Community Tard Baby General (includes brain dead kids) - Fundies and their genetic Fuckups; Parents of corpses in denial

[The Husbando Collector]

After being on this thread I realized something: how come these fundie parents scream and cry about how autism is bad even though depending on how severe the autism is, the kid can have a relatively normal and decent life and don't need to be monitored 24/7. Yet they treat these barely to non sentient tards that require around the clock constant monitoring as miracles of God and something to be placed on a pedestal and will REEEEE at you if you point out the agony these taters are in?

 

[January First]

I'm not terribly familiar with Edwards Syndrome, but just from the description of brain cysts and missing half a heart it sounds horrific.

It's more commonly called trisomy 18. It's a profound disability for certain, but a better diagnosis to get than the full-blown "that's not a disability, that's just being dead" seen in Jaxon/the Hartleys/etc. There's an organization called SOFT dedicated to T18 and similar disorders (e.g. Trisomy 13), and they have a very in-depth booklet on taking care of children with these disorders.

I wouldn't actually be surprised if the mother's reported abortion experiences are, at the very least, not that exaggerated. T18 and T13 exist in a complicated state where until very recently they had basement-level survival rates, and were generally coded as 'incompatible with life' and equal to something like anencephaly, but we've now found plenty of T18/T13 babies survive infancy and have outcomes more in line with 'severely disabled, but can live a happy life'. Practice hasn't necessarily caught up with this, so a lot of genetic counsellors will work from older information and counsel families that these conditions are even more severe than they usually are.

Still not a mild condition at all, though.

 

[One Man Bland]

After being on this thread I realized something: how come these fundie parents scream and cry about how autism is bad even though depending on how severe the autism is, the kid can have a relatively normal and decent life and don't need to be monitored 24/7. Yet they treat these barely to non sentient tards that require around the clock constant monitoring as miracles of God and something to be placed on a pedestal and will REEEEE at you if you point out the agony these taters are in?

Do you have any examples of this? Because in my experience the kinds of moms being against autism are less of the fundie variety and more of the crunchy so to speak.

As for the disconnect, I think it has something to do with the shelf life of the denial. I've noticed a common pattern with these moms, in this thread especially, where they go through a period where they are looking for meaning in every voluntary movement for signs of a cognitive motive on the tater's part, or treat every potential development with reverence even when the development indicates that the tater is way behind where they should be at their age. I've been seeing this a lot with Gwen Hartley, Jaxon, and Evey especially.

The thing about these conditions though is that the "progress" will only go so far, and eventually that progress will putter out into a plateau, and often that plateau eventually becomes a decline. Where I think the autism moms and the tater moms differ is that the taters tend to not grow much past the baby stage, which I think makes it a little easier for them to tell themselves that there's still hope for progress since there's not a whole lot of physical growth either. With autism however, at least with the severe cases, you kinda don't have that as a toddler that's way behind their peers eventually turns into a 10-year-old with the mental development of a 2-year-old, and then that 10-year-old becomes a 200 lbs adult who still has the mental development of a 2-year-old. It's just way harder to say there's been progress at that point.

 

[Hellbound Hellhound]

After being on this thread I realized something: how come these fundie parents scream and cry about how autism is bad even though depending on how severe the autism is, the kid can have a relatively normal and decent life and don't need to be monitored 24/7. Yet they treat these barely to non sentient tards that require around the clock constant monitoring as miracles of God and something to be placed on a pedestal and will REEEEE at you if you point out the agony these taters are in?

I think a lot of the time they're just in denial. Autism is a psychological condition, and the fact that psychological conditions don't usually manifest themselves physically makes it much easier for fundies to insert their own beliefs into what cannot be seen or physically identified. Usually, this means that they will either deny that their child has a condition at all, or otherwise attribute it to some nefarious environmental cause or influence (such as vaccines).

With severe disabilities, denial of this sort is not really possible, so it instead takes the alternative form of the parents denying that their children are any less valuable or functional members of society. It is for this reason that such parents often go to great lengths to celebrate what most people would view as incredibly mundane and insignificant. It fulfills their fantasy that their children are moving forward and achieving things in life, when in actuality they will never amount to anything.

 

[John Merston]

It's more commonly called trisomy 18. It's a profound disability for certain, but a better diagnosis to get than the full-blown "that's not a disability, that's just being dead" seen in Jaxon/the Hartleys/etc. There's an organization called SOFT dedicated to T18 and similar disorders (e.g. Trisomy 13), and they have a very in-depth booklet on taking care of children with these disorders.

I wouldn't actually be surprised if the mother's reported abortion experiences are, at the very least, not that exaggerated. T18 and T13 exist in a complicated state where until very recently they had basement-level survival rates, and were generally coded as 'incompatible with life' and equal to something like anencephaly, but we've now found plenty of T18/T13 babies survive infancy and have outcomes more in line with 'severely disabled, but can live a happy life'. Practice hasn't necessarily caught up with this, so a lot of genetic counsellors will work from older information and counsel families that these conditions are even more severe than they usually are.

