Trainwreck The Empathic Nutritionist / Empathic Mamahood / Robyn Grogitsky-Ramirez / Luna Elva Ramirez / Glenn Ramirez / Atlas Glenn Standford Ramirez - Eyefucking Sociopath Selfie Addict Mother and Closeted Gymrat Pothead Father who use Instagram to Parade their Homemade Homunculus Tard Baby Created by their Refusal to Follow any Medical Oversights

[Evan]

I’m on the fence. Plenty of kids have shitty, neglectful parents. They still manage to acquire speech at 3.5. There has to be more to it than not being spoken to enough at home.

Yeah, if the children of neglectful trash parents that leave their kids to their own devices 99% of the time and only speak to them to grunt about how loud and annoying they are can learn to speak, Atlas could. I've seen kids come out of some gruesome situations and they still had speech.

They DO talk to him, if sparingly, and around him. They don't seem to reinforce and shape his verbal output in any way, but trash parents don't do that a lot. He sees modeled speech from.the therapists even though they don't work with him directly (I think he'd learn SO fast if they had 3x weekly speech therapy for HIM!) He's not locked in an attic with nobody ever talking to him like that one girl that was found with no language.

And it could be a combination of the mechanical issues like the tongue tie snip(it could even be rotted teeth - do we think she's brushing his teeth regularly? - which a ST could investigate), birth, parenting, autism, and even another DX like childhood apraxia of speech. All of this can be addressed by a qualified therapist. Maybe someone should push at least as hard for their son as for their daughter. Give us Atlas speech therapy time videos, bitch.

 

[athousandrustynails]

she beleives all babies have tongue ties).

Another bizzare contradiction of the nAtUrAl crowd... If people are "naturally" tongue tied why would you intervene? And how have the rest of us un snipped plebs managed just fine? I know I'm asking for logic in an inherently illogical system but damn it's so dumb and yet they are so smug and emphatic about their retardation.

 

[GenociderSyo]

 

[GainsGoblin]

I have been wondering if the unnecessary tongue snip resulted in some kind of scar tissue that’s impeding Atlas’ ability to develop speech. I know that people who have severe tongue ties will sometimes need them fixed in order to treat speech delays, but my guess is that they aren’t doing great work at the Infant Tongue Butchering Factory that Robyn loves so much.

If that is the reason for his speech delay, it would be very On Brand for Robyn to not address it at all, because then she would have to admit that she needlessly injured another child.

I know we all have such high hopes that Atlas and Wood will somehow rise above their circumstances, but realistically I think their developmental path will be as follows:

Spoiler: Spoiler for depressing speculation

Robyn is going to “unschool” the boys. She knows a school will make her address their issues and potentially call CPS if her resistance amounts to obvious negligence. But she’s too dumb and self absorbed to actually teach them anything, so she’ll just let them rot in front of the TV all day and pretend to not hear anyone who expresses concern that her teen sons can’t read. The only time they will ever receive positive attention from Glenn or be allowed to interact with other kids is when they play sports, so they will become dumb jocks. During this time, Robyn and Glenn will pretend that the boys totally going to college on a full ride sports scholarship and entertain dreams of pro-sports glory.

They will not go to college because they cannot fucking read and college sports scholarships are pipe dreams. When they are around 16 years old Glenn will get them entry-level jobs in construction. They will spend the rest of their lives breaking their bodies in manual labor positions to make barely-enough money to support themselves. They will never be in an environment that supports developing critical thinking skills so they will become as confidently ignorant as their own parents. Glenn and Robyn are fine with this because Glenn believes higher education will brainwash his sons into liberal faggots and Robyn will not tolerate her sons living independent lives.

At least one of them will get a girlfriend pregnant early. They will all live with Robyn and Glenn. Robyn’s narcissism will erode their romantic relationship, hastening their inevitable separation. They will become weekend dads and Robyn will be all-too-happy to step in and “help” with the grandchildren. Robyn will do all of the actual “raising” while Atlas and/or Wood hang out in the garage gym all day. At least one of the boys gets hooked on opioids. The Generational cycle continues forever. The end.

