Community Munchausen's by Internet (Malingerers, Munchies, Spoonies, etc) - Feigning Illnesses for Attention

[thottieclitmaster]

I know this isn't quite the right place since lyme disease is very real, but I stumbled across the reel on Instagram, a woman using honey bee stings to treat her lyme disease. Seems like some woo woo bullshit after some cursory research, allegedly the venom breaks down the outer biofilm of the lyme bacteria and allows treatments to be more effective, but it takes a much higher dose than a single sting and she says the treatment is going to take years. She claims the bees are "end of life" so it's not like she's going to be killing off thousands of healthy bees, but it. still reeks of horse shit to me. Anyone more medically inclined care to weigh in?

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Can these people stop killing bees for stupid shit like this? The bees contributes way more to our society and world than these sickfluencers

 

[Otterly]

bees

Bee venom seems to have some interesting properties, I’ve seen it touted as being of potential use in arthritic conditions, and there are a few research groups looking at various toxins (including apitoxins) becasue they’re a fascinating chemical cocktail. It’s got some peptides and proteins in that break down cell membranes, work with inflammation and dilate blood vessels and all sorts of stuff.
I would be very wary of multiple bee stings. It also contains catecholamines and that’s a quick way to a massive heart attack (which is what done people sting multiply for of.)
Bee and other venoms are undoubtedly going to be a source of pharmaceuticals - but letting bees sting you at will is not a great idea. A single sting can kill if you’re allergic as well, and allergy can develop.

 

[asipasip]

Ex had some bullshit lip plumping chapstick thing with been venom in it. It burned and made your lips swell up a bit that's for sure.

 

[Womb Wizard Victim]

(which is what done people sting multiply for of

Have you had a stroke Otterly? Quick, get that Sickstagram and Gofund me up and running. You'll be rolling in pity-bux in no time. Remember to get some pink dye for your service porcupine.

 

[Otterly]

Have you had a stroke Otterly? Quick, get that Sickstagram and Gofund me up and running. You'll be rolling in pity-bux in no time. Remember to get some pink dye for your service porcupine.

I have severe chronic phone fagitis. BRING ME THE BEES and a cane and a variety of your finest toobs

 

[GrouchPotato]

All the fun munchies are dying (or getting lazy and giving up the grift). I have no interest in the ones we're left with, except for maybe Tilly and the one on a vent (with all the bacterial cooties), and judging by KFS's latest recaps, sounds like she may be circling the drain.

I feel old, but I miss the Sara Jeans, Rens, and Annelises of the world. I miss Janice's skinwalking. Just some inept, attention-starved losers with no shame or savvy, but with distinct personas.
The new tiktok munchies could never.

 

[Baumstriezel]

The new tiktok munchies could never.

I’m angry at myself for not saving it, but I was browsing tiktok and came across a video of a girl doing backflips on her bed frame, and the caption was about how she learned to do acrobatics in order to… avoid walking on the floor, on account of her POTS.

Crazy is alive and well over there, it’s just waiting to be discovered.

 

[Elderly beef taco]

I know I've stumbled on a few tiktok muchies that looked interesting but, beyond replying to comments claiming they were faking it, there was little about them.
There was a fat chick claiming she had no vocal cords, for instance, yet could talk fine. Just sounded raspy and it wasn't consistent between videos. Weird but not worth looking into beyond that.

 

[VisceraNexus]

One of the ones I've considered bringing up before is an adult who first claimed PANDAS which is strictly an issue in children, then tourettes, and then claimed FND but realized that meant it was in her head, and eventually started claiming Lyme and encephalitis with these really ridiculous videos of seizures and "stiffening episodes" that bring back memories of Chelton. Unfortunately I'm not much of a writer or archivist, and she's also very repetitive and got boring. There are certainly crazies out there, it's just that a lot of them are carbon copies of each other and just dull.

 

[WarpedTourWasFun]

There's a girl I've been watching on IG. I'm not really sure if she would go in the muchie thread, because it's only one of the scams she's running.
She's munching endometriosis (a bad enough case that she needs a wheelchair, except when she doesn't) but she's also just batshit crazy in enough ways that she has 2 (that I could find) subreddits devoted to her.

