Well this is interesting. Their grandfather died and we learn that he had MS and his main problem in his final years was pain and weakness in his legs. Hm. Where have I heard this before?
I may have a munchie neighbor.
As I got home, I saw a girl in a wheelchair unlock the door to the apartment complex, but she struggled to hold the door open while moving forward. Since I was right behind her, I offered to hold it open. That's when I see on her bag a button that says "he/she/they." Wheelchair plus pronoun button plus the fact I'm fairly sure I saw her in a foot brace a couple weeks ago made me think munchie.
(To give her benefit of the doubt, are there any conditions where someone might go from brace to chair instead of the other way around?)
Yeah. If it gets worse, is degenerative, or they hurt it even more. If they have surgery and need to stay off it for the immediate future to fix the problem. If they can walk short distances in a boot/brace but need a chair for something longer or more involved. If it's two unrelated injuries, one worse than the other.
"Must be a munchie" based on a pronoun pin and a wheelchair is kind of a stretch.
I was referring to Abby suddenly claiming her legs were weak, tingling, in intense pain, and unable to support her weight before her EDS saga and implying that's where she got the idea.
Maybe. For me (having spent too much time on Tumblr) anything disability/mobility aid related tends to have a "queer" connection. And I did just catch up on this thread so it was on my mind.
Maybe. For me (having spent too much time on Tumblr) anything disability/mobility aid related tends to have a "queer" connection. And I did just catch up on this thread so it was on my mind.
Part the fifth of Abby and Nicole Sams: we live with them now! We never get to leave them. Last part: Abby ditched her service dog, became Aerie’s first wheelchair model, and gained a whole new audience to absorb her breathless prose about how special and unique she is. She’s recently decided to go back to her athletic world traveler persona. Nicole spent the entire six months since her last feeding tube surgery refusing to run her feeds and demanding a better tube and a PICC for salt water. She’s still skinwalking people she follows on social media and swearing she’ll become a nurse despite her inability to handle any sort of stress or pressure without collapsing into a shivering ball of tears and vomit. Other parts: 1, 2, 3.
Since this was just a GJ insertion and they went through the same stoma her G-tube was already in, Nicole does not get to malinger in the hospital for pain meds. She’s discharged immediately and has to go to class the next day.
She’s claiming she just keeps pushing herself and pushing herself and never realizes it’s too much until her whole body shuts down. “I need to take days off, to relax more.” High stress career choice known for long brutal shifts probably not the best idea?
Down to 400 calories a day, all from eating. She doesn’t like “arthur,” the retarded name she gave her J-tube, because it hurts and bleeds a lot.
While she was in Chicago stalking Mary Frey, emotionally damaging assorted dogs with her incompetence, and hating her film classes, she also found the NRSNG podcast on youtube and became obsessed with it and that's when she decided a nursing career was right for her. A quick browse of their youtube shows a bunch of study sheets that look remarkably like the disease pages she’s been writing up. How did I not guess that her sudden interest in nursing was just more parasocial shit?
She finally runs out of excuses not to run her feeds.
...she gets a gastroparesis tattoo. I mean it's cute and if she grows out of this phase she can just say she likes witches and wizards and shit because she does, but Memberly, the "tubestie," has a ton of tattoos that are cartoony Halloween stuff like bats and witches so Nicole getting one just screams more skinwalking to me. I really gotta wonder if being a twin and always being one of the twins is why Nicole has such a hard time developing an identity that isn't lifted wholesale from someone else.
“A year ago I didn’t eat at Thanksgiving. This year I had an assortment of foods even if I felt extremely nauseous and gross.” 1) how did getting a different feeding tube allow you to eat a thanksgiving meal? And 2)
You told us last year that you ate a full meal and desserts.
Again, perhaps less time making your notes and workspace aesthetic for the ‘gram, more time actually learning the material. All these weird study maps and hacks she does seem to be cribbed from youtube. Needs jejunal feedings but big old mug of hot choc with whipped cream is fine n’ dandy.
If she really does run her feed 24/7 at 80mL/hr she’s getting about 1900 calories which is probably more than she needs. She’s not very active and they’re not really trying to refeed her. Also we know she's not going to because she'll gain weight.
If you’re wondering what Abby is up to the answer is “autofellatio for her new audience.” Her illness flared and made her more deaf than usual but also she walked (!!!!!!!!!!!!!!!!!) a few blocks to get coffee.
For the most part her posts are no longer about what’s going on in her life right now. They’re all narcissistic navel-gazing from someone who thinks she’s very smart. It’s like reading a bunch of really terrible college entrance essays where the prompt was “describe a time when your faith was tested and how it affected your personal growth.”
Nicole’s hanging out with the girl she’s currently skinwalking.
Her grades were even worse than she expected. It’s not that she didn’t know the material. She just doesn’t test well. And people should take into account that she had to have a CT scan, a GJ insertion, and a change of her health insurance all in one semester.
Oh, and give me IV fluids now because my head hurts real bad.
Another hike where Abby shows off she’s not even regular-mobile let alone hypermobile. I don’t know why she thinks this pose is a good one for her.
They go to Dalongah in northern Georgia for a winery dinner. They can’t use Abby’s wheelchair but it’s okay because once again, she has something fun to do so all her symptoms vanish. Nicole’s magic dog gives her the all clear to eat ice cream with unknown gluten content. Her symptoms do not disappear, but she pushes through them.
Having enjoyed her holidays with few complaints, Nicole needs to remind us that she’s very sick. Her stomach “needs to be washed” (sounds like an eating disorder!) and she’s regurgitating food, her heart rate is in the 120s all the time, her shoulder is so fucked her collarbone is unstable, and she now has a ton of hip and bladder area pain.
