.
I guess the chicken she documents herself eating all the time doesn’t count.
She’s a they/them now.
Meanwhile Abby’s getting psyched…. for college! She’s visited her dream school, the University of North Carolina - Wilmington and can’t wait to go. She wants to be a marine biologist.
Back home she's still living her best healthiest life.
The twins go to the beach together and Nicole does not spend the whole vacation sulking and crying.
Only part of it.
They’re home from the beach and now they’re at Jesus camp.
Nicole spends the whole time crying about a friend of hers who necked himself and showing off her self harm scars.
Abby’s back at it in the gym!
And Nicole is back at it crying in her bed.
She’s is also a fan of The Fault in Our Stars!
Abby spends six hours in the gym in one day because she’s training hard for a competition.
Nicole can’t figure out how to make a grilled cheese.
Abby’s squatting her twin and kayaking
Nicole’s crying because her new books haven't been delivered on time.
Abby’s showing off her lifting callouses.
Nicole’s showing off her psych meds.
And crying about her hair.
And skinwalking cancer kids again.
Abby’s purity ring gets stolen lmao. Sometimes it’s hard to remember just how religious the twins are given Abby's very normal interests and Nicole's tumblr identity.
Nicole is complaining about pain again.
She can’t walk. She has to see a doctor.
It’s just a dermatologist and she gets a shot in an embarrassing place haha. I’m guessing she got an inflamed ingrown hair in her groin or something minor like that.
Abby goes white water rafting and kills it in the gym.
Nicole whines about another cold and shows off her impeccable diet.
Abby is doing cancer fundraisers at her gym.
Nicole is applying for art schools and claims UArts in Philadelphia really wants her. She plans to major in youtuber.
Abby places second in her crossfit competition. Those things on her legs are compression/support sleeves for weight lifting, not braces for injuries.
Nicole finally figures out how to make a grilled cheese sandwich.
Nicole gets literature from the Art Institutes, a for-profit private school that once had sixty campuses across the US. She's excited!!! AI were notorious for accepting anyone, saddling them with enormous debt, and shitting them out with useless degrees that were not worth the paper they were printed on. Students were lied to about how much the program would cost and told inflated estimates of what they could earn once they had their degree. All but seven campuses closed after multiple lawsuits. Most recently, a group of AI students won a debt cancellation supreme court case because they were actually defrauded.
Nicole shows how they were able to do this: gimmicky nerd shit that appealed to the tumblr “artist” set who thought people cared about their anime doodles.
Abby’s excited that the children she helped in Tanzania have each received a mosquito net and other “luxuries” and talks about how life-changing it is for these children to get a real education, so much so that they walk miles to attend school.
Nicole “adopts” a stuffed animal and sucks chocolate off her fingers like an actual toddler.
And picks at her backne.
And cries.
Nicole would like a service dog before she goes to college lmao. Of course she would. She has no job or money so she needs YOU to pay for everything. Gib. (dead link)
And she wants this because she’s found CF vlogger Mary Frey’s socials and Mary has a service dog.
She's giving away her emotional support ferret.
Abby give us a positive Grey’s Anatomy sign and…
ER trip! No one can figure out what’s wrong.
Nicoles judging “prospects” for her accessory dog which she somehow feels she's competent to do. I'll spare you weeks of her describing dogs.
She might get a "professionally" trained dog instead! (spoiler: she does not.)
She is still obsessed with deaf people and mary frey. Like.. really obsessed with Mary.
But she got into Columbia College Chicago, her top pick.
Abby make this post about the bags under her eyes, which has that virtue signalling image description thing, but overall she's doing fine.
Nicole is, unsurprisingly, still talking about her mental health, but nowhere near as much as she used to.
Abby makes a video about why you need to learn ASL even if you’re not deaf. it's been deleted.
The twins get tattoos days after they turn 18. Nicole’s is a Peter Pan quote and Abby’s are pediatric cancer awareness on her thigh and the outline of Tanzania on her arm.
Abby goes to Alabama on a whim and enjoys some stand up paddleboarding with her normal friends.
Nicole suddenly develops a deep interest in yoga and starts doing it for hours at a time. She went from barely touching her toes to this in three months of daily effort. She’s also heat intolerant. Gee, I wonder what she's setting up here.
Abby signs on stage.
Nicole is still just obsessing about Mary Frey. It's really creepy and weird just how many times she makes posts about Mary and tags her for attention.
They graduate high school.
They do a CF walk in Mary's honor. Childhood cancer is out, CF is in!
In June Nicole adopts Mercy, a fully grown pit bull/lab shelter mutt, to be her SD. The dog will alert to panic attacks, do DPT, and interrupt her nervous habits. Prong collar.
Abby’s back in Africa volunteering with the school again. She is in her element and hopes she'll keep coming back year after year.
