I’m going to write the first part of this one in the order in which I found material rather than a strictly chronological ‘her oldest social media is. . .’ because I feel it enhances the overall experience if you see how the material came to me. It took me a long time to decide whether this one was a very creepy munchie, a munchausen-by-proxy case, a case of FND and denial, or a genuinely disabled young woman who was sheltered to the point of not understanding the outside world, and in any case, I wanted other people to see it. So I sent her to my research buddies who agreed something was definitely fucking weird and worth looking into.
Then I scrolled back to the beginning of her insta page and got to work. My formal intro to Jessica is in October 2018 when she’s dressed up like Snow White, wearing glasses that look like they’re sized for a child and sporting an unfortunate haircut that I’ve seen a lot of disabled kids get saddled with because it’s easier for their caretakers. You can kind of see that she’s in a high backed wheelchair with the head rest behind her. It also appears the dress has been cut in the back to fit her.
In the second post, we have toys, hello kitty, and an IV pole with a feeding tube pump. At this point I’m thinking some kind of birth injury or congenital disease that left her with major physical and moderate intellectual disability.
She really likes dolls, especially the American Girl collection, and has tons of them. Almost all of them are gifts or secondhand store/yard sale finds her family get for her. She plays with them, dresses them up, makes up little stories and acts them out.
Seizures. She also really likes stuffies and has a big collection of them, all with names and characters
“when I could draw, before the seizures took it away.” Okay, so at one point she had some artistic talent but because of seizures that’s gone out the window. I think that makes sense, yanno, epilepsy and/or the treatment thereof can fuck up fine motor skills and Jessica can’t draw anymore as a result, we’re cool.
These people are.. odd. In addition to just the epilepsy it sounds like Jessica was sheltered as all hell. Just from little bits and bobs she’s said, they seem to live in the middle of fuck nowhere. Super Christian. Jessica was homeschooled. She has siblings that seem to be older. They don’t live in the family home and she mentions their spouses and children sometimes. It could just be a case where the other siblings lived relatively normal lives but the parents homeschooled Jessica because the local school couldn’t handle her disabilities or something.
She makes her dad a hat on the rainbow loom and says she was capable of this because her left hand currently works. Usually it does not but when it does, she goes bananas with the hobbies and crafts. She hasn’t said what causes her hand to not work usually.
First really good look at Jessica and at least part of her wheelchair. She reminds me a lot of the deafblind doctor but I think it’s mostly the vacant facial expression. She mentions her parents have gotten divorced and that it was very upsetting for her. She lives with her mother and only sometimes sees her father. She's also very very thin. Atrophy happens when muscles stop working so that makes sense.
Still only posting about seizures.
Here’s where I started thinking something wasn’t adding up. She posts these very intricate drawings she’s done on an etch-a-sketch of all platforms saying they’re old and she’s not capable of anything like this anymore. To be fair, the last one gives us a date: 2015. A lot can happen in four years. Still, that’s a whole lot of fiddly precise movement of those knobs especially since the last one was done on a miniature one.
She can still color just fine. I know these are vastly different skills but it’s a lot of fine motor control.
A semi-location, she tags Potomac Edison Electric in her post. They service Maryland and West Virginia.
A birthday, January 28 although no age given.
And here’s where shit started getting real weird. So she’s got this contracture in her left hand and that's why sometimes her hand doesn't work. Okie dokie. She also claims she has a head so small that any headband that doesn’t come in toddler sizes looks like a headscarf, and that her head is only 2” larger than her brother’s was at birth. In the hat photos, she didn’t look unusually small in comparison to her father who is presumably average sized. Very thn, yes, but my brain doesn’t go “oh she’s got some kind of proportionate dwarfism” or anything.
Seizures, still the only diagnosis.
She’s ethnically mostly Jewish even though she’s been raised fundie Christian. She took Hebrew as a homeschool elective because it would help with Bible study and was called a “dirty Jew” by others because of this. She didn’t find out she was ethnically Jewish until recently because her mother’s heritage was a mystery and I guess they did a home DNA test that revealed it. She claims she has a disease that is found among some Jewish communities but doesn’t name it. Brown curly hair only occurs in jews apparently.
The dog used to alert to her seizures and fevers. We learn she also has a port.
