I want to believe everything will be ok in the end but I can't. I'm too traumatized from everything that has happened on my phallo journey.
I deeply wish I didn't have dysphoria, because
I wouldn't wish the suffering I endured on my worst enemy.
I started my journey in June and
it's been nothing but hell the entire time. Stage one went horribly wrong.
My dick is so scarred and twisted. On top of that I had a stricture.
I had the stricture repair early September and the only risk was supposed to be the stricture coming back.
The foley erroded my dick and gave me two fistulas.
So if I thought my dick was ugly before, you should see it now.
I got the foley removed and was able to pee. I was finally feeling like things were going right. The fistulas even healed.
But then I stopped being able to pee the same day I had a xray showing my urethra was fine with no blockage.
How can I lose my ability to pee with no stricture? As I said in my other post, this led to a series of ER visits that have left me traumatized.
I was in the ER for three hours screaming and seizing until a pediatric foley was placed. The ER had left me having a seizure, my arms and legs going numb, slurred speech, drooling before they did the foley. The even had to give me something to bite down on to help me muffle the screams. Imagine the worst pain of your life, screaming at the top of your lungs and sobbing, begging for them to kill you, while they did nothing for three hours.
Three hours.
Even when they did get the foley in,
nothing but blood came out for the longest time.
I am pretty sure I have permeant bladder damage. Not to mention, the foley was later replaced with the wrong type of sp catheter at a different hospital that has been causing me extreme pain.
I went to several ERs and NONE of them will replace it. They always call my surgeon and he tells them not to. I'm supposed to suffer for 5 more weeks like this, in physical pain and a piss bag with blood in it because my sp cath hole is 'too new' for a replacement so soon.
Well it wont fucking matter when I'm dead will it?
I'm not able to eat or drink. Im too scared to drink in fear of somehow not being able to pee and having to relive that horror again. I don't eat because the pain makes me depressed.
I've lost so much weight and its only been a handful of days.
I'm trying not to resent my surgeon but I'm so angry. I'm angry I keep getting these 'rare' complications. I have still not been told why I can't pee. I want answers and no one is giving me any.
I used to see hospitals as somewhere safe to go when you need help or are in pain. I'm now so afraid of hospitals I don't think I would go to one even if I was actively bleeding to death.
Everytime I try to drink water I start to hyperventilate. My body is still sore from the seizure from when I was forced to lay there with no help when my bladder was full and I couldn't pee.
I feel weak and scared.
I feel like a animal looking for a dark spot to crawl and die.
I fled the state I was staying in for surgery and went home. I'm still in pain but I was in that fucking state since August.
I don't understand why these things are happening to me.
Everyone sings praises for my doctor, yet all I've experienced is severe trauma. I feel like when I say I'm in pain I'm ignored, both from him and the ER.
And, since I'm stuck with a painful catheter and no way to pee again, I'm forced to rely on a medical system that scares me. I keep being told it's my anxiety's fault. I feel like I'm being gas lit to ignore medical incompetence.
I just wanted to have what everyone else here has. I keep seeing all these success stories from everyone here, even others who went to my surgeon.
Yet here I am,
almost a million dollars later with nothing to show for it but
severe trauma, a eating disorder, and a dick I actively hate.
I hate how it looks, I hate how it doesn't work, and I hate how much I suffered for something like this.
I want to believe things will get better. Please, someone tell me that it can.
Someone tell me I'll be able to pee soon, and that I will have a dick that looks like everyone else's here.
My surgeon casually mentioned the only other case he heard of someone not being able to pee and it wasn't a fistula or stricture it was a 'functional issue'. He never elaborated what that means. He told me it took this guy 5 years to get to pee and he made it sound like it wasn't even a good spot after 5 years.
I don't have 5 years. I won't be in a catheter five years. I'm already so traumatized
I keep getting super, super dark thoughts. I need some hope more than ever right now, anything to help me believe it's worth it to wake up tomorrow.
A reason to not be afraid to drink or eat. The belief the pain and suffering won't be forever. I already have to live in a transphobic horrible country (usa), I need any hope that there is light at the end of this.
Anything.