Nicole is taking her puppy to obedience classes.
Abby travels solo to LA to go to Vidcon. She'll be back in LA soon.
And Nicole travels solo to Chicago. She does not bring the dog.
Notice me Mary!!! But hey, at least she’s no longer tagging the gender people in every post.
She’s starting public access with Mercy.
She wants to join her college’s… Quiddich team. ok. I guess nerd fitness is better than no fitness.
BRO! DOOD! MARY NOTICED HER!
Mercy gets her CGC.
Nicole moves to Chicago with her puppy.
Abby goes to the US Virgin Islands. She can’t wait to live here.
Nicole takes her dog out in public and it shits in a store. She cries. Also keep your goddamned dogs off the escalator. It is dangerous and scary and they do not understand it. There’s a reason a lot of SD orgs say their dogs can’t be taken on escalators and it’s because it’s real easy for them to get their tails or paws caught in a moving part and end up with a degloving incident or worse.
Abby comes home from the Virgin Islands and decides to move to LA. She doesn't explain it now, but she's gotten a short-term film gig in LA (likely while she was there for VidCon). She's planning to work in LA for a semester then start a marine bio program in the Virgin Islands once the gig is over.
We'll stop here. The twins are about to be separated for the first time in their lives and it's going to change everything.
I'm surprised to know that Bella Hadid hasn't been on here. This bitch has been crying for attention and posting typical munchy pictures of herself for a while now, at first vaguely being wired up and not saying anything, its all probably & most likely to masq her eating disorder, she's been known to post photos of herself crying for years now before starting to fake illness (Lyme disease -- a celeb favourite and probably a fake illness). Shes been in rehab for alcoholism / mental illnesses. Genuine question, has anyone of you guys met someone with a legitmate diagnosis of chronic Lyme disease or is it a munchy celeb favourite?
From my understanding the only real "Chronic Lyme" is the potential long term damage from having had Lyme, namely joint damage and arthritis but it can be pretty broad. You would treat these things with the treatments for those things though, not lifelong antibiotics or anything- the Lyme is over with. You just have lasting damage, same way you can get lasting damage from any illness. If someone gets a bad heart and skin ages after chemo, that lasts after the cancer goes fully into remission, we don't say they have "chronic cancer" and need lifelong chemo. They need a heart doctor and a dermatologist.
I think Lyme is such a popular scam because it is linked to some event totally out of your control. Also again the broad potential effects.
It's literally a munchie spider man story.
"One day, I was bitten by a tick, and THAT unknowingly caused me to become TOTALLY DISABLED for the REST OF MY LIFE!"
...most Lyme munchies never report an actual lyme tick bite happening besides as a retroactive delusion (the time I went to the doctor over a infected mosquitio bites when I was 6? LYME ORIGIN EVENT!) or lie, and a good amount live in areas or even continents with no Lyme disease.
From experience crazy people also are highly suggestible about things involving bugs and pests too, it's hard coded in humans I guess. Even if there are no bug sightings or anything, crazy people are wont to believe it's a tiny evil influence in their bodies and they're infested.
It is fake. These retards often never had lyme and even live in places that don't have it and have never traveled to places where they do. Lyme is curable and you don't need yrs of antibiotics like these freaks.
“I have this ultra rare disease but don’t owe you proof, also I’m a special gender and pansexual and polyamorous and I have a host of mental illnesses and alters and dress like I’m trying to blend into someone’s acid trip, but it’s NOT ABOUT ATTENTION!!”
is the best description of any - pick one - of the subjects featured here I have ever heard. Also any number of the subjects of other Kiwi boards as well. It's always some version of this. ALWAYS.
It is fake. These retards often never had lyme and even live in places that don't have it and have never traveled to places where they do. Lyme is curable and you don't need yrs of antibiotics like these freaks.
Yep, my brother in law had Lyme disease last year after going out hunting.
A deer tick got him, he developed the classic bullseye rash and felt hellish. Two weeks of antibiotics later and he was back climbing mountains within a month. He's been grand ever since.
It's been a major munchie attractor for a long time but it's being overtaken by the combo platter these days.
Part two of Nicole and Abby Sams, twin sisters bonded by their internet attention war. Functional twin Abby is outgoing and athletic, travels to Tanzania on charity missions, and spends her free time lifting weights and surfing. Meanwhile Nicole spends her days scrolling through Tumblr and Youtube skinwalking anyone she's interested in. She's shaved her head and cried about trichotillomania while also making posts about pediatric cancer and covering her shaved head with cancer wraps and beanies. She scratched up her arm and made posts about self injury and teen suicide. She made posts about how her ferret is deaf from Waardenburg Syndrome trying to get attention from those communities. She claimed to be genderfluid, a vegetarian (who eats chicken), anxious, depressed, dyslexic, and a host of other things, all the while tagging whatever social media personality she's cribbing notes from today. Her current identity is "girl with service dog" because she's discovered (and is obsessed with) CF vlogger Mary Frey who has a service dog. She has just adopted a young pit bull mix from the shelter to be her accessory.
