- Joined
- Mar 11, 2017
It's always ehlers danlos with spoonies now. 5 years ago it was all Fibro and before that Chronic Fatigue. I wonder which disorder they'll pick next!
I feel bad for anyone who has it that is now being made to look like fool because "muh spoons".
I see she's also doing that thing where you detail each picture in text for the visually impaired so the screen reader can read it back. But they don't do it for visually impaired followers. They do it to sound as inclusive as possible. Don't try to hide it. It's just extra brownie points. I've even seen some spoonies and general SJWs complain that everyone should have to do it otherwise they are ableist.
So, is she overly flexible with elastic-like skin? I've seen people on Youtube that actually have it demonstrating this.
If you look at some of the individual symptoms anyone could just happen to have a few of them. Hell, I could self diagnose myself with it right now. But I know I don't have it. That's why a syndrome is a group of symptoms that when put together point to a specific illness. It's not "Ow my leg! I have EDS!". Which I guarantee is a good idea of how Jessi and every other spoonie comes up with this.
Wikipedia EDS laundry list: https://en.wikipedia.org/wiki/Ehlers–Danlos_syndromes#Signs_and_symptoms
Signs and symptoms
Signs vary widely based on the specific EDS the person has. This group of disorders affects connective tissues, most typically in the joints, skin, and blood vessels and causing effects ranging from mildly loose joints to life-threatening complications.[7] Major signs and symptoms include:
Musculoskeletal
Skin
- Hyperflexible joints[6] (It is possible to be very flexible or have "double joints", but this is not the same as an EDS.)
- Unstable joints that are prone to sprain, dislocation, subluxation, and hyperextension[8]
- Thoracic outlet syndrome
- Early onset of advanced osteoarthritis[9]
- Chronic degenerative joint disease[9]
- Swan neck deformity of the fingers[10]
- Boutonniere deformity of the fingers
- Tearing of tendons or muscles[11]
- Deformities of the spine, such as scoliosis (curvature of the spine), kyphosis (a thoracic hump), tethered spinal cord syndrome, and occipitoatlantoaxial hypermobility[12]
- Myalgia (muscle pain) and arthralgia (joint pain),[13] which may be severe
- Trendelenburg's sign[14]
- Osgood–Schlatter disease[15]
- In infants, delayed walking (beyond 18 months of age), and bottom-shuffling instead of crawling.[16]
Cardiovascular
- Fragile skin that tears easily[9]
- Atrophic "cigarette paper" scars[1][17]
- Easy bruising[6]
- Redundant skin folds[9]
- Molluscoid pseudotumors,[18] especially on pressure points
- Petechia[19]
- Subcutaneous spheroids[18]
- Livedo reticularis
- Piezogenic papules[20]
Other manifestations
- Arterial rupture[6]
- Valvular heart disease, such as mitral valve prolapse, which creates an increased risk for infective endocarditis during surgery. This may progress to a life-threatening degree.[21] Heart conduction abnormalities have been found in those with hypermobility form of EDS.[22]
- Dilation and/or rupture (aneurysm) of ascending aorta[23]
- Postural orthostatic tachycardia syndrome
- Raynaud's phenomenon
- Varicose veins
- Heart murmur
- Heart conduction abnormalities
Because it is often undiagnosed or misdiagnosed in childhood, some instances of Ehlers–Danlos syndromes have been mischaracterized as child abuse.[34]
- Hiatial hernia[18]
- Gastroesophageal reflux
- Gastrointestinal dysmotility[24]
- Dysautonomia[25]
- Gorlin's sign (touch tongue to nose)[26]
- Anal prolapse[18]
- Collapsed lung (spontaneous pneumothorax)[9]
- Nerve compression disorders (carpal tunnel syndrome, acroparesthesia, neuropathy, including Small fiber neuropathy)[27]
- Insensitivity to local anesthetics.[28]
- Arnold–Chiari malformation [29]
- Platelet aggregation failure (platelets do not clump together properly)[30]
- Pregnancy complications: increased pain, mild to moderate peripartum bleeding, cervical insufficiency, uterine tearing,[11] or premature rupture of membranes.[31]
- Cranial vertebral instability: caused by trauma(s) to the head and neck areas such as concussion and whiplash. Ligaments in neck are unable to heal properly, therefore, the neck structure does not have the ability to support the skull, which can then sink into the brain stem blocking the normal flow of cerebral spinal fluid, leading to issues related to the autonomic nervous system failing to work properly.[32]
- Celiac disease: it may be associated with EDS. Also, can be misdiagnosed as EDS due to common symptoms that may appear in both diseases, including fatigue, pain, gastrointestinal complaints, or cardiovascular autonomic dysfunction.[33]
- Fibromyalgia
The pain associated with the disorders may be severe.[35]
Just take a look at how vague you can be while still claiming to have some degree of EDS. Just pick something from every category then take some pics of yourself in the hospital. The hospitals must be so sick of people like this taking up time that should be devoted to actual sick people.
You know, if you lay around too much it's going to get harder and harder to actually get around. Even if you are able bodied too much sitting is going to turn you into a lazy lump.