Still not a mild condition at all, though.

Semi-relevant to this discussion: there's a blog by a guy with mosaic trisomy 18. He's mildly EXCEPTIONAL, but he can still walk, talk, and perform basic self-care skills. Unlike the vast majority of kids discussed in this thread, he's found an occupation that makes him happy-writing plays and participating in the Canticle Youth Theater.

 

[One Man Bland]

It's more commonly called trisomy 18. It's a profound disability for certain, but a better diagnosis to get than the full-blown "that's not a disability, that's just being dead" seen in Jaxon/the Hartleys/etc. There's an organization called SOFT dedicated to T18 and similar disorders (e.g. Trisomy 13), and they have a very in-depth booklet on taking care of children with these disorders.

I wouldn't actually be surprised if the mother's reported abortion experiences are, at the very least, not that exaggerated. T18 and T13 exist in a complicated state where until very recently they had basement-level survival rates, and were generally coded as 'incompatible with life' and equal to something like anencephaly, but we've now found plenty of T18/T13 babies survive infancy and have outcomes more in line with 'severely disabled, but can live a happy life'. Practice hasn't necessarily caught up with this, so a lot of genetic counsellors will work from older information and counsel families that these conditions are even more severe than they usually are.

Still not a mild condition at all, though.

While I get this organization is trying to help parents by telling them what to expect and assure them their severely disabled kids might still have a chance of having a full life, if I were a prospective parent reading this, seeing the first few pages after the ToC basically being an obituary with a ton of the kids evidently not living long past the age of 10, the weird moments where it seems like they're trying to downplay the mortality rate with "Sure your kid will have a 50/50 chance of surviving the first week BUT if they do that they'll have a 5-8% of surviving past the first year without constant invasive medical intervention, and if they do that they might live past the age of 5" or the neurological development with a chart that shows on average kids with this condition can hope to reach the development of a 24 month old by the age of 21 would not fill me with confidence.

 

[GenociderSyo]

Semi-relevant to this discussion: there's a blog by a guy with mosaic trisomy 18. He's mildly EXCEPTIONAL, but he can still walk, talk, and perform basic self-care skills. Unlike the vast majority of kids discussed in this thread, he's found an occupation that makes him happy-writing plays and participating in the Canticle Youth Theater.

Mosaic tends to be the mildest since not all the cells have the mutation its possible that very few of his have the mutation.

The website on mutations of the 18th chromsome has a good definition of mosaicism and how it effects things:
Chromosome 18

 

[MirnaMinkoff]

Semi-relevant to this discussion: there's a blog by a guy with mosaic trisomy 18. He's mildly EXCEPTIONAL, but he can still walk, talk, and perform basic self-care skills. Unlike the vast majority of kids discussed in this thread, he's found an occupation that makes him happy-writing plays and participating in the Canticle Youth Theater.

He’s a pet tard someone created that blog for to further some pro-life crap or ass pats. I’m sure the youth theater loves having to try to find roles they can shoe horn him into to make him feel better.

While I get this organization is trying to help parents by telling them what to expect and assure them their severely disabled kids might still have a chance of having a full life, if I were a prospective parent reading this, seeing the first few pages after the ToC basically being an obituary with a ton of the kids evidently not living long past the age of 10, the weird moments where it seems like they're trying to downplay the mortality rate with "Sure your kid will have a 50/50 chance of surviving the first week BUT if they do that they'll have a 5-8% of surviving past the first year without constant invasive medical intervention, and if they do that they might live past the age of 5" or the neurological development with a chart that shows on average kids with this condition can hope to reach the development of a 24 month old by the age of 21 would not fill me with confidence.

This x1000. As a parent you are the one who must care for a child for the rest of its life. Anyone with kids can tell you how utterly exhausting a infant, baby, toddler is to care for. Besides the diapers and trying to get food in them you are on 24 hour suicide watch because the little guys are always 10 seconds from finding a new way to maim or kill themselves. The idea of deal with that level of function for 20 or 30 years?? Or that level of functioning with a 140 lb adult instead of a 25 lb toddler. Fuck no.

I have all the sympathy in the world for someone who unknowingly has a tarded kid - it does happen and it was extremely common until recent advances in prenatal diagnosis. But knowingly chose to have a child that will never progress beyond a toddler mentality is not a choice many people would make.

I think part of the issue is they focus on the infant/child stage. The grim realities of caring for an adult with the mind of a child isn’t a lifetime of innonce and wonder - many times it’s impotent rage, public masturbation and adult diaper changing. Whereas their mind may be at toddler stage, their endocrine system gives them all the adult hormones and drives.

