Community Munchausen's by Internet (Malingerers, Munchies, Spoonies, etc) - Feigning Illnesses for Attention

What I really want is to read Rose's medical records. I want to see what her doctors *really* have to say. Is it bullshit? Are they wise to it? What's real and what's all creepy roleplaying? Most people with Stiff Person Syndrome don't have respiratory failure. They're not trached and vented. Patients with severe respiratory involvement are rare, such that their doctors write case reports on them. And even those with respiratory involvement typically have a number of non-invasive options before getting a hole bored in their neck.

Also, SPS is characterized by fluctuating muscle spasms that can be triggered by auditory and tactile stimulation. One would think a sufferer would choose to avoid the sort of, um, tactile stimulation Rose engages in.
 
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Rose The Idiot said:
I actually don't like drama, this isn't attention, it's very uncomfortable. Also, I'm not sorry exactly. But I do feel stupid. Mainly I just wanted an easy Non-Taken name.

But I'll answer your questions if you want me to.

I did used to read here, actually, but never posted. I just couldn't stop torturing myself. Just like I'm doing now. I don't know why I do it tbh. I plan on logging off in a couple hours and never coming back.

We can live in our separate worlds and all of us can be happy.
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Dressing like a baby in a sexual way is not just living in a "separate world." You're a danger to children and you're disgusting.
 
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She did not last long lmao
 
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TheBigZee said:
Wow, what amazing proof she's totally fucked up her sleep schedule.
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Soooo..... what exactly would happen if someone opened the blackout curtains and compelled her to go for a walk? I'm assuming she claims she'll suffer debilitating bad vibes? I'm sure she does feel faint and shitty when she stands up after not getting up all day in a depressive stupor. You lose muscle and endurance FAST on bedrest. The solution.... get the fuck out of bed? Let's say she really does have SUPER sensitive eyes and is a frail waif. Her enabler husband could still strap on her eyemask, and throw her in a recliner chair next to a sunny window.


Is there really any reason she can't sit up in a chair to eat? If she's really that weak, laying all weird on your side is not a safe eating position. If she's really so incapable, it should be priority no. 1 to be keeping her moving as much as possible. If you're really that bedbound, soooo bedbound- you still don't get to just lay there all day, you're now getting forcibly rolled around into different seating arrangements and positions alllllll day long to prevent the injuries that come from being stationary. The right thing to do would be to continue slapping her weak ass into a recliner or a wheelchair, anything besides laying down all day long.

If she struggles with severe sleepiness/low energy, I mean..... I can't take that seriously when you're behind blackout curtains laying in bed hours on end. That's the pinnacle of low-energy inducing environment.


The irony is that she's only able to withstand the way she lives because she's actually in good health. Eventually she will ruin it and develop issues due to neglecting herself- maybe get blood clots, or break something in a dizzy spell, or get a stupid injury that only someone severely deconditioned would get, but you have to be in pretty good health to afford to lay in bed all day sleeping and on your phone.

If you're recovering from a knee surgery, do you think they let you lay in bed all day? Hell no. They don't even let the little frail 85 year old ladies lay in bed all day. Because you decline, fast, from doing nothing in bed all day. The only person who can afford to do that for prolonged periods of time is someone who is otherwise physically healthy. If she was getting horrible bedsores she'd be getting moved and positioned more. She's not getting bedsores because she's obviously strong enough to move around. So there's no reason she can't sit up to eat properly.

If she threw a blood clot and stroked out, the hospital would want her up and walking the very first day of rehab. That's what I mean by "She must actually be in pretty good health otherwise, to be allowed to just lay in bed all day." If she lived in a nursing home, I'd argue it would be actual neglect for her to be treated this way. Not making an effort to get her out of bed, not ever seeing the sun, no socialization?

This just another varient of when anorexics post humblebrag about how uwu sick they are. It's like thinspo but for the "chronic fatigue" people.

I'm glad KF is a thing because I don't know anywhere else where I could share these types of thoughts without being shunned.
 
