Community Munchausen's by Internet (Malingerers, Munchies, Spoonies, etc) - Feigning Illnesses for Attention

[Oracular Slug]

Forgive my country bumpkin ignorance but isn't the old home remedy for a yeast infection a cream made with garlic and thyme?

I've never heard anything about thyme, but shoving a clove of garlic up there was definitely a home remedy, thank god for monostat

 

[877-CASH-now]

I've never heard anything about thyme, but shoving a clove of garlic up there was definitely a home remedy, thank god for monostat

Honestly now I'll never look at focaccia the same way again.

 

[Chan the Wizard]

There’s longer articles out there but this has all of the hallmarks of by proxy

https://ca.news.yahoo.com/boy-12-struggles-long-covid-184132129.html

Mom is front and center. The doctor in charge of it is a psychologist not even a psychiatrist and he’s also been diagnosed with POTS.

 

[Zemblan Physics]

Mom is front and center. The doctor in charge of it is a psychologist not even a psychiatrist and he’s also been diagnosed with POTS.

There was a link in that story to this lil miss munch:



Obligatory hospital woe is me pic:



Former athlete
TikTok-famous
Gastroparesis
Tubes
Sepsis
Fungal infection
Ever expanding list of conditions now including neuropathy , SMAS and, oddly, ankylosing spondylitis

Honestly, it’s starting to get old…

 

[Hybrid Icing]

friendship ended with chronic lyme. now long covid is my best friend

 

[Kate Farms Shill]

Honestly, it’s starting to get old…

This is why I've been going out of my way to find non-zebras (Tricia) or ones that have some truly outrageous side plot (Natalia's ketamine lesion-induced fake CPS story). I'm so over the combo platter it's unreal.

I long for a good CF larper or a brain tumor claimer.

 

[Zemblan Physics]

Ah, the fabled familial full body CRPS-cluster. Seems legit.

Spoiler: GoFundMe

Hi, we are Eddie and Lisa and the parents of Kaylee, Raegan, and Brooklynn Ewell. We also have a son, Carter. Our family has been on a very long medical journey with our girls. They all have a rare disorder called Complex Regional Pain Syndrome. It's ranked the highest form of chronic pain in medical science today. There is no known cure though some have gone into remission.
Kaylee has suffered with it the longest, since 2017, she was 14 at the time. Over the past 6 years she has been to countless doctors, taken multiple medications, and endured hours and hours of physical therapy and treatments. During that time she was diagnosed with 7 additional incurable disorders. Kaylee's CRPS started in her shoulder and has spread to affect her whole body. We had no idea what we were in for back in 2017. It has been a long hard road for her and she continues to fight daily.
In August of 2021 Brooklynn broke her ankle going down an inflatable slide. After a couple months of slow healing she was diagnosed with CRPS. It was devastating as we were all too aware of what this meant for our baby. She was 9 at that time. CRPS quickly spread and after 6 months she too had full body CRPS. It was difficult to find any medical care for Brooklynn because she was so young. The only thing she was offered was medication which did nothing for her even on the highest dose. We found a place in Arkansas that treated CRPS patients and got both Kaylee and Brooklynn accepted for care. This was a different approach than the usual western medicine we were use to, but many people had great success. We spend 6 months of 2022 there. The treatments were extremely expensive, out of pocket, and not covered by insurance, but our family and friends from all over pitched in to help us raise enough to cover their care. The program helped Brooklynn regain full use of her arms and she is now able to walk short distances. Kaylee learned a lot about her condition and was able to safely get off the pain medication she'd been on for years but she was not as successful as Brooklynn in helping her CRPS.
While in Arkansas, Raegan fell while wading in a creek. She injured her hip and leg and was also diagnosed with CRPS. Raegan, who is 14, has been fighting other incurable diseases her whole life, gastroparesis, mast cell activation syndrome, and Elhers Danlos syndrome. When CRPS was added to her body she spiraled downhill very quickly. Raegan is not able to walk and is now suffering with seizures on top of everything else. She also was diagnosed with Lupus about 2 weeks later. She too was accepted in Arkansas but she didn't respond well to the treatments. We decided to come back home after finding another option for treatments for the girls here in North Carolina a few hours from our house.
This current treatment is more of a holistic approach and all the girls are showing improvements. We have been receiving care in North Carolina for the past 8 weeks. This treatment is also not covered by insurance. We have come to the point that we are completely out of funds. It's not an option for them to stop treatments as it will definitely be detrimental to their health. We know that most likely the girls will need care for the rest of their lives and being so young it's so hard to fathom. We have seen such good results with the current treatments and want to give them the best life possible despite their diagnosis. It's impossible to know when or if they will ever reach remission but as parents we want to do whatever is necessary to give them their lives back. We trust that God will continue to leading us, strengthen us, and provide a way for us. God has never left us in this valley and we know He never will. Please consider helping us care for our girls.