She’s panicking because school starts soon and she’s taking both in-person and online classes.
What kind of rigorous pre-nursing classes is she tackling this semester? ...tap dancing. And she broke down crying because her real face doesn’t look like a snapchat filter.
She’s also taking another anatomy class, nutrition, global health, and precalculus, so fine, have fun in your little dance class. Her tube is all bad with granulation tissue again. What will she do? Eat food like you're already doing.
And there’s her crushing depression once again, making her want to stay in bed and sleep all day.
She’s already doing badly in school. Even tap dance turns out to not be the fun easy class she thought it would be. Her hips refuse to stay put and her legs and brain don’t communicate well. lol just say you're bad at dancing and totally inexperienced. She subluxed her TOE it HURT. People might think things come naturally to her but no, “hours of studying, practice, at home physical therapy, and tears get me to the same level as someone who kind of studies.” I mostly laugh at the thought that anyone would think anything comes natural to Nicole Sams. I mean if she was pulling all As and downplaying how much she studies then yeah people might assume (like she has of others) that she only kind of studies and they have to work much harder than she does. But Nicole’s grades are shit and we know that because she told us. Everyone sees a crying basketcase who talks about studying non stop on instagram but has nothing to fucking show for it. She’s looking into back-up plans for when she inevitably can’t get into nursing school but really thinks that nursing school needs to level the playing field for her. Okay and how is that going to work in a real-world setting? Nurse Nicole only gets assigned the easiest and most non-confrontational patients because of her anxiety and everyone else picks up the slack for her? She’s a full RN with an RN’s pay but no responsibilities more difficult than posing for instagram shoots in scrubs? In an emergency, everyone else has to help the patient but Nurse Nicole gets to sit on the floor crying and fake-seizing with her dog on her lap? Nurse Nicole’s patients die slower to give her more time to think and consult social media? She gets one fatal whoopsie-daisy per month?
Abby's posts are getting more weird and vague as time goes by. There's a lot of big stressful things going on in her life that we'll learn about soon and she wants us to know she feels bad and we should feel bad for her, but she doesn't want to actually say what's going on. I know she’s going for "trust HIS plan!" but she's giving low-key MK-ULTRA "my life is being controlled by someone else" vibes.
This is not a pity post but here’s a whole paragraph of reasons you should pity me.
Really just posting this because Abby has been on a big baking kick and she’s rarely making gluten free recipes. Unless Nicole has entirely different cookware, utensils, etc that Abby never uses for anything with gluten that are stored well away from where Abby bakes, everything made in their kitchen is probably cross-contaminated. I want to thank Grace Harestad, the thread’s actual celiac, for teaching me all of this.
Once again an inconvenience becomes a catastrophe. Nicole’s bus route changed and this means she has to walk a mile from where it used to be to where it is now. She is now in so much pain and overwhelmed and she might have a seizure from it! Oh yeah and she's gotten guinea pigs. She got two named Willow and Sage a few weeks ago and then decided she needed a third so she gets a baby named Thistle.
The reason Abby has been so tight-lipped about her marine bio program since she moved to Athens is because she’s not in one. She switched to philosophy ages ago which is why she became so much more insufferable and smug. She wants to transfer to Auburn University in Alabama where her boyfriend is but she can’t afford it. Instead she transfers to that bastion of Bible-based edumacation, Liberty University Online, where she’s pursuing an undoubtedly rigorous bachelors in Green and Sustainable Business Administration. Her papers on topics such as energy sources and supply chain management required her to cite the Bible as a scholarly source. Also isn’t it funny that both of them used the “the field needs to change and be more accessible” line? I didn’t fail my field, my field failed me etc etc. They’re so special.
She’s in another Aerie campaign so it’s time for more bullshit explanations of why she uses a wheelchair in her underwear ads but only sometimes on her social media lest her new followers start to think she’s faking.
Abby does a health update but it’s about her fibroids again, which appear to be the only real and monitored health problem she has. They’re worse and her medication is changed. She’s claiming endometriosis again.
Nicole’s claiming she can’t eat again and whining to her gastroenterologist about how the GJ tube was also not the one. She’s shitting her brain out and her body is just telling her it’s done.
Of course, this was all a ploy to try to talk the doctor into giving her a port for salt water because she’s so so dehydrated. I’m gonna guess the “shitting her brains out” part had something to do with her vast knowledge of laxatives. Also enough of a sperg to peep her splenda packets on the table. Muh inability to hit my calorie goal.
Like a good ana-chan, Nicole is trying to find that magic potion that gives her non-jittery energy without food. Before it was coffee protein shakes, now it's mushroom coffee.
She puts weird Doterra shit on her granulation tissue. This doesn’t sound like a great idea.
Abby is mad that her holy scripture is ableist. There’s no quotes about dazzling zebras and all the illness quotes are about wanting to get better.
She has complained of living in 8 or 9 out of 10 pain every day for years and claims she just bravely soldiers on. Now she is feeling unwell because of these cysts or tumors or whatever is going on in her lady-organs and it’s “harrowing.” She specifies that she doesn’t want to feel like it’s all in her head again and she “thought she was done.” I actually find this really interesting because once again, it’s a twin thing. Kate’s brain-noise under spoiler, you know the drill.