We left off as the twins are really separated for the first time. Nicole takes her dog to attend art school in Chicago and Abby is flying solo in L.A. for a semester before she starts a marine biology program in the Virgin Islands. Let's see how this pans out.
Upon arriving on campus in Chicago, Nicole’s puppy behaves like a puppy and not a real trained service dog. She jumps on people, wants to play all the time, and won't listen to commands. She starts looking stressed in photos. Nicole admits she's fine in training sessions in their dorm but then loses it when they're in public. I think there's a mix of things going on here, one being Nicole's failure to prepare Mercy for a big move from their sleepy suburb to a busy urban campus. Her only real exposure was at big box stores and her CGC classes but she's now expected to behave like a fully trained service dog, when a real SD would have like a year of slow socialization and training before they're expected to work full days like this. But also Mercy is a young pit bull. Their energy level tends to be insane and they need to be run into the ground. Like this dog needs to be taken on a jog or out to play fetch for like an hour before she's expected to do anything that required focus. Walking to class is not nearly enough exercise to then expect her to sit calmly for two hours. (Also worth noting that back home they had another adult dog who probably helped run her energy out.)
Nicole makes the Quiddich team. This is so dorky lmao, but yanno what? Do you. Play your nerdy sport and have fun. At least she's going outside and being social instead of crying on tumblr all day.
Within weeks of starting school, Mercy is washing out and being rehomed. This is shockingly mature. She admits the dog is not going to be okay with this work and she needs a family that will play with her and let her live her best doggy life, not to be forced into a box she doesn't fit. Although I'm sure the embarrassment of her service dog not behaving in front of all her new peers was much more of a factor than the dog's wellbeing in this decision, at least she gets to be a pet now. Go on, good girl. Unfortunately this does not mean she won't get a new dog to fuck up. She's getting a great dog from a great lineage next.
She will not be getting that dog. She decides she’ll be fine for now.
Never mind, she starts a gofundme and now she can buy a new dog before she dies of acute lack of attention. GFM is deleted.
DO YOU STILL LOVE ME EVEN WITHOUT MY DOG @FREYLIVING???????
Abby is still being the functional twin. When she's not working or exploring the city, she hikes in Joshua Tree.
She goes high enough in the mountains to reach snow and ice.
On her blog we figure out what’s going on with her. Her dream school (UNC-W) is too expensive and on Youtube she explains she was offered no scholarships to attend. Instead she decides to go to the University of the Virgin Islands which has a great marine biology program but she won’t be starting until Spring. In the meantime she’s spending a semester in L.A. working. But also oh, she’s developed severe joint problems and spends so much time in doctors offices.
She does not feel at home in L.A. She tries to connect to people but finds they have nothing in common also plz paypal dono?
She explains that she did not have migraines, she had one long migraine that wouldn’t fuck off. She missed a lot of school, got a lot of tests, went to a lot of ERs, and doctors thought she was faking. She’s now claiming she’s hard of hearing and has to “yell with my hands” instead of speaking and that she is in constant pain. MEAN DOCTORS BAD. Down the rabbithole we go.
She's seeing this gap in her education as an opportunity to do something wild and impulsive and have a change of scenery while she's still young, which is why she moved across the country on a whim. She lives in a 275sq foot apartment while working on a project she enjoys and she'll move on to her next big adventure soon because she is so wonderful and special, so unlike everyone else. Yeah, people rooting for Abby? Sorry, in addition to being a munchie, she's a totally unlikeable pretentious fuckstick lodged so deeply in her own vagina that she's wearing her cervix as a hat. I pulled a little writer's trick on you where I cut out the parts where she was being completely obnoxious so that you would think Abby was the good twin. Ha-ha, I sure fooled you! There's no good twin, they both suck. Abby just happened to be a smug fitness and jesus freak posting about how smart, mature, and independent she is instead of a whiny gendersperg crying about everything.
She’s a very deep thinker. Man teenagers are a laugh riot.
Here are some of her deep thoughts about how great she is and how she doesn’t care about money.
Nicole is getting a new dog to fuck up! It's a 9 month old female shepherd-retriever.
Both twins head home for Thanksgiving. Abby will not be going back to California after the holiday.
Nicole is back to cancer posting.
Abby’s posting about joint pain and fatigue.
Nicole goes back to school for her first semester finals.
Nicole’s taking online dog training classes so she won’t screw the new dog up.
