A christmas miracle. She can draw again.
She shows off her oxygen to let us know she might have congestive heart failure. She never mentions this again, nor do we ever see her oxygen cannula attached to anything. I tried to see what her dad posted but it was just a prayer request.
She's back to drawing and writing neatly.
She gets a Valentine’s card from a
boy! A boy with Downs Syndrome who she’s been sending cards to. Nope, not gonna think too hard about the implications there.
She was always taught divorce meant your life was over but now that she sees her mother actually happy she's reconsidering.
She can start a very important medication for her seizures again. Benzos are back on the menu!
She wins dolls in an art contest meant for children thanks to her tard LARP.
Once again, claiming she needs kid shoes. Once again, we find these came in adult sizes as well.
FTR someone who is much better at judging things like this estimated her shoe size was about a women’s 7 when we were on the original Shoe Quest. I am bad at gauging things like height and weight from photos so I leave this here, make of it what you will.
She’s trying to get diagnosed with polio now. Still saying there was no response on the EMGs she had on her legs that we now know were done by a complete fraud.
Before I found the fraud, though, I was trying to find out whether FND patients actually don’t have a response to EMG. I couldn’t find that information at least in part because I couldn't understand what i was reading, but I did find this helpful chart of the most common functional focal dystonias: unilateral downward lip-pulling (the stroke face thing she does), plantarflexion of the ankles (her turned-in ankle), and contraction of the hand that spares the pinching grasp, which we can see in how her index finger and thumb are mysteriously spared in hers.
Here we get a good look at the hair regrowth. It’s patchy, but my assumption is still that she’s pulling it and it’s finally long enough in some places for her to get at it for another round. Her life is such a loop of sitting on her mommy’s couch playing with dolls that covid does not affect her in any way. She already never left the house or saw anyone outside her family and a few doctors so social distancing is her status quo.
Oh jesus. Pixielocks used to do this years ago. I guess liquids are fine with her GP after all. And her dysphagia so bad she can only swallow a quarter of a teaspoon of honey consistency. Wouldn’t liquid be worse? Like they sell thickeners at any drug store specifically for people with dysphagia.
This is like the fifth time she’s specifically made comments about how people get offended when she doesn’t know what something tastes like. How often do people ask this? She supposedly doesn’t eat, doesn’t leave the house (so it’s not like people are asking her how a restaurant is after she said she went there) and she never posts abut food other than mentioning what she
doesn’t eat because of her deadly allergies – gluten, dairy, and peanuts, +/- eggs which she often forgets.
Besides, in other posts she insists that as a child she was told she was never allowed to refuse food because it was impolite and as a result had to eat things that I legitimately do not believe anyone ever fed her including two raw eggs on wonder bread. This goes back to what I was thinking about her being like tism-tier picky eater as a child and being made to eat things she didn’t tolerate. No I don’t really think she was fed raw eggs on bread, but how far of a leap is it from “raw” to “sunny side up with whites that haven’t fully set” or "scrambled but not cooked through"?
She orders a wig and lets us know it’s a #childrenswig #juniors
HOW DARE U??? Apparently other people have been questioning her claims
Someone else died.
She’s doing those diamond painting things, which again is a lot of fine motor control and more specifically, the ability to see tiny objects and manipulate them properly into equally small places on a canvas using a tiny number to see where each goes. She’s talking about color blindness because some of the colors look the same to her.
Uh, I guess one of the sisters is going through a suicide phase.
We hear her voice. Again, it’s just giving me Gypsy Rose vibes. Might as well be singing
"Angels Among Us".
Shitting on the magic jesus will heal me and buy me a mansion people.
Vaguepost prayer request. Some things are worse than her parents getting divorced. You don't say.
She got covid. Thankful she has oxygen but the photo she doesn’t even have a cannula in. I don’t really think she’s got home oxygen, just cannulae. Maybe her quack prescribed that too and she just has a stock of cannulae left over, maybe she took some home from her ICU stays or orders them on amazon or something, but we never see her oxygen tanks or a concentrator in her room or anything. It’s just the cannula on her face. She also doesn't chimp about the oxygen shortages that happened at the peak of the pandemic.
I know the divorce thing is another part of her child-like affectations or an extension of her very fundie upbringing where divorce was the worst thing ever, but man it does get to be weird. It’s been two years and she still brings it up constantly.