From what we’ve seen in her posts, Abby started seeing doctors in mid-high school for migraines and was initially believed until she started pulling the migraine card constantly and saying it was never going away with any treatment. Remember she claimed it was not migraines but one continuous migraine that lasted for over a year with no break. Then she started going for mysterious “attacks” that landed her in the ER during the crossfit and California eras and was told to stop faking for attention, apparently over and over again in front of her parents. Then she finally got Emory to say it was CRPS but as with the migraines she went too hard too fast, claimed none of the treatments were working and she was rapidly getting worse then bought herself forearm crutches and a $1300 wheelchair against their advice so they dropped her too. Finally after years of being told to quit faking she found some quack geneticist in Atlanta to diagnose her with EDS and POTS. And that’s where she lived until the uterus problem smacked her on the ass. She wasn’t constantly after new diagnoses or toys, at least not from the doctor. Her braces and cane are all OTC and mostly purchased for her by friends, the “service dog” came from the shelter, and the ring splints she made herself but never wore. I also think the “quit faking’ wound was recently reopened when she tried out for all those adaptive sport clubs hoping they’d validate her and instead they kept telling her they were for people with actual disabilities who don’t get to turn them off when it’s convenient.
Nicole started with psychiatric/neurological problems and no doctors involved. All of them she either probably has like anxiety or she just had to put in a little effort to show evidence of, like the one bald spot from trichotillomania or her occasional masculine dress when she had the gender feels. She did eventually see a psych but was just given a regular SSRI antidepressant – you can go to your PCP and walk out with one of those. Then she got the service dog from a shelter, again no medical validation required. It wasn’t until after Abby already did all the trailblazing and found the compliant doctors that Nicole started going for the zebra diagnoses and at that point all she had to do was say “I’m Abby’s identical twin and have the same symptoms she does.” Boom, instant diagnosis with no one announcing she’s a fraud. When Abby stopped chasing new problems, Nicole started finding local girls on instagram with the diagnoses and toys she wanted and asking them who was treating them. Like the Trevino girls she found a whole little network of zebras who knew which doctors will happily put a jejunal feeding tube in someone who can maintain her weight with no GES proof necessary.
I think this is why all of Abby’s shit recently has been about legitimizing her “disabilities” through her Aerie campaigns and the media surrounding them, trying to get on disabled sport teams while Nicole has been our classic tube-chaser.
Point is, Abby's pain is actually real now and she doesn't know how to deal so now we know all those other times she complained of daily 9/10 pain were bullshit. And now that she has a real health complaint and Nicole is just whining about how school is haaaaaard, Abby is once again our more active and interesting twin.
Thank you for proving my point up in yonder spoiler. Abby has to see a new gyno because hers isn't in and she can't function. This new doctor does a quick exam and tells her nothing's wrong. They give her antibiotics as a placebo and she wonders if this is all in her head again.
The antibiotic makes her feel worse. Now she's vomiting all over the house.
And the dog she was going to adopt as her new service dog is "no longer a good fit."
She's so angry at Nicole she storms out of the house with any of her necessary mobility aids, just like a real disabled person! My headcannon is the dog is bad with small animals and Nicole's new collection of guinea pigs is the reason they can't get Abby's dog (which is good, because if the dog isn't okay with small animals it's not a fucking service dog prospect.)
Oh whoops, shouldn't have said that. Here's me in my accessory wheelchair for an Aerie ad. Suck it, all you people who can't choose to turn your disabilities off when you're having a poopy pants meltdown! Also laughing at her complaining about how much more difficult her classes are this semester at Liberty University Online than Georgia State.
She goes to the Center for Endometriosis Care in Atlanta. I don't know much about these doctors but you can check out their website here. Just a quick browse shows they aren't in network of any insurance and charge $500 an appointment and they seem to really push a proprietary surgery on everyone they see. This doctor says the fibroids are gone but she has severe endometriosis. She's also apartment hunting in Auburn, Alabama where her boyfriend lives. I wonder if Nicole's guinea pigs helped inform this decision.
She buys herself an AFO. It might not be exactly this one I found on Amazon but it's very similar. She admits that isn't a custom fitted AFO, just something she bought herself to see how she likes it before she tries to talk someone into prescribing her an ExoSym. ExoSym requires custom fitting and costs upwards of $9000 per foot according to the internet. Thanks to this cheap one she can jog again!
And with that, she signs up for a 5k.
No, not a wheelchair 5k. She ran and walked it.
She gets called out for it. She'll be using her wheelchair all week now because she's so so sore for running after not running for a very long time. "Two years ago I could hardly turn myself over in bed." No, that never happened.
Meanwhile Nicole is still prioritizing cutesy insta content, but at least the material is now diseases she has to study for her global health class.
Oop, she will be moving into a dorm in the fall when Abby moves to Auburn. This is the second time Nicole has bought small animals right before moving into a dorm. Last time she was a kid who wanted attention for having a ferret ESA but this time I kinda thinking this was a surprise to her, like Abby just came out of nowhere and was like "I'm moving to Auburn with my boyfriend, you need to find a new place to live."
At least she's running her feeds.
Never mind. It turns out being fed into your jejunum is not really that fun because your stomach is still empty and you don't even get to taste anything, so now she's drinking a giant smoothie and talking about how high her appetite is. "While I've never fought an eating disorder . . ." Never fought one. Embraced one, yes. Most doctors just brushed her off as anorexic during Tube Quest and it really hurt her feelings.
Three days after Abby's tantrum about people calling her out for running when most of her audience knows her as a wheelchair model, she's out running again but now saying she's going to try for pushrim racing instead.
Nicole is trying to be famous for being sick too. She and her dog get in a Gluten Free Living magazine piece about gluten detection. Claiming Pippi's Clever Hans gluten detection task is about 90% accurate. This publication appears to be geared mostly towards crunchies who claim gluten makes them feel all bloated and sluggish rather than actual celiacs.
It's rare disease day! Abby is now claiming she's had major EDS symptoms from age 11.
Nicole confirms my suspicion that she got diagnosed by going to Abby's geneticist and saying "i have the same symptoms and am her literal biological clone."
Abby is now trying to pushrim race. She has to quit because the track is just so bad and inaccessible with potholes. She's sad because this wasn't as easy as just running on her functioning legs is.
