For a reality TV show version of this, check out "A Spoonful of Us" channel on YT. Four adult daughters living at home because they are too sick to get jobs or go to college. (But not too sick to stay up late, play video games for hours at a time, spend hours editing videos, etc.)
1. Gene - dad, works non-stop to pay the bills for this motley crew. Rarely seen.
2. Lora - mom, conservative/religious, homeschooled all her special snowflakes, drives 15 passenger van everywhere. Has many of the diseases her daughters have, but magically able to do more normal stuff than they do. Enables daughters and feeds into their ideas of diagnoses. Goodwill hauls, hobby lobby, and jean skirts.
3. Sarah - (30?) oldest daughter shown. Actually has autism and medical issues; non-verbal. Needs to be cared for by other adults. Ironically doesn't get much screen time even though she's the only one who actually has severe disabilities.
4. Hannah (26 or something) - also doesn't get much screen time, but likely by choice. Has a litany of physical issues, but if you watch her, you may come up with non-physical diagnoses instead.
5. Rachel - about 24. Gets the most screen time. Spends most of it sighing and saying she's tired. Obsessed with anime, body piercings, and inexpensive jewelry. Actual diagnosis: fatty liver disease (non-alcoholic). Alleged other Dx: POTS, EDS, SPD, depression (that one might be real!), magic fainting and having to lay down in Walmart while shopping, and more. Needed a wheelchair for about a year, is now magically healed. Gamergirl. Gave herself multiple helix piercings on camera.
6. Caroline - 21 or 22, idk. Youngest. Professional victim of bad doctors. EDS, GP, POTS, Mast Cell Activation something something. Most or all self-diagnosed. Constantly going into "anaphylaxis" because she touched the wrong thing, smelled the wrong smell, ate something she wasn't allergic to yesterday. Doctors and nurses rarely believe her, and their casual response to her alleged life-threatening bouts is cause for suspicion itself. Wanted a tube, request rejected. Applied to several Mayo clinics, requests rejected. Medical tests consistently come back normal, convincing her that her diseases are "just too mysterious" for regular doctors.
My theory: conservative religious (controlling) mom doesn't want daughters to be independent or leave home. Enables them to think that their aches and pains = life threatening diseases so that they won't become independent.
A lot of their videos are boring because it's mostly whining, sighing, updating us on medical disorders they don't have, etc. but some are more exciting - Rachel sitting on the floor in Walmart, Caroline apparently having anaphylaxis and medics coming, etc.
Curious to know what you all think. The psychology is absolutely fascinating to me, and under-discussed. It just seems such a waste of life for these young women, it's quite sad when you look at it as a whole picture. What kind of future will they have when the parents pass away?
Some Spoonful of Us episodes, not in chronological order, for your viewing convenience.
Episode 1 - "Hospital Doctor Ignores Dying Caroline"
https://youtu.be/UeJgrXSpUy4
Episode 2 - "We Can't Figure Out Why People Don't Believe Spoonies"
https://youtu.be/jVbRaC457A4
Episode 3 - "Actual Footage of Hannah"
https://youtu.be/66KFSolUB9g
Episode 4 - "Getting Attention at Walmart"
https://youtu.be/BjMKSgPlUPc
Episode 5 - "Yuck" (Not for squeamish; Rachel gives herself Helix piercings )
https://youtu.be/o6QxKfMnVUY