Here’s the new dog. Her name is Ziva. She's an anxious basketcase who goes off her food and water as soon as she gets to campus and takes over a day to relax. WARNING. DANGER.
At least she's exercising this one.
Abby’s vagueposting in what looks like a hospital.
She does Vlogmas where we see that she’s calling normal muscle twitches serious neurological symptoms
Ziva is reactive to other dogs but easy to redirect with cheese.
Which means, of course, she's gonna use a prong instead. Why the fuck not?
Nicole goes home for christmas. She makes her puppy pretend it’s a service dog well enough to get through the airport. Puppy did DPT because Nicole was anxious even though she was never trained for this! She just knew what to do! Hey dipshit. Your puppy is anxious and seeking comfort from you.
Here's the story of how this went from Abby's youtube! She couldn't do an online check-in because of the dog meaning she had to spend more time at the airport trying to convince people that her totally untrained puppy was a true 'n' honest service dog. She expects to be given bulkhead seating without paying and is shocked to find that they seat her in a regular seat. "It's not [Ziva's] job to accommodate herself. That's Delta's job." Nope, sure isn't lol. Nicole was also not allowed to pre-board and has a panic attack trying to get herself and her scared puppy into the space allotted while the flight attendants remind her that she's holding everyone up. She screams that the dog has never been on a plane and barely been on a car. Perhaps Nicole should have done her due diligence and prepared both herself and her puppy for this experience. There's dozens of youtube videos (including both Queen Jaquie and, before she privated most of her YT, Mary Frey) about flying with a service dog where they will tell you the airline is not obligated to provide you bulkhead seating and you either need to pony up or take a gamble that they have it available and will move you there if you ask nicely. There's also plenty that show you how to get your pet or service dog prepared for their first flight so you don't traumatize the fuck out of them.
Of course the dog is a natural and knows what to do all the time with no training.
Aww little Samslettes.
She takes the dog to a concert. Ziva's terrified and shakes at the start but then calms down and does great! Nope, she shut down out of fear. This is the exact opposite of what you want to do. If the puppy is afraid, remove it from the situation immediately and work back up to things like this slowly with tons of rewards for being calm. You want to keep puppy exposures short, calm, and pleasant.
Nicole gets a new harness for Ziva with a handle for light mobility and guiding. Why do you need this?
Meanwhile Abby now needs an MRI but it’s been pushed back.
Nicole starts skating again.
People tell her the prong is in the wrong spot. She’s aware, but she can't get it to stay in the right place and she’s gonna keep using it anyway. So annoying when I can’t just hurt my dog without all these questions!
Nicole has a bad headache and Ziva totally knew. She did DPT on the floor of Target. Wow we’re already at the laying on the store floor with my dog pics! Again, this looks like the dog is anxious and seeking comfort.
She has a new plan for school.
Abby’s opening up. She has some sort of chronic illness but not sure what. She’s had it for a year and a half and it’s getting worse. It’s mostly pain in her lower body and no one knows what’s up. She can barely walk.
Here’s the story from her youtube where she adds in the detail that the reason the medications made her feel like deep-fried shit was because she was seeing so many doctors who prescribed so many things and she never knew what to take or if there was going to be an interaction. Is she just not reporting what meds she's on?
Nicole is now the less embarrassing of the twins.
...its a low bar these days.
Nicole and Ziva head back to school.
Ziva has been completely traumatized and starts reacting to everything in the dorms. She doesn’t listen, can’t heel, and won’t do anything right. She growls and barks in class. Nicole is determined to fix it instead of washing another dog right away.
Nicole’s back to crying all the time and her dog has to stay in the dorm when she goes to ASL class because she won’t stop barking at everything and everyone.
She’s still obsessed with Mary Frey, back on her impeccable diet of greasy carbs, and the dog still won’t stop barking.
Nicole has hard decisions to make.
She’s taking animal behavior classes. Not like, the dog training classes in her spare time. This is one of her college credits for some reason. I'm guessing this is offered because one of the film major concentrations focuses on nature documentary filming but she assumed it would help her train the dog better.
Abby’s in a lot of pain and noticing a loss of function.
Nicole may still be skinwalking Mary but at least she’s working out and doing things. Abby is now the one who lays in bed crying all day.
Nicole has a crush on a deaf girl. She says Abby is fluent in ASL.
Here’s Abby signing and talking about how she has some hearing loss and “identifies as hard of hearing” but real deaf people won’t give her a special sign name ostensibly because her name is short enough and that makes her sad. I don't know enough about ASL to tell if she's doing this right but I assume if she's had multiple interpretation jobs she is. Simcom is "simultaneously communication" i.e. she's speaking and signing at the same time which results in her both speaking and signing slower than she would if she chose one. Apparently (from reading a few blog posts about it) the capital-D Deaf community hates simcom because the signing isn't as fluid and tends to favor spoken grammatical patterns over native ASL patterns whereas normie deaf people think it's a net positive that both deaf and hearing people can participate in the conversation this way, because someone who both signs and speaks can act as the go-between.
