Community Munchausen's by Internet (Malingerers, Munchies, Spoonies, etc) - Feigning Illnesses for Attention

Well this is a bit timely. Another Trevino patient with a golden retriever who tried to outrun her sexual orientation via surgery has dropped the act. After years of denying her crippling trans regret, Shelby Lynn Logsdon has quietly changed her bio pronouns to she/they and started to refer to herself as "a girl named Julian" in posts.
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"do you mind if I ask why you've stopped wearing a mask?"
Oh her comments sections are like a freerange mental institution. I can only handle reading like 15 minutes of them before I want to put my head in a microwave.
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Whatever you do DO NOT CLICK ON HER WIFE'S PROFILE. She has taken up pole dancing and I cannot unsee what I have seen.
 
Dani has been crushing up pills and injecting them in her line. I guarantee it.
Iirc she had a bit of a saga not that long ago talking about how rough the withdrawals from pain meds were, and I could swear she was even admitting to an addiction at one point in time. Dani got boring for me quickly and I have not been keeping up with specifics for a while, so this is an interesting change of pace!
 
Somehow i missed Cheyenne dying? God damn. I sorta liked her only for the fact that she munched into needing a fuckin organ transplant
IDK what the last update you got about her was. She got her organs (liver, stomach, intestines, pancreas) and had a ton of complications. Graft v. host, infections, pleural effusion, her internal sutures failed. Sounded like the final nail in the coffin was that her autoimmune liver thing reactivated under all the stress and was attacking the donor liver. She was supposed to start IVIG to try to get things under control but didn't make it that far. Here's where she described all the problems she was having after the transplant and here's where she died.
 
Kate farms, I'm so glad you changed the format of your posts.
I'm on tor and I've avoided your post for as long as I could stand it because it drove me crazy to get things to load. Thank you!

Edit, I've always caved in because I love your timelines
I honestly just feel bad that I never thought of it before. Someone very nicely DMed me to ask and I'm glad it's working out.
 
It just takes one strain of bacteria that's resistant to the antibiotics and its ove
what's really fun is if you get multiple strains with different anti microbial resistances, the domanint strain can vary over time depending on what antibiotics are administered but the infection itself won't shift. i think this happens more in imunocompromised people who have had multiple previous infections, dani certainly fits the latter.

one thing Dani's recent saga made me wonder, is there anything that can cause someone not to be a candidate for antibiotics of last resort? i just feel like someone like her would be a great vector for spreading colistin resistance, her doctors must know that, so can they deny her? n.b. no idea if colistin would work against her specific bacteria, just an example, not a dr etc.
 
Antibiotics are generally low risk, but not no risk - especially the hardcore ones these girls need.
The risk is to the rest of us, the dilettantes who only need an antibiotic now and then.

Sepsis lifestylers are getting their personal flora colonies as resistant as possible to as many antibiotics as possible, and then going to Disneyland and rubbing their tubes all over everything.
 
The risk is to the rest of us, the dilettantes who only need an antibiotic now and then.

Sepsis lifestylers are getting their personal flora colonies as resistant as possible to as many antibiotics as possible, and then going to Disneyland and rubbing their tubes all over everything.
Kid with cancer goes to Disney as part of the make a wish thing. Catches super sepsis from munchie.
 
Kid with cancer goes to Disney as part of the make a wish thing. Catches super sepsis from munchie.
True story: Last time I was at Disney (late 2021) the parks were so crowded that the wait for one of the rides was over 6 hours long and they were blocking off parts of the walkways to accommodate the queue. Everywhere you went there was a 200+ person mob of Brazilians running like a bunch of retarded kamikaze pilots with no regard for the people in their path. The place was filthy like I've never seen before in four decades of regular visits. Almost every bathroom I entered I had to navigate a minefield of discarded menstrual products overflowing out of bins. Because it was still partial covid restrictions, all the parks and most of the on-site entertainment venues closed early except for EPCOT which stayed open for Food and Wine, so that's where all those people went at night.

