Trainwreck The Empathic Nutritionist / Empathic Mamahood / Robyn Grogitsky-Ramirez / Luna Elva Ramirez / Glenn Ramirez / Atlas Glenn Standford Ramirez - Eyefucking Sociopath Selfie Addict Mother and Closeted Gymrat Pothead Father who use Instagram to Parade their Homemade Homunculus Tard Baby Created by their Refusal to Follow any Medical Oversights

[just lurking]

Hospice is for a prognosis of 6 mos or less, though it can be extended, but there’s no way Luna is living until her 20s.

Lunas on pediatric hospice, which means its indefinite but you're right about luna living to her 20s.

Unless robyn somehow keeps the corpse going.. god i hope not (insert bleeding eyes emote)

 

[TheCakeIsALie]

Lunas on pediatric hospice, which means its indefinite but you're right about luna living to her 20s.

Unless robyn somehow keeps the corpse going.. god i hope not (insert bleeding eyes emote)

Are we sure it’s hospice and not pediatric palliative care? There is a difference.

Nationwide Childrens hospital does have a limit of 6 mos or less for their hospice program. Not all programs are indefinite.

 

[just lurking]

Are we sure it’s hospice and not pediatric palliative care? There is a difference.

Nationwide Childrens hospital does have a limit of 6 mos or less for their hospice program. Not all programs are indefinite.

Robyn said it was pediatric hospice but that doesn't make it true I suppose. Is ped palliative care indefinite? Has Robyn said she takes luna to Nationwide?

 

[everybody in Portugal]

Are we sure it’s hospice and not pediatric palliative care? There is a difference.

We've discussed this in-thread many moons ago I believe, but basically since Blob is our main source of info and she's a seriosuly unreliable narrator we will likely never know for sure.

Given the obvious lies and lies by omission and twisting-of-the-truths we see just in that last batch of Q&A posts alone, anyone trusting Blob to know what she's talking about or tell the unvarnished truth when it makes her look bad is a fool, no matter how much we might collectively know about hospice and/or palliative care criteria from state to state or worldwide.

She will always tell us whatever makes her look best, avoids the truth of how she wrecked her daughter the most or shills the most shitty MLM products, that's about all we can say for her and her 'truths'.

 

[TheCakeIsALie]

Robyn said it was pediatric hospice but that doesn't make it true I suppose. Is ped palliative care indefinite? Has Robyn said she takes luna to Nationwide?

Pediatric palliative care is indeed indefinite.

 

[Ms. Marple]

Robyn: “We didn’t discover her unique brain until she was three months old.” In other words, we didn’t realize we had ruined our daughter’s life due to stalled labor and refusal to go to the hospital only after she started seizing..

 

[Awwtismo]

According to this hospice program out of Las Vegas, Nevada:
"Any child who is diagnosed with a terminal illness (from the prenatal stage to age 21) and whose pediatrician or specialist agrees that hospice-level care is appropriate for them".
https://procarehospice.com/pediatrics/

Slide 10 of this Nevada Medicaid guidelines states:
Pediatric hospice recipients are allowed palliative and curative services concurrently under the Affordable Care Act.
When an adult recipient reaches one year of hospice services, the recipient must have an Independent Physician Review completed

https://www.medicaid.nv.gov/Downloads/provider/Archives_of_Hospice.pdf

I would think only 6 months on hospice would be the ideal scenario for Medicaid and Medicare, but I guess if a physician's review is completed annually it could be extended. Hospice frees up a lot of extra dollars for continued care that Medicaid or Medicare normally wouldn't offer.

Spoiler: Edited to Power Level

I worked for about a year in hospice, but in another state and never with pediatrics. I do remember being told it was very important in our documentation to show progressive decline, so if the patient didn't die after one year the doctor was more likely to petition the state for an extension of services. Also, hospice sucked, but not because of dealing with death. It sucked because there was rampant drug diversion in the office where I worked.

 

[everybody in Portugal]

Robyn: “We didn’t discover her unique brain until she was three months old.” In other words, we didn’t realize we had ruined our daughter’s life due to stalled labor and refusal to go to the hospital only after she started seizing..