About as sus as it gets. Lurked GoFundMe for some laughs, did not expect to get acute full body MATIitis.
Link

 

[TismFarmer]

I spent some time with old school hippies in my wayward youth.
DO NOT stick garlic up your hoo-ha!

I've never heard anything about thyme, but shoving a clove of garlic up there was definitely a home remedy, thank god for monostat

as for Huot de Saint-Albin, he told GMA, “I know I’m gonna finish school. I think I’m gonna get better. And with all the research that’s gonna come out, hopefully something will help me more than anything else.”
This boy will be 'sick' for the rest of his life.
This quote shows his mindset. There is no talk about him growing out of it, growing stronger, getting well, just "well, maybe in some distant future time they might find a cure" without any acknowledgement of the fact that huge amount of illness is 'repaired' by the body, you just get better.
He has no pathway for 'I'll probably get better as time goes on'

 

[Flaming_Barghast]

They all have a rare disorder called Complex Regional Pain Syndrome

Ugh this makes me so angry. A family member of mine had actual crps from a bone break not healing right and totally fucking the nerves in their foot.
How much you wanna bet any pain (if they have any) is probably just growth pains?

 

[glioblastoma multiforme]

They are by-proxying all of their daughters, but not the son. I wonder why he gets a pass? Do you think they tried and he just wasn't having it? They are old enough that they have to be partially in on it.

Def sus as fuck. And it sounds like they've been out of education and normal social life for a significant chunk of their formative years.

It did make me think, what actually happens when a munchie or by-proxy actually runs fully out of money in the US? Do they magically recover, or do they get on a government funded program then change their LARP to something that will be covered? Do we have any examples of this? I have read the full thread and don't recall ever seeing one.

 

[OrSoHelpMe]

The MBP sisters make me sad. The GFM has an update section where they talk about the youngest getting hit with a baseball, going blind, losing the ability to walk, being told it was because of CRPS and there was nothing to be done, then the family struggling to find care until the youngest kid developed “tics and seizures just like her sisters.”

Any realness to the symptoms is probably psychosomatic, conversion. Kid grows up in a family with certain expectations around illness performance, told most of her life that she needs to be afraid of getting bruised doing every day things because CRPS will be triggered just like her sisters, gets hit with a baseball and winds up blind, paralyzed, told “sorry, we can’t help you.” Mom says they said they couldn’t help because it was CRPS but I bet they offered treatment she didn’t agree with. Kid feels hopeless because her role in the family is to be sick and terrified forever, might be realizing how much is false and how much lying she has to do with no choice, and boom, tics and seizures “just like her sisters.” Like the kids who developed tics out of stress from experiencing a pandemic and then threw shit fits about being told they had a psychosomatic, stress borne, transient response that could be treated and not the popular disorder du jour that they wanted. The mother seemed to expect these symptoms, expects these symptoms from her sisters.

There haven’t been any donations since the last update where god miraculously restored the kid’s vision. Wonder what’s next?

 

[877-CASH-now]

There's something about how the CRPS sisters are being represented that makes me think the by-proxy isn't the mom, but a diagnosis-happy doctor. There's no mention of the daughters being spoonie chronic illness warriors, no having fun when it's convenient - and they aren't softening the language to something like dynamic disability, it's straight up "incurable disorder." I think the mom is being taken for a ride by an Afrin wannabe.

 

[macandcheese94]

Introducing this ‘full time medical mummy’.
Tries to munch a bunch of ailments herself (POTS, asthma, allergies, constant documentation of minor surgeries e.g. carpal tunnel, ingrown toenails) but wasn’t doing a good enough job at munching, so turned her efforts to her 4y/o child. Claims he has asthma, food intolerances (dairy allergy), hearing loss, a minor developmental delay. Apparently that combination of ailments means the poor kid needs to be carted around in a wheelchair? ‘Medical mamas’ like this really make me question what the kids’ preschool teachers must think.

*Oh, and she’s part of a MLM scheme too. Obviously.

 

[athousandrustynails]

CF larper

Someone I know very briefly interacted with someone who was claiming that they only got diagnosed with their CF as an adult. I had my suspicions that the person was just fat and trying to come up with a Feel Sorry for Me reason for it cos I'm reasonably sure CF is always detected in kids. It's either that or the person was claiming they developed it as an adult. Either way it was suspicious as fuck but I never met them and the person I knew stopped being involved with that person so I didn't get to investigate further (sadly).

It did make me think, what actually happens when a munchie or by-proxy actually runs fully out of money in the US? Do they magically recover, or do they get on a government funded program then change their LARP to something that will be covered?

Do they not just go on a continuous chain of go-fraud-me campaigns and use the scenario to add to their tale of indefinite woe? Please give mutual aid. Urgent. Head imminently detaching from body and every dollar counts.