Within the same 10 minute span I saw two things: some Trevino munchies I recognized milling around with their service dogs, and a frail old woman in a rented wheelchair. She looked like she was in her 80s, 100 lbs soaking wet. Her family had just bought her something to eat and she was taking off her covid mask when I saw the big "I'm Celebrating!" button she had pinned to her shirt.

"I'm Celebrating: my lung transplant."
 
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Sepsis lifestylers are getting their personal flora colonies as resistant as possible to as many antibiotics as possible, and then going to Disneyland and rubbing their tubes all over everything.
They’re getting on the water rides with the super-resistant C. diff shits
 
here's a fun reddit thread

What diagnosis do you find hard to take seriously? in r/residency
Bit of a confusing title, but when I was a student in psychiatry, I saw a LOT of people with bipolar type 2. The less severe and more subjective sister of the classic BP type 1. I understand it is a formal diagnosis.
HOWEVER, from my experience with a lot of the patients who had it, it seemed to me that their mental health issues were more manifestation of a mix of social deprivation, stress, difficult personalities and possible EUPD/BPD. Some people just loved the diagnosis because it could be used as an "excuse" for unusual behaviour/problems dealing with all the horrible shit in life. It also comes with more empathy from healthcare professionals, as opposed to the stigma from things like EUPD or being an "emotional patient".
It was also nicer for health professionals, because it is easier do give someone a functional diagnosis instead of continuing with repeated invasive and potentially harmful scans/test
A few other examples I can think of are fibromyalgia, POTS and dysautonomia. To a lesser degree also IBS.
So, anyone else?

redditors are seething in r/lyme r/IBS r/MCAS r/HistamineIntolerance r/CFS and r/SIBO