She also claims autism (which was diagnosed as BPD, but don't say she has BPD, because Jesus healed that in her) and has been documenting her marriage living on a budget (expired food) and probably the most horrifying part, her pregnancy.

 

[chronicallybullshitting2]

Alexandra Elaine Adams
Aka deafblind doctor role-playing munchie is back active and posting about how she had to take a 2 year hiatus due to "people" talking about her illness and how people on the Internet effected her ability to become a doctor and how she was silenced by the courts and the situation of suing has financially crippled her family.

Her isntagram is pretty milky at the moment

 

[unwieldy_object]

Digging deeper in some of the other girls operated on, it seems that almost all of them have had infections in Malaga. And most of them had complications which required more surgeries (and more money). I’m honestly quite surprised nobody has died yet, although i don’t know enough about the risks that come with these surgeries.

I'm really curious about this surgeon that I'd never heard of before but had a boring Swedish teenage munchie pop up in my reels several times and I had to ask KFS a few weeks ago if she's heard of him and now you're popping up with him.
The kid I have had in my reels is not worth anything but I got curious about the diagnosis in Germany (who is making the diagnosis and recommending this man?) and the surgery failing because of course it did.
The only really interesting thing here is that this girl's parents (I don't know if they are both or just one) are from the Netherlands, so did they get the recommendation to go to Germany for a diagnosis from some other Dutch munchie or what?

 

[Factitious fighter]

The doctor in Germany is dr. Scholbach. He has his own site Link . He has a private clinic where he just does scans for compression syndromes. I think i know the Swedish girl you are talking about, she is mutuals with all these girls. They seem to encourage each other where to get a diagnosis and where to get surgery.
These conditions are rare (about 0.1-0.5% of the population). I find it very hard to believe that in a year time a dozen women from one small country get the same diagnoses and surgeries at the same doctors.

One of the women i watch is leaving for Malaga soon. The other women that have already had surgery post daily about how bad their gastroparesis is. And one of them is complaining of more stomach complications from the surgery.

Edit to add: interestingly this German doctor is mostly against the treatments offered in Spain, he recommends physical therapy instead of stents and autotransplantations.

 

[Potatis Salad]

The doctor in Germany is dr. Scholbach. He has his own site Link . He has a private clinic where he just does scans for compression syndromes. I think i know the Swedish girl you are talking about, she is mutuals with all these girls. They seem to encourage each other where to get a diagnosis and where to get surgery.
These conditions are rare (about 0.1-0.5% of the population). I find it very hard to believe that in a year time a dozen women from one small country get the same diagnoses and surgeries at the same doctors.

One of the women i watch is leaving for Malaga soon. The other women that have already had surgery post daily about how bad their gastroparesis is. And one of them is complaining of more stomach complications from the surgery.

Edit to add: interestingly this German doctor is mostly against the treatments offered in Spain, he recommends physical therapy instead of stents and autotransplantations.

Just adding an Archive of Herr Doktor Professor's homepage.

 

[Munchie_Minder]

Hello my lovelies.. especially you KFS .. been busy with real life for quite a bit but I saw that our infamous no-no casts munchie has finally given her family relief from her decades long reign of terror. What a sad, pitiful life. I really hope her family has all the support they need to grieve the loss of her potential and does not blame themselves. Her mom, in particular, was trying so hard for so long to help her.

Xoxoxo

 

[Polychromos]

Edit to add: interestingly this German doctor is mostly against the treatments offered in Spain, he recommends physical therapy instead of stents and autotransplantations.

That's not really true. He funnels the girls to the German butcher Dr.Sandmann. They both have to pretend to be in favor of physical therapy and the like to keep their charade of being legitimate doctors giving legitimate diagnosis up. That is their whole shtick. They found a way to find some obscure compressions, that seem to occur way more often than they pretend (because usually no one looks for them, because most of the symptoms they cause are dubious at best, or only affect old people). He had to search around Tilly's body for two days to find anything.
It's understandable, he doesn't want them to go to Spain, he wants them to go to his butcher.

I wanted to "review" one of their articles for this thread, but I felt like it was boring and it was very hard to not a-log to hard.
The TL;DR is: Dr.Scholbach specifically writes articles to attract munchies. He points out how patients are usually female and have hEDS. He mentions that these patients have a variety of symptoms that can't be fully explained by the compressions. He tries to make it sound like the compression symptoms might be worse than we thought, but it would be obvious to every non munchie reading this, that this is complete nonsense and he's just pandering. Even in that article he has to point out that the most appropriate action is physical therapy.