So the next day she says SCREW IT! and runs a 5k on her functioning legs. Your face being red immediately after a cardio workout is now POTS.
Yeah, $10 says the problem is that she thought pushrim racing was going to be easy and found out it isn't.
Hm. Do dorms allow ESAs? Because I feel like that's what she's setting up here. Rose in the comments.
Day after she posts that her bestie can’t use her right side because of MS, Nicole’s right side is in intense pain.
The twins turn 21. Nicole eats at their birthday dinner without complaining.
Tap is killing her. She's using the strongest Doterra oils she has and still hurts. It must be that EDS patients metabolize bullshit essential oils fast like they do opiates!
The pain is intense. Also she only hooks herself up to j-tube feedings on the weekend. Yeah that sounds legit to me.
Abby gets a FreeWheel to make wheelchair races better. They normally sell for $900 but that's okay because her followers paid for it.
She seems to think "accessible" means a track with no grade and perfectly smooth pavement only because anything else is too hard. Acknowledging the wheelchair is the wrong size for her. She was a little bigger when she got it but she also never got fitted for it.
She's changing the way she does things so people don't "harass" her, like putting her wheelchair together and transferring into it like a real wheelchair user instead of putting it in the hatch, getting out of her car, and walking around back to get it. People are so ableist and rude when they see her do that.
Not changing everything though. She goes to the beach and frolicks in the sand again, then goes shopping in a historic downtown and has to leave her chair home because none of the shops are wheelchair accessible.
She makes wheelchair gloves but can only go in a straight line with them.
her anti-plastic rhetoric ends where her fake illness starts. When it comes to legitimizing her "disabilities" plastic bottles of Doterra bullsht and Vitamin Water are vital life-saving tools, not plastic waste.
She uses her wheelchair so infrequently that a quick roll around the block takes everything out of her (but a morning jog was a-ok). She really thought wheelchair races were going to be a walk in the park and wasn't expecting them to be actual hard work huh?
She's trying to get endo surgery but she doesn't think insurance will cover it.
In the annals of "the Sams twins buy things to validate their fraudulent identities," Abby, having just finished her first virtual pushrim race, buys herself a new wheelchair and takes a bunch of track pics in her old one so everyone know's she's a serious pushrim racer. Insurance will not be paying for her new toy. Also notice her shirt in the first one is Auburn wheelchair basketball.
Nicole buys a scrub jacket with her name and 'Service Dog Pippi' embroidered on it and says it just feels right, like she's meant to be wearing this. I love that she sees nursing the same way she saw gender back in the day, as a costume she can try on and if she likes it that means she's a true and honest nurse.
Abby's wheelchair is HERE! It's another Quickie Qri. She lets us know she bought it on 1800wheelchair.com
So I built me a Quickie Qri on 1800wheelchair.com. Surprise, they do not require a prescription or any authorization from a doctor or anything to purchase this rigid lightweight wheelchair. I even put in a (fake) address and phone number and proceeded to payment and it never tried to stop me, a perfectly able-bodied person who has no need for this, from buying one for fun. No one is prescribing any of this shit for her. When she says "my AFO is ready" or "my wheelchair is being built" she means it's being shipped from whatever online shop she bought it from.
The happier Abby gets about moving out and moving on with her life, the more morose Nicole becomes.
Abby picks up the slack with tons of posts like this one, where it's obvious she's getting pushback for being so abled and is now saying that she can't do crossfit or run a marathon but you can't fly so it's all relative. She just pushes herself so hard to greatness in this sport she just started a month ago.
after training in her wheelchair on the track, she goes for a run. I want her neighbors to come to the thread and tell us what it was like to see this every day.
Once again, her symptoms disappear when there's a large body of water she can play in.
Still think she got the tingly weak legs things from Grandpa's real MS.
I love this comment about how her push mechanics are so much better now. Amongst the issues Abby had with the old chair and the fact that she never used it was she didn't know how to propel herself. It's a thing we see a lot with the wheelchair-for-show set. They make really inefficient movements that burn up a lot of their energy to move a short distance. Normally this is something you're either taught in rehab (as in after an accident) or learn by trial and error when you have to use it every day. But since Abby only used it for the 'gram and rare social outings before she decided pushrim racing was the best way to get attention, she's been doing it wrong for two years.
She'll be speaking at Marist college soon about her favorite topic: herself! But first she's doing a lot of HIIT workouts without her chair to prepare for another wheelchair race. Someone asks if her shoulders dislocate and no, she trained them not to. What skill!
She finishes her race because mommy came along and pushed her up all the hills.
Meanwhile, Nicole is still pulling Ds.
I love how every diverse and inclusive event or piece of art or advertising campaign about women features a mandatory black woman with vitiligo. Aerie flew Abby up to New York for this event.
Oh come on, like you didn't know this was coming. Tap class so badly degraded Nicole's connective tissue that she can no longer stand in the shower or walk comfortably because her SI joint is constantly dislocating now, so she buys herself a wheelchair too. It's also a Quickie Qri and I'd say it was just Abby's old one repainted but the brand decal isn't painted over.
Nicole mentions cystic fibrosis and doesn't tag Mary Frey. End of an era.
Yeah this dog has no idea what she's doing. She knows she gets a cookie if she sniffs and either paws or sits but she has no idea what she's "alerting" to. The first one she paws both but Nicole only rewards her for pawing the wheat one. The other she sniffs one and refuses to even approach the other until she's specifically told that's the one she should paw. Shades of Alexx and her amazing milk-sniffing dog who only knew that if he barked at a glass of milk presented to him, he got a cookie.
Abby does another race and they tell her it's a flat course. It's not and mommy isn't there to push her up the hard parts.