some choice comments recovered via reveddit

I saw a patient the other day that had POTS, CRPS, EDS, mast cell activation disorder, and fibromyalgia in their problem list. They were like the final boss of patients I don’t want to deal with in the emergency room.
Edit: it appears I have angered the cluster B/chronic pain crowd that now frequents this and many other medicine subreddits
Should’ve asked them for their Instagram account where they meticulously document all their #spoonie #warrior illnesses, they’re absolutely guaranteed to have one with that lineup.
Edit - lol I'm not a doctor either, malingerer brigade. And I'm also not perfectly healthy, I've had health issues from birth. I have also been harmed very badly in my life by online chronic illness communities that egg on people with anxiety disorders to think that we're actually physically sick, that a chronic illness means you can't live a normal life, and that you can't trust doctors telling you you're not sick, that's why I have issues with you.
I rarely downvote or argue or name-call on reddit, but...
YOU ALL FUCKING SUCK
People with these "problem lists" are HUMAN BEINGS who are in PAIN.
You are supposed to be DOCTORS. You are supposed to LISTEN and TREAT patients, right?
While you may not understand what a person is going through, discounting it simply because YOU do not UNDERSTAND is incredibly UNPROFESSIONAL and MALIGNANT.
Have some compassion, maybe? Have some empathy? I guarantee if you lived a day in my shoes, you'd be in the ER with a "problem list" demanding treatment.
How fucking dare you.
Edit: Yes, downvote the shit out of this comment, instead of looking at your own behavior. To the person who posted the parent comment, I do apologize, as you seem at least benign. Your colleagues represented in the rest of this thread, however, are not.
Too bad it's YOUR FUCKING JOB! Deal with it or quit.
If you're in residency, you're probably hurting and exhausted, too, so you of all people should understand. Imagine that exhaustion and pain, but multiplied many times by itself, and with no ability to take a vacation from it and no paycheck. Learn to empathize with your patients or leave the profession forever. Sincerely.
Bet you feel silly having spent all that time in school, only to piss and moan on Reddit about the people you are supposed to be helping. Goober.
on POTS
Personally I would be way more willing to believe this was a real thing if 99% of the people carrying the label weren't massively deconditioned weenies with anxiety. Perhaps it's one of those things where there's a very occasional patient with organic pathology surrounded by many functional nothingburgers, but I generally tend to think that a ... [couldn't recover]
I suspect that we will eventually come to understand stuff like functional GI disorders and nociplastic chronic pain syndromes as largely having similar pathogenesis to mood and anxiety disorders, i.e. maladaptive neuroplasticity leading to central sensitization and inappropriate interpretation of benign stimuli.
I am a person with POTS and hEDS. I am someone who had a life time of chronic health problems that slowly worsened until all of the sudden I was so sick I was almost dropping out of law school. I was always sickly as a child, and it was the bane of my existence because I just wanted to be more normal. I love being active - I was a figure skater, a runner, and loved to play outside. But I had dislocations and breaks, tears and sprains, cartilage degeneration, and fainting. I have a history of anxiety and depression. But the funny thing is, the mental health problems are managed with an SSRI and have been for years, but the physical symptoms persist. I’m 27 years old and I have multiple surgeries on my joints, dislocated shoulders and elbows and knee caps, and tears in both the labrum of my hips. I finally started taking a low dose of medication for chronic pain a year ago, after suffering for years because I didn’t want to load up on pills. I have just been prescribed a third medication to manage my POTS because it has been unresponsive to beta blockers and Florinef alone. I have multiple positive ANA blood tests, but in my province it takes years to see a rheumatologist. I’m waiting to go to the connective tissue clinic for hEDS management after being diagnosed by a specialist and it’s the same problem - years long wait times. I want nothing more than to be ‘normal.’ I have lost opportunities, life experiences, and friends because of my health.
And after saying all of that, I want you all to know that I am so grateful that I have never had any of you as my doctors. You are apathetic to patient suffering from these conditions. Doctors want to believe that they are the only ones who know how to research, how to evaluate clinical criteria that are widely available online, and that only they can properly diagnose a patient and therefore they can disregard other doctors formal diagnosis’. Evaluate a patient, take a family and personal medical history, refer out of its not your area of expertise, and believe patients when they tell you that they are suffering. Because most of us just want an answer and for someone to help us.
Truly incredible to see the sheer amount of recognized, celebrated stigma in this thread, but congratulations you take the cake. Way to continue to prove to patients you don't care about them or their concerns.
The longer I practice medicine (and experience life tbh) the more I believe this. I just wish we could get people to understand that this is a "real" disease mechanism and not just doctors dismissing them with "it's all in your head". There is so much harmful woo woo bullshit surrounding all of these disorders. It pains me every time I come across a social media post from one of those "POTS warriors" who has leaned so far into the belief that their disease is unmodifiable and the best thing to do is avoid any physical activity that they're wheelchair dependent with the exercise capacity of a 90yo.