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bliblblblbbllb said:
You lose muscle and endurance FAST on bedrest. The solution.... get the fuck out of bed? Let's say she really does have SUPER sensitive eyes and is a frail waif. Her enabler husband could still strap on her eyemask, and throw her in a recliner chair next to a sunny window.
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It's going to be interesting, but on a really slow timeline, to see how Science YouTube treats her condition. Other presenters are periodically making guest videos/updates for her, because she's a member of their community and most of the "science bros" and ladies are younger and not yet personally acquainted with chronic illness.

It's a little like a one-woman version of the trans takeover: she's got the geek social fallacies in her favor, plus the most credulous and accepting group of skeptics you could ever meet--moreso because saying anything might mean a shunning.

Simone Giertz, one of the science YouTubers who's made a guest video for her, had a brain tumor removed and radiation afterward. She was open about her absences, but never sunk into self-pity or e-begging.
 
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bliblblblbbllb said:
If you're recovering from a knee surgery, do you think they let you lay in bed all day? Hell no. They don't even let the little frail 85 year old ladies lay in bed all day. Because you decline, fast, from doing nothing in bed all day. The only person who can afford to do that for prolonged periods of time is someone who is otherwise physically healthy. If she was getting horrible bedsores she'd be getting moved and positioned more. She's not getting bedsores because she's obviously strong enough to move around. So there's no reason she can't sit up to eat properly.
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This is really true. I was talking about this sort of thing with a physical therapist once, and he said that the older clients are the better clients. They realize how quickly you can become deconditioned, they value their independence, and they realize time is finite. Therefore, they're willing to engage fully with physical therapy to get back to where they want to be. He didn't actually use words like "malingering," but he did say that younger people "enjoy their drama." I can't remember how he phrased it, but he also said that young people generally don't yet have a litmus test for what it is to be really, truly, badly sick and incapacitated. The senior population, though, has experienced for themselves or have had to watch others go downhill. They know what's up.

My only question for Rose would be what account she normally uses to post here. I'm sure she's like Nina Jean and has spent plenty of time accusing other fakers of faking. As a sidenote, dead munchie Chelsea had a "positive" test for SPS only after IVIG, which apparently leads to a false positive-- so it can be done.
 
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Aunt Carol said:
It's going to be interesting, but on a really slow timeline, to see how Science YouTube treats her condition. Other presenters are periodically making guest videos/updates for her, because she's a member of their community and most of the "science bros" and ladies are younger and not yet personally acquainted with chronic illness.
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It's still early, she only munched out a little over a year ago, but I have a few points of data:
First is just the past year.
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Huh, looks like she's been on the decline! That big boost is from when this video came out where one of her friends shills for her and says she's oh so sick uwu. However, that is a seriously incomplete picture. When I last made a big post about Physics Girl, I hadn't looked at her very long-term Patreon performance:
physics girl patreon 2.png

My jaw dropped. That massive spike is from March 2023, when the video "An Update On Dianna's Health" came out, which was the true beginning of the munch saga. That one video gave her an increase in Patreon members of more than ten time. It was declining slightly throughout the rest of 2023 after that spike, until the year-end update came which generated another massive, albeit not as large spike, but the returns have been diminishing at a faster rate now than they were throughout 2023. I expect another video before the end of the year to get another boost when she realizes the numbers are going down.

Now, I want to make clear that at least as far as the 2023 declines go, that's not nearly as bad as you'd usually get for 9 months of no new videos. People hang on to her better than the average Youtuber who stops making videos. April 2024 was the "big" decline this year. No clue why.

She currently, as of the writing of this post, has 16,739 paid members and 25,610 total members (8,871 free members). The default pledge on her Patreon is $5, some will pledge less but many will pledge more. We can safely estimate she is making at least $75,000 a month right now, before she started munching she was likely making around $10,000 a month. She was making good money before, now she's making more than 99% of Americans. All for laying in bed all day. She so far has been very careful to not directly ask for money for medical bills etc.