She finally gets a parasports team to accept her. Not only that, they lend her a sleek racing chair. She's going to crowdfund for an even more special kneeling racing chair soon because this one made her legs a little uncomfortable, so keep your eyes peeled for the gogibme!
She takes a little spill in the loaner while racing in the rain, tumbles backwards and cries. Frecklesthered in the comments is one of the Afrin patients who ended up with a spinal tumor and now she's for realzies paralyzed. She's a serious racer now and one of the reasons I 100% believe her injury is real is coming up soon!
GIB because i want to do this hobby but it's expensive and my regular chair isn't fast enough. Dead link.
Another semester of Bs and Cs for Nicole but she's proud of it because she has to work harder than anyone else to get these grades! Cs get Degrees I suppose.
Abby's still just sperging about racing but like, how does anyone believe her when she goes from the chair to doing HIIT and hikes without it? I guess she curates comments but I expect it to be full of "wow cheater" all the time regardless of her dumb excuses.
I just wanna point out that i_love_tz is their mom, who is once again in Tanzania. Her account is private so alas, no mom accidentally telling us what her kids are up to this time.
Nicole is in a terrible pain flare.
We learn she's transferring to Middle Georgia State University in Macon. At least this one has a nursing program! But she's worried because the campus is kind of hilly so her wheelchair will be inconvenient but her classes might be too far to walk. Too bad I can't afford that smartdrive cough cough
Going to the rheum, complaining that doctors don't believe her when she says she's in 12/10 pain because she looks fine. She needs IV fluids to break through this pain flare! Subtle body check.
Abby's back at the beach so she's fine.
Ahhh I love it. So when you are in a real competitive level of parasport instead of just the fun runs Abby's been doing, they don't just lump all the cripples in one big category and say "have fun kids!" They classify your disability so you compete with people who have similar degrees of disability. T54 is a "limb deficiency" classification where you have normal arm function, normal trunk control, and - and now this is important - very limited leg function. Comparable to someone with a low thoracic SCI, but it also includes people who have like above-knee amputees and other people who have no functional use of their meat-sticks but are fine above the waist. The other classifications of the same group (T51-T53) require even higher levels of disability with T51 having mild impairment in their shoulders and no trunk or leg function at all (so abilities comparable to a low cervical SCI). Abby doesn't qualify as T54 or anything else because her legs are fine and she proves it constantly. Practically screams it on social media. This means she can't do big invitational races like the New York and Boston marathons no matter how good she gets. But because the rule says she can have some function in her legs she's convinced this includes her because of fake problems, and it's just that they don't understand rare and special zebras like her that she's being discriminated against. The reason I believe that Red up there was telling the truth about the Afrin-induced tumor is she competes in the same invitational races Abby just got barred from.
Nicole goes to the rheumatologist and walks away with a booby prize fibro diagnosis. Her new gastroenterologist decides to take away her GJ and bring her back down to a G-tube only since she eats just fine. She's referred to speech pathology for a swallowing problem. She names her psych meds and they're regular old Buspar for anxiety and and Luvox, an SSRI antidepressant and anti-obsessional.
Abby is getting married!!
and broke her thumb
Nicole is finding the fellow spoonies on her new campus! SD chick is a T1D and the dog allegedly alerts. Other one is private but her profile pic is of her feeding tube.
Back home, Nicole swaps her GJ for a G. So you may wonder why she's so calm and seemingly excited about all this and I think the answer is because she's been gaining/maintaining weight and she doesn't like it.
She gets those dumb spoonie planners. Almost all her "medications" are useless doterra crap.
She almost immediately is losing weight, but blaming it on Luvox. Changing meds again. She's also waiting to hear about a big scary diagnosis she's getting tested for.
The scary diagnosis is Hashimoto's. Oh well, time for the annual beach trip where everyone's problems magically wash away into the sea for a week.
Suddenly Abby can't be on the beach longer than 20 minutes and is too weak to swim in the ocean. Oh brother.
Abby is very sick.
False alarm she's fine.
The girls have to move sooner than they thought. Abby will be living in an apartment down the street from her fiance because good christian girls don't cohabitate with their SO until marriage.
But moving also means giving up her racing team and more importantly, the chair they loaned her. She's also aging out of it since it's for kids. The oldest people on the team are 3-4 years younger than her.
They head home to live with the 'rents temporarily once again.
Abby almost immediately heads up to the Adirondacks again where she hikes into and out of a gorge. It Was Worth It!
She hiked a mountain with her accessory forearm crutches!!! What happened to the AFO and the knee brace and all that?
And some nice gentle kayaking.
Nicole is depressed.
But she wrote a book about holistic health.
It's as bad as you can imagine. Her diet plan is Creamy Delicious Kate Farms! And avoiding gluten, dairy, alcohol, caffeine, sugar, soy. . . Most of it appears to be a giant advertisement for Doterra.
But in her bio we get a little easter egg. She's studying healthcare administration. Cs may get degrees but they don't get you into nursing school.
Abby's home from the lake and then back off for another photo shoot. Busy busy.
Nicole does not like her effexor because she got her period even though she's on continuous birth control. Her period can last for MONTHS without it! The psych tells her to go to a gyno and when she chimps about how it's the Effexor causing it the option she's given is to go back on Luvox. Nicole demands another option and is told no.
But her stupid vanity essential oil book is out for sale and she might be able to get her Gtube out soon. I really don't understand her thing with the feeding tube. She wanted it so badly and now she can't wait to get rid of it. But I did notice she hasn't been with that goth chick she called her "tubestie" in a looong time.
Abby's home and getting ready to move to her new place.
Nicole starts Cymbalta.
She and her Doterra collection move to the dorm and another chick with a service dog lives above her. It's like they're all made on a production line.