Both of them are very careful about what they publish, but it's pretty obvious that they tell their patients completely different things and sell it as a cure for their real or fake problems.

Sorry for the long rant, I might just finish my other post after all.

 

[Factitious fighter]

That's not really true. He funnels the girls to the German butcher Dr.Sandmann. They both have to pretend to be in favor of physical therapy and the like to keep their charade of being legitimate doctors giving legitimate diagnosis up. That is their whole shtick. They found a way to find some obscure compressions, that seem to occur way more often than they pretend (because usually no one looks for them, because most of the symptoms they cause are dubious at best, or only affect old people). He had to search around Tilly's body for two days to find anything.
It's understandable, he doesn't want them to go to Spain, he wants them to go to his butcher.

Thank you for this correction! Definitely makes sense that he has to cover it up, and also because he is basically a recruiter for Dr Sandmann. I’d definitely like to hear more about his articles.
It’s interesting that you mention hEDS. All these women who got their first diagnosis in germany claim hEDS, while those who go straight to Spain for diagnostics don’t.

 

[OrSoHelpMe]

I found the Reddit for the tattooed face person faking Down syndrome, and people she went to school with keep commenting in the Reddit. Apparently the trans woman she calls Mame is actually her bio dad, the entire family is pretty mentally ill, and I found another video of her signing (featuring Mame off camera)

 

[Not_a_Doctor]

Alexandra Elaine Adams
Aka deafblind doctor role-playing munchie is back active and posting about how she had to take a 2 year hiatus due to "people" talking about her illness and how people on the Internet effected her ability to become a doctor and how she was silenced by the courts and the situation of suing has financially crippled her family.

I notice she has changed her byline to read “first deafblind person training to be a doctor”. Must have got some criticism for making it sound like she was qualified and practicing.

She makes it sound like she was in some prisoner of war camp - THE HARDSHIP OF NO ATTENTION!

Anyone know what the miraculous surgery is that isn’t funded on the NHS? The UK has a number of amazing and well respected centres for intestinal failure and associated GI diseases, with some of the leading doctors practicing there and conducting cutting edge, world renowned research on diagnosis and treatment.

Spoiler: Everything you never wanted to know about UK disease centres

This is just a chat GPT summary but you get the picture

Specific Intestinal Failure Clinics and Their Focus:

• St Mark's Hospital, London:
  The Lennard-Jones Intestinal Rehabilitation Unit (IRU) specializes in assessing and managing patients with severe intestinal failure, including those receiving parenteral or enteral nutrition, as per the hospital's website. The Bowel regeneration and rehabilitation Centre is also developing research in bowel regeneration.
  
  
• Salford Royal Intestinal Failure Unit (IFU) (Northern Care Alliance):
  This unit is a National Reference Centre for complex intestinal failure, with a focus on parenteral nutrition support, according to the Northern Care Alliance.
  
  
• University College London Hospitals (UCH):
  The Intestinal Failure Service at UCH manages complex needs related to gastrointestinal fistulas, with a multidisciplinary team approach, as described on the UCH website.
  
  
• Leeds Teaching Hospitals:
  Provides intestinal rehabilitation and parenteral nutrition services, including home parenteral nutrition support.
  
  
• Cambridge University Hospitals (Addenbrooke's):
  The Cambridge Centre for Intestinal Rehabilitation and Transplant (CamCIRT) offers nutrition support and multidisciplinary treatment for complex gut disorders, including intestinal and multivisceral transplant, according to the Cambridge University Hospitals.

My point is, if there was a legitimate surgery available to treat her “condition”, she would be able to get it in the UK, and probably on the NHS.

What are these “legal fees” that have “utterly exhausted” her parents’ life savings? What is it with these kids ruining the financial wellbeing of those around them? If stress is such a massive problem for her “MCAS”, why not STFU and get on with doing something useful and achievable?! Wouldn’t that money have been better spent on treating her apparently untreatable conditions?