She sometimes needs supplemental oxygen. She’s having more seizures and is drugged to the tits. Finally some answers about what’s wrong with her: #dystonia #gastroparesis #autoimmunedisease #encephalitis #failuretothrive. Okay so FTT – she was sick and not growing right from when she was a baby but they didn’t know why. That makes sense and fits with the “she was sheltered because she was sick as hell” theory. Dystonia, don’t know why she has it but that explains the contracted arm. I guess epilepsy and the treatments for it can cause that? The other three, well, GP’s always going to give me pause but if she has a shitload of other problems then who am I to doubt that one of them caused GP? And encephalitis, maybe she had a bad infection or something and it just was shit luck or whatever. She's also implying she can't speak sometimes.
She’s capable of smiling semi-normally sometimes.
In the hospital and discharged with no solution. She tells us that in the past she had a gangrenous infection of her digestive system and it needed to be drained. So that’s really not great and sounds like it came very close to killing her. The glasses are kinda fucking with my head. In this photo it looks like one lens is much stronger than the other but it’s nowhere near as noticeable in other photos. I guess it's the filter effect she has going on because her cheek is also distorted but just, spoiler alert: her glasses will become a central character.
We flip to the next post and she’s just complaining that they didn’t give her pain medication this time. She was begging the doctor to cut her open so the students in the hospital could study her. Totally normal response.
And here she’s saying she was only 56 lbs at her last appointment and has lost weight since then, running her feeds at only 10mL an hour. 56 lbs is Lich Queen / Eugenia territory for someone who is of a vaguely normal height. It’s hard to get a good idea of height when she’s in the chair, but when pictured with other people, her size looks pretty normal relative to theirs. Again, I'd buy that she's short and atrophied but I don't know if I'm getting "toddler sized" from her photos.
She likes reading even though her epilepsy sometimes makes her forget what she’s read. She prefers books for younger people because she relates more. Again I have to comment that relative to the size of her doll’s head her own head does not look too outside the bell curve to me.
She is able to do an intricate marker drawing now even though she previously claimed her conditions wiped out her ability to do things like this.
She’s so very childish and always asking how old is too old to X. She’s aware these things are for very young children and she’s considered by most of society to be too old for them. I wouldn’t say she’s insecure about it. More like she wants to make sure you know she is an adult with the presumed mental capacity of a child. And now it’s a bit creepy, right? It’s not really creepy until you know she’s self-aware.
See in these pictures the glasses don't look particularly strong nor do we get the distortion of her right eye like we did in that one pic.
She used to hand sew. That’s a different wheelchair in the pic, a manual, but she’s showing off old work so let’s assume it’s an old pic in an old chair.
March 2019 we get a better rundown of her illnesses: a progressive demyelinating nerve disease (not specified which type), epilepsy, parts of her did not grow normally and she’s unusually prone to infection. She has autoimmune encephalitis (not specified if she’s talking about the Brain on Fire type or a different variety) and dystonia. She’s got no feeling from the waist down and can’t walk. She has a feeding tube because she has GP and she used to get IVIG through her port but her old doctor got in some kind of legal trouble and the new one won’t do IVIG. She can’t swallow or chew. She has a VNS for epilepsy so cool, I’ll believe she actually has that one. She’s full of cysts and has dead tissue inside her but they won’t do surgery to remove it – this is the “cut me open so they can study me” remark, I guess. She’s now under 50 lbs. She has “part of an extra chromosome” (I googled because it didn’t sound real but there are partial trisomies) and severe allergies set off by even just the smell of things. And her nerves are dying. She’s totally numb in some places and has nerve pain in others.
She's just so incredibly strange. Sometimes she does this thing where she tries to make like she can't make eye contact and she's often trying to make it seem like she has no control of her facial muscles but man, look how tight her neck muscles are flexed in this first one.
Other times she's smiling naturally, making eye contact, looks totally relaxed, and she doesn't have her arm contracted across her chest. But fine, it's another old pic because her hair is much shorter than it used to be. Also, if her hair is this curly, is someone straightening it for her now? Or is this some kind of chemo curl situation where it fell out and grew back in curly?
Her parents got divorced and she has radically bad encounters with non-religious and religious people alike everywhere she goes, because apparently adults come up to SPED-looking adults in wheelchairs with harnesses to yell mean things at them about their parents’ divorces. The comments are getting increasingly weird and in one, she says her grandmother and four sisters grew up in a “chicken house” and were starved while the adults ate fine. At this point I’m considering that perhaps this is actually an ARG / horror roleplay thing and I’m just not in on it.