Insurance fucking with her tube. She only gets a change every other month even though she has a history of needing them monthly if not more because she's special, so she (read: Mommy) has to pay out of pocket when she breaks them. She can't get her botox, no one is checking her VNS, yet mysteriously she's survived. A neurologist tells her not to come into the office because she'll die based on her own description of her health. She'll be using oxygen more after a different appointment.
In September 2020 she’s finally able to get her botox again and it works.
Epipens, seizures, and pain.
Seizures make her stutter.
Seizures make her voice go away.
Aww man don’t ruin one of my favorite songs you goblin.
We're all terminal! Some of us are just running towards it at a sprint for internet attention.
She can’t use candles safely so don’t worry, this clearly fake candle is fake. She is of “Jewish and Catholic descent” now. Lol @ acting like catholic is an ethnicity. I understand why Jews are largely considered an ethnicity - insular communities with genetic fuckery to prove it and inherited religion - but the most catholic countries on earth are like, Italy, Poland, Haiti, and the Philippines.
Posting only for another mention that she’s so teeny tiny people can carry her everywhere like a baby. I have spoken to a lot of wheelchair users through this hobby and not a one would be comfortable being carried unless it was an absolute emergency like “the building is on fire, every accessible exit is blocked, and you will die if you don’t let me carry you out of here.”
Claiming she wears the shoes her sister did at age 5. Lamenting that everyone else has a life while she sits at home playing Jesus's favorite cripple.
Suggesting she once had a collaboration with Bobbi-Toads to make a pair of shoes called Rileeze and Jojo herself owned a pair. I can't find any proof these shoes ever existed.
Claiming her hair fell out again and is now growing back in red.
She makes this Jewish christmas ornament for her very Christian mommy. The text is her mom's maiden name, Durst, in Hebrew. Mommy must be so happy that after raising her daughter ultra-Christian she's now insisting they're Jewish.
The holidays are hard but she's a fighter.
Daddy takes her out for an adventure in her new stroller she got for christmas. I promised you we'd come back to the stroller.
It's a Kool-Stride Special Needs Jogging Stroller with a maximum capacity of 150 lbs. It's meant to fill the gap between children's strollers and adulthood for people with special needs.
Here are some other pictures of adult-sized humans riding in one.
She puts a temp tattoo on her head saying everywhere else is way too skinny to fit it. She even bedazzles it.
Another perfectly normal baby pic.
She is now 31.
I swear this girl makes up fights that never happened for attention
She’s feeling pressure to pretend everything’s okay when it’s really not.
Ooh more backstory. Because she was so tiny and not growing as a kid they took her to different doctors. It sounds like some doctors correctly said she wasn’t getting enough nutrition to grow and others chalked it up to endocrine issues. Her family was offered growth hormone treatment but declined. She later learned all her food issues were from severe allergies. I don’t know, fellas. I’m still getting the vibe that she was just an ultra-picky eater who was forced to eat things she didn’t like and developed a whole eating disorder because of it.
Anaphylaxis, epi pens, oxygen. Still hasn’t proven the latter is connected to anything.
Oh come on, even if her head is really that small I’m sure they make a variety of wigs for children and they’re not all blonde Alice bobs with bangs.
But it makes one of her followers send her a new, brown wig to wear instead. She has this whole community of weird 45-year-old doll ladies hanging around and they all send her stuff all the time. Doll stuff, coloring books, hats, whatever she mentions “needing” or wanting a doll lady soon provides.
She got rubella from the MMR vaccine as a kid and her doctors don’t think she should get covid vaxed as an adult.
Her father takes clear pics of her instead of her Barbie tablet from 2003 or whatever the fuck she uses. We can see she has nice thick hair regrowth in her eyebrow and her eyelashes still look fine. She's also claiming this shirt is an adult size small but on her it's a dress.
Another seizure, this time she says that she doesn’t stay off the internet after them anymore because they're so frequent she’d never be able to connect.
Daddy takes her to the playground. Yeah I totally believe someone who needs a full support wheelchair with a chest harness, has many contractures, and is always a breath away from a seizure can sit independently on a swing set.
She can apparently still do art just fine because she wins a contest for this bluegrass fest.
Her older dog is sick. The younger one needs to be supervised when he’s around Jessica because shes a tiny small and fragile baby.
She totally didn’t mean to take this photo where she’s making direct eye contact with the camera despite turning her head to the side. She was just reading on her tablet and accidentally hit the camera button. Honest! One of her relatives is on a vent from covid, but this post is all about how Jessie has terrible lungs and needs oxygen because she desaturates down to the 50s. Lmao no the fuck you don’t. In 2009 a
blood oxygen saturation of 54% was recorded by a team of researchers who climbed Everest without supplemental oxygen. It was newsworthy at the time as before then, values that low were unheard of outside of cardiac arrest. One of the wild parts about Covid that made it such a mystery at first was that people
were getting down to these ridic low incompatible with life levels of oxygen sats without showing the typical signs of respiratory distress. It was called "happy hypoxia" because they should have been comatose or at the least in extreme respiratory distress but instead they'd be chatting with hospital staff and fucking around on their phones.
Anyway. Her aunt is doing better.
She gets a reborn doll and specifies it’s not too heavy for her to move. Once again, she gets a present sent to her by some Jesus-loving weirdo adult who spends her days caring for fake babies.
Here she says she was born somewhat prematurely and had a “selkie coat.” I’m guessing she means lanugo, which is the downy hair commonly seen in premature babies. I hope the rest of the story about her dad stealing it and rubbing it on his hands is some folkloric reference I'm blissfully unaware of.
Leaning harder into her jew larp with Hebrew practice. Nice neat lettering for someone just learning the language.
She’s been doing a lot of book review type content now. The first one is an American Girl book meant for like 9 year olds and it’s about a kid with HIV. Second one she says the real Patch Adams himself gifted her (??) and the last one is about a woman with cerebral palsy who uses an assistive device to communicate and of course she relates to all three.
She still mostly reads books meant for very young children.
She's all about the stroller now because apparently a full support wheelchair fitted for her just wasn’t giving off enough tater vibes for her. But also her glasses. Ohhh her glasses. I refuse to believe anyone prescribed these for her. Of course, you can get secondhand glasses fairly easily at thrift store or whatever.
But I’m actually guessing she ordered them from something like Zenni where they let you manually put in values for your script and don’t require verification from a doctor. Zenni operates pretty much entirely on the honor system. You
can scan in your prescription, but I made this one by scrolling through the available values and clicking where ever I felt like, no proof needed.
It will tell you if you select too small or too large of a pupillary distance value which is cool, because I didn't feel like looking up my own script to see what a normal value was there and the warnings were helpful in determining one. Both of my first choices, it told me that was absurd so I settled for 60. It had no complaints at 60 and prompted me to continue.
And there we go. Without seeing an eye doctor I can order a pair of super strong spex that are orders of magnitude stronger than my actual prescription with values that possibly make no sense. I guess they do this because normal people want to see and are at a low risk of lying to get super strong glasses that will fuck their vision.
These are such a huge change from her last pair.
She mentions in that post that she had an
article come out. I actually found it right around when I found her facebook and it’s a real doozy. Total retcon, she’s now saying she had migraines, fainting spells, and absence seizures from childhood and grand mal seizures by the time she was a teenager. She also says she was diagnosed CIDP and dystonia by 20 and just woke up one day unable to walk, when per her blog she didn’t even start having any mobility symptoms until her mid-20s and didn’t stop walking until she was like 25 which is when the fake CIDP was diagnosed. Now she can use both hands but has limited coordination. The story of the Patch Adams book at least makes sense; her dad met an employee of Adams’ clinic through a Bluegrass charity he works with. But she’s also now working with something called Project Yes, making kids with actual problems feel bad because she has it worse off than them.
There’s a video involved. I love how she says you might think she’s a normal kid but never admits she’s over 30. She says she still has the tube and can only eat blended foods if she feels like it. She didn't want the tube but she got it because Mommy and Daddy wanted her to and she didn't want to die before she met her nephew and she still questions if she should have just let herself die then. She describes why she lost her ability to draw, which is something like an etch-a-sketch being erased by her seizures. She also mentions in this video that her last hospital roommate was deaf-blind.
This is the only other video on her dad's account that features her. This was after some bluegrass thing called DelFest got cancelled for covid.
they can still be kosher, but that it's unfair that there are no kosher TPN formulations for the extra special girls. I feel like if your god has made you that fucked up that you actually need TPN he's not going to care that milk and meat touched or whatever.