But what about the views? The first video, "An Update On Dianna's Health," sits at 5.5 million views. It is her 12th most viewed video (but not short, Youtube classifies "videos" and "shorts" differently). The second video, "Dianna Health Update From SmarterEveryDay," only has 3.4 million views. Her editor has been recutting her old videos as Youtube Shorts to keep some semblance of activity, and they often do quite well, like this short which was uploaded 7 months ago and has 54 MILLION views. Virtually none of her shorts is new content though. The 9-day old video of her laying in bed all day to show how sick and delicate she is uwu still doesn't have 200k views. Probably doesn't mean anything though. There are munchies in the comments:
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In summary, Dianna will continue to munch for a long, long time. Possibly the rest of her life, which will be suspiciously long given all the illnesses she claims to have.
 
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Man, I feel like I need to shower and head to confession after reading the Rose updates.

I truly believe that we need to bring back shaming people for shit we all know is disgusting and damaging. We need to stop telling people it's OK to act like this. Clearly society being more forgiving and accepting has just created monsters.

Rose you're disgusting and fucked in the mind. I'm sure something awful started you down this road, but you are chosing to continue with it. There's no excuse for any of this.
 
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S.C.U.D. said:
In munchie news, Physics Girl has put on a show to prove she's really totally sick guise.
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Is it just me or does the light not move one iota in that supposed 8 hour time frame? In the little crack between the curtain and the window. I suppose it might just be that it is consistently so bright with respect to the rest of the scene that it doesn't look like it did.

I'm just not sure I buy it being that long. Not even going to the bathroom, girl must be dehydrated af if it is 8 hours. She is less active than my single anecdotal data point of an 89 year old with a spinal injury within 3 months of dying of cancer. as others have mentioned, older people take deconditioning seriously and keep going til they physically can't.

Also ew Rose. Didn't imagine it would all be her and not at least partly her helper human, she's lucky to find someone so degenerate willing to play into all her fetishes, I wonder if he gets pegged on the side.
 
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Kate Farms Shill said:
From what I got from the people who follow her more closely she was on IVIG when she got the antibody test and that could explain the presence of the anti-GAD. I don't know how true that is.
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Probably completely. A single dose of IVIG is pooled from anywhere from 1,000 to 100,000 donors, depending on who made it. Odds are good that you're getting just about every antibody homo sapiens are capable of producing.

Also, of all the munchie flexes, why is IVIG so hot? Is it because it's administered IV? Is it because it's expensive? My understanding is it makes you feel pretty shitty for a hot minute afterward because your own immune system does react to it, and it takes fifteen fucking forevers to infuse because you have to start slow and gradually increase the rate, unless you start feeling side effects, in which case you have to slow it back down. It's why monoclonal antibodies exist for various diseases: you don't have to deal with all those other antibodies you don't want causing side effects. Yet my own personal munchie has been on it every 4 weeks for YEARS. Even though I'm 99.999% sure it's making her worse, not better.
 
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I think there is a decent chance that Rose is lying. First she said it was mitochondrial, now its SPS w/ a positive GAD titre? There is absolutely no way any clinician would make that mistake. The diagnostics as well as signs and symptoms are nothing alike. The GAD autoantibody titre, by itself doesn't prove much of anything since there are ways to fuck with the titre and for the titre to be fucked with by extraneous factors that would lead to it being elevated. That alone would not be considered diagnostic for SPS. Also, the attached note to the ICD-10-CM code doesn't make much sense in the context of a G25.82/R76.0 finding. SPS and an elevated GAD autoantibody would not be the purview of hematology, it would be under immunology. To me, the math doesn't add up.

Kate Farms Shill said:
From what I got from the people who follow her more closely she was on IVIG when she got the antibody test and that could explain the presence of the anti-GAD. I don't know how true that is.
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Yes, IVIG, given within a certain period of time, preludes the use of an Anti-GAD autoantibody test due to interference.
 
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