I have POTS and IST and made the mistake of telling the POTS community that my symptoms have almost disappeared losing 65lbs and exercising 4-5 times a week. A lot of people were like “how can you even get up in the morning” “don’t you know this is a lifetime disability and I’ll never be able to stand up without fainting” and I got banned from the Reddit group because I shared my experience. Apparently people don’t like it when doctors tell them exercising and losing weight will actually help, and seeing someone’s story that proves a doctors recommendations is absurd. I think a lot of people play victim with the diagnosis for sure. I guess my symptoms are mild, they were very severe with pregnancy though.
Does anyone know why this has happened?
I just got snapped at yesterday in my nursing school clinical debrief for mentioning that it is a common diagnosis on “sickstagram”. I was pretty mild and didn’t even go into munchausens by internet- and was heavily admonished by my teacher for even suggesting it.
What I didn’t mention to said Professor is that I was diagnosed with POTS 8 years ago and quickly learned to stay off of the internet, avoid all support groups, chronic illness “communities”, and the majority of others I met with the same diagnosis. Many that I’ve met actively tried to convince me that my life was over and that I was somehow disabled, or that my diagnosis is wrong because I exercise and have a job.
Idk. I workout, drink water, eat hella salt + a healthy diet, take my meds on time, and live my life happily and quietly and as normally as I can. That’s the whole goal, and one I feel like I’ve accomplished. Yet, I worry and work to avoid ever telling people that I have POTS because of the extremely understandable judgmental and skeptical reaction.
I have a theory that it also is like this new iteration of “swooning” or faint delicate flower vibes of the Victorian era. This is based only off of my personal interactions with people faking or exaggerating a POTS diagnosis.
Sometimes though I think people have a very mild form, that probably wouldn’t ever be noticed but have many other lifestyle factors that are pure shit, and do not want to do anything to fix them. Oddly, they latch onto the POTS diagnosis as the reason they can’t improve those things.
Ehlers Danlos - it seems to be the diagnosis du jour on tick tock. See lots of it in the same patients as fibromyalgia/pots.
I'm not saying EDS doesn't exist. I'm just saying when a patient tells me they have it, I'm skeptical and go looking for proof.
I can mostly take any single diagnosis realitively seriously, but my alarm clock stars ringing when same patient has multiple similar, rare or "trendy" diagnoses. ADHD (for example) still is a real disorder even if it is also a trendy self-diagnosis. But when that same person has ADHD, ASD, Tourettes, Ehler-Dahlson, Fibromyalgia, anxiety, depression, allergy to everything, CRPS, chronic need for iv ferritin and totally massive hypothyroidism even when labs are completely fine, something just doesn't add up. These challenging diagnoses always seem to pile up on same people.
on chronic fatigue
I think this is an appropriate moment to ask the patient "what do you hope to achieve from this appointment?"
Ultimately managing something chronic fatigue requires a lot of buy in from the patient, which is challenging when there's such a strong element of mental deconditioning in this population.
mental deconditioning is such an elegant way of calling people weenies
gastroparesis
Why does everyone think they have gastroparesis?
Gastroparesis but BMI of 60. Yea. Doesn’t seem like it’s affecting you much
Have y'all seen the "fed through her heart" lady popping up on reddit? It’s a video of a woman with a central line who is receiving TPN for nutrition. Seemed sketchy so I googled her. Her youtube channel says she has gastroparesis and can’t tolerate an oral diet… Could certainly be wrong but it seems like the internet is glorifying someone with an eating disorder.
There’s quite a few of those who regularly post on TikTok. They all have ports and/or central lines. Young. All have POTS, EDS, MCAS, gastroparesis (I’ve heard them say it’s caused by EDS).
Fibro, MCAS. I’m not saying it doesn’t exist or that no one in the world has it, just that almost everyone I’ve seen who claims to have either of those also has concomitant poorly managed mental illness that they refuse to address and any attempt to do so is met with an angry rant about how their “disease” isn’t being taken seriously.
You do realize every “doctor” here vilifying patients with disorders or illnesses more commonly diagnosed in women (see me/cfs, POTS, fibromyalgia, etc.) is just perpetuating medical misogyny? You are not subtle. Gaslighting your young female patients and calling them crazy? Might as well just diagnose them with hysteria and lock them up at that point right? Every single doctor on this thread is absolutely negligent, vile, and a horrible human being. I shudder to think of the harm you are all doing to your patients. You are a disgrace and a waste of space. As someone with ME/CFS, Autism, POTS, just some of the VERY REAL conditions mentioned in this thread, this had me reliving all my very worst medical trauma from years of dismissal and mistreatment from awful doctors in league with you all here. Congratulations on perpetuating all the worst aspects of our medical system and oppressing your patients. The power dynamic inherent in the patient doctor relationship alone gives you SO MUCH power to change someone’s life, and you have all clearly chosen to use that power for evil. To degrade and mock people who are SICK AND VULNERABLE coming to you for help is beyond the pale. This really confirms all my horrific experiences, so thank you for revealing yourselves to be the predatory, disgusting people you are. I hope you all have a horrible life and who knows, with the pandemic ongoing, maybe just maybe you’ll get ME/CFS too and can suffer just like the patients you despise, you probably don’t wear masks either so there’s good chances there!