 

[AugustusGloo]

Another bizzare contradiction of the nAtUrAl crowd... If people are "naturally" tongue tied why would you intervene? And how have the rest of us un snipped plebs managed just fine? I know I'm asking for logic in an inherently illogical system but damn it's so dumb and yet they are so smug and emphatic about their retardation.

idk if this is a real question but if a kid has an actual, severe tongue tie, like to the tip of their tongue, it can interfere with eating whether it be bottle or boob. So a kid has to work harder to latch with their wonky tongue and then may not eat enough and be cranky or underweight. In older people, it can interfere with speech sounds and even stuff like increases risk of cavities since people clear the junk from their teeth with their tongue. some people are now saying it can be associated with sleep disordered breathing, but I haven't done my research to see if that is BS. Most reasonable doctors/dentists will only intervene if there is a real tongue tie that would intervene with nutrition. A lot of people have mild tongue ties and due just fine but the crunchy weirdos now say tongue ties are the reason people have ADHD or whatever. MOST babies obviously dont really need their tongue tie clipped and probably a ton of adults out there have a mild tongue tie that they don't even realize they have.

And it could be a combination of the mechanical issues like the tongue tie snip(it could even be rotted teeth - do we think she's brushing his teeth regularly? - which a ST could investigate), birth, parenting, autism, and even another DX like childhood apraxia of speech. All of this can be addressed by a qualified therapist. Maybe someone should push at least as hard for their son as for their daughter. Give us Atlas speech therapy time videos, bitch.

The thing with this is that "speech" and "language" are two different constructs. Speech is how the words sound. Language is the meaning of the words. If it was bad teeth or a weird tongue, I would expect his speech to be messed up but not his language. So that is the classic speech impediment or just toddler talk where the kid babbles away but no one can really understand them. But the kid knows what they are saying, their tongue/mouth just doesn't make the sounds right. This is actually really treatable with speech therapy. Atlas, from what we can hear, is sometimes eerily quiet. It does not seem he has the language, which is more of a brain based/neurodevelopmental issue. His behavior doesn't scream autism from what we see but it is weird AF that he's almost four and doesn't talk. It could be a lot of things but I doubt it has much of anything to do with his tongue.

Most likely contenders (unless he talks just fine but robyn just doesn't care enough about him to show us) are autism, severe apraxia, or future learning disability. all of which would benefit from intervention/attendance at a developmental preschool (source: I work in preschool special ed)

I’m sure she likes using this label better because people generally seem to understand that cerebral palsy can “just happen” for all sorts of reasons, so she never has to explain WHY Luna has it. It also downplays everything else wrong with Luna because there are lots of people with palsy who are of normal intelligence. So she can pretend Luna “just” has physical issues and that her brain isn’t actually a half-melted slushy. Just a lil palsy and a lil hydrocephalus. Nothing she can’t fix with PT, a shunt, and Reiki.

Hate to say it but Luna probs does have a real diagnosis of cerebral palsy. CP is usually caused by some kind of birth injury, it doesn't really "just happen" (although sometimes the birth injury can be so mild it isn't really noticed until the kid is late on motor milestones). Obviously there is a range of severity and she is a 1000 out of 10 on that scale. She is getting closer and close to admitting that her issues were caused by home birth gone wrong... but I don't think she'd ever say it.

 

[GainsGoblin]

To clarify, I’m aware that she probably qualifies for a real diagnosis of CP. My point is more centered around the idea that the CP is secondary to MCE and Robyn conveniently chooses to not acknowledge that.

 

[Barbarella]

He's communicating whole-ass novels to Blobyn telepathically, you guys.

Sadly, I don’t think he’s important enough in her mind to be a telepathic child who speaks to her.

I think the sad story of Atlas and Woody will be partially true. Robyn won’t send them to school, and instead will homeschool. Of course, she won’t actually homeschool so they won’t learn anything.