Abby is still trying to get someone to do endo surgery on her and now complaining of a throat problem that a steroid course doesn't fix.
She moves to Auburn and starts her final year of college. The twins are once again separated, albeit by much less distance than last time. Macon to Auburn is only about 2 and a half hours.
Abby gets her new racing chair on Ebay
Nicole continues to follow a GP diet.
The twins don't even last a month before Nicole goes to Auburn for the weekend where they drink giant styrofoam buckets of lemonade.
Abby gets to be on a podcast about what it's like to be disabled
As soon as classes start Nicole is back to being an anxious ana-chan who can't eat.
And Abby is back to complaining about the sore throat. She goes to Urgent Care and is told it's probably a virus and go away now please. She also has to see a specialist in Atlanta for something.
She gets an endoscopy. The sore throat is from reflux.
Nicole gets around without her wheelchair that she bought and swore she needed. Now it's her turn to constantly bible at me.
she's now claiming to have C-PTSD and that it makes every traumatic situation amplified or something.
And Abby is just posting about training in her racer and being depressed all the time.
She shows off her latest modeling gig. This time she was a rent-a-cripple for a makeup ad that also included a tard, three brown people, and a man in eyeliner. Ads like this make me want to buy your product less. Not because i hate any individual demographic of human in this ad but just because it comes off so forced and fetishy.
Let's all take a moment to rejoice that Nicole did not get into nursing school and is going into a field where she is more capable of the work and less likely to kill someone if she fucks up.
Abby and her man go to Chattanooga for a few days. I wonder if they sleep in different beds when they travel.
She picks up a pet virus while she's there.
Both girls go up to the lake they used to have a house on to spend time with Momma Sams who just came home from Tanzania again. The house has been torn down and they reflect on their lost childhood.
Abby kept not finding the right dog to drag around for attention so she said to God that it was his turn to pick a puppy dog for her. And he did! She gets matched with a dog named Atlas from one of those dubious munchie "programs" like Myranda tried to start up, where they train a dog for a few weeks then ship them off as started prospects.
Unlike Maua who was already an adult and chill enough to take to the store right away (because Abby didn't understand her "alerts" were all the dog being anxious) Atlas is a puppy and it shows. He's full of energy, he steals things off tables, and generally acts like yanno. A puppy.
Of course, he's a natural alerter to her heart rate.
Here's all the things she says he's going to do. For a long time her whole account is just pics of her dog and explaining that she's blown away by his behavior and abilities, just like they have been with every other dog's behavior and abilities.
Nicole picks up the slack for us. She can't use her wheelchair because it makes her shoulders hurt but her insurance told her no power chair just because she's fully capable of walking. Also confirming they didn't cover the one she has, either.
She goes to the clinic for a fibro flare that's making her unable to function and after a long workup all they found was a UTI. She was sent home with NSAIDs and antibiotics.
Not pretending to be sick, pretending to be well. Why can't they see?
Goes to urgent care claiming her leg got swollen and painful to the touch after walking home from class. They send her to the ER to be checked for DVT. By the time she gets there her leg is no longer swollen if it ever was. They see she has EDS and Fibro diagnoses and no signs of a blood clot (and possibly the pit bull in the service dog vest) so they make her wait 7 hours for an ultrasound and bloodwork then ignore her some more. A nurse accuses her of lying because her leg is fine and she's acting fine and fucking around on social media, which makes her have chest pain and SOB that's totally not a panic attack. They make her wait even longer then tell her to go home and use a heat pad for her muscle cramp. Our girl is back. You know this is all because she wants a smart drive.
She's now doing the bangs shoe thing and still calling her athletic braces AFOs.
She and Abby spend fall break together.
Ahh now she's doing the thing! The thing where she says she doesn't use her wheelchair all the time because it's too gosh darned inconvenient so if you see her walking don't call her a faker! What I got from this was she hates living on campus because it means being on display at all times. Back in Athens she only had to play disabled for classes but now her classmates live with her so if she even gets up to piss without her chair she swears she needs, they want to know why.
Pain management, told all they can do is raise her Cymbalta. She can't drive, she hates not being able to walk where she needs to go because it's too far in Macon.
Abby's dog alerts to fevers now.
These are called hypnic jerks. They're totally normal and happen to most people at least once or twice, some much more often.
Predictably, the twins keep making excuses to visit each other and complain about missing each other constantly while separated.
Abby's getting tested for celiac now. The skinwalkee becomes the skinwalker.
She has a migraine for days but it doesn't slow down her instagram use or her sewing hobby.
She gets a steroid shot. this other munchie asks her why she can get steroids if she has EDS because steroids fuck your collagen up. Abby says it was a different kind of steroid and her doctor made sure it was safe for EDS, not like prednisone that made her .. sick to her stomach?
anyway point is Abby is bored so shes back to claiming forever long migraines that don't respond to meds. The new ones wear off right away and she's right back where she started.
All of this leading up to two ER trips during Christmas to make sure everyone was paying attention to Abby now.
And back to saying she's scared of not knowing what's wrong and needs answers again like those seven years she claims she was showing signs of EDS.
At the end of the year she says 2019 her health has been at its worst this year and she's needed her wheelchair more than ever. MY FRIEND. You've used it more than ever because you picked up and promptly got bored of wheelchair racing. FTR her excuse for giving it up is it's too cold to train because the cold puts her heart under additional stress, but she's going to start when the weather improves. But she also complained about not liking the tracks in Auburn and not finding anywhere she could ride on the streets
Nicole wraps the year up by finally admitting out loud that she changed her major (it wasn't that she couldn't get into nursing school! she just knew she couldn't do 12 hour shifts even in a wheelchair!) She also saying she likes the school but she hates the drama, confirming for me that her adjustable disabilities and the constant scrutiny she gets from living with her classmates instead of another munchie is why she's so miserable.