Iirc they didn't discover it until after people online told Blob that her child was literally starving to death because she couldn't latch, because Blobyn strangled her with her birth canal. But we can't expect things like the grim truth to get in the way of the Rodriguez family mythos now, can we.

 

[TheCakeIsALie]

According to this hospice program out of Las Vegas, Nevada:
"Any child who is diagnosed with a terminal illness (from the prenatal stage to age 21) and whose pediatrician or specialist agrees that hospice-level care is appropriate for them".
https://procarehospice.com/pediatrics/

Slide 10 of this Nevada Medicaid guidelines states:
Pediatric hospice recipients are allowed palliative and curative services concurrently under the Affordable Care Act.
When an adult recipient reaches one year of hospice services, the recipient must have an Independent Physician Review completed

https://www.medicaid.nv.gov/Downloads/provider/Archives_of_Hospice.pdf

I would think only 6 months on hospice would be the ideal scenario for Medicaid and Medicare, but I guess if a physician's review is completed annually it could be extended. Hospice frees up a lot of extra dollars for continued care that Medicaid or Medicare normally wouldn't offer.

Spoiler: Edited to Power Level

I worked for about a year in hospice, but in another state and never with pediatrics. I do remember being told it was very important in our documentation to show progressive decline, so if the patient didn't die after one year the doctor was more likely to petition the state for an extension of services. Also, hospice sucked, but not because of dealing with death. It sucked because there was rampant drug diversion in the office where I worked.

The only reason I brought up palliative care is because people confuse it with hospice, and it’s hard to know which is which. We only have Robyn to rely on and as others have pointed out, she’s not a reliable narrator and of course, delusional since she thinks woo woo will cure Luna. I have a hard time believing she would enroll her child in a program designed for the end of life care. It would conflict with her false belief that her kid will get better.

 

[Bakarina]

If you're going to let Atlas "hold" Acorn, please actually hold the baby. Atlas does not have the strength to hold his infant brother like that for long.

 

[Awwtismo]

The only reason I brought up palliative care is because people confuse it with hospice, and it’s hard to know which is which. We only have Robyn to rely on and as others have pointed out, she’s not a reliable narrator and of course, delusional since she thinks woo woo will cure Luna. I have a hard time believing she would enroll her child in a program designed for the end of life care. It would conflict with her false belief that her kid will get better.

I agree. I always thought there was palliative care, hospice, and curative medicine. Back when I was doing hospice, palliative care augmented hospice care and also curative care. Curative care and hospice were very separate from each other. Like I said I never did pediatrics, but it was a very long time ago in another state. Things have probably changed. What I do know is choosing hospice frees up lots of money. It did then and it does now.
Personally, I'm a little surprised a parent can pursue all three simultaneously. Luna being able to receive speech and feeding therapy shocks me if she is hospice with a terminal diagnosis. Physical therapy seems totally fine, if it was just teaching and doing passive range of motion and not trying to force her to walk. I've seen people that have benefited greatly from passive ROM to prevent contractures and bed sores. Sadly, I think Luna only gets this type of therapy once or twice a week and not from Robyn daily which is what she needs.

 

[₲litches]

Robyn is being cagey with her language here for sure. I’ve seen patients “graduate” from hospice to palliative before, but I have a hard time believing Luna has.

Spoiler: Hospice benefit information

To be very clear: hospice is not just for 6 months. Two doctors must agree that the diagnosis is a terminal illness with a life expectancy of 6 months or less. If the patient beats the odds (which is very very common), the doctor reviews the nurses charting, assesses the patient themselves, and documents that the original condition is not cured; they are still declining, just more slowly than anticipated. They can then re-certify them for the next “hospice benefit period”. If I remember correctly, 90 days from the original diagnosis, then every 60 days after. There’s no penalty to this - it’s a normal and expected part of hospice care. Maybe it’s up to the medical director of each individual hospice, and maybe pediatric hospice is different, but I don’t recall a doctor ever graduating a patient to palliative unless they actually showed improvement in condition, like gaining weight over several benefit periods, or walking around for days after being bed-bound. The decline could be slow or even a “stair step” pattern with weeks of no documented decline, but only improvement in condition over a benefit period or two would cause them to drop someone as a hospice patient and offer palliative instead.