Nicole's depression hits hard. She’s able bodied but she can’t even go to the store to get toilet paper.
This is because Ziva has also washed out of training for barking too much and not wanting to work after Nicole traumatized the shit out of her. Because she lives in the dorms, Nicole’s school tells her the now-pet puppy has to go so Ziva is rehomed too.
Abby visits Nicole in Chicago and she has forearm crutches now.
She finally got a diagnosis! Go to her blog and youtube to learn more! You're the boss.
Here she tells us that all that crossfit and all those months of traveling, she was just masking her extreme pain and pushing through it. She went to every specialist her parents could afford to take her to and was told she was lying and seeking attention. She moved to LA and got a job as an ASL interpreter for a TV program which is what required her to hike a mountain. She’d just gotten over a cold and was feeling like doodoo. A mix of the fatigue, the altitude, and the frigid weather made her collapse near the top of the mountain. She couldn’t feel her legs and was in intense pain, her vision was blurry. After 20 minutes it passed and she went back to work. She went home for the holidays and decided to stay, enrolling in Georgia State instead of UVI to be close to home. Every doctor she sees now tells her it’s nothing, except one who tells her it’s restless leg syndrome and she’ll be fine. She’s lost muscle and can barely use her legs which twitch and contract and go numb on her, and shes bought herself crutches because no one would prescribe them. Finally Emory’s pain center tells her it’s RSD/CRPS, a disease she already tried to get diagnosed with but was told to fuck off. She claims she’ll never get her muscle or function back and that she might need a wheelchair in the future. Jesus wept.
here's the video.
Also on youtube she recalls how many doctors watched her hysterical in the waiting room and pulled her aside to tell her to stop faking for her parents’ attention. Oh gosh I wonder what her "misdiagnosis" was! Anxiety, functional neurological disorder, or just good old factitious disorder?
Nicole goes home for Spring Break the next day.
So in addition to the classes we knew she was taking - ASL and animal behavior - she's also taking Deaf culture and Harry Potter Culture. The absolute state of higher ed in my country, jesus wept.
Abby gets a nerve block.
ME TOO! I’M SICK TOO!!
Abby’s nerve block doesn’t work.
She announces she’s only going to get worse.
Nicole is back at school and she has lost a ton of weight.
Less than a month after diagnosis, Abby’s doctors tell them there’s nothing left to try.
Her symptoms are very different from any other CRPS case the pain clinic has seen. The doctor has never seen someone progress as quickly as Abby is. Lol yeah either they know she's faking or she's being non compliant or both, and either way they're passing her off like she's radioactive.
Nicole’s pens are syringes. Interesting.
She’s watching vlogs about IBD. GEE I WONDER.
She remembers she used to say her life was ruined by trichotillomania and uh, oh gosh she doesn’t know how she stopped her devastating hair pulling compulsion but she fought real hard and did!
she’s still obsessed with Mary Frey btw.
She’s now on Pristiq (desvenlafaxine, a SNRI antidepressant) and trazodone.
She’s also #Pre-nursing. Remember that she is at an art school. Not pursuing an arts degree at a normal university but a dedicated school that only teaches the arts. Needless to say while there's a biology minor for their environmental studies program (itself focused on the fashion industry), she's not taking any real sciences or going to be able to stay there if she wants to be a nurse. So she just...bought scrubs for funzies I guess.
Sniffing up Mary’s skirt again. Believe it or not, this gets creepier.
Abby now has a disabled parking pass and is ordering her first wheelchair.
On her blog she tells us she wants to remove her legs because her brain does not recognise them as a body part, that they’re hot, tingly, and melting with temporary paralysis and intense spasms. She has many other symptoms she won’t divulge and her emotions are unstable now too. She wanted to smash her computer after seeing old crossfit videos. Blah blah blah god’s plan blah blah give wheelchair.
At the end of the school year, Abby goes to Chicago to help Nicole move home. Nicole’s not going back to Chicago in the fall. Abby’s in a transport chair, not even a manual. See the small rear wheels. But this looks like a loaner they used for that outing, not her real chair she ordered. We'll see the real chair soon.
Nicole goes shopping for gluten and dairy free foods now that she’s home.
Nutella has milk in it. How is bananas covered in chocolate spread not sweet enough for you?
Abby runs through a field in the rain and feels normal again. Just ordered a wheelchair.
She even films it for us!
She won’t show us the wheelchair on her account yet because something. She reminisces that two years ago she could lift the weight of two grown men and now she can’t even push herself in a chair. Why does CRPS in her legs prevent her from using her arms?