She lives in Bittinger, MD down a very long dirt road in the forest. Not where I’d want to live if my kid was medically fragile with intractable epilepsy. It’s only 11 minutes to the nearest hospital from “downtown” Bittinger (inasmuch as there’s a downtown) but what if she needs an ambulance in this kind of weather? We know from Katie Stanina what happens if a prolonged seizure isn't treated.
Her face muscles have a mind of their own and she can’t always smile. She found an old journal from 2013 when she first started losing functions. The doctors had no answers and ignored her. Sure would like to know the story there.
She can’t hold her head up now and her hair falls out very easily, sometimes to the point of total baldness. Hairdressers said they can’t deal with her hair because it’s all frizz.
The doctor who gave her IVIG was her neurologist and one time when she went for an appointment he was “in trouble with the law and man from the law with guns were there.” Presumably he was the one diagnosing and treating them if he was the one signing off on her IVIG and likely the one who got the VNS implanted as well. Did he just hand these things out to anyone like the neurologist equivalent of our friend in Clearwater? Every time I think I’ve landed on one side or the other I switch back. Anyway they’re looking into botox for her contracted arm.
Well look who it is in her comments, Grandma Rose with the trach. Jessica could still be mostly telling the truth and Rose is just skinwalking. At this point, I'd guess Rose thought she'd stumbled on someone who was actually sick.
She has enough motor control to do crafts like this. This weird guy who comments on every pic wants a video chat now but she says she uses a child’s tablet and it can’t be used for video calling. I guess that explains the potato photo quality but sometimes the photos are fine. And why a child’s tablet? Can instagram even run on a child’s tablet?
Still looks to be of a normal size relative to other adults in her life. Her bed has the no-rolly-outy side things. She's also smiling mostly normally and it looks like her contracture hand is relaxed too.
Someone is rude and mocks her in messages. She won’t tell people how old she is and says she normally takes days off the internet after bad seizures to get her brain “unscrambled.” #askenazijews. Funny that we just had a whole convo about how they embraced genetic testing to avoid shit like this.
Next post, she’s had a bad seizure day and is on the internet just fine.
Difficulty smiling several days after seizures. She uses CBD to sleep but not for seizure control.
Everything she posts is weird. When it’s not about her health it’s about dolls or coloring books or some other extremely childish interest like showing off her Jojo Siwa hair bows.
Doesn’t show off her writing so we can’t gauge the alleged inability to write clearly.
After many attempts she’s found a doctor that will do botox for her fucked arm.
Still claiming she’s under 50 lbs and that ideally she’d like to be back up into the 60s.
No really is this like a role-playing game or a fetish thing? The Papatonton person is private but they’re on every post, spamming the same comments over and over again. Jessica’s lost more weight from constant vomiting but won’t say how low she’s down to.
Botox is loosening up her contracture. She’s claiming the shirt is a kid’s size small.
Her port failed and there’s liquid pooling around it. It needs to be removed. Repeats that she had a bunch of abdominal cysts and dead tissue but they won’t do surgery and says it’s because she’s now down to 46 lbs. Even just ignoring the absurdity that any adult woman is 42 lbs and not a dwarf or Lich-tier emaciated, wouldn’t a bunch of necrotic tissue just hangin’ out kill you?
Uh so, based on the above, how old do you think she is? Fresh out of high school? Very early 20s? That was my guess, especially with being so devastated about her parents getting a divorce. She shows this Rainbow Brite toy which came out in the early 80s and says it was before her time. It belonged to her sister and she always sneaked it out of her sister's room to play with it. And like I said before, from her posts it sounds like her sisters are quite a bit older. This toy was released in 1983. That puts them at being around 40-45 right? That's quite an age gap. And now I need to know how old she is.
I went back to look for clues and the only thing I could find was that in 2001 her parents thought she was too young for an American Girl doll and she surprised everyone by taking exceptionally good care of it. If you aren't familiar, American Girl dolls are not porcelain collector's pieces meant to look at. They're expensive at $150 a pop (I think back in 2001 they were more like $100), but they're vinyl dolls for kids to play with. Their feature used to be that they were based on different historical periods and each had whole book series aimed at young girls. They even operate a doll hospital for fixing dolls that got drawn on with marker or got chewed on by the dog or their hair cut off. Point is, how old could she have possibly been in 2001 that they didn't trust her with a doll meant for children?