 

[Littleblackchyld]

There is a mom in a group I belong to with a child who has Harlequin Ichthyosis. Poor kid looks like he is constantly in pain.

I think the oldest living person with this is 33 or so and lives in the UK. What upsets me most about her case is that her parents had 3 other children before her with the same issue. At that point, it’s definitely genetic and perhaps adoption or egg/sperm would have been a good idea.

'Snakeskin woman' is oldest with rare skin condition

Nusrit Shaheen, from Coventry, Warwickshire, suffers from an incredibly rare condition, Harlequin Ichthyosis, which causes skin to grow at 10 times the normal rate.

www.dailymail.co.uk

 

[Marigold_Souci]

I think the oldest living person with this is 33 or so and lives in the UK. What upsets me most about her case is that her parents had 3 other children before her with the same issue. At that point, it’s definitely genetic and perhaps adoption or egg/sperm would have been a good idea.

'Snakeskin woman' is oldest with rare skin condition

Nusrit Shaheen, from Coventry, Warwickshire, suffers from an incredibly rare condition, Harlequin Ichthyosis, which causes skin to grow at 10 times the normal rate.

www.dailymail.co.uk

I can handle a lot, but for some reason this condition makes me gag uncontrollably. It's just cruel not to abort when it's a clearcut case of an agonizing existence. At least the potatoes don't really feel anything.

 

[One Man Bland]

I think part of the issue is they focus on the infant/child stage. The grim realities of caring for an adult with the mind of a child isn’t a lifetime of innonce and wonder - many times it’s impotent rage, public masturbation and adult diaper changing. Whereas their mind may be at toddler stage, their endocrine system gives them all the adult hormones and drives.

I think the other problem is that a lot of advocates like to focus on the Best Case Scenario and treats those like they’re the norm, or even in cases like autism where advocates act like the severe cases simply don’t exist.

Which is really damaging in the long run since not only do you give the parents who do have to deal with the severe cases false hope and unrealistic expectations on what to expect - especially with conditions where the Best Case Scenario is extremely rare - but advocate groups end up treating existing severe cases like Undesirables who conflict with their narrative and the issues that only hurt the severe cases like the lacking of social assistance and services as special needs children become special needs adults go pretty much ignored.

It can be gutting to have a special needs adult under your care, reaching out to local groups who claim to provide resources for families in your situation, only to find out even they don’t want anything to do with you because you cramp their style and aren’t good PR.

 

[ricecake]

There is a mom in a group I belong to with a child who has Harlequin Ichthyosis. Poor kid looks like he is constantly in pain.

I knew a woman online whose husband has icthyosis. Had a kid with it too. Then had two more fucking kids with it. Hours of her day is spent on skincare so they aren't walking around with bleeding cracked skin.

Her husband also trooned out, she stayed married to him and now their 12 year old claims he's a girl like daddy. Massive shitshow of a family.

 

[Crunchy Leaf]

I knew a woman online whose husband has icthyosis. Had a kid with it too. Then had two more fucking kids with it. Hours of her day is spent on skincare so they aren't walking around with bleeding cracked skin.

Her husband also trooned out, she stayed married to him and now their 12 year old claims he's a girl like daddy. Massive shitshow of a family.

wait omg I think I've seen this lady around the internet, is the husband Asian?
assuming it is them, it's a milder form of the condition--obviously milder is relative here.

 

[MirnaMinkoff]

I knew a woman online whose husband has icthyosis. Had a kid with it too. Then had two more fucking kids with it. Hours of her day is spent on skincare so they aren't walking around with bleeding cracked skin.

Her husband also trooned out, she stayed married to him and now their 12 year old claims he's a girl like daddy. Massive shitshow of a family.

I know who you are referring too. The mother (with icthyosis) was on the board or president of the icthyosis non-profit a few years back and they say they are a “lesbian” couple.

The troon partner makes sense now because I wondered who impregnate such a crazy bitch. Even Sperm banks would have strict criteria about allowing a mother with such a obvious and terrible genetic condition to use sperm to get knocked up.

They were shocking due to the fact of the mother having the disease and choosing to pass it along to multiple children

I couldn’t believe what a awful bitch the mother was to bring children into this world with such a horrible lifelong condition. I’ve known people with genetic conditions that are far far less severe who chose to adopt or not have kids because they didn’t want even chance passing along their condition to a child.

I think the mother wanted lifelong partners to suffer along with her. I cannot fathom knowingly subjecting any of my children to such pain and difficulties. What a selfish cunt.

. Icthyosis are the nightmare fuel babies, photos of them can scare women away from pregnancy forever. It was a death sentence for most. The mother might be one of the oldest living cases. Either her case wasn’t worse case scenario or she was born just on the cusp of treatments being available. Walking around like a human in a larval stage of skin shedding, constantly costing yourself in grease so your skin doesn’t literally crack and fall off is no way to live.