Meanwhile Nicole suddenly mentions a new “furbaby’ named Pippi and that some chick in petsmart lets her have a book about suicide and psychics
We’re introduced to Pippi. She’s a two year old pitbull and the new SDIT. Nicole will be attending service dog training classes with her over the summer.
She starts public access with her immediately because she still hasn't learned that jumping in with both feet is not the answer.
As you can see she’s had no formal training. The training goals for the week are to start teaching her how to do very basic commands.
Nicole is now much thinner than Abby. Check out that thigh gap.
Abby goes back to LA for Vidcon. So that's why she needed a wheelchair right away.
Suddenly in June 2017: #ehlersdanlos #POTS #edstype3.
Nicole is claiming she’s intolerant to dairy, gluten, and meat and the dog is also allergic to everything. what a hilarious coincidence!
She gets nauseous every day at 4 pm even on a limited diet. Well that's one way to get out of eating dinner with the fam.
For a while it’s all dog training shit and thinly veiled body checks on Nicole’s account.
Abby sees a new geneticist and they validated her. She feels seen. And her Brave Souls blanket came in!
I am legally obligated to remind you that the true queen of my heart, Amanda “Skinwalker” Winig, was discovered by LCF because she won a Brave Souls contest that Jaquie also entered.
The twins go to the beach for a week.
Where Abby decides to sperg about how people are sex trafficked so don’t eat hot dogs on Independence Day or something and Nicole fakes sick to get out of eating anything.
Magic dog makes Nicole forget she’s sick.
Abby opens up about being diagnosed POTS and hEDS. She’s struggling to accept that this is her life.
Here’s a video about it.
Check out this "extreme joint hypermobility."
Nicole’s magic dog alerts to POTS! What luck! Also lol @ skelly going to a store to stare at but not purchase candy.
She brings the dog to a Jesus convention at church.
Training for alerts now.
We finally see Abby’s real wheelchair and it’s a Quickie Qri that sells for $1300. I do not believe anyone prescribed or fitted this.
Doctors still don’t believe her! They drown out her suggestions with their “””””medical expertise”””””. Your medical degree does not compare to her youtube MD!
Magic dog totally alerts to gluten in a candy bar with zero training whatsoever
The rescue dog is of unknown provenance but they believe she was used for breeding before Nicole got her. God dammit let the good girl be a pampered pet. There are pics showing her chest and she's definitely whelped and nursed at least one litter.
Abby goes hiking and kayaking in the Adirondacks even though it causes her so much pain. It Was Worth It.
Pippi alerts to Nicole picking her face because she doesn’t notice she’s doing it, of course.
Abby and Nicole are moving to Athens together for school. They'll be attending the University of Georgia.
Nicole is trying to rebrand as a super-organized study blog again.
Nicole has a tough time getting Pippi registered at the school as a student. Why do you need to do that? She legally can’t be denied access as long as she's behaving and Nicole doesn’t live in the dorms so that’s not the issue. Just take the dog to class and talk to the disability office if someone bitches. Except that other SD munchies get student ID cards for their dogs and she wants one too. Also I just want to point out that this is the third time she's gotten a dog RIGHT before moving/traveling, even though the moving was the point at which the other dogs went bananas.
How to correct occasional leash pulling: shock them into submission! Don’t bother even trying to fix it with redirection and positive reinforcement or even a more gentle corrective. Just go right to punishing the shit out of them! Don't worry, she doesn't use it because she can't afford one.
The girls are all moved in. Abby is malingering while Nicole is still just obsessed with making her dog act enough like a service dog to pass muster in class this time and once again the dog is reacting negatively to suddenly being moved to a new location. Why can this girl never learn from her past mistakes?
oh my godddd how could anyone be jealous that I get to take my dog everywhere and they don't?
Nicole’s shoulder is totally fucked from hypermobility even though she’s never mentioned it before. She needs Pippi to get things for her in case her arm hurts real bad or she’s having sensory issues.
She has a gluten-free haven in Athens. Unlike Grace who only ever went to restaurants where the whole kitchen was gluten free, Nicole goes to normal restaurants and take their word that there will be no cross contamination.
Next post: BLAST IT ALL! She’s been glutened by tofu! Pippi now has a strong natural blood sugar alert. Lmao. wait for it.
she’s still skinwalking Mary.
Abby is just Jesusing.
School starts and Pippi won’t stop growling at people out the windows. She’s two. She’s past all the critical socialization and training windows and they have no idea what happened to her before Nicole picked her out at the shelter. Also Nicole needs a dog to let her know she's getting anxious.
Aww man she’s reading Eric Foner. Brings me back to undergrad, the historian in her larval state. Anyway she’s constantly saying that the dog is alerting to low blood sugar now but doesn’t have a glucometer so she can’t really tell. She just knows she feels better after a spoonful of nutella. So the dog taps her on command and Nicole rewards herself for this with chocolate. Its like reverse service dog training.