For those not in the know, NHS care is painfully regulated. The whole purpose of having an NHS is to deliver standardised (and therefore “affordable”) care nation wide. Now, you do get a bit of a postcode lottery in terms of how much funding your NHS has (which can mean you need to go to another county to access some drugs and higher cost treatments). When she says she entered a “new NHS”, the NICE guidelines and so on will be exactly the same - the rules haven’t changed, just the people. Here is a short outline of the recommended approach for EDS in the NHS. There are two specialised clinics, and you can self-refer. So, whatever “discrimination” and “gaslighting” she has experienced is likely down to her not actually being sick enough to warrant treatment at any of these places.

My final gripe for today is that she “had a procedure under GA” that confirms no peristalsis which she “knew all along”. Intestinal paralysis is not difficult to diagnose! It is incredibly obvious even on X-ray. All you have to do is eat food normally for a couple of days and X-ray the gut and you can literally see it gumming up the works. Even if that were not possible for whatever reason, GA can impede peristalsis so wouldn’t be recommended to measure contractions in the gut. Plus you can typically look for peristalsis issues with a smart pill, or manometry, or you can hear bowel sounds on a stethoscope so not sure what BS she is on about. She’s been on feeding tubes forever and is only now referred to a GI team? Surely they should have been involved in her care from day one? And why is she getting tube feeds if she has a paralyzed GI tract? It would be like piping pudding into a balloon - your GI tract would expand, you’d be in severe pain, you wouldn’t be able to defecate effectively, and it would be a medical emergency very quickly. What magic surgery is going to scrap the need for all tubes? Is she getting an ostomy? That won’t correct lack of peristalsis in the small intestine, just the large.

TLDR nothing she says adds up! Grargh!

Thanks for tuning in to today’s episode of “grumpy old lady shakes fist at clouds”…

 

[vanilla_pepsi_head]

Intestinal paralysis is not difficult to diagnose! It is incredibly obvious even on X-ray. All you have to do is eat food normally for a couple of days and X-ray the gut and you can literally see it gumming up the works. Even if that were not possible for whatever reason, GA can impede peristalsis so wouldn’t be recommended to measure contractions in the gut. Plus you can typically look for peristalsis issues with a smart pill, or manometry, or you can hear bowel sounds on a stethoscope so not sure what BS she is on about.

Yeah, in any place with socialized health care, I'm pretty damned sure that the nice cheap 30 second low-cost test of "stethoscope to hear guts" is the first line test, and a fairly informative one, given that it is pretty effective at separating hypoactive sounds (usually just constipation, which in absence of recent surgeries, a history of issues, or other symptoms probably nbd), vs no sounds, at which point you'd be fast-tracked for scans and close monitoring to clear the obstruction and maybe an endoscopy to see if emergency surgery is indicated.

What I *think* might've happened is being told a zillion times that constipation due to her eating disorder and opiate consumption isn't killing her so take a laxative and calm down. Then, she munched her way into some kind of (probably elective) procedure requiring general anesthesia - interesting that she isn't being specific about what kind - and when she resumed her catastrophizing about being constipated immediately afterwards, it's possible that someone checked with a stethoscope and heard no sounds. That isn't uncommon in the immediate aftermath of GA btw, but in combination with being bound up from beforehand and exaggerating/lying re: symptoms, MIGHT have been enough to warrant an endoscopy or disimpaction, especially if she's dealing with new doctors unfamiliar with her bullshit. The story we're getting is her deliberately obfuscating what really happened and maybe trying to pass off the toobz as being used to drain the GI tract as would be done if she either needed to be prepped for a surgery to address a severe bowel obstruction that requires it, or if she did have severe paralytic ileus and required a period of bowel rest while waiting for gut activity to resume as normal but accidentally ate before she knew it. The implication that she's needed the toobz to drain her upper GI tract for ages because that's the only treatment she is getting for the paralytic ileus she's been experiencing for a long ass fucking time (that they also don't believe she has?) obviously is a nonsensical lie that she thinks she can get away with by blaming on the big mean incompetent asshole NHS that people are always complaining about.

Either way, this does very little to dissuade my initial impression that she has little to no real training or serious aptitude for medicine beyond what she finds on the interwebs while researching how to make her munching claims sound more legitimate, and that her claims of being a "doctor" or anything close are based solely on her belief that said interwebbing and haunting medical facilities gives her the expertise of one.