If you're wondering what happened to the guinea pigs, join the club. They just vanished a few months before they left Athens and are never mentioned again. I swore I saw a post about rehoming them but fuck me if I can find it now.
So our twins are on their own again. Nicole hates living in the dorms part 2 while Abby works hard to legitimize herself as the local celebrity cripple in her new town while preparing for her wedding. What will surprises covid and quarantine hold for our twin study?
(Tech mong question: is there a way to link to other posts on the site such that the URL redirects to reflect which one you're visiting from? Like so that it would automatically select the kiwifarms.st URL for clearnet users and the .onion for Tor users? All the recent posts I've made have linked through .pl links that obviously do not work anymore and I can't edit the posts.)
edit: shit so i guess because I built this as a draft on the .pl last night and then posted it on the .st today, all the attachments are directing to kiwifarms.pl if you try to expand.
edit2: apparently a sitewide issue. If you're on browser you can open them in a new tab and turn .pl to .st in the url bar to load full size.
(Tech mong question: is there a way to link to other posts on the site such that the URL redirects to reflect which one you're visiting from? Like so that it would automatically select the kiwifarms.st URL for clearnet users and the .onion for Tor users? All the recent posts I've made have linked through .pl links that obviously do not work anymore and I can't edit the posts.)
Relative links are your friend. In the URL field, delete everything before /threads. By way of example, the link below should take you to page 836 of this thread.
Relative links are your friend. In the URL field, delete everything before /threads. By way of example, the link below should take you to page 836 of this thread.
Thank you so much, I really appreciate it. I'd seen someone mention this was possible in another thread but promptly forgot where I saw it and without a term for the concept google wasn't much help. The links in the last post should work now and I'll use that from now on.
Which disability causes both twins to be unable to proofread?
Nicole is a codependent, anxiety-ridden mess. Abby is so self-centered that she has a vortex where a personality should be. And the attempts to muscle her way into parasports are particularly loathsome. She forced her way onto a racing team for kids. No shame. None.
doTERRA isn't technically a Christian company, but all (or most) of the higher-ups are Mormon. It might not be technically Christian . . . but it's Christian. It's an MLM of choice for religious women. I'm not surprised that Nicole's mom-- and then Nicole-- are into it.
I do wonder if Abby really might have endometriosis, though-- and I could also believe that Nicole does. She doesn't have a diagnosis because she hasn't had surgery, and endometriosis is diagnosed with surgery (usually laparoscopic, just an outpatient thing) rather than with imaging or other tests. She might be correct in saying she has endometriosis symptoms, but she's jumping the gun when it comes to hashtagging "endo warrior." Still, though, both complain of symptoms that could feasibly be endometriosis: pain, long periods, cramps. And both seems to be (or have been on) hormonal birth control.
Abby talked her way out of the most effective first-line treatment for endometriosis when she went to the doctor and said that her "tumor medicine" gave her chest pain and shortness of breath. Hinting at a blood clot is the fastest way to get yourself kicked off any medicine that involves estrogen. She didn't specifically say she was on birth control, but, reading between the lines, it seems pretty certain that she was. I guess she just didn't want to state it outright in case her conservative audience had questions about why she was taking the pill.
As a side note, it's also interesting to see that Nicole later ends up in the ER claiming clot symptoms. Those two must pass diagnosis notes back and forth like cheat sheets.
That Center for Endometriosis Care is a really interesting thing. As KFS said above, it doesn't take insurance at all. And, as with some of our other prescription-happy doctors, you have to sign an NDA. The doctor says he has a proprietary surgical method that works much better than the standard laparoscopic procedure. It will come as no shock to hear that his claim isn't actually supported.; I did a lot of digging ages ago, but I unfortunately didn't save any of what I found (I will go spelunking again if it's relevant, though). My impression is that he operates on the Trevino model, except for endometriosis: if you can pay, you can get the surgery-- namely, his special surgery that is so special no one else performs it this way. His patients rave about how well they were treated, how they felt "heard"-- all the stuff we've heard over and over in this thread, just from a different doctor.
The doctor was correct to refuse Abby pain meds. That's not an appropriate treatment, and she's really received the appropriate treatments so far-- hormonal birth control, NSAIDs, heating pads. I do kind of wonder why she hasn't been able to get the laparoscopic procedure yet. I get the sense that her pelvic pain is real, simply because it actually seems to sideline her (unlike her "EDS). She mentioned anemia in passing in one of the posts in the latest installment, and that can come from the heavy periods. She and Nicole seem to have a lot of insurance-related trouble, so maybe that's why? In a related question, why are they apparently not on their parents' insurance?
In conclusion, these two should reply to their grandmother when she comments on their posts, even if she comments on every single one. She's your grandma. Have some respect.
Nicole could have stayed at UGA for nursing. They don't directly have a nursing program but they have a partnership program with Augusta State Medical that allows you to complete your pre-req's at UGA but transfer into Augusta's program at the Athens satellite campus to finish your degree. They also have a well regarded healthcare admin program if that was the new goal.
But none of that matters because with those grades - she definitely lost the HOPE scholarship. The tiny school she transferred to costs less than tuition alone at UGA even with room and board. I'm guessing mom said she'd have to take out student loans if she wanted to stay at the big school. This girl munched her way out of free school at a good university and didn't even get a modeling campaign to show for it.
Jaye is back in a wheelchair on the main dog "training" account after doing a heavy workout two weeks ago on his personal account.
Or maybe that is Elias in the wheelchair still. I don't know which dog belongs to which munchie. Elias's blazinmaze account is tagged in the top corner so maybe it is him, still in a wheelchair after getting paralyzed on purpose. It is still private, but still actively posting, with very limited followers.