Honestly- this thread is disgusting.
As someone with confirmed EDS (with all the related issues you all seem to laugh at), I find this disturbing af. People like some of y’all are exactly the reason I nearly died of cardiac arrest at 29 years told. I’m literally just trying to live my life, dude. And y’all literally make my already difficult experience 200x harder.
Luckily, most of my doctors don’t bat an eye at my diagnosis once I touch my forearm with my thumb, bend my knees backwards, touch my palms flat to the ground, show them the pastules in my heels, high pallets, dental crowding, documented tachycardia, atrophic scarring…. But going through the diagnostic criteria EVERY. SINGLE. APPOINTMENT. You attend just to “validate” your diagnosis that’s already been validated by 10+ other medical professionals is just absolutely demoralizing. Just because something is “rare” doesn’t mean you’ll never see it. 2% of the world population is still 140+ million people… that’s a lot of people.
Even though an illness is not yet well understood doesn’t make the experience less humiliating or excruciating to someone LIVING with the disease. I’m 29 years old and I’ve got about a 60/40 change every single day getting out of bed that I will be able to walk unassisted today. I’ve literally been referred to several medical universities by my doctors because they are actually excited for the potential that allowing myself to be studied could bring forth for the medical community. I’m 100% committed to donating my body to researching these invisible illnesses for the rest of my life and creating a supportive, compassionate community for people like myself - who have been shunned, ridiculed, humiliated and mocked for 30 years by the people who took an oath to help them. All these people want is to feel better and all we seem to get is hate. Then you wonder why we all have PTSD, anxiety, depression…. Wouldn’t you if you were in terrible pain and nobody believed you?
I am not even religious, but I pray to God that none of you ever develop or have to deal with the symptoms that your patients do on a daily basis…. And if/when you do, I certainly hope y’all don’t visit one another or you’re in for a rude awakening… Smh
Lets entertain that what you're saying is right and POTS, MCAS, and EDS aren't real diagnoses. That they're psychosomatic (I don't believe this, but let's go with it).
Most often the cause of psychosomatic disorders like conversion disorder (which was taken out of the DSM V) is severe psychological trauma that has not been adequately recognized or treated.
Childhood trauma literally causes physical brain changes, nervous system changes, and sometimes brain or nervous system damage. This has peer reviewed evidence behind it. These kinds of changes can and do affect epigenetics that get passed down to children and affect gene expression, and the immune system.
Medications often just control symptoms but not the cause of them, and most of the therapy that is recommended to treat PTSD (CBT, DBT, medications, breathing exercises, positive thinking, mindfulness) have peer reviewed research that it doesn't help patients that have complex PTSD, or cPTSD. They require different treatment than your average trauma patient.
I'm seeing a lot of people who need to read The Body Keeps the Score by Bessel Van Der Kolk, the premiere trauma specialist in the US who tried to get cPTSD on the map here and into the DSM using peer reviewed research and was denied multiple times. He has a lot of history behind his research and has successfully treated patients with the symptoms you describe, here - and he doesn't do it by scoffing at them and telling them to look in the mirror and take responsibility for themselves. I'm giving it a 3rd read right now and its very illuminating.
The psych nurses here diagnosing people with "weenie disorders" are what is wrong with inpatient psych departments. You have no business treating vulnerable patients if you just think patients are weak.
Its this what you guys vent about? Seriously? That you had a complex or difficult patient? Send them to someone else who can and wants to care for them, because you're not going to help them- you are going to further traumatize them and make them worse. And if it turns out they do have a serious illness that would benefit from treatment - do you really want that kind of liability on your hands?
Even if the disorder is psychosomatic - empathy is important in medicine. First, do no harm. Isnt that the mantra you're supposed to live by? Seeing a lot of harm done, in this thread.
Not to mention that chronic stress can cause immune system problems and physiological changes because excess cortisol expression with nowhere to take it wreaks havoc on the body long term.
But, what do I know? I only spent two years diving into peer reviewed literature to discover that we know very little about how the immune system works or reacts to stress, that some of these disorders are new and not fully researched.
And I had to do this because my doctors had attitudes like you do. I put the puzzle pieces together of cyclical vomiting episodes, rashes over my entire body, weakness, pain, swelling, nerve problems, flare ups - symptoms lining up since my childhood, because no one else took me seriously, and I could never get in soon enough to show doctors my symptoms. I had a lot of specialists looking at a piece of the elephant but not seeing the full picture, and my PCP never wanted to do that, themselves. Too complex, too much history, heavy patient load, no time.
You know my gallbladder almost exploded inside of me because every doctor I interacted with for 3 years wouldn't run tests on me because I was fat? They just told me I had GERD? If I had listened to them and given up, I could have had a serious problem.
My last doctor told me I could have a promising career as an internist if I wanted to pursue it.
But yeah, it's just anxiety, I have "weenie disorder" cause I watched some TikTok videos, haha~