 

[Crunchy Leaf]

I like how multiple people on here are familiar with this lady.
They have lamellar icthyosis type II, which is indeed different from harlequin. The kids look pretty normal. I won't post pictures because they're all like 10 but her Facebook is not locked down well at all.

About her son, the one that's now 'transgender'--kids were making fun of him at school for being smelly

For those of you that don't know, he has congenital ichthyosis. It's a keratin disorder that makes the skin grow too fast and tends to harbor bacteria in larger quantities than normal people have. Thus, certain parts of him tend to smell very faintly of belly button lint, even after a shower, which he takes every morning with lots of acids, scrubs, filing and anything else we can do to keep it under control. We spend roughly an hour a day in the bathroom just for his regular shower.

His hands and feet crack. He has very little finger strength and struggles to manage many daily things like opening markers. We use the slider baggies because he can't manipulate regular zip-lock type bags, reusable plastic dishes/lids, etc. He has trouble with zippers, cannot tie shoes and wears orthotics in his shoes to help him walk normally. He is heat-sensitive and dehydrates quickly.

The one with icthyosis is the tranny, by the way.
And of course the real woman changed her name to her husband's.

 

[MysticMisty]

While I get this organization is trying to help parents by telling them what to expect and assure them their severely disabled kids might still have a chance of having a full life, if I were a prospective parent reading this, seeing the first few pages after the ToC basically being an obituary with a ton of the kids evidently not living long past the age of 10, the weird moments where it seems like they're trying to downplay the mortality rate with "Sure your kid will have a 50/50 chance of surviving the first week BUT if they do that they'll have a 5-8% of surviving past the first year without constant invasive medical intervention, and if they do that they might live past the age of 5" or the neurological development with a chart that shows on average kids with this condition can hope to reach the development of a 24 month old by the age of 21 would not fill me with confidence.

Yeah, when Kayli first got brought up I looked up just the Wikipedia page for Edwards syndrome/trisomy 18 and the prognosis is very, very poor. Only one person with it lived to adulthood, and she lived only to 25. Fundies will go "Well a chance is a chance!" but such poor prognosis for something that always produces profound disability when they do live is just something awful to go with.

 

[MirnaMinkoff]

I like how multiple people on here are familiar with this lady.
They have lamellar icthyosis type II, which is indeed different from harlequin. The kids look pretty normal. I won't post pictures because they're all like 10 but her Facebook is not locked down well at all.

About her son, the one that's now 'transgender'--kids were making fun of him at school for being smelly


The one with icthyosis is the tranny, by the way.
And of course the real woman changed her name to her husband's.

Holy fuck, disgusting skin disease and decided they were a woman. Troons tend to be narcissists so I’m not shocked he was a-ok passing along this disease to his children.

The actual woman who married and bred with this person should be ina psychiatric hospital. It’s particularly horrible because if they really wanted kids getting a healthy sperm donor would have been easy, or even doing IVF and having the embryos genetically screened.

Guess dad really though his painful skin shedding troon genes needed passed on. Not the least bit surprising one of their poor kids wanted to be a pretty skin peeling princess just like daddy-mom!

What a selfish POS. I’m sure he’d screech that not wanting kids to have a painful, disfiguring skin condition is ableist.

 

[ricecake]

Wow their family is a semi-famous internet freakshow.

They also have an adopted daughter. I was active on a forum with her when the daughter was a toddler and the mom fucking hated that little girl. It circles back to the discussion about kids who have disabled siblings: I always felt terrible for their daughter because she was certainly neglected for her brothers' disability and now she's not cool and trans, either. All on top of being adopted.

The mom is loco. She tried to leave when she caught her husband wearing her nightgowns then fucking random dudes, but he pulled the typical troon shit: jerking her around on visitation, threatening suicide. I guess it worked on her.

 

[Marigold_Souci]

Wow their family is a semi-famous internet freakshow.

They also have an adopted daughter. I was active on a forum with her when the daughter was a toddler and the mom fucking hated that little girl. It circles back to the discussion about kids who have disabled siblings: I always felt terrible for their daughter because she was certainly neglected for her brothers' disability and now she's not cool and trans, either. All on top of being adopted.

The mom is loco. She tried to leave when she caught her husband wearing her nightgowns then fucking random dudes, but he pulled the typical troon shit: jerking her around on visitation, threatening suicide. I guess it worked on her.

I would absolutely love a thread on this trainwreck, or at least a nudge in the right direction so I can peek in on the insanity.

 

[Kate Farms Shill]

I would absolutely love a thread on this trainwreck, or at least a nudge in the right direction so I can peek in on the insanity.

Yeah my google skills are failing me right now and I need someone new to point and laugh at, plz advise.