Studying isn’t about learning the material! It’s about writing in an aesthetically pleasing script with colored pens so you can post it to instagram.
I mean, not gonna lie. Pippi learns fast and that includes learning that growling in class isn't appropriate. She posts plenty of videos showing the dog calm and wagging her tail in all kinds of places and she never looks anxious. Just seems like she lucked out with a really pleasant personality on this animal.
But she also vastly overstates the dog's abilities, as one can imagine. Pippi’s amazing natural “gluten detection” is just “food detection.” It’s not that one jar has gluten-free bread and one has regular bread. The control jar is empty. Pippi "alerts" to which jar has the bread in it.
Abby is sick.
Now Nicole is sick.
Nicole is making her dog push the cripple buttons now. She says it’s because her hands are full (lol smack it with your hip like a normal person) but in the video one hand is holding the camera and the other is pointing to the button.
“Oh right I used to claim I had a devastating case of trichotillomania!” I don’t believe she ever had it. I think she deliberately set out to give herself a few bald spots for attention from that Beckie girl and so she could justify shaving her head by crying about how she can’t have long hair or else she’ll pull it out. I also think there was possibly a gender component, where her family said no or she thought they would say no to shaving her head to be her best boyself so she found a loophole that didn’t make them freak out. Ktcommander in the comments is another friend who was genderspecial in high school but grew out of it. Nicole never mentions her gender shit after deciding Mary Frey is her new god.
Abby is in constant pain and has had a considerable shift downward with her health. She’s once again out of treatment options.
Nicole is also in pain but her pit bull laying on her helps it!
They’ve been hit Hurricane Irma and it fucked their house right up.
They go back home to the family and fake sick there for a while.
Nicole takes pictures of Abby writhing around on the floor so they can post it on insta.
They go back to the house once electricity is restored but now it’s been flooded from a broken pipe. The house is now temporarily uninhabitable. They have to pack everything salvageable and head to their aunt’s house then back home to their parents.
They go home to check out the damage. It’s bad.
Abby and Nicole collab on a super janky guide harness for Pippi. RUDE COMMENTS WILL BE BLOCKED!!! By rude comments she apparently means people telling her she shouldn't be yanking on this animal's untested joints or she doesn't know what she's doing.
Hi Hayden!!!!! I will never stop laughing at how incestuous this community is!
Abby keeps finding solutions for her health problems but her terrible doctors always dismiss them. Every day is a battle now.
They need masks for… something. I mean, attention is the answer but they don’t give an official reason for why they need them.
On October 4, both girls end up making big medical updates. First Abby, who is very excited that she’s had her first scheduled salt water infusion for POTS which will even help with her EDS symptoms! (How?)
Nicole, on the other hand, calls a gastro who yells at her. She goes to urgent care who doesn’t tell her what she wants to hear, then heads to the ER who also tell her to kick rocks. She’s not going to die but she still can’t eat and something’s wrong with her intestines. Of course the dog came along every step of the way!
Two days later she updates to let us know she’s admitted to the hospital and tubed because her stomach won’t “tolerate” any food.
She’s discharged with the nose hose. She loves it!!!
and she’s now on Creamy, Delicious Kate Farms! Just like Mary Frey was, and she takes the same pic Mary does! Mary noticed her!!! she needed Kate Farms because her old formula tasted real bad. People in the comments point out that she should not be tasting her formula if it’s going in an NG tube. Her excuse is she has GERD so she tastes it from reflux. Ok.
They get lost in a children’s corn maze. Abby is in so much pain! Remember when she bought a wheelchair?
If you can eat pies and drink cocoa why do you need a feeding tube? Just drink nutrition drinks instead of cocoa. IDK about every brand but at least Ensure says right on their website that you can heat their shakes up without affecting the nutrition profile.
Abby does not like being the healthier twin. She’s now posting pics in her bed, the infusion clinic, and of her wheelchair.
"Extremely troublesome veins." GIB PORT.
Another one who just forgets her wheelchair when she goes shopping, as one so often does when they need a wheelchair.
Annnnd... Nicole gets a tattoo of Mary Frey’s handwriting. This is fucking creepy. Mary totally loves it and is not currently getting a restraining order!
Nicole has a Kate Farms tote and hat and I’m enough of a sperg to know that Aubrey Anha Winkie (Aubreys_lyme_journey, one of the OG anachan gastroparesis fakers from the Jaquie era) had the same hat and tote. I think they were given out with your first order or something.
Twin caught me slippin (and biblin).