My scenario is darker. Atlas is a bright, engaging child for now but as he gets older and can’t speak, or has a speech impediment, can’t read or do simple math or know any history, but with a muscled body, he could start boosting cars and burglarizing places and end up in jail. As for Woody, we don’t know about his potential or lack of yet but in a house with disengaged parents, a brother with future emotional problems, and no outside influences, it won’t be good. School could be a savior for these kids .. but no vaccinations, no school.

I used to read the Kailyn thread, and her daughter talked so late I thought it was apraxia. Apparently she ended up speaking around 5 but she’s lived her entire live in the same house her mother did, being raised by her grandparents, and she seems to be very slow. I don’t keep up with that depressing situation anymore but her life kind of went the way everybody predicted as far as we can tell. Pink, dolls and TV. Who knows if she can even read? (Maybe she’s finally in school but she wasn’t at 6.) she’s about 10 or 11 now.

It’s sad how much stupid and neglectful parents can damage a child’s entire life.

 

[athousandrustynails]

idk if this is a real question

It was, but it was a question about cutting the tongues of non tongue-tied children, as Roby is doing.

 

[Turtlebees]

I'm not seeing the classic autism signs, and I've been around a lot of autistic boys his age, but he should be communicating with at least simple sentences by now. Something is wrong.

If Atlas met his speech milestones Robyn wouldn't have his videos muted. Childhood AOS is a real possibility, and with an SLP in the home regularly for Luna this is not something anyone in that household is unaware of. And the issue isn't child neglect; his parents speak to Atlas conversationally, even in the clips posted, as I'm sure do his grandparents plus other extended family and for certain the multiple therapists who visit for Luna do. People here get too caught up in trying to villanize cows sometimes.

I'm leaning toward a non-autism cause, but I'm not going to rule out autism 100%. I've known boys Atlas' age who also played and responded to spoken commands appropriately around familiar people but couldn't communicate vocally aside from screaming, but there were many subtle signs, including language delay beyond speech problems, with them that Atlas doesn't display. But still ... one little guy I worked with a lot was snuggly and well-behaved with me at age four - strangers would gush over the polite little golden curled "angel" when I'd take him on outings - but a terror who could only scream and throw things in the wrong setting. He eventually was able to integrate into classrooms and developed a love of computers but he hasn't learned to speak beyond echolalia. I see a higher functioning version of him in Atlas sometimes.

 

[Buttercream]

Atlas is adorable and the photo is almost a normal family picture until you realize that Luna is melting in it (why is her hair so long??)

The way her ear sits on her chin is actually terrifying. She has to be deaf, not that she has any cortex to process sound, but that in itself looks painful.

 

[Thomas Eugene Paris]

"There's no unsafe amount you can take" of acemannan? There's no way that's true. Even if it's just bullshit it's got some sort of chemical substance in it that affects you in some way, there's bound to be an unsafe dosage.

Everyone except Robyn has understood this for most of human existence. Way back in 1538, the Swiss physician and philosopher Paracelsus wrote, "All things are poison, and nothing is without poison; the dosage alone makes it so a thing is not a poison." Too bad Paracelsus didn't have an Instagram, I guess.

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The way her ear sits on her chin is actually terrifying. She has to be deaf, not that she has any cortex to process sound, but that in itself looks painful.

Luna is deaf because the expansion of her cranium has completely occluded her ear canals. You are correct, however, in thinking that she doesn't have enough brain left to process sound, anyway.

 

[AugustusGloo]

If Atlas met his speech milestones Robyn wouldn't have his videos muted. Childhood AOS is a real possibility, and with an SLP in the home regularly for Luna this is not something anyone in that household is unaware of. And the issue isn't child neglect; his parents speak to Atlas conversationally, even in the clips posted, as I'm sure do his grandparents plus other extended family and for certain the multiple therapists who visit for Luna do. People here get too caught up in trying to villanize cows sometimes.

There is one clip where he says "yeah" in response to something Robyn says. Based on his pronunciation of the word and general silence my armchair dx is childhood apraxia over autism, but could be either. OR, he can't hear -- if Robyn is treating routine ear infections with like coconut oil and sunlight or whatever, he could have previously ruptured/scarred eardrums.