apologies if editing is shit, i am very very tired. someone smarter than me please archive
 
redditors are seething in r/lyme r/IBS r/MCAS r/HistamineIntolerance r/CFS and r/SIBO

some choice comments recovered via reveddit

Inb4 all the eds/gastroparesis/nb/pots/me/cfs/adhd/bpd/asd/service dog lurkers barge in to say "ackshully my diagnosed are totes legit, my life coach diagnosed them with a pendulum, and these fakers make it really hard for real sufferers to get clicks 'n views. Anyhoo, gotta get ready to go live from Disney on my TikTwitchaTubeGram to fundraise for my very necessary power wheelchair and rescue pibble self trained service dog. Wanna see me do a cartwheel while drinking a 48 ounce frappuchino with all my toobs dangling out of my clothes?" #spoons #chronicillness #ivdilaudid #thinkunicornsnotzebras
 
I think this is an appropriate moment to ask the patient "what do you hope to achieve from this appointment?"
Ultimately managing something chronic fatigue requires a lot of buy in from the patient, which is challenging when there's such a strong element of mental deconditioning in this population.
mental deconditioning is such an elegant way of calling people weenies
Lol, I'm stealing this from now on.
 
They are 100% right and I love the term "mental deconditioning". It's the reality of personality disorders as well: they aren't truly disorders or purely trauma responses, they are impulsive, habitual problems with the sensation of mild discomfort.

Deconditioning POTs, pain, and "EDS" has to be the most frustrating shit as a doctor. When they plop onto a wheelchair and make it worse, it's just.... holy shit. I talked to a person that pulled this shit, just got so fat and so deconditioned she insisted it MUST be illness, she MUST be in a wheelchair. Now she's a BMI near 60 and can't figure out why her limbs are going numb while literally not moving all day. She has run to the Mayo clinic and screams at pain doctors, and with test after medical test, proves NOTHING WRONG. Fuck, they don't even get a positive on a tilt table ... everything can be cured by standing up and putting down the fork, but they go to doctors as a fucking full time job.

Entirely dismissing POTs/dysautotomia and non self-induced is kind of dumb though, there's literally no reason dysfunction of this system cannot exist. It's like any other neurological system, but more complicated because of the direct interface with broader systems. That's like saying heart defects don't exist because most cardiac issues are behavioral or age dependant. They are just rarer.

But even in "genuine" POTs, exercise, fluids, and electrolytes are going to kick its ass.
 
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