Nicole has a follow up appointment. She’s not gained any weight at all. How could this be? Oh. Because she "stopped tolerating" her target rate so she went ahead and turned the rate down on her Creamy Delicious Kate Farms, which her doctor doesn’t like. She scores pain meds but still cant stomach solid food. Still no answers. People just think she’s anorexic and she’s not!
Abby is depressed. She’s “tired of being told that I wanted this, of people saying ‘you did this to yourself, you shouldn’t be happy, this is your fault, stop being okay with it, stop lying.” Lol so yeah, Abby is getting called out all the time for faking, both by doctors and by former friends who remember her as the surfing, hiking, skateboarding crossfit enthusiast who aren’t buying her sudden descent from that to wheelchair princess. Also she's like, palpably jealous of the feeding tube. Just some Deep Thots about what we might be seeing play out in yonder spoiler if you're interested in my brain noise.
There's no shortage of news stories, essays, and TV programs about twin / girls / who / both / have / eating / disorders and how they keep each other sick. They get locked in these extremely destructive competitive spirals because neither girl wants to be the "fat" twin who isn't special. They end up spending their lives trying to make sure the other twin isn't moving more or eating less than them often to the tune of precisely measuring each food item they eat or following each other around the house to make sure they get the same number of steps in. The treatment almost always involves separating them so they can't feed off each other anymore, because neither of them wants to be the one who got better so they both stay sick
I think that's kind of the dynamic we're seeing here, to a lesser degree. I do not believe Abby has an eating disorder or ever develops one but I do think that the feeding tube is a subject of some serious jealousy. Since the start, Nicole has only ever claimed mental illnesses: anxiety, depression, trichotillomania, and gender bullshit plus a one-off migraine and a "meat intolerance" no one around her seems to believe is real. I think Abby always felt like she was the better twin. Nicole spent her days rolling around in bed crying about her hair and being unable to function whereas Abby had "real" problems (her alleged migraines and hearing loss) but never let them slow her down. That's still the narrative Abby wants to go for. She had this medical problem that cut her time in LA short and kept her from her dream of studying in the Virgin Islands but she keeps on keepin' on, applied to a different university to pursue her dream of being a marine biologist despite all these medical setbacks and she's adjusting to her new life.
And now here comes Nicole suddenly trying to elbow into the same family of spoonie illnesses Abby has been getting herself diagnosed with and she got herself a visible sign that she’s really sick. Everyone who walks by might think Nicole is just anorexic but Abby knows the “truth” that she is trying to get diagnosed with Trendy GI Disease and is moving in on her EDS territory. I also think she's possibly aware that she's shot herself in the foot by claiming a genetic disease when Nicole is her literal biological clone. If she has all these illnesses stemming from a genetic whoopsie then it stands to reason that Nicole has them too. What we're going to see from here on out is Abby trying to restore the status quo, where she's the independent woman who keeps her head up and succeeds despite her disabilities while Nicole is the whiny crybaby who can't handle her own life and needs supervision.
And we're gonna stop there because it's convenient and this one is a lot of work.
Abby and Nicole were posted about in this thread three years ago by the user flatlandbasin. I do appreciate the deeper dive from Kate Farms Shill, just wanted to also give some credit to the person who originally discovered them.
Yeah, people rooting for Abby? Sorry, in addition to being a munchie, she's a totally unlikeable pretentious fuckstick lodged so deeply in her own vagina that she's wearing her cervix as a hat. I pulled a little writer's trick on you where I cut out the parts where she was being completely obnoxious so that you would think Abby was the good twin. Ha-ha, I sure fooled you! There's no good twin, they both suck. Abby just happened to be a smug fitness and jesus freak posting about how smart, mature, and independent she is instead of a whiny gendersperg crying about everything.
God, I love you more than I can express in mere words.
An interesting fact: the University of the Virgin Islands is considered one of the Historically Black Colleges and Universities (HBCU), a consortium of schools founded in the pre-Civil Rights era, when many institutions of higher education, particularly those located in the American South, did not admit non-white students. Some of the HBCUs are quite prestigious. Alas, UVI is not among them, with an acceptance rate of almost 99% (and a graduation rate a quarter of that). Although HBCUs now admit students of all races, UVI is still almost 80% black and 15% Hispanic. I have to wonder if part of the reason Abby washed out so quickly was that she felt weird being a white person at an HBCU. UVI is also a very affordable choice, with an average cost of attendance after financial aid around $9500 per year.
Speaking of "not prestigious", those who frequent the Beauty Parlor may recall that Columbia College Chicago is the alma mater of perennial cow Judy Valentin. With an acceptance rate of 96%, it's slightly more selective than UVI, but has approximately the same graduation rate. That increase in selectivity apparently comes with a hefty price tag: the average annual cost of attendance at Columbia College Chicago is nearly $30,000. It's basically a very expensive daycare for Daddy's little Indigo Child.