Of course Luna is not improving, no matter how much Robyn wants to believe she is. I genuinely have no clue if it’s willful misunderstanding, stupidity, narcissistic dishonestly…or a weird combo. Grief (especially protracted grief) does odd things to the mind, even those not prone to magical thinking and delusions of grandeur.

“Oh, it’s deffo palliative, but it’s called hospice because there’s no legal distinction to medical terms! Whatever, idc, but Luna is NOT dying”. Sure, Robyn.

 

[KiwiFarmer9993!]

I propose that we scribble out Robyn's face anytime we take a screenshot or post pictures.

Obviously we can't do that with the videos, but we can deprive Narc mom of her eye fucking and need for constant attention!

I think that part of the weight loss is because she is no longer a toddler, but rather a school aged child? baby chub is not so prevelant at 5+.

She's 5-6, I am pretty sure the toddler stage is from 12 months of age to about 4. I may be wrong though.

It's only part of the reason, the rest is probably the deeper parts of her brain being affected by her condition and she is not absorbing any nutritional value or calories from the goy slop.

 

[TheCakeIsALie]

View attachment 6232061I propose that we scribble out Robyn's face anytime we take a screenshot or post pictures.

Obviously we can't do that with the videos, but we can deprive Narc mom of her eye fucking and need for constant attention!View attachment 6232072
I think that part of the weight loss is because she is no longer a toddler, but rather a school aged child? baby chub is not so prevelant at 5+.

She's 5-6, I am pretty sure the toddler stage is from 12 months of age to about 4. I may be wrong though.

It's only part of the reason, the rest is probably the deeper parts of her brain being affected by her condition and she is not absorbing any nutritional value or calories from the goy slop.

The low set ears are so apparent. No one’s ears should be so low it’s almost at the height of their mouth.

The brainstem controls digestion and is unaffected in MCE. Could just be Robyn not feeding her enough.

 

[Spicy Meatball]

The brainstem controls digestion and is unaffected in MCE. Could just be Robyn not feeding her enough.

I also wonder if she’s feeding Luna enough. I may have missed it, but has she talked about a nutritionist helping her optimize the tube feeds? She puts all kinds of stupid supplements and woo foods in her tube but who knows if she’s getting enough calories.

 

[Breadbear]

I also wonder if she’s feeding Luna enough. I may have missed it, but has she talked about a nutritionist helping her optimize the tube feeds? She puts all kinds of stupid supplements and woo foods in her tube but who knows if she’s getting enough calories.

But Robyn's a nutritionist.

 

[TheCakeIsALie]

But Robyn's a nutritionist.

I know you are saying this in jest. But I am assuming if she went to college and got a degree for this, it focuses on adults. Pediatrics is different, because children are growing and are expected to gain weight. An adult is not. And it probably doesn’t cover children with disabilities, which has its own considerations. Eg: a child with PWS has a very low metabolism compared to a normal child, a child with DS may have feeding issues and so on

 

[ByeByeBlackbird122623]

I know you are saying this in jest. But I am assuming if she went to college and got a degree for this, it focuses on adults. Pediatrics is different, because children are growing and are expected to gain weight. An adult is not. And it probably doesn’t cover children with disabilities, which has its own considerations. Eg: a child with PWS has a very low metabolism compared to a normal child, a child with DS may have feeding issues and so on

Anyone can claim they are a “nutritionist” only people who have gone to school, have an advanced degree, and proper licensure can call themselves a Dietitian. This has been discussed throughout the thread. Blobyn is a nursing school dropout who can’t even proofread her nonsense MLM woo claims. She did not go to school for “nutrition” and she is in no way a licensed anything.

 

[Trombonista]

"I'll should"

 

[Girahira]

View attachment 6225872

I was thinking Robyn's looking like haggard roadkill.

Robyn looks like the mom that’s one screaming toddler, gymbrah ‘lo siento hon gotta work overtime’ msg and broken plate away from drowning her kids in a bathtub