I know this is a retarded post. But I've always wondered what they did with their pictures as it never looked like high contrast or saturation buggery to me.
I found out, they use the "dehaze" in Photoshop, you can make your perfectly healthy skin look like you have all sorts of shit going on.
I know this is a retarded post. But I've always wondered what they did with their pictures as it never looked like high contrast or saturation buggery to me.
I found out, they use the "dehaze" in Photoshop, you can make your perfectly healthy skin look like you have all sorts of shit going on.
Oh shit that's wild. That would really explain it. Both of them have shown they're into photography and editing photos (like Nicole's harry potter levitation photos) so they have access to photoshop or some other reasonably powerful editing software. And it explains how they get their skin to look terrible without making the background look like technicolor vomit.
Welp. Long-time mystery solved. Thank you citizen.
I can't find it but I read an interesting paper about people with both epilepsy and PNES. I think it focused on youth too and more absence seizures than grand mal. Even in non-BPD populations, the idea that "yes you really have epilepsy, but also some of the time it's 'in your head'" is hard to grasp both just logically and psychologically/ego-wise for a twelve year old. They found that a percentage of the epileptic kids basically lied about having seizures when they didn't have a seizure: to get out of things, for attention, or as a general anxiety response. It has real-world implications because confusing PNES for more seizures might mean upping or changing medication in someone who doesn't need it.
Another interesting population that I read about developing PNES are first responders having psychogenic reactions to substances they falsely believe they've been exposed to.
You can probably see videos of it online that often make it into the news cycle too: A cop just TOUCHES a ziploc bag that contained two specks of fentanyl, then immediately collapses, and they narcan the fuck out of him. It's really a panic attack/fainting spell.
But in this case in the study, the cop developed a real disorder after an experience like that, where he continued to have these weird fainting/shaking spells even after the "overdose" which couldn't have been an overdose. He was relieved when they told him it was psychogenic and treatable, because he thought he was fucked and his career was over.
I know it's easy to think psychogenic conditions only happen to cluster B manipulative bitches, but really it's just that they often actively enjoy such things and make them purposefully more visible and can be basically impossible to treat. Psychogenic conditions are also common in cluster C anxious types but they tend to not want attention, not be proud, and not loudly seek treatment, or get misdiagnosed with physical illnesses.
I truly think I've found a crazy spoonie in the wild in an obscure forum I haunt, but it wouldn't really be entertaining to anyone else, because they keep it just vague enough, and also don't post pictures, nor beg for money.... from the forum at least.
Every time someone tells me their "parents don't accept them using mobility aides" it's a terrible red flag in my head. I just can't imagine a situation where even an eeeeevil parent would say "Broke your leg? I don't ACCEPT you needing a cast!"
It just always sounds like, instead of a doctor saying they need a cast, boot, whatever, they're buying this shit off Amazon, and when it arrives, Mom says "why the hell do you think you need a pink rollator?" And if it's something simpler like a drugstore compression knee brace- what 20-something goes around calling that a "mobility device?"
Also bragging about how normal doctors don't even know or understand her condition, so she need to take expensive trips to see expensive specialist doctors, with specialist machines- and when she brings her test results to normal doctors, the normal doctors are so very shocked and surprised!- "We don't even run these tests!"
The nail in the coffin is that the forum has jack shit to do with health or anything. She has been detailing a long, dramatic decsent into permanent disability, as her uber rare conditions kick in.... I honestly think it's a young 20-something I've been watching get enough freedom at home that she started buying herself medical gizmos and larping as a hospital princess because mom can't stop her anymore. I'm 90% sure it's MCAS and EDS she's claiming. Based on all the familier turns of phrase.
I don't think I would have recognized these red flags without having read this thread. And it matters because she has run several GoFundMes (not shared with the forum though), and without this thread I probably would have donated without a suspicion if she did link it on the forum. Money that will not fix what ails her.
I know this is a retarded post. But I've always wondered what they did with their pictures as it never looked like high contrast or saturation buggery to me.
I found out, they use the "dehaze" in Photoshop, you can make your perfectly healthy skin look like you have all sorts of shit going on.
I worried that some of the more two-faced types who read the forums, like anachans, will learn from this post.... but for every potentional ana-chan who mimics this, there's probably at least 100 lurkers who now know the trick!
I know this is a retarded post. But I've always wondered what they did with their pictures as it never looked like high contrast or saturation buggery to me.
I found out, they use the "dehaze" in Photoshop, you can make your perfectly healthy skin look like you have all sorts of shit going on.
If you have even a passing familiarity with PS/Lightroom etc you can alter a single part of the photo, or "mask" elements. Essentially, using the example above, you highlight the hand and arm and can tweak it to infinity without touching the rest of the image. Dehaze is great for bringing out striations. I use it with clouds/sky to give depth/shadows/drama in a completely blah skyscape. The hills/sand whatever look normal. You've given a perfect example in human form.
I worried that some of the more two-faced types who read the forums, like anachans, will learn from this post.... but for every potentional ana-chan who mimics this, there's probably at least 100 lurkers who now know the trick!
My general stance is if we can reverse engineer it with a google search they can figure it out in the first place, and once we know then it becomes funny every goddamned time you see it.
My general stance is if we can reverse engineer it with a google search they can figure it out in the first place, and once we know then it becomes funny every goddamned time you see it.
Yeah I thought it was such a simple method of fucking up things, you just toggle a bar in an app and there it is. It's not like the things some do with medications and other unholy shit to make yourself seem sicker than you are. So I had to share it.
Edit: The British "deaf blind going to be a doctor", Alexandra is quite dependant on it.
It's fucking hilarious to look at when you know about this.