 

[Buttercream]

Everyone except Robyn has understood this for most of human existence. Way back in 1538, the Swiss physician and philosopher Paracelsus wrote, "All things are poison, and nothing is without poison; the dosage alone makes it so a thing is not a poison." Too bad Paracelsus didn't have an Instagram, I guess.


Luna is deaf because the expansion of her cranium has completely occluded her ear canals. You are correct, however, in thinking that she doesn't have enough brain left to process sound, anyway.

Yeah. I figured that Robyn's inability to adhere to proper use of the helmet she was given meant that Luna's inner ear structures were entirely crushed before the MCE eroded what little was left of her temporal lobes. Just another example of negligence.
Personally, I'd love Luna's MRI, just out of morbid intrigue, though you don't need to be a clinician to anticipate what it will look like. I think more than anything I'd like to know how much residual thalamic, hypothalamic and brain-stem structures remain unaffected by the cysts (or not beginning to herniate through the foramen magnum). It's probably been discussed in the thread before, but the fact that she doesn't grow suggests that even these are affected.
I noticed that her sunset gaze seems more pronounced than before which makes me suspicious herniation could indeed be what's finally going to take her out. That shunt almost certainly no longer serves its purpose. The cysts have probably grown or merged so much that it just drains fluid from one pressurized cavity into another.
Even if Robyn got/gets the MRI, I doubt we'll see it. Even in this dire situation she still seems to try underplay how disabled Luna is.

 

[TheCakeIsALie]

I’m

Yeah. I figured that Robyn's inability to adhere to proper use of the helmet she was given meant that Luna's inner ear structures were entirely crushed before the MCE eroded what little was left of her temporal lobes. Just another example of negligence.
Personally, I'd love Luna's MRI, just out of morbid intrigue, though you don't need to be a clinician to anticipate what it will look like. I think more than anything I'd like to know how much residual thalamic, hypothalamic and brain-stem structures remain unaffected by the cysts (or not beginning to herniate through the foramen magnum). It's probably been discussed in the thread before, but the fact that she doesn't grow suggests that even these are affected.
I noticed that her sunset gaze seems more pronounced than before which makes me suspicious herniation could indeed be what's finally going to take her out. That shunt almost certainly no longer serves its purpose. The cysts have probably grown or merged so much that it just drains fluid from one pressurized cavity into another.
Even if Robyn got/gets the MRI, I doubt we'll see it. Even in this dire situation she still seems to try underplay how disabled Luna is

Brain stem is unaffected with MCE. But I too, would like to see her scans as well, out of sheer curiosity.

 

[everybody in Portugal]

Could she even get a fresh MRI anymore? I know she is potat and fairly immobile, but she's seizing at seemingly every tiny little stimulus in Blob's videos, and there's no sentience there to tell to keep still even when she isn't...

 

[Thomas Eugene Paris]

Those who are interested in seeing an MRI might be interested in the multicystic encephalomalacia cases posted at Radiopaedia.

 

[AugustusGloo]

Could she even get a fresh MRI anymore? I know she is potat and fairly immobile, but she's seizing at seemingly every tiny little stimulus in Blob's videos, and there's no sentience there to tell to keep still even when she isn't...

honestly there has gotta be a neurologist who finds luna fascinating that yeah, they'd give her an MRI. Especially a doctor looking to publish something. luna would be a hell of a case study. She'd probably be sedated and they could get the general lay of the land even with a little movement.

 

[Scream Tail]

Those who are interested in seeing an MRI might be interested in the multicystic encephalomalacia cases posted at Radiopaedia.

It's fascinating but also horrible that there is real children on the other side of these MRIs

 

[JanuaryViolet]

(Maybe she’s finally in school but she wasn’t at 6.) she’s about 10 or 11 now.

She's not.

sorry. I know this is off-topic for this thread.

 

[TismFarmer]

Could she even get a fresh MRI anymore? I know she is potat and fairly immobile, but she's seizing at seemingly every tiny little stimulus in Blob's videos, and there's no sentience there to tell to keep still even when she isn't...

I just assumed they would simply strap her head/body/limbs down in such a way so there was no movements possible. It's not like she's going to be distressed because she can't move...