 

[TismFarmer]

Introducing this ‘full time medical mummy’.
Tries to munch a bunch of ailments herself (POTS, asthma, allergies, constant documentation of minor surgeries e.g. carpal tunnel, ingrown toenails) but wasn’t doing a good enough job at munching, so turned her efforts to her 4y/o child. Claims he has asthma, food intolerances (dairy allergy), hearing loss, a minor developmental delay. Apparently that combination of ailments means the poor kid needs to be carted around in a wheelchair? ‘Medical mamas’ like this really make me question what the kids’ preschool teachers must think.

*Oh, and she’s part of a MLM scheme too. Obviously.

Fell down this poor kids rabbit hole.
The only thing I can think of is that he's a failure to thrive kid and she might have been able to convince them that he didn't have enough energy spare for walking longer distances etc. The kind of thing that I put my FTT into a mountain buggy for. But a regular mountain buggy that can hold up to 30+ kg and is way easier to push and can go cross country doesn't have that 'look at me and my poor sickly boy' look and wouldn't get them the attention and 'cancer kid' type concessions and special experiences.

 

[Kate Farms Shill]

claiming that they only got diagnosed with their CF as an adult.

Anna Johnson / Fit Vegan Ginger also claimed that (with a VUS on the CFTR gene as her "proof"), but one of my favorites back in the day was Amy Banek. Probably best known for a stunt she pulled where she pretended to faint during a medical exam, but first set up her camera and made sure she was in the frame right before dramatically swaying until the unamused nurse caught her.

But her pulmonary disease LARP was my favorite. She was obsessed with Mary Frey. Claimed CF, no wait it was like CF but not really, but she had 20% lung function and was fine walking around and doing all kinds of activity on room air. That's unpossible? I mean it was 27%. Still too low? Oh I don't know how to read these PFT results guys, that's just what they told me when I got the testing done! Her trashy mom was in on the grift and they'd film her doing percussive airway clearance (incorrectly) because Mary Frey made a video showing how her husband helps her clear her lungs on bad days.

She actually posted her PFTs and her FEV1 was 74%. She later admit it was just asthma and now she's a firefighter

 

[WarpedTourWasFun]

@Kate Farms Shill that's the one!

Introducing this ‘full time medical mummy’.
Tries to munch a bunch of ailments herself (POTS, asthma, allergies, constant documentation of minor surgeries e.g. carpal tunnel, ingrown toenails) but wasn’t doing a good enough job at munching, so turned her efforts to her 4y/o child. Claims he has asthma, food intolerances (dairy allergy), hearing loss, a minor developmental delay. Apparently that combination of ailments means the poor kid needs to be carted around in a wheelchair? ‘Medical mamas’ like this really make me question what the kids’ preschool teachers must think.

*Oh, and she’s part of a MLM scheme too. Obviously.

Oooooh I know her! Mom "had heart failure" and was supposedly waiting for a transplant. Got pregnant and suddenly the heart issue was never mentioned again. Kid wasn't even out of the hospital before being diagnosed with (and given medication for) GERD. She started calling herself a "medical mama" the day he was born.

 

[GhoulTori]

It can happen fast too. If you get athletes foot and use over the counter cream but don't complete the course it'll come back resistant to whatever cream you used. A lot of people have tinea for years because they don't follow the instructions on the tube. It usually says to use it for an extra week after it looks like it's gone. You also have to clean your shower with bleach and clean/throw out anything that's touched your feet. A lot of people stop using the cream too soon and/or reinfect themselves and it keeps coming back stronger. I've seen people who end up with athletes foot in their groin and armpits because they'll keep using the same towel after a shower instead of using a fresh one each time and drying their feet last. So even minor external fungal infections can be hard to get rid of if you don't comply with treatment to the letter.

In the 2000’s a strip club in Vegas had an athletes foot outbreak caused by dancers going barefoot on stage to climb the pole more easily.

We treated athletes foot in several new places.

 

[macandcheese94]

@Kate Farms Shill that's the one!

Oooooh I know her! Mom "had heart failure" and was supposedly waiting for a transplant. Got pregnant and suddenly the heart issue was never mentioned again. Kid wasn't even out of the hospital before being diagnosed with (and given medication for) GERD. She started calling herself a "medical mama" the day he was born.

What! No way, I’ve followed her for years but somehow must’ve missed that. I knew she was claiming heart disease but didn’t realise she went as far as saying she was on the transplant list. But it sounds pretty on-brand for her, and I remember her supposed heart issues and other health issues being a LOT worse and then as soon as she had her kid, boom. All the focus on him and being a ‘medical mummy’.

 

[WarpedTourWasFun]

What! No way, I’ve followed her for years but somehow must’ve missed that. I knew she was claiming heart disease but didn’t realise she went as far as saying she was on the transplant list. But it sounds pretty on-brand for her, and I remember her supposed heart issues and other health issues being a LOT worse and then as soon as she had her kid, boom. All the focus on him and being a ‘medical mummy’.

I don't know if she ever went into it on Instagram, but she posted a lot on Facebook, including "transplant papers" to prove she was on a transplant list.
I'll do some digging and see if I can find any of